Guillain Barre Syndrome (GBS)

[@navybean1560]

I am a retired physician and I just wanted to opine that your review of GBS and the neuroanatomy (both macro and micro) is outstanding.

[@jondeux3682]

Dr Been is really good

[@margaretgreen3050]

What would you like to know?

[@pamelaanis715]

Very good information! I was hospitalized for Guillain-Barre Syndrome in 1994. My doctor explained that it was similar to MS but I would get better. I received IVIG treatment and was in hospital for only one week. In NICU 4 days and was almost put on a ventilator. It took years to recover and it was not 100 percent. Thankfully a great doctor and early diagnosis. I received a letter from my doctor to never take a flu shot. My current physician informed me that I should NOT take CoVid vaccine.

[@mardyross2838]

1994 was the year I presented to my Primary Care provider and MS was more suspected than GBS, and I was referred to neurology. MRI's showed lesions in an unusual area, lumbar puncture had no myelin. I was not savvy for what happened ... the neurologist shrugged shoulders and dismissed me. I believe she realized it was GBS and I had just taken a vaccine for college, and didnt want to get involved in vaccine adverse event. I was helped by doing IgG food allergy testing via an MD who left mainstream, and eliminating 3 foods, but I never got back to the level I was at before and have had ups and downs of wellness since. Most recently from C*V 19. I didnt think of GBS until 2008 when I saw a college friend who had GBS and said first symptom was total inability on ice skates suddenly. I'd taken 3 people who had never skated to the lake I grew up on and they were better than I was. I thought at the time it had to do with 2 years of rollerblading and no ice. So that 2008 conversation was an aha for me. I then became a follower of James Lyons-Weber from the KZbin in 2018 of the Ohio Advocates for Medical Freedom conference where he presented on a man's case to tease out if it was GBS or ALS he unfortunately died from after getting a required flu shot. One year before retirement from nursing no less. I was going into health care as well when I got the vaccine for mumps so I wouldnt be kept from attending if a case presented anywhere in the campus population. All I could think of was the cost of an additional year not working and going to school if anyone had mumps and my unfortunate decision was way more costly.

[@pamaylward]

You are very fortunate to have a good physician. Are you in the USA?

[@pamelaanis715]

@@pamaylward Yes. I was living in Nashville, Tennessee at the time.

[@tfoxen7518]

Excellent presentation! Thank you. Very informative! As a Guillain-Barre survivor, I would like people to know that pain is often under-stated or over-looked in the textbooks. The pain is relentlessly ferocious, persistent and often unbearable (24/7). Medications are unable to 'touch' this widespread nerve pain. Barometric pressure even has an effect on the pain. Cranial nerve involvement often occurs. Some have brain lesions. Brain fog is a symptom that often persists for some time. Many with GBS onset receive a late diagnosis due to MDs turning them away from offices and emergency rooms, whereas the individual often sees many doctors and receives a late diagnosis. Delayed IVIG treatment (most common) often induces irreversible nerve damage. Published literature correlates numerous other factors that trigger GBS such as trauma, surgery, spontaneous intracranial hemorrhage or traumatic brain injury, fluoroquinolone antibiotics, chemotherapy, various vaccinations, and reactivation of latent viruses. Many of us have unknown etiology. Positive attitude, exercise/PT and strength/endurance are medicine. Recovery can be accessed at 2-5 years. Incomplete recovery is common. Types and variants: AIDP - Acute inflammatory demyelinating polyradiculoneuropathy (most common); AMSAN - Acute motor and sensory axonal neuropathy; AMAN - Acute motor axonal neuropathy; MFS - Miller-Fisher syndrome.

[@marianataliaortizladenheim2749]

I have seen many doctors and some of them think I had a mild case, Do you know if there is a way to know if you had it after a few months, I still experience tingling and some weakness in hands and feet, I’m concerned because I’m having a similar pain and sort of weakness I had in my feet before, now in my knees that started last week, EMG was normal however abnormal for a few weeks when I was having those initial symptoms, thank you Tamara

[@tfoxen7518]

@@marianataliaortizladenheim2749 Hi Maria. The GBS autoimmune attack plateaus near four weeks. Cerebral spinal fluid examination most often shows a high protein level with a normal WBC count. Having a lumbar puncture following this time period may not show definitive results of GBS diagnosis. I have not seen evidence. Possibly join some of the FB GBS groups to learn from others. I am sorry you have been experiencing this.

[@marianataliaortizladenheim2749]

@@tfoxen7518 thank you for your response 😌👍🏼🙏🏼

[@pamaylward]

Yes, the pain is unforgettable.

[@meme-et7tb]

Agmatine Sulfate 1000 mg actually worked for me after living with severe unrelenting pain for months. Worked almost immediately. Throwing this out in the hope that it helps others. Still take one daily for maintainence. Google it. Sold on amazon.

[@angiesweeting6618]

Thank you for an amazing explanation og GBS. I am currently recovering from GBS after getting the Moderna vaccine. I am trying to educate myself as much as possible about this disease and this video is wonderful. Thank you

[@day3455]

Good luck 🤞🙏❤️

[@endstay]

My father, an otherwise healthy individual, died of Guillain Barre. It should be taken seriously.

[@mariannehuczmann5678]

My dad did as well hel got it twice and believe me he suffered so bad they wanted to switch his lift surport machine of the second time he got it I cant get over it still to this day I miss him so much

[@Sotoberi]

Your ability to elucidate details is wonderful. I wish you were my lecturer when I was studying physiology! Thanks Dr. Mobeen for a great channel.

[@informationretrieval5896]

I've already had 3 Guillan Barre patients from the mRna vaccines.

[@anneblubaugh58]

😢

[@informationretrieval5896]

@@anneblubaugh58 Yeah this is getting pretty depressing indeed. I'm hoping sanity will make a comeback soon.

[@yigitcelen5726]

@@informationretrieval5896 How does the vaccine cause gbs? Doctors recommend mrna more than inactive vaccine for people with immune system disorders

[@angiesweeting6618]

I'm actually going through GBS right now due to the Moderna vaccine.

[@informationretrieval5896]

@@angiesweeting6618 🙏🙏🙏

[@lenacummings1313]

Thank you so much for a very good explanation of this disease. Love your videos.

[@lawnmower11]

One of my best friends, otherwise healthy 45 year old, developed Parsonage Turner Syndrome soon after the Pfizer vaccination. Can not lift his injection arm much at all. And other shoulder and body muscular dysfunction. He’s quite distressed and physician not confident of recovery. Yet another vaccine related issue it seems. Very frustrating

[@brinicole2999]

This is the type of stuff I wish we could know more easily. Instead of being forced to blindly trust. Sorry, but not happening. I hope your dear friend is ok :(

[@OnlyNaturally]

My paternal grandmother died of GBS in 1958, before they ever understood a lot about it, apparently, after not getting treated promptly for strep throat, I was told. Heard about the horror of her dying within a weeks time, as her fingers and toes became paralyzed, and it eventually spread to her breathing, rendering the iron lung used at the time, useless. The thought of having that happen because of a vaccine is terrifying, whether its more treatable now or not. She was perfectly healthy prior to getting sick, and was only in her 50s

[@mitubogoogle]

good lecture

[@charlesdavis7461]

Excellent presentation, GBS can kill. The tingling was unbearable to my wife, she was completely paralyzed in her legs. My wife was stricken with GBS last November after a flu shot. The EAU has admitted it is a possible side effect of the covid vaccines. My wife's neurologist told her not to get the vaccine. My wife's neurologist said that a virus is observed by the protective cells that go haywire and attack the sheaths of the nerves. She was paralyzed but after given IVIG in the hospital 3 times her neve sheaths were able to heal slowly and now 8 months later she is walking better each day. I saw her collapse to the floor in front of me. Thank you Dr Been for telling this story, it is considered a rare disease but it is less rare than the medical field knows. Many medicines have GBS as a "possible" side effect, Including covid vaccines. Just o you understand, I am not anti vaccines, in the Army I can't recall how many I was given.

[@paulamessier6915]

You should detox by doing chelation therapy. They have alot of heavy metals in those shots

[@DrewKennedy1]

Thank you for such a concise video- my sister is currently battling GBS - she had no vaccines, and we are still in the dark as to how she contracted it

[@marianataliaortizladenheim2749]

How did the dictors confirmed she had it, In my case they suspected I had a “mild case” better never told me it was confirmed, could you please tell me how did they diagnose her?

[@DrewKennedy1]

@@marianataliaortizladenheim2749 they took a week to diagnose her, and only realised it was GBS once she was already almost paralyzed-

[@marianataliaortizladenheim2749]

Wow I hope she fully recovers ❤️🙏🏼

[@mehrinferdousrimo9917]

Sir.. Plaese give video about autoimmune disease

[@MichelleMW88]

I would love to hear this as well!

[@aanchaltanwar4358]

Thank you sir. You explained so well

[@marysedita7326]

Dr Mobeen this is very interesting. My husband has the chronic form of GBS and was officially diagnosed in 2010 with CIDP or Chronic Inflammatory Demyelinating Polyneuropathy.

[@thekirkc.a.humility5740]

If you recovered from GBS THEN IT IS NOT OKAY for you to have JANSSEN VACCINES??? Thank you for responding and for your favorable reply DR. MOBEEN

[@charlesdavis7461]

I wish you were my wife's neurologist. Her neurologist is hard to understand, Asian English. He spends a lot of time out of country, luckily his Nurse Practitioner is excellent. Thos IVIG treatments cost $3,000 for 5 days. But you have to keep getting them, we are not rich.

[@bobthrasher8226]

WHY do the antibodies recognize SELF (myelin sheath) as non-SELF? Was that explained? ....OK, he just mentioned molecular mimicry as one mechanism at 29:30. Are there other mechanisms for autoimmunity?

[@songforguy1]

Vitamin B12 is vital for the myelin sheath and many people are deficient in this vitamin, stress and a diet high in sugar and refined carbohydrates will also contribute to a vitamin B deficiency.

[@songforguy1]

@@alanhedgedorn4155 yes I agree but wouldn't an already compromised myelin sheath help with the transection?

[@songforguy1]

@@alanhedgedorn4155 maybe... I'd hate to have this condition happen whilst driving or any other potentially dangerous activity.

[@carolfetterman9335]

I have experienced short term , one minute, loss of leg strength after receiving the different vaccines including the flu and Covid. Do you know if my immune system could be damaging my Schann cells? Should I be getting any more vaccines?

[@thekirkc.a.humility5740]

JANSSEN VACCINES SIDE EFFECTS GBS??? IS THAT TRUE DOCTOR THANK YOU FOR RESPONDING AND HELPING ME

[@angelaj8958]

it has been added as a side effect to that brand

[@renpixie]

My mother received a swine flu vaccine ( in the late 1970s) . She developed “French polio” and never walked properly after that. I have too many of her physical characteristics. I was going to my local health department for the J&J but decided to wait. Glad I did.

[@DeepakRodricks-xh7un]

Excellent presentation. How much time it takes after IVIG to rebuild the mylen sheet.

[@meme-et7tb]

Pneumonia booster in my late seventies tiggered it in me. Still struggeling with the lingering effects and chronic fatigue. from GBS. Never have had pneumonia. Two pneumonia prevention shots in my sixties were originally supposed to be good for life. First do no harm appears to have been replaced with push vaccines whenever possible. Know I'm done.....

[@pamaylward]

As a survivor of acute axonal GBS in 1989, I am so confused by the conflicting information all over the internet. In Canada, I'm being told that having had GBS does not exempt me from the COVID-19 vaccination. This is causing me a lot of distress because my workplace has imposed a mandate.

[@TamiFowler1]

Gavin Newson (governor of California ) hasn’t been seen since his Madera booster. Rumor is he has GBS.

[@gregtaylor8310]

Excellent! Thank you! I'm wondering about possible Vitamin D deficiency resulting in loss of mediation of cytokine storm? Any thoughts would be appreciated.

[@CharindiePeiris]

Hi I just wanted to know why the time stamp at 3.53 in the key moments is termed "gamma ray"? Is it supposed to signify any structural component in the hemisection of a spinal cord ?

[@muhammadzohaib2518]

Will vitamin B12(Methocobal) regenerate the Myelin sheath?

[@hrmpk26]

If KZbin decides your video is too good and bans you, you might consider switching to Odysee, it's a less censored competitor that can be replaced without content loss if its curators become overbearing.

[@DrBeenMedicalLectures]

Already on odysse 😀

[@pedrosarrico6948]

My father had GBS after a simple common cold 6 years ago. He lost a bit of his hand's fingers sensitivity permanently and feels a bit of tingling, mainly when he is stressed out.

[@indianasb59]

3 ER doctors and 2 neurologists ALL missed the diagnosis on me, despite me suggesting that’s it’s probably GBS.

[@paullacsamana5886]

My sister had GBS approx 10 years ago. Would the covid vaccines be risky for her? Thank you good doctor.

[@brinicole2999]

Yes

[@anneblubaugh58]

They are risky for everyone

[@Ghost-oq8fw]

yes, do not take

[@Ghost-oq8fw]

Is GBS possible only after covid vaccine or after covid as well?

[@tfoxen7518]

Both. Good question.

[@mardyross2838]

Yes, good question. I had the virus in December and it has been like a time machine taking me back to 1994 when I had GBS type symptoms that I got the runaround on diagnosis.

[@day3455]

I also heard in both cases it’s possible. But at what rate? My impression, from news, is that it a more common side effect after vaccination than after infection. Can anybody confirm?

[@hardyakka1499]

I had 4 jabs of covid vaccine with no problem. Then I got covid and developed GBS within 48 hours. This happened in August 2022. I am recovering well however there is weakness in my left leg and arm, fatigue and brain fog persists.

[@ab-mj1tx]

Can you do something to prevent that ?

[@eyeamthey812]

Have it, died twice. Went full gammet. Omg. I fought hard. I would love to answer any questions. It's a long story.

[@juliad988]

Wow. 😮

[@abigailmeaker12]

Hi Dr Mobeen. Thank you. My mother is currently in recovery at a rehab clinic with very limited movement. Do you know what the recovery process is to rebuild the nerves and sheaths within the body. She is doing extensive physio daily. She still has no feeling. Her bladder just started to work again. We are in for the long haul here. It has been +- 2 months since the start of STEM and colon infections

[@rebeccachambers4701]

We're did they Shwan cell go? Nobody knows. Some say the shwans just flew away. Shwan , drop the h swan cell. I don't know how it's spelled but sounds close enough to me

[@venkybly]

Tq I would love buy coffee / become a patron But I can't pay by UPI Pl make it available ( you can get many patron from INDIA)

[@Skypods1]

How do specialist identify GBS 🦠 as not being multiple sclerosis? there’s a lack of transduction in ms as well.