i have pompe and i am alive. I have infant onset (not adult) and i am 13 !!!!!!!!!!!!!!!!!!!!!!!!!!!! in england
@awkwardemperor6 жыл бұрын
Hope you are well! Sending love from Canada!
@LCHFItalian5 жыл бұрын
Hi Abdullah, my daughter has type V and after a few days on a keto diet she went from the wheelchair to a normal life. I know that Pompe is much more severe, but I really hope this can elp you too. Good luch from Sweden
@sanjaypaudel92007 жыл бұрын
Very good videos... Keep up the good work!!!
@camillasoderlund33174 жыл бұрын
I have Taruis type 7, why don´t you write that out? I find it strange that you don’t write it up because it’s a diagnose. I have had it since I started walking, wanted to be carried, and when I was 4-6 I have memories of how I felt when I have done things with friends like run, bicycle, I had much pain and often I vomit. Dr Haller told me that I just had 1% of PFK. Is that possible to see I how much I have? Can you tell me more about this disease? Regards Camilla
@MrPridizzle7 жыл бұрын
Thank you!!!
@andyspark51926 жыл бұрын
How is it possible, to memorize all this ? It was only one problem and the body is very complex and every patient is unique.
@alisvela4913 жыл бұрын
I was so happy for getting the right answer i think im done with studying today
@gratituderanch94065 жыл бұрын
Wait- my nephew was diagnosed with type 9!?! Glycogen Storage Disease Type IX or GSD 9
@ShaunPPatterson4 жыл бұрын
I did a 23andMe DNA test and they said I may hace this or my children may get it. I am wondering if this is why when I started the ketogenic diet and lost 80 lbs I felt so much better and had more energy from the 2nd week of the diet and on.
@peshalacharya65307 жыл бұрын
love the videos !!!
@abecoulter186 жыл бұрын
I have a friend who was born with GSD
@faceman24306 жыл бұрын
i have pompe and i am alive. I have infant onset (not adult) and i am 13 !!!!!!!!!!!!!!!!!!!!!!!!!!!! in england