Huntington's Disease Siblings - Testing For HD - Marianna & Ewa

Marianna and Ewa, sisters from Poland, both talk about their testing process, their feelings on both testing negative and the pressure they felt from family to test.
To learn more about HDYO and to support the organization - please visit www.HDYO.org Please consider making a donation to HDYO here: en.hdyo.org/eve/about/587

[@JonathanHernandez-mm3nd]

May god be with all those with Huntington’s Disease.

[@mikepancake101]

Do you not see the irony there man 😂

[@mikecondos1672]

This happened to me and my family. My mother was diagnosed with HD and grandparents never had it. Turns out my mother was adopted and we were never told until after her diagnoses

[@HDYOFeed]

Mike - thanks for sharing a little bit of your situation. These "unique" situations are actually very common in the HD community. Reach out to us if we can ever be of any support or provide more education around HD to you or your family! -HDYO Team

[@johnanddenisemarsh7708]

I had a neighbor with HD. He is doing well. I am so happy for you both.

[@elizabethmenegon8057]

It seems like two sisters grown up in two different countries 😄 all the best and love possible girls.. ⭐

[@gppoem3344]

I was thinking that too!

[@susanrodgers9222]

My step grandchildren's mom just passed away from Huntington's disease this past summer. I am terrified that they may have this or pass tye gene to their children.

[@CrystollaMarolla]

If they are sisters... Why are their accents different? Maybe different mothers, and grew up in different countries? Just wondering. I'm glad they decided to tell their stories. Bless you both.

[@laurenm162]

one is likely a better English speaker

[@HDYOFeed]

Yes, the one on the right studied English at university and now teaches English, she has an English accent almost when she speak in English. The other is very good at English as well though!

[@Ceerads]

They look so alike, it’s obvious they have the same parents.

[@LETMino85]

How is it possible that the grandparents were asymptomatic, but their father got it?

[@HDYOFeed]

@lollopisemis this is somewhat true. You can read more on our website about how this may happen in one family. en.hdyo.org/you/articles/53

[@LETMino85]

Thanks for the link! However I can't find an answer as to how this desease can skip one generation?

[@HDYOFeed]

Initially posted a link to the wrong section. I updated to new section that has a little more info on the genetic risks.

[@mikecondos1672]

This happened to me and my family. My mother was diagnosed with HD and grandparents never had it. Turns out my mother was adopted and we were never told until after her diagnoses

[@egnemet]

Asymptomatic means they didn't have the symptoms. You can gave the gene and not develop symptoms into later in life. Their are stories that people had the defected gene but didn't develop symptoms and then died of different causes such as an accident or heart attack. It does not skip generations. It can only be passed on my an affected parent.

[@thirdeye960]

How to test it in India?

[@anusreetravel]

go to nuro department and consult doc and explain they will help. it is RS5000

[@lisadunphy41]

Sisters ? Why do they have different accents ?

[@janemike3490]

#drojeabacha

[@gunterliam7411]

all thanks to doctor stanley for curing my from huntington disease i am forever grateful sir

[@Claire-lu1ex]

Theres no cure ??

[@Hiba-karroum]

How?

[@autumnconway3642]

@@Claire-lu1ex no not even close.Thats just a scammer.

[@autumnconway3642]

@@Hiba-karroum there is no cure.We have it.

[@autumnconway3642]

Liar.

[@LectronCircuits]

These girls are way too gorgeous to (perish the thought) have HD. Cheers!

[@rdgloveshouse]

So only ugly people should suffer ???

[@LectronCircuits]

@@rdgloveshouse only if you say so.

[@rdgloveshouse]

@@LectronCircuits you said so not me

[@chiveeee8553]

@@rdgloveshouse Right. He said that.

[@chiveeee8553]

@Heilige Hypocrisy.