Living in constant motion

[@kathryncollins8708]

Had this since 1982

[@seeyouonthefly2024]

Have you had any relief at all? Remission? I am so sorry.

[@MaryJones-fs4wf]

Have it non-stop since 2015. No relief, no remissions, 24x7 hell

[@maryjoconnolly7961]

I currently have this from being on a cruise then taking a long flight home to california from Italy. Luckily in San Diego I found Chiropractic Neurologists that can help me through Optikinetic exercises. I have only seen the doctor one time since my initial testing and already and functioning better. I hope this can help others

[@daisyfu1842]

Could you please share the doc name ? I am having the same issue Thank you

[@muhndmom7513]

poor lady, i think am suffering from the same thing, oh my god how you will feel life is tough, hopefully things can get better

[@katopunk4167]

4 days on a cruise, and i had MDDS for 2 months and it was INSANELY severe. I was falling over, couldn’t put my makeup on without smearing it across my face, had to hold on to things as i walked around my house. I was laughed at and even accused of faking or exaggerating it. I used the visual physical therapy to help my symptoms and eventually, it subsided.

[@JacquinJohnson-ew3er]

Omg I’m having visual symptoms. What did you do

[@muskmadness1]

For anyone reading this, i got it for 2 weeks after using the elevator. It stopped at the wrong floor and i anxiously hurried out and got back in, which I presume, caused the imbalance I endured for a good few painful days. I would have really bad anxiety attacks, which worsened the rocking and swaying motion. But, it soon went away by the end of 2 weeks and I am very thankful for it. Try to be patient, walk 10 mins twice daily, practice some vestibular exercises and you should be good.

[@SB-zl3kw]

Poor woman. I also have mal de debarquament syndrome but it is much much milder thank hers. Drugs helped me greatly though.

[@birdierose]

What kind of medication did you take? I have this but its not near as severe as in the video.

[@jgoodygoods512]

Physical therapy does not work for this syndrome. Medication and symptom management can help and hopefully trigger remission. SNRI’s like Effexor are usually prescribed as well as long acting Benzodiazepines which suppress the central nervous system like Ativan. Dr. Shin Beh in Frisco, TX is one of the only neurologists in the country to specialize in treating this. I hope this information might help someone watching this that might be suffering from MdDS.

[@RAVETOR]

I think Excessive Physical activity (Running, swimming, Skippin) which are natural movements turns off the switch/complex circuit in the brain as causes MDDS, just like the unnatural movements did(plane, boat, elevator, train, car, bike) together with stress/anxity as turns on the switch as causes MDDS in the brain. This together with not taking any medications or doing any unnatural movements (driving a car or being a passanger, or using a bike e.g.) for up to a year after onset off MDDS will turn the MDDS off in the brain.

[@muskmadness1]

​@@RAVETORhi, can you help me a bit on this? You seem to be responding to everyone.

[@RAVETOR]

@@muskmadness1 Hello. Sure, go ahead

[@muskmadness1]

@RAVETOR thanks for replying. I'm currently on day 5 of feeling the swayings and all after boarding an elevator. It's so weird. I'm eating, sleeping and exercising well though and while the feeling is not very intense, I'm still unable to ignore it either. I'm not sure how long this should take to get better. Do you think using an elevator once again may likely bring things back to normal?

[@RAVETOR]

@@muskmadness1 I recommend you not to use the elevator (Or another passive motion) until the dizzines has went away. It will go away don't worry.

[@k.baller5140]

I have this and it's absolute living hell... I feel like ending

[@shinigummyl1586]

same youre not alone

[@maryjoconnolly7961]

Please look for a Chiropractic Neurologist in your area

[@MaryJones-fs4wf]

@@maryjoconnolly7961 nope. no more doctors

[@debrameyers5431]

I am three and a half years with this from a plane ride. I went to Mount Sinai and gyrostim without any luck.

[@seeyouonthefly2024]

This is Debra. I am not five years and 17 days with MdDS and no better.

[@muskmadness1]

​@seeyouonthefly2024 how are you now?

[@RAVETOR]

Poor lady - hope she is feeling better today/or in the future!

[@JessicaJLandi]

I've had this swaying feeling for 5 days now after getting off a 4 day cruise last week. I wonder if the wrist bands with acupressure beads will help. I'll try them tonight as I sleep.

[@muskmadness1]

Did they work?

[@rdsandoval1663]

I had this after the last 2 cruises i went on. I went to a chiropractor and they fixed it after 2 weeks. I’m so scared I will get it again. I am going on another cruise in a month.

[@RAVETOR]

What did the chiropractor do for u to make it go away?

[@rdsandoval1663]

@@RAVETOR The Chiropractor cracked my neck and I woke up the next day feeling fine. Could be just a coincidence or not...

[@RAVETOR]

​@@rdsandoval1663 I have got mdds 3 times in my life so far (plane, cruise, elevator) and everytime I have got it, it disappeared after 2 weeks without doing anything, just living normally - fortunately.

[@arnoldpalmer2241]

@@RAVETOR nice profile pic from I hate models. Don’t do MDMA man, you’ll retrigger this for sure. I got this from a delta 8 edible.

[@RAVETOR]

@@arnoldpalmer2241 Did you use google-lens or? Just a lot of gibberish here coming out from your mind.

[@elitecoaching4927]

I treat it with fasting. Still have it but it dramatically helped

[@headtrips1]

Like dietary fasting? How did that help?

[@karenheersink352]

MdDS is also caused by stress and trauma

[@Grace-nq4bh]

I have MDDS triggered by a cruise 2 years ago. I want to know if she was able to go on another cruise. If so, did it help?

[@charityancik7369]

I just went on a 2nd cruise hoping it would help. It didn't help for me.

[@amandar614]

​@@charityancik7369How are you doing now?

[@holleyrauen5314]

14 months and counting with worsening symptoms....