FIRST 30: Advice When Starting Dialysis

Presented without captions
Starting dialysis often means creating a new normal for yourself and your family. There’s a lot to think about, from choosing a treatment option, to finding new ways to enjoy your favorite activities, to managing a new diet. The FIRST30 program is all about helping you through this period of adjustment.
Find out more at KidneyFund.org/FIRST30.

[@EkteMajor]

20 Year old with Castleman disease with kidney failure here. I was scared for the treatment. I saw this video before i started my dialysis and it helped me calm down. When i started the treatment it went somewhat wrong and i was feeling sick and vomiting every time they started the machine within 10 minutes. So i was hooked up to an ICU dialysis machine which took over double the time 8-10 hours. But eventually it got better and i managed the normal machine. Now a year later, my kidnes started to work again and my values are almost back to normal. Free healthcare in my country aswell was fantastic. Thank you for producing this video for me and for everyone.

[@danieljaimes3077]

Your Kidneys got better, are you still on dialysis?

[@DeeJayRoyalT2]

This is an excellent video. When I was diagnosed with end stage kidney failure it was a shock. I was active, a cyclist, it just hit me out of the blue. My first day of dialysis was a complete mind blower. Why was I here? These people all look sick I don't belong here. I had to adjust and soon came to realize everything was fine. I am still active and live my life normally. My spirits are high and I have a great team of technicians, doctors and nutritionists monitoring me and encouraging me. Life is FAR from over!!!

[@trevormanik1270]

This makes me feel much better thank you for this comment

[@chrism7249]

Know the feeling, thought i was getting a little unfit until i collapsed at work then found out the same day i have stage 5 CKD, the worst part about that day was overhearing the doctor say "hes got end of life kidney disease" - I thought I was finished but life is still going with the help of dialysis 👌

[@baz295]

As young adults, thanx for helping us

[@DeeJayRoyalT2]

@@chrism7249 Wow what kind of doctor refers to it as "End of Life" kidney disease? DON'T BELIEVE IT FOR A MINUTE!! I wish you the best. Stay strong there's plenty of life still ahead.

[@DeeJayRoyalT2]

UPDATE 3/17/2023: My cousin who began dialysis the same time as I did (roughly 4 1/2 years ago) just received a kidney transplant through the VA. He encouraged me to use my VA to get on their transplant list as they draw from a Nationwide database (here in California the wait is very long). I will be meeting with my primary to refer me to VA to get started.

[@rturri2000]

I’m 31 yrs old and I was diagnosed with CKD a year ago. My kidneys have taken a turn for the worse over the past couple of months. I’m starting my third round of medications and praying things start improving. I didn’t realize how scared I was about this disease until I was told that we may need to start talking about next steps and preparing for dialysis. Watching this video made me cry, not only because I’m just starting this journey but seeing the strength and positivity of these fighters. I’m thankful for a community that creates content like this and shows support on not just the physical aspect but the emotional side too.

[@viv_123]

I was scared at first, but havng the strength, and the support team helps you build the courage that you did not know you had.

[@philipcore9566]

I was recently diagnosed with stage 5 kidney disease, I also had payronies diseas. emy gfr is 56. I have been feeling off colour for a few years now with symptoms getting worse. I have weight loss, swollen ankles, shortness of breath, extreme fatigue, a need to pee all through the night, difficulty sleeping, Itchy skin, muscle cramps, headaches very clammy skin and night sweats, pain in right side front & back, potassium high. I have a problem with iron defiency and with the defiency & my BP is very high at the moment. My gfr went down by 6 in one year don't know much about the years before, I was introduced recently to a chinese herbalist who after some questioning sent me herbs and oil that cure me fully of all this disease within few weeks. here is my email if you might need help. [e-mail]

[@parrotsandmore7446]

How did it go? My daughter father started yesterday

[@bbs2473]

I hope you are doing well.

[@___nikki____8382]

how are u now

[@pinayladyoz8044]

Look after your kidneys people Functions of Kidneys: 1. To excrete fluid out of our body 2. To remove the toxins of our body' 3. To produce hormones erythropoietin which is essential in production of red blood cells Some ways how to care your Kidneys: 1. Be careful with your blood pressure 2. Avoid Diabetes 3. Be careful of all chemicals like legal and illegal drugs you take 4. Live healthy lifestyle

[@catherinedrew203]

I just found out I have to start dialysis in January. My doctor called me this evening with my lab results and told me it’s soon time..we will meet on the 9th for the last lab before I get set up for my first session and I’m scared…I’ve not cried til now.

[@jazzi04]

I just found out a few days ago being in the hospital about my kidneys I felt like I was in a dream, tomorrow they start the procedure for my first time I've been praying all.night I'm scared but my family is by my side it was a relief watching this video thank you prayers Up 🙏 to everyone. 😢

[@unit9556]

I hope you okay i’ll pray for you

[@marciadavis6330]

🙏🏻 best of luck

[@jazzi04]

@marciadavis6330 - Thank you, I'm much better now thanks for the comment.

[@teoshacampbell2742]

my mom have stage 4 kidney disease an she's going on dyalasis tomorrow and i'm worry because i really loved my mom with all my heart an i don't want to lose her i just hope she pulls through this 😢😢😢😢 can someone please pray for my mom Jennifer Kennedy please 😢

[@Krampus_N7st]

🙏🏻Jennifer Kennedy health restored, in the name of Jesus Christ, amen

[@ShirellePhelan-kv5hr]

Praying

[@sadykass]

My mom just began her procedure and i am scared seeing her too weak. She cant even open her eyes ....

[@dhangxchannel9660]

it is hard seeing our love ones having this kind of situation like my mom.. seeing her in pain so much it makes our heart ache too... we are hoping that mom will be cured and become healthy again

[@Confused_Philosopher]

I am 64 year old. I always knew the function kidneys performed and I was well aware that kidney function got slowly worse as you age along with everything else. When I was told that my kidney function had dropped to 10% I wasn't scared because that doesn't help a thing. I am researching Hemodialysis and Peritoneal dialysis to see which is best for me. I decided on the Hemo because there is less chance of infection and you can bathe np because there is nothing external. Also it can be done at home with minimal fuss. If I choose to have it done in the hospital I will take up learning the guitar during those 4-5 hrs, if you are capable of doing that.

[@g_mason8867]

How is your treatment going so far?

[@chrism7249]

I can imagine your dialysis buddys will love you for trying to play a guitar whilst they relax 😂 Be about as popular as toothache where i have dialysis 😜

[@danasmith6043]

Bless them all🙏🙏🙏

[@rochellepratt4931]

I just got news today I need dialysis or a kidney 😭😭 I can't sop CRYING !!

[@lgee9027]

How are you doing now?

[@chrism7249]

Its a crap day when that happens isnt it (yeah i had the same day) 😂 Hope you're feeling okay about it now

[@jacquelineadams8363]

Rochelle I've been on dialysis for five years. The time has flown by for me. I travel in the US and have dialysis done where I'm visiting. I say that to let you know that you can move around, you are not stuck in one place. I think of my treatment as my spa time. I try out face masks, moisturizers and under eye pads or catch up on my sleep during treatments. My technicians and nurses are my close friends who are always good for laughs and jokes. My advice is to get the lidocaine from your doctor to reduce or eliminate the pain from the needles. I have three tubes in my house, so I never run out. I hope you're feeling better. Good luck to you.

[@osmanht1327]

sry for this news. How u feeling now?

[@CandyDaAquarius]

🙏🏼🙏🏼🩷

[@NightmareSounds]

Thank you so much for sharing this.

[@nefelibata636]

have you had kidney problems from covid too? i hope that you don't mind me asking you this, am just asking cos of your name. i was in the renal ward years ago ,but i didn't think it was going to come back. again, if i am intrusive, i apologise, and good vibes to you either way.

[@geraldgreen5371]

This should also be shown to people NOT on dialysis JUST TO HELP THEM STAY THE HELL OFF IT!!!!!

[@cosmicfairygodmother9679]

Unfortunately they never going to educate the American people because corporations profit.

[@corneliousbrackens9849]

You sound ignorant

[@lisabaxter7786]

Bless your life

[@nickyseccia3478]

It's to drink things at room temperature or warm drinks to create the body temperature regulation of normal balance slower .because the cold drinking will speed your metabolism to get sick more

[@anishatamang74]

We can hot drink

[@katijahrulia1381]

Sya berdoa dan bermohon agar pesakit2 ginjal yang menjalani dialysis agar sehat dan jangan menyesal ape yang telah kamu hadapi seban kamu kamu semua adalah pejuang . Marilah sama masa kita berjuang untok teruskan kehidupan ini . Semuga pesakit pesakit semua dipanjangkan umur dan dipermudahkan segala urusan AMEN 💪🏻💪🏻💪🏻🌷🌷

[@lisabaxter7786]

Sharing is caring shared this

[@subroto2606]

Thanks for this vedio

[@marwanabdalrazzak1663]

اللهم اشفي كل مريض ❤️❤️

[@tomgreaney1]

So, I am on dialysis here in Ireland for the past 8 years, QUESTION EVERYTHING… that’s my advice…. It’s a friggin nightmare

[@truthbetold6317]

My kidney function is now at 11, dropped 4 more points in under 2 months. They are now talking starting dialaysis. My whole world has been turned upside down. All i want to do is sleep. Im so mortified. Anxiety through the roif, obsessivley thinking of dying every second im awake. Dobt want to eat..stressed right out.😢

[@cre8tivity06]

My dad has to go 3 times a week and every visit he cramps up really bad and many times he has to go to the ER because the pain is unbearable. He seems to think they are taking too much out of him at one time. Is there any advice or suggestions I could pass along to him. He says it’s never a good experience when he goes to dialysis and I feel so hopeless. 😢

[@shehzadshehzad4986]

Is dialysis patients diabetic always wear syringe needle catheter tube ?

[@mohammedrashid2906]

Thank

[@renelyncalago3160]

Iam 28 , when my first day in dialysis , i cry too much, I cannot accept everything. Iam so depress. Nurses are trying to calm me down.

[@herbalistemmanuel2494]

I have read a lot comment here and i see a lot of people with different sickness!! I have a very important message to share with you all.. Incase anyone need my help!! I have a very very strong Herbal Medicine that can cure Any type of CANCER, KIDNEY FAILURE, HEART FAILURE, HIGH BLOOD PRESSURE, HERPES 1&2, HIV/AIDS from the body completely.. The medicine totally reset the body system and you will be 100% normal with no side effects or single sickness. You can Call/WhatsApp ☎️: [phone] or via email: ( herbalistemmanuel@gmail. com

[@ObscuredByTime]

Whoa, whoa, whoa there, Renelyn! You're 28 years old with a serious health condition that... guess what? DOESN'T RUIN YOUR LIFE. You and I would have been DEAD only 40-50 years ago. Instead we have to sit in a chair 4 hours a day 3 times a week and continue to live a pretty damned normal life. Yo, serious, LIVE your life. Imagine it was some serious cancer! So many blessings to count. So much to say "whew!" about. If you have to be depressed, don't let dialysis be the main component of your depression. It's probably something else in your life that you can deal with. Chin up! Hey, there are some pluses, you know? People take it easy on you, right? You don't have to do hard physical work, even though you secretly know you could, lol. Right? I know, believe me. Hey, here's an idea: MILK IT. Just a little, but milk it. Fact is, we DO need a little extra pampering, and it really is nice that we get it, right? My heart goes out to you. Hang in there, and CHIN UP!!! =)

[@VincentRecal]

There's hope for a healthy solution. Watch this video @ kzbin.info/www/bejne/iHmogJuXrK2bm6s More testimonials @ facebook.com/intrapilipinas [phone] WhatsApp

[@fatimamaster3422]

@@herbalistemmanuel2494 how much is the cost for b12 and athrites

[@Mrluvya2]

Just wondering how your doing today. Have you gotten over the depression? I found out I needed dialysis 2 months ago and I turned it into c challenge by becoming a smarter cook. I take care of myself much better and I never miss a date with the dialysis clinic.🌷

[@lisabaxter7786]

Teach preach say that put it out there bring it

[@rodneyLee336rlb]

hi doc!

[@naziahasan1318]

Im crying for my mother 😭

[@enquezproductions]

I'm sorry that you're going through this. My brother is starting this tomorrow.

[@Thollis1987]

My mom is starting dialysis on my birthday October 12th. It is stressful because we don’t know how to process this. My dad doesn’t know because they got divorced. He should know because his grandma was on dialysis. I’m the strong one in the family,so I can assure her it’s alright.

[@beautifulvictoria3222]

My mom start dylasis from today 😭🥺 Please pray for my mother 😭😭

[@chiefoso1428]

May Allah cure her

[@chiefoso1428]

@@beautifulvictoria3222 Ameen

[@AmandaJohnson-yl6xc]

❤️💙

[@MEDRENAL]

#Medrenal thanks for knowledgeable video

[@radrad4471]

I love dialysis so much

[@griseldadelre3042]

I hate Dialisys, always I say I don't like to keep alive with a machine, ,look my arms I have to cover ,2 big needles 3 times a week, good luck people God blessed you all ,and forgive me because Dialisys keep me alive ,

[@drexq_477]

@@timciuk1653 I agree with you 100% cuz my mother just passed away from this and she been on it for 5 or six years . my mother was struggling being on the dialysis and it result in her death because she had a lot of complications.

[@feleciajohnson8467]

I'm so scared I'm diabetic alcoholic I'm a mom of 3 boys I'm so scared to know I have to do this .will I survive? How much longer Jesus answer my prayers

[@dutchesscocosmom2288]

aww,sissy YOU WILL GET THRU THIS!!! GOD HAS YOU IN THE PALM OF HIS HAND,it's scary and it's ok to be sad,but, you can live and thrive just do what they tell you n hang on to Jesus!! love n prayers❤

[@jacquelineadams8363]

Felecia I know you're scared. Know that you're Not Alone. I've been on dialysis for almost three years. It gets better after your body adjusts. I travel often and have treatment at centers where I am visiting. The one thing that makes it bearable to take the needles is 4 percent Lidocaine cream, gel or spray to your access site. Be generous with the cream wait about an hour then wash it off. They say wrap your arm in plastic wrap to keep it on. Whatever works. The point is you won't feel the needles when they go in or the pain is reduced by two thirds. If you're lucky you will go to a center where the Techs are very supportive and friendly. I feel like I'm seeing my friends. I use spa face masks and have my earbuds to look at movies on my phone in the chair. Make the diet and lifestyle changes you have to do to stay off dialysis if possible. It's tiring but I work hard to keep myself healthy. Look up the Artificial kidney project. It will be great if they get that to work for us someday. That's something to hope for a long with your prayers.

[@geminispirit5994]

You got to stop drinking

[@pinayladyoz8044]

If you don't manage your blood sugar level yes you will suffer Diabetic Nephropathy, then you will need dialysis to live in the world. Your survival in dialysis depends on how you gonna live your life. If you follow the Dos and Don'ts Dialysis nutrition, medications and compliance there is a high chance you will live longer life.

[@aimps19]

Wait, was Dr Fatima really a doctor but ended in dialysis?

[@shehzadshehzad4986]

Is patient diabetic died without dialysis hemo, peritoneal dialysis

[@drexq_477]

to tell you the truth about this question either way you look at it a person will die on dialysis or without it if you have a condition

[@nickyseccia3478]

For you to eat the same healthy foods then you eliminate the toxins worse in your body and must create the lower energy sources and to always create the body temperature regulation to normal of slower metabolism of lower energy sources so you to eliminate the faster metabolism in colder temperatures and eliminate the drinking cold stuff because of the faster metabolism from cold drinking because the faster metabolism will create your toxins to hit you harder to then more sickness so it's to always keep the lower energy sources to always keep the body temperature regulation because it creates the slower metabolism rate to create the lesser toxic metabolism to not hit you harder to more sickness by Nicholas c seccia

[@edwin6294]

hey im doing dialysis for 4 years.lean body.faster metabolism. can u say low energy sources which are they. also my body is always heat

[@micheleharris6851]

Patients please make sure you have enough staff members to take care of you because there will a lot of patients in the centers. And, you can refuse anything you do not agree with. Stay healthy.

[@nabilblfkih4331]

نبيل بلفقيه ❤❤❤

[@sylviaann7588]

I’m scared of this my doctor says kidneys r bad😢

[@drexq_477]

I don't know what to say what kind of doctor is that

[@cutecute5269]

Allah ma3ak hubbi 💔💔💔

[@JustMe-wg7xg]

I’m seeing a lot of African Americans is this ckd predominantly in us? Just curious

[@tiramisu5901]

In US, more and more African Americans are experiencing CKD/Failure because of uncontrolled high blood pressure. Take your BP meds as instructed by Dr., buy a BP monitor and check regularly, lower salt intake to 1500-2000 mg daily and drink water when thirsty, no sodas or energy drinks. Also, more salt one consumes, the more water one drinks, leading to swelling in body, leading to higher than normal BP. Making simple changes in diet and exercise will keep BP under control and prolong the life of kidneys. DON’T TAKE YOUR KIDNEYS FOR GRANTED, please.God bless.

[@ogbeborchristabel9276]

Big thanks to Dr emuakhe on KZbin from Africa for having every criteria to human health, his kidney cleansing herbs saved my dad's lives from the unfortunate situation................ .

[@akhtarhussain6647]

I need kidney CKD patient blood group b+. Pls help no money

[@dipalijagadale8097]

How r u now?

[@thescreamgirl911]

And I need O+

[@lisabaxter7786]

This is kidney colon cancer social worker Women month

[@nabilblfkih4331]

نبيل بلفقيه 2008dyaliza

[@lisabaxter7786]

Get tested know your family history become educated about your illness