Getting Diagnosed With Fibromyalgia | My Story

[@kaylaparker5725]

Thank you so much for making this video. I cried as I'm so sad, but relieved that I'm not alone. I hate the thought that so many people are experiencing this. I believe I've had this since childhood. Just everything makes sense now. I'm 27 now and can finally name what is actually wrong with me. I no longer have to question my sanity. Much love and heres to better days❤️

[@samkcatladyaks]

My therapist wants me to ask my doctor about it and I’m nervous because of all the gaslighting I’ve experienced about my pain over the past 6 years. It breaks my heart you live in Sweden and I live in America and this was posted 6 years ago and people’s pain is still not being taken seriously. Thank you for sharing because i feel less alone and what you said about starting to think you’re making it up and causing it yourself is so relatable and I’m so sorry we both ended up thinking this way when it is not our fault and they should be helping us and believing us.

[@Sarajanesjourney]

It took me 10 years to get diagnosed I've had it for 17 and I'm 39 but looking back even in childhood I had minor symptoms...over the years I have developed more and more.symptoms. It hasn't been proven but I feel like it is progressive. Good luck and stay #fibrostrong

[@karle0822]

What arer your symptoms you had in childhood? I think I had some as well but I'm not sure.

[@jilligain3409]

That dr who told you to just 'live w/ it', I had the same thing happen to me. Yrs ago, back in my late 20s (I'm 44 now), one dr got right up in my face, said "young lady, you need to just go home, get a husband, & get on w/ your life". I was defeated. Needless to say, I think the combination of a lack of diagnostics, coupled w/ the typical way women are treated, makes for a real nightmare for us when we have to deal w/ chronic illness & the medical community. In my opinion, the medical industry is mostly garbage

[@tamirahamblin6124]

Thank you for sharing this, I have recently been through exactly the same thing and it's so heartbreaking when the doctors don't take you seriously. I also understand how you feel about being young and not being able to do what you want to do (I'm 18). Thank you for being brave enough to share your experience, this has helped me so much. x

[@tara2272]

wow I was crying throughout the whole video. I'm experiencing the same thing as you are but I have done all kinds of blood tests but the doctors can't find anything. I haven't been able to go to school for almost 2 months and It's really hard not knowing what's wrong with you when you feels so bad. Thank you, this video really helped. Thank you

[@zoilaramirez7737]

Thank you so much for sharing your story! It has helped me understand better! I literally just had tons of blood work and all came back normal! I am so depressed and hopeless my neurologist has no empathy, I saw him today to go over my results and he was pretty much like you’re a hypochondriac! I have never felt so humiliated! I’m done going to doctors. I thank you from my heart!! 🙏🏽❤️ big hug! God bless you! 🙏🏽

[@AliceCullen0890]

I am 25 almost 26 years old. I have been dealing with fibromyalgia my whole life and if you need help or possibly need some tips let me know!

[@Joffelicious]

I am sorry for my late reply, but thank you so much for your kind comment! If you have tips I would love to hear them! Considering all of the comments I've been getting on this video, I am sure many more people would also find them helpful :)

[@karlijohn5704]

You have expressed so much of how I feel. I'm in the process of being diagnosed. My rheumatologist is pretty confident that it is fibromyalgia. The guilt of feeling like I've been lazy and made up the sickness in my head. Oh my gosh. I'm not the only one who blamed themselves! Your honesty and vulnerability is so comforting. Our loved ones can't understand pain, thank goodness, but we all have each other to know. I hope you share more about this soon. I'm 24 and have been having a hard time since graduating Uni, finding a career I feel like I can do daily. I've felt like a failure I this aspect. Can you relate?

[@melissaneal5494]

I suffered with this for about 4 years before I was told what I possibly had. It broke me down to nearly nothing. Mentally I can't function anymore. Everyday jus getting out of bed is a task in itself. Thank you so much for your video. I feel this same thing everyday of my life.

[@Joffelicious]

+melissa neal I am so sorry you have to go through this! If it's any consolation, you are not alone, and through certain methods of help your life can get better. You are so strong for going through what you go through every single day of your life and I understand the feeling of not being able to get out of bed. I feel that way a lot of the time as well. But don't give up! Take things slowly, and know that life will get better eventually. If you ever need to talk, feel free to hit me up!

[@morningrose1341]

I was diagnosed with fibromyalgia after being undiagnosed for 4 years: it started when I was 14, I'm 18 now. I suffer from basically every symptom except digestive/abdominal ones. I had friends and teachers disregarding my pain because I had no name therefore they didn't believe me, doctors misdiagnosed what was happening to my body and told me what was happening was normal. I thought I would be happy about finding a name for what is going on with me, but honestly I just feel so helpless for it...

[@sherriemyles2776]

Having this sucks so bad. No one will not understand the pain, fatigue, morning stiffness, ibs, rashes, muscle spasm, sensitive to sun, certain food. nausea, chest pain etc. im still learning about mines. i have it now most a yr. People would tell me its all my head. its real. i really dont have a social life. It feel like you have the flu everyday.

[@JC-ly8pz]

Do you ever have body parts swell up ? My tongue feet and hands tend to swell especially after hot tubs or hot showers. But sauna doesn't do it it just makes feel irritated.

[@subratbeura9798]

Exactly i m feeling d same bt yet to b diagnosed.i m subrat from INDIA.my whats app no is 07377893705.plz inform me.regards

[@nh2008]

So great to listen to your story...i understand. Its so painful. I like what you said you are not reduced to your pain ❤️❤️❤️

[@AliceRed]

I'm sorry that you have to go through this, not just the illness itself but the feeling of isolation that seems to come along with it. It's so awful that the doctors let you down. It's sad that you can't talk to the people around you about this, I hope you find more support online, and do drop me a message if you need to vent. I wish you the best of luck for the future.

[@Joffelicious]

Thank you so much for the kind comment Alice! I am actually more confident that things can get better from here, since I finally have the diagnose. Thank you so much for being so supportive and gorgeous all the time!

[@AliceRed]

That's great to hear :) And you're welcome! Do message me if you need to vent x

[@CBL138]

Thank you so much for your courage and sharing your story. I was diagnosed with FM early this year and totally feel you. My story is a little different because I'm a man. Doctors have looked at me as if I was crazy for many years and I was told that there's no possibility that I could have FM. Stories such as yours confirms the fact. It's kinda sad that we rely on professionals for help, unfortunately it's all about money. Remember you are not alone and there are many that share your story.. Relief is coming soon now that we know. Much love to you and stay strong.

[@fibrosmack5899]

my symptoms started with migraines then vertigo,heart pulptations, then shoulder /back pains,then hairloss,then panic attacks because I was confused/scared of not knowing what was wrong with me... and frustrated with doctors.. then over the years Im now bedridden 50-60% of each day. I was finally diagnosed so I know now at least what to call this curse- fibromyalgia.

[@Joffelicious]

I am so sad you have to go through all of these things. These past few weeks I have been bedridden quite a lot as well and I understand just how frustrating it feels. Keep looking for a doctor that doesn't make you frustrated and I hope you can find things that will make your situation a bit easier. I am currently looking for such things myself! Thank you so much for watching and commenting on my video.

[@subratbeura9798]

I m in d d same path.how can we live bth it?very very frustrating. I m fromINDIA. MY name is subrat.how r u r8 now.hope for d best.plz help me on my whats app no is 07377893705.plz

[@Whatawaytobefree]

I really appreciate this video. Thank you for being vulnerable to us. I was just diagnosed with fibromyalgia today. I am confused. It seems like the onset of this was a traumatic injury from a fall off a horse. It’s been over a year and a half from the fall, but I have neuropathic pain in many places in my body and I have to be treated with medication. I appreciate you sharing your journey, for it is helping me to start mine❤

[@alishabelice2829]

I just seen a rhematologist today and she thinks it's fibromyalgia. I went and got labs and xrays so gonna wait see if anything show up on it. I'm scared and the pain is horrible somedays and noone understands and I dont know what to say because Idk exactly what is wrong with me hopefully I find out soon.

[@larssonmaria8090]

Hi sister I’ve been living with Arthritis 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel youtube.com/@dromocure

[@josedemelo7049]

Jofelisious...Your an inspiration to so many women and men by sharing your experience about this painful life changing disease. I've had fibromyalgia for 23 years.

[@Joffelicious]

Thank you so much for your kind comment! Having Fibro for 23 years must have been really hard! You are really strong for doing so.

[@subratbeura9798]

@@Joffelicious i hv already spent 17 years on it.plz help me

[@nonnalovepriceless]

Sweety you need to talk about it People especially your family need to know what you go threw and how it affects you . My first husband divorced me cos of my illness And he took all my 5 children away . So sad 😞 I Some people are so evil instead of helping .. They give you more stress I’ve had fybromyalgia since 2004 ..but talk about it ... I’m a fybromyalgia warrior And all those that have it Are fybromyalgia warriors . And you can be too ok Stay positive .............. People that don’t have it just judge you .. O you look fine to me .. Ignore them .... Only you know the pain you suffer . And everything else . That goes with fybromyalgia . Lot of tender hugs 🤗 .

[@subratbeura9798]

I m facing it scince 2004.ur 1st husband is himself a fibromyalgia for u....what d hell.sorry.pray for the best ..

[@vanessad2499]

I have onset early arthritis got diagnosed but I think I got fibromyalgia too I have pain all over my body sometimes my first place I feel pain was my neck I also have brain Avm and get fatigue,migraine since 2011 I am now 34

[@larssonmaria8090]

Hi sister I’ve been living with Arthritis 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel youtube.com/@dromocure

[@TressiaN]

Thank you for your story, and yes more people will start to understand as more people start to tell theirs too. I was diagnosed in 2008 with Fibro., went thru most of the things you have gone thru and still do today. I have spent all these years trying to figure out how to feel better. Everyone with fibro has their own issues and ways they deal with it, but this has been my experience. As bad as I hate to say this the doctors were right about getting used to some pain. I went thru several stages of grieving who I used to be, then I tried to fix it. After all these years I learned I could not fix it and make it go away and get my old life back. I learned how to manage my pain and symptoms and learned to have a different life (a new normal). I feel pain every day but have learned to ignore it on good days. On the bad days you take it easy, and you have to get rid of the guilt that comes along with it. One of the most important things you will learn is not to over do it when you are feeling good, take it slow and your good days last a lot longer. Don't try to work long days without a break. I work a few hours and take a short break to rest and I don't hurt as bad. I take pain meds, but only at night because that's when its worst for me. And Ibuprofen during the day. Forgot to mention I also have Lupus which sometimes accompanies Fibro. The best thing you can do is start paying attention to what causes flare ups, and learning how much you can to without putting yourself into a flare up. And you are right about other people not understanding, only the people that see you go thru it will understand, but not always. With Fibro you have to stop trying to get people to understand and do what you need to do to feel better, or your will stay depressed. True friends and family will understand and stand by you thru this, the rest you shouldn't worry about. Its hard to lose friends but you become much closer with the ones who really care. I still have a life, its just not the life I had before and that's ok, I have come to peace with it. Good luck in finding your new future, and don't give up, you just learn to be thankful for your Good days, and not stress about the bad one.

[@SuziSpooks]

I'm going through blood tests at the moment, I am on the start of my journey into what's wrong. My doc suspects fibro.

[@veronicam5562]

You are so brave to talk about your journey ! I am 24 and have been dealing with Fibromyalgia for more than 10 years and it has been a horrible journey. It took doctors about 5 years to diagnose me and trying to still cope with is is very hard. Specially the part where you say you can’t really explain it to everyone around you... and having to deal with this silent pain and trying to put a strong face everyday. 😭 Thank you for the video, it made me feel understood and not alone in this journey.

[@more2me100]

I think I have Fibro and I feel so unheard and that no one believes me. I find myself limiting my activities because it could send me to the emergency room and Im just treated like a drug addict if I ever go. Ive been through so much in the past 5 years and I feel like Im still Im not even close to a diagnoses. I feel so hurt and betrayed by the health industry.

[@corallaroc]

Ah yes, if all doctors could be like Dr House! That would be awesome. Thing is, he'd want to do a lumbar puncture as that seems to happen in every episode, and they look painful 🙈😊

[@brendaechols5929]

I'm pretty sure this is what I have. I just need to see a doctor to get checked out. I started getting symptoms while working 11-12 hours days back to back. I worked in a very toxic, hostile environment. They push you to the edge to get results and this was repetitive type of work. You have to make your numbers if not you get warnings.. Standing long hours , doing the same routine over and over again. My upper shoulders have constant tension that never goes away even w medicine. I get burning sensation in my thighs. Sometime they would go cold to the touch and numb. Now I've got tinglingin my neck and the burning sensation is on my side.. i've got arthritis in my hands. My hands are messed up. It's terrible.

[@larssonmaria8090]

Hi sister I’ve been living with Fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel youtube.com/@dromocure

[@YumiOnline]

You are so beautiful and so strong! I really hope the best for you, and that opening yourself up to others can help you help others and also find people that have a similar problem. You're so inspirational! rooting for you xx

[@Joffelicious]

Sorry for such a late reply, but thank you so much for this kind comment! It really means a lot to me.

[@ladypops3731]

I just started crying listening to your frustration of people telling you it's all in your head. This has been me for 20 years. I get so sick I go and plead with a dr who does the same blood work and tells me I'm fine. For years I thought if I just loose weight if I just work out if I can just sleep longer I'll feel better. There's nothing wrong with me. Just go to work. Just keep moving. I've had and still have thoughts of suicide because the pain is so awful and everyone just treats me like I'm lazy and avoiding work. I can't find a dr that takes me seriously. I hate life.

[@agrimonyscrafts2089]

When i saw your video and almost cried.I too have FM and have had it for many many years and my dr's also told me it was all in my head etc. I would like to keep in touch and encourage each other. I suggest you find and read a book called Osler's Web by Hillary Johnson. She did the research on CFS and some dr's think both diseases are the same as I think as well. This book tells how it began and how horrible it was. Please hang in there and keep looking for help and don't get discouraged. Also watch out for false help remedies who just want your money.

[@healingtouchchhoun5632]

I want to applaud you for your courage to be proactive on this situation. I am a massage therapist and I have several clients that have been diagnosed with FM or CFS, but I take all cases seriously. I encourage you to look into nutritional support with physical, mental, and spiritual activities to help you overcome this. Be aware of any drugs prescribed to you and go ahead... research it! You are doing the right thing!!

[@blessedhomemaker781]

I am so glad you made this video. I have suffered from fibro for many years. It took a very long time to get diagnosed. I also search youtube for videos about fibro, and there are not many out there. I also feel alone. I have a hard time explaining to others what is wrong, and feel guilty about missing going out with my friends. My rheumatologist is wonderful, but I have found to not even mention it to other doctors. For you are believed to just have depression. My pain started in my chest. I have tried many meds and alternative medicine. Praying healing comes for you soon. Don't give up. You are not alone and there is hope!

[@Joffelicious]

I am sad to hear that you feel like you cannot discuss this with your other doctors. Just know that even though you can feel lonely sometimes, you are not alone. There are plenty of us out here and I think that anyone who share this experience would be willing to be there for support and talk about it! I hope you can soon find a treatment that makes your life feel happier and better, you deserve it! Thank you so much for watching and commenting.

[@EmilyKatelynFordyce]

I appreciate your video and for being brave and sharing this because most people don't understand this illness. Like you, my mother has been diagnosed with Fibromyalgia for years. I know that I have it, but I'm in the process of getting diagnosed. I reached a place now that it is becoming debilitating. I feel awful everyday. I really don't have good days anymore.

[@subratbeura9798]

Really true

[@heyitsjaee]

thanks for sharing. its been about three years for me with similar symptoms and i completely understand not being taken seriously or being able to get a diagnosis.

[@FigureFortress]

I can relate to this so much. I’m having a awful day and just need someone who understands to talk to so this video really cheered me up in ways. Thank you for making this video. X

[@TeresaElNaggar]

I've had fibromyalgia for the past 13 yrs and still find people who don't believe or understand what it's like and how it affects me. I felt like I wanted to hug you when you're talking about this. I hope that your symptoms have been manageable and you've been able to cope with the pain it causes. there are support groups online through social media and also newsletters you can sign up to via e-mail.. Sending hugs, keep smiling and know that there are lots of us here if you need us xxx

[@nonnalovepriceless]

Hello sweety I’ve had fybromyalgia for many years I’m sorry you have this . I want to put my story on you tube but people wound not believe the hell ive been threw I’m hear for you sweety if you need any advice I’m experienced ... today I have a flare up it’s terrible ... if you need to talk let me know .il forward you my email You are so beautiful . It’s great your telling your story ...

[@jadebald_ca]

Thanks for sharing your story! I developed mine about 6-7 years back. I was in my mid twenties and I'm 31 now. It's nerve wracking, disappointing, frustrating, and you really can't control your life because it's so life altering. Covid doesn't help. I discovered I was a highly sensitive person (HSP) about three years back, so that explained my stuff..I'd had too much early life stress. My mom divorced dad for cheating and then my dad died soon after (two adverse childhood experiences (ACE's) score there. Then we moved 6x in 10 years, between ages 2 and 12, which meant a new house, new shcool, new neighbourhood. I was bullied a lot... these two arne't on the score sheet, but they should be as they impact healthy development. My mother was an adult child of an alcoholic father, so she was emotioanlly immature....

[@emixyb1864]

My mum has recently been diagnosed with this, it was a diagnosis that took around 6 months to get. Just after Christmas 2015 my mum was taken off her feet. The doctors at first said there was nothing wrong then they said it was my mums iron levels then they said it could be MS then a brain tumour and then fibroids and then finally fibromyalgia. I hate seeing my mum in constant pain and I love to watch these videos cause I feel like my mum isn't alone ❤️ keep strong 💪🏼

[@FarahAsifa]

Your story is so inspirational. You are inspirational. The fact that you live with pain daily and put on a brave face and face the world, facing "experts" who told you it's nothing, and still standing firm - I hope your message of hope reaches so many cause it did create awareness for me I had no clue about this!! I'm sorry to hear you have it and that there is no cure but I know you'll never loose hope - you seem so strong. I sincerely hope your life is amazing and you see so many good and happy days and moments hun. THANK YOU for sharing 😘😘

[@Joffelicious]

THANK YOU for watching and taking time to send me such a sweet, thoughtful and caring comment. It really gave me a lot of strenght and happiness to read this and I couldn't be more thankful.

[@FarahAsifa]

Joffelicious

[@AforAlyce]

Sorry that you have to go through this, it must have been really scary. It takes courage to share personal experiences and struggles. Sometimes we get body aches without realising it could be something serious. This video is very useful and helps bring awareness to Fibromyalgia.

[@Joffelicious]

Thank you so much Alice for being so kind and listening to my story. It feel great to feel your support. You truly are a wonderful person!

[@fibrosmack5899]

thanks for sharing your story! hugs! I know there's millions of us that have fibromyalgia, but sometimes I feel alone... its so good for me to find / hear other fibro ppls stories on here!

[@Joffelicious]

I like finding videos where people talk about their experiences as well, because as you said, it's less lonely. Just know that you are not alone and we can be there for each other!

[@kirstenv1279]

Thank you soo much for opening up about fibro! We need more awareness for invisible chronic illnesses. I have fibro too and watching this video made me not feel alone and it was very relatable. There are so many people think we're faking it, even doctors. Which is a sad thing. I hope they will do more scientific research for fibro! You did an amazing job with this video 💜

[@Joffelicious]

Omg thank you so much for finding me! I need more friends who go through the same thing. Saw that you had added me up on twitter so I added you back. :) I really agree with you that they should do more scientific research on it. So many people suffer from this and they do it a bit too silently I feel! Thank you for leaving such a nice comment!

[@kirstenv1279]

+Joffelicious you're welcome sweetie ❤️ I agree, talking with people who go through the same thing is so much easier cause they'll understand. Thanks for following back on Twitter, feel free to message me 😄 Sadly enough to many people are ashamed of this illness so I'm really happy to see someone talking about this topic, it's not our fault, we didn't choose to be sick!

[@startv7472]

You are a brave girl. Glad u finally got diagnosed that is actually first step to understand it. Thanks for sharing with us. Keep smiling

[@valerief1231]

I fired my rheumatologist after I tricked him into admitting he didn't believe in Fibro.

[@Joffelicious]

I don't understand how doctors still do not believe in Fibro, when it's been around for so long, and there is proof now that it is not a psychological illness.... You did right firing him/her!

[@TheMicheleab125]

Thank u for your video. I believe I have had it since i was 27, however never diagnosed at age 66. I didnt know about fibromyalgia until diagnosed and then googled it. Great to hear from someone who shares the same symptoms. Thanks

[@pbostler]

Have had fibromyalgia over 40 years. Had numerous viral infections for most of my life. Mononucleosis twice. Cutting down on gluten and sugar helps.

[@thecarberrys5512]

Hey I'm 31 and been unable to work since june2014 after a car accident. The docs have run every test and scan possible but all clear so far. They have had me all MED's possible but still my body is in so much pain. They have said its my nervous system which is sending the wrong signals to my brain and is never going to go just have to learn to cope with it. Bit puzzled because I have every single symptom for fibromyalgia but not diagnosed yet.

[@steampunkerjoe]

Holy S**T!!! 'Twas like you were channeling my exact story. Lol, getting out of bed in the morning... I developed techniques that would make Russian Gymnasts envious. If I had two to four hours to try and relax every part of my body, I'd start to get mobile. The worst days involved almost not moving at all and inability to think straight. Yes, the "guilt". Am I just lazy? Am I irresponsible? Do I not have discipline and strong enough will? I tell you, most folk with this have amazing power of will. I plodded through two decades of 60 hour work weeks and nearly became suicidal because I knew in my heart I couldn't keep it up. Your own pain is inexplicable to anyone else. It's invisible as well. I'm 47, just diagnosed, and will begin the journey to alleviate my symptoms. My own methods and "folk" techniques are evidently on point, and now shall be refined. Lol, here's a quick list of my self-developed techniques: Lying upside down on the stairs, Lying on the floor and relaxing one muscle at a time, use of a Lacrosse ball and then a "Theracane" to release bound muscle tissue, locating and annihilating trigger points, 3 hour ridiculously hot epsom salt baths, meditation, attempting to reduce stress/drama, creating a peaceful home environment and developing core strength. I am grateful that you shared. Peace on you!

[@nancyitaliaanzo8699]

Your beautiful and im very happy to know that you finally have closure 💛

[@mainlyintheplane]

I have a friend who went through a similar experience with doctors in Sweden (with them not wanting to help her/not believing her) -- You are very brave for speaking about it on KZbin!! Just know that in the future, I hope you never feel pressured to keep your symptoms and your feelings a secret! Likewise, I hope you never feel pressured to share more than you're comfortable. I'm rooting for you

[@Joffelicious]

Really?? I really do feel that the medical care here needs to improve. Why would you even go to the doctor and pay money if you weren't in need of help. So stupid. Also, there are studies here that show that women get treated differently by doctors even though we're supposed to be one of the most equal countries on earth. Step it up sweden!! Thank you so much for your encouraging comment. You are a wonderful youtube friend!!

[@mainlyintheplane]

[@daniellalove4808]

Thank you so much for sharing yourself and being vulnerable. You look great like I do, (so I always hear, though cannot hide my fatigue) yet we both suffer inside with pain. I was diagnosed today so it has been a tough one, but have been struggling from this for many years, without a diagnosis. I can relate to ongoing pain, fatigue, lack of sleep, and being blamed for this, though the people that do the blaming are the people that do not suffer from this. I truly feel for you. Keep sharing please and thank you.Hugs! xx ;)

[@lyndsaysrebornnurseryoffib4241]

I have fibromyalgia too found at age 30 just before I married mine husband of almost 9 years! I have the same symptoms as u! Just subscribed!

[@cecigordillo3475]

Sweetie! I'm sorry for your pain!! I send you huge hugs !

[@anna-karinolsson6451]

You are an amazing woman! I give you so much credit for talking about it and probably helping others. I look up to you and think you are fantastic!!!!!!!

[@Joffelicious]

+Anna-Karin Olsson Tack så mycket!!

[@ChantelDay]

Great Video. I was diagnosed 5 years ago and just posted my own video on my channel about it. Thanks for sharing.

[@Joffelicious]

+A Life Full of Threads oh, really? I will head over to your channel and watch it. I can always use more friends to share this experience with!

[@sorayacarlinsky9383]

Hi sweetie. I have Fibromyalgia for 12 years. I was diagnosed only after 5 years of having severe pain. Anyway...long story short...u need to be positive. And when u have a flair up...u need to get up, get dressed,get moving. It's unfortunately a very difficult thing to deal with because lots of family and friend tend to think u are nuts. But we know better....chin up Fibro fam.

[@dromocure]

Hello I have herbal medicine that will help you get rid of them naturally. Check my video for my information .

[@Kimmi00Bear]

I am 24. I also had really bad "growing pains" since I was 12. I've always suffered from fatigue and anxiety. little by little more symptoms appeared, constantly dismissed and referred by doctors. I was made to feel crazy. I thought maybe if I got psychological help to be happier, my body would also get better if it was all in my head. It didn't. doctor's in the US tell me that I also should just live with it. that it wasn't THAT BAD. my symptoms weren't connected because as you know, there are so many things linked to fibromyalgia. I got to the point after I had my son at 20 years old that I couldn't hold him. I felt like I was going to constantly drop him because my arms were so heavy with nerve pain and the pressure of his little feet standing on my legs made me break down in tears from pain. I didn't see a doctor until a year ago that actually helped me. I spent thousands of dollars on specialists and therapies over the past year. diagnosed with fibromyalgia April 2016. I've lost family and friends and most of my sanity. this year I am finally attending university for the first time in my life and working. my son is now 4 years old and he is the light of my life. I wouldn't be able to handle this condition without him.

[@KRONIKBASS808]

hi Josephine my name is carl i am 31 and have since i was quite young had bad concentration issues with a foggy mind which caused behavioural issues that got me diagnosed with adhd and as i grew i got mild body pain but about 6-7 years ago i really started to get bad stomach aches which always came with feeling exhausted and has got worse since as now i always feel like ive run a marathon waking up in the morning my legs and arms always feel like they are cramped with pins and needles in the feet and hands and muscular pain all up the back of my head and neck! if i do exercise it makes it worse i mean i can have a week where i feel ok and able to do stuff and think oh this is great but then it slaps me back down again! i try and explain it to people that i always feel like i have body flu or something with intense stomach aches it gets a bit better in the warmer months but in the colder times its worse also i can never keep in 1 position for too long as it gets painful but like you i have been to the doctors over and over and they can never find anything am so stuck and it does get me down, it was only when explaining this too my hairdresser the other day that she said my sister has fibro and the symptons you explain sound just like what she always says she feels like!

[@autumnhart9054]

When you’re voice started getting shaky I got tears in my eyes. I’m going through the process of figuring out what is wrong with me I’m almost positive it is fibromyalgia I’m in so much pain everyday and I just want you to know I know how you feel and I feel your pain. Hope you get through this 💜

[@sanambaheerreshad]

I know what you mean when that no one understand you. I have Fibromyalgia chronic fatigue and the worst thing ever 😔

[@CrinklesShineMySpoonieLife]

Thanks for sharing. It is silly to say but it is nice to be able to relate to others. I've spent my whole life having people look at me strange because of how I felt. It sucks but I am learning and living more than ever now. Keep Your Shine up

[@Canotefilms]

Did you have all the tender points? Hope you are feeling better. :) I'm going through some weird stuff, and have a history of anxiety. I dont' know if what I'm feeling is anxiety manifesting itself in a new way, and or depression... or if it's fibromyalgia. My Dr. just wants me back on an antidepressant, which I really don't want to go back on... I've been off meds for over 3 years. But it may not hurt to do a small trial run and see if it zaps all my symptoms.

[@Joffelicious]

+Canote Films yeah! I had all the tender points but I hear the qualifications to be diagnosed is 11 out of 18 tender points. I'm sad you're going through anxious or depressed feelings. I can not give you much advice regarding antidepressants as I've never tried them, but I think you should just listen to what your body tells you and do what you feel is best for you. If you don't want to go back onto the antidepressants, you shouldn't. Just know that there are other doctors out there and even if you have to look for a while eventually you will find someone who listens to you and will take you seriously. Whatever you decide, I wish you the best, and I hope you will feel better soon!

[@Canotefilms]

+Joffelicious I don't have any tender points. My chiropractor tested me a month ago and just stopped at 11. lol. Because I had no pain. My brother massaged me yesterday and says I've got lots of trigger points (knots), and tight fascia. I think I have more of a mayofascial pain syndrome going on. Pain is pain though right? I'll get it figured out. :) My brother said if he can do a SUPER deep tissue massage on me, and if I can go to the gym and lift heavily, then I don't have fibromyalgia. I'm just super tensed.

[@Joffelicious]

+Canote Films yeah! pain is still pain and I hope that you can continue try to find out why it is there. There's a lot of illnesses out there that have body pain as one of the symptoms, so don't give up! No matter what you're going through, pain is still pain and it can be so difficult to deal with. So stay strong!

[@Canotefilms]

+Joffelicious Take care girl!

[@rightisright1000]

My story is very similar. In January 1994 at 27, I started having severe random pain for no reason. Several doctors and tests, some ER visits with no answers and then a Rheumatologist that lectured me about doctor shopping and called my family doctor in front of me to tell them that I need to stop going to so many doctors! I actually pulled over on the side of the road after leaving that doctor visit and sobbed uncontrollably because like you, I thought this was going be the doctor to finally put the pieces together and help me. Finally, in a doctor visit for a sinus infection, with a doctor my family used decades ago in a city I was visiting at the time, that doctor said I might have FIBROSITIS. They don't use that term now, but it did steer me in the right direction and help me get to my Fibromyalgia diagnosis. I've tried many drugs, sleep aids and pain killers. Best thing for me is deep tissue massage therapy. I would also recommend having your thyroid checked and vitamin deficiencies checked when first diagnosed because that can mimic fibromyalgia pain and/or exacerbate your symptoms. FYI: I have had many "flare ups" over the years, usually in the winter from tight cold muscles, but I've never been as bad as I was when I was first diagnosed. Stretch, get regular massages, buy a big hook to reach the trigger points in the neck and shoulders, take vitamins, keep warm in cold weather and take naproxen or ibuprofen when it's intolerable. Whatever you do, even if the pain is immobilizing, keep moving. If your neck is stiff, turn your head like it doesn't hurt, walk if your legs hurt, even real slow if that's all you can do. If you give in to the tight pain it will get worse. Mind over matter, move fluidly as best you can and it will get better faster. If I could only give one piece of advice, it would be to MOVE as much as possible to release the tender points and feel better faster. You don't have to run a marathon, slow, gentle, steady progress.

[@suemaynor3366]

You are so smart and sweet so just hang in there and everything will be ok. I have been thru the same thing. Just stay strong!

[@teeangel7546]

I was diagnosed with fibromyalgia in 2011 and it has gotten worse it does keep you homebound at times and the chronic fatigue is awful as the pain is and you never know when you're going to have a flare up and you can't get out of bed and I lost my job because of it I miss so much work and I work for that company for 6 years but like I said each year has gotten worse I hate it and now I have a lymph node on the side of my neck that is swollen and I have a lot of the symptoms of Hodgkin's lymphoma and I need to see a doctor on that now but I tell myself God's will be done and I pray everyday and I take medications so good luck to all of you out there I'm praying for you and have a blessed day

[@MrsBozoiyo]

One thing I have learned with this disease is that everyone shares some similar symptoms and also, all of us have different daily issues than others. It does stink that there is still not much known and getting relief is not easy.

[@OctaviaKarate]

they told me i have joint hyper mobility syndrome but im not double jointed im just in constant pain all day every day i think i have this instead thanks your video helped alot

[@ditzynic]

Great video, I was diagnosed just a few weeks ago after 5 years in constant pain, It's a great idea to support each other, as like you said there is a lot we don't know about it. I have traced mine back 5 years to when I was put in an induced coma for bacterial pneumonia, Thankfull after dozens of dr's I got very lucky and went to see a dr who just turned out to be my hero, there is no cure, but we can try and do the best we can. Never ever feel guilty if you have to cancel plans with people, if they love you they will understand. xxx

[@yvonneb7932]

Thank you for what you wrote... I'm crying now reading this. I'm fed up after few years of chronic pain (it is not first pain in my life) and I feel guilty and shamed, that is my fault. I started to looking for the reason of my pain and everything looks like fibromyalgia but my dr (it is very usefull) try to explain everything using depression. It's frustrating and annoying cos' I know my body very well and I am able to distinguish diffrent sort of pain. I'm worry of wrong diagnosis. What should I do if I'm feeling like wrong diagnosed? I'm living in London, UK. Thank you for any advice. All the best! Iwona

[@mcat1]

Yvonne B get a second opinion and even a third if necessary until you find your right doctor

[@jamiem5364]

@@yvonneb7932 Mine took years to diagnose because I almost believed the doctors that it was in my head, plus I was being a typical male trying to ignore it because men are strong and dont let pain stop them from doing things. until I started hitting the wall and could barely function from pushing too hard. Thankfully I just found an awesome rheumatologist who diagnosed it as fibro as I have nearly every symptom I have read about since getting the diagnosis. I had heard about it before but never really looked into it. Ive started palexia but tbh I havent noticed much difference maybe only just taken the edge off. I cant believe my first rheumatologist even kinda made me think it was partly in my head and was reluctant to diagnose me with chronic pain. I bet if someone asked her she wouldnt believe in fibro.

[@corallaroc]

It must have been incredibly frustrating for you. Glad you got a diagnosis eventually, although diagnosis doesn't equal cure unfortunately..

[@alrightythen7828]

I also have fybromyalgia, I was diagnosed at the age of 11 (2 years ago) I am the only person in my school with fybro. Many people thing that fybro is a made up illness because there is no blood test to prove it. I get bullied a lot in school for being "lazy" or "depressed". Sometimes fybromyalgia will get to my head (fybro fog) and some words don't sound like words of my vision plays up. It's hard to do everyday things like school or fitness. I was also diagnosed with severe anxiety. Sometimes this is too hard to handle for a 13 year old. Could anyone tell me any tips? Please and thanks

[@kisabexx]

I know this is a late comment so I hope ppl see it. You can all get better like I am doing reverse therapy.there's a few clips on KZbin so plz check it out. Stop treating symptoms and treat the root cause, you can heal yourselves xxxx

[@gaddmeister]

5 years. Lucky you. I have been 32 years before I was diagnosed. However, the doctors on the UK are not interested.

[@larssonmaria8090]

Hi sister I’ve been living with Fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel youtube.com/@dromocure

[@imheartsick]

Aww :"c this made me so sad and so happy. I remember you telling me about your struggles with your pain and the stupid doctors and how helpless i felt. You have been so brave through all of this and i'm so happy you finally have been diagnosed! It must have been a nightmare trying to explain when no one understands. I do think i realized how tough it was for you but i of course could never really know what it felt like. I do hope that i never pushed you to anything during your more painful episodes :C I think you did an amazing job doing this video. I would never been able to. Keep fighting and if you ever feel like talking about it I will always be here for you. No matter when my ears (well eyes and fingers since i dont really meet you irl XD) are always to your service :3

[@Joffelicious]

FINA DU!!!! jag kan lova dig att du aldrig gjort eller sagt något som pressade mig eller så. Du är ju en av de få som jag faktiskt pratat med om det och så. Tack för att jag har dig! :)

[@yvonneb7932]

Thank you so much for this video. I've read other comments and I'm also feeling very lonely cos' people don't understand what is going on in my body and mind and that I have no power to change it. It's important to tell more other people about this illness

[@saudasif2976]

Hi Josephine, I’m commenting from India. There is one dearest friend of mine she was diagnosed with Fibromyalgia yesterday by a doctor she just can’t control her emotions to this, I cannot merely be sympathetic with her because I seriously want to help her throughout. She is feeling devastated and there is nothing I know that I can do. I’m trying to divert her mind from this problem but at the end of the day she has tears in her eyes. I can’t see her this way. Her parents are not with her she barely has any friends. Help me help her. Please revert ASAP Thanks

[@terrijones2983]

Thank you for your video! I have been doctoring for 4 or 5 years now, not knowing what is wrong with me. I found out that I had a tumor on my ovaries and I thought I would start feeling better and I didn't. I found out I had an ulcer and thought I would feel better after getting medicine to fix it, and I didn't. I am now reading up on fibromialgia and everything you say is how I feel. I also never want to do anything anymore, because I hurt all of the time and I know people don't understand. It is a very frustrating disease, that is for sure! Thank you for sharing your heart and I pray blessings on your life and that you can find a way to feel better. (If you find that out, I would sure like to know!) Take care! Terri

[@marbear5473]

Oh my gosh my story is the same! Mine started with extreme fatigue and then went to all over body pain that has increased. So sorry you're not being taken seriously! I know that feeling. 😢

[@gladysr01]

I am almost 100% sure I have fibromyalgia and chronic fatigue although I haven't been diagnosed yet but I've been doing extra research and I started watching videos of other women struggling with the same problems. I FEEL YOUR PAIN! I've been feeling it every day for as long as I can remember and although I have been transitioning to a healthy lifestyle it still worsens over time. I'm 24 and I remember being in pain all the time in high school, always tired, always depressed and I knew it wasn't normal. I felt like an old, sick, dying person but I was just a teenager. It feels HORRIBLE that no one understands. Everyone thinks you're just a whiny bitch who doesn't like to be happy or have fun with other people and the guilt and confusion just makes it so much more painful. Thank you for sharing this video. We are not alone. I am going to go to get an exam done to get my results and I am going to start taking Cannabis oil to try and reverse the disease. Have you ever tried it or would you try to use CBD (Cannabis) oil to treat your disease?

[@Joffelicious]

I am sorry that you still have no diagnose for your problems, and that you too, had to go through this at a young age! :( The first step to feeling better about it is definitely to get a diagnose, so I think you're doing the right thing about getting examined! Cannabis is not legal where I live, so I think it's not something a doctor would recommend to you in the first hand. I am not sure if it's used in medical purposes either, it's not very popular here yet I think. :/ But when you do start taking it, I am very interested in hearing about your results! if it makes you feel better? Let me know okay!

[@Metalwhore89]

When you first started having these pains, did you have flue like symptoms? My muscles have been in pain for 4 days, I went to the doctors and they said it's probably just the flu and that I should rest, but the pain is not diminishing at all. If I stay in one position for too long, and then start to move my arms or legs, it feels like my muscles are about to pull. I also have an off and on fever accompanied with the chills. Idk what to think right now because I've never felt this way before, so maybe I'm just overthinking things.

[@Joffelicious]

Well, After only 4 days, I think you shouldn't spook yourself out too much. Did you take any tests at the doctor's confirming your flu? My pain didn't start out with flu like symptoms, but it was triggered by a combination of a flu shot as well as a stressful period of my life, so I did have a flu before the pain began. Sometimes fibromyalgia pain can indeed feel like you have the flu, but I think you should give it a good amount of time before you worry about it! Before reaching the diagnosis fibromyalgia you have to rule out all of these other illnesses, so what you're describing can be anything really, but it is true that whenever I've had the flu in the past I've felt like you're describing! Don't worry too much okay, take some pain medication and stay hydrated! I hope you'll feel better soon!

[@racomoore888]

this is soooo me!!!! I want to cry..😢

[@electrarain5602]

I haven't been diagnosed with fibromyalgia but I'm almost 90% sure that's what I've been dealing with for a while now it's hard explaining something to doctors when they don't have knowledge in it and it's invisible but it's a real condition it's very real so I hate when people don't necessarily believe you or understand hope everybody finds the help me too as well it's just hard doing anything it's almost like you have to force yourself to do majority of the things you got to do uphill battle I need to find new doctors my doctor said that they have to do a toxicology report which I didn't get because I always do routine testing and said i have to see a therapist before I can get diagnosed now I don't know if that's true or not tho I've been really having a tough time these past couple months hopefully one day things will get better and at least find the right things to help it whether new other medicines or other things my body have gradually got worser over there a couple years

[@SJA1325]

I had the swine flu in 2009. I was diagnosed with fibro in Feb 2013 I wonder if that set it off for me but that is years apart. What do you think?

[@javac2650]

You seem so lovely! I hope you get some relief soon. I'm also in the pain cycle process and have T1 diabetes so I understand the chronic conditions. I also think I may have FM so I too like you came online to learn about it. Great video

[@pinkieepuffx09]

im so glad you made this video , I was diagnosed with fibro 7 months ago but I have had symptoms and been in doctors since I was 6 , its so hard , especially with work , I just wish it would go away

[@Joffelicious]

I can understand your struggle with trying to deal with fibro and work at the same time. I've missed both school and work during these past few years and when you manage to go it is still such a struggle. I hope you can work with your doctor to feel better eventually. :/ I can even imagine how difficult if must have been for you to go through this all of these years. You are such a strong person!

[@lyndsaysrebornnurseryoffib4241]

I have fibromyalgia too found out at age 30 just before I married mine husband of almost 9 years! I have the same symptoms as u! Just subscribed!

[@cyleneegregoryx]

Hi im 19 years old i am going through the same problem finding it hard to be diagnosed ive had this condition since birth also its connected to my ibs.

[@subratbeura9798]

I also feel d same like u

[@shaneluke346]

What TRIGGERED it off ? Have you ever had any surgery for any reason that " MAY " of started it off ?

[@rach8440]

I feel your pain, your lack.of belief from doctors, being referred to a psychologist 😣 I've been diagnosed for around 10 years now and have a pain plan that works for me and through process of elimination found alternative therapies that I find work. If you do want to talk or just vent frustrations to someone who gets it I'm happy to listen, can't say I have all the answers but having someone to understand makes a world of difference.

[@corallaroc]

lol, funny you mentioning Dr House. I've often wished I could see someone like him as he's determined to get to the bottom of mysterious illnesses unlike actual doctors who give up after 3 minutes of investigation..🙄

[@aquiviapalmer9184]

ive been going through this since I was 12. my first symptoms was mitral valve prolapse gerd and extreme back pain n sensitivity to the touch. ive been told time after time there is nothing wrong with me. blood test after test negative. ive lost so many jobs. I didnt get diagnosed until I was 27. I have crying spells all the time. everything is depressing. I cant eat I cant sleep. I cant go n e where because I always feel sick. I feel like im not normal so I completely understand where u r coming from and what ur going through. stay strong baby girl. it just makes u feel better knowing u have a diagnosis..

[@Amanda-cp2ch]

Thank you for making this video

[@skythomas7008]

I've been dealing with a great deal of pain and much of what your talking about. My doctor has been doing so many tests its frustrating but he told me that he has to do the tests to rule things out but that I have fibromyalgia. I'm trying to find out as much about it as possible and trying to find things that work in aiding in being as healthy as possible.

[@JelliVlogs]

I was diagnosed last August after 3 years of suffering! I shared my story on my channel too! Hopefully we can raise awareness for this condition and find a cure

[@scalehex]

I suffer from chronic migraines, among other body aches. i am convinced i have Fibro but my nero doctor has stopped helping me, I asked him to send me to a doctor who can see if i have it or not but I haven't gotten a call from any doctor. My Nero doctor thinks it's my weight, but it's hard to lose weight when you're in pain all day every day. he wants me to lose 50 pounds by diet alone but that seems impossible. thank you for sharing your story. it helps.

[@oceanpier]

Laurel Star Change your doctor.

[@SherryLynnMadcat]

I agree with V.H. Laurel Star. A new doctor is definitely in order!

[@gurpreets55]

hi my name is GURPREET i would like to talk to you about this fibromyalgia as i think i have that, i got this from getting injury to my ankle, none of the doctors believed me that i am getting this pain on my nerves please explain if this can cause due to injury as i was constantly thinking about this injury pain

[@MrSubhrendu]

Contact me I can help u

[@mina03101]

of course it can that's how I got lyme simptoms from knee injuri

[@RebbecaWertz]

Thank you for this video! I also wanted to start doing fibro videos as well because I noticed that there weren’t many on YT as well. I had the exact same issue with my doctors and RA. She basically didn’t believe in the Fibro dx which made my heart sink. However, I did all her tests and came back negative for spine and Sjogren’s. I’m about to walk myself into a fibro specialist center for a dx. It’s very frustrating to have anyone believe you. But when you’re in a flare it’s unbelievably painful and debilitating. 💕

[@JBookish]

Thank you for making this video! I haven't been diagnosed with anything but I've been bouncing from doctor to doctor for the past two years and I do feel so hopeless and like it's my own fault. It's incredibly discouraging. This video and all the comments make me feel a bit less alone.

[@subratbeura9798]

Hope for d best

[@elysequinn2996]

I have it too its sucks so much and every day is a struggle... I'm only 19 and I've had it for years it's only gotten worse in the last few years..

[@larssonmaria8090]

Hi sister I’ve been living with Arthritis 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel youtube.com/@dromocure

[@doglifehub]

Thanks for sharing your story. I hope things get easier for you soon.

[@mcat1]

I love DR HOUSE TOO BAD THEY ARE NOT OUT THERE IT'S LIKE FINDING A NEEDLE IN A HAYSTACK SOMETIMES I have this illness and so so many other illnesses severe chronic pain and suffering I have been like this since I was in my 20's now I am 45 feeling like 145 NO JOKE. if you want to know what else I have let me know I am here for you SIS IN CHRIST!!!!