Hodgkin lymphoma, from symptoms to diagnosis | Justin shares the beginning of his cancer story.

  Рет қаралды 27,242

Chronic Love

Chronic Love

Күн бұрын

Пікірлер: 50
@pwk22
@pwk22 2 жыл бұрын
Hodgkin Disease is very treatable today ... the technology has greatly improved since I was diagnosed Stage 3A in 1977. And here I am today. Good luck.
@chroniclove
@chroniclove 2 жыл бұрын
Thank goodness your treatment worked back then and that it keeps improving. Thank you for watching and for leaving a note that will offer hope for others. Sending you 💛.
@eon7125
@eon7125 Жыл бұрын
Thank you for sharing 🏴󠁧󠁢󠁳󠁣󠁴󠁿💐
@victoriaberec1241
@victoriaberec1241 Жыл бұрын
Good for you my love
@riyatiwari3998
@riyatiwari3998 Жыл бұрын
Hair fall hua tha
@4estdweller4ever
@4estdweller4ever 2 жыл бұрын
I’m so glad you have had success fighting your cancer. My dad had Hodgkin disease and died in 1959. There was no chemotherapy in those days. I was 4 and he was 40. My father’s death has caused me lifelong grief. Another layer was added the other day when I took a picture of a family reunion picture and did some cropping to look at people closer. I was horrified to see my dad in the back row with his face etched in pain and lumps across his cheek, forehead and lower lip. I believe it was the month he died. So much of my grief has to do with his suffering. I’m glad they have been able to give people hope. Cancer is so cruel. I can say the loss of my father caused a cascade of other horrible events that has nearly destroyed my life. Things happened that would NEVER have happened if my dad had lived. The impact of cancer is like a bomb spraying shrapnel into everyone in the vicinity.
@chroniclove
@chroniclove 2 жыл бұрын
Hi, Robin here! My gosh! I join you in that I'm so grateful that we have the treatments that we now have for Hodgkin lymphoma so that people like Justin can survive beyond this awful illness. I only wish that we had these treatments when your father was alive so that he and you didn't have to endure so much suffering. I'm so terribly sorry that your life was so deeply impacted by cancer. You're making me think... We often talk about the ways that cancer disrupts our own lives in our discussions but the ripple effect is so big! It's the trajectory of the patient's life and everyone they loved that is forever altered. You have me in all my thoughts and feels right now, as I think about you (I don't even know your name), and also my mother, having lost her father to lymphoma when she was 14 years old. I've always felt the intergenerational impact of this and I never met him. It's devastating, even this far removed. Big, big virtual hug and so much love to you 💛.
@4estdweller4ever
@4estdweller4ever 2 жыл бұрын
@@chroniclove Thank you so much for your very sensitive and informed answer to my comment. So few people understand the impact that we are forever changed when we experience profound loss and cruel abuse. Our brains are altered by these things. Not that my life would have been perfect if my father hadn’t passed away because life is just not perfect. But the character of my father is a promise that I would not have grown up with so many wounds inflicted by others. He wouldn’t have stood for it. So he has remained the hero of my dreams. I remember reading an article about a man who was dying of cancer, and his wife had died just a few months earlier of cancer, and he mourned the thought that his daughters would not remember him or know how much he loved them. I wanted so badly to be able to tell him, no, Your children will remember you. Cancer has produced so many heartbreaking stories. These tragic stories need to be told first, because the sufferer needs to tell their story, and to feel supported by others, but you hit the nail on the head when you said that it is a ripple effect that ties millions of others into their stories, who have their own cancer stories now. The ones left behind. The ones whose life’s trajectory will not be the same as it might have been. Some may feel turned off by having to hear sad stories until it’s their sad story that needs to be told. One thing my father taught me was to sing. He coaxed me to sing. You are my sunshine while recording it on an old wire recorder. I remember his coaxing voice. I believe he is the one responsible for the fact that music has been my joy and singing has comforted me through many hard times. So I sing for my father because it was a gift he gave to me. Thank you for getting it, for hearing and understanding. When someone has had to live life in a damaged condition they also can feel so alienated from others which adds another thick layer of loneliness that is cruel in itself. When someone makes room in their heart for the sorrows of others, well, I can’t think of a more important gift to give than that. A real friend walks in when the world has walked out. To be willing to hear the hard part that someone needs to tell about themselves makes you a healing part of someone’s desperate need to be heard AND understood. Today I was dangling off a cliff when I read your words. Thank you. Words can save someone. Thank you for your compassion. 🤗
@4estdweller4ever
@4estdweller4ever 2 жыл бұрын
PS: Roots grow deeper when it’s dry.
@chroniclove
@chroniclove 2 жыл бұрын
@@4estdweller4ever None of this is for the ones who are turned off. It’s all for those who need to sing and be heard and understood. It’s why we’re starting this channel. The hope here is that we can create a room full of friends who walk in. Your words grab my whole heart. I want you to know that I’m so happy that you’ve found us 💛
@kayehodges6689
@kayehodges6689 Жыл бұрын
4estdwellerinmyheart I can so relate to what you've said about lifelong grief and my heart goes out to you. I lost my eldest brother back in 1978 when I was eleven and he was only twenty,a year later when my sister was eighteen she was diagnosed with Hodgkin disease and sadly died aged twenty three the day before my seventeenth birthday.
@EnvisionAuto71
@EnvisionAuto71 10 ай бұрын
I just got diagnosed with hodgkin lymphoma i am 34. Going to start chemotherapy next week
@ElizabethKohl
@ElizabethKohl 2 жыл бұрын
Wonderful to hear Justin’s story, never give up hope, miracles happen!
@chroniclove
@chroniclove 2 жыл бұрын
He is proof!! So much hope lives in stories like his 💛
@sandradalessandro2935
@sandradalessandro2935 Жыл бұрын
Sooo inspirational. Sending luv. Blessings. Faith strength. Hope. N many prayers. Non H B cell diffused. Diagnosed. Aug 2022. Jyst completed six months chemo. Really rough. Praying it worked. Waiting on pet scan to see results absolutely broke getting approval work from home as immune system is ruined. Cancer is a war. I thank my body every morning for getting me this far your channel is so needed. What a great idea. Thank u
@chroniclove
@chroniclove Жыл бұрын
Robin here. Dearest Sandra! Cancer is absolutely war. We’re praying your chemo worked too. Only if you’re comfortable, would you keep us posted on how you’re doing? I really hope you get this WFH approval. If anyone requires it, it you!! You have our healing wishes and oodles of love 💛
@sandradalessandro2935
@sandradalessandro2935 Жыл бұрын
You. Are so kind and yes my boss is coming tomorrow to set up equipment I am approved starting mon feb 20. My results on follow up pet scan are next week as well thank u so much. The luv energy is abundant on your channel. I send gratitude 🙏🏻
@nadiaerrafih9869
@nadiaerrafih9869 4 ай бұрын
God bless you all..how brave you are Your story is so humbling..my brother going through a big deal of challenges right now…but God is great 🙏💔
@eon7125
@eon7125 Жыл бұрын
God bless the sweetest souls
@Linda-in9ns
@Linda-in9ns Жыл бұрын
Bless you Justin. 🙏🏼❤️💫
@chroniclove
@chroniclove Жыл бұрын
💛
@adamsalum9181
@adamsalum9181 Жыл бұрын
God bless you😊
@sherin9251
@sherin9251 2 жыл бұрын
I am diagnosed with hodgkins lymphoma stage 4s ...... currently going through my chemotherapy
@chroniclove
@chroniclove 2 жыл бұрын
We are sending you so much 💛 as you make your way through treatment.
@AstridSaunders
@AstridSaunders Жыл бұрын
Sending the energy of healing ✨️
@Linda-in9ns
@Linda-in9ns Жыл бұрын
Bless you. 🙏🏼
@allyson6261
@allyson6261 Жыл бұрын
Me too we both got this 🫶
@riyatiwari3998
@riyatiwari3998 Жыл бұрын
Hair, fall hua tha
@sandradalessandro2935
@sandradalessandro2935 Жыл бұрын
Hello. Beautiful. Luv. Souls. Asking for positive vibes n prayers. Last summer diagnosed with lymphoma. Out front f the blue stage four meaning every part of my body had nodes lighting on pet scan but good news none were actually inside an organ. Did six months chemo took disability temp from my job. This was. RChop chemo very rough including red devil drug. Now all done 8 weeks out last chemo everything is gone inside my body However. 2small brand new nodes are lit up on pet scan INSIDE my lungs. This is extremely unusual. And doctors are baffled. Sending me downtown Philly to PENN Hospital to meet with car T clinical trial team. This cancer journey is overwhelming
@chroniclove
@chroniclove Жыл бұрын
Robin here. Dearest Sandra! That sounds really overwhelming and scary. You’ve got the full love, positive vibes, prayers of this community behind you, pulling for you as you head over to Penn to continue this fight. I do wish I could give you a great big hug right now. Only if you’re comfortable (no pressure at all if you prefer not), we welcome you to keep us posted. You’ll be in our hearts and minds, regardless. 💛
@sandradalessandro2935
@sandradalessandro2935 Жыл бұрын
Thank. You. From. The bottom of my heart. I send back the biggest hug ever. U. R. Wonderful
@davidbowers3996
@davidbowers3996 Жыл бұрын
Love you guys xxxx❤
@chroniclove
@chroniclove Жыл бұрын
Sending love to YOU, David 💛
@diazfan5986
@diazfan5986 11 ай бұрын
FKN LOVE U BROTHA. I HOPE U HAVE A LONG, FUNASS FILLED LIFE BROTHA. MUCH LOVE FROM SOUTHERN OREGON.
@ms.holloway2280
@ms.holloway2280 2 жыл бұрын
amazing.💕💕💕
@chroniclove
@chroniclove 2 жыл бұрын
Ty for watching!
@alexpiper1115
@alexpiper1115 2 жыл бұрын
What a very handsome man.
@keppingitreal9594
@keppingitreal9594 2 жыл бұрын
Yes I am alone going through breast cancer 😭😭😭😭😭😭😭😭😭😭 Because my family doesn't want anything to do with me due to the breast cancer 😭
@chroniclove
@chroniclove 2 жыл бұрын
That’s tough. If they can’t give you the support you need, there are incredible groups and resources where you can find your people both virtually and in person. Support groups, Facebook groups, nonprofits, etc. Find the people who will support you. Build your chosen family. You deserve it. Breast cancer is hard enough! Sending you 💛
@englishlady8863
@englishlady8863 Жыл бұрын
I'm so shocked and sorry for you. How could your family not support you. This is ridiculous.
@georgeking2369
@georgeking2369 Жыл бұрын
My god what kind of family have you got they should be a shamed of themselves i wish you well
@nadiaerrafih9869
@nadiaerrafih9869 4 ай бұрын
You are not alone..God is with you ❤️🙏
@suppernana5110
@suppernana5110 2 жыл бұрын
@Anonymous88660
@Anonymous88660 Жыл бұрын
❤🧡💛💚💙💜
@chroniclove
@chroniclove Жыл бұрын
❤️🧡💛💚💙💜
@darrellhicks360
@darrellhicks360 8 ай бұрын
Medical professionals don’t show their emotions.
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