Frontotemporal dementia: Signs and Symptoms

Welcome to the place where I share dementia tips, strategies, and information for family members caring for a loved one with any type of dementia (such as Alzheimer's disease, Lewy Body dementia, vascular dementia, frontotemporal dementia, etc.)
In today's video, I talked about Frontotemporal dementia: Signs and Symptoms
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OTHER VIDEOS MENTIONED IN THIS VIDEO:
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In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I hope that this work helps you in some way on your caregiving journey.
#careblazer #dementia #dementiacare

[@elainegoad9777]

My husband was diagnosed with frontotemporal dementia in the 1990's (also OCD, ADHD etc...) with no explanation or how I was suppose to deal with the situation. Yes, there was many embarrassing situations and people even said he was "faking it" ! Finally 6 years in long term care and died age 72. It was a long slow ordeal for me and not much support from professionals or others.

[@whalewoman813]

I can't tell you how many providers tried to tell us we needed marriage counseling! Support is very lacking for caregivers/spouses

[@shineon7641]

I commiserate with you Elaine. Yet the facet of your nightmare that I learned from you that this was your Husband, that I can only imagine the mess my mind might be in, if I had to deal with that. I am so sorry Elaine. Do your best to forgive the people that just couldn't understand what the two of you were going through. Just as you nor your Husband could really understand their limited view of what was happening with the two of you, simply chalk that up to their Ignorance, at the time. Do your best to look for Grace wherever you can find it and understand that most people wouldn't behave like jerks, if they had a choice, ya know? At times, you may need to be the Bigger one in whatever misunderstanding is taking place, but the truly important thing that comes from your doing this, is the fact that you can stand tall knowing that you have kept you side of the street clean and you can honor the one that looks back at you from the mirror! There is no better feeling than knowing that you have conducted yourself with Grace, Class and Style. It is woefully under rated. Again I am saddened by the fact that you had to go through this, with your Significant Other! No one else can even fathom what you have faced. Elaine probably needs a real friend now more than she ever has, so treat yourself like you would treat your very best friend. Take the advice that you would offer to your best friend and take solace in the fact that you're in good company, always! God bless You and Yours Elaine. I wish for you nothing but the very best that Life has to offer.and tons of it too. Do you have an update for any of us out here? Help us and let us help you. Cheers...

[@shineon7641]

I'm so sorry Elaine. I can only imagine the pain, sorrow and frustration that you must have dealt with. This is why I tell everyone that is a part of my "Inner Circle" to run as fast as they can, and get as far away from me as possible. I don't want them to have any part of this Disease. I feel that it is completely unfair for me to expect them to basically ruine their Lives in order to make me a bit more comfortable as I go through the degenerative process. God bless you ... and your Husband. As you say, try to be kind and gentle with yourself. There's a special place in Heaven for Angels, like you. Keep Smiling... Cheers...

[@nolagirl7082]

Oh bless your heart! I couldn’t imagine having to watch your husband go through such a horrible ordeal and to have any of your friends/family suggest that he was faking it

[@shineon7641]

@croller90 Well, hey there croller90. I'm sorry to hear that your Mother has been Diagnosed with this Disease and I'm also sorry that you have been touched by this damned disease too. What do you mean, when you say that you have finally "Figured It Out?" You have me in a really curious state, wondering what it is that you have figured out? Please let me know, alright? Alright! Take care of the both of you and we'll talk again soon. Cheers...

[@user-zk5jp7ko3o]

You said that caregiving for a dementia patient, especially a spouse, increases the caregiver's risk of dementia. I'd like more information about this.

[@BBaaaaa]

Probably because it increases stress levels to unhealthy amounts, besides other dementia related health risks like substance abuse due to the grieving process, etc.

[@sarahswan2182]

Obviously, I have stumbled on your video that was done approximately three years ago however, please do a lot of us caretakers a “great service” and expand on your comment that we too are at risk for the same disease when caring for a family member! I need to know this! I’ve never heard of this before! Thank you.

[@bevstaska5017]

These videos are God sent!!! This is the hardest thing I have faced watching my husband of 55 years turn into a man I don't know anymore.

[@sammyrichardson7305]

I am sending love and strength you’re way

[@milels6917]

@@sammyrichardson7305thanks for that my husband is in mild form but becoming difficult cognitive impairment and finding I have to do everything from filling the dishwasher ect I’m tired some days because I’m old with joint pain but I thank God I’m able to function This is a cruel decrease.

[@blanchae]

My wife was over-medicated for psychological issues in her 50s and she had symptoms very similar to what you've described as frontotemporal dementia. Under her psychiatrist's direction, she has been lowering her meds and the symptoms has decreased dramatically and she's been more coherent and happier.

[@yawopokugyamfi6609]

What is the name of the medicine(s) used to treat her? YOG

[@shineon7641]

Awesome! It is so good to hear something, anything positive. I'm so happy for you both, but angry with your wife's over-prescribing Doctor(s). Time is, by far, the most valuable asset that any of us have. I think that it is horrific that the Doctors stole some of your time. I'm sorry for that to you both. Why do you think they call it "The Doctor's Practice?" They sure seem to practice a lot, but never at a loss for themselves, but always at their unsuspecting patients. (little bastards!) (I'm smiling when I say that) I hope that things continue to improve for both you and your wife. Take care. Cheers...

[@shineon7641]

Right On Eugene. I'm hoping & Praying for You and Yours. Do you have an update to this, since this was two years ago? C'mon, make us smile...

[@kumarigeerutsing5231]

@@shineon7641 ì

[@sharynjohnson406]

Thank you for your post, I have followed you for several years, my husband had FTD .He passed in March due to a fall and had severe brain bleed. I just wanted to thank you for all the help you give caregivers with your post. Sharyn Johnson

[@daleneminnies5113]

100% True Personality Behavior changes MY husband was Diagnosed with a Very Rare Frontotemporal Dementia called FAHRS DEMENTIA in 2007 he Died on 20/04/2020 for 13yrs was it a Very SAD JOURNEY for me because my husband was my Child who I must care for Nearly 40yrs married

[@evelynsciales5417]

I had three family members all going through different types of dementia. my brothers dementia was violent outbursts and compulsive behavior. My father was deaf, partly blind, and wheelchair bound. with the frontal lobe dementia. He was petrified to be alone in a room. He had to have another person with him at all times. After a hospital stay, doctors placed him in nursing home. His doctor knew about my brothers dementia and my mothers. The reason for me commenting is you never mentioned the 72 hour cycle these patients experience. All three of my family members experienced the 3 day cycle. not at the same time, thank goodness. I kept a calendar so I wood know when each of them would be on their 3rd day, the 3rd days were awful for each of them. Behavior was so bad I wouldn't let my sister pick up my mother. she would take my mother twice a week to help me out but she had three small children, didn't want them seeing grandma acting so unstable. their 1st days were fine, 2nd days not to bad, stressful but I could manage their care. 3rd days was like being in an insane asylum. They were so violent, abusive to me, fighting with me about food, refusing to eat, shower, changing the tv channel every few minutes. repeating themselves every five minutes. crying for nothing. then the next day they were fine. can you explain the 3 day cycle to your followers?

[@shirazpatrawala6493]

Yes I would like to know about this too

[@marygem]

In my care experience that if my loved one was crying and weak into the next two days, but if I made sure they had at least one egg before 11am, every day, their moods were better the following two days and they were less combative altogether. Water and other proteins on a consistent basis during the day totally helped their day to day living. And mine.

[@brendaann2915]

Thank God for your question on the 3-day cyclical pattern. I thought I was going out of my mind. That would also explain why they're fine w others on "good" days. I will heed this, Evelyn. Thank you very much for sharing. Blessings, Brenda Ann

[@simondetablan6746]

Y

[@squarepeg418]

I just spent 3 days with my mom which I haven’t done since she has become symptomatic and that would explain the deterioration of her personality, behavior and memory.

[@stephaniejohnson9353]

Thanks so much for doing these videos! I take care of my Mother who has Dementia. This is the hardest thing I have ever done in my lifetime.

[@constance4065]

Stephanie Johnson I understand how you feel Stephanie. It is very hard to see your Mother slowly become a person you don’t really know anymore. My Mother was so easy going, kind, never said a harsh word about anybody until she developed this disease. I have to wonder if people’s personalities change to the opposite way they were all their life? Will be praying for you & your Mother.🙏🙏🙏🙏

[@cathyquillen6511]

I am taking care of my mother who has dementia. She wasn't an easy person while growing up. Now, she is worse than ever! She has totally stopped doing anything for herself and demands to be waited on. She is extremely paranoid and argumentative. She is concerned with my every move. I am going crazy! I do not feel any love anymore. She has drained me.

[@estheryu6462]

@@cathyquillen6511 hugs to you both... Cathy i understand 100%.. I'm in the same boat and feel so drained.

[@nightshadowone2989]

@@cathyquillen6511 We haven't even got a diagnoses yet and I'm already losing it.Esp since my partner was always the "grounded" one😣

[@privateprivate8366]

Cathy Quillen typically, people’s personalities concentrate, as they age. This is also why someone who is prone to narcissism or even NPD (narcissistic personality disorder) often worsen, as they age. Perhaps a good analogy, although I understand it’s in appropriateness, is when you look at the difference between a grape and a raisin. The raisin is the dehydrated form of the grape. The sugars and other contents become more concentrated, the less moisture it has. This is in addition to the often normal crankiness about age that is going on. I believe my mother “may” have both NPD and dementia, maybe frontotemporal. I don’t know how the whole thing works but, I may try to see how I can get her property sold, so she can be cared for by the state as, my sister and I are unable to provide care for her.

[@madeleinefraley8916]

In 2016 I testified in the Washington State House of Representatives regarding my concept of the business card I could hand the restaurant server or clerk behind the counter when I had my husband with me. The card read: My companion has memory issues. Please be patient. Thank you. I would surreptitiously hand the card to the person without giving a verbal explanation therefore protecting my husband's dignity.

[@babygirl831962]

You are describing my 28-year-old daughter who has been struggling with this around 10 years. Unfortunately, she was one of the ones labeled with "schizoaffective disorder" and is currently awaiting placement in a group home after another violent episode with me. Trying to get her help or medical testing has been a nightmare. Thank you for making this video.

[@lesleelampert8008]

I hope things are going better. Don’t lose your love for your daughter. God sees the struggla

[@shineon7641]

God Bless You Susan and your daughter too. Do you have an update for us here, since your Post was about a year ago?

[@DiscernmentNow]

Hardest thing EVER. I can relate!

[@samscarletta7433]

We are still in the dark ages when it brain chemistry.

[@DannyD-lr5yg]

Look into the case studies of people with severely debilitating schizophrenia - on multiple meds, unable to care for themselves/court appointed caregivers, etc - whose symptoms completely evaporated upon starting a (doctor overseen) ketogenic diet. Much of the brain clutter in psychotic disorders such as schizophrenia and schizoaffective seems to be metabolic.

[@chiruboy23]

You are a great human being . My dad has dementia (probably vascular) and I was clueless what to do .Now after listening to your videos ,I got some idea how to deal with it.Thanks for your care and support.

[@preplikeagypsy10]

thank you!thank you!thank you! My mom has been driving me crazy, and I have neglected my own life because of it and I feel so alone, we got her out of the nursing home in 10 days, she was there for rehab at first and could not return home because her husband was abusing her and we were not even notified, I wasn't prepared or expecting this, but my brother brought her here cause I'm self employed and have a flexible schedule, but I don't have my house yet, and this place isn't big enough for my brother to be here, and the struggle is real, I have been trying to reason with her to do what is best for her health and I have felt like she fights me every step of the way, I feel so unappreciated and I'm struggling because I miss the way things used to be, and I just downloaded your guide and at least now I feel like there is hope so thank you so very much!

[@anitarice9609]

It would be helpful to talk about the connection ( if there is one) between other mental health issues like depression, schizophrenia and bipolar disorder.

[@dataman8350]

I was chocked to learn that you increase your own risk of getting dementia, and apparently dramatically so, just by caring for someone who is suffering from the disease. I would like to hear you expand on this topic, and explain how this can be! Does this increased risk also apply to medical professionals who care for patients with dementia?

[@m-leebaker2727]

Please see my reply above. I would say it would not extend to a medical practitioner, however, there are risks for certain conditions with all types of work. Years ago I heard dentists had the highest level of suicide - was it the mercury or some type of stress? Maybe a nurse who works 38 hours a week and is exposed to verbal abuse etc may have higher risk but a specialist who consults with different patients would not have that sort of exposure.

[@maripatmcnamara3513]

I too was shocked to hear that I am at great risk for dementia because I am the care giver for my husband. I have never heard that before and it's scary!!

[@angelaballenger4170]

I feel like she needs to respond to this very dramatic scary statement.

[@shineon7641]

This is just another reason that I've told everyone close to me and everyone that I Love to Run as fast and as far as they can to get away from this. I would never want anyone to ruin their Life, simply because I drew the Short Straw, so to speak. Seriously, what kind of selfish bastard would I need to be to impose my disease upon another one that I cared for or even Loved? Go ahead and hurt my feelings. Get the hell away from this disease. It promises nothing but deep sorrow and Suffering and I don't want anyone to be sucked into this Vortex of Nightmares. Run Away... I'll be alright and before too long, I wont even know the difference. So GO!

[@briancantale8930]

As a caregiver for someone with dementia, running away just simply isn’t an option. My mother in law had to move in with me and my wife after she was diagnosed with dementia. And we’ve had to endure this for 8 years and counting. There’s just simply nothing that can be done with her at this point.

[@seniletravel7171]

Thank you so very much; You're wonderful!

[@sunfish4]

My husband was diagnosed 2 yrs ago with frontotemporal dementia and his early onset symptoms are EXACTLY as you have described. He went from a happy fun loving, kind, loving husband to someone who cannot show any emotion today. Like you said, he is "flat". I am looking forward to your future videos on this subject. Thank you.

[@DreamsOfFinland]

does he respond to dogs? sometimes a person changes in moment of animal contact.

[@sunfish4]

@@DreamsOfFinland we have one! His interest wanes, I mainly got the dog for my emotional health. She brought me from a very dark place as I had a hard time understanding my husbands personality change at first. That's a long story, not for here. My little Yorkie is my salvation.

[@jacquelinesierra9682]

This video was so informative.

[@joemanly9519]

I have learned so much watching you. Thank you

[@whitneysawyer483]

This was a very well informed video, Thank-you!

[@constance4065]

Thank you for doing these videos. They are so informative & have helped me tremendously!!

[@ladylilo6044]

Thank you so much for caring, God bless you and your work ❤️

[@bernadettekavanagh4745]

Thank you for all the help and encouragement im a care giver and have really applied all the information and amazed it really helped keep up the great work .bernie ireland

[@gotsteem]

Wow, you are truly an Angel.

[@anitarice9609]

You have no idea how helpful these videos are. Dementia has been such a mystery to me.

[@Awsimilate]

My mother had FTD for well over 20 years, before they realize what was really wrong a month before she died, they misDX'd her as having Schizophrenia , and then brushed off her speech difficulties as a side effect of smoking, although she never had breathing issues. Her memory was intact the entire time, but her behavior started declining in her late 30's early 40's, her speech started going roughly 10 years before she died, and she made it to 74 years of age... The Problem with FTD (Picks) is people have it far longer than the medical system realizes they do, in pretty much every case.. She say's it can last up to 20 years in this video, it can actually develop far more slowly and last much longer than that. It only appears statistically to last "up to 20 years" because of the poor rate of early detection .

[@anfalaa]

My mom(59) having fTD now 4 years , now she stopped speaking , and she sometimes don't eat herself we have to help her, and what else will happen in coming years? What will be the worst case in FTD

[@shineon7641]

I am so, so saddened that you have had to experience this! FTD is notoriously difficult to diagnose, especially in the beginning. 74 huh? I hope, for your sake that most of those years were at least some what comfortable for you. No one probably ever even suspected anything like FTD for your Mother's diagnosis when she was in her 20's and 30's. any kind of dementia is probably the last thing on their lists of possibilities. ya know? God Bless your Mother and especially God Bless You Shawn.

[@Awsimilate]

@@shineon7641 Thanks, I think part of it was she coped with it so well on her own for 2/3rd of it, it was easier to just blame it on something else. Thankyou for your kind words.

[@Awsimilate]

@@shineon7641 Same thing just killed my cousin since my original post, she was 52 when she died last spring, seems to be running in the family. In my cousins case, her speech was fine, behaviour issues went south quick last year, she was walking the streets of Toronto naked at night for hours in -35c Feb. weather. She was hospitalized for frostbite, by the following early May she was having difficulty swallowing, they found her dead in her apartment May 20th. Again her Dx before death was Schizophrenia, and they blamed her swallowing complaint on "a need to lose a little weight". Once the swallowing problems start, it seems death is only weeks away. She died and suffered from FTD, there was never any real help or proper DX while she lived, just like with mom. My older sister is now declining rapidly, she is 51, I have had serious emotional control issues for several years now, I am 49. There is no help for anyone. The root cause is vascular, so in short micro blood clots landing in the brain slowly over time, the Skitzo meds make you get fat, being fat increases the likelihood of blood clots, and speeds up the progression of the disease. This is why My cousin died at 52 and my mother made it to 74. They assumed my cousin had schizophrenia based on my mothers misDX, my cousin started the meds 20 years earlier than mom (by age not duration) as a result. Same weight gain outcome over a similar period of time on the meds. Resulting in increase in clot rate and expedited death. Even if I try to get help, they will just kill me.

[@Awsimilate]

@@anfalaa My mother became aggressive towards the end, but only towards the nurses and never to me, I think she was just fed up with them poking at her.. Before the end stage my mother loved her food, but needed some help. You will know there is only a few weeks left when she start to struggle with swallowing, shortly after than she will not be able to relieve herself self (urinate) without medical assistance. This is the result of the final stage disconnecting the brain from the body functions. Death occurs within weeks after the swallowing issues, as a result of renal failure and the related infection. Sorry if that sounded blunt, you asked for worst case, and this was my experience. Best wishes.. God is with you.

[@barbarahawkins7864]

The pre-printed cards you mentioned are a great idea!

[@MsBerries25]

Wonderful break down...thanks for the explanations and clarifying the differences and between the types of diseases

[@sherilynschneider]

I am finding SO much comfort from your videos! Thank you so much! I look forward to your upcoming videos.

[@quasimobius]

I'm not finding much comfort in my child becoming incapacitated at 42. I've never seen senile dementia in my family's elders and now a "younster"has it.

[@BoysLikeMeee]

@@quasimobius Sorry to hear that. It's great to find videos like this to help us learn about a subject that needs much, much more attention.

[@user-jx7qo7is1f]

Thank you Great Information

[@victorialg1270]

Thanks for the idea of the card. I am looking forward to the January series. Diet is probably one area where both spouses could follow the protocol.

[@johnhughes3963]

My mom..used to always say that there are a lotta little white things coming down.. SNOW!.. same with fall leaves..she would say there were little colored things falling. She didn't know the words.

[@alyssa3031]

Thank you for a great example for people to look for. That example is what I wanted to hear in this video

[@bikashbhadury9931]

I lost my 46 yr old son my only child to FTD two years back

[@Ashestoashespetcrematory]

Wonderful information thank u so much.

[@omayrasdemesne]

Great video. Very clear and informative. Looked it up due to Bruce Willis' most recent diagnosis. So sad.

[@kalumander]

Thanks for the lovely explanation, really appreciate it! On the other hand, I hate that sentence. "Only good vibes". It's so stupid, so naive so un-life. To be able to live learn and love, bad vibes are a must. To keep being a sheep with very narrow view of life "only good vibes" works well.

[@elenewentzel610]

Thankyou again for the information it really helps to understand it better! My loved one still does lots off puzzles, having conversations about things happening. He’s using medication since the beginning off the year and he is 79 years old.

[@DansilSchroeder]

I was diagnosed with this recently. About four months ago. I'm 36, with triplet two year old sons. Their mother passed from a horse riding accident. I've listened to myself, I've watched videos of myself, and even I can tell something is wrong, very wrong. I don't act the same way, I've become more aggressive and reactive and I'm scared of what that'll mean for my children.

[@DansilSchroeder]

@@anfalaa no lol fuck off with that shit, I got preached at enough in Afghanistan.

[@honeyspoonbeewrangler4550]

@@DansilSchroeder Did you suffer from a head injury in Afghanistan or other tour?

[@cynthia3536]

How are you doing I’m sorry … I’ve been struggling with some stuff similar have little kids

[@danutaserafin9796]

Mey Be you are overstressed or overhelmed by YOUR. Responsybility, 3 two years Old are very active, noisy and demending

[@uniqueaerialvideoltd2863]

I am sending you strength and love.

[@surfrby8876]

Thank you for these videos, I'm caregiver for my 95 old year mother , they've been very informative and helpful

[@DStrauch]

My husband has FTD but doesn't have the behavioral part - his is more language issues. Such as "which way is the best way to go" or he can't figure out critical thinking and forgets words. He has Semantic Dementia. He has no more humor but he laughs and follows my social cues. I love these videos, they teach me so much as a caregiver and wife.

[@cynthia3536]

What was the process in getting diagnosed? How did u get him a diagnose?

[@shineon7641]

What in the heck is going on here? Not long ago FTD was considered quite rare and today it comes across as though 33% of our population has this? ThiNk back a little ways. Oh here's another one... back, not so many years ago "Autism` used to be much more rare than it is today. My father died years ago from a very rare Brain Tumor called a "Gleo Blastoma Multiformea" (sp?), and oh it was so rare and yet today it is so common that I can hardly believe it? So, what the heck is really going on here Doctors? Every ailment of the Brain is on the Quick Rise. that's what's frightening to me. I see a pattern here.

[@shineon7641]

What a wonderful time to be alive, when we can access information like this, so easily! Thank You! This has been so very frustrating. I was diagnosed with "Frontotemporal Dementia" a little over 5 years ago now. At first I thought that a "Silver Lining" to this might be the fact that I believed that I would be blissfully unaware of any of my shortcomings. I actually used to joke about it and say to my friends: "Ah, it won't be so bad. I can get married and then basically have a new wife and Honeymoon every day!" Well, let me tell you, unfortunately the opposite is true. I am painfully aware of my shortcomings! When I have a social faux-pas, I'm right there, fully aware of what I just did or didn't do. So I get to stand there and look stupid? Example: When I forget my name,.. I mean how does one explain that one? You can't and there's no real way to explain it either. So, I just stand there, wishing that I could just die and try to disappear! I mean, what else can I do? Anyway, I didn't want this to be a "Poor Me, Why Me" story, but this was a real surprise to me. Keep Smiling...

[@jimcurl1928]

God bless you. Forgiving ourselves is the most difficult thing, especially when we actually have no control, and thus nothing to forgive.

[@catherine8770]

Thank you for sharing this. It really helps me to understand.

[@rhondasingley7211]

I have the same Diagnosis since 2019 It took them Year's for Drs. To figure out why things were slipping away from me! Now I can see a little Decline in my speech and memories. Like numbers 😢 well good luck to us ALL

[@MatttMan]

Shine On!, Shine On! ❤️❤️❤️

[@shineon7641]

@@rhondasingley7211 Hi again Rhonda. I'm just checking in with you to say HI and i'm hoping that you are doing okay in your day-to-day Life. Remain Positive and reasonably Happy,. Until our paths cross again... Cheers!

[@elizdonovan5650]

Excellent video. Thank you. 🌲🌝☘️

[@tsolis7355]

Thank you so much for this. Took mom to Target yesterday, she was staring at the man in front of us paying the cashier, she saw all the cash he handed the cashier and mom said, “is all that his money? Big black guy” I think she was just saying what she saw, just like when she passes by the park she says “red slide” but I know the gentleman probably thought she was being some racist old lady. I’m going to print up some cards asap! Such a helpful idea!

[@sharitumlinson3747]

you just cleared up at least 3 important questions i was having about my mom. she was diognosed with early onset demensia 4 years ago. your explanation of FrontoTemperal Demensia fits so many of my moms symtoms. thank you sincerely.

[@shamaishamai1438]

How about doing a video on Normal Pressure Hydrocephalus, another form of dementia common in older adults

[@kimberlyhamilton864]

Wonderful information that you present in a clear way. The statistic about caregivers being at high risk for also developing dementia is concerning. Can you sight studies that explain that? Thanks.

[@virginiamundo1777]

Excellent snd informative

[@DementiaCareblazers]

Thanks and welcome

[@ixlr8395]

Those that have family members battling dementia;please know and remember that the person may say mean or nasty things to you.ITS NOT THEM REALLY MEANING IT!!! They will lash out to people they are closest to. At times they will become violent. It takes a toll on caregivers!!!!!!

[@Lucky369]

Currently experiencing this with my grandma.

[@mariahgreen2223]

Well explained

[@pentatonya1778]

Q: for 3years I’ve been trying hard to have medical community to take a serious look into my dad’s brain capacity. Starting in 2014 his primary car dr gave him the “remember these 3words” test. Got blown off. 2017 massive heart attack. Symptoms became worse. Got blown off again. 2018 brain tumor in 3rd ventricle removes. Got “brain damage & dementia” diagnosis. Since then no further follow ups or scans, tho I’ve asked repeatedly. No one can tell me “the type” of dementia he has or recommended medications or diet to assist in his care. What other questions should I be asking?

[@bulshokades]

My mom is 75 and has this type of dementia, recently diagnosed

[@judithwallace2091]

Wonderful. Love the idea of a business card. What a great suggestion.

[@quasimobius]

Yes, innovative idea, but what if your loved one sees you slip the card and finds out what it says? Then they could be stigmatized from embarrassment too. My oldest daughter has been saying things I'd never have believed her capable of before, but she has mortified me a couple times, like a couple years ago she started talking about a local lady having dwarfism right in front of her, just a couple feet away, and when I told her to quit she said "so?" It's like she has zero consideration of people anymore. She's been acting compulsively, out of the blue destroyed our front porch with an axe and wrench. When I stopped her it was like she was waking from a dream. I have to hide tools from her now.

[@Cyriac-Sebastian]

Is there anything common with dementia and psychiatric disorders like paranoia, psychosis, bipolar disorder or schizoaffective disorder?

[@cherylsimpson5899]

Thank you 🌻 my cousins husband died from this horrible disease, this year. His memorial service was last week. Could you please do a video on Huntington's Chorea disease. My husband's had it for 15-20 years now. It's very devastating. Since it's a brain disease too. I was wondering if you could do a video on it. Thank you very much 💖.

[@m.webber5118]

Just found your web site. I got my education, by Fire, taking care of my father with Alzheimer’s. Wish your videos were available 10 years ago, when I took care of him. Please keep them coming! I think you need to tell people, dementia is REALLY UGLY! My father had a Alzheimer’s, but I have the life long scars of the disease.

[@cattycorner8]

M. Webber I think patients with these diseases should be allowed to end their lives.

[@111455]

@@cattycorner8 as much as people would like to demonize us for this i absolutely agree. feel it's a crime that we are told we have the right to live at all costs but never to die of our own free will.

[@angelafleming3328]

This was so extremely helpful I have kind of thought my husband could have dementia over the last year he forgets everything he never knows what day, month, year we are in he will ask me 50 times a day is it time for the kids to come home our kids get picked up by the bus but he meets them at the bus stop so right after he gets home from taking them to the bus stop he starts asking me if it's time to go pick them up it pretty much every 5 to 10 minutes all day until 3 pm its mentally taxing on me. But the one thing you mentioned is psychiatric issues can be misdiagnosed and really it could be dementia which makes so much sense its only been a year that I thought we were dealing with dementia but he has been dealing with psychiatric issues for 14 years its all so much clearer so he has been treated with medication for psych issues and it was probably dementia all along and it just got worse over the last year thank you for helping to clear this topic up for me.

[@DementiaCareblazers]

I'm so glad you found what works best for your loved one! 💖I'm so glad you found what works best for your loved one! 💖

[@WheresPoochie]

I am suspecting that my 63 year old father is developing this condition so your information and warm tone of voice is incredibly helpful.

[@BalkanDeputy]

Thank you.

[@maurakennedy5952]

Think the reason is nobody looks after the carer its so sad piease carers look after yourselk you deserve it and look for help God bless

[@alnordgren]

Thank you so much for these videos! They are excellent, and very helpful. Our 94 year old Aunt was diagnosed with FTD last year. She recently received a CT scan and MRI. Results were that she has Late Onset Alzheimer’s Dementia. She is constantly asking us for the results of the MRI. She knows something is wrong with her brain. Should we tell her the results, or let her doctor tell her? We don’t know what to do. Thank you.

[@christinemurphy4367]

My Dad has a long, long history of depression and mental illness. He is bedridden and on a feeding tube and will be turning 83 this month. He has been diagnosed with Dementia but not Alzheimers as of yet. My question is he has started chronically crying nearly every waking moment and we are completely clueless as to how to relieve him and us of this behavior. I hope you have info that may help us not understand as much as STOP this carrying on all day every day. It is sad of course and is breaking my sister’s heart and my own. But it is also frustrating, terribly disturbing and even aggravating to us at this point. He is on antidepressants, supplements and excellent food sources. THANK YOU!!!!!!

[@barbaragraceful]

what has happened since you posted this? Thanx

[@cacatr4495]

I don't know if you saw this comment above, it was a reply to another, but I will copy and paste it here for you. They wrote: "@marygem 2 years ago In my care experience that if my loved one was crying and weak into the next two days, but if I made sure they had at least one egg before 11am, every day, their moods were better the following two days and they were less combative altogether. Water and other proteins on a consistent basis during the day totally helped their day to day living. And mine."

[@indianakinney]

Thank you so much for your videos. My husband was diagnosed with FTD a little over a year ago. For him it is progressing very fast. 18 months ago he was still working and now he can't make change, dress himself, or walk without a cane or walker. I thank you for all the information you are sharing in your videos. I knew nothing about dementia when we got this diagnoses. You are truly a blessing. The cards are a GREAT idea, I will definitely be doing that.

[@JG-vl8vs]

Thank you for these informative and helpful videos!!! It's helping me tremendously. I have a question about dementia being triggered by a head injury. Is that possible? My mother (now 93) had a very bad head injury about 5 years ago and has steadily lost more and more brain function. It was very subtle for the first few years, but now it seems to be accelerating more rapidly. She is in nursing care with moderate dementia.

[@angelacoulter7061]

My mam had a huge stroke in her late 80,s she lost her home, mobility, independence as she has to have 24/7 care and can’t walk in a wheelchair. She is 90 now and the doctor said she has this type of dementia. As they say you can get it after a stroke it’s so hard to talk to mam because it’s not the mam I used to have. The mam I had is gone now I just hold on to her good days trying to search for her. But I know she is getting worse. God bless you guys and your families as I know how tough this is.

[@edupton5011]

Very helpful

[@DementiaCareblazers]

Glad it helped!

[@MrDWCallahan]

Thank you. I am a caregiver for my wife with FTD. I look forward to more education.

[@annettecastellanosguillen9491]

I am rally interested in dementia and Parkinson’s could do a video regarding this type? I am a caregiver of someone who as Parkinson’s and would love to hear about do and don’t thank in advance for your time

[@gigihomestead2927]

Thank you for making this video. Could you explain about the test to find out what kind of dementia a person has? Why will I as a caregiver have a high chance of getting dementia? I take care of my husband

[@brianloftus4919]

thank you.

[@mariskavanderberg9198]

Hi just wondering Why you say that your changes is greater of getting dementia when caring for someone with dementia...... im worried becauce i have two parents with dementia that im caring for at the moment

[@mi66gt80]

Only because you are probably exposed to same environmental poisons as they. Try detoxing. Might slow it down if not prevent it

[@missaaloisi]

I lost my best friend to frontal temporal dementia at the age of 40 (she died 5/3/18) she had the behavioral variant. It is a devastating disease to say the least. I wish I had this video 2 years ago when I was frantically educating myself about this. I developed many strategies to make visit with her VERY successful, I found this was very hard to accomplish for her other friends and family. A video on how to interact with someone with this disease would be a great resource. Our favorite things to do together were to listen to music, throw a ball, go for walks, look at photo albums (she was a world traveler) thank you for this very educational video and your other videos.

[@cam553]

Sorry for your loss. How long was she unwell?

[@missaaloisi]

@@cam553 She and her mother hid it for years - undiagnosed. I only knew she was unwell for the last 9mo of her life when she was put in long-term care, but I have since pieced together a timeline and believe she had it for 5 years and she stopped living alone 3 years before she died.

[@cam553]

@@missaaloisi Sounds about right. The life expectancy is commonly 3-5 years with FTD I’ve read. It seems way more aggressive than other dementias. Did she ever exhibit any strange behaviour prior to you knowing she was unwell? Thank you for sharing.

[@missaaloisi]

@@cam553 yes, the 1st signs were not being able to figure out how to get home and drinking at work - I didn't know about the getting lost before she was in-care but learned about it from close friends afterwards

[@Kristina-hd2kh]

I have this.. thank you for the video. It's scary!

[@DementiaCareblazers]

You're welcome

[@thecollierreport]

Interesting, my wife has had an mri, it SHOWS atrophy in temporal and frontal lobe, but her language is good and memory is bad. Also, she is emotional. We spent years treating anxiety.

[@bianchispurs]

I am taking care of my Mother who I believe has dementia, is it ok to as a question here? Thanks

[@marlenechicoine4005]

My Dad was finally diagnosed correctly with Pick's Disease, which I think is a FTD. I have stage 4 COPD, and I know Pick's is inherited. After a recent respiratory failure, I've worried about difficulty writing words properly, apathy, poor grooming, eating so much sugar, and other issues. I'd like to hear Pick's Disease mentioned or explained.

[@valaphornt]

Thank you so much for the useful infomation about FTD. I wonder whether you can elaborate more about excessive/inappropriate eating behavior, i.e. no table manners--what may cause it and how to prevent it. My father is snacking every 2-3 hours as if he hadn't had a meal for a long time so he is having 8-10 meals a day. At this rate, his weight is going to skyrocketing pretty soon as well as his blood sugar and insulin level.

[@shineon7641]

Hello there. I have "FTD" too and I think that I can explain the issue with the lack of Table Manners. The very fact that the person of whom you speak has "FTD" explains it pretty much. "FTD" affects the portion of the Brain that is responsible for a person's "Judgement" and more. This same part of the Brain is responsible for many things, especially ones decorum, or Manners, but also contains the individual's Personality, Inhibitions, Comparative Analysis, ad infinitum. You may find that the person's emotions become "Out of Whack," or Inappropriate as well. There is quite a bit of information available for you and yours, if you will simply "Google" Frontotemporal Dementia." Best of Life to you... Cheers...

[@marieteresa3963]

I was very shocked to hear that dementia caregivers have a much, much greater risk of getting dementia. Why would that be if I have no family history or risk factors for dementia? I have been sole caregiver for my husband for 4 years before he passed away on Thanksgiving Day. I'm grieving now and very worried about this new (to me) piece of information.

[@grandelfe]

There is very little known about this disease.Dementia caregivers have a much shorter lifespan from the high stress involved.Put a high amount of stress on our bodies without relief and something bad happens to us, often fatal.Cancer ,dementia, and everything else can strike down a stressed out human..

[@MusizBesties]

​@@grandelfe This should be clarified, as getting stressed by something(and possibly die younger because of it!) isn't the same as getting a dementia. Otherwise it's not well spelled. My own interpretation, and questions is whether or not this disease linked to a bacteria that you can catch link with a specific genetic property(like gene C9orf72 GNR or MAPT) could cause to the tau accumulation in the brain and so FTD. For example the Lyme disease bacteria that has coinfections babesia, bartonella, ehrlichiose, and all bacteria that are numerouslessly present inside the tick all seems affecting executives/memory conditions, or emotional lability even if the basic manner. In any way a clear statment like that need to be clarified by @Dementia Careblazers Really good explanation of the differents type of dementia though Thank you !

[@sandrapoertnr9907]

Why is the spouse/caregiver 600 more times likely to get dementia as well?

[@amberfallon2191]

I think she must mean 600% (i.e. 6X) more likely

[@grandelfe]

The constant stress and misery of looking after our loved ones, places so much stress on our minds and bodies, that we suffer from different forms of depression.This depression gone untreated becomes morbid, and you will either die from dementia,other disease,heart attack,tumors,etc etc.Something will come and kill you, and often before your dememtia patient dies themselves.I had it all explained to me by my wifes psychiatrist whom specializes in these matters.He used the word "Destroy" to explain what happens to us.The solutions aren't easy, but I survived through meditating every day to reduce my anxiety levels.The care giver must look after themselves or bad things will happen to them, and my heart goes out to them all.

[@brendaann2915]

@@grandelfe Thank you very much for sharing. 🙏

[@aynos629]

@@grandelfe . I think is a lot worse doing it for a living, where the amount of abuse and powerlessness to implement new avenues of behaviour are more restricted. Obviously, doing it ad a job, one can quit and with a close family member it's more difficult to live. I am enjoying assisting my mum for now, and actually find that is the influence of other more "sane" people who spoil the broth, sometimes

[@juliemcc9706]

Hi Natali, tell me , why do caregivers of people wit dementia are much more likely to develop dementia them selves? Thank you 🙏🏻

[@maryroberts8566]

I am interested in frontal temporal dementia because my husband has been diagnosed with dementia and I believe it’s this one .Although he has severe frontal sinis es issues right now and dr. said he needs sinis drainage I feel that all this is coming together to cause his problems .Thank you for any help you might offer us .

[@artgirl9005]

Where do you go for a definitive diagnosis for this??? My husband seems to have most of these issues and we've been having trouble getting diagnosed.

[@reneeberggren4656]

Is B12 deficiency and anemia possible as contributing? I’m guardian of both my aunt & uncle. She has had changes over last 20 yrs that the family attributed to psych (undiagnosed) Uncle was her protector. Both basically withdrew from a lot of social interaction and her thoughts seemed quite critical and dark. He unfortunately now has significant memory issues. She recently had a major stroke and memory now also affected so unfortunately she is delusional much of the time and forgetting when we think her thoughts were addressed. Both in early mid 70s. Now living in care facility but not recognizing that it is a permanent move.

[@wml1950]

Curious as to why an alzheimer's caregiver (especially spouse as you say) has higher or increased risk of dementia themselves?

[@georgiendudzek7144]

you mentioned a video with a pharmacist about medication, I can not find the link.

[@wallyrbc]

How does one get tested for frontal-temporal dementia?

[@victoriayork9608]

My husband has a Moderate Traumatic Brain Injury from 2 years ago....plus he continues to fall frequently. He is only 64 and has recently developed a flat affect....does that mean he could be developing FT Dementia?

[@foxmulder4196]

Can migraine headaches be cause to FTD? I have the language and behavior symptoms? But I'm not sure I will set up an appointment with my doctor and see what they suggest

[@jenniferhamer167]

Why are you more at risk from getting dementia if you care for a person with dementia?

[@Morgant513]

Can you please tell me where to find the Lewy Body Dementia video and do you have one on Parkinsons Plus Syndrome? Thank you

[@nolagirl7082]

I was wondering if you’ve ever heard of any connection between opiates and dementia. I heard you mention alcohol related dementia, then it got me wondering if being addicted to opiates for a long period of time could eventually lead to some sort of dementia

[@shineon7641]

Hey there Nola Girl. How are you holding up? I hope that you are Well & Reasonably Happy too. That being said... ... I am NOT a Doctor, however I've never heard of any correlation between Opiates and Dementia. I suspect that what you are dealing with is most probably the consequence of an aging individual and the long list of maladies that are often associated with age. If you think about it, most of us, as we get older, discover that we begin to have more aches & pains, the older that we become. This may be why Opiates are even in the picture? Also, Dementia, and it's onset, is also usually associated with Aging individuals as well. I believe that the timing of each is simply a coincidence of an aging individual? Please be careful with yourself... well, just let me say this, about that: I have a type of dementia called "Frontotemporal Dementia." What I attempt to do, is to tell everyone that is Dear to me: "Thank You so much for your Love and Concern, but what you could really do for me, is to Run as Far and as Fast as you can Away from me right now!" ... and I mean it, when I say this because I do not want to ruin anyone's Life simply because they feel Obliged to help me see this through! I believe that it would be awfully selfish of me to do this to anyone. While I am aware that I will feel some sort of loneliness for the near future, there will come a time where I will no longer even be aware of this person's presence. So, please Run Now! There is nothing but heartache and pain in store for the person taking care of a Loved one with Dementia. Before You volunteer to be the Caregiver of a Loved One with Dementia, think it through and know that if you decide to be that Caregiver, know that you are essentially forfeiting your future to do so. YOU ARE NOT OBLIGATED TO DO THIS, no matter what You think or what you are told. I'm sorry that you now find yourself in this position. It really sucks for everyone involved. I'll say it One More Time... RUN AWAY! Know that you are still a good person, even if you decide to RUN. God bless you and Keep you. I wish you all the best in this Chapter of Life.

[@barnesvalw]

Why if your a care giver your likely to get dementia?

[@mercibeaucoup2486]

(Does anyone know) Can I be tested if my mother has this?

[@lirasmusson5133]

I think my mothers frontal lobs dementia began around 40 years old. She changed slowly. She became mean, really mean and she did things that was not appropriate. I was embarrassed a lot as a young teenagers. She was over sexual and talk about it a lot. She didn't get right help until she was 60 years old. I didn't know what it was and belived all doktors that said it was depression.

[@killerwhale5]

Wow

[@lauriemontes5754]

How is it a spouse's risk of getting dementia soo much higher when caring for their spouse who does have dementia? Thank you

[@QueenyGirlSG1230]

Demenia/alzheimers loved one that also has aphasia. The struggle is no much harder to communicate. Mom can't tell us normally her needs and we can't understand her as well as her nursing home team. How best to navigate?

[@sparkoflight963]

I think my husband has FTD, I mentioned three years ago something seemed wrong, he told me I was insulting him. He is different but just with me, his personality has changed, he is defensive all of the time, hardly says sorry. He is 78 and we have a 23 year age gap. His eyes look cloudy sometimes and he seems overwhelmed at times and apathetic. We went to couples therapy because he has difficulty connecting emotionally and in three years nothing has changed…3 therapists later!! He seems unable to take in new information and just loops in conversations when we have relational issues. He seems stuck and makes excuses/defensive. He once said “it boggles my mind” some of the things I have done yet nothing changes. Is this FTD..?

[@theresagerhart3603]

This video is very useful. Question: Can a person with this get feelings of pain in the head like a headache feeling in the temple areas and behind the eyes or eye?

[@rlbmum]

Is it necessary to medicate a 95- yr old dementia patient with Ebixa? Esp when the patient seems to suffer side effects of somnolence, dizziness n hypertension?

[@barriepotgieter4194]

Hallo dr. My wife is 62. She has dementia. But none of the symptoms described here. She forgot our kids names August 2019. Then it spiralled quickly. She is not in touch with reality. She play's with toilet paper. Every day in some part happy and in distress. Our neorogist said she probably have fronto-temporal.. But the symptoms you describe doesn't fif her, He saw her only once. She was ti ill to go again. Can you please say what you think please.

[@jenniferlee9469]

I am 51 and I have experienced all of the symptoms I started having grand mal seizures at the age of eight where I had a MRI and it showed that I had a pineal cyst and tears in my left and right temporal areas. I was wondering if you have damage in the temporal area can that Increase your changes of temporal dementia?