Hearing Loss Story Time | Hard-of-Hearing

Hey y'all, I finally got time to sit down and share my hearing loss story! Being hard-of-hearing is something I have grown to embrace and have pride in, but it was not an easy road here. Going to RIT has helped so much because I am surrounded by deaf and hard-of-hearing students all the time. I hope y'all enjoy. Let me know in the comments if you are deaf or hard of hearing!
xx
Emma
Instagram - @Emmawoerle
tiktok: emmawoerle

[@lixly.x7818]

Im 18 now , but I got diagnosed with Cholesteatoma on both ears in 2019 . We were searching for an answer for almost 3 years !!! And now after years and years of having problems with my hearing , I finally got a hearing aid , I’m so freaking thankful for being able to enjoy hearing more !🥰

[@yenerygarcia7783]

I am also hard of hearing. And I’m so glad I found you!

[@mikaelateixeira8083]

Thank you for sharing your journey. Like you I am also hard of hearing in both ears. I was born with sensorineural hearing loss and didn't find out till I was three. Like you I don't necessarily feel connected to the D/deaf and hard of hearing community as much as I wish I was...I think the part of the fact is that I am able to hear compared to other individuals in the community. Overall, I am very grateful and thankful to be apart of this beautiful community.

[@itslouise1003]

Hi! My son was diagnosed with hearing loss. What kind of hearing loss do you have if you dont mind? Thank you so much!

[@1957ShutterBug]

The docs did a great job with the scar placement. If you are not looking for it, you would never notice it.

[@priscillalowery5109]

Thank you! I needed this encouragement and so do many young people with hearing loss! Your positive attitude is just wonderful!

[@natashalourenco6575]

thank you for.sharing your story. You are brave 💜

[@maggiepassamonte8363]

yesss girl love when you open up about this!! miss and love you😘

[@johnryan5102]

Thanks for sharing! So good to see people making videos about their experience being an HoH individual. Maybe I'll make my own video and post it to youtube! Great to see your positive personality, and happy to hear that your hearing loss helped you get into school. Best of luck! :)

[@paysisako6331]

I am a hard hearing too..great story of yours! lovelots from Philippines

[@bonnieong2345]

I had a cholesteatoma in my right ear when I was little too! My hearing loss has progressed very slowly, and I get my first set of hearing aids next week! Thanks for sharing your story :)

[@nataliesing9781]

I’m so happy I came across your video! I’m currently going through the same thing and I am trying to figure out what is really going on. I hope all is good!

[@aralyn_.6268]

Thanks so much!

[@jadeharrison5219]

I am hard of hearing and have two cochlear implants. Your story is similar to mine and I go to CHOP too.I am in college and got accepted to Gallaudet University.

[@kaylasmusic]

I have a mild to moderate ssnhl since i was about 8, due to constant ear infections but then when i was 10, my brother perorated my eardrum by accident and it ended up causing an additional conductive hearing loss.. but we had to wait to close it up because it was at risk of getting infected.. I am now 21. So about a year ago I saw a new ENT and had the tympanoplasty done… I totally feel you on getting ear surgery,.. its not fun, but it was reaalllyyy worth it on my case

[@frankienixon8413]

Just had my 3 surgery on my left ear from cholestatoma removed mine ate all my bones and was at the wall of my skull when I had my first surgery, then my secondary was to remove the package placed in there after my 1 st operation. Now i just had my latest to fit my bone conduction hearing aid magnet to finally put my bone conduction hearing aid.

[@carsonjones6479]

I am hard of hearing but it’s my brain not my ears my ears function great but my brain can’t filter out sound so everything meshes together so I hear distortion I’m extremely sensitive to loud noises but I have hearing aids and I’ve kind of always known I have a hearing issue but not the traditional kind it’s apd auditory processing disorder it’s pretty rare

[@tashacox25gmail56]

I have heard another person that is American mentioning this on youtube. I always enjoy listening peoples hard of hearing stories.

[@vickireynolds4055]

CHOP? Good grief! I agree! Otoschelorosis here. Gnarly scar. Stapedectomy, which has shifted, which is a little painful.😬 Luckily, most of the worst of the problems have occured after adulthood, so normal speech patterns.. No functional hearing in right, about 50% in left. Can definitely tell the difference between a piano and a lawn mower.

[@mcjaystar]

I got my ct scan coming up and just had a mould taken. I had what looks like a cancerous growth in my ear canal post nasal. Anyway I got 35% hearing left in my right ear also X-)

[@natnailtolossa3543]

Hi, umm I am glad you explain your experience. It actually great to listen your story. I am hard of hearing myself. Anyway hopefully, I'll see you around this Fall. :) or Contact me on whatever social media platform

[@nameisdivya]

From india, lots of love and power to you.. I'm suffering from SNHL from my 20s

[@leaderff788]

Dii 😢 same love from India suffering from snhl

[@kirthika2379]

​@@leaderff788how are you now

[@durturd]

Thank you for sharing your experience. I had a cholesteatoma twice and now severe to profoundly deaf on my left ear. I’ve worn hearing aids on and off for years but hate them (infections, discomfort, sound quality isn’t great etc.) I am on a waiting list to get a Bonebridge from med-el (bone conduction hearing implant). What kind of hearing aid do you have?

[@micahauriacoloma565]

hi im A HARD OF HEARING ALSO FROM PHILIPPINES

[@tashacox25gmail56]

Are you involved with Hearing Loss Communities in the States?

[@EmmaWoerle]

Tasha Cox I’m not currently! I never really identified with the hard of hearing community until I went to school. I have a great group of friends who are all hard of hearing which is really cool up in Rochester

[@ifrazainab3589]

I am also hard of hearing.

[@codywheat9231]

I am hard of hearing

[@aliabdalnaser8297]

😍😍😍

[@SweetHershii905]

I thought you were deaf. How are you talking and not doing sign language if you lost your hearing?

[@carinachavez1943]

Hey Mikey! So I may not be Emma, but am hard of hearing myself. The reason someone might talk instead of sign despite having a hearing loss is because they weren't exposed to asl, bsl, etc. growing up, or simply don't wish to. Hard of hearing folks are on this pretty wide spectrum. You can have a profound hearing loss, or a slight hearing loss. If your hearing loss is slight at first, you'd be "like any other kid" in the sense that you're taught something like English as a first language. You can still have functional hearing if you're hard of hearing, it's just not at 100%. Even if someone is D/deaf they can still talk the same as a hearing person too. Hearing ability doesn't change the way your vocal cords work. If you or someone else have more questions, feel free to ask!

[@SweetHershii905]

@@carinachavez1943 Ohhhh I see. Thank you.

[@carsonjones6479]

You can still talk with hearing loss even some people who are deaf learn how to speak watch rikki pointer on KZbin she’s deaf but she can speak