Having My Bottom Sewn Shut | Let's Talk IBD

In today's video I talk about my experience with Barbie Butt / proctocolectomy / anal closure surgery!
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[@emilywilson2012]

I love how unapologetic everyone is about talking about this stuff. My family gets after me telling me not to say certain things but I kindly remind them that this is my life and real things that I've had to deal with. People with Crohn's no longer feel this need to censor themselves. I love it

[@H8wokePropaganda]

When you've had your rear in the air in front of a room full of doctors, nurses and students enough times, you tend to lose all modesty!

[@drsuessl]

❤️🥰

[@nataliek4333]

Erin Lobo agreed 😂💕

[@emilywilson2012]

@Jude Fenwick exactly what I'm saying no one should feel offended when someone is talking about their real life problems.

[@SavingSoulsMinistries]

Amen sister!! Praying for you and all those whom are inflicted with illness. God Bless you!!

[@joycependleton589]

What really helped me heal was a bidet. Every time I went to the bathroom I could clean my wound and my bidet has a dryer as well. I suffered a couple of years with a constant drainage. Once I had my bidet installed on my toilet the drainage stopped and healing was within a matter of a couple of months. I have Crohns and eventually had my rectum and anus removed. I have had my colostomy for almost 30 years now. I appreciate it so much. It saved my life. Never have I complained about having a colostomy. I have a parastomal hernia of which I am not happy with though. I am almost 71 years old. Just wanted to say I totally understand what you are going through. Bless your heart.

[@carolinerowles5951]

💞 👏👏👏💞

[@cornflake73]

In Europe the Bidet is a standard feature in bathrooms. They reduce infections other health issues in genital area. Here in America it is much less common although I believe there is some movement towards standardizing to have them. We all would benefit from this marvelous addition to cleanliness.

[@joycependleton589]

cornflake73 I Agee 100%.

[@anietime]

@@cornflake73 I feel like I'm missing out...where in Europe? I live in Austria and don't know anybody who has a bidet at home 🤔 nor have I seen one at a hotel yet. Unfortunately.

[@spokanemom47]

Anie Time You sounds like me, I’m a bit geographically challenged when it comes what is where. I mean, I don’t even know where Waldo is! 😁

[@MPG-ub5ke]

oh you are a GI nurse, that's so lovely! your patients must appreciate the fact that you truly understand what they're going through!

[@MrFarnanonical]

I was going to make a joke, but decided against it because I felt like an asshole...

[@LetsTalkIBD]

Hehehe

[@geometricart7851]

you got me to click congrats...

[@1967MGC]

Yah, it's no fun being the butt of another's joke.

[@robchissy]

are you trying to be the butt of the joke?

[@johnszakach5582]

@@1967MGC That's a crappy joke!!!

[@0221929799]

What a stunning young lady in every way with such an amazing positive attitude to life. Totally humbling. Imagine how wonderful this world would be if everyone was like you.

[@ShoshiPlatypus]

I agree with you! I had my permanent ileostomy 5 years ago and I’ve always been very positive about it - without it I’d be dead from colon cancer so I’ve got a great deal to be thankful for. I’ve had a difficult journey since with subsequent surgeries for parastomal hernia repair and complications but I wouldn’t change a thing. I have learnt so much through this whole experience, and also met the most incredible people - fellow patients, the most amazing doctors and nurses etc. When I have met fellow patients who complain about having an ostomy and are very negative about it, I tell them that there is nothing they can do to change the fact of their ostomy, but they can change what goes on between their ears. If you cultivate an attitude of gratitude and think positively, you end up so much happier and so do those around you, and you also deal with the practical side of living with it so much better too. I have found one of the best ways is to have a sense of humour about it all. After all, kids think anything to do with poo or going to the bathroom is hilarious, and perhaps we all need to get a bit of that attitude back again!

[@firouzrezayat2462]

Exactly.

[@LOISTAXLADY]

My ulcerative colitis started in the ninety grade. Had my surgery at 26. I am now 76. Yes I had the discharge for years before it finally healed. Never tried to have children, just the thought scared me. I tried never to let what happened stop me. I ran my own business and have a masters degree. Best of luck to you.

[@Akeepersplace]

I am deeply humbled after reading through the comments and seeing so many people share their stories. Each and every one of you are super heroes to me and thank you Maggie for creating a safe place for people to share their stories.

[@ShoshiPlatypus]

What a lovely comment! Thank you! I agree with you - Maggie’s created a lovely safe place for us all!

[@ankevaneck63]

My husband, now 73, had the same procedure when he was 24! Because of colitus ulcerosa. He had a lot of pain and problems during his live, but also a cariere and three beautiful kids. And still helping me out with home cleaning, riding bike and long walks. Love to have him around.

[@lauriecalkins781]

Patients are really lucky to have you as a nurse!❤️

[@tps3057]

The world's lucky to have people like Maggie she's amazing

[@cw4608]

Dang, this puts some of the things we face most of the time into an entirely different perspective. You are an amazing person.

[@joanmilano5302]

My best friend had the same surgery when she was 28. She is now 67, has been beautifully healthy and is living a good life. She opted to adopt and has 2 beautiful children and 3 grandchildren.

[@barbaramaloney3675]

My Father suffered and passed away from complications over 25 years ago. If only the Doctors then knew what is known now, he was a guinea pig. My heart goes out to all the people with Crohn's Disease and related ailments. It is truly good to see the advancement of care .

[@Lauranessa1]

So sorry for your dad. It’s crazy how things are improving … if only things was different 🥺

[@stuff1784]

I like how blunt she is. She gets straight to the point. 👍

[@rosemarybaranowsky6746]

Hi Maggie, I had rectal cancer and am left with a Colostomy. It has been two years since my surgery and I still have discharge. It is much less now but it is still there and will not likely ever go away. My surgeon says it is normal for many people and nothing can be done. I manage it with panty liners, which have to be changed about 4 or 5 times a day. It is liveable but not pleasant. Your channel has been VERY helpful for me. I have learned so much about how to handle my ostomy and what equipment to use and how to use it. I appreciate your honest and very clear advice and especially your demonstrations. Thank you so much for being so down to earth and helpful by giving us real, practical and useful information. I wish you well and hope you are back to normal soon. Best of luck to you and Zack. God Bless!

[@ravenesqueone3033]

Rosemary - Mine hasn’t gone away and it’s been 33 years.

[@rosemarybaranowsky6746]

Ravenesque One Oh dear, that’s unfortunate but thank you for sharing. It’s good to know that I am not the only one.

[@marwa5672]

Hi my dad had this bag ostomy in Pakistan they have no knowledge about how to deal with it my dad getting depressed. He is about 65 very healthy but now he has colonic cancer as well we didn't tell him. In Pakistan these bags are very expensive like 10 pound each my dad can't work. It is soo hard pain full I pray for you all who suffering from this pain. 😭😭😭😭😭😭

[@krystaldaniels7940]

@@ravenesqueone3033 gosh this sounds so painful and frusterating! My prayers and thoughts are with you! Congrats on beating cancer though!! My cousin (diagnosed in her mid 40s) lost her battle almost 3 years ago, not long after having the coloscomy surgery.

[@sableann4255]

Me too! I have the same problem. I am 5 + years cancer free. I wish I had someone near me to talk to, it's tough at times. It is nice to hear I am not the only one.

[@longtabsigo]

You bring a face to medical issues where folks fear to tread, your courage is commendable and I thank you for your indefatigable perseverance.

[@1americanatlarge]

translation=you are very brave

[@amay1110]

This video popped up ‘accidentally’ for me but strangely enough I have ulcerative colitis- people don’t really understand just how painful and destructive IBD can be, I struggle to even get family to understand! I hope you heal eventually and thank you for being frank and open and raising awareness.

[@ShoshiPlatypus]

I had ulcerative colitis for over 40 years and it was horrible and sometimes embarrassing. When I got colon cancer (I’d been warned I was in a high risk group for this) it was a blessing in disguise. A large aggressive stage 3 tumour appeared in less than 18 months and my whole colon was removed. I had 6 months of intensive chemotherapy which was very unpleasant, but I have been clear of cancer for 5 years and doing well despite 2 surgeries for parastomal hernia repair (now awaiting the 3rd) and associated complications. IBD is really horrible and it is good to raise awareness of what people suffer with it. We need to cultivate an atmosphere where it is no longer taboo to talk about poo and problems with going to the bathroom! I have been very fortunate to have a loving and supportive family and friends throughout my journey but for too many people this is not the case.

[@natalieshicks7880]

I lost a dear friend to Chrons Disease. He fought it for many years. I miss him dearly. I love your attitude as you explain what you go through.

[@gregorymalchuk272]

Omg, what happened?! Did no medication or surgery help? What did he actually end up dying from? Peritonitis? A GI bleed? Starvation from malnutrition?

[@LetsTalkIBD]

Sepsis ):

[@gregorymalchuk272]

@@LetsTalkIBD Was it a complication form surgery or a leaking/ruptured bowel that caused it?

[@LetsTalkIBD]

I have no idea, not too many details were shared with us other than sepsis

[@america1st964]

I feel you girl. Cancer treatments forced me to have two ostomy. Urine and stool. 10 years with one and almost three with the other. Discharge is the pits. Life goes on...so keep living. God speed and many blessings !!

[@tarnishedsoul2749]

I love how she speaks with such honesty, grace, and confidence. I recently just found this channel and her personality and positive outlook have definitely won me over! ❤

[@nickh.8172]

Thank you for posting these videos. Very inspiring. Had my first major surgery, ileostomy in 2000, and over the years my health fluctuated between good days, hospital stays and surgeries. Had a permanent ileostomy 12/16/19, haven't met too many people who have been through similar events. Surgeon is pushing for the "bottom sewn shut" surgery later this year or next. I really appreciate you optimism and empathy in your videos. Truly inspiring.

[@annahasty7191]

I would like to commend you for discussing such a difficulty subject with class. I hope that you continue to heal quickly and properly.

[@jameskennedy6982]

Good heavens, GOD bless you and everyone who has major health problems. Be strong

[@lemonlover6559]

Thanks for being so open and informative on all these private issues. I'm sure you have helped so many people ! Blessings to you, Dear.

[@wfm5121954]

You are so beautiful. I listened. You are such a thoughtful and sensitive woman when you speak. You are helping many people with your channel. I send you many blessings.

[@rogercollins2653]

I have chrons disease. She is a champion of love. It's funny how people say death is the worst thing that can happen. Chrons messes with your mind and body in ways you have never imagined. Yet living is so incredible. Thankful for everyday.

[@rexhymel8532]

You are so right. Go for it!

[@MoneyMager]

@Sanuk Jang Lery You could argue death/dying is one of the worst things that happens the someones loved ones.

[@MoneyMager]

@Sanuk Jang Lery uhh yeah? I dont get your point

[@firstladyshine]

It’s nice to see someone handling these things so well. I’ve seen people really break down over this and telling them it’s ok means nothing at this point. I hope they get something out of this channel. Thank you

[@onebourbononescotch]

My legs feel weak imagining the pain you went through. Hope you heal well.

[@hummingbird2254]

Wow I'm amazed by this video as well as the comments. I can't believe what you've all been through. I'll never complain about my health again ! You are all so strong. I pray for you health and recovery. Thanks for sharing your courageous stories. God bless !

[@ShoshiPlatypus]

Thank you!

[@jrcimini]

My father had Crohn's disease for a good part of his life having everything removed up to and including 6 inches of his small intestine at the age of 60. At first, he felt anger but being the positive person he was accepted his condition and lived a full life up to a few days before his 81st birthday. I hope the best for you, being so young. Don't ever lose the positive attitude you have and continue to live life to its fullest!

[@ravenesqueone3033]

John R Cimini - He had his entire 5 ft colon and about 12+ feet of small intestine removed?

[@jrcimini]

@@ravenesqueone3033 6 inches, I used a quotation mark to mean inches but I'll edit it because I have to change his age.

[@andym28]

My old man had half of his intestine removed. At 68 still doesn't stop him endlessly doing home improvements.

[@hamamotodesigns]

I didn't even know this was a thing. Since quarantine, I've been watching a lot of youtube. I learned more on youtube than I did in school!

[@H8wokePropaganda]

I clicked on this video because for the past 10years I have had ongoing bowel issues that have gotten progressively worse. Screaming pain every single time stool moves into my large intestine and I do mean SCREAMING pain! I finally went and had another CTscan this time while the pain was excruciating and the ER said that I had all of the appearances of Crohn's Disease! I just hope that I can finally get some answers and treatment!!! Girl, you are an inspiration because my life has been turned upside down from this condition and to see how positive you're handling yours, gives me a lot of strength! Thank you for your courage!!!

[@thatpersonoverthere6663]

Hope you're doing okay 💛

[@H8wokePropaganda]

@@thatpersonoverthere6663 I'm great!!!! Evidently all of the prayers I've been getting after sharing my experiences has been helping!!! The Lord Jesus is GREAT, just like our President has been trying to make our country fortunately!!! I'm stronger than hate & evil & nothing can harm me when God is FOR ME!!!

[@chrischupp9760]

Didn’t know they even did procedures like that it’s kind of interesting. A person does what they have to do to stay healthy. Take care.

[@marblessed9597]

There is no way that is healthy!

[@ConnyNordlicht]

@@marblessed9597 l guess you misunderstood him! It was nice - meant, l guess! It was meant kind of "if it was necessary, well, then good you did this! Nothing bad! I have a short bowel with a pulled - through - anastomosis and it was so hard! I was 47 when my parents by LETER finally told what docs had done when baby. I asked so long! So l'm not that negative but happy to see people really interesting , not looking into other direction. Be blessed!

[@ConnyNordlicht]

Hi! I have the wardenburg - syndrome and got 38 surgeries while child up to 4. Suffer at a pulled - through anastomosis. My anus is still there but since surgeries most of the time wounded. It can't heal cause needed too often. I try to help with the right food and careful "job" at the toilet and l use tons of vaseline (med)to make the skin soft and fine. A piece of tiny bandage l cut in the way l need l use to do the vaseline onto and place it right onto the wound. If fluid comes much l use a bandage that is longer and put s.th.into the wound to make the stuff come out. Around always vaseline with arnica. I get it in droug store. I handle with it from 6th week of my life and l'm use to do it. Think docs didn't do a good job then. My doc now sais he wonders how l can handle it so well. I got an RNS, too, which helps me to live better since 5 years. I better know when l have to visit bathroom etc. But it's hard, to sit often is. I've got a special cushon to sit on, too. Does this help in any way? It's different!

[@karlaheller1932]

ConnyNordlicht .......,,.....,...,l....,........,,,..

[@ConnyNordlicht]

Heller : What does this mean?

[@JAEfan4]

Had my surgery in September. Wound still draining. So annoying! Thanks for sharing your experience, very helpful and nice to kinda see a lot of us with this surgery struggle with the same issues.

[@jameswhite6740]

You are simply Amazing! I can't even imagine the strength it would take to endure something like this. And then to have this sort of positive attitude even if only for the duration of the videos simply blows me away.

[@Prebound_]

Finally! Someone else who can smile over the toilet paper shortage battles with me. I had stage 3 rectal C and have a Ken butt now, too. I'm amazed 5 years later that the stitching has held up despite how physically active I am. I could literally do the splits without discomfort, if i were limber enough

[@LetsTalkIBD]

Hehe benefits of the Barbie & Ken butt! 🤣 hope you're doing and feeling well now!

[@johnshepherd6976]

I just had my surgery am waiting for the stiches and staples to be removed. I know I will feel better. You sound like you recovered well. Thank you for the post. A time frame or recovery time would be great to know.? Thanks again for letting me relieve some of my anxieties.

[@melaniepoulton6738]

Wow that's great to hear! I am 7 months post op, and am hoping that I will become as physically active as before-in time

[@AndreasViklundOfficial]

Having a father with ulcerative colitis since more than 30 years (and myself having microscopic colitis), I have felt for a long time that this is a difficult topic to discuss with others. People constantly try to joke it away (I'm sure you have heard every a-hole joke out there), but the one thing we really need is an open, honest and serious discussion. For that reason, I really like your videos, because you show that it is perfectly OK to talk about things. And you've made yourself a great support for a lot of other people, which is obvious from the comment sections. So, thank you, and stay well!

[@danbeit-halahmi2515]

Hi Maggie, I am Dan, in 2017 I was diagnosed with rectal cancel, as a result I now have Colostomy, and my behind was also closed shut. I did not have half the problems you had (sorry) but I do remember the pain while sitting down, or laying down, and even walking at times. My car was a NO NO for me (or any car for that matter) those seat tend to pull the cheeks apart and that hurt like no tomorrow. Four months after the surgery, I started feeling better, and as Colostomy is easier to handle then what you have, I am about back to normal life. I wish you all the best, and hope it would all be solved soon.

[@bernadettebandonill2232]

Im also got into ileostomy just a month ago..i also have stitches in my anis..does it mean il live with d ileostomy for life time?how bout u,is ur colostomy temporary or lifetime?

[@sweetjammzz200]

I found your channel in search of info for my husband who has Crohn's disease also. You make everything understandable and give so much information. Thank you for being on here to help others and their loved ones to navigate this awful disease. You are a beautiful soul. Take such loving care of yourself.

[@paulwahtola4476]

After my proctocolectomy I developed a large abcess in my abdomen. I had to have the abcess removed surgically. I ended up with a wound where my anus used to be for five years. I found a wound care clinic and surgeon that discovered I had a hole in my peritoneum that was allowing fluids from inside my body to use my wound as a drain. I had a surgery to patch my peritoneum and my wound healed in three weeks with the help of a wound vac. I hope this info can help you on your journey Maggie.

[@bunnylacy2097]

Bumping this comment so hopefully Maggie will see it

[@SavingSoulsMinistries]

God Bles you my brother

[@Khaleesi_Of_Kittens]

Wow. That sounds like a 5 year nightmare. I hope you are feeling much better now.

[@empathy_is_only_human]

You show an incredible amount of bravery speaking so openly about a topic like this. Every member of my family, my mother, sister and I, have had GI issues for the majority of our lives. Primarily this has been in the form of chronic diarrhea and thankfully nothing more serious such as what you've encountered. The worst I"ve had to face, thankfully, has been the occasional periods of incontinence. I have to admit however, I'd never before heard the phrase Barbie Butt, but I can imagine how descriptive it must be. Wow, you're a registered nurse and spend your time assisting others. I would have imagined, from what you've described, that the condition would have been disabling. That's inspiring. For myself, I've struggled with trying to find something that would allow me to be productive while still accommodating my medical and physical needs. I am also thrombophilic from two disorders antiphospholipid syndrome and factor V leiden. As well as dealing with ocular migraines. After twenty years I've finally given in, applied for and am now receiving SSI as financial support. In one way I really envy you. That you have the experience, and therefore the compassion that comes with it, that you can bring into a work setting where you can identify with patients. But at the same time as I listen to your descriptions of the surgeries you've had to endure, I feel very grateful to only have to deal with what I do. As far as slow healing goes, I have a multitude of Venous stasis ulcers bilaterally that both drain, and love to get infected. I currently have nine such wounds and for the past few months have been dealing with, well lets just say the pain levels have caused my normally cheerful mood to be a bit dampened. In one way I'm glad for their location due to the relatively low concentration of nerve endings. However there is one on my achilles tendon that makes ambulation a fun experience. And one that's on top of a toe. Ick on that one. Things that help with healing are not only frequent dressing changes but also rinsing the area with either tap water, most likely the shower would be easiest for you given its location, or saline if that's what the doc's want used. So every dressing change a couple minutes of water flow will help a lot. Ensure that your diet includes a heavy percentage of your calories coming from protein. While yes we do produce every protein we need, that process is also energy intensive. And so when we give our bodies shortcuts, it can help to speed healing to a high degree. Make sure that you're getting enough nourishment as well. A multivitamin daily might be what does the trick, as deficiencies in any requisite vitamin or trace mineral can contribute to slower healing. This next one applies to me, and I know I have a hard time adhering to it. However, making sure that your not doing things that promote edema in the affected area. For me that means keeping my feet and legs elevated most of the time. Just sitting at the computer and my calves swell up. So if you're still working, it may not be a bad idea to take a leave of absence to allow yourself time to heal in an environment that's not making the process harder. Application of Norsic Cream during every dressing change can definitely help avoid inflammation. And for me, vitamin E oil applied directly to the wound, does seem to help promote healing. I wish you well in this journey. I hope you find permanent recovery soon.

[@petterblakk]

This was very interesting. Love people who post videos about what they are going through so we can learn and understand it.

[@updownstate]

I've got your back, sister. I had stoma and was on TPN for 15 months. It's great that you're a nurse. The world needs more nurses.

[@MrSporkster]

IBD here. Fortunately under control with anti-inflammatories. I've never required surgery, and I am eternally grateful for that. Thanks for this amazingly inspirational video.

[@jasonleonard2444]

Thank you for sharing, Maggie. I was diagnosed with Crohn's in 1991 and while I have gone through some tough times, your story is truly exceptional. I absolutely love how transparent you are and your ability to remain so positive. I've had some bouts of depression because of my Crohn's but you are truly uplifting and inspiring. This was very educational for me and I truly hope you reach a point of comfortable recovery. You are pretty amazing. ❤️

[@gregglasgow9432]

Your frankness is refreshing and informative. Thank you. I have seen other of your productions and I believe you have made a misunderstood condition less of a mystery. God Bless.

[@Theeliftedbodhi2222]

Im not exactly sure why this video was rec to me ,but 5 minutes in i can hardly stand how relaxing and transparent you are. I have many nurses in my family and its such a benefit to witness such genuine demeanor in someone who is not only a patient but a nurse. I wish i had you as my GP or Gastro doctor. New subbie here, i cant wait to watch more content of yours.

[@Krysco51]

I’m so sorry for all of your pain and issues. I’ve been struggling with lots of medical issues, nothing compared to what you have had to deal with...

[@vinylcommunity-spinningout6887]

I've been through it. I had to go to the wound clinic after six months and they were able to close it all up. Your frankness and honesty is appreciated.

[@ConfusedCorvid]

I was so glad to see you’d figured out what’s wrong last video. Thanks for being so open about about your health, it’s totally not your responsibility but it definitely makes those of us with chronic health issues feel less alone. Health issues that are deemed more “icky” no one ever talks about and it is very isolating. I still feel much more embarrassed raising GI issues with my doctors than other symptoms which I know is illogical but I’m trying to work on it. Thanks for changing peoples attitudes and providing such a great community 💜💩🍑

[@DonChillum]

As soon as I saw the title in recommended I thought this was one of those theoretical videos where someone goes into a gruesome kind of question of life that never really gets answered for real. Came to the end of the title and clicked right away. This must be pure hell to go through, even more so when you are young. And talking about it? Yeah let's change that. Thank you for educating me further on what living with IBD is like and thank you for being so brave for it motivates me. Bless you on your journey and bless that partner of yours I saw in the intro. Blessings and love from Sweden

[@laurenperez5035]

Hey Maggie! I had a similar surgery in May 2019! I had mine done at Cleveland clinic every though I live in Texas. I had a trusted surgeon there from lots of complications with my ileostomy. He actually did a flap of sorts because my anus is still there and still looks like everyone else’s might but nothing can come out! It still took me about two months to fully heal. I had a small open area that refused to close and I found it helpful to lay without pants or underwear to let the area dry completely. It sounds funny but it eventually healed and I no longer have any residual problems. It just takes time, I wish you the best in healing and adapting to your new normal!

[@randycook8782]

Lauren could you give me the name of your surgeon. My husband had bowel resection due to colorectal cancer and the resection pulled apart 5 days later. He had to have emergency surgery and ended in a colostomy. Anyways, he has had some complications and really would love for him to have a 2nd opinion with a surgeon that deals with complicated cases. Thank you!

[@hippiecowgirl4231]

I experienced something similar due to anal cancer. You have my sympathy and admiration, it’s not something I’d wish on anyone but I’ve learned to live with it and it’s no big deal. It took guts to go public with your story , you go woman !

[@cynthiaakacyndsmith6539]

I lost my colon rectum and anus do to cancer. I am so glad I have not had these kinds of issues. I did take a long time to heal that is for certain. Blessings on you and your endeavors.

[@balancedactguy]

You poor Girl! I was recently diagnosed with Coronary Artery Disease and got 3 stents out of that deal. I thought I had problems now, but I am amazed how upbeat you remain through all this trauma. May you Heal Fast and God Bless you!!

[@meno594]

Wow. I feel ok about having MS. Your stories are appreciated and you are so realistic and humble After my hysterectomy I've never had to get an exam. And I am forever grateful

[@CAZZIEK321]

Wow you are so calm about all of this. Clearly you have been through a lot in your life. I can’t imagine how you are so laid back about all of this. Wish I could give you a supportive hug. Thanks for explaining how things have been for you xxx

[@АнтонинаБабинец]

You such a strong person! God bless you!

[@LetsTalkIBD]

Aww thanks

[@AndiSchneider]

It is amazing that you can work. I have gastroparesis, short gut/rapid transit with my intestines, and EoE, and I can’t work. I have had most of my stomach removed, some intestine, multiple fistula take downs, ostomy reversal, and depend on my GJ tube and Hickman line. I stay home and care for my miracle kiddo that the docs said couldn’t happen. I was in nursing school, but couldn’t do it anymore. It’s inspiring that you are sharing your story and you remain so positive. I can tell you’re an amazing nurse because of what you’ve been through. I have to have another surgery soon. It can really wear you down, and so many people don’t understand these GI conditions. I have so many friends online and we talk about dumping syndrome, all the vomiting, and other gross things about our illnesses because people don’t understand. I thank you for posting your videos.

[@tinasteen7643]

Maggie, my brother had this same surgery on 12-31-2019. He had rectal cancer. He also had stitches. He wore a men’s depend backwards to allow for drainage. His stitches were removed on 2-4-2020. He was finally released by his Dr on 3-5-2020. He had 2 spots the Dr had to put silver nitrate on. I have followed you for help and encouragement since he had to have a temporary illeostomy, then a permanent colostomy. As a woman I have often wondered if the female anatomy makes for a more difficult healing from this surgery. We have a little more going on down there than men! Best wishes to you and thank you for your channel. It has been a tremendous help to me in my effort to help my brother.

[@Teriyaki-vj8ny]

Your Brother is Blessed to have your support and that is the best medicine 🙏❤️

[@patrickboudreau3846]

You’re an inspiration ! I suffer from depression that usually last 1 to 2 days but very intrusive. I have everything going for me including health, love and everything else. I wish I saw life the way you seem to. Thank you.

[@brenmanock]

Thanks for sharing. I have IBS and have had ischemic cholitis in hospital after antibiotics. Now chronic diarreah while on laxatives now. Very painful burning. Gotta call the Gastro doc soon.

[@titalinda8515]

My darling, beautiful girl. You are strong, positive and an incredible human being for being able to talk about a very very difficult part of your life that affects it very much. Continue taking care of yourself. I am a 76 year old grandmother, and I am so proud of you for being so strong. A big hug for you from Chile. 🥰🌷🌷🌷🌷

[@mattendspiel9341]

I finally had my entire colon, rectum and anus removed in January 2018 due to Crohn’s Disease. Previously, I had partial resection but this time there was not enough to save. Luckily, my underneath healed relatively quickly compared to yours. It’s all a massive adjustment and there are occasions I get a bit down about it. Then I remember how much better life is without a lot of the complications that come with this delightful disease. So happy to see someone talking about this, especially as tomorrow is World IBD day (19th May) . Thank you!!! 🙂

[@corneliaeleanore3215]

Did you have any wound infections during your recovery? And how did you deal with it?

[@mattendspiel9341]

Cornélia Eléanore I did have infections, one that resulted in sepsis. After a few weeks I developed another infection underneath. Regular repacking of wound and thorough cleaning (plain water) will help greatly

[@corneliaeleanore3215]

Matt Endspiel Thank you very much for the advice 💗💗💗

[@mattendspiel9341]

Cornélia Eléanore you’re welcome. Good luck and do all you can to boost your immune system ☺️

[@carolwilliams2356]

So glad that your video appeared on KZbin for me today. I went through six surgeries as a teenager for a pilonidal cyst. My wound did not heal from the first surgery and the subsequent surgeries were attempts to correct this. At age 20 the wound finally healed and I was able to live a normal life including riding horses and bikes. At age 30 I became pregnant and gained 38 pounds. In the 7th month my wound from the prior surgeries split and did not heal until after the birth and return to my prior weight. I also experienced the problems with sitting and this occurred during high school and college. I always wanted to hide in a corner in school because I felt so obvious and different due to my would healing difficulties. Your video is so straight forward and honest. I wish that during those bad years that I could have seen your uplifting video.

[@beliaharmsma5380]

Hi Maggie, I had a proctocolectomy in January last. Had an abcess and the hospital told me to use bacteria binding swabs with alginate. It worked wonderfully to keep the wounds clean. Two times a day rinsing with water, dry the wounds and then put the swabs in the wounds. It worked for me. Love from the Netherlands.

[@carolinegoss856]

Your attitude is amazing! No room for feeling sorry for you; your outlook is contagious!

[@amymarkancek8563]

Your so amazing to share such a personal experience! I'm sure this will help many people!!

[@mikeyg6631]

I'm glad your healing and able to share such a personal experience. I get chronic clusterheadache and this showed up on my feed. May you continue to recover and thank you for your bravery. May God bless you

[@liliencalvel6151]

Your a very brave person to share this story. Wish you a good life. Take care❤

[@kellydrover1994]

Having gone through an ileostomy and reversal I can not tell you how much videos like yours helped me to understand what life was going to be like after surgery and that it would be ok. The telling of your story helps so many others thank you for sharing.

[@sydneystoma385]

Hi Maggie. In 2017 I had all of rectum removed. I never had stitches. My huge hole was packed with surgical dressing which allowed the hole to heal from the inside up. The dressings were changed every couple of days and over time the dressings got smaller and smaller as the hole healed and got smaller and smaller. For the first few weeks after surgery I also had an airtight vacuum pump attached to my bum. It was airtight so nothing could get I the hole and it reduced any chance of infection and aided the healing process. I have photos of it healing and it's amazing to see such a huge hole get smaller and smaller. The only place I had stitches was down my abdomen from where they open you up on your stomach. I did not have any healing problems in the rectum area. The vacuum pump really sped up the healing process. It took about a month to completely heal. The only pain was when they changed the dressings. But that pain got less and less as the hole got smaller. Since having sydneystoma I have stayed out of hospital. I have started my own channel now, it is only small and I have lots more ideas. I just need to find more time! Your channel is great. Well done and I wish you well.

[@kimbok5971]

Maggie, you are amazing. You have been through the wringer and back, many times through your journey, yet you thrive, look beautiful, are married to a wonderful guy who takes it all in stride and do these videos that must help many people. Good on you !

[@asmrmaryem7004]

My dear I everyday pray to God to protect you and give you cure completely soon Amin to all people who sick also

[@maryconsul6188]

I appreciate all your videos. Lots of great information. I am two months out from my surgery and today I rode 6 miles on my bicycle! I was a cyclist before so was very happy to get back in the saddle! And, by the way, I am 67 years old!

[@b3bandit]

I feel for you. My chest and lower abdomen are healing the same way and look like a Canyon and that's how I've been referring to it as. Because I had a Liver Transplant back in 2009 and an existing scare they could not go in laparoscopically so they had to cut me open. Ah such is life. Don't forget every day above ground is a good day

[@ShoshiPlatypus]

Having a close encounter with death really makes you appreciate life, doesn’t it.

[@robynjohnson3940]

Hi thankyou for posting this video it's so relateable. After having colon cancer I've had an ileostomy for 3 years now and much happier. After getting diversion colitis in my stump they're removing the stump and whats left next month. As much as I can't wait for the painamd mucus to stop I'm petrified of the pain and healing times. Just so grateful to hear it from your point of view and so detailed xx

[@Lily997100]

Wish you all the best with your healing.

[@aviellejannsen6897]

So glad people like you exist who don't take themselves so seriously. We all have a body and when people talk about problems with their body then they can help other people. And for those who don't have problems, one day it could be you. I enjoy the honesty.

[@moleybear]

It’s been 5 years since permanent stoma. My butt split open a few days after surgery. It took 6 months with a wound vac to get it completely healed. When I sit , I lean slightly to the left or right. I don’t have any pain in that area. I wished they had told me I could have erection and incontinence issues. Am a double bagger for 2 years.

[@shternarosenberg5016]

Wow! I so glad to have stumbled into your world. Your an amazing person! I to have Crohn's disease, for 36 years. After 12 surgeries I have 18 inches of small bowel left. Thankx for your inspiration .

[@robinvogeli4389]

OMG!!! Had the same issue! I had 2 places that would not heal for months! My doc and home health nurse used silver nitrate strips. It tool time but FINALLY healed completely. I am so glad to know someone else experienced same thing , felt like yhere was something wrong with me. You asked about pain afterwards...yessss!! This was more painful than my first surgery where about 75% of colon was removed (cancer and Crohn's area) but reconnected for that one. I had to have this complete removal after Crohn's returned after Chemo completed and would not respond to tx! You have been a blessing when I had to come to terms with the major life changes!! I always thought of you, Maggie with your big smile and positive attitude. It made me push through on my dark days! Thank you for being a bright light!!

[@dhanakhei9911]

In 1972 I turned 21 and had emergency surgery for appendicitis they thought, when they got in there they said my intestines large and small were rotten they removed over 3 feet from both and did an resection as an experiment. Three weeks in intensive care, drugged up but I made it! They didn't really know what was wrong with me, suggested Chrome's or Eisenhower disease, they said I was allergic to myself. No guidance, diet or anything. Because I had surgery insurance company would never pay for colonoscopy, at 69 now I'm afraid to get it done but it sounds like you are very brave thanks for your story!

[@SC-cb2pg]

Dhana Khei Get it done. They use propoval now and you are completely asleep so it’s not like they used to be.

[@ftkinsella]

You are helping so many people that have the need for this information. Bless you.

[@matthewfreeman6917]

Hi, I have just found your channel, I'm due to have an ileostomy in the next few weeks. Just looking for resources and your frank honest discussion is great. Thank you

[@kaylin7389]

Look up Hannah Witton as well

[@nicolebasil7576]

I had an ileocetomy almost 2 years ago. Never felt better. Its life changing

[@anarivera680]

Try silver alginate antimicrobial the gel or the for wound healing. It helps with moisture. (Silver Calcium Alginate Dressing). Check with your doctor ❤. Best of luck.

[@ShoshiPlatypus]

Wishing you all the best for your upcoming surgery! I had mine 5 years ago and it’s fine. It has changed my life. Keep going through the initial learning curve. I don’t know where you are but here in the UK we have access from the outset to the stoma nurses who are brilliant. There are also online forums for ostomates and this really helped me. Above all, keep a positive attitude, and try to see the funny side - you will have some funny experiences as you grow in your ongoing relationship with your stoma. It helps to give it a name. Mine is called Kermit.

[@lchay4550]

Your willingness to share your story will help so many people. You're awesome for that.

[@sari-kitty]

Great to see you again Maggie! You're so beautiful! 💜

[@paulawhite8232]

OMG i had the exact surgery that Dec. the 17th I am still having different problems as well, I colostomy to start out and by march the disease ate up my colon so that was a taken as well as my gall bladddddd

[@ZubairKhan-vs8fe]

You are such a confident person. A true inspiration. Stay well

[@ConnyNordlicht]

I forgot:The best is: l have a son, got him by emergency cesarian but it all was worth it, all the pain, what was and is and will be!

[@hockeysteph]

I wish that KZbin was a thing and that there were people like you talking about these things back when I had my ileostomy surgery at 16. I've had some of the same issues as you and it's helpful knowing there are other people going through the same things and learning how other people deal with their situation. Keep doing what you're doing because I am certain your videos are helping tons of people.

[@paulabrown702]

Brave Beautiful Person, sending you healing vibes, much love Px

[@gateway8833]

You’re incredibly brave. I don’t have any gastrointestinal issues but I do have a Medical Background. You having a Nursing degree you know this level of amplification of Crones is not covered in Paramedic training. Your videos are so illuminating. thank you so much.

[@Jon-O.]

My wife had rectal cancer. We’re going on 3 years with a open wound that started out with fitting four fingers in up to my thumb past where my fingers meet my hand. Now I can only insert two fingers past first knuckle. We are rotating packing between gauze strip coated with triad cream and sliver infused gauze by itself. With out the silver infused gauze she wouldn’t have gotten that much closure. All the while being on chemo treatments which inhibits healing.

[@krystaldaniels7940]

My prayers are with you and your wife! What a wonderful husband to stand by your wife and truely help her through her undoubtedly difficult and painful journey!! 💖

[@g.salazar5173]

I also had an ileostomy 15 yrs ago d/t necrosis of the colon. I am also a RN but knew nothing about ostomies when I had surgery. They sent me home with no training and thank God for nurse friends. Went BACK in surgery had EVERYTHING removed and rectum shut several months later. Met a WONDERFUL ostomy nurse that chgd my life!

[@mompuff6857]

God bless you sweetie!! Thank you for sharing your condition to help others!! 🙌🏻🦋💜

[@yumihs2]

Love your honesty, we should treat health issues like this to remove stigma or fears. Thanks for sharing your experience!

[@ralphchrist2911]

My best friend has that, I recommend he watch this, he gets down at a time.

[@stephanienortmann4943]

Thank you so much for sharing this!!! I have had a 2 colostomies due to UC and chronic ischemic colitis. After 5 years we did try a reversal which ultimately failed and a year ago I had most of what I had left of my colon removed and a new colostomy placed. At that time my surgeon wanted to also give me a barbie butt because I did have diversion colitis with my first ostomy. I tried to find both positive and negative stories from others on their experiences to help me decide and I really found nothing that explained as good as what your video did. I did opt out of having my rectum being completely removed because all I could find was the negative nightmare stories that sounded way worse than any diversion colitis I may deal with. Today was the perfect day for me to find your video. I need another round of surgeries having to do with multiple hernias I now have from all the past surgeries weakening my abdomen and found out my ostomy is getting moved. Also the diversion colitis this time around is way worse, so lately I have been rethinking my decision and trying to decide if maybe I should just get the barbie butt. I can honestly say I am now doubting my decision less and not because I am scared because this was another nightmare story but because your description of what it has been for you tells me I maybe correct in my reasons for not getting it done. My diversion colitis is not pleasant and it is an everyday thing for me, but with my healing issues, the barbie butt healing could be worse for me. Like you my wounds always open up and I am also a type 1 diabetic so when they do it means going to a wound clinic twice a week and an in home nurse 3 times a week just to try and get them to heal. I know I can handle all of that for my abdominal wounds because I have many times over the last 30 years but I think I would rather deal with the colitis in what little of a rectum I have left than deal with months on months of drs and nurses trying to get a more difficult wound to heal. I also am prone to ending up with seromas so even a year after my last surgery I still have one wound that will heal for a while then burst back open because of seromas I developed after my last surgery. So I thank you again for telling your experience in a non scary way, it showed me not to doubt myself so much but also that there are questions about my healing issues that I need to pose to my drs before jumping into getting this done just because I have discomfort from diversion colitis.

[@SC-cb2pg]

Stephanie Nortmann God Bless You and I hope that whatever you choose will happen with no complications and heal perfectly. This is not an easy life for us and it’s never easy making choices of what’s best for us, pray on your decision and I think you will find what’s best for you. I’m sending Blessings and Love Your Way 🙏💜🙏

[@henryjacobine2202]

I have had the same operation with a ostomy bag. After my procedure a plastic surgeon did skin grafts to seal up my butt. I do not any leakages.

[@67CURTISluciene]

You are one of the bravest people I have EVER seen. I salute you. I wish you all the blessings and love and support the universe can offer. May you continue to inspire and instruct. Love you KIDDO

[@kb9drh]

Iodo form packing strips worked very well. I had to do it several times a day. This went on 3 or 4 weeks. There is nothing easy about getting to that area. It did work very well! God bless you. Hang in there. By the way I was a fire fighter paramedic.

[@katliese]

Wow. I love that you have put a beautiful face to talking points that,in the past, have been sort of icky. It really is just so clinical when broken down. And we all go through digestion. I hope more and more the stigma of these subjects can be normalized. Keep up your great work.