Evening Routine for Elin and Alice

  Рет қаралды 13,466

ParentXP

ParentXP

2 жыл бұрын

You have asked for a vlog showing my evening routine for Elin and Alice, and I always do what you ask, don't I 😃
This is an evening routine for a school night, when I have both girls with me. So that's an overtired 5 year old, and a normal tired 8 year old child with cerebral palsy, and a super tired mum.
The music I am singing along to is by Swedish singer songwriter Melissa Horn.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp

Пікірлер: 19
@orchidsrosesg_disone4431
@orchidsrosesg_disone4431 2 ай бұрын
❤❤❤ those girls are sweet ❤❤❤Alice is soooooo helpful 😊😊😊
@patriciamcfadden869
@patriciamcfadden869 2 жыл бұрын
Pajamas. Pajamas. Pajamas. Lol. I laughed so much! You 3 are just darling! Love your videos!
@ParentXP
@ParentXP 2 жыл бұрын
I edited out at least three pyjamases 🤣
@esthermartin768
@esthermartin768 2 жыл бұрын
Elins sweet smile makes my day! Thank you for sharing your life with us. My daughter is the same age as Elin and many of the same diagnosis. Want to give her a huge hug!🥰🤗
@ParentXP
@ParentXP 2 жыл бұрын
Elin loves her snuggles 💕
@brandiabyss8727
@brandiabyss8727 2 жыл бұрын
Hi tova! I always watch your videos. Shoot sometimes I re-watch videos. I love your whole dynamic with being a mom. I just love it. & Just you as a person! Is there anyway I could reach out to you, somewhat privately? I promise promise I'm not a creeper. Lol it's just in some of your videos I see you're going through some of the same things as myself, I truly would enjoy a real conversation with someone that seems genuine & able to break things down in the sense that you do. I love it. You have 2 beautiful baby girls! I love the way you sing to elin when brushing her teeth & other things. It makes me smile. It's so sweet. 🥰❤️❣️
@ParentXP
@ParentXP 2 жыл бұрын
Hi Brandi. First of all, thank you for these amazing words. Are you using Facebook or Instagram? I'm parentxp on both and if you reach out on either of those we can take things from there. I may want to bounce an idea with you about making myself available for those kinds of conversations 😉
@brandiabyss8727
@brandiabyss8727 2 жыл бұрын
@@ParentXP I do indeed have a Facebook! I don't use Instagram, unfortunately. So I will reach out to you now on Facebook, I can't wait to hear back from you! I'd love to hear any ideas you have! & You're so very welcome ❤️♥️
@alexthesaintbernardlover5938
@alexthesaintbernardlover5938 2 жыл бұрын
You are a fun mum
@ParentXP
@ParentXP 2 жыл бұрын
I try. Or I'm very trying, one of those 😂
@alexthesaintbernardlover5938
@alexthesaintbernardlover5938 2 жыл бұрын
@@ParentXP hope you had a great day
@maddielangdell6496
@maddielangdell6496 2 жыл бұрын
Is your half term different for you as my kids half term is this week ? the mickey button situation last night must have been so stressful lucky she didn’t have to go to hospital hope your all well
@ParentXP
@ParentXP 2 жыл бұрын
It must be then, but that's common, different half term weeks.
@melissadarty
@melissadarty 2 жыл бұрын
How does Elin handle going to the dentist?
@ParentXP
@ParentXP 2 жыл бұрын
Really well, she's a flirt and likes smiling at people. When she was younger she fared less well, but she screamed a lot back then. So far they haven't done any actual work on her teeth. Tooth decay is expected but we'll blow that bridge up when we get to it..
@melissadarty
@melissadarty 2 жыл бұрын
@@ParentXP thank you tova
@pamelagreenfield1899
@pamelagreenfield1899 2 жыл бұрын
Alice so we can eat in it? Lmao
@ParentXP
@ParentXP 2 жыл бұрын
I've not had the heart to tell her i'm returning it... It's too wide for my bath tub.
@marilynmas6090
@marilynmas6090 2 жыл бұрын
gvvv
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