GNE myopathy - Valenee Gosine's story

[@Sharms5]

Such an inspiration and a true fighter - saluting you and sending love from all of us in Trinidad, cuz!

[@jaydee4353]

Amazing video, what an inspirational person. Well done Valenee!

[@sonisuruchi6769]

Hello Valenee.... This is Suruchi from INDIA. I also face the same condition like you. Really it is very difficult to accept this. But Life goes on .... I also accept this different life and live my life in a different Style. Love your video because it gives me courage to do more things which gives me Happiness. God bless you.

[@rutujajadhav6138]

Where are you from in India

[@sonisuruchi6769]

@@rutujajadhav6138 From Bihar.

[@DevanshShukla-o2n]

Hello lam Karuna from India I am suffering from GNE mayopathy

[@rutujajadhav6138]

How old are you......i am also suffering from this condition and i am from maharastra....​@@sonisuruchi6769

[@rutujajadhav6138]

How old are you

[@DevanshShukla-o2n]

Hello Valenee Iam karuna from India I am suffering from GNE mayopathy and Iam not able to live an independent life is there a treatment for it please tell me 😢😢😢

[@nisargpatel1494]

Y'day I was diagnosed with this. Physical therapy is all suggestions from Dr. Where can I see more info on this such as clinical trial/exercise/diet/work life etc.

[@tarun611990]

Hi one of my cousin also got same issue. Is there any treatment cure which doctor to visit we have met Neuro Ortho spine rhumeto etc. also saw a video where people with such condition get to worst in few years is it correct? How to prevent that