AMPUTEE Q&A! How Do I Drive, What's The Biggest Surprise, How'd I Meet My Husband, And More!

[@MamaLlamaPuppyGirl]

Disclaimer; I am not an amputee. I do work in the medical field, which is how I found your channel. But so much of what you talk about I find universally fundamental for mental health. You are amazing, so very strong, and I look forward to following your journey.

[@MirandasAngel]

I like your reply, as it applies to my disability and agree that this channel is inspiring and useful. It makes me grateful.

[@KentoNishi]

The speed this channel is growing at is mind-boggling! Keep up the great videos and positivity (personally I love the high quality audio and _feel_ of the videos)!

[@conrad6598]

Skinny jeans - put zipper on leg so it opens far enough to put over leg.

[@JohnMLlewellyn]

I have, it works great! Just make sure the leg fits inside the jeans when zipped.

[@AdelMyBell]

scrolled to comments to say just this. im sure a tailor in your area could do it for you... or open a line of clothing. I think someone really needs to address this issue with an industry point of view.

[@MB-tz8hb]

I’m homeschooled too! We did the involved kind of schooling just like you described! It’s great to hear about people who have similar academic experiences.

[@skeetsmcgrew3282]

Fostering a kid would be great. I really wish more people would adopt and foster, there are so many kids that need homes

[@FootlessJo]

Skeets McGrew right? There are so many kiddos here that need safe places to call home. We’ve looked into it and are definitely seriously considering it for the future.

[@kenyamckoy8114]

Danielle that’s really insensitive and rude. I’m pro-choice and you may be too but, you don’t know that person’s situation. For all we know the parents could’ve died or something. Please delete the comment

[@coff3y]

@@FootlessJo yes jo get a kid

[@abbyalsup8216]

I have no connection to amputation but you’re videos make me so happy. I just have to watch all of them. Over and over and over.

[@Natasha-yq6df]

Your videos always bring a smile to my day! Thanks for sharing your life with us. And I totally laughed at, "that didn't happen because I don't have a foot!" (in the most positive not making fun of you sort of way).

[@AgentClaytonWebb]

I haven't had internet for a few days and was super excited when it came back on and to see a new vid from you! A couple of random things for you. The lilac scarf is an awesome color for you, absolutely beautiful... I went to Ireland when I was 16, so have a blast! A lot of people confuse religion and faith as the same, they're not and I love how you get that. Keep being you, because you are such a lovely, empathetic, warm, sincere and intelligent person! I look forward to your videos and I think its awesome that you're such an open book and grounded person and to share all of this with us! You rock, Lady!

[@cillianblue]

Great Q&A ! Love your honesty about having children and religion.

[@FootlessJo]

Wendy I’m so glad you appreciated it! Those are the two topics I had minor concern people would take issue with, so I especially am grateful for your supportive words! Thanks for watching! 😊

[@mek531]

Thanks for answering my question about driving! Makes me feel good that left footed driving is a viable option. I have a problematic right foot, too, so knowing that it’s not impossible is awesome 👍

[@jodil1209]

I was also curious about this. I'm so happy that you can still drive.

[@emileem7757]

Hello every time I see a video from you I click right on it but I think that your story is very inspirational and I like to see your daily lifestyle

[@sierrasmith3502]

i completely agree friend

[@barbwhitcomb5708]

Yes Jo! Please keep up these daily blogs! U really have put disabilities into the limelight!! And u accomplish that in a very unique personal way!!

[@SydneyJ12]

Wow! You’re such a positive person, you look at everything in such a bright way. I find myself always going back and rewatching your videos on days that I’m just not feeling it/myself (if that makes sense lol).. and you always seem to brighten my day, I mean.. how could someone not have a smile on their face while watching your videos? I absolutely love watching you and always wishing you the best!!

[@max7420]

My dog is literally a cross between all three of your dogs! And I can’t watch anything even moderately scary I kind of wish this video went on forever ❤️❤️

[@FootlessJo]

Savannah Seney no way haha that is so awesome!! Aw!! Puppies are THE BEST and your comment is so sweet!

[@sarahtallbull3596]

Can I just say, you are so damn relatable I can’t stand it. Your videos are so interesting!

[@sophiemartin2094]

If you have a leg or no leg you will always be beautiful

[@101d-b6s]

Hello! I’m sorry you had trouble with Church... I struggled with it a lot too, and I still do. It’s very sad to hear about someone struggling with faith because of a place that is meant to strengthen it. There were a lot of times when I really didn’t want to be there, and it really confused me and made me feel like a bad person. But I’m learning that you don’t have to beat yourself up for the way you feel about things, and it’s not always a bad thing to take a step back. I pray you’re able to heal from whatever wrongs happened there, and that you will be able to one day find a community (whether a Church, small group, etc.) that makes you feel safe and welcomed. Fun fact, I was actually homeschooled too! Only until fourth grade, though. Okay, have a great day! Bye!

[@AnerevRel]

love the fact that you're considering fostering kids! I'm still in my early twenties, and no relationship, so I'm long off from seriously thinking about family planning, but fostering always seemed like such an awesome idea to me :))

[@madelaine3209]

Thank you. You are amazing. I will pass this video on to my newly amputated daughter it is so motivating and inspiring to watch you.

[@christinadoherty3212]

Love this Q and A! I always get excited to see your uploads in my feed

[@maxdevlin5359]

You’re doing so great! Huge support from England 🏴󠁧󠁢󠁥󠁮󠁧󠁿

[@nathanhung9057]

Not sure why but every time I watch your video it just gives me a sense of motivation to study and become a doctor specializing in amputees. Thank you for bringing the honesty to the channel :). I’d like to encourage you on your faith journey to explore about Him when you are in need, and he will give you rest. God bless.

[@Loribethdi]

Wow! Being a foster parent would be really awesome! My parents were foster parents. I loved having extra brothers and sisters in the house. It was always interesting to say the least. There really are soo many kids struggling to find a safe place to live and grow. Some of my brothers and sisters stories where really heart breaking and it felt great to know that at least while they were with us they were safe. I'm still very close with most of them. We have 3 kids. 2 who are over 18 and an 8 year old. We also have a spare teen who has been living with us for about a year now. He has really come a long way over the year. He was soo angry when he 1st got to us but he's much more relaxed and happy. He smiles every day. He still gets angry about things. I mean who doesn't? But he's learned how to express himself in a healthy way and he knows he has a place to be when he's overwhelmed. He's in therapy every week. He's doing better in school. He has goals and hopes and dreams that he never had before. He's really opening himself up to the world now and that can be a very scary place for a transgender young man. It makes me feel very happy to see the changes taking place.

[@mallorylischer]

With encouragement from my prosthetist(he’s a LBK amputee). I started driving with my left foot a few weeks after amputation and about a month after getting my leg I drove with my prosthetic. I do still break with my left foot. I also was homeschooled, had a dog named Sadie for about 12 years and I love the office. Parks and rec is good too. Haha

[@mallorylischer]

Oh boy. Pants have definitely been a struggle. Sweatpants, shorts, skirts and dresses are my go to.

[@clare1971]

Been hoping for a q and a but didn’t know you were doing it so couldn’t submit questions. Would love to see more of these

[@AbbyD02]

I love your channel! Being a pastor’s kid, I hadn’t really experienced issues in the church like what I imagine you went through, until recently. Man, for people who call themselves Christians, they can be pretty brutal and savage lol. Honestly, I don’t blame you for your doubts about church. Something I have been reminded about multiple times lately is that those people aren’t real Christians and Christianity is about a relationship with God, not religion and most of them lack exactly that. The word Christian means “little Jesus” and they don’t act the way Jesus would. I hope you find the answers to your questions. Keep up the great work with your channel and can’t wait for more videos! 😊

[@cmilyard]

Happy New Year! You are so sweet and fun to watch. Thanks for being so open! Listen, I don't even like red velvet cake that much, but I just had a slice from Nothing But Bundt, and it made my eyes roll back in my head. So if y'all have one of those nearby, go!!!

[@marthamelitta2832]

When I was 19 and just finished school I travelled through Ireland for about 3 months. It's such a beautiful place to be! I can really recommend you to go up north to Donegal to see Slieve League, which is much less crowded than the famous Cliffs of Moher and maybe even a little more beautiful! But the place which touched my heart most was the Silver Strand close to a little village called Glencolumbkille. If you get any chance to see it - Don't miss it!

[@FootlessJo]

Martha Melitta we are definitely going to Donegal, for a good few days actually! I SO appreciate your recommendations, I’ll definitely see those places if we can! 😀

[@SomeYouTubeGuy]

I'm sure you get this a lot but you have so much energy and enthusiasm it's awesome and it makes me want to watch more of your videos.

[@FootlessJo]

Thank you so much Nathanel! I truly appreciate that!! :-)

[@jessicaf4923]

randomly came across you at a 3am youtube binge session and i love it. You’re so rad, like idk how to explain it you’re just a cool fuckin person ❤️ love you and your vids

[@FootlessJo]

Jessica F thank you soooo much! 😀 Your comment totally made my night, so appreciate that!

[@abbyisland9035]

A couple weeks ago I randomly found one of your videos and I have been so intrigued ever since! You are so inspiring and so down to earth, I love it! Definitely one of my favorite KZbinrs- I cannot wait to see you grow and inspire more and more. Also, I fully support your favorite cookie and cake choices😍♥️

[@FootlessJo]

Abby Island haha aw thank you so much!! I truly appreciate that! 💜

[@ripcobaingrunge]

I enjoyed the Q & A, very informative!! It's interesting to learn about other people's lives and challenges! You have my support! :)

[@FootlessJo]

Jude C Awh I’m so grateful for your support! Truly appreciate it 😊

[@beckiblin4686]

just found you today but you have the best personality (even on your bad days). keep it up, Sunshine! ❤️

[@shellcshells2902]

Yea!!!! My favorite youtuber!

[@edithiepeal]

I love your videos!! You’re definitely Unbreakable Footless Jo!!

[@FootlessJo]

Awwwwh gosh thank you SO much!

[@uhhmeh]

I have been on Gabipentin for a ton of years following weird nerve pain after spine surgery. I also thought that it was doing nothing, so I lowered the amount I was taking, and after a few weeks, I regretted it. It's never been SUPER painful, but rather uncomfortable. I'm not saying that it will do the same for you, but listen to your body! I'm glad you're doing well. Cheers, Floyd

[@PalisBee]

I'm so glad ur dogs have somewhere safe while ur healing 😊

[@FootlessJo]

PalisBee it is such a blessing and huge piece of mind! Thank you!

[@aliyakensler2438]

Thank you so much for answering my question about tv shows!! I was afraid you would forget, but it is just near the end of the video. I absolutely love The Unbreakable Kimmy Schmidt too… I like Titus and Kimmy obviously. I have also seen some Parks and Recreation, I’m 5 or 6 episodes into the first season. And the office is so good!

[@FootlessJo]

Aliya Kensler that’s so awesome you like the unbearable Kimmy Schmidt too!!! Such a good show, always brightens my day. 😊

[@aliyakensler2438]

Footless Jo 😊

[@LymeDiseaseRadio]

Okay, so you mentioned your work but didn't SAY what kind of work you do! Lol's. I'm going to guess, graphic artist? Don't mean to be nosy but you did say we could ask! I may have to have my entire foot amputated instead of just amputating a few toes and since I live in Hillbilly country in the backwoods of Maine, doctors, eh, not so great. So, you letting us know about your length issue will be one of my first questions! Thanks.....Grannie Annie.

[@sallyhopkins4997]

Daily Drama I was thinking the same thing! She talks a lot about drawing and art!

[@lyndagayemiller]

I know what you mean about animals. My precious Mom passed in March,and whenever I have a cry,one of my pups,Poppy,who is a Jack-Russell mix, comes and lays her head on my chest..and licks my tears. My other pup,Violet,is a Sheppard/Husky mix, is right there by my side as well. SHAME on those that don’t consider animals to be”sentient beings”!

[@Itsem32]

I was homeschooled until 5th grade and I hated it. When I got into school I was so awkward😂 and I have a very similar faith experience. A lot of negative shit happened when I was 14. And now that I’m 21, I’ve found peace in paganism💜 I’m Jewish in background. But I’m exploring crystals, meditation, and self love. And I adore it💜

[@pegleg9057]

How neat! I’m a amputee & I have chiari malformation. I’ve had 19 big brain surgeries!

[@themainescratcher476]

Try putting a shopping(plastic, like Walmart) bag over your prostheses without a shoe, should make the leg slide right on the pants!!! It took me over a year of struggling till my prosthetic dr told me the hack!!! Lol! Let me know if it works!!!!

[@samanthawheaton3276]

I'm really interested in your homeschool experience. I was homeschooled right up until college, so I'm always curious what other people's experiences were.

[@allentroxel9719]

You are an awesome person. It makes my day to watch your video. Thanks. Take care.

[@buildingamystery74]

Hot tip, when I put my braces on my legs I always have to take the shoes off my braces before putting my pants on. Dunno if your shoe is permanently attached to the foot but I assume it’s not. It’s annoying but I find it easier to take the shoe off rather than wrestling to get the pants over the shoe.

[@dlaney03]

Alison Reynolds no the shoes aren't permanently attached to a prosthetic foot.

[@jayallen7368]

I always look forward to your videos. I loved the q and a. I been driving with my left foot 13 yrs glad I am not the only one. I am 3 months out of my amputation right leg still taking gabapentin scared of what it will be like off it.

[@Sasie44]

I usually wear pantalons/paperbag trousers, which feel like joggers and leggings, but look super fancy!

[@DARRENWALKERBIGD]

Random comment...Red Velvet cake is amazing...lol

[@LittleLulubee]

Thanks for sharing, I love learning more about you. Aww, I love your couple story! He moved across the country 5 wks after meeting you? So romantic 💗 Awesome you're going to Ireland, I've always wanted to go there! I also love Japan!! Interesting that you were home schooled. I feel the same way about animals- they're ANGELS 😇💕 And baby Sophie is a DOLL 😍 I grew up with a German Shepherd. She was more black colored, and her name was Roxy 💕

[@graciereid8890]

I love you so much! You are so amazing and caring! Also nice Q&A! Also what you're favorite genre of music?

[@gefallenesEngelchen]

Thank you so much for taking the time to answer questions! I'm not sure if it will work, but I have highly elastic sport pants, some thickened yoga pants look like regular pants. My aunt has jeggins, Leggins that look like jeans and are highly elastic to.

[@billkruse5383]

Happy New Year Jo! Stay positive!

[@xzojox]

Hi! I wanted to tell you that I found your channel a few weeks ago I think and I immediately fell in love with the way that you speak, I love videos that relax me and you make me feel that way. It's so interesting to see this part of your life, I personally think that you are so brave and you have such a nice personality... I would like to know more about homeschooling, since here where I live that's seem pretty odd honestly haha.. what are your top 3 movies? I want to watch more movies this year since I'm more of a TV show person. Hugs from Argentina

[@ariadrexler1021]

I feel you on the church thing...the beauty is that we can talk to God and worship anywhere, but I struggle with doing that when I don't have the support of others around me in that kind of structured way.

[@at_czarli6637]

You are very interesting person ^^ Im looking forward to know more about you. Do you plan another Q&A soon? Also i would like a video about your homeschool. Greets

[@PalisBee]

We need to get u some sweet modified jeans! Could make the calf tear away with snaps so u can wrap it around Christopher once the jeans r on.

[@evelynjames8166]

I love you and your channel I would love it if you did another Q&A video, or a homeschool story!♥️

[@FootlessJo]

Tomasthetrainlover129 * you got it!! I would love to do that. 😊

[@greyitsraining]

You need those cute skinny jeans that have a functional zipper up to mid calf! They'd be so cute!!

[@Katprzk]

You’re so positive and radiant. Best wishes!

[@pacman73c1]

Joe, Jan 23 I get to go for my first fitting. Then maybe a week later I get my leg!!!!!! Jo I am so nervous.

[@alanr4263]

LoL the handicap parking made me smile.

[@alienaleonhard8674]

I'm from germany and I learn right now how to build prostheticlegs. We have a few clients who wear Jeans that have tiny little zipers on the side were the seams are and they are very invisible. they open up kind of all the way, so they are very practical for someone wearing a prosthetic leg. But unfortunately I don't know where they are from and if they can be purchased where you are from. But I see a lot of clients at work wearing them, so I think they buy them like this and don't sew them on their own.

[@delfin6927]

i didnt actually expect the pants thing. idk why i just never thought about that. that was definitely a surprise.

[@dancingpianofairy]

Re: kids section - yeah! That's what I'm talking about! Re: husband - that's so sweet and awesome. Re: homeschooling and upbringing - I feel like we're pretty similar and would make good friends. I never would have pegged you as a Christian, conservative, homeschool kid. Other questions... What was the big trauma when you were 20? You've danced around that a bit but I'm curious to know more... provided you're willing to share. Where in Colorado are you? I grew up in the North Denver metro area so I'm curious. What's your business? How did you get into that? What do you think of devotees, wannabes, and body identity integrity disorder?

[@FootlessJo]

Hey Kelseigh! I think these are awesome questions! Thanks for watching and for being interested, your support seriously means so much to me! :-) So, the trauma at 20 was pretty complex but in short, I was in a really abusive (emotionally, physically, sexually, spiritually) relationship with an older guy, a pastor in my church, that involved a lot of worsening sexual abuse and assault. There's a looooot more to it than that, but that's the basic story. I'm in Colorado Springs! And the other questions, I think are definitely worth videos of their own, so be on the lookout for those soon :-)

[@MirandasAngel]

I loved this video because it answered a lot of questions I had and some I never even thought of. Is there any sport you wanted to try, ie. skiing that you would like to try in the not so distance future that doesn't require a running blade?

[@anneharrison1849]

with the driving, you might want to check your insurance and state laws, I've read somewhere that it can be a requirement to have somewhere to put your "foot" such that it can't possibly slip underneath the pedals and stop you from being able to use them (warning for everyone else - this is a common cause of accidents in summer with people wearing flip flops)

[@elisa1205]

This was fun! 🙌🏼

[@FootlessJo]

elisa1205 Awh I’m soooo glad! 😊

[@sopeace9968]

Your dog's name is Sophie?!? That's SO exciting! I've never heard of a dog with the same name like mine! :D I already love her ;D

[@madihadley]

You’re oldest Shepherd reminds me of my shepherd! He’s 11! And is the sweetest boy!

[@kreatywnanazwa1913]

Love u soooo much, watched all of ur videos and I find u a very inspirational person

[@carolinegill8555]

Not sure if this will work but it’s worth a shot! For your favorite pair of jeans maybe add a zipper to the inside seam. It would be a minor detail and would make your favorite pair of jeans wearable!! If you want to do it yourself you could cut up to the point where it’s easy to get it over, then get a zipper and sew it up!! Love your channel ❤️❤️

[@FootlessJo]

Suuuuuch a good suggestion! Thank you so much! I'm actually looking for a local tailer to help me with that, because I feel like that might be the best option :-)

[@diablalyssa]

Totally random but I really feel like you & Jenna Marbles would get along! Anyway, I love just listening to your story and I'm glad your healing is going well!!

[@lorimitchell9025]

Tommy Hilfigure has a line of clothing For people like you.

[@FootlessJo]

I actually just saw an ad for it! I haven't looked into their pants but am going to, thank you so much!!!

[@rhiannonhintz3743]

I admire you so much! I want to send something to your P.O. Box at some point (soon hopefully, but I don’t even know what I would send yet lol)

[@michelesmith6795]

Hi Jo - probably a repeat of what you've already heard, but as far as modifying PANTS...your best bet for skinny jeans all the way up to dress slacks is to have a professional insert an invisible zipper in the side seam of the pants leg. Works like a charm!

[@smithsundayseven]

Thank you for sharing your amazing story !!

[@crystolperry5150]

Does adidas still make tear away pants? Man i loved those things!

[@dinosaurfun5965]

hi jo. a thought crossed my mind as I was watching, if your car is an automatic you could get your gas pedal moved to the left of the brake pedal to make life easier (I've seen this done in the Uk) happy new year to you.... oh yes when you say Ireland do you mean the north or the south.stay lucky☺😊😚👴xx

[@FootlessJo]

dinosaur fun I’ve thought about doing that! It might make things easier, you’re right! I’ve never actually seen it though, it’s good to hear you have. And we are going all around Ireland but not hitting up Northern Ireland. Dublin and Donegal are for sure so far, and probably Cork!

[@toreycarlyle9953]

Zippers for sure babe! Totally interested in homeschooling.

[@mrsparex]

Find someone who does alterations and get a zipper for Chris W

[@chitoarcilla9527]

I have the same pegasus stuffie as u (the one that i saw on the thumbnail) its beside me rightnow!!

[@Carrieliney]

I have one of those squishy stuffy things. Someone gave it to my daughter and I thought it was stupid but then I laid on it and now I love it.

[@FootlessJo]

Haha aren't they kind of great!?

[@loraverse681]

I'm homeschooled too I've only been to 1 2/1 years of public school 5th grade and half of 6th

[@RedBeard10118]

You are an outstanding role model , I love watching your videos and love that your sharing your experiences with everyone! Also I am curious if you could better describe phantom feelings?

[@FootlessJo]

Keith Richmond aw thank you so much! 😊 So I think the best way to describe phantom sensation is I just honestly feel my foot still there - like if I close my eyes, I “feel” both my feet the same sometimes. I can wiggle all my toes, but on my amputated leg, it will feel like my toes are slow to move or stuck sometimes. The phantom pain is a whole other story, it changes a whole lot (but is a lot better than it was) but often feels like a cattle prod at the bottom of my foot, just tons of electricity. I know it’s super bizarre haha. Our brains have a map of all our limbs so even when they’re gone they still try to send signals there!

[@RedBeard10118]

Thank you so much for replying, I truly appreciate it and love your videos! I've never even broken a bone so I have definitely been curious. As a reptile owner and soon to be reptile breeder my careers have not been too dangerous.

[@erictaylor5462]

8:50 You don't need to go over the foot at all. Take your suspension sleeve and stuff it into the leg, and put the pants over the socket. Basically putting the pants on the leg from the tom rather than the bottom (foot).

[@sarahdasilva4920]

We have the same marshmallow pillow Willow!!

[@donnasue9165]

Its great that you were home schooled 📕📚

[@gabriellaheringer373]

Pls make a video talking about your homeschool experience

[@idadho]

Yeah, Homeschool. We homeschooled our 3 who are now successful 30 something adults. What? There are no classic homeschooled activities. Just good learning with a wide variety of experiences. Chickens must be a Colorado thing. Before you stopped the gabapentin, did you try it for just at night? That is my wife's most sensitive time. An itchy big toe can disrupt her sleep. She has not be up to trying to stop even though she can start up if she needs to. So, do you have a Keasy cone inside your socket that can be trimmed and padded ? My wife is getting cast for her second socket, Eilene II, on Monday at 8 weeks since her first steps. It will be a snug fit 3 mm Ossur pin socket sleeve with no Keasy cone. No more layer upon layer. She's lost 7 cm of circumference. Maybe a Maverick or Echelon foot to upgrade from her K-2. She won't drive yet. The suspension sleeve makes it to difficult to pull her right leg away from the gas pedal. I made her a left foot gas pedal before her surgery. She has already driven left foot last summer before surgery. You are looking and sounding so good. Maybe you could foster am amputee child some day.

[@katybelyea2944]

Cats purr at around 36 gigahertz which is known to be a healing frequency, they are trying to help you heal.

[@karinross66]

We also decided not to have children. In part due to my medical issues, but also because hubby was 40 when we married and I was 34. We are aiming for early retirement and enjoying our young nieces whenever we can.

[@FootlessJo]

Karin Ross we have lots of nieces and nephews (biological and otherwise!) that we love spending time with too! They’re so awesome. 💜

[@tiffanypilkey103]

Red velvet is the bomb!

[@FootlessJo]

Tiffany O'Neill but really though!! So good!

[@crystalfresquez7769]

Haha I asked where you live an didn't realize you were also in Colorado. Lol I guess I assumed since you drove to Denver for appointments that you were out of state.

[@QueenofMarine]

Jordan, do you know what breed Monkey is? I think she might be a Plott Hound, or a Plott mix! I say that because I had one, Moose, and he looked so similar. They aren't super common in the west and not many people I talk to have heard of them, but they are wonderful dogs!

[@briancolson3628]

You mentioned another medication in an older video other than gabapentin it began with an ( l ) can you let me know what it is?

[@FootlessJo]

yes! I believe it is called Lyrica!

[@amputee_basics1149]

Try bunching up your pant leg and pulling it over your ankle all at once. A comedy video trying to do that with skinny jeans. Also, there are "adaptive clothing" lines available. Check the inter webs.

[@skywatcher4260]

What is your business? How long have you been managing your business?

[@lyndagayemiller]

What about skinny jeans with zippered legs on the bottom?

[@abbyalsup8216]

Do a full video on being homeschooled, please!

[@britneyangelique8427]

I have Chiari Malformation and struggle with it almost everyday please make a video talking about it!!