Haywood girls talk about challenges of growing the Saving Sadie Rae page as the disease progresses

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Sanfilippo Project

Sanfilippo Project

26 күн бұрын

The Saving Sadie Rae campaign has a lot of followers and has raised a lot of awareness about Sanfilippo Syndrome, a disease likened to childhood Alzheimer's. But how much do they want to grow the page going forward, now that Sadie has lost skills and the disease has progressed over the past couple years? Ashley and Jessica discuss.

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