Hidradenitis Suppurativa (HS) Awareness Week Interview with Dr. Resnik

[@Cheri022491]

Thank you for this, I been struggling with HS for almost 20yrs & just within the last couple years became more open about it... I lost my dermatologist 2yrs ago due to insurance issues so I've gone without a derm Dr for awhile & it's been hard.. I've had a couple nasty flares/ abscesses where I needed medical attention & the drs knew so little about it or told me incorrect information & made it worse (mostly hurt with their nasty comments)... I'm just glad I'm not as alone as I felt all those years.. I share information about HS to everyone I know but I'm curious how can I help bring more awareness to HS??

[@hsconnectorg]

The main thing anyone can do to help is to spread actual true awareness like you can find on our site at hsconnect.org and stop the stigmas about HS.

[@donnaallgaier-lamberti3933]

Thank you for this wonderful interview. This physician/this office sounds SO amazing!! I love having the intake info. right in the files. For people like me who have been fighting this condition for over 50+-years, through many moves from community to community I have seen MULTIPLE providers over these five decades, this may not be so easy. But the idea is excellent and can be started at any time and worth participating in. What I have trouble with a "one view" providers who only "accept" their way of treating; for example Hibiclens (Hibiclens makes my red, rashy areas. and my pain SO MUCH WORSE! so I cannot and will not use it.) I cannot take any drugs, pain killers, or vaccines as my body reacts horribly to them (I get SO much worse after using them.) Perhaps my communication skills were lacking but for years I was discounted and not believed. As a result I basically took control of my own treatment plan and after 50 years, and because I know my body, I know what works for me and won't work. i am not going to to take something that I know is going to make me worse. I am an "empowered" patient that prefers to use Functional Medicine and work from within through diet, supplements and total diet and lifestyle changes. I am often seen by the conventional western medicine physician as "unresponsive or non-cooperative" but I am simply protecting myself and my skin with my personal decisions. I have to look out for myself, as in my experiences, as no one else is going to.

[@hsconnectorg]

We're glad you found this helpful!!! Denise Panter-Fixsen 💜💜

[@judo-drummerboy-tapout]

I have a question about the different colors of drainage I get. It seems like my upper body under my armpits under my breast area the drainage is always clear. But on my rear end and rectal area the drainage is always pink. Kind of like a serris-looking fluid. I probably spelled that wrong Dre but I'm talking about the drainage you get after they cut an area out and it filled with fluid. It's kind of a pinkish colored fluid. I was just wondering if anybody out there was having the same issue with the different colored drainage

[@hsconnectorg]

Hi, HS drainage comes in many different colors; clear, pink, yellow, brown even blood ECT,.. Some people have smell even very putrid smell and some do not. All of that is very normal. The most important thing to pay attention to is if you should ever develop cellulitis and here is a article in regards to that: www.hsconnect.org/post/cellulitis-when-should-i-worry If you're ever worried or concerned or ever end out check it out and contact your physician.