Many of us with good health have no idea just how lucky we are
@esbliss3 жыл бұрын
For real!
@macstanley9253 жыл бұрын
soo true
@ajcrum36892 жыл бұрын
i so agree we take our health for granted for sure .
@sandraadams4940 Жыл бұрын
How blessed we are. Not luckey
@nadiakerris1863 Жыл бұрын
C'est vrai. Mais ce n'est pas ma faute.
@1teamski5 жыл бұрын
Meg passed away in 2015. May she rest in peace and my thoughts are with the family. What a devastating disease.
@phillipdennis89114 жыл бұрын
Team Ski Huey let me to telling you one thing before you know it. Huntington’s are biggest responsibility goes to spreading everywhere on this earth plus elso many kinds of diseases spreading too neither can cause people can’t stand even discomfort with it. I know how people feeling . Many kinds of diseases are unforgivable need to be destroyed for good then put em into hell be gone forever as will not coming back anymore for good. I know many kinds of diseases plus Huntington’s disease are so bitches.
@nolinfeller55914 жыл бұрын
@@phillipdennis8911 Your comment makes no sense.
@Millbrook1974powderedwater4 жыл бұрын
@S Freeman His brain must really hurt.
@starrystarrynight98224 жыл бұрын
For Throngdorr Mighty, Nolin Feller and S. Freeman: Do any of you actually know Philip Dennis? Considering that this is a video about Huntington's Disease it's just possible that he has Huntington's disease and was trying his best to express an opinion. Huntington's causes slurred speech (as though a person is intoxicated). Maybe this man was using speech to text as a result of his inability to use his fingers correctly to type a message which would certainly explain the basically incomprehensible message. Having watched five of my husband's 6 siblings die with Huntington's as well as my husband, I am unfortunately very familiar with Huntington's. If you are not sure what I'm saying is backed or that it's accurate, consider this from the Huntington's Disease News website: "As the disease progresses, frontal regions of the brain may be damaged. This may interfere with speech organization, causing patients to appear to speak incoherently. The ability to process thoughts also may be affected." I hope the three of you will remove your messages which have no redeeming value whatsoever.
@Millbrook1974powderedwater4 жыл бұрын
@@starrystarrynight9822 There is nothing disrespectful towards HD or HD patients in my comment.
@jeanettedegiulio82205 жыл бұрын
My high school sweetheart, my first and forever love was taken from me with Huntingtons Desease. I am forever shattered. Sending my love to the famlies going through this horrific nightmare. Bless all of you. 😢
@monkiram4 жыл бұрын
I'm so sorry for your loss. Please ignore that first guy who commented, I don't know why anybody would respond "lol" to a comment like this.
@Neo2266.3 жыл бұрын
Be glad you had a highschool girlfriend
@wakeuppeople73272 жыл бұрын
I’m currently seeing a woman who I found out has this terrible disease She’s 3-4 yrs into it. Has Corea the jerky movements. I knew something was wrong mom told me she had it about 3 weeks in. Which gave me total understanding of what’s going on. People who stay and love them. I’m choking up. Breaks my heart. ESPECIALLY when it’s a death sentence 10-15yrs I was told.
@kiari583434 жыл бұрын
My mother just passed away today, she has Huntington disease she was only 45, her mother lived to age 60 from it as well. I'm only 20 and my sister and I had taken care of her until she passed. I'm glad she isn't suffering anymore, she died from an infection from a bed sore. She had been sleeping alot, and died in her sleep. She was like our child, and we did our best to aid her and show her comfort and love she needed.
@HDYOFeed4 жыл бұрын
Hi Sin 13, we are so sorry for your loss. If you or your sister need someone to talk to please get in touch. Our team is here to help. info@hdyo.org
@lorenaa.garcia35393 жыл бұрын
Did u checked if u have the disease?
@wakeuppeople73272 жыл бұрын
I’m afraid to ask questions. My girl friend has this. And I don’t want to leave her. She’s 4 yrs into it? We are seeing a big change. Talking and her walk. I don’t care. I’ll be there
@jacquelinegeorge5410 Жыл бұрын
I'm so sorry for your loss it's a terrible disease.
@uroojhashmat8871 Жыл бұрын
Huntington
@marilynbarker82556 жыл бұрын
What an amazing father!
@jennymosca21787 жыл бұрын
I feel so badly about her constant movement..that has to be hard to deal with
@stacilucas42175 жыл бұрын
My brothers ex gf has it and the doctor said her moving like that, is like her running a marathon all day long.
@Albanez394 жыл бұрын
The physical side is nothing compared to the mental inabilities someone experiences because of Huntington's.
@gwenking77003 жыл бұрын
I don't know how they treat the chorea-form movements now but when I was working as an RN we used large doses of Haldol Decanote IM. One of the sides effects of this old school antipsychotic was muscle stiffness. It helped slow the involuntary movements. This poor woman is living in a nightmare. If I remember correctly there is a 50-50 chance of passing this genetic disorder on to your children. Bad way to go. You eventually die of sepsis from bed sores or aspiration pneumonia. I think this is the exact disease Michael J. Fox has. He certainly doesn't have Parkinson's. The movements are too gross for PD
@tarafallon76783 жыл бұрын
It’s exhausting and hard on the joints, muscles, etc. bruises, scratches, etc.
@iminavegetativestatestudio17303 жыл бұрын
@@gwenking7700 he definitely had PD. if he had huntingtons, he would have been dead by now. either that, or he would be at a point where he is just flailing all over the place and unable to function at all.
@lamaboy28783 жыл бұрын
Such a calm man. Lots of respect. Really wish you all well
@hannahstockford59363 жыл бұрын
I have been diagnosed with HD and I've gotta be honest I'm absolutley terrified even though I'm not symptomatic yet. I have a 2 year old daughter and watching this is like looking into the future. My mum has or and is currently symptomatic. Sorry. I hate this disease. I hate it. My heart breaks over and over again. For my mum, myself but especially my daughter and husband who will have to watch me deteriorate
@HDYOFeed3 жыл бұрын
If you want to talk just let us know. Matt@hdyo.org
@rustyspygoat40892 жыл бұрын
I am in the same situation. My mother has it. I have not been tested so I might have it. When I found out just over a year ago, I went through sever depression and anxiety. Body also started twitching and have not been able to sleep. I am convinced I have it too and so worried that I have passed it onto my 2 year old daughter as well..
@lavairanshackleford763 Жыл бұрын
My mom has HD have not been tested yet, I have two older bros on younger sis, I have 1 year old baby girl and a 9 year old son that has been recently diagnosed with leukemia, I’m scared to I could have it, Bc I don’t want to be a burden on my family. My mom has gotten really bad she is in a nursing home now at age 57 with a feeding tube, pray to god everyday she gets better and praying for a cure for everyone dealing with HD or any other disease!
@ellioshiem78925 жыл бұрын
Amazing dad and children.
@monkiram4 жыл бұрын
I'm sure mum's amazing too, we just weren't able to hear her speak much. I don't think it was an intentional omission.
@Zen-ow8xf3 жыл бұрын
In beginning i thought they are very thoughtful that they have someone for sign language so deaf people can understand. But then i understood the whole scene
@maidahaltrecht65773 жыл бұрын
Me too. I thought she was deaf and also had HD but then I also realized her movements were sadly because of HD.
@Tina-kw2yn3 жыл бұрын
It called correa HD. The involuntary movements
@coraldell30914 ай бұрын
It's a very rare illness and the problem is a lot of people really don't understand it.
@marielagalache12 жыл бұрын
Thank you Ellie, Flo, Meg and Ben, from another HD family in Argentina, best regards.
@nicoleh.76143 жыл бұрын
My father has HD, it’s really hard but it keeps me going seeing other people talk about it.
@missdaydreamss2 жыл бұрын
Get tested
@kingsleykarikari53127 жыл бұрын
Thank you so much for sharing. God bless you!
@pixie_the_rabbit68334 жыл бұрын
I am so sad for both Meg and her family. Thank God that Ben is a loving, supportive husband and father. Sometimes spouses just can't handle watching their loved ones deteriorate and die. They just leave. Premarital genetic testing and counseling isn't required and not acceptable to many people, but it is something that I would probably choose, if I it had been available. CF runs in my extended family and there was no genetic testing back then. I am thankful that none of my kids have CF. .
@kayleighbloomfield425 жыл бұрын
My mum and brother have HD and I’m of course at risk. This is so heartbreaking especially since her children are so young. My heart is breaking.
@serinesirene304 жыл бұрын
Please tell me how it's began with your brother i mean the first signs?
@elisaruy53723 жыл бұрын
Hope you’re okay!
@justflufflez75823 жыл бұрын
@@serinesirene30 my father has it. I'm terrified
@gracehaward53303 жыл бұрын
That's so sad to hear you are still suffering from this same disease. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same disease, He can also help cure yours permanently
@justflufflez75823 жыл бұрын
@@gracehaward5330 I really hope you're not just messing with these people.
@33stevelinda4 жыл бұрын
iv been living with HD in my family since 1987 when my nan passed with it i also lost my mum my brother and my uncle to it and as i write this comment my nephew is in the middle stages of it . its a horrendous condition to live with for the HD sufferer and its not much better for the family who dont have it as effects everyone close to them . i have been tested and i dont have it myself but i ensured i was test before i started my family because if i had been diagnosed with HD and there was a 50/50 chance of me passing it on id have never started a family.
@elisaruy53723 жыл бұрын
:(( sorry for your losses
@nancywalker-keay83613 жыл бұрын
That's so sad to hear you are still suffering from this same disease. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same disease, He can also help cure yours permanently
@nancywalker-keay83613 жыл бұрын
4 years ago I was diagnosed of HUNTINGTON DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including HUNTINGTON DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an HUNTINGTON DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from HUNTINGTON DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....
@FinbarFUT3 жыл бұрын
@@nancywalker-keay8361 you truly are a disgusting human being spreading fake rumours, you are truly horrible
@green80262 жыл бұрын
2 brave little girls, a brave mother and father. RIP Meg (based on Team Ski's comment)
@angelicalorenapulidoalvare21704 жыл бұрын
My heart is with this family. God bless them.
@mumr42684 жыл бұрын
Thank you for caring and sharing as a family!🙋♀️🙏💗
@jeweljellyjolly9 жыл бұрын
God bless the family
@theresalacey61262 жыл бұрын
I lost an aunt and a cousin to this horrible disease. Seeing Meg twitching was exactly like my poor aunt. She and my cousin both died young. A blessing and a curse at the same time.
@kenzie9200 Жыл бұрын
The first nursing home my sister worked in was one of few places where im from that would hold huntingtons patients and it is by far one of the saddest diseases anyone could have. My dad also had a very good friend that one day was a thriving women living a normal life and within a few years she went down hill and she died completely wheelchair bound and could no longer speak 😢
@chasistylegree17256 жыл бұрын
Awareness is key here! I salute mom and her awesome family! #teamsupport #findacure
@nickcassino25423 жыл бұрын
My father has HD it’s not something that is easy to deal with. He just came down with a stroke which increased his HD symptoms ten fold. It’s a rough disease that I hope can be cured one day! RIP Meg. As for the girls I know your mom is looking out for them in heaven
@PrincessKurae3 жыл бұрын
Have you been tested for the gene?
@nickcassino25423 жыл бұрын
@@PrincessKurae You know it’s crazy actually, awhile after I made this post my family told me he’s biologically not my father. They decided they wanted a sperm donor so I couldn’t inherit the disease. It’s beautiful and painful thing to know. Yes I’m grateful for now knowing my future kids won’t have it. But 19 years of thinking my dad was biologically my dad, was a painful bit of knowledge to chew. Getting better with therapy, but it’s not information I hand out to my friends, girl of interest, etc, it’s tough. Not only for the people with the disease but the direct family as well.
@PrincessKurae3 жыл бұрын
@@nickcassino2542 Sometimes bad news are good news.
@Bringon-dw8dx2 жыл бұрын
@@nickcassino2542 sounds like your father loved you so much he would sacrifice having blood children to make sure his children were safe and wouldn’t have to suffer. That’s true parental love
@camez23452 жыл бұрын
@@Bringon-dw8dx What a lovely comment.
@swatichauhan79123 жыл бұрын
Love to the family who is together love you sir and mam and to both your daughters.
@mercytingzou9494 жыл бұрын
May God look after this family
@MyCold18 ай бұрын
He hasn't done so far after allowing this illness
@mechellewinslow653 жыл бұрын
God bless your family.
@rubytuesdayfromlondontown9194 Жыл бұрын
What a horrifically cruel disease. It must be utterly exhausting.
@nikolettwinterrider22235 жыл бұрын
My father has the same disease... i know how it feels, poor kids... let`s hope they don`t get it in their genes...
@hogsworthhammer92116 жыл бұрын
Nearly six years on, we can only wonder what level of deterioration she has attained.
@ssimms89955 жыл бұрын
Hogsworth Hammer an earlier comment said she died in 2015
@finleygray4173 жыл бұрын
she passed away. :(
@3Blankie11 жыл бұрын
Thanks for sharing.
@jarkadolejsi33494 жыл бұрын
To musí být pro toho pacienta vážně strašný pocit!Když mu jeho vlastní tělo nutí dělat pohyby o které vůbec nestojí!Vůbec si nedovedu představit kdybych tím trpěla já!Je to opravdu moc a moc smutný!
@vaw7965 жыл бұрын
HD is a bastard and the deterioration of a loved on is hard to see. My mum has it, her sister was the first to be diagnosed and it was from their dad. I'm going to be tested and glad I never wanted kids so if I inherited it I won't pass it on. These girls are amazing dealing with hd from a young age. I hope they don't inherit such a terrible illness.
@phillipdennis89114 жыл бұрын
Vi Storm I agree with you expect seizures, Huntington’s disease, cancers, many kinds of diseases are biggest responsibility will need to be distroying then be gone forever. Yeah many kinds of diseases are unforgiving plus bitches and bastardized.
@richardhands9044 жыл бұрын
@@phillipdennis8911 You can get IVF to stop the disease in your children, just an FYI. Be strong though.
@Markzuckisacuck3 жыл бұрын
Did you get your results!? I hope you are doing well 😥💜🙏
@LectronCircuits2 жыл бұрын
Nine years on, how are the kids getting on? Per chance they were doomed as well. Audience wishes them all the best. Cheers!
@lostecho019 ай бұрын
I'm only 22 years old and I have the same symptoms as her
@sophiaduarte7452 ай бұрын
Prayers for Us all.❤️🌎🙏📖💕
@jorjaygonzalez6 жыл бұрын
Those little girls are so damn cute
@minniegibson8722 Жыл бұрын
Thank you.
@oceannaperry74243 жыл бұрын
my family has dealt with HD for years....it hit all my grandmothers kids all 4 of them and now their children might have this cruel disease...
@sonika8u2 жыл бұрын
God bless you. May you heal.
@catenystrom65063 жыл бұрын
I hope the girls are negative
@1houndgal2 жыл бұрын
Sadly, the odds are at least one ofbthe girls has it. 50% chance for each girl of getting it. It is a crap shoot
@regragi12 жыл бұрын
God bless your family
@user-ui8sp5th4g3 жыл бұрын
Terrible disease, cannot phantom seeing it let alone watching your mother die from it. Poor babies, what a strong man. Hope that the daughters don’t have it.
@debwoods38312 жыл бұрын
Not everyone with HD has the chorea movements as bad as this. My husband has HD and only had mild chorea years ago.. It’s a very sad disease.
@aarizaleenachannel93022 жыл бұрын
How is your Husband? Hope he is doing well
@debwoods38312 жыл бұрын
He’s actually progressing. He’s so weak and mostly sleeps because that’s what they do in this stage. Thank you for asking.
@flexohouse406111 жыл бұрын
may you recover soon GOD BLESS YOU
@starrystarrynight98227 жыл бұрын
Flexo House people don't recover from Huntington's disease unfortunately.
@brera24344 жыл бұрын
Huntington'sno is terminal. You have the gene, you will die from it. No cure, no real medications either.
@JosephKitchens994 жыл бұрын
@@brera2434 That's not exactly true. If I had HD, I guarantee I would not die from HD. I'm a coward. I would go out on my own terms long before I got to her shape. From what I understand, dying from a heroin overdose is the best way to go if you go out on your own terms. People who have ODed and are brought back from the brink of death have said it's just like being so tired that you drift off to sleep but you never wake up.
@shelbymcclure85724 жыл бұрын
My mother has this disease. My grandpa had it and so did my grandpa's brother and their mother. It runs in the family, so there's a chance me and my siblings could have it too. The people in my family never jerked or moved as harsh as this lovely woman was, but they couldn't stay still. My mom is the only one alive right now from it, my grandpa and his brother died from it and so did their mother. I'm a little bit jealous of how well off this woman looks compared to my mom. My mom can't hardly walk, her speech is so slow, slurred and hardly understandable and she lays around all day because she literally can't do anything. She is very depressed and always wants to kill herself. I mean, I know nothing about this woman outside of this video but she looks way more well off than my mom, grandpa and my grandpa's brother. I just wish my mom could be more like this woman health wise. I miss her and the way she use to be. This is a very devastating disease and it really takes a lot out of you to watch people suffer from it. I'm hoping I don't have it.
@BobJoe-rk8xc4 жыл бұрын
You are very very strong. I pray that you don’t have it. I’m genuinely wishing you and your family the best.
@justflufflez75823 жыл бұрын
@@BobJoe-rk8xc my father and grandmother have had it. I too am very scared of having the gene.. Its hard enough to watch
@nancywalker-keay83613 жыл бұрын
4 years ago I was diagnosed of HUNTINGTON DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including HUNTINGTON DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an HUNTINGTON DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from HUNTINGTON DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....
@fundacionveronicaruiza.c.9525 жыл бұрын
Thanks for share
@Garrotegarrote Жыл бұрын
A strong lady..😢
@user-le8oe7qv1t4 жыл бұрын
لاحول ولا قوة الا بالله اللهم شافي جميع المرضى 🤲😔
@JonathanHernandez-mm3nd Жыл бұрын
Rest In Peace Meg and may god be with all those with Huntington’s Disease.
@OMalley1203 Жыл бұрын
Restless legs make me want to die. I don’t understand how people deal with the constant movement.
@ademkymk28172 жыл бұрын
Thank for sport , thank you for nice man thank for a great person thank you for nice father thank you thank you l was so happy to see you nice people for sport do nice think god be with you
@scootergreen32 жыл бұрын
My cousin has it and some of my other cousins.
@marydobney60404 жыл бұрын
I am sorry for you and children about your wife/mother have this diseases. It must be hard ... I hope there a cure .
@ant37903 жыл бұрын
Unfortunatly there isnt one. There is something that slows it down but thats about it. But I know they are close to finding a cure and I really hope it gets here fast
@salvadorhirth16414 жыл бұрын
Thinking a bit further, since the conclusion in the article that I read was that the production of the STOP codon caused no disease when it was expected, it is then possible that actively enhancing the action of methyltransferase and the deamination of cytosine residues in CAG triplets to induce the formation of STOP codons, could then arrest protein synthesis; the article suggests that the disease happens when the polyglutamine protein is assembled; the good thing then, is that a drug acting at the level of translation, in the cytoplam, or even an increase in the expression of specific methyltransferase enzymes by means of peptide vectors, could control Huntington's disease. Time to learn more about polyglutamine proteins.
@dalesansom3780 Жыл бұрын
So very sad. It’s in my line from my fathers side. I’m 77 now so I’m over the typical age that it shows up. I’m grateful that I haven’t got it and grateful to find out it doesn’t skip a generation. May The Lord bless those that have it and their caregivers. Pray for a cure.🥲💝💕
@elapaszczynski4957 ай бұрын
Is there any surgery to stop shakes at least? Good bless the whole family !
@starlily33576 жыл бұрын
My Aunt died of HD and all of the children died. It is horrible to watch.
@albionhustler98366 жыл бұрын
Testing probably wasn't around when they were coming up.
@SarahEA16 жыл бұрын
And probably didnt know she had it till it was too late.
@samantha-pq9pl5 жыл бұрын
It’s terrible. My mom has it and I’m just watching her die, and just waiting to get tested
@dMinaj115 жыл бұрын
Samantha Coutu same here, I’m too scared to get tested
@mazharahmad33314 жыл бұрын
My aunt aunty and uncles are diad plzzzzz any one treatments do you have .we live in Pakistan and our hol family invalid in this diseases
@eileensteele24972 жыл бұрын
There is lots of hope out there
@EcargDeshawn3 жыл бұрын
there is no god and if there is he is incredibly cruel
@jarkadolejsi33494 жыл бұрын
No to musí být HROZNÝ pocit když člověk vůbec nemůže ovládat svoje tělo a dělá věci které by normálně vůbec nedělal!To je pak opravdu velice těžké né jen pro toho samotného pacienta ALE i pro jeho nebo její rodinu!Rozhodně těmto lidem není co závidět!
@dr.sammypryor5 жыл бұрын
I hope I can meet you two girls and help you out.
@rabiaakbar37545 жыл бұрын
How can u help?
@Saakkyybb3 жыл бұрын
HD is cruel, its a shock just what a problem in the CNS can do to a person. 😞
@DudeWhoLikesCock4 жыл бұрын
This is probably the worst disease ever, I would rather have cancer, i hope they find a cure
@plreuokjhg3 жыл бұрын
Brave man
@alisonwilloughby59263 жыл бұрын
Braver woman & little girls
@FinbarFUT3 жыл бұрын
@@alisonwilloughby5926 always gotta be a feminist and put the focus on women on a truly sad video
@Bringon-dw8dx2 жыл бұрын
Brave man? Was he supposed to just leave his wife and children?!
@camez23452 жыл бұрын
@@FinbarFUT I don't think it was about that. It's that the dad for sure is in the clear, but the mom has has the disease for sure and the girls are watching their mom have it and might have it themselves, so in this case, yes, the female people in this situation have more to be afraid about. Truthfully, though, no one has a better situation than another in this. They all have to be brave for different reasons. I mean -- yours was an uncalled for comment anyway, but also you're probably wrong.
@alpanapandey5842 жыл бұрын
Plz god have mercy on them
@desertbreeze693 жыл бұрын
The questions are rather repetitive.
@Yasemin_Sky6 жыл бұрын
What age do people generally get affected by this? Like is there a certain age where it really manifests ?
@clouisloverwife58006 жыл бұрын
J Sky I saw a guy walking twitching and shaking I thought he was on drugs now I think he has this
@the0thermother6 жыл бұрын
Average age of onset is 35 to 50. It is possible to get it in childhood (Juvenile Huntington's) or even in the later years, but that is less common.
@nyancatismyonlyfrand5 жыл бұрын
On average people start showing symptoms 30-50. Unfortunately, children have a 50% chance of getting HD if a parent has it. The more HD passes down a family line, the sooner symptoms will show
@kimbardgett66665 жыл бұрын
A neuro specialist says any age from two to ninety
@reddragon92394 жыл бұрын
30 probably to 40 my dad actually has it and two of my sisters have it as well I rather not know so I'm not gonna bother
@hulyakaya33794 жыл бұрын
Çok üzülüyorum tedavi si yok
@Sheila612Miller2 жыл бұрын
People that have this horrible thing or think they could are so selfish by having kids.
@bonnieyoung40376 жыл бұрын
September 2018 update?
@angelamartin28115 жыл бұрын
Bonnie Young she passed away in 2015 so sad
@salvadorhirth16414 жыл бұрын
Consider talking to doctors about the possibility of him or her, prescribing Decitabine. The rationelle is that the formation of STOP codons due to the inadvertent methylation of cytosines in CAG triplets, is the probable mechanism behind the disease, ( TAG is one of the three possible STOP codons; and they could be formed after the inadvertent methylation of cytosines, followed by spontaneous deamination of that same nitrogenous base ) thus, inhibitors of the enzyme methyltransferase, like Decitabine, may retard and hopefully even halt the progression of Huntington's disease.
@salvadorhirth16414 жыл бұрын
I'm still reading tenaciously about HD. I read about one hour ago the beginning of another article about HD and a stop codon was detected during an experiment but then surprisingly for me, the disease didn't progress, so my theory must be wrong! It's in the 15th line under the title Huntington's Disease: Evidence of a Proteopathy, the text says: "...However, an unplanned stop codon caused the HTT transcript to produce no protein. The animal showed no evidence of a disease-related phenotype, suggesting that a CAG expansion at the DNA or mRNA level was insufficient to produce neurodegeneration." Here it is the full article: @t
@zahraa9644 жыл бұрын
Can you please post the link to the article?
@salvadorhirth16414 жыл бұрын
@@zahraa964 Here it is: www.ncbi.nlm.nih.gov/pmc/articles/PMC3098678/
@salvadorhirth16414 жыл бұрын
@@zahraa964 I also sent an E-mail for one of the authors of another article, asking for opinion about my theory that the cause should be the inadvertent formation of a STOP codon somewhere amid the CGA triplet repeats. Here is the article: www.ncbi.nlm.nih.gov/pmc/articles/PMC4981892/
@salvadorhirth16414 жыл бұрын
@@zahraa964 If you want to study the genetic code table and compare the codons, here you are: www.researchgate.net/figure/DNA-genetic-code-ATG-Start-code_fig1_263153905 , you will see that one of the three possible stop codons, TAG, is directly above CAG; if one considers that the transformation of Cytosine into Thymine is an already studied fact, then it seems to me that this should explain how truncated, abnormal proteins are produced: an inadvertent " order " to stop the synthesis of Huntingtin protein. I am not sure yet; this is what I could think of after trying to understand it. I know that the existing drugs ( DNA methyltransferase (DNMT) inhibitors azacytidine and decitabine) cause side effects, but it could give Huntington's disease patients a chance to hopefully delay the onset.
@niseyedwards26507 жыл бұрын
There has got to be some kind of medicine to suppress all that movement. I am sick of the medical community that does nothing for these poor people.
@jennymosca21787 жыл бұрын
Nisey Edwards I swear my comment was about her constant movement..your right..who cares about addiction to drugs at this point..muscle relaxers..valium..something to calm that affect..I would be in so much distress over that movement..few people said anything about that..glad u recognized not just the disease..but her poor body in constant motion
@sthefanymonestime75236 жыл бұрын
Nisey Edwards they're trying
@hogsworthhammer92116 жыл бұрын
Merely mitigating symptoms won't stop brain from becoming basically shot to Hell.
@HungGarEarthBender5 жыл бұрын
@edwardschlosser1 So are you saying that cannabis Oil is preventing the neurons in the striatum from degenerating? Is it acting locally on the caudate nucleus or are you thinking that the oil is having an effect on chromosome 4?
@jengildz91045 жыл бұрын
Agree, agree. She most be tired
@mrmoogals31706 ай бұрын
Why do they' have children knowing its generational. Also do the girls have it .
@Usercantwelve10 ай бұрын
Be Blessed Be grateful you're kids are healthy. I've seen the worst birth defects possible. Along with devasting burns. Hard to unsee but it was my choice to be there. I wore tight uniforms the Vetrans loved it 😉
@chadwick2832 жыл бұрын
🙏🙏🙏
@jennymosca21787 жыл бұрын
Britain seems affected more them U.S..interesting..no matter what..its so sad..
@bellatorresbruh79006 жыл бұрын
Jenny Mosca people of European descent are 70-100 times more likely to carry the gene than anybody else
@samantha-pq9pl5 жыл бұрын
Runs in my family, my mom has it. And like BellaTorresBruh said we come from distant European descent
@brera24344 жыл бұрын
@@bellatorresbruh7900 source?
@rdgloveshouse4 жыл бұрын
Well Britain is a small island so gene pool is smaller possibly
@tiffanytomblingson83342 жыл бұрын
I am suffering from this horrible disease my father and my uncle and my grandfather died from it
@TheMarkmcr2 жыл бұрын
What is your experience?
@janemike34902 жыл бұрын
I recommend Dr Oje Abacha on his KZbin channel for getting rid of my Huntington disease.
@robertovaleri11753 жыл бұрын
❤
@user-bx6xl1pu8m2 жыл бұрын
مرض ابوي الله يشافيه💔
@hudamohammed892 Жыл бұрын
لازم تفحص عن المرض
@genzo3872 жыл бұрын
Is she using song language? Or it's part of the disease?
@TheMarkmcr2 жыл бұрын
She was in the late stages of the disease
@Hvghyg62 жыл бұрын
Dose The kids got a genetic test??
@kayas1fangirl837 Жыл бұрын
When they are adults, they can.
@quagmire44694 жыл бұрын
Walters family 😳Breaking Bad
@JosephKitchens994 жыл бұрын
Walter White said in Breaking Bad that his mother died from HD.
@tarafallon76783 жыл бұрын
Walter White’s son had Cerebral Palsy.
@RoSa-ou8ww3 жыл бұрын
😢😢😢😢😢
@julianojek25213 жыл бұрын
Jesteś piękna kobieta i zdolna myślę że pomogą Ci lekarze pa kochana miłego dnia życzę. 😘
@charlottestallion75132 жыл бұрын
#Drisibor Alternative Herbs
@oceannaperry74243 жыл бұрын
we all have a 50% chance
@janemike34902 жыл бұрын
#drojeabacha best herbs 🌿
@omega360013 жыл бұрын
WWJD?
@XrandommonX4 жыл бұрын
What a great father helping to spread these genes and giving these girls the same horrible fate.
@brera24344 жыл бұрын
If you had listened, you would know that they didn't know that the mother's father had Huntington'sno when he passed and they already had the children when the mum was diagnosed.
@stewartbeddoe86174 жыл бұрын
Meg's father passed away from cancer and probably hadn't been diagnosed with Huntington's before his death.
@jazzip4 жыл бұрын
I wonder if this is the result of inbreeding decades ago due to smaller gene pools.
@manxie18973 жыл бұрын
It's due to a genetic mutation
@Paige-Turnner3 жыл бұрын
So heartbreaking. That must be exhausting. Is sleep even possible?
@FinbarFUT3 жыл бұрын
Obvisouly? Otherwise they would all be dead ?
@Paige-Turnner3 жыл бұрын
@@FinbarFUT it's an honest question coming from someone who doesn't experience it who wants to understand. It can't be a very restful sleep I would suppose.
@ant37903 жыл бұрын
My mother had this and she would sleep half of the day, but I dont know alot because she put me in a foster family when I was born
@begood47863 жыл бұрын
@@FinbarFUT Why answer so rude?
@aishwaryasudan12903 жыл бұрын
Yes. All the symptoms decrease relatively during sleep. But the drugs that are taken for it may reduce the quality of sleep . But sleep is often an escape. I hope we find a cure.
@jennifervan752 жыл бұрын
Selfish "parents" If you know you have a horrible disability that's genetic you don't have biological children, that's just common sense. They could've adopted.
@neptune37352 жыл бұрын
I always told myself to adopt since my dad has HD. Never want to put someone else in this situation it’s heartbreaking
@jennifervan752 жыл бұрын
@@neptune3735 Good on you man. I bet you're gonna be a great father/mother for your future adopted child/children.\ ^3^/
@rdgloveshouse Жыл бұрын
They didn't know...
@jennifervan75 Жыл бұрын
@@rdgloveshouse they have more than 1
@kayas1fangirl837 Жыл бұрын
@jennifervan75 While I agree that people with HD should not have children (biological or adopted), this couple did not know she had it (or even what it was) until years AFTER they had their children. Please watch the full video before making snide comments about a woman who was suffering (and eventually passed away). Her children may read the comments of this video one day.
@benjamindykerman65764 жыл бұрын
Who was your family hunting dude lol
@gunterliam74112 жыл бұрын
All thanks to dr Stanley who cured me from my Huntington’s disease I am forever grateful
@rdgloveshouse Жыл бұрын
Wtf
@samirayavuz6426 Жыл бұрын
how realyy ?
@Tracy-rf7ri6 ай бұрын
Stop lying
@heidimurphy44633 жыл бұрын
Fear mongers
@RemyRAD Жыл бұрын
Even the audio in this video had Huntington's disease. As it had uncontrolled, voluminous excursions. And about blew me off my chair. Thank you for those uncontrolled volume excursions. I know you couldn't help it. You didn't know what software was? And is a method of fixing the sound after it was recorded badly. As demonstrated here. Recorded badly. And nobody knowledgeable enough to fix it. Bully bully, there you go! Now you know how to fix it after the fact. Using free software! That you did not bother to use. As is evident, here. Or, as in evident, hear. In fact both ways. Isn't that amazing? That's English for you! Now you understand both English's. Because English is as English does. And both of those. We can have an intellectual standoff here. But I'd rather take the bus. To, Cucamonga! RemyRAD