HE GOT ADMITTED TO THE HOSPITAL

[@JD-qn5le]

Just keep advocating for him. Trust your mom instinct. I hope he gets the help he needs. Best of luck to both of you. 💗

[@fevertree1957]

Positive step - you got Griffin admitted. Positive step - you pushed up the swallow test. Positive step - they're running tests. Your doing it Emily...keep on doing it, kind but firm - push on through - you are your childs BEST voice. Love from Scotland x

[@gina8546]

As a social worker, I can tell you that if you weren't bringing him as often as you are, and you brought him in dehydrated and perhaps malnourished, they would more than likely open a case. You are doing the right thing.

[@KiwiInOz01]

Emily'ss doing so well raising 6 children. Such a hard job I had 6 too and know how exhausted I was juggling daily life then the hospital visits which is stressful. Such a good mom Emily xoxo

[@kathistarns5361]

I'm with you!!

[@reneegoodin1317]

Yes Gina,I agree 100%!! That way she can never be labeled a BAD MOM or accused of Child Abuse etc.....

[@tinydancer7426]

@@reneegoodin1317 Yes, yes, yes. Document, document, document. Anytime, every time Griffin is seen by a doctor, document it ..... insist of being provided with a copy of the doctor's original, unedited notes and transcribed notes of the diagnosis, treatment plan recommendation, prescribed meds, and if the Rx's for those meds are sent to a pharmacy electronically, ask for a paper copy for your records ...... keep everything organized in a binder and make sure that binder goes with Griffin to the next appointment, particularly if it is at a hospital ...... it will provide a medical history for the next provider as well as covering yourself should some zealous physician or nurse decide you are not doing something that THEY think you should be doing and decide to call in CPS.

[@tazzi2003]

Him smiling in the background at the beginning melted my heart❤❤ 🙏🏽🙏🏽 for you all

[@amymoore6805]

My sons tonsils weren't touching but he would choke. When they were removed he was fine and never choked again.

[@lorettatheibert1663]

if they were touching he could not breathe and would be in such worse shape...

[@blackrose1991210]

we were on state insurance when I was little it took 10 tonsillitis's and 6 strep throat in a 9 month period before they would remove my tonsils they were so big they were a millimeter from touching the surgeon said they were obstructing my air way when I would eat my oxygen level would drop to 94 you got to get mean before they will do anything prayers for you and Will and Griffen

[@shelley6746]

Praying for Griffin & his mommy and daddy during this ordeal, prayers for healing & patience🙏🏻❤️

[@HopeAndSunshine]

We've had to deal with different issues, but we've totally been where you are. We've spent so many days in the hospital not knowing what our daughter's medical issues were, but basically refusing to leave until we had a better plan. Keep sticking to your guns! Praying for you! 🙏

[@robinbackus8313]

Go mom! You got this! MANY HUGS AND PRAYERS..

[@kyliewatson1150]

Big healing vibes and hugs to you all, I can’t imagine mumma xxx

[@desteni1992]

Go to a different children's hospital girl!! Your an amazing mom and I know your putting all your time and energy into fighting for your son, but if you were told before that his tonsils were too big, I would go to a different children's hospital and get another opinion

[@skehn66]

I agree get another opinion go somewhere else

[@kathrynaraguz4816]

I agree but I dont agree. she needs to stay with this one and FORCE the doctors to do the right thing for him.. she did the right thing by filing a report, the CEO of the chain of hospitals will come to meetings at the hospital and will see those sorts of things.. if drs get enough ''reports'' on them they get fired..

[@samanthaelizabeth2298]

Yes i agree

[@yvonnejohnson2109]

You just keep pushing. You know your son the best. Sorry the doctors are treating you that way. Remember no matter what they say you are strong, don't give up. If you need to get mad.

[@jodysmith8048]

Get a special needs lawyer an sue the hell out of the hospital because if you don't the hospital is just going to keep messing you around untill your having to plan a funeral but get a special needs lawyer an fight to have his tonsils removed because a mothers instinct is always 95% of the time right

[@firewaterbydesign]

Sending much love, light, prayers, and an abundance of beautiful healing blessings. 🙏🙏🙏🙏

[@nasob6997]

I so so hope the people in hospital start taking you more seriously and Mr. Griffin feels better soon! Sending positive vibes!!

[@pamhumler3903]

Praying for Griffin and you and Will. This is so hard but you have to keep advocating for him. Something is definitely wrong. Prayers for the doctors to realize what is wrong.

[@reneeallen3906]

Momma instincts are real!!! You are doing a great job!! Keep advocating for him!! I love your sweet family! Praying for Griffin❤️❤️

[@debbielopez6593]

You are an amazing mother,continue to follow your instincts. Yes at least you got him admitted first step. Will continue to pray .

[@Swirlofcolours]

My daughter has a genetic syndrome and she just had her tonsils & adenoids removed they weren’t touching! Keep pushing mumma.. Actually I did tell them about some sleep apnea she was sometimes having so maybe that’s why they agreed without much trouble..

[@tammysimpson3076]

Keep doing what your doing your a great mom. And your taking good care of your baby. Wish you the best for. Griffin. Prayers from LaSalle. Michigan

[@maureenlarsen2399]

You are doing such an amazing job with him . I will say prayers he gets the right doctor who listens to you .

[@blessthisemptynest]

Stay strong mama. YOU are wonderful Emily x

[@NewfieWendy]

Praying for you all. Keep up the amazing work you are a great mom

[@pattipaddle6124]

Aww... Griffin is so lucky you’re his mom! Praying they figure this out really quickly! Many huge to you mom! Praying for you all!

[@deborahkonen9788]

Oh my gosh how frustrating for you. Keep fighting for him. Prayers going up for you all and that God sends a person into your life that knows what to do for him.

[@christinaann1864]

Im really praying they figure out whats wrong with Griffin so, they can fix the problem. Youre a great mom Emily. ❤❤

[@brendabaum6442]

You are a wonderful mommy! You are doing the best for your child. Thank the Lord that he has such a sweet personality!

[@kristatrump9138]

I am so so sorry to hear you are going thru this! I can’t believe the doctors aren’t helping way more!!! 😱😱😭😭😡😡 Praying for poor Griffin! And for you and will and whole family!

[@theblackschaos]

I hope you got answers and needed help! Sending so much love and prayers!

[@kathyerb3134]

You are your sons voice so keep advocating for him. You are a wonderful mom

[@jenmorse7761]

You’re a great mom and doing what you need to do for him. Unfortunately it does take some time to get to the bottom of stuff like this and it is appropriate to look at everything cuz you don’t want to miss something. Hang in there and don’t doubt yourself! xo

[@amsnp20]

Some doctors just don’t care. I had something similar happen with my kid, but it wasn’t his tonsils. The medication he was taking was making him not want to eat or drink and though he wasn’t loosing a lot of weight, he was very tired and cranky all the time. It took a lot of fighting on my behalf to have the doctors finally realize that it was in fact the medication and not a behavioral thing like they kept telling me. Keep asking for answers, get second opinions, ask questions until something is done.

[@gina8546]

BIG HUGS MOM. YOU ARE AMAZING

[@dayshasquad7153]

hope he gets better soon i I'll be keeping your beautiful family in my prayers 🙏 ❤

[@RainyRoth]

Ask to speak to the patient services manager. You’re the mom. Trust your gut. You know your child better than any doctor. Prayers!

[@AlwaysGrandmaKelley]

AMEN GREAT ADVICE!!

[@kathrynaraguz4816]

I've been having the same issue for myself. I'm a disabled adult and I've had so many Drs tell me ''it's all in your head'' oh really??? you're not me, how would YOU know what I'm feeling or not feeling?? I've also gotten very rude towards some doctors. I've even been labeled a drug seeker I went to the Drs face and said '' you know its illegal to falsify medical records right?!!''

[@crohniequeenab]

@@kathrynaraguz4816 keep advocating for your self and see other specialists. In my Crohn’s community we get labeled too when we sea with chronic pain and invisible illness and look ok. But we are really sick. Don’t let them tell you how you’re feeling. Only You know your body. Keep pushing

[@amyseaden9069]

I had Botox injections multiple times into my neck and once it got into my swallowing muscles. Sometimes Botox migrates further than it’s supposed to. If it’s Botox it shouldn’t be getting worse though and should resolve within a few weeks.

[@brendastevens5714]

angelman advocate from the clinic...call them. the insurance companies control the drs, hospitals and it's not about the patient anymore. bless your family!

[@simplydanlrene4276]

So glad to see you say that about the insurance....they require certain steps be taken before they will do the big procedure. I am sure that is why it is taking so long.

[@Kittkat1980]

Praying for you all and I had to wait a year to get my gallbladder removed and it took going to the ER every week sick to get help.

[@rowdygirl100]

my grandson 5 had his first case of tonsilitis and was hospitalised couldn't eat or drink....he is having them out in the next few months as well as his androids.. he also has add and is an active little boy.....hope Griffin gets the help he needs quickly !!

[@marymahns5963]

Prayers for all of you, don't let stupid comments bring you down. You know him better than anyone.

[@Erin-fg9ch]

Emily!!! You are a wonderful mother. Hope will is liking his new routes. Wish I could post my phone number. I have been watching you and your green carpet for years. Haha Hope rest of the babes are doing well. Posey stole my heart! Lol she is growing up way to fast.

[@ipickedjake]

mom life. we need to keep fighting for our kids. hugs and prayers!

[@michelelong3205]

I'm glad they admitted him. Thankfully you've been able to get liquids and baby food in him, but something has to give. Praying they'll look at this situation with a new perspective and give Griffin the help he needs. Stay strong, Emily! Hugs from West Texas!

[@j.licata4392]

Praying for you and the family and poor Griffin. Hope they finally do what needs to be done. Your an amazing mom. ❤🙏. I am new on your channel

[@elizabethhanson9420]

Keep pushing Emily! You are doing the right thing!

[@marieroark3902]

I know you moved mountains to move from NY to Colorado to get better services, but I wish so much you lived out here in Northern California. The hospitals here are very responsive and I can’t imagine you not being heard. Keep fighting Emily and Will should put his two cents in too, because the sad thing is that sometimes a mother’s instinct gets looked at as over reacting, which completely sucks. Sending blessings 💜💚💜

[@imjuliewaters]

Buy him some Pediasure! Talk to his pediatrician about it first, but it should be enough to keep him full and healthy until he can start eating solid food again (especially if they put off the swallow test). He doesn't need to have solid food to have a good quality of life. I have an ex who had a 2-year-old son (at the time, the "kid" is in his 20s now) that had a feeding tube and he only had Pediasure for his meals. I don't think this is happening with Griffin, but my ex's son had a hernia in his esophagus and it was causing him to throw up whenever he ate by mouth, so they put in a feeding tube (directly into his stomach). I'm also surprised you had to bring your own food for him when a children's hospital should definitely have Pediasure on hand.

[@bjandmercy]

That's frustrating. I'm praying you guys find a solution for him soon!

[@shannongalloway9500]

Keep fighting and trust your gut! If it’s not the tonsils then tell them you are NOT leaving till you find some answers there is SOMETHING going on

[@lesliecharette4538]

Dysphagia is fairly common in kids who have disabilities, it's not related to the tonsils. Many of these kids end up with feeding tubes if it can't be helped. I hope they investigate further, it sounds like this is why they're reluctant to blame it on the tonsils.

[@deblavan4190]

Keep fighting for him mon! You are right I think about his tonsils! Why not take them out they are not really needed! You and Griffin and your family are in my prayers!

[@coolestgrammyintown5598]

My heart hurts for you! I so understand your frustration! Medicine is such a process of elimination. I pray that they figure this out soon for all of you!!💞

[@joeyp7431]

PLEASE ALWAYS trust your mothers instinct. My middle kid would have been dead if I hadn't trusted mine. I was told so many times he was ok even though he had failure to thrive , his kidneys totally failed at 10 months old!! I knew something was wrong!!

[@teresacunningham61]

Prayers are with Griffin: 🙏🙏🙏

[@freesen2367]

If this is ongoing he should have a scope and biopsies of his esophagus done. He could have EoE or something else with his esophagus.

[@bronwynnorris6278]

Good wishes little man l hope you feel better soon love from NZ

[@emaravilla3773]

COME TO MEXICOOO!!!!! 🇲🇽 I’m pretty sure doctors here will be able to do something about it without bringing up so much crap. My husband got his removed at 10 and hasn’t had any problems since.

[@Makingofabetterlife]

Sending Prayers 🙏🙏

[@ejdoug8328]

Emily, I feel for you! I went through the same thing and like I commented in your last vlog my daughter was 17 before they took hers out. When she recovered she said mom I never felt so good. My food doesn't feel like it's getting stuck anymore and I don't have to chew it until it's mush. I live in Syracuse, NY and my friend was her pediatrician and she also felt like they needed to come out years before they did but still no one would take them out.

[@emmarodriguez5300]

Emily you are doing the right thing. Keep on being his advocate. Sometimes it takes you have to continue to fight for what you think is right. I know that its hard but both you and Will have the strength to fight for your baby boy Griffin. I'm going to be praying that everything goes your way. That the doctors will see what he's going through and what your going through as a mother. We love you and your family. Prayers work Emily 🙏 ❤

[@sashawhite7491]

Keep strong for him

[@Gotchapic]

Hello! I have written a comment when I first subscribed to your channel. It never occurred to me that When I was talking about ALex (my grandson) that he also cannot swallow well. We noticed when he was four yrs. old. He was diagnosed with Angelman Syndrome. He cannot chew hard food. He is almost 34 yrs. old and we cut up all food that is not soft enough to swallow. We cook his vegetables and there are foods he cannot eat at all. We notice an effort to chew but no success. Even bread has to be broken up. Be patient with the medical persons, they have to justify a surgery. Putting Griffey ‘under’ for tonsil removal is a risk in itself. Soft foods may be the answer. Your emotions are understandable..Hope all goes well!

[@philt3662]

Hope Griffin is doing well, have a great happy day

[@keenacummings2017]

Hi this might be strange thing to say why don’t a dr or a nurse feed him regular food and see what happens.. they need to do something sending prayer and hope they help you out poor Griffin sending love and hugs 🤗 ❤️💙💕

[@alexusturner2039]

Sending you huge hugs and prayers Emily

[@sarahkay7689]

Hope you get some answers soon, sending love, hugs and prayers to you and your family 💕💕🤗🤗🙏🙏

[@OneAndOnlyJeishaa]

Don’t let them rule that out as a child I always had really big tonsils and would also choke while eating, at 16 I got them removed and it stopped all the choking I was experiencing. If u believe the issue is his tonsils continue to fight so they can have them removed. Maybe try a different hospital.

[@gina8546]

GET MEAN!!! CALL IN A PATIENT ADVOCATE. YOU ARE HIS VOICE. DON'T LET THEM INTIMIDATE YOU

[@kathistarns5361]

She's already done everything your saying

[@kathistarns5361]

She also filed a complaint

[@gina8546]

@@kathistarns5361 That's great

[@nicholasprofeta1179]

Just so you know your son is in my prayers and so are you 🙏🏽🙏🏽👍🏿😊

[@abcdef-ze9hs]

Can you put the actual date the footage is from?

[@angelawalker2167]

Prayers! 🙏🏼

[@kathistarns5361]

Time to call a news station and get it shown nationally and maybe a Dr will reach out???

[@reneegoodin1317]

Kathy I made that comment on one of her other Vlogs....so thank you for being that point up and I was not the only one suggesting that! :)

[@jodysmith8048]

Time to call a special needs lawyer

[@tarawatkins94]

I had mine done and it takes up to two weeks

[@gointothedogs2]

Just want to mention that each time you do a botox injection...its a new procedure. If they get it off and it effects numbing the throats ability to work with swallowing...that will be a whole other story. Swollen tonsils and the throwing up and gagging and his afraid to eat should all be addressed too. Do you have an angelmans dr? They should be who handles his case. Er and general hospital dont know him or you. You have to get very specific and explain exactly how long youve been working on this and that swallow study should help to know if its from botox or a reation and adversion to eating and choking from swollen tonsils. They need to understand your 24/7 with him you and husband missing work and have 5 other children that have to be attended to and Griffin with this choking constantly is the only thing you can focus on and would not be reaching out and stopping the caring for the whole family if it was insugnificant. Ask direct questions. They wont be able to give you an answer to and get their gears working. Find out if angelman association can help you. Is their a support group. You need to talk to your flock. Mommas who have experience especially with botox and large tonsils and swallowing choking issues. I know its overwhelming but while grigfin rest do some research or get someone to do it for you! Its gonna be ok but it is so sad and agravating what lengths you got to go to for every possible thing! Deep breath! Find an angel group and talk to a director!

[@Abby-w-m987]

Good mom ever for your kids❤❤❤❤❤❤❤❤❤

[@alwaysaa5063]

Emily please get a second opinion. And do you think maybe the nurses and doctors think it's not as bad as you say it is because of the way Griffin always seems happy no matter how rough he feels. Isn't there any other hospital for children around y'all within a hour or so from your home? I don't know I feel like I'm getting so frustrated with this hospital and I'm not even there. I'm praying y'all get all the help that little boy needs.

[@sandravliers3364]

For me this is a strange and heartbreaking story. Here in Belgium they just take them out. It's a standard procedure. I hope he gets the needed help fast.

[@crystalwahpoosywan]

Praying for him keep in my prayers i too had surgery i cant see blind lasic eye laser surgery in home recovery alot of surgerys

[@kylielawter5906]

I hope she feel better soon I am praying for all

[@rosiec1974]

He needs his Tonsils and more than likely his Adenoids removed! My daughters Tonsils were that big, I had to explain she STOPPED BREATHING when sleeping. Apnea episodes are not a joke.. neither is choking! Oh Emily I feel so much for you guys right now. In Australia they would have had his Tonsils out !

[@randomkbear]

I'm keeping you guys in my prayers

[@louiseleonard1992]

Praying for your sweet boy please get help xxxxx

[@samanthajackson9236]

Hi from New Zealand, what happens if he gets sick ? Given the change in the seasons and the fact his siblings go to school his chances of catching something are increased especially with his little body not being in full capacity (Eating/drinking). If he develops some sort of infection in his throat it could be catastrophic. Not trying to instill fear but surely it's a valid arguing point with the Doctors. Griffins safety must come first!

[@reneegoodin1317]

Amen!!

[@abbigailbaum6948]

Prayers for you and Griffin. I can’t iMovie how scared and upset you are and I pray and hope someone listens to you and actually hears you because this is absolutely ridiculous. It’s like how much swollen does my child’s tonsils need to get ? Like he’s probably scared to eat that’s why he’s decreased in eating like every time he eats what he loves he’s choking . Like what else could it be? It’s like yeah his body is still allowing him to do the bare minimum in breathing and getting some food in bud it’s like your tonsils should never be that bug and the fact that it’s not a cause for concern until they are touching is absurd! Like I can’t imagine how not only scary this is for you but also exhausting and frustrating because your gut is telling you that something absolutely just isn’t right with your son and I just wish people would take mamas seriously when they say that because that’s your child the very child you carried in your body you know everything about your kid so when your gut is telling you something isn’t right snd it needs to be fixed it should be taken seriously. Plus I mean seriously now if “something scratched his throat “ it would be healed by now but that still doesn’t explain his tonsils being so large like they maybe would’ve have gotten a little irritated if something scratched them but they wouldn’t have gotten so large I’m not a doctor but logically that doesn’t even make sense it just like no. But prayers it’s figured out so Griffin and your family can get back to your lives and that scare and worry and frustration is lifted.

[@jennifermohrhaus2913]

Possibly go to a top notch snoring center? They shrink tonsils.

[@jessicaletts316]

i hope things get better for you and for Griffin Do you have a better childrens hospital ?

[@mariacasella979]

Huge Hugs to Griffen,Your an amazing Momma ❤️🙏also,my deepest condolences to Boulder City,The fallen Officer,his family,victims,families,community 🙏💔🦋🕊

[@reneegoodin1317]

Very very sad to hear!!

[@phyllismontoroula6454]

I hope your son be just fine I think you a wonderful mom You love your son I can tell I just found you just now

[@gracefender6188]

Your Colleen Ballinger merch is cute

[@bethanymatthias6944]

I really hope they find out what is causing this! X

[@Meemagolding]

Good job Emily ❤️‼️ The dark circles under his eyes 💔‼️ BEST MOM EVER ❤️‼️

[@jennrussell6704]

They need to take all the steps in a protocol order to rule things out they won’t just jump to surgery in case that isn’t the problem and could potentially cause more problems going under anesthesia is not also good and he has other issues that makes it even harder I am RN he is admitted now that is the first good step they will get to the bottom of this I know you feel as if it is the tonsils and it might be but they have to rule out less invasive things first you got this momma stay strong

[@lindao7887]

@Jenn Russell: They've had all the time in the world to rule out EVERYTHING!!! He's been in the hospital - what three times already for this!

[@AlwaysGrandmaKelley]

I don't believe your comment is going to help anything! She doesn't need to be told its because of her emotions and she needs to just take a breath!! How mean and absolutely mean and cruel you are being!! Hope this never happens to your family member! I'll choose to pray for Griffin and also YOU!!! Emily much love and prayers and I agree with your opinion that the tonsils need to be removed!!

[@lindao7887]

@Lorie Briggs Nothing personal but you watch your child choke, gasping for air and have someone tell you that you need to control your emotions and chill.

[@Joy-zf6cs]

@Lorie Briggs I agree that Emily is too fixated on the need to remove the tonsils. She is not at all medical and even though you know your own child, you need to let the drs do what they need to do, which can be frustrating and exhausting, but the dr bashing is getting ridiculous.

[@lindao7887]

@@Joy-zf6csand Lorie: Then somebody needs to sit down and explain why they won't/can't take them out, so far nobody has explained this to her sufficiently or she would understand - she's a very intelligent young lady. And when you say "let the doctors do what they need to do" what exactly is that - they are doing nothing to solve the initial issue - they are just nourishing him - thank God for that at least.

[@TexasbyStorm]

You know maybe people's tonsils do move back when they gulp. However, most people do not also have the botox treatment combined with enlarged tonsils. If they could remove the tonsils and it allows him to keep having the botox treatment that helps him so much then it sounds like a good combination to him. It is very hard to find doctors who will go to bat for a patient these days. Once you have one hold on to that doctor like they are solid gold, because they are worth even more. If you end up getting no headway during this stay, then maybe go to a different network and see if someone there is willing to help. I'm so sorry for you and Griffin. This is awful. I pray the swallow test reveals the issue and they do what's necessary to resolve it.

[@gina8546]

CALL IN DISABILITY SERVICES

[@jenniferwood7660]

If I was there I would help him. I hope he is ok

[@sabrinahaake8195]

This is horrible! Tonsillectomy are such a routine procedure. I don't understand why they need a swollow study to take them out. Inflamed and swollen Tonsils in a child that struggles to eat. Get his tonsils out!

[@freddybarneburg6056]

I hesitate to comment but I must in fairness to you. You should have a serious talk with the doctor about the role play. I had my tonsils out when I was about 12, I'm now 82. I had my appendix out when I was four. They used to take them out almost indiscriminately. However they have discovered they have an important role later in life. I don't know what that is exactly. I know you're concerned and I appreciate that. You have to advocate for your children, as only a mother can. You're an angel in disguise. I hate to see you so upset because your health matters too. You are wonderful mom. My heart goes out to you. I'm praying that everything will be all right. I wish you the very best. I love you very much! ☘️☘️💕💕🙏🙏🙏🙏

[@foofookachoo1136]

What do u mean when u mentioned “roll play” ?? I’m just not understanding??!!

[@freddybarneburg6056]

@@foofookachoo1136 o meant what role the tonsils play on overall health. They have a purpose. I don't know exactly what that is.

[@kayv.d.4656]

Remember: none of this is your fault!

[@fionascheibel977]

I have a terribly sensitive gag reflex. As soon as I get a swollen throat I throw up due to my throat being "wrong" if I swallow my meds wrong I throw up. Maybe Griffin's swollen throat is having a similar issue. Keep being pushy about getting the little man help.

[@gailtaylor4223]

Hope he feels better