My Fibromyalgia Story // chronic pain + fatigue

[@Aimee_Esther]

*JOIN THE COMMUNITY: aimeeesther.podia.com/community

[@mandyhendrickson8402]

The fatigue is so unreal!! It’s depressing on top of the pain of course

[@nath7283]

Yes, totally resonates with me and my fibromyalgia, POTS, migraine, ME/CFS etc story. Emotional, and physical trauma from a very early age...

[@Truerealism747]

Found anything what helps

[@yobaca22]

I completely agree! I have had a lot of trama in my life and was taught to hide it. I now have Fibromyalgia , CFS & PCOS. My fibro was triggered by a new trama that brought up everything else I had been through. I will defiantly read this book. Thank you for sharing with us!!

[@JCoDreams]

Love you for talking about this topic. It is a real condition that is so misunderstood. So many years of people trying to say you are just crazy. So many appointments and medications and money for decades. The allergies make it difficult to use traditional medications.

[@Laura0IN]

Mom had it through adult life, I’ve had symptoms since childhood. She had back injury, I had neck and back injury that worsened things. I’m very sensitive or allergic to most medications…If I can take them, even the strong meds don’t work well for the pain so through the decades I’ve just tolerated and modified things. But…. I’ve recently started PEMF MagnaWave treatments, and even though I’m still going weekly after a year, if my schedule allows, it is the only thing that consistently can cut the pain, aside from heat packs and bare feet in the grass, sometimes essential oils. Please look into this! I used to give massage, and it’s like getting a massage from someone that knows you better than you even know yourself. It targets the pain at the time, even getting places you didn’t realize were an issue at the time. I’m rural and getting out to appointments can be difficult and exhausting, but thankfully I’ve got someone right here that does treatments. Praying someday I can get my own machine approved. Praying 🙏🏻 you can break the cycles and find things that help you. Please research and try PEMF.

[@kate8351]

I was diagnosed 11 years ago along with hashimotos, sclerosis, and degenerative disc disease along with mental illnesses like bipolar, adhd, cptsd. I have had alot of trauma in my life, and the pain and fatigue came right after I lost my grandmother at 13.

[@allisonrose3895]

We have alot of similarlies in our stories. I'm thankfully able to still work but I had to give up my career as a nurse which is so difficult for me. My pain began around 15 years old but I wasn't diagnosed until I was 23 years old. In June of 2021 I was evaluated at Mayo Clinic to confirm my diagnosis. They agreed with fibromyalgia which was difficult for me to take in because I was hoping it was something else, something with less stigma. I've been struggling to grip the fact that I am 28 and I do not live a life of a 28 year old. Thank you for sharing your story!

[@melissagilpin943]

Thank you so much for this. I was recently diagnosed, and it sucks. I've had issues for a few years, but finally did something about it because I got tired of people looking at me for being "lazy" cuz I was so tired all the time. Luckily I have a great support system in my husband and family.

[@Aimee_Esther]

So glad to hear you have support! That makes a big difference. Hope you've found help for your symptoms!

[@sandraisdell7344]

Thank you. Your youth is encouraging to me. I'm a COVID long hauler and after three years of symptoms and tests that didn't solve anything, I'm learning to care for myself because I've received very little support or medical treatment.

[@glamrocksupernovaconstance3427]

I feel like we're literally the same person. Same things were happening to me after I got married. Not only do I think your theory of the body keeping score is accurate, and the safe environment encouraging those things to come out, but also as we get into our twenties our brains are still changing some and trying to 'level out' and but also this is classic PTSD. That's probably a lot of what you were/are dealing with. PTSD is so much more than just an emotional illness, it physically changes your brain and it may alter certain chemicals and receptors which cause all these symptoms. Thanks for sharing your story and taking the time to share so much and educate us with your experiences. I feel so much of what you say resonates with me and I've struggled and still struggled with a lot of the same things. You are incredibly strong and intelligent, keep doing what you do ❤️

[@Chronicallyrecovered]

Nice to hear your story. I had severe ME and fibromyalgia

[@nzrabbit77]

I've had a lot of emotional trauma in my life. I'm 46 now and finally in a place where I feel quite secure relationship-wise and financially and my fatigue and pain in my legs is increasing a lot. I've always had fatigue and leg pain but now it's constant and I'm exhausted all the time. It's hard to work and raise my young kids :(

[@Sheila-yn6db]

I am so thankful I came across this video and can't wait to read that book. I was diagnosed with fibromyalgia and chronic fatigue syndrome. Looking back at the trauma I have been through before that now makes sense how it could have caused my fibromyalgia and cfs. I lost my brother in a plane crash, got married, went thru treatment for cancer, lost my Dad to Lou Gering disease, lost my grandma to cancer,had some relationship issues and went thru a couple years with lung issues that doctors could not figure out. Thank you for sharing your story!

[@laulauluf]

I believe my fibro is from emotional trauma. It started with terrible headaches every single day.I had three major depressive periods in my life and like you I feel my body just gave up and said I'm not fighting anymore. Now when I have the littlest bit of stress I have a major flare up. Currently in one now so feeling so fed up but watching your video has made me feel like I'm not alone so thank you ❤️

[@Truerealism747]

Do you have pain everyday I have eds and fybromyalgia and Asperger's interesting depression at 9 nowb43 though I had SPD as a child

[@ShannonMThomas]

As a teen I had horrible pain and fatigue. The doctors said is normal teenager stuff. Growing pains etc. I got pregnant at 20 and had a rough last three months of pregnancy. Pain and fatigue were way worse. When stress would get bad I would get to a point where I could not function or walk. In 2004 I was finally diagnosed with Fibromyalgia. I also suffer from migraines, PCOS, anxiety and depression. Through all of that I was trying to get pregnant for several years and ended up having a hysterectomy in 2010 again throwing my fibromyalgia into overdrive. I’ve tried lots of meds nothing really has helped until I started LDN (low dose naltrexone). My fibro is not gone the depression and anxiety are still there and sometimes I think I’m going to loose my mind. But the pain is tolerable more often than not and I am able to function a little more. I have not worked in a long time. When I am working it is work and then to bed every single day. My body cannot handle it. I have been fighting for disability for several years. Thankfully my husband is the best and 100% supportive!!! I’ve gotten to the point where I don’t care what others think. It’s my life and my pain and I live my life the best that I can. I know when I can’t do anymore and I have the luxury of laying in bed or on the couch when I need to. My son is an adult and I am able to enjoy my grand children the way I wish I could have been there for him. There were days that I would spend in bed because I could not function. Everyone’s story is different but it’s your story and you do what you need to for you!! Gentle hugs to all. Hoping you have a tolerable day!

[@Truerealism747]

Do you have Asperger's add hypomobility to?

[@kimberlyhortz6471]

Have you taken Lyrica? I got my disability for taking that. I had fell off a ladder.

[@Truerealism747]

@@kimberlyhortz6471 horrendous that how are you now are you.hypomobile

[@ShannonMThomas]

@@kimberlyhortz6471 I was on Lyrica but it caused severe panic attacks and suicidal thoughts. I could not be alone. My husband would take me to Mom’s when he went to work and then pick me up afterwards. It was AWFUL!

[@kimberlyhortz6471]

@@ShannonMThomas it is not for everyone. Have you tried the gabapentin? I tried most of their medicines. Alfalfa from Shaklee helps with the fluid. Vitamin B1 complex with benfotiamine helps. Arena nutrition is the company who makes it. If you can start eating brown rice. These are some of the things I am supplementing with.

[@gigicolada]

When you said you were embarrassed I was confused, but after you explained I understood. People will look at you funny, or act like it’s nothing. I hide my chronic pain from everyone. No one actually cares when they can’t see it so I am so happy you have a supportive husband and you advocated for yourself. It’s hard out there for people with invisible illnesses. I do believe trauma has a lot to do with this and when you explained how you kept it all in I realized I did the same myself but in the form of I didn’t realize what I was going through all those years was trauma. I stayed “strong” 🙄 I’m on a healing path now that does NOT include medical doctors. I don’t have all the extra stuff like POTS or PCOS thankfully, but fibromyalgia and a few other issues I have are kicking my butt! Thank you for sharing your story ❤

[@claira-janehardwick866]

Thankyou for this video. I have fibromyalgia, ibs , asthma, I have pain all over my body and so much fatigue and have had so much trauma emotionally throughout my life, I also have depression and anxiety, also dizzy spells and headaches and have a hiatus hernia, it’s nice to reach out! With all the chronic illnesses you have I think your amazing and your videos have really helped me, Thankyou x

[@foxywhitetip7387]

Sally k Norton can shed a light on this

[@Truerealism747]

I had my hiutus hernia.done.then fybromyalgia started.you.i have all.your diagnosis.some.have remission ones but all related to.adhd.hypomobilty

[@myfibromyfidos]

You are inspiring 😊 it took me along time to except this disorder, but I've come along way with my dogs ❤

[@paulahirst2023]

I am dealing with chronic pain throughout my body and I also have the lightheadedness and fast heart rate when I am upright, I have been dealing with the pain since 2019 at present I am having a flare up of the fast heart rate. Not on any medication as doctors want to wait until diagnosis before giving me meds. Thank you for telling your story as it make me feel like I am not alone in my journey

[@Aimee_Esther]

We are in this together! :)

[@averyreese7158]

i’ve seen your videos many times in my search to find some other people like me. your videos are so informative and welcoming and im so glad you are sharing this information and help bring attention to these conditions. i hope you are doing well🥺

[@LivMorYes]

I’m here with you sis ❤

[@elizabethlodders6375]

Thanks for sharing your story. I'm currently looking at a diagnosis. Some doctors think I have it and others think it because of other chronic illness I have. Hoping in 2022 I'll get some answers. Trauma is what I think contributed to my CFS/ME - my Dad passed away and not long after I had major surgery that changed but saved my life. (A lot to unpack there.) So it does make sense when doctors I have seen have talked about triggers and fibromyalgia.

[@abdirahmanabdinasir6276]

Me also am having appointment with rheumatologist in the start of 2022 hoping the best to both of us

[@elizabethlodders6375]

@@abdirahmanabdinasir6276 Good luck with your appointment. I hope you get the answers you need.

[@lolalopez4735]

😢 I too had much childhood trauma. Been suffering with depression and fibro for years! My saying is , "sometimes our mind is our worst enemy."

[@Truerealism747]

Our subconscious mind

[@kerryhenry4441]

Thank you I can relate with you I was in a domestic 😢 abused marriage for 14 years when my symptoms started it so true also lost both parents within 8 weeks of each other had a great impact on mentaly 😢

[@psygamarerotu2408]

Thanks for this.I also have fibromyalgy. So I can relate-

[@AngieGarcia-zm8lm]

I accidentally bump into this video it was God 🙌🏼 everything to a T is my life, I was diagnosed with fibromyalgia 2010 I now have autoimmune decease, severe chronic pain, let’s just say my list is 43+ issues I’m just 50 but that part of trauma OMG It makes perfect sense 👏🏼👏🏼👏🏼 I have endured soo much childhood trauma since 5-12 fast forward my son past 2016 If I wasn’t a woman of Faith I shouldn’t be here, a Professional Therapist words…This video make soo much sence how trauma, stress does trigger my fibromyalgia and here I thought I was going crazy. Thank you for this video. Blessings.❤️‍🩹🙏🏼

[@AngieGarcia-zm8lm]

Btw bought the book as soon I saw it, thank you 😊

[@Aimee_Esther]

I am so sorry you are suffering! 😢 Thank you for sharing your story. It helps to know I'm not alone. Sending prayers of healing! ❤️

[@AngieGarcia-zm8lm]

Thank You!!! ❤️‍🩹🙏🏼

[@beatsandpiecesstudio]

Definitely resonates, I have held in a lot of emotions and still have to work on that but slowly feeling safe enough to do so 💚 Thank you for your video ❤

[@xochilguevara3429]

I’m so sorry you went through such emotional trauma. 💕

[@lynjj7976]

Wow my heart goes out to you this sounds horrible!!! Only the individual knows their pain unless you are in the situation you will not know the feelings. My heart goes out to you ❤❤❤❤❤

[@cindybrodie9769]

Yes, totally resonated, so much! Thank you!

[@cindisims5917]

Merry Christmas Amy to you and your family. Thanks for this video. I agree with fibro coming from trauma. I totally believe it when I look back on my journey I feel my was from the stress and trauma I was feeling.

[@marieleechaine6679]

Wow, I don't even know where to start... your description seems so acurate to me... I had trauma when I was 19, bot physical and psychological, and I started to have depression and my anxiety got worse, and maybe 1 year after, I started to feel joint pain. I already had muscle pain, but I had it since I was a teenager and so I didn't think it was "something", if it makes sense. But joint pain in my early twenties, it seemed to me like something wasn't right. I also was very fatigued; I quit my job and CÉGEP (it is a school after high school and before college here in Québec), and I was always lying on the couch. But I thought it was from the depression. I started to talk to doctors about the pain, and seriously, I was told that in was all in my head and to think about something else. I was almost 27 when a rhumatologist did some tests on me and diagnosed me with fibromyalgia, which I knew I had. For me, being diagnosed was such a blessing and a relief because I could tell people : "No, I am not lazy, and I won't get better just by eating well and exercising". Like I had a real physical disease, on top of my mental health stuff. I am almost 31 now, and life is taugh, you know, I cannot work or finish a degree, I live on Québec's welfare until I get maried. But I am going through therapy, about my trauma, and it has helped a lot, with my emotions, but also with my pain and fatigue. I also take a lot of medication, but I respect that you don't. I had decided in the past that I could not have children, but recently, we decided to have on in abouto two years, and your videos through your pregnancy with sweet Milo contributed to that. Thanks for this video about fibro, and thanks for all your good work. I am so sorry about the length of my message, hope you have a good day.

[@myaccount9498]

I missed your session on GOHQ 2024, so came to see what I could learn ❤

[@Freddypup]

You are telling my story to a T. I also moved to another country when young and It was a massive city, busy and uncaring. Overwhelming. Too young to cope well. I also had a rear ended hit and run where I had a classic car with no headrest to stop my head going all the way back. I also was at a red light and saw him Coming which is bad as my body frozen wasn't relaxed when hit. Then went on to my career and ambitions. Having a family and clenching jaw, sleep problems, fight and flight, traumas etc.

[@j0yfulblessings]

I definitely relate to the shame around the diagnosis. when i was diagnosed at 15 after, essentially, a year long process of ruling everything else out. It felt like the doctors all were giving up on me. I was just a dramatic teen and it was all in my head. Never felt like a legitimate diagnosis and I still hate telling people.

[@wendyhannan2454]

Sorry, you are so young to have fibromyalgia. I wish you well 🙏

[@saadiatayeb13]

Im sorry what you going through. I m going through the same. I feel you. HOPEFULLY one day doctors will find the cure. Fibromyalgia is a horrible disease. Thank you for sharing. I wish you the strength and the best❤.

[@mummy2twogirls638]

I’m glad I found your page. I was diagnosed in 2021 and haven’t really accepted my diagnosis until now. The past trauma makes a lot of sense! My childhood was full of that. And my pain properly started when I met my husband and had my first child so again that makes a lot of sense what you said about the book. I will be getting that book 👍🏻 xx

[@sarahaziz6963]

I have the same exact story. I think it is Complex PTSD that threw me into survival mode. I couldnt and dint take care of myself for years and once things settled down, my body went into burn out years

[@Truerealism747]

Did the burnout cause you fybromyalgia symptoms

[@Outrageous86]

This is interesting. I’m 36 I’ve been on disability since I was 32 due to my many chronic issues following a work related injury. I’ve never considered having kids because of my chronic migraines and pain etc. Its one of the main reasons I told myself to never have any.

[@lalo3019]

How did you get disability I've been trying for 4 years 😔

[@Outrageous86]

@@lalo3019 My migraines were following a head injury. I was injured at work. So I am on workers compensation benefits.

[@momentswithyahya4239]

I suffered for more than 20 years with horrible fatigue, the inability to fall asleep and stay asleep, my heart always felt like it was palpitating, I would randomly lose my balance, sudden allergies and awful digestive issues. I finally went to a neurologist this year and still have yet to be specifically diagnosed. I think I have fibromyalgia. 😔

[@EdisuHaro]

Have you gone to a Rheumatologist or Endocrinologist? I heard that an endocrinologist might be more helpful for fibromyalgia. I'm planning on seeing one to see if they can help.

[@jamilafay]

My story is so much like yours. I was a teacher. I was a parent early. My parents were and are abusive to a point I can’t have them in my life at all. Abuse was recorded very early in my life. My parents would just pick us up from school one day and we would never go back. Then we would move to a completely different part of the country. As I got to be an adult the migraines that I had since I could remember at age 6 & 7 got much worse. I was sick all the time. I ended up with endometriosis. I tried to keep fixing my relationship with my parents instead of doing what was healthiest for me and pushing them away completely. I had wide spread body pain. I kept getting tumors in my neck in my lymph nodes. Then after a decade of this they turned cancerous. I kept getting surgery over and over. Didn’t stop it. I have been waiting on the doctors at UCSF to get me a diagnosis of POTS because all the tests point to POTS. I have had a diagnosis of fibromyalgia for over 10 years now. I just felt like it wasn’t a real diagnosis and it didn’t explain what was wrong with me. I rejected it up until now. Now I can see I have a very serious case of it. I’m so sick of testing new medications. It’s been 30 years of testing medicine. I refuse. I’m sick of people telling me that there is no explanation for my pain. I literally wake up jumping off the bed onto the floor from the spasms in my feet and legs that wake me up. That’s not all in my head. It’s extremely real. After my last major surgery on my parodied gland tumor my nerves were damaged and I have massive spasms in my face and neck that cause so much pain and make my migraines far worse. I have to have a lot of Botox to try to calm it down. I want answers that work for me and for doctors to stop telling me that standard treatment should work. It doesn’t. Lyrica made my face and kidney swell up so bad and I couldn’t taste anything anymore. Gabapentine made me hallucinate really bad. The side effects of some of these drugs are so bad it’s insane.

[@myaccount9498]

Thank you 💜 for sharing your experience! Sending hugs 🫂 from Australia

[@TeishaAdams-yx5ot]

My was caused by trama as well. I had an ectopic pregnancy in my tube and it ruptered and there was internal bleeding and i almost died. That what got it started for me. Before that there was years of trama with an ex. I got night terrors too. I became violent at night and would scream at my husband. It was terrible. That was a year before my diagnosis and that lasted for 2 1/2 to 3 years. It was terrible. I evn put a camera in my room to watch me at night and since then they have stopped. So hopefully that might help some of you out there for a possible solution. Anyway...thanks for hearing my story. We got this everyone. I wish you all well.

[@kimberlydehaven7008]

I just found you. Thank you for sharing. This was so helpful.

[@amandafawley9519]

I was diagnosed with fibromyalgia a few years ago, but I recently was diagnosed with pots (after years of symptoms, which covid made it worse and was the reason I finally got a diagnosis). They took the fibromyalgia diagnosis away because they told me that chronic pain goes with pots. Was surprised to hear that.

[@Truerealism747]

I had pots years.ago that wend had CFS 26. Years though.now.more.fybro.didnt nomthat pots.made pain

[@amandafawley9519]

@@Truerealism747 I was misdiagnosed with fibro. I ended up now being diagnosed with ehlers danlos syndrome. Good luck to you.

[@Truerealism747]

@@amandafawley9519 I have heds or had.to.but they the ld.me.they.come.together.nightmare.mum has severe.ms.hypomobiliyy same have you.had OCD from child

[@Truerealism747]

@@amandafawley9519 do you have pain everyday

[@sandi6818]

This resonates so much. I felt the need for purpose too. Having kids was the distraction I needed. I was diagnosed in 2004. I recently was diagnosed with Rheumatoid Arthritis too so maybe it was RA all along. I hate the dx of Fibro too because of the misconceptions of this condition

[@sarahhunt7005]

Hi, i totally get what your saying with your story. I'm going to read that book you recommended, it sounds good. I was involved in a really bad motorway car accident when I was 18, I died several times upon my arrival at the hospital then spent a week on a life support machine, i broke my back in 4 places, fractured my skull, had internal bleeding but I'm still here to tell the tale, yay me 😆 since that accident i have suffered from constant chronic back pain due to nerve damage in my back. After a few years of doctors not being able to control my pain with medication i started suffering with more widespread pain, fatigue, memory problems that doctors would just blame on my accident but the new pain was in areas totally unrelated to any areas I'd injured in the accident, so i was sure my doctors were just fobbing me off because they didn't know what the new pain was. Then one day met a lady who is still a good friend & she has fibro & through learning about her fibro i then did my own research & I became convinced i too was suffering with it, so about a year later & lots of research i went to my doctor who refered me to see a specialist dr who later confirmed I did have fibro. After talking about my history with the specialist she said she was certain my fibro would have been caused by the trauma of going through the car accident & my recovery. It so bizarre how things within the body work out. Once I was finally home from the hospital after spending months there my mum had to give up work to care for me as I was still in a wheelchair & couldn't look after myself, i remember finding that really difficult, the guilt of my mum having to put her life on hold. Plus the constant & debilitating pain I felt 24/7 & still feel to this day plus the extra pain of having fibro, it's still a struggle to deal with. I met a lady last month while camping who has fibro but has never had any emotional or physical pain that she can remember that started her fibro off. It's usually the 1st question i ask when i meet someone new with fibro. Probably makes me sound a little crazy 🤪 Hope you have a great day, take care 😀

[@sharonnash6111]

I have fibromyalgia, had traumas has a child ,and has a adult for many years ,then finally had a breakdown ,panic attacks anxiety ect ,then got fibromyalgia, so makes sense it's linked to trauma x

[@sideswipe1261]

Hi! The best I’ve seen yet! You’re smart so youI’ve known much, wondered about more, misdiagnosed, understood by so very few. “Night Terrors”. Like the Real Reaper loaded man or shadow hounds biting?Paralysis? Dragged by demon to hell? To me, no offense at Al if we use the same term for something worthy of the name “Night Terror”, I’ve nothing but respect. They can take many forms. And thank you for your Fibro insights because this is the best video not selling me snake oil! I’ve tried so many!

[@princessdiana115]

Awe sweetie ur story is a mirror of mine😭😭😭 So glad I found ur videos. Been dealing with fibromyalgia for years now. It's been a challenge to say the least. And mine also was definitely from past trauma 🥺 I hope u don't mind sharing but who is ur life coach? I've talked to several therapist and none have a clue of what I'm going thru. I'm praying ur able to share urs with me so I can get the mental help and strength I need. Love u sweetie hang in there. Sending prayers ur way❤🙏🙏🙏

[@Aimee_Esther]

My life coach is Jody Moore. She is a member of my religion so a lot of her clients are also members. But if you are looking for a coach, I do coaching specifically for people who live chronically ill. Here's more info: aimeeesther.podia.com/coachingwithaimee

[@princessdiana115]

@Aimee_Esther oh great thanks. What religion are u?

[@Aimee_Esther]

@@princessdiana115 I'm a member of the Church of Jesus Christ of Latter Day Saints. Jody is too and her coaching program is great. It's not required to be a member of the church, but a lot of her clients are so religion comes up a lot in the coaching calls.

[@ghostapi874]

I had a virus in grade 9 in 2009(i’m 28 now). After that I started struggling with chronic fatigue. In the following years I developed muscle/join pains, IBS, headaches, nausea, anxiety, depression, mental fatigue etc. This past year has been horrible. At the end of 2020 my parents got divorced and I think the stress from that experience amplified my symptoms. There was a 5 month period I spent just in bed. I found a new doctor so for the first time in years i’m going to start looking into it again. I’m hopeful but so scared it will all turn into nothing.

[@SteadyEggs]

I feel ya matey, I have been through something much similar and seems to be creeping up on me again. I wish you all the best.

[@realitywins-do5hj]

Exactly trauma, like domestic violence.... Abuser's ruin healthy people,like myself.

[@Victoria-198]

I believe this too, my body tried to release a whole lot for me physically. It’s very real. I also went to therapy for over 2 years strait and they wanted to do EMDR but thought it might be too intense so they did something called brainspotting instead for me. I felt it helped me a lot too, after the sessions it was really uncomfortable but overall I felt a lot better. It was shortly after that for me that my body went haywire too.

[@fogfern6184]

Thank you for this video 💖 We share a lot of similarities. I too, experienced trauma; from childhood into my young adulthood. I have dealt with nightmares since I’ve been a child, I still do. Interestingly enough, when I finally settled into a relationship that was safe and loving and entered a new stage of my life, my health declined. 8 years later I received a diagnosis of ME/CFS. I also have food sensitivities of gluten (celiac), lactose and alcohol. I also have a diagnosis of IBS. I do think I have Fibro and POTS but do not have those diagnoses. Mentally and emotionally I have come a very long ways along my healing journey and I became a therapist. It is truly my calling and makes me so proud. I am very familiar with Bessel’s work and that of sensory-motor, body based trauma models and definitely agree with the theory, I practice it. Wanna know what else is cool? I just finished my training for EMDR :)

[@WendyHannan-pt7ez]

Hi Aimee, I noticed this video is 2 years old, I hope you’re doing much better today. You’re very young to have this dreaded fibromyalgia. I wonder if we will ever find out the real cause of fibromyalgia ? I think stress and trauma may have something to do with. Good luck to you, and all fibromyalgia sufferers out there, let’s all hope there’s a cure or understanding of this disease someday soon.

[@joeykins73]

Yes I had childhood trauma and always had night terrors which continued into adulthood. My Mum died in 2019 and 10 weeks later I got SIBO. It seems too coincidental not to be linked.

[@christinepearson9449]

My fibromyalgia was diagnosed 2021. After I was let go from my job in 2020 because I was still on medical leave from my 2 failed back surgery. I have nerve damage in my left leg + sciatic in my left and right leg. So my body was and still in major pain before the rest of my body turned on me. Recently I was hospitalized for paraesthesia which in my case is a burning sensation up and down my arms and hands, and I was diagnosed with IBS not fun. I also have Chronic Pain syndrome, Asthma, and deliberating migraines. I’m on probably about 10 different medications for anything from lyrica for pain to oxibutin for my incontinence to depression and ibs meds. But my fibro fog is absolutely horrible I can’t remember anything anymore. So that is my story

[@nancyball7466]

Divorce, after 21 years of marriage, triggered mine. It started out with several cases of severe hives, with no known cause. Yes, the body does keep score. I describe the pain as having a spinner for a game, with all of your body parts on it. You spin and guess what…….left big toe, pain for 17 minutes. My second husband took his life, so now I have PTSD sleep-related issues and get easily overwhelmed. Lyrica made my IQ take a nosedive (lol) so I’m on duloxetine now. Take care, Aimee.

[@J-ZIM]

Sorry about your PTSD and your husband. I too get easily overwhelmed and have constant fatigue and pain. Duloxetine worked for me but it gave me headaches so I had to quit it. I'm now taking Lyrica and it helps with the pain but not 100%. I've tried gabapentin but it made me too drowsy...tried a few other meds but to no avail. My dr doesn't know what to do with me. Did the duloxetine work for u, what are u taking now?

[@lindab.7031]

I took the sleep med Xyrem for a couple of years and my symptoms got 80 percent better in a few weeks.There are problems with insurance to get around but worth it!!!

[@Alipotamus]

I’m a 74 year old Californian. My fibromyalgia started about two years after my marriage began. Over these years my pain has not only greatly increased but new symptoms of pain keep developing. After about 30 years of marriage, my pain was unbearable. I wanted to die. I’m suffering too much to continue with my story.

[@sandi6818]

I’ve dealt with major insomnia too. It’s so hard to fall asleep

[@WendyHannan-pt7ez]

My pain in the legs and back keeps me awake. It’s bad enough having pain but not sleeping can do your head in. It affects your thought process. I’m now really looking into my diet, cutting sugar and carbs out all together. I’m at the point I’ll try anything. Good luck, sleep is very impressive.

[@elizabethconroy7665]

Hello,Aimee New Subscriber here from Amman Jordan 🇯🇴 Wishing you all the best

[@Aimee_Esther]

Welcome!

[@buesmith]

I’m currently trying to get a diagnosis for fibromyalgia and cfs and it is so hard. All of my symptoms came on after I had covid in November 2020. I got my POTS and IBS diagnosis, but they’ve told me I have to have the symptoms for 5 years before I can get a formal diagnosis for fibromyalgia and cfs because covid is so new😅😅 I’ve had a doctor tell me my past traumas could have played a big part and that covid was just the last straw, but I’m not 100% sure since my dysautonomia specialist told me there is no way to confirm it. My psychiatrist also recommended starting therapy and medications to help with my ptsd and anxiety since they both cause hyperadrenergic states which could be making my POTS and adrenaline dumps so bad. It’s an interesting theory and I’ve been putting off therapy for a long time because I don’t feel ready to handle my mental health and trauma. But is there ever a right time? 🤷🏼‍♀️ That kind of therapy takes years to be beneficial and things are going to be worse for a while, but here’s to hoping!😊💖

[@foxywhitetip7387]

Dr Ken berry can shed a light on your problems

[@Truerealism747]

@@foxywhitetip7387 Dr berry KZbin?

[@jacquelineclauson4891]

My story, 55 years old had fibromyalgia 14 years. Very painful! I think I found the answer in a book called ‘Super Gut’ I think I have SIBO. The book tells you how to remove the bad microbes or lesson them and how to ferment your own yogurt and add specific microbes that are missing because the SAD DIET has removed them.

[@hedge931]

For a year or two I would have severe episodes abt once a week of nausea, sweats, shaking, and sometimes confusion after waking up in the middle of the night about an hour after going to sleep. It started happening after a time I got food poisoning and I wonder if the food poisoning "taught" my body how to react like that. I was going through a lot of stress and I finally got the episodes to stop by reading the Psalms of the Bible and trying as hard as I could to believe the words and trust that God would protect me. I still have other unexplained chronic health issues and am hoping to get diagnosed with something to explain it. Fibromyalgia is the closest explanation I've found so far especially bc I seem to have all the specific pain points.

[@bethanyrachel1707]

I’m 27 and was diagnosed when I was around 23, I felt the exact same and still do in some ways when I was diagnosed! Like ‘this isn’t right it’s something else’ ‘it’s just fibromyalgia’ I even told people about it and they would say things like ‘oh a lot of people have that’ and it makes you feel like your going crazy! Yes, I did have some form of emotional Trauma as a child and teenager especially! I am almost CERTAIN that they are linked! I also have a Heart Problem however not POTS I have a kind of arrhythmia however I have all the symptoms of POTS and also think this has been misdiagnosed (I don’t know I’m not a dr!)

[@FLMegan]

Can you do a update on fibromyalgia and just go into detail again... it's needed.

[@alexandrahill7002]

Crazy. Literally everything in this exactly to this time line happened to me as soon as I got married and out of a traumatic environment. Miscarriages and all

[@Aimee_Esther]

So sorry to hear this! We are in this together, my friend! ❤️

[@sandraisdell7344]

Ya know? My ex was a fullblown narcissist and alcoholic. I stuck it out for 26 years. Than he assaulted my daughter in law. I had a nervous breakdown and was shunned by my children. I'm divorced now but that and a shitty divorce and COVID and losing my business and mind, and getting COVID (Delta). Twice in less than two months. I'm amazed I'm alive. Too bad testing isn't somehow targeted for emotional injuries resulting in physical injury. I've been blaming COVID but , truth be told. It was all of the above. Now, how do I get proper medical care!?(. Four doctors later and I'm considering another switch but I don't want to mess up my case study or an SSI application. Scared to move but scared of holding still.

[@catherinemccarty2307]

my story is a little different. I have fibromyalgia, psoriatic arthritis, migraines and schizophrenia. I was prescribed a huge huge amount of anti-psychotics 6 years ago by an less than stellar psychiatrist and I remained severely cognitively impaired from the meds. Six or seven months ago I switched doctors and got off of 75% of the meds. I am now regulated--almost symptom free and on only a quarter of the previous meds. I had to relearn how to have emotions, sympathy, anger, how to mentally deal with pain, even how to make basic decisions like what to cook for dinner. The mental trauma of being so cognitively impaired that I lost my emotions and more than 6 years of my life was a huge strain. The fibromyalgia popped up during the decrease in meds. My rheumatologist isn't sure if the fibro was there before and i was too impaired to process it or if it came on as a result of the trauma of loosing myself for all of those years and having to learn everything again. I am still working on getting a good balance of meds and physical therapy for my fibro.

[@sideswipe1261]

Fibro wants me dead. I’m 44 and had it 41 years. I don’t know what “normal” means.

[@ClandestineGirl16X]

Aimee, please check out the channel The Crappy Childhood Fairy. She focuses on childhood ptsd. Low and behold, when I started working on that, I swear my fibro got a little better. Not gone completely, but its been better for about a month now.

[@Aimee_Esther]

That's amazing! So happy you've found help. Thanks for sharing!!

[@tammyruff6184]

I love the Crappy Childhood fairy! She Is right on with everything!

[@robbertdekok8987]

Il get my diagnoses today fibromilargy and cvs afther 25 years hospitel in and out im relefed afther 25 years sickniss my diagnoses👏👏

[@julie8234]

Thank you for sharing x

[@tivgaming3048]

Hi Aimee it's ishan from India it's tough for the people who suffer from chronic illness to survive in this world because there is no one who can understand our views and symptoms except people who are going through the same things .. I am suffering it since four years let's connect and discuss on it find its solution and try to defeat it ...turned into raw and vegan.. since few days ...and emotional traumas can lead to this condition...same happened with me..

[@Aimee_Esther]

So sorry you are dealing with all that! Hopefully this community on KZbin can show you you aren't alone. We are in this together, my friend!

[@Prometheuspredator]

My Fibromygia symptoms started 5 years ago after my colon surgery 10 years ago as my Dr.'s thought I had colon cancer. Come to find out I had a huge beign tumor inside my right intestine. I was diagnosed with Fibro at 58 years old. Since then Fibromyalgia gradually came up on me where I had sporadic episodes of just aching. The last two years, especially this winter I was non functioning as I hurt all over so bad as there was times I was in tears. Last winter I did not think I was going to make through the winter. This coming winter scares me as I don't want to be in agonizing pain again. Every bone and joint in my body was in pain. Sleeping alot, migrane headaches, and fatigued all the time so much so it is difficult for me to do routine tasks. The winters are bad as i can barely manage the cold weather so i don't go out that much. Also, when there is a change in the barometric pressure i have an episode and migrane headaches. There maybe some connection between thyroid diseases as I also have Hypothyroidism and restless leg syndrome. I also believe that other autoimmunity diseases can provide an opportunity for someone to have Fibromyalgia. I also think it maybe associated with some kind of neurological disorder with breakdown of pain receptors. Brain synopsis inside the brain and pain receptors. I also believe that Fibromyalgia is genetic as my grandmother said she was in pain all the time, eventhough she had a diagnosis of Osteoarthritis and was prescribed Loratab, but that did not eliminate her pain. My Rheumatologist suggested that I see a pain management specialist, but pain killers do not work for me to elevate pain as I experienced this when I had my gallbladder, appendix removed, and from my colon surgery.

[@Truerealism747]

I've had CFS 26 years though found out I've got heds fybromyalgia 6 years pots in the middle thyroid on low side got Asperger's add have you as ime wanting to try add meds Dr lenz says they help pain is nightmare

[@samikshyapoudel5356]

I can no more bear this 😭😭

[@sandraisdell7344]

Do you still do an inventory when pain or severe fatigue kick in ? To try and understand what the cause is ? In hopes of making a change to prevent future pain ? Even tho , ya know in your heart, you probably didn't cause it?

[@Aimee_Esther]

Yes! All the time! I try everything, then get frustrated and give up haha. I'm trying to be more balanced with my health journey now. I take treatments slower and try to find joy in my days even with the pain.

[@carolynarnott5002]

Unresolved emotional issues is a trigger for fibromyalgia it can cause every symptom of any illness there is tests normally come back as can’t find anything wrong

[@Truerealism747]

TMS Dr schubiner

[@maciejsiedziako680]

Have you tried ANS Rewire or Gupta program? These are helpfull in all dysautonomia symptoms. What was your experience? Thanks :)

[@Teresa-K]

My fibromyalgia started when I caught a virus that attacked my heart that gave me pericarditis. It resulted in tremendous pain and headaches, I was bedridden. After going to several doctors and trying different meds to no avail, my husband took me to The Mayo Clinic in Jacksonville, FL. I was diagnosed with fibromyalgia and put on Savella. It helped with the pain, my my liver enzymes rose quickly and my doctor suggested a liver biopsy. During the liver biopsy my liver was lacerated. I was bleeding internally. I almost died. I was put on a ventilator and was in a coma for 4 days. I spent two weeks in the hospital recovering. It was a very traumatic time for me. Today my flare ups send me in a tailspin. They are very painful and cause my arms and legs to feel like they are on fire. It’s a red hot flaming fire that I can’t put out. It’s very painful. I know what you are going through. I would say try Savella if you can take it, obviously I can’t. It’s a trial every day with pain all over my body, headaches and extreme fatigue. Prayers for you. Kindness, Teresa

[@Aimee_Esther]

I am so sorry you have to live like this! Thank you for sharing your story with us! It helps to hear other's stories.

[@Teresa-K]

@@Aimee_Esther Thank you Aimee. It does help to hear stories from others with fibromyalgia. You can relate and maybe learn something that might help you. Kindness, Teresa

[@trinalanphear1355]

I watch videos of people who suffer as I do an it lets me know I'm not alone

[@marialourdesp.natividad3009]

Hello😊can i ask you because i had also a fibromyalgia and more than a year i suffered from it😪a heavy head and tightness of jaw and gum and some stiffness and when i walk,a feeling of out balance..so much afraid because of so much pain i can't explain😪did you feel same..thank you😊💝

[@Aimee_Esther]

Yes I have similar symptoms to what you described.

[@marialourdesp.natividad3009]

@@Aimee_Esther A lot of thanks for answering Aimee Esther😊🥰i suffered a lot of pain😪thanks again..

[@BusyMama-07]

I totally understand not wanting to tell people. You get that look like oh you are one of those whiney people. I don't tell people unless they are in my medical circle or close friends.

[@remsolutions]

Did you ever try Primal Trust to break the cycle of stress->pain?

[@lesliespears9832]

I am interested in knowing more about this. Is it something that you have done, and was successful?

[@xochilguevara3429]

No on walks you through those traumatic emotions. How are we supposed to know what to do, especially at a young age?

[@lalo3019]

Ok I'm gonna try n tell my story , well I've never had a normal life when I was around 4th grade I developed social anxiety n depression thru all my school years from there and up were horrible I was alone I went to school with tears filled under my eyes ready to burst but never did I was alone I was embarrassed I used to to red ,sweaty, and my heart would pound so hard when I got uncomfortable , when I got out of school I got a job as a carpenter home framer I also had a tough time there the others made fun of me alot I was the nice guy that was too shy to say anything being I've always had social anxiety I had a car accident around 2010 maybe it was bad my body felt numb for a while but then started feeling ok after a couple months so went back to work I couldn't get another job cause my social anxiety wouldn't let me after a few more years there my body was starting to give up on me my spine would burn my hips hurt I would start getting stiff I went to dr.s they couldn't find why I was in so much pain by 2017 around November I stopped working I tried a bunch of different meds different dr.s I was told I had herniated disc's got injected for that it didn't help I asked for a rheumatologist it was a little hard to get one at first cause they said there's nothing wrong with me for me to see one around 2021 in August I was told I had fibromyalgia and ankylosing spondylitis so I've been getting treatment for both my back doesn't burn as it used to but the pain is still there and so is the burning but not as bad now being 2022 in November I also found out I have degenerative joint disease pretty much o have all your symptoms but I don't seem to be getting better now I feel I'm getting worse AS doesn't get better the meds just slow the process I do stuff for an hour or so then I need to lay down even nap when I go to Dr. Visits just sitting n waiting cause so much pain I get home n have to nap every joint every bone and nerve hurt I'm still trying to get disability I feel like I'm the crazy one how they treat me like I don't have severe enough pain for disability , yes I get fog brain I get headaches eye aches I get dizzy sometimes stomaches problems I've gotten disoriented at the store a couple times, I can't really do much but keep trying to get help , sorry if this was too long that's my story I have no kids no gf well I had one but we r friends n speak from time to time I just have no energy for anything and pain just gets worse when I move alot or sit and stand for over 30 minutes , ty for who ever reads this 😊😔

[@AussieCeleste-qq7sn]

I struggle with fibromyalgia

[@MarciaJacobs-dt2bc]

I’ve had fibromyalgia for years

[@Truerealism747]

Me to does your fybromyalgia deal like migraine in the body

[@MarciaJacobs-dt2bc]

Have them check your thyroid

[@makaylarose74]

I actually just had a very scary experience that caused me to feel unsafe physically and mentally.. the adrenaline rush that I got from that which sent me into survival mode. But anyways, as soon as I was home and in my bed with my dog my body has been in constant pain and irritation that hasn’t gone away 36 hours later, though I will say I am starting to feel less muscular agitation. Which for me is the worst. Does anyone else know what I’m talking about?😂 like I can deal with the achey pain, but the weird agitating feeling I get in my arms just sends me into a panic which definitely does not help.😂😂

[@drbsd8024]

Please try low dose naltrexone.

[@trishhicks1020]

Aimie gosh u sound like me wow

[@sideswipe1261]

You’re near the end of this video and mention therapists… I’ve said directly to docs and social workers and shrinks themselves “I’m sorry, but to be honest, just *honest* with you, I have NEVER ONCE left a session and thought @Zippidy-Do-Dah! I never looked at it like that! Revelation! Insight shines with insights YOU gave me. I’m feeling much better now!” Never happened. I went and hoped, but I’ already considered 999% of any angle you each asked me to look through as you spin the prism wheels, chances are I’ve seen, theorized and really tuned it sharonalready as yonsoun the wheels. I do think a nice, 2 wheel monocle are gorgeous if you have a mini “Tesla ball” that is lightning that follows your fingers! I should check how combining a prism and Tesla globe looks like with the 2 wheels spun like DJ Shadow! Then broadcast covering the night sky!

[@usmantahir2659]

Please tell me about your supliment

[@foxywhitetip7387]

Have you heard of oxalates 🥺

[@Truerealism747]

Yeah but it's knowing if this is problem as we are told to take vit c f oxalates ok

[@BrenLieske]

Yes...after a 12 year bad marriage I got a divorce. Made it through that and then my body gave out.

[@Truerealism747]

TMS Dr schubiner subconscious mind I had fatigue from birth then I had a fall broke tailbone triggered cops then CFS now it's more fybromyalgia 26 years on

[@elizabethconroy7665]

Cute hat

[@elizabethconroy7665]

Excuse my question Don’t answer if too personal But Did your husband ever get impatient

[@joynkindness]

fibromyalgia is over active nerves. It's physical. M