Heart Issues After Lung Transplant

[@corissaschnell7828]

I’m a transplant pharmacist and I’m so impressed with the way you explain things. Accurate but still easily understood by non medical people. Best wishes on his continued recovery.

[@holdendmb]

I agree with this so much! ❤

[@matthewwatson373]

Continued prayers for Lonnie Jr.

[@jennifergottschalk2467]

My husband received a kidney transplant last year two days before the kids were out for Christmas break. This was something our family prayed about and our prayers were answered it has been a blessing. My husband was able to go from seeing the transplant doctor every other week to just once every other month now for labs. My husband still takes his meds at 9am and 9 pm like clock work. May God continue to bless you and your family.

[@nicolejclarke]

Man you deserve a medical degree just from all the knowledge you have gained from all of this !!!!!!!

[@beetee4865]

As someone who was diagnosed with a "reasons unknown" heart rate condition, I can empathize with how frustrating that can be. I hope that they find some concrete answers and are able to control it better. I never thought I would ever need a beta blocker, but without it I would have tachycardia all the time too.

[@MelCarterr]

Wowzers! 5 weeks already. I’m sure you’re really sick of me commenting this but I was blown away it’s already been 7+ months since this all started, and now it’s been 5 weeks since transplant. It’s so good to see him up and about ♥️

[@OurLANDingCrew8]

I say that all the time... "I can't believe it's been over 7 months"

[@brookeamber8148]

I was initially judgmental and I’m so sorry. I took it back and immediately erased my comment. You’re a wonderful mother,

[@lorimayoh8965]

Oh my the kids are so cute!!! I can't beleive how much Noah has grown, love the daily videos. Great team work and Lonnie jr is rockin the transplant recovery!!

[@Mrsmadison45]

We also are continuing our prayers for Lonnie Jr, ❤

[@Mori-chandesu]

I'm 2 years post op. Keep it up mama, your doing your damned best and we are all proud

[@robylove9190]

Always sending love and healing energy for Lonnie ❤❤

[@sofiasousapires]

Hope everything goes well with cardiology!

[@allisonisaacs373]

So happy to see your son feeling better everyday

[@jennyann5405]

Another great video. :) It's great how all the kids are progressing. Glad to hear Lonnie Jr.'s PFT is higher. Good luck on the EP study & other test for his heart rate. Glad you got some self care in Stephanie. :) Sorry for the typo.

[@amarinarichards2358]

Do not lose hope Lonnie you got this.

[@shannonwelsh5830]

So good to see everyone ❤

[@Chronically_JBoo]

I get sent to get echocardiograms every year because Ehlers Danlos Syndrome causes Mitral Valve Prolapse. Prayers still for a long healthy life for Lonnie Jr. We still pray at church for him. Hugs

[@karindwarswaard]

I am glad he is getting better

[@evelinagleisner930]

Hope everything turns out to be good with his heart and I’m so glad he is doing better❤

[@biddiemutter3481]

Sleeping kids look angelic! Poor tired mum! I 🙏🏻that they sleep tonight

[@CWengrovius1420]

Continued prayers for Lonnie jr & your family always!

[@brookeamber8148]

Lonnie jr I’m rooting for you!

[@embeetoast2211]

Your family is so beautiful. What a wonderful energy you all out out into the world and I really admire you as a mom.

[@thosewildgottfrieds]

I would love to see a night time routine video. We are in the process of trying to get a diagnosis for my 3 year old and I feel like our night time routine is so different from my friends with NT kids. I would love to see how your kiddos wind down and maybe gets some tips or just feel seen maybe? IDK

[@carriebowlen3785]

YOU GUYS ARE THE BEST! ❣❣GOD bless you all!! 💜💜I always pray for you all! OMGosh nothing is going well for you both! I am so sorry!

[@jessesarrazin8713]

That's so nice that Penelope and Liam got to go out to the movies. Happy to hear that Lonnie is getting better. I do have a quick question for you if you don't mind - what happened to your oldest daughter? How has she handled the news about Lonnie?

[@michellewyles8018]

I pray his kidneys keep doing good cause right now my daughter is having problems with her new kidney sending prayers 🙏 ❤️

[@RebekahInspires]

Hey just a tip for Lonnie Jr. I know y'all probably already know this, but it's important to try and not let the dog or other animals lick him, especially his face or any cuts on his body. This can increase a risk for infection. Just a random reminder I thought of while watching the videos. I am a pediatric home health nurse and work with vulnerable and medically fragile children in their homes. Here's to hoping and praying that his new lungs make a full recovery and that he does not have a flare up of the autoimmune disease ever again.

[@pattyespinoza1217]

Glad to hear that the family unit is hanging tough and being there for each other!! Good job mom and dad!❤️

[@jaynedavis3388]

If Lonnie maxes out on Zofran (Ondansetron), it’s ok to top it up with an over the counter medication that’s mostly cyclazine. Definitely ask his doctors first because it might have a negative reaction with his other medications. I’ve never had a transplant so I can’t say it’s for sure safe. Edit: “Hi” Lex, “Hi” Nelly ❤

[@OurLANDingCrew8]

Thankfully he hasn't had much nausea since that day! And yeah, we have to clear everything he takes through his team first but that's great to bring up. THANK YOU!

[@jenniferlynne3314]

He will be fine, mama!!!

[@natassiarodriguez7420]

Praying 🙏

[@maritoh.6710]

He'll get better! Don't worry

[@sandi.huskisson]

Will never stop praying 🙏❤🇿🇦♥️

[@Jennifer-il7ev]

Lonnie Jr and Mama are both superheroes! ❤🎉What a lovely and caring family!

[@elleb7523]

Driving just in time to enjoy that convertible!

[@littlehouseofchaos9490]

So good to see him up and walking around! Do you know anything about the donor? Where they came from or how old or anything?

[@OurLANDingCrew8]

No, just that they were younger

[@Alex-nx8mp]

Celery helps with the lungs 🫁 and lemon 🍋 water helps with kidneys 😊

[@rain73ful]

Insurance won't pay for a drug that could extend his life. Unreal.

[@igotmeonthis]

Prayers for you all

[@killerloopz4416]

Will you be doing a Q&A soon?? Love frm the uk xxx

[@Bigpawstinyalphas]

Do you know anything about Lonnie’s donor? Like where they lived or how old? As a nurse sometimes the transplant coordinator was able to tell me where organs were going.

[@joandehnert1115]

I had a friend who had a transplant and they didn’t give that information until a year after transplant if the donating family agrees

[@WVGIRL72]

You tend to learn it all ..My son had a liver transplant at 10 mos old and u become your kids 24/7 nurse..My son has been off well way back it was called FK506 when he took it...but hes not had no rejections meds in years

[@livingdeadgirl12090]

I have had a Ep study and a cardiac ablation. I completely understand how scary it sounds but it's a simple procedure. I have a condition called SVT. I am not sure if that's what Lonnie has. I will pray for him.

[@sweetgirl-jp4hn]

121 likes👍👍👍 ❤❤❤😊😊😊 Praying for you and your family

[@helengarrett6378]

Ablation? I had one for a fast heartbeat (I had subventriculsr tachycardia) and it worked.

[@marlanebraun5635]

so happy Lonnie is doing sooo well!! is Liam going to have a haircut soon. i haven't watched in a while and i thought he was your daughter lol!

[@OurLANDingCrew8]

We trim Liam's hair to keep it healthy but have no intentions of cutting it unless he requests it or shows us in someway he doesn't like it but he thinks his hair is the best thing ever (bc it is).

[@marlanebraun5635]

@@OurLANDingCrew8 works for me.

[@Alex-nx8mp]

Payers for you and your family 🩷🙏🏼

[@junehulbert2885]

I ❤️ your family.

[@jessicaponder7658]

I'm on envarsus but it's a tacrolimus and I'm on 1mg and I'm on mycophenlic acid sodium bicarbonate mag 64 atorvastation metoprolol and escitolpram and a clonidine patch on April 8th was my 1 year since I had the kidney transplant done and before I had kidney transplant i was on kidney dialysis in June 2021 i was 28 years old and now I'm 30 but I also have high blood pressure tic disorder acid reflux back flow to the heart mild mental retardation I had reported falls at the age of 7 I was jaunted at birth with birth trauma and I was jaundice and when I was a little girl I had a lazy eye along with anlyoplia and I had tonsils and adnoid removed I had gallbladder and gallstones removed and I had foot surgery done along with wisdom teeth removed and I also had braces before

[@jessicaponder7658]

But I was hospitalized twice after transplant and I had to get iron plus neupogin shots

[@almmaaa]

So happy to see him doing so well. A cardiac ablation is a big deal. I’ve had 3! Praying for everyone

[@angeldaniel7360]

Wow !! Her life is a freaking Roller Coasters 🎢!!!!😊

[@johnnyfitzthum9040]

We don't normally do oblations in children

[@OurLANDingCrew8]

Well that's where it gets tricky is that yes he's considered a "child" but in 5 months he will be an adult technically. I am hoping we can avoid the ablation.

[@megmartin3237]

Wait a min what happened to Lonnies mustang convertible that y'all got him

[@OurLANDingCrew8]

He is selling it to upgrade!

[@annaraab8853]

Ask his doctors to run a tiger for CMV. The results of that test will tell them if he needs additional infusions.

[@OurLANDingCrew8]

They have already done the CMV test which I think is aiding in their choice.

[@amandaroselalagos5429]

Does he not have his car you bought him for him Bday? ❤

[@OurLANDingCrew8]

He does... did until 2 days ago LOL. He wanted to upgrade so we sold it to put towards a purchase of a new one :)

[@scrypturefx3077]

Atrial fibrillation: symptoms

[@karenashton5053]

Does he take multivitamins?

[@OurLANDingCrew8]

Yes

[@karenashton5053]

Oh good just checking!

[@jenniferhoaglin566]

💙🙏💙🙏💙🙏💙🙏💙🙏💙

[@ninisalas]

🙏

[@sarah-bx6ug]

Will they let you get near a chiropractor? Just a thought with slowing the heartbeat but I would think an alignment may not be significant enough help

[@lizzyjackson1996]

Why don’t we see Danielle any more? 😢

[@nancyfarkas3592]

She probably doesn’t want to be on camera anymore, as is her right

[@juanitabrown7998]

❤🙏🙏🙏

[@margaretgarana911]

Hi

[@hilda1499]

❤

[@tanagiberson4770]

i thought lonnie jr had a mustang

[@OurLANDingCrew8]

He does/did. He wants to upgrade

[@kirenjattan9885]

I just read the American healthcare system OMG 😲 it's terrible 😭 .I wish America followed the Australian or even England's healthcare systems. Mainly with discounting a lot of the expensive medications. So, everyone has a chance of affordable treatments.

[@kimconley4679]

Ablations can be dangerous. My brother in law was having an ablation when the doctor tore his heart wall which immediately led to open heart surgery.

[@OurLANDingCrew8]

So these are stories you don't share. You just kind of keep them to yourself 😳

[@bettypecoraro8104]

Why would you post this?..it certainly doesn’t brighten anyone’s day.

[@mamabear6413]

You don’t think the heart issues are related to the jab??? Hmm ok