Fibromyalgia | A Whole Body Pain Experience and Fatigue

[@kalliope420]

this video has a lot of what to do, but not why, i thought maybe i can add some more information down here. my mother and I are both diagnosed with fibromyalgia. i have seen rheumatologists, psychologists, physiotherapists, pain management specialists, but my symptoms are only getting worse. however in my ongoing search for better options i have learned a lot. • every single doctor i have seen has recommended improving sleep quality. this video mentions a few ways to do this and i would recommend trying as many as possible, such as avoiding stimulants like caffeine and sugar before bed, avoiding screens starting a few hours before bed (if you can't manage this, use a blue light filter, blue light is a big part of what keeps you brain awake and can strain your eyes as well), try to design a sleep schedule you can keep consistent. this will be hard. avoid exercise right before bed, but stretching before laying down can be good. if nothing works you may have to seek out medication for sleep- most doctors will start with melatonin, a hormone to regulate the sleep cycle. there are other options if this is not enough. communicate regularly with your doctor or doctors about which treatments arent working so that adjustments can be made • next, diet; sugar and alcohol can worsen the symptoms, and it may be worh experimenting to see what specific foods affect you personally. tests to find out vitamins or minerals you may be lacking in can be a helpful step, and i would 100% recommend seeing a _nutritionist_ in addition to a medical doctor. nutrition is not a required course for all medical doctors, so a nutritionist can offer advice regarding vitamins and supplements to treat certain symptoms, while a medical doctor can help you with prescriptions, tests, and referrals to specialists. • exercise. i don't know about all people with fibromyalgia, but mine and my mom's is related to and worsened by hypermobility of the joints. whether this is the case for you or not, physical therapy and low impact exercise avoiding long lasting aches afterward can improve your pain threshold and functioning. swimming is very good exercise for people with fibromyalgia as you can work out your whole body without putting so much weight or strain on your joints. •mental health: cognitive issues with fibromyalgia need the other symptoms to be addresed, as a lot of the problems with memory and focus are the result of poor sleep and pain, which will make you brain tired and even physically damage it. a lack of restful sleep lands you with poor memory function and sleep debt which is difficult to fix. constant fatigue and pain can cause depression and even complex trauma, which can alter and further damage your brain. speaking with a mental health and/or pain psychologist along with the steps to address your physical symptoms could be beneficial or even necessary. physical, medical doctors aren't the sole or best option for dealing with fibromiyalgia, as they may focus on the physical causes and treatments for pain. but fibromiyalgia is an issue with the brain and nervous system, and is worsened by stress, exhaustion, and depression. a neurologist, psychologist, or occupational therapist may be able to help you with reducing stress in your life, finding strategies to calm the nervous system, and making adaptations to your environment and routines to better suit you needs. if anyone has a question, i would be happy to tell you what i know or suggest where to look to find an answer.

[@FME]

How long have you had this? This is a good practical insights, thank you for taking the time. Will pin your comment for eternity.

[@lookup2094]

Alot is to do with the belief system of the bodies shakra alignments.

[@TheRealLadyMagnus]

I stopped drinking any alcohol of any kind and it has helped a lot. I'm now looking into diet. That bad part is I work overnight and I feel like it's making things worse. I slept for 13 hours straight the other day and only woke up because my husband thought I was dead when he checked on me.

[@lookup2094]

You say stress is a contributing factor and you have been to see alot of people. They must be stressing you out with the wrong answer if that makes you worse. Finding the right person for this job and training others in it is been a challenge for a number of reasons lately. It is a complexity of a multitude of things. Happening. We all have differentiated extent of this problem and alot can be self healed. But learning more about yourself and what is best for your body type for starters is a big role player in this condition i noticed. And if your asking help from someone who either doesnt give a shit which your notice really easily we can be easily aggrevated which we do not mean to it is a painful process to be going through. And carelessness is not something that is of standard for patients. For alot its having confidence to beable to trust because of whats been going on its hard to. Process of elimination not everyone is as smart as the last one or the next one sort of hard to explain things being a fibro guy myself.

[@lookup2094]

Also GHB has been a problem for peoples health people use this to sedate/put to sleep but it can have a damaging and toxic effect and can leave a person with microneurological problems and other health conditions and infections can occur. Must be something biological added in which with someone drunk who gets spiked or accidently drinks to much can die instantly. Or it can cause different moods when used in measured doses. This is what rapists and other gang related people have been putting into peoples drinks so mostly women as you could imagine.

[@thefaithful5991]

This is very hard , it has made me very weak , fatigued and unable to fulfil my daily needs but In'sha'Allah I will recover one day.

[@cleetorres1351]

They ate liars and you need to wake yp and find a way to live Could be a parasite or mineral defency but it will be something. Don't let them lie to you work a way

[@thefaithful5991]

@@cleetorres1351 I will try always, thank you.

[@cleetorres1351]

@@thefaithful5991 Hi please give me a few mins . I need you to get these tests . Vitamin d . B12 . Folate acid . Hemoglobin. Crp test . Esr. I know your brave and I know your scared . No one will understand what your going through. They can love you but they will grow to doubt you . Question your mind ect . I might be able to help if I can . Pls send me your symptoms and list it all . There are things like a hlab27 test that can save your lofe6. The lost is expensive. I know you feel abandoned now and it's important you use this time to find it and heal . Pls let me help you I want nothing but you to be ok . Send me symptoms and I will try . Your stronger than you know . I hope your ok ..let me try pls

[@cleetorres1351]

@@thefaithful5991 the list is extensive. I don't mean to worry you m they got my diagnosis wrong and I lost 2 limbs and I have a serious autoimmune disease m I lost everyone intill they listened and I found it . If they had ha e investigated I could have had a enter quality of life. But Its ok as long as i xan and i have helped some . I am 31 now suffered for 11 and a half years . Let me try

[@thefaithful5991]

I have found a cure , do not stress look after the mind and consume Natural SeaMoss it comes in a jar usually and you have 2 teaspoons a day in a warm drink. Tastes bad but cures you.

[@southwestshelly]

for god sake - practice mindfullness and keep a journal. yeah, great, thanks for that. I've been up all night with back pain and I've got a full day ahead of me.

[@fibrowarriors]

I agree. I know the hell of that pain. I've had it for 41 years. You have my sympathy. My best advice, if at all possible, don't push yourself too hard. Stress & trauma just make it worse. Have you seen your doctor?

[@Nba_kevin01]

Dr Obinyan herbal treatment cured me completely from fibromyalgia with in 3 weeks of taking his supplement. I can now sleep peacefully without any pain's..

[@MarlaErin]

My entire body just hurts all day every day.

[@Iamjazminmariah]

Yes

[@pursedelighted]

I know😢

[@AM-dn1iq]

Achy all day?

[@topazzz1546]

I been dealing with it for years, but I keep reminding myself, atleast it isn't cancer. That helps abit. 😆

[@youspace5960]

Same

[@wastemateriall]

What r symptoms ...i have anxiety problem but dont know is it anxiety or fibromyalgia

[@MinnaAndersen]

@@wastemateriallomg im in your excact situation rn

[@wastemateriall]

@@MinnaAndersen bro i am recover fully fit n fine...

[@pillbobaggins2766]

i was diagnosed as a teenager. it sucks being diagnosed with anything so young when everyone thinks youth means perfect health. i became sick after a bout of glandular fever. i found not even caffeine can help me remain alert.

[@pillbobaggins2766]

i never got to have a normal life. i can't even go to support groups, it's old ladies telling me about when they were young

[@ths-ig6ww]

I know this comment is really old but i feel ya, and then people will say stupid things like "you couldn't! your so young" it's really tough not having anybody you can relate too when your feeling so awful all the time, even if you see other people with it, it still feels like your on your own. But there will always be someone out there to hear ya out, even if you haven't found them yet :] i apologize if my comment is a little 'ugh' because im sure you've probably gotten it alot before 😅 i think it's important to stay positive when our bodies aren't!

[@hughlindsay540]

Glandular fever kicks mine off.

[@crazycajunsunshine]

I have Lupus and Fibromyalgia and very few people understand how serious either one is

[@gijsbon8065]

yup, rarely anyone understands, even doctors.. which makes it very tragic. try serrapeptase, it's been my life savor

[@ian3525]

Hope u are doing well, I’ve been feeling pain all over my body and tiredness for quite some time.

[@aidabrothers0715]

I can relate🥺 sending you good vibes ! No one can understand us and many still think it’s mental …..treatments? The side effects are lethal…..

[@lookup2094]

You also might want to get lymes diseased checked for there is an overlapping confusion or lack of knowledge and the damage it causes is irreversable to some extent. Genetics are a coding thats why we should be looking after our temples. And im glad ive hustled this hard so far and managed to get a breif encounter with some who have good knowledge of stuff.

[@lookup2094]

Partly due to it being, unfortunately danmed or damming times. There has been a high amount of neglect in the care of certain hands. Now its time for justice people not qualified lieing to you about whats wrong with you. Whilst the people who are helping burdened with stress because those pushing in to cover up and turn something easily fixable nearon impossible and disease bound. This is humanitarian crimes this is like biotech genesis. Bite the hand that feeds you attutude which doesnt go down to well. There has been so much hate and dishonour. All sorts wrong with the minds of you disgusting rapist murderers. This is all against what God made Earth Thor. To make all come together for a new year together. People should have improved by now with hour Great Our British Services have been to try and save people from this failed Lab test yet being punished and burdened and hated for it at the same time whilst no one is even getting better because of the little bastards causing all this shit there know their names and by God i tell you this know they really have got along way as a species acting like there something more or above because there narratives are all wrong what treachery is this everyone forgets who they come from and where. The cosmos is of LIGHT and if your DARK and shady that path isnt very long for you in eternity. Peace out

[@flowerinthedawn1]

I' m also suffering from fibromyalgia for years and I strongly suggest people to read When The Body Says No written by Gabor Mate. After that you should read Body Keeps The Score by Bessel van der Kolk. I find that whoever suffer from this sickness has also have underlying childhood traumas. I think psychology have a huge role on this. In general, people who can't say no, people overly nice, people supress their emotions and try to please everyone are more prone to this.

[@Celestialkarma]

Thanks for the info God bless dear

[@Corean_Jesus]

Late comment but how are you nowadays ? Have u gotten better ? What are some tips ? I think u are onto something !

[@geethanjalibalaji5232]

I have overcome this disease by the grace of God and help of my father ...

[@mariskagolden7308]

What did you do

[@wastemateriall]

How

[@shelbywilmoth839]

Please share how! Oh I would give anything for relief.

[@Pedro8k]

I don't think you had it then it is not curable

[@7T7777]

@@Pedro8k Everything is curable through God.

[@hosannaamane6031]

The kurzgesagt is strong in this one

[@ChersCorner]

GLAD ITS NOT JUST ME

[@silvermoonuk]

Hi. I have fibromyalgia. I'm in my thirties and had it since my 20's. It is a nasty condition and can disable many ppl with it. Everyone will get some of the symptoms of fibromyalgia but with us, it is alot worse for it. Even on my good days, I struggle. On my bad days, I'm in bed 🛏 the only way I can make ppl realise what fibromyalgia is like, well it feels like bad flu and a hangover on a daily basis.

[@funnybone4086]

Sorry, hope you're better

[@silvermoonuk]

@@funnybone4086 thank you 😊

[@dusicalazovic5339]

It's a severe D3 deficiency illnesses !!! Blood test must be check and D3 must be in OPTIMAL range !!!

[@silvermoonuk]

@@dusicalazovic5339 not always. My date levels are normal but I still have fibromyalgia. There's ppl with vitamin deficiencies that don't have fibromyalgia.

[@ummsaz]

@@silvermoonuk fibromyalgia is a relatively new condition and a term given by doctors. A good diet, stress relief exercise and generally positive outlook in life can slowly minimise the symptoms and hopefully some people have been fully cured too. Just takes discipline and optimism.

[@oo6112]

Some of us live in agony with this disease everyday of our lives. When every doctor has failed, when no one cares, when the world abandons you. We can't even commit suicide......the world lets us suffer endlessly. There should be help for someone like me who wants to die already and finally be at peace. It's not fair to have to live this way. I have tried everything for the last 20 years to be better. Take a trigger I can't fully control to send me into a flare and with no medication or anything to help ease the pain.....I would rather die

[@j.mcconnell5260]

You have sacral Tarlov cyst disease. Treat it to be pain free. Just ask . I'm a patient selling nothing. It'll take injections.

[@dr.jessebautista4658]

To Oo don't give up you don't no that the treatment might just be around the corner I hope this might help I MIGHT explain why you have FIBROMYALGIA and what's causing it. FIBROMYALGIA and C.F.S/M.E is a combination of auto immune disease and neurological mal malfunction it is cause by The following 1) eating process food that causes inflammation of the body if you watch people giving testimony about changing their diet helps them cope up with this functional disorder part of it is true2) history of Alcohol abused 3)caused by infectious bacteria to or virus 4) STRESS AND DEPRESSION 5)severe malocclusion and having T M.J problem this is hereditary or iatrogenic all these I mention will do one thing caused your oxygen level to decreased.inthe tissue and cells of the body. If that happens A.T.P production drop you might want to asked what happen if MY A.T.P DROPS well you see the function of A.T.P it is the energy molecules that produced by the mitochondria of our cell when we Walk, if we RUN ,when we think when our heart pumps blood, when we do exercise ,everything our bodies do requires ATP(adenosine triphosphate) that is the energy currency of our body.thats why we are alive. So what happens physiologically if our oxygen drop the ATP production drop and HIF (HYPOXIA INDUCIBLE FACTOR IS ELEVATED) HIF is a protein that is produced in our cell it's function is both sensor,defensive, adaptation and survivebability of the cell in the changing environment. HIF 1ALPHA is produced by our body in the Norma oxygen level of the cell it is degraded by prolyl hydroxylase but if the oxygen drop like the causes of I mention above HIF1ALPHA is not degraded it combined with HIF1BETA AND WHEN these 2 heterodimer combined they enter into the nucleus of the cell and binds to HRE( hypoxia response element) when these thing happen it promotes transcription of genes for erythropoiesis ,Angiogenesis .and proinflammatory cyrokines,like IL-1.,IL-6 ,IL-4 and 5 ,transforming growth factor beta ,tumor necrosing factor alpha t-helper 17 cells that activate IL-17 these cyrokines that I mention is the one responsible for all the symptoms of fibromyalgia AND CFS/M.E SYMPTOMS and autoimmune diseases. Example of HIF 1 alpha function neutrophil are short live-innate wbc immune cells that contribute to the inflammatory response. HIF 1 ALPHA DELAY THE DESTRUCTION OF NEUTROPHIL .HYPOXIA INDUCES NEUTROPHIL SURVIVAL THROUGH hif-1alpha DEPENDENT

[@dr.jessebautista4658]

Nuclear factor -kappa b activity.that will result in a sustained inflammation that is the reason why it never goes away HIF1-ALPHA IS THE LYNCHPIN OR KEY TO HEALING YOU BECAUSE LOW LEVEL OF OXYGEN MEANS LACTIC ACID ACCUMULATION IN THE CELL AND TISSUE WHEN LACTIC ACID IS AROUND IMMUNE CELLS ARE JUST AROUND THE CORNER ITS THE WAY OUR BODY DESIGN OUR IMMUNE CELLS IS JUST SOING THEIR JOB BECAUSE THAT IS WHAT THEIR THERFORE TO FIGHT INFECTION BUT IN FIBROMYALGIA AND C.F.S THEY MALFUNCTION DUE TO THESE LACTIC ACCUMULATION CAUSED BY I MENTION ABOVE THE TREAENT IS TO INCREASED OXYGENATION OF THE BODY 1)IF YOU HAVE THE REAOURCES YOU CAN ALWAYS GO THROUGH HYPERBARIC OXGEN TREATMENT CHAMBER 2)OCCLUSION THERAPHY IST PURPOSED IS TO ENLARGE YOUR AIRWAY PASSAGE OR YOUR LARYNX TO INCREASED OXYGEN INTAKE IN YOUR BODY OR INCREASWD OXYGEN PERFUSION IN THE TISSUE AND CELLS THUS ELIMINATING HIF1ALPHA THATS MY TREATMENT AND IT WORK SO FAR FOR ME I HOPE I HELP YOU WITH A LITTLE KNOWLEDGE THAT I HAVE ACQUIRED

[@j.mcconnell5260]

@@dr.jessebautista4658 cerebral spinal fluid leaks are iantregenic indeed. The spinal cyst in the sacrum that causes this a sacral Tarlov cyst lies dormant waiting for trauma to become symptomatic. Unsymtomatic it's anterior to the spine. Moves posterior nestled in the dorsal root ganglion. A dorsal root ganglion nerve- block epidural steroid injection lasts 2 months. Blocking the brachial plexus bilaterally C5-T1 plus bilaterally injections in the sacrum of the drug nerve block. Lasting 6 months. Leaves one pain free.

[@dr.jessebautista4658]

@@j.mcconnell5260 maybe you are talking about some or most of the patient suffering from FIBRO M HAVE some kind of a problem IN THE SPINE IT IS TRUE THAT SOME OR MOST OF THE PATIENTS SUFFER FROM ANKYLOSING SPONDIOLITIS TO LORDOSIS AND SEVERE SCOLIOSIS MAYBE THATS WHAT YOU BASED YOUR CONCLUSION IN FACT HAVING SPINE PROBLEM THAT I MENTIONED REALY CONTRIBUTE TO THE SEVERITY OF FIBRO M. AND CFS/M.E HAVE BUT I THINK IN MY OPINION AND EXPERIENCED WITH THESE DISEASES SACRAL TARLOV IS NOT THE CAUSE OF FIBRO M. IT SOME THING ELSED.

[@NYC.NA1]

I think I may have this😮! I have sharp bodily pains, spasms in my leg, dry eyes when I wake up ( red eyes ), fatigue…. I should go to the doctor

[@anasantos3507]

I do live in agony. It is terrible, I don't want to stand up in the morning. I go work like dying. Terrible. Only God can help

[@fernadezsanti575]

I had a little blister on my mouth and genitals which I thought it was just normal, until my doctor told me it was HSV (Genital Herpes) and it has no medical cure, I decided to try out natural stuff by giving a try to Doctor Ani John herbalHome on KZbin, am so glad that I was able to cure my hsv (genital herpes) with the help of Dr.Ani John herbal products

[@dr.jessebautista4658]

Its just a suggestion you might want to try hyperbaric oxygen treatment chamber to increased oxygenperfusion to your cell and tissue this eliminating lactic acid and hif 1alpha

[@peterichard3925]

Visit Doctor Ani John on KZbin channel his herbal medication is the best and permanent solution to all kinds of virus disease and STDs contact him now for help he cured mine

[@Ok_Friend-il9of]

I work 3rd shift and 10 hour days. By the end of the day I’m barely walking out of the building. I go home and cry. Then I lay there for a few hours until I finally fall asllpw

[@lorizolofra3970]

Sorry, but a small nap in the afternoon helps immensely.

[@vincentlawson3355]

herbs from Doctor Ani John on KZbin is the best solution for all kind of health issues contact him now for help he cured mine completely within 12days with his natural herbs 🌿..

[@empressafiya9022]

Avoid taking a nap 😅 so tired I can't help it

[@nouchkadevries4659]

got diagnosed yesterday, I have it on only one side of the body (left). after five years going on and off to the docters, one even called me crazy and delusional....

[@anthonykevin3683]

#drisibor alternative herbal treatment cured me completely from fibromyalgia pain , Doctor Isibor herbal supplements works

[@ackzk]

Same issue. Sadly, some doctors dismiss it as something entirely made up

[@starrosborne7839]

I have rheumatoid and fibromyalgia and you have to pace yourself very well a limited amount and gentle exercise is the way I cope with it rest when you have to and don’t feel guilty about it . We all have a different way of dealing with it as this condition can be managed you just have to find your own way to do it

[@armandorodriguez6447]

Rolling up some kind green is how I cope

[@southwestshelly]

if only it were legal I would join you

[@CJ-cz3hv]

In the netherlands they are doing research about fibromyalgia and how thc helps, NOT CBD, thats a lot

[@a.p.5429]

There are lot of good comments here. I have learned more from others with fibro than my doctor even knows. He put me on an anti inflammatory, Xanax to sleep and pain meds when I am in misery. They do work to combat the symptoms but do nothing to help alleviate the root problem. Seems no one understands the root. A chiropractor helped me with info on diet and told me to do stretching and gentle exercise. He sent me to a therapeutic massage person. That can help. It releases the adhesions in your muscles. I develop knots and adhesions in my shoulders, neck, back and forearms. It doesn't feel good at the time but a day or two later it gives relief for a few weeks. Barometric pressure changes with storm fronts reek havoc. I am also sensitive to chemicals, strong smells, touch can hurt, many fabrics are unbearable on my skin, light, even from a campfire, hurts my eyes. It is so much more than just pain, fatigue and fibro fog. Sometimes it is bearable, flair ups are miserable. Why aren't there any studies devoted to this condition? I feel we are swept under the proverbial rug.

[@oo6112]

You are lucky to have doctors that offer you some type of relief medication wise. I smoke cannabis to try to calm myself down. All the hell doctors put me through for 20 years. I gave up stopped going. I am doing better now through quitting tobacco, diet and exercise. But a lot of my triggers are hard to control. When a bad day happens I have nothing to ease my pain and literally pray for death.

[@j.mcconnell5260]

You have sacral Tarlov cyst disease. Causes everything you've mentioned.

[@j.mcconnell5260]

@@oo6112 read the above. Can mean zero pain.

[@yangki4324]

How am I just learning this about myself now 😭

[@nelsonabreu5963]

I’ve been dealing with this stupid, freaking fibromyalgia for years now. First started with the back then it ended up radiating all over my body. I don’t understand what’s wrong with me. I hate my life I really do. I used to be such a happy, motivated person and now that’s gone out the window. I just don’t know how to solve this. And the times I pray to God, God never came. I just want to be over with this.

[@fcic6685]

I know what you mean, I feel the same.

[@x0539p]

I have just be diagnosed with it as i have tremors in legs and it can get really intense for days on end. I am starting to have pain and i have chronic insomnia. This is a very frustrating illness to have as others can’t see you struggling because it’s on the inside. People do not understand when i tell them i no longer sleep more than r hours a day and it is always a broken up sleep. I long for a good nights rest but i am not ready to go on sleeping pills. I now take melatonin and hope for the best but i can be up for 24 to 36 hours and by then i can get somewhat testy. I feel very frustrated most of the time.

[@fernadezsanti575]

I had a little blister on my mouth and genitals which I thought it was just normal, until my doctor told me it was HSV (Genital Herpes) and it has no medical cure, I decided to try out natural stuff by giving a try to Doctor Ani John herbalHome on KZbin, am so glad that I was able to cure my hsv (genital herpes) with the help of Dr.Ani John herbal products

[@peterichard3925]

Visit Doctor Ani John on KZbin channel his herbal medication is the best and permanent solution to all kinds of virus disease and STDs contact him now for help he cured mine

[@Nba_kevin01]

Dr Obinyan herbal treatment cured me completely from fibromyalgia with in 3 weeks of taking his supplement. I can now sleep peacefully without any pain's..

[@danc2682]

How can doctors diagnose something without understanding pathogenesis or bio markers? I hope you find a doctor who actually tries to understand the underlying issues within your biology. The medical industry really needs some better researchers to start picking apart these vague diseases and making sense of what is actually causing the manifestation of some of these dreadful symptoms.

[@bigbezzzy1231]

@@danc2682 I totally agree that just like to put you in a box without finding the real cause smh

[@brandonray4379]

I taken my dog for a walk in the park. Everything was fine before I went on that walk. Now I can't get out of bed because I'm in pain everywhere.

[@joser83111]

Brandon, I'm the exact way. I know that doctors don't know much since there isn't enough research yet, but I'm a firm believer that there is a root cause to this, aside from we are being told. And therefore there has to be a cure. Do you know when the pain started, anything different you did or went through? Any medication or infection you might of gotten before it all started?

[@brandonray4379]

@@joser83111 After my dog and I made a voyage down a hill and up a few concrete obstacles.

[@Gulchih]

You should try supplementing your existing treatment with natural treatments. Have a small amount like a quater teaspoon of Black Seed oil (Nigella Sativa oil) daily and afterwards some honey. There is no disease in the world that cannot be cured by these two -- countless testimonies can be found from even people with cancer who gave up after no medicines worked and they got better within a few days of having the oil. And honey is repeatedly proven to be a cure for all kinds of inflammation. Cheap and they work. I myself feel like my brain feels clearer when I have black seed oil even though I only have 0.25 ml of it daily.

[@SteleaMP]

@@brandonray4379 How you feel now?

[@brandonray4379]

@@SteleaMP Better. It's been 11 months since that happened.

[@lillyrocks2011]

Be cared about the fibromyalgia diagnosis. There are doctors that diagnose it without really investigate and when they don't want to invest time investigating they'll diagnose with fibromyalgia. I was "diagnosed" with fibromyalgia, but in reality I have an autoimmune disease (Scleroderma) but doctor don't even take the time to listen to the symptoms nor to read the labs etc. properly 😢

[@NusaColeman]

Cptsd, trauma, physical and mental abuse brought mine on. I still live with the person, so it's extremely hard to find calm and peace, all while barely surviving on disability income and about to loose the apt once my mom will move overseas. Idk how I'll become employed now. Cannot imagine waking before 11am and having to be functional but I can't live in LA for under $1000k/mo plus $270/mo in foodstamps

[@nateneyasamuelslaw4620]

My sincerest prayers and healing blessings is being sent your way ❤

[@ashwinzohan4248]

At the start I had all symptoms

[@walaakhayrallah2788]

Thank you for this video but you didn't mention the missing of minerals and vitamins to improve our symptoms

[@juliebryant3968]

Yes it's a good point, I've just started taken vitamins..see how I feel in a few months time..

[@vanessalomoljo4174]

Pls tell what kind of vitamin you take.?

[@SteleaMP]

@@juliebryant3968How you feel?

[@azharmarti]

@@vanessalomoljo4174vitamin D and magnesium u can take b 12 it’s help so much and try ou to say to your self i’m not sick this is not real i swear it’s helped me a lot

[@richamaurya9053]

I am 17 and suffering since I was 13 years old

[@namrathavyshnavi9253]

Same 😢... sometimes I even wanted to die

[@jake8600]

I think i have it hurts alot i cant even sleep

[@ishp1064]

This is what I'm diagnosed with but receive no medical support for! Quite frankly, as I type, I'm still in hell, on my birthday.

[@bonniegrace6633]

I was diagnosed at the Mayo Clinic after $30,000+. Mayo is only one of a small handful of research centers in US. Their treatments did nothing. Long story short, I knew I could not live with all the pain, tiredness, etc. and I had been to the best most knowledgeable clinic for fibro. So I prayed and researched alternative doctors. I hit a winner the first doctor I met. Spent $2500 and he made me pain free, have energy, cognitive function went back to normal, etc. Basically I would call myself cured if I eat right, go GLUTEN-FREE, and take the vitamins and minerals that fibro depletes in my body. Fibro depletes a lot of vitamins and minerals, but you need to be tested for which ones your body is deficient in. On the rare occasions I feel pain, I take CBD (health food store) under my tongue for 60 seconds. Poof pain is gone. I hope this helps. God bless.

[@felipebayona1822]

@@bonniegrace6633 which clinic did you go? Could you put more information? My mother has this, and it's horrible.

[@bonniegrace6633]

@@felipebayona1822 Pain and Brain Healing Center in the twin cities in Minnesota. If you don’t live close, I’m sure if you called their office he may know another doctor that does the same things close to you.

[@Nba_kevin01]

Dr Obinyan herbal treatment cured me completely from fibromyalgia with in 3 weeks of taking his supplement. I can now sleep peacefully without any pain's..

[@Nba_kevin01]

@@bonniegrace6633 Dr Obinyan herbal treatment cured me completely from fibromyalgia with in 3 weeks of taking his supplement. I can now sleep peacefully without any pain's..

[@pragyasavita6855]

I was diagnosed lately...thnx for information...it's very helpful..😊

[@fernadezsanti575]

I had a little blister on my mouth and genitals which I thought it was just normal, until my doctor told me it was HSV (Genital Herpes) and it has no medical cure, I decided to try out natural stuff by giving a try to Doctor Ani John herbalHome on KZbin, am so glad that I was able to cure my hsv (genital herpes) with the help of Dr.Ani John herbal products

[@j.mcconnell5260]

There's a new injection protocol for FM. Means zero pain.

[@pragyasavita6855]

@@j.mcconnell5260 thanks alot for the information..recently it have been really aggressively increasing..hindering me from functioning normally..

[@j.mcconnell5260]

@@pragyasavita6855 thanks for the thanks. If you want I'll give the injection procedures . That's made me pain free. You.. we all deserve this. But first a little information first Coming when I get home. Jordan

[@j.mcconnell5260]

@@pragyasavita6855 okay hers goes. You've got FM absolutely. It's motored by cerebral spinal fluid leaks. That bit of unpleasantness is caused by a spinal cyst usually in the sacrum. Sacral Tarlov cyst disease. My nuerologist said "what's that"? Also said he doesn't believe me nor does he believe in Dr. Google. Two visits later I had him confirm the differential diagnosis. It shows on MRI yet doctors don't know the MRI techniques. I know documentation of this would help. Prevalence of a perineural cyst ( Tarlov) in women who have fibromyalgia 42% NIH. This is the most updated information. The percentage in men is 12%. I'm pretty sure it's actually 100%. In both. If this message finds you. The pain free protocol will be forth coming

[@zilanbenijami3784]

Thank you so much I appreciate your content It helped me alot I'm motivated... Hugs

[@DLo-vc9ut]

Is anyone else’s arms like robot arms? I cannot straighten mine and hurts my muscles when I try to extend them

[@conniehavlovick5263]

This worked for me in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements. It helped my sister in law too. Pain levels went from an 8 out of 10 to a level 2 out of 10.

[@_cosmic_tentacle_salad_6342]

I’ve never been diagnosed but maybe I should talk to a doctor because I have all these symptoms

[@wandaburnsworth1588]

I was told there is no cure, so I do the best I can

[@loonylinda]

I have fibro plus Arthritis in several main joints i have to put up with electric shocksand burning sensations, with stinging going through my body everyday even in my ribs, stomach, rectum its misery

[@triptijoshi-fx2nn]

If it happens only in one side of the body for years can it still be fibromyalgia? Pls answer

[@rowenawillis5850]

I have every one of these symptoms. I'm a 60 year old woman. But I broke my back in 2007 and had a brain anuresm in 2015. I also have arthritis.

[@fernadezsanti575]

I had a little blister on my mouth and genitals which I thought it was just normal, until my doctor told me it was HSV (Genital Herpes) and it has no medical cure, I decided to try out natural stuff by giving a try to Doctor Ani John herbalHome on KZbin, am so glad that I was able to cure my hsv (genital herpes) with the help of Dr.Ani John herbal products

[@peterichard3925]

Visit Doctor Ani John on KZbin channel his herbal medication is the best and permanent solution to all kinds of virus disease and STDs contact him now for help he cured mine

[@pursedelighted8313]

I have fibromyalgia and arthritis I hate these conditions

[@Gulchih]

You should try supplementing your existing treatment with natural treatments. Have a small amount like a quater teaspoon of Black Seed oil (Nigella Sativa oil) daily and afterwards some honey. There is no illness in the world that cannot be cured by these two -- countless testimonies can be found from even people with cancer who gave up after no medicines worked and they got better within a few days of having the oil in particular. And honey is repeatedly proven to cure all kinds of inflammation.

[@nungsa5124]

So I have been having brain fog, weakness through out the whole body, extreme fatigue, tiredness even if I sleep enough through out the whole day and difficulty walking up in the morning;also been to a lot of doctors in the past 2 years but all the checkups are normal. Is it possible I have this illness?

[@usmantahir2659]

Same hear from 5 years 😭

[@vanessalomoljo4174]

Same 2years

[@usmantahir2659]

@@vanessalomoljo4174 please some body treatment share

[@Gulchih]

You all should try supplementing your existing treatment with natural treatments. Have a small amount, like a quater teaspoon, of Black Seed oil (Nigella Sativa oil) daily and afterwards some honey. There is no disease in the world that cannot be cured by these two -- countless testimonies can be found from even people with cancer who gave up after no medicines worked and they got better within a few days of having the black seed oil. Note: it doesn't taste very nice so have patience with that!

[@syvhne]

I can't do this with my demanding life style 😔

[@pragyasavita6855]

So damn true..

[@ip3931]

I AM STILL ENDURING TOO MUCH YET GETTING NO HELP WHATSOEVER

[@dr.jessebautista4658]

It's just a suggestion you might try hyperbaric oxygen treatment chamber to increased oxygen tissue and cell perfusion too eliminate lactic acid and accumulation of your HIF1 ALPHA which causes inflammation and all medical symptoms and 2) occlusion THERAPHY

[@blessookezie8705]

Visit Doctor Ani John herbalhome on KZbin channel he cured mine permanently within 12days with his natural herbs and root

[@peterichard3925]

Visit Doctor Ani John on KZbin channel his herbal medication is the best and permanent solution to all kinds of virus disease and STDs contact him now for help he cured mine

[@Nisha-kl8rl]

Planet Ayurveda has given me hope with their fibromyalgia treatment. It's honestly the best.

[@techieekeeda2858]

Which software did you used to make this animated videos

[@CindyCya]

Reminds me of Powtoon.

[@hafizhinsan5410]

They use Adobe Aftereffect probably

[@TheManofsorrows]

I rebuke this terrible condition in the mighty name of Jesus

[@teresabarcia3093]

Sorry but there is no right way to treat fibromalgia. I struggle to get up everyday. I not a person who sits around and don't do nothing i push my self but isn't easy at all. If doctor's don't know what causes fibromalgia how can they treat it. I have a CVS in my house full of fibromalgia medications. Just some relief temporarily. I hope everyone get better. Ty 😊 amen 🙏

[@Ghostrabbit22]

Food = avoid white bread wheat products but eat plenty of carbs like potatoes/ rice , I’m generally better with less protein more veg but a constant carb intake , even so walking downstairs in the morning is a nightmare

[@babianna5609]

Thank you for sharing this💖

[@fcic6685]

Potatoes , and Tomatoes are night shade vegetables they’re not helpful for Fibro if you like eating rice Brown rice is the best, red potatoes are better than the white ones and also sweet potatoes are a good .

[@drabmeraz7827]

I don't know what causes my pain I'm trying to study different thing because my Drs are set on treating it the same way for the last four years but it's not working ,,,I have the same pain in my neck and shoulder goes down my arm to my fingers ,,the same pain goes down my back down my leg to my feet and toes ,,muscle relaxers and anti inflammatory meds aren't helping

[@peterichard3925]

Visit Doctor Ani John on KZbin channel his herbal medication is the best and permanent solution to all kinds of virus disease and STDs contact him now for help he cured mine

[@rosalindabloodflowers7909]

I might have this but doctors don't do anything or diagnose.

[@augustaporter3735]

This is explained so well I cant stand this noone understand

[@reinab8168]

I need to see my doctor and see if this is whats causing my pain

[@UniQueLyEviL]

I literally have every symptom except RLS and dry eyes. 🙃

[@fcic6685]

Having the pains and RLS is the worse I get RLS all the time. Specially at night.

[@nansp853]

Believe me…. It helped me, so I am sharing. One stop solution, no medicine nothing, Meditate 🧘‍♀️ it will do wonders, it will really help with not just fibromyalgia but with many things.

[@rinkisahu1182]

I am feeling feverish also

[@mortypilgrim6319]

Hi to anyone reading this. I have a mom with fibromyalgia. She has lived with it for almost a decade. She is kinda of a mess and she doesn't follow quite right the treatments doctors give her. Sometlmes she does them, sometimes she does not. She complains a lot and sometimes says things that doesn't really make sense, like when she asks me go buy her cake and soda because she says she doesn't feel good and it needs it. Like really fucking needs it. The doctor said no sugar nor bread because it can cause inflammation but there she goes. I wanted to ask if this is normal in fibromyalgic people, this type of conduct. Any advice you can give me id be very grateful

[@bonniegrace6633]

This is normal with fibro, at least it is for me. She is low in vitamins and minerals and this causes cravings. Research alternative doctors that specialize in fibro. One that will test her for deficiencies in v & m. Gluten causes inflammation which causes tremendous pain. She needs to go gluten-free. I can’t even have too much gluten-free flour products or the pain will return. So she may have to cut out grain flours (rice, corn etc,) all together. (Which is a Keto, low carb diet). But gluten makes the pain unbearable. Also sugar is a big no no. I ate some Halloween candy and I’ve had pain for a few days now.

[@ummsaz]

@@bonniegrace6633 it's beautiful to see that you understand and listen to your body and follow suit. We are all different, we just have to work with our bodies not against them.. The way you explained your diet just shows the discipline and optimism you're showing which is admirable. Keep it up and wish you a fruitful healthy positive future xx

[@kalliope420]

as far as a know it isn't strange. i have fibromiyalgia, so does my mom, and she and the doctors say that sugar makes the pain worse. at the same time however, sugar is the only thing that helps the unbearable chronic fatigue for me. so theres a line to walk. cutting out sugar or carbs completely is very hard even for people without this sickness, and its only plausible if they can get on a healthy diet getting all the necessary vitamins and whatnot. my mom has gone on a detox diet a couple of times and said it greatly helped her energy, but the diet is strict and very hard. all in all i think detoxing from things like sugar, alcohol, and dairy is a good idea, because then you can add them back in and see what worsens symptoms. i would say sugar is much worse if you eat it every day, and that trying out a varied diet and possibly vitamins and supplements to see what helps could be a good step if she isnt doing that already. i would also say that listening to food cravings (besides sugar) can be extremely helpful, especially if theyre specific. when the body craves certain (non addictive) foods it is the body's way of getting a certain substance it needs. (like craving oranges because youre lacking vitamin C or D, stuff like that)

[@fibrowarriors]

Hi there please feel free to come over to my new channel for some advice and help. I've had Fibromyalgia and ME/CFS for 41 years

[@anjalitalegaonkar9672]

Well I'm a fibro patient and when I'm in depression or too much stressed due to my symptoms I have to eat sweet , chocolates,stuff like that to alleviate my mood .This things may increase my weight

[@TheManofsorrows]

I rebuke this evil thing in Jesus name ! I have all the symptoms

[@hughlindsay540]

Pain is one thing, there are so many nasty symptoms.

[@m_m786]

Great 👍🩺❤️

[@kumaripathirana4789]

Very good informations..thank you very much....

[@sandaruvidanage]

Thanks alot

[@crazycajunsunshine]

I don't agree with this title... titles like this make people think it is just about being tired

[@78twood]

I heard fybromyalgia is not a diagnosis. Anyone else hear this?

[@thefaithful5991]

Everybody buy and have 2 teaspoons of SeaMoss a day I am getting better now.

[@richamaurya9053]

When you are 17 and suffering from 4 years

[@deepakd6451]

Me 2 years

[@rabbadidi7385]

"Avoid naps" how?!

[@gijsbon8065]

serrapeptase helped me lots. it isn't a cure but it makes it easier.

[@TheManofsorrows]

It totally drains me I have to drink two Red Bulls a day

[@aregup007]

Try pink grapefruit

[@mysingingmonstersfan8612]

I have almost every symptom

[@babyahana9064]

How to cure I'm so exhausted 😩

[@crazycajunsunshine]

Irresponsible articles and videos like this are what we people to suffer for decades and whether family not to understand the seriousness of fibromyalgia

[@fibrowarriors]

That's so true. The amount of misinformation out there is shocking and worrying

[@sushilbarua8862]

Hot temperature

[@smarksruinedwrestling5020]

Chills

[@usmantahir2659]

Hy My name is anila 40 years old from 5 years I have fatigue weakness in body I can't any work my arm legs pain neck shoulder upper head upper back shoulder arm legs ful body pain and weaknes any time please tell me any madicin I take methycobalamin gabica 75 but not work

[@RebeccaLynnMusic]

"fatigueness"?? ugh.

[@joanndombrow4245]

Fibromyalgia can cause high blood pressure

[@dailydoseofmedicinee]

👏👍

[@Jemombuurrrn2228]

Just got here in January 2 2023 it’s because I haven’t sleep since last night and I really have a body pain all over my body and I’m just here to see if someone can help me I need help

[@Gulchih]

You should try supplementing your existing treatment with natural treatments. Have a small amount, like a quater teaspoon, of Black Seed oil (Nigella Sativa oil) daily and afterwards some honey. There is no disease in the world that cannot be cured by these two -- countless testimonies can be found from even people with cancer who gave up after no medicines worked and they got better within a few days of having the oil.

[@vishalchaudhary-nf6gr]

Planet Ayurveda's body aches medicine is truly a lifesaver! I used to struggle with constant discomfort, but since incorporating their product into my routine, I feel rejuvenated and pain-free.

[@hayatshaikh3723]

😢

[@victoriabutler2796]

WHAT DO I DO FOR THE AGONIZING CONSTANT PAIN !!!!!!!!!!!!!!!!!!!!

[@hughlindsay540]

Sadly there is nothing. Bath as hot as you can tolerate. 1 cup of Epsom salt and 6 drops of Lavender essence in the water. Lie back and relax for half an hour. Be careful when getting out of the bath as you will be dizzy. Lie and relax for an hour afterwards. Brings the only relief I get.

[@victoriabutler2796]

@@hughlindsay540 thank you.

[@Goldenratio_1.618]

I am currently running 11tg year of my super fibromyalgia the reason I call it super because I don't generally have tender points in any area of my body my FM just cause me to feel savere pain in all body parts like my eyebrows my cheeks neck,full beck legs My hands it's fingers even the finger tips ,nails sleepless nights and many more I am Superman of myalgia sevrel doctors orthopaedics gain profit from my condition they all just do blood test and other test every time the reports appears to be normal then instead of thinking and treat other way they all just gave me expensive drugs and pills but nothings happenes.

[@UchihaItachi-sl8ku]

Same

[@Hulachowdown]

Ironic. I watch in bed ( yes I know I shouldn’t be I did it )

[@fernadezsanti575]

I had a little blister on my mouth and genitals which I thought it was just normal, until my doctor told me it was HSV (Genital Herpes) and it has no medical cure, I decided to try out natural stuff by giving a try to Doctor Ani John herbalHome on KZbin, am so glad that I was able to cure my hsv (genital herpes) with the help of Dr.Ani John herbal products

[@carolann3444]

Thyroid medication helps.

[@hughlindsay540]

Too dangerous

[@TheManofsorrows]

The sickness from satan’

[@Portia620]

I thought they just discovered years ago that it’s not mental and then definitely have an answer something about the nerves Malfunctioning and they’re trying to target certain drugs for this

[@hughlindsay540]

Inflammation of the nerve endings. Loud noises, bright lights make it worse.

[@tammyorton6356]

One of the last few things spoken by Jesus, on the cross was: "I thirst". Knowing "water" is considered the "word of God"...... Have any of you tried reading the bible or a bible? Also, there is a verse stating that the flesh fights against the Spirit. Therefore, At night, when trying to go to sleep, close your eyes and try "praying" silently with your thoughts...... It is the solution to falling a sleep. I guarantee you will be asleep in a matter of moments. Try to stay awake while praying..... You can't, It's impossible. Also, you can purchase cd's that read the bible for you. Play and listen to them at night, while you are trying to sleep. *May God take away the pain from your bodies and give you peace, with Jesus name I pray. Amen.

[@hughlindsay540]

Seriously. Have you even tried😮 to go to sleep. You wake up in more pain than before you go to sleep.

[@Steven-jf8hq]

A lot of people do not know why they have pain and suffering sometimes it is because of sin in their life. Always being in the house or the room in the dark doing certain drugs. We do not know what people do in their lives but it is not always but usually connected to sin if you speak to someone who is willing to be honest they have probably have sins in their lives and they have consequences.

[@blessookezie8705]

Visit Doctor Ani John herbalhome on KZbin channel he cured mine permanently within 12days with his natural herbs and root

[@georgeking2369]

Don't talk shit

[@peterichard3925]

Visit Doctor Ani John on KZbin channel his herbal medication is the best and permanent solution to all kinds of virus disease and STDs contact him now for help he cured mine

[@phoenixflier25]

Uh, what about people who don’t “sin”? That’s an ignorant statement😡

[@Steven-jf8hq]

@@phoenixflier25 If you can find anyone who was born who never lied let me know please besides Jesus