Hospice Care is for End of Life (it doesn't speed it up)

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#endoflife #hospice #activelydying

[@hospicenursejulie]

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[@karenminniec3008]

My 100 year old mom was diagnosed with pancreatic cancer in Sept 2023. She was offered immunotherapy as an option, but said she didn't want to do testing and chose hospice and signed up in December 2023. Yesterday she was at our home for Mother's Day dinner. She is getting frail, but still enjoying her food and getting out. Also keeps looking forward to family visits. We know she will decline further and these videos have been so helpful to understand the dying process and make it less scary. Thank you

[@jackieridley8465]

💐🙏🇬🇧

[@claritytruth445]

💜 :)

[@davidlittle1073]

Sending love and hugs to you all ❤

[@nickorlando8261]

My oldest sister just entered into a hospice house a hour ago. I pray they take good care of her in her last days. Lung cancer. I wish no one ever smokes in this world anymore.

[@phxhoney1632]

I lost my father just this morning and hospice was a Godsend. The support is incredible and our nurse was so awesome explaining everything and ensuring he passed in the most peaceful and pain free way possible. ❤❤❤

[@msdixie1]

❤️

[@davidlittle1073]

❤

[@KaldoniaKaldonia]

🥺💕. Deepest condolences to you

[@GetRightWithGodNow]

❤️🙏🏻❤️🙏🏻❤️

[@rosemarysinder2151]

So sorry for you loss .

[@jeffpawlinski3210]

Amen Julie, as a longtime Hospice Care Consultant, Liaison, here in Milwaukee I frequently speak to these same topics and myths. And as an end-of-life patient advocate here in a colder climate I emphasize to my patients and families the comfort of being at home, surrounded by their loved ones, pets, music and whatever gives them the peace they deserve, without having to brave the cold, the snow and frigid wind chills to see another specialist across town in such miserable weather. Although, Milwaukee is a beautiful city many months of the year! Thank You , as always, Julie.

[@hospicenursejulie]

Thank you for all you do!!!

[@npatriciacastillo6671]

I appreciate your videos. I am not ill nor do I have anyone currently ill that I'm caring for. I started watching your videos bc I thought it best to watch them BEFORE I was in a stressful/emotional state. I'm gathering information so I won't be caught off guard when life changes. Thank you, again, for all the info you share. 😊

[@petuniasevan]

My mother is on hospice care (she has Alzheimer's) and the hospice care folks: nurses, chaplain, social worker... have been fantastic. Mom has had an episode a couple of days ago and may not come out of it; the hospice nurse answered all my questions and has been following up every day and keeping me informed. We will talk again in the morning and due to her encouragement and guidance, coupled with Mom's wishes stated years ago, Mom will be kept comfortable until she passes, which could be any day now. Thank you Nurse Julie and all hospice care workers for their compassion and dedication. I'm feeling very emotional right now just typing this. You're angels indeed.

[@BobSebring]

For me, Hospice was a godsend. It was just me taking care of my mom. I'm beyond grateful for all their compassionate help. I was so stressed and grieving towards the end that I had gotten sick because of a weak immune system. Once my mom had died, Hospice was their to give me grief support with individual and group therapy for a whole year! Free if charge. I owe hospice a huge debt of gratitude. I would definitely and highly suggest to anyone to include Hospice for their dying loved one. I can't imagine not having them there when I look back at it.

[@hospicenursejulie]

Thank you for sharing 💕💕💕

[@jimrebr]

How did you get therapy? My mom passed away 3-19-2024 & I have been struggling to cope. I’m depressed, I’m already disabled, but I just can’t focus. Both of my parents went into hospice at their home last August, my dad is deaf with dementia, which he’s had at least 12 years now. None of my 5 siblings or I live in the same state as them, my mom fell in mid-January, when 3 of my sisters and our brother were visiting them in January, when my mom fell and cracked her femur. We had to transfer them to a Hospice Home, January25th. My husband and I drove the 3 day trip to Southern California February 2nd, it was obvious that my mom was dying, her pain levels were the highest I’ve ever witnessed. My dad is declining now, we leave next week for California, I cry and my migraines are super triggered, in a lot of pain, physically and emotionally. My mom & I were extremely close, I was their honeymoon baby, conceived on the beach by the Pier in Oceanside, mom and I talked all the time. I miss her so much.

[@dlmsarge8329]

I want to thank you for this channel and all the invaluable information you provide about dying and hospice care. I'm in my mid 60s and was bedside for the death of my dad and also for my younger brother's death. (My older sister having un-alived herself as well) I felt confused and frightened in those moments. My mother is 91 and in serious decline. I'm sort of binge watching your videos in the hopes I'll be better prepared for her death. Your experience and words provide a lot comfort, thank you.

[@hospicenursejulie]

Thank you so much for being here- I do believe it make a difference

[@virginiacaston1456]

In my opinion people who say that didn't adequately educate themselves about hospice and the dying process.

[@zeldamoore8371]

My husband was given various chemo until he was on brink of death. No good results. Finally DR recommended hospice & said she was guessing he had about 6 months. He had no appetite & no energy or strength. Hospice treatment caused increase in appetite & energy & he lived about 6 months with minimal pain.

[@MusicIsARainbow]

Thank you for this. After my mom fell, she went on end of life care and my sister worried that we just drugged her to death. I told her, “Mom didn’t die because she fell. She fell because she was dying.”

[@raloufen4292]

Care is much better at home than ANY facility

[@Tk.utelab]

So many don’t have family or family does not want to take care of them

[@BobSebring]

Without a doubt. I'm so glad my parents didn't have to worry about dying in a foreign place like the hospital. I would never had allowed that in the first place.

[@Shannon71172]

That can Definitely depend !! In Home Health I’ve seen patients at home in deplorable conditions……🙏🏼❤️

[@pnftjxrhbdr]

​@@Shannon71172So true! I have seen in my own family, a family member getting better treatment than at home! SHM.

[@user-eg8sq1ci1s]

Julie, you are an exceptional person, nurse and educator. Thank you so very much for the wealth of information and knowledge that your videos provide.

[@raloufen4292]

I myself was put on hospice. Didn't need it. Found signed DNR papers too. Not signed by me. Discovered weeks after release. Look at everyone's paperwork then look again. Not everyone has your best interests in mind

[@hospicenursejulie]

This sounds like a very different circumstance. You shouldn't be put on hospice without knowing, specially, if you're cognitively capable.

[@raloufen4292]

Exactly. Greedy relatives and lazy Healthcare workers.

[@cutehumor]

did you change your will and beneficiaries because of those greedy relatives?

[@SheriMaass]

I entered hospice because doctors ran out of options for my stage 4 crc. But then i needed stents put into my uterers so i had to come off Hospice for that. It's sometimes hard to navigate when to be on or off depending on procedures needed for comfort or even prolonging life. If i didn't get stents i would probably be dead by now. I was told Hospice was not intended to prolong life. I did sign up with palliative care and trust them to know me and my needs enough to help me decide when hospice is necessary. And since then... a brand new clinical trial specific to my cancer mutation has opened up so we are going that route now.

[@dlmsarge8329]

I admire your courage and fortitude in navigating these various systems, wishing you the best.

[@hospicenursejulie]

I'm so happy you were able to navigate the system so well and advocate for yourself!!! 💕💕💕💕💕

[@user-tl3uf2fd5k]

Praying that this trial will help.

[@elaineplowman9621]

You are such an asset to all of us and a very good teacher. This subject should have always been a part of our lives. Thank you so much. I lost my husband in August and wish I had found you sooner.

[@hospicenursejulie]

You are so welcome

[@bruceshark5501]

Thank you, Julie As a hospice caregiver we get this a lot

[@ceciliaferreira9476]

My husband is LPN. He did a lot nights with hospice care. I asked about his patients. Maybe he/she died today. I asked him the Patient name. I pray to Saint Joseph for his/her soul. My husband didn't understand why his patients die on his shift, not with other nurse next. I was thinking the prayers i did to Saint Joseph (Virgin Mary Husband) for these souls, made them died in peace. Thanks to Saint Joseph to Protect and Bless them. 🙏

[@beckyjoyner9866]

Hi Julie, I am so glad to have found your channel. Your videos have taught me so much and the more I understand, hopefully the more I can handle it. I am sole caregiver to my mom. She has colon cancer that spread to lungs and liver. She went through radiation and later chemo. However the last chemo drug that was tried made her out of her mind and tempirarily took away her motor skills. She went in hospice late last year. I have studied the symptoms you have talked about in your videos. At this point she is not eating but still drinking and having a hard time swallowing. She is getting close to being immobile on her own. Something new in the last few days she's constantly sleeping with her mouth open. At this point is it prudent to paying closer attention to her breathing? No active dying signs yet.

[@beckyjoyner9866]

I know I am sitting here watching my mother slowly approach death. You are a Godsend for the caregivers taking care of their loved ones.

[@lloydhoneycutt2424]

The hospital sent My brother inlaw to hospice because he didn't pass away when he was taking off life support, after being there for a month he opened his eyes, i noticed a change in him and told my wife, she said he did not respond to her or the doctor , i got a response from him and my wife told the Doctor, she said he didn't respond to her , i suggested to take him off the pain meds and they did, that was in 2007 , he lived for 2 more years by himself in his own apartment, they said they had never seen anything like that before, they still talked about him for years. He had severe head traumer and the Doctor said he would never live without the life support he was on in the hospital , he talked to a lot of people about what God done for him.

[@catherinemalloy1269]

I want to thank you for your videos. My dad has frontal lobe dementia and started at home hospice a few weeks ago. He’s a former defensive lineman … years ago. I was confused and watched your videos and then had my mom watch. It is still difficult but things make more sense and we are better able to understand what he is going through and what to expect. He’s very strong, but weak at the same time. Thank goodness for your videos. They changed everything for our understanding!!! It is possible to be there for a loved one and help them move along. How caring and lovely. Thank you so much!!

[@GregSr]

My 88 year old father lived with my wife and me for six years. In his last six months, his health had been deteriorating steadily. He was placed in hospice care. I did not really understand the role of hospice nurses. Then one nurse explained it in very simple terms. They neither speed up or delay the patient's death. They simply ensure comfort and minimal suffering. In the case of my father, that is exactly what they did. My father died very peacefully in his sleep.

[@foreverhomewithdiane.35]

Thank you Julie, Im sending this to my youngest daughter she needs to hear this, she thinks Hospice killed her dad, he waited to long to do anything, he was at the end of his life, they just made him comfortable. I tried to tell her..I told her our bodies know how to be born and our bodies know how to die. They gave him a good death..

[@Tk.utelab]

Remember with hospice, you can have a volunteer come in and watch your family, so you can shop, take a brake, whatever you need.

[@hospicenursejulie]

Yes yes yes yes- love this! Thank you!

[@BobSebring]

Definitely, a few times I had to have someone watch my mom. I had dental appointments and had to get my haircut. Even though my mom was sleeping a lot, she didn't like the idea of a stranger in the house. Thank goodness I had hospice there to help me and not just my mom.

[@Tk.utelab]

@@hospicenursejulie Julie I have learned so much from you and I appreciate your videos. I was hurt in the coal mine in Central Utah in 2017. So that totally put me out of work. I’ve been going crazy trying to find some thing that I could do. Volunteering for hospice care has been the biggest blessing in my life. And God bless you nurses.

[@matt6l6]

The more of your videos I watch, the more i realise how badly my moms case was handled. Including giving her 10 days in a row of radiation treatments while waiting for a hospice bed to open. That's just the tip of the iceberg. The amount of miscommunication between the various Dr's involved is astounding, and my mom suffered longer and more unnecessarily because of it.

[@hospicenursejulie]

I'm so sorry 😭😭😭😭

[@JewellOgle]

My husband died last year on Mothers Day, only 6 days after going on hospice. Everything you said is true! His cardiologist balked at the mention of hospice, and that was 9 months earlier. It would've less traumatic for my husband to have gone on hospice. Unnecessary doctor appointments, all those medications, it was horrible.

[@CraigArndt]

This is a great channel.

[@gtron7692]

My mom just got approved for hospice 3 weeks ago but according to hospice guidelines, in my humble opinion, she qualified at least 6 months ago. Even though I asked, her doctor wouldn't order a referral for her. My mom has been 100 percent total care with me as her caregiver... for over the last two years..... while I'm still trying to work. Now she is sleeping and barely responsive..... she should have been on hospice sooner so I didn't have to go out of my mind worrying if I have to call 911 if she passes because they have to pronounce her... she is a DNR, has a living will and all the legal paperwork. I'm very frustrated that her doctor didn't order hospice sooner for her.

[@rgbsax]

Hospice is not only for the patient but for the family to help them in those difficult times.

[@jami2712]

Amen to that! My mom's hospice team was a godsend to my sister and I as well!

[@Absaalookemensch]

Hospice makes the process tolerable, increasing the quality of life in the time remaining. My mom's last week would have been horrible without hospice, but thanks to home hospice, her last week was pain free and beneficial. We were all able to say our goodbyes in peace and comfort without significant discomfort. No regrets. ALSO, consider speaking with the clergy, counselor, support group as needed. If you're in this process for the first time, your emotions can ambush you.

[@hospicenursejulie]

👏🏻👏🏻👏🏻👏🏻👏🏻

[@Absaalookemensch]

@@hospicenursejulie A huge papa bear hug to you and all your hospice co-workers.

[@willieboy3011]

I always thought that Hospice's job was to get the dying person in the ground as soon as ethically possible. Just a little gallows humor. Love your channel and can't wait for your book.

[@hospicenursejulie]

🥰🥰🥰🥰

[@tinahughes2552]

Thank you 🙏 for making sense!

[@tammierusso3069]

Agree!!!!! Hospice doesn’t get enough credit for all they can provide! As a RN I’m 100 % for hospice and as a medical provider we know too much. I’m so thankful my dad went on hospice after being diagnosed with cancer…..he died peacefully in his home. You are correct Julie sometimes the treatment will shorten your life more than the actual disease. Thank you for your awesome videos! You are helping so many people!!!

[@user-my2tt4gi3u]

Thank you for this.

[@RIWBKRW22]

You are so amazing Julie - I am grateful for you.

[@robertmarion6454]

Doctors avoid Hospice because once a patient is referred to Hospice that can no longer “Over-treat the patient and by doing so make Mo Money 💰” they don’t wanna lose the cash cow 🐄 you must stay alive no matter the cost or your quality of life in Medical Traditional Care. Thank goodness for Hospice and Palliative Care!

[@HermannTheGreat]

Doctors sole purpose is to keep people alive at all costs.

[@marathoner43]

I think it depends on the person too. When my mother's doctor told her that her best option was hospice, she just gave up. The wind just went out of her sails. She was a fighter but when the doctor told her we were out of options, she signed the hospice papers and just gave up.

[@JagLite]

Thank you!

[@kellygirl912]

Our dad was in hospice and they started morphine because pain pills weren’t working. I often question how much pain he was in. He had advanced Alzheimer’s. Did he really remember what pain was? I was the person administering this to him after being educated by hospice. He died not long after being on Hospice. I didn’t think hospice did this. I wondered if I did and was reassured I didn’t. I felt like he was on hospice at a late date. I had been telling my mom for over a year he needed it and she didn’t listen. I do think she waited because in her mind hospice meant death.

[@hospicenursejulie]

You definitely didn't - but it's a common thought 💕💕💕💕- glad you're here

[@robinchopra139]

I was shocked to learn they have no Palliative Care companies in our area.

[@hospicenursejulie]

I'm shocked too 😖

[@RABPWarrior]

Ohhhh I’m gonna be a stinking burden!!!! I’ve earned it dag navit

[@hospicenursejulie]

😂😂😂😂💕💕💕💕

[@rubykelley5581]

My dad qualified for hospice months before he died. He refused, until a few weeks before he died. He was very much in denial. Now, as you said, patients can live longer on hospice. Maybe had he gone sooner, we would have had the same outcome. But, once he made that decision, he went downhill quickly. I think there's a mental aspect to it too. Once he made the decision, and accepted the fact that he was going to die, he did.

[@susanweiss1439]

Hospice allows the client to take control of their dying process. They make decisions on what they will and won't do. They say NO MORE. It is a liberating feeling, to live fully up to the end. I support those decisions, fully.

[@jazzy8009]

My nephew had gastric cancer. He passed May 10/24. He wasn't in hospice just the hospital. I saw him 4 hours before he died and he was on IV. I think he drowned to death. He was saying he couldn't breath to his family. Did he die a painful death? He had been in the hospital only 2 weeks. And they never offered hospice. This Abbotsford hospital Canada has a bad reputation. 2.5 stars

[@angelakalmer1852]

The most important thing to me is comfort & feeling better. I don't want to be in pain & I want help. Question, Is there a specific reason why someone would HAVE to go to a hospice care unit? Thanks for your videos. I greatly appreciate you doing all this!

[@Wayne-bi7py]

56 plus years of masochistic deception is what I've had to (and continue to have to) endure. Everything I've ever pursued has resulted in scars, pain, and almost complete emptiness. My righteous anger over this is what's going to save me.

[@monongahelacats]

I’m sorry you have had that experience.

[@Wayne-bi7py]

@@monongahelacats Thanks for your sympathy, professional caregiver of dementia patients and make-up enthusiast, but I can't allow my suffering to be belittled by incorrectly placing it merely in the past. As I stated, it is one that I continue to have to endure. I'm having to endure it right now in the present as well as having had to endure it for over 56 years in the past.

[@monongahelacats]

@@Wayne-bi7py I meant no offense whatsoever. Perhaps you are projecting your feelings onto my words? I hope you find peace now and in the future.

[@Wayne-bi7py]

@@monongahelacats Nobody finds permanent peace in this lifetime. Life is a struggle from cradle to grave for everyone.

[@Wayne-bi7py]

@@monongahelacats There's actually comfort that can be derived from my last statement that "life is a struggle for everyone from cradle to grave." The comfort is that it eliminates envy. Envy is an ugly deceptive thought that can be eradicated easily once one understands that everyone is a non-stop struggler. You (and I) are non-stop strugglers and so is everybody else, so there's no reason to envy what we already are.

[@monongahelacats]

Julie, can you help with family members who are resistant to the patient the care they need? I mean comfort medication and hospital beds and so forth. I’m a professional caregiver and I deal with dementia patients who suffer needlessly because the families don’t want mom on anti anxiety medication or they don’t want a hospital bed, but put the burden of carrying the patient to the shower (at home) as a dead weight? This is dangerous for the caregiver and the patient. Family doesn’t seem to understand even though they are intelligent, educated people.

[@propbraker]

You’re telling me that not providing water to some patients is not speeding it up? It is speeding it up, because patients are dying from dehydration, and not from the cancer some may have like when my Mother who passed the exact same way a few years ago.

[@user-bq9um2xr4f]

That’s not what she says. If someone is days from death, their will not want water and food. The body is designed to live but also knows how to die. Patients close to death do not feel thirsty or hungry. Actually, forcing water, eg through IV, will cause more physical problems and make the dying person very much more uncomfortable.

[@mikerussell9267]

My ex wife was an hospice nurse for many years but quit coz of too much stress n trauma. Accordingly from my perspective, experience n belief your hospice should give everyone a chans do repentens, get a Bible, a cross or a priest near by if so wants. Dont let people die without an option of change mind. My story goes back to 1975 & still moving on. I know my story aint fit in this channel but what true story does. I know my end. I.ve told clearly once gone i want my cross close around me. Many talking like Theres nothing after death. Theres whole lot of it but no one will ever find out. Its nice hearing you make some notes about it once in a while telling people about others near dead experiences. They dont lie.

[@PhilippinesFarmLife]

I have a different opinion Especially regarding my sisters death. The head nurse came in frequently and gave my sister injections despite the fact she was NOT IN PAIN. They OVERTREATED her and it shortened her life. I was told to leave by my niece because she said my sister would NOT PASS if I was there. I was the only family member who kept a vigil being there 24/7. My neice had a Multi level Fat Loss conference to attend and her mothers death was going to be a inconvienence. My sister passed away on a wednesday and my niece attended the weekend conference had put my sister in the morgue for a week and scheduled the Funeral in the middle of the next week preventing most who cared NOT able to come to the funeral instead of foregoing the optional conference and scheduling the funeral for the weekend. I have been pissed about this for 10 years

[@hospicenursejulie]

I'm so sorry for your experience and I'm sorry you've felt this for 10 years

[@tenekamailey1251]

Gosh.. I really appreciate you! My mom has been gone I believe almost 6 months now and I was there when she was going through the rattle and she really didn't stay on hospice long. Somehow, I still feel that some hospice business or companies need to make sure that their nurses are explaining what morphine does to you. And that if you give your loved one morphine plus Lorazepam it can send you quickly there. I really wish you could talk about why, when giving the medication of the two, why does it make their eyes go up or fixate? I have not seen a video like that yet.

[@Elizabeth-lj1vm]

I think it depends. MANY great hospice teams out there, BUT not all are great. Some do “speed up the process” without consent. It happened in our family.

[@hospicenursejulie]

I disagree - I can see how it could appear that way though.

[@jennylove3084]

Happened in mine too and I’m so sorry you had to deal with it as well 💕

[@ninaappelt9001]

I was helping my SIL with my MIL in her last month (she lived with BIL and SIL). She had in home hospice until she started terminal agitation that was not relieved by rhe meds. The nurse came late that night, did her thing to no avail. She went on hospice in the hospital. They got it under control. She died peacefully 10 days in.

[@Dmhub1967]

Donna from mass . Love your show and honesty😊

[@hospicenursejulie]

Thank you!

[@reqhskslkwe4480]

Thnks Julie by the way you are beautiful ❤

[@tracykrol83]

My mum wasn't even completely excepted to hospice in our hospital hospice she had no life ending disease and why is it that she was gone in two hrs she wasn't even on the lowest dose of morphine 1hrs and adivan I can't go into detail because of legal issues going on but I will say I was the guardian of my mother and Dr took instructions from youngest sibling that hadn't been around for 10 yrs and had no legal rights to make decisions... my mum passed June 27th 2023 my first mother's day without her

[@TheSwordComes]

Dad is in nursing home with Hospice. The more help the better.

[@normanjefferychester882]

Hi Julie, happy mother's Day to you and your family, and all the mothers all around the world

[@hospicenursejulie]

Thanks so much

[@normanjefferychester882]

@@hospicenursejulie thank you for educating people about hospice

[@lovesallanimals9948]

I preferto leave how much to treat cancer to a Dr

[@tiasalo1661]

I love this channel but it makes me cry. Life is too much fun to leave it all... what's wrong with me?

[@Cheri-Calif]

My son was offered hospice 9 months ago. He didn’t want to admit he was dying. He died 20 days ago, alone in his bed. If I only had 1 more day.

[@cullensmack]

Thanks!

[@hospicenursejulie]

thank you!

[@johnkaczinski468]

Julie- What does “living longer” actually mean? Is it, on the average, days or weeks or months? Thanks

[@lynnbarker7314]

Hi Julie! Thank you for your wonderful videos. They have been a great help and comfort for me. I am a 74 year old woman, 8 year lung cancer survivor and COPD patient. Disgustingly,I am still a smoker. I just can't quit. When I get to the point I can't take care of myself (actively dying) I want to go to Hospice House Woodside in Pinellas Park Florida. Do you know if rhe Hospice facilities are good? This one is down the street from my current home. I am a low income senior with no family, but I do have decent insurance. How difficult is it to get in a Hospice facility and do you feel it is a good decision for me? Thanks for any assistance you can offer.

[@rapidrrobert4333]

How do you know when it's "time"?

[@alirE2904]

My daighter was tortured to death by hospice and the nurses at the hospital, doctors also. She was kept too sedated with narvotics to eat or ask for water. Hospice murdered her.

[@hospicenursejulie]

I'm so sorry for your experience- I'm sending you love 💕💕💕💕

[@jennylove3084]

Yes! Same happened with my Grandma..I’m so sorry that you went thru it as well! 💔💔💔 I wouldn’t send an animal to hospice!

[@alirE2904]

@@jennylove3084 so sorry for your pain in knowing that. I am still traumatized knowing she suffered. I believed what the hospice nurses told me.

[@Wayne-bi7py]

Happy Mother's Day to you and to me, Julie! We're STEALING their holiday for ourselves. Now let's party!

[@Wayne-bi7py]

I only have pretend friends. I was writing to a different pretend friend earlier. Anything to kill the time until dawn. I walked around outside today in the trance state knowing I was in the trance state. I also went shopping and did laundry in the trance state. I don't need to be conscious to get stuff done. Haha. I'm sorry this comment is so boring. I just woke up from a nap and I'm waiting for my dinner to digest more before I do my nighttime drugs that prevent nights from being so lonely. Then I'm gonna write to my pretend self-proclaimed Yogi friend. He doesn't know any more than I do and I enjoy telling him that! Haha!

[@cutehumor]

People afraid of dying do not want to be in hospice. My dad and my sister refused hospice.

[@theonewhomjesusloves7360]

giving a patient morphine when they dont have pain does speed up death.

[@Elizabeth-lj1vm]

Yes, this is true.

[@hospicenursejulie]

There are other reasons we give morphine besides pain. Morphine relaxes the central nervous system- and decreases respirations - yes- But not enough to quicken death. No

[@DosFloresitas]

When Hospice stepped in to help with my mom agitation and aggression that shows up to Alzheimer individuals we got all the medications she needed and within the medications was Morphine. I asked why. The nurse informed me that the day will come when your mom might need it. Mom was in hospice care at home for 2 months. They didn’t pushed it. I can count the time it was used, 4 times. First time for pain, she had very bad arthritis and being bed ridden made it worse. The other 3 times was when mom’s breathing became irregular. It helps in making that breathing less hard. My mom died peacefully and I know she was comfortable. I am thankful to the doctors, nurses, aides. Social worker and chaplain who came and showed up for two months. Even when mom was gone they called to check on us the family.💐

[@mizaucontraire9224]

Not exactly. Mother had at home hospice and got decent care and had exceeded the expected time. But she began to need round the clock attention that it couldn’t provide. We found a very attractive inpatient hospice near family. It had a longer term wing, as it was expected she’d live another 3 to 5 months, but she had to wait for an open bed thus she stayed in the acute wing. She entered quite cognitively intact and befriended her nurses. But her death was hastened because the physicians flatly refused to continue her Coumadin. She’d thrown 2 prior clots in recent years but they didn’t care. She wasn’t ambulatory but they insisted Coumadin might cause her to fall. I complained and was told that she’d said she was ready to “go.” I said, “She means in 5 months, not 5 days.” But they were unmoved and in about 5 days she threw the clot that killed her. It was hideous; watching it was one of the great traumas of my life. Her outpatient hospice providers were astonished, even a nurse at the facility, who had taken a week off, couldn’t believe she had died in her absence. Choose your facility wisely, people.

[@zeliarogers]

Signs That Your Soul Has Already Reincarnated. ... Recurring Dreams. ... Out of Place Memories. ... You Have a Strong Intuition. ... Déjà vu. ... You are an Empath. ... Precognition. ... Retrocognition.

[@RABPWarrior]

YES IT DOESSSSSZZZZ JULIEEEEEEE….ok note to self: stop before coffee #4

[@inculcatetobemaudlin2943]

When Someone at the hospice, how could the hospice teams determine or if it’s possible for the patient to leave the hospice program ?

[@marilyncote-miller8010]

Julie, have you any explanation for or have you seen this? My father was in hospice and dying from a heart attack, stroke. At one point, he sat up straight looking into space with absolute horror on his face. Then he fell back and died about an hour later. It’s always trouble me.

[@jeanettecollazo9616]

My mom was in hospice for broken ribs and a puncture spleen she lived 8 days in agony 😢 don't recommend it

[@davidtifft66]

Is palative care different that hospice?

[@SheriMaass]

Yes!

[@hospicenursejulie]

Yes- I have another video about it 💕💕💕

[@angeleyes492]

@@hospicenursejulie I didn't know there was a difference between palliative care and hospice

[@George-qk6hg]

I think besides what you have said there is some thing called destiny. Some survive longer with the same sickness,same treatment and same preconditions compared to the rest with similar conditions. It can be only attributed to destiny ie what has been written on one's head when they were born in this planet ...

[@lannahh2076]

??? Do you have a checklist for a person who is "end of life" planning, to set up hospice care before they would need it...???? If not, where do you start? What should be in place....besides a basic will??Please advise.

[@susanwaters2662]

My dad was brought into hospice 4 days before he passed. He was very agitated on the first night and they gave him a few rounds of medication to ease the agitation and help him get to sleep, which he finally did at 2 am, he didn't wake again, and he passed 4 days later. My guilt now lies with why didn't I ask them to reduce the level of medication so that it'd give him a chance to wake to see and be with us before he passed, it's wracking me now with guilt😢

[@dlmsarge8329]

I was bedside for my younger brother's death and also my father's death a few years later. I hope you can take solace in knowing you did your best as a loving daughter and care workers did their best as professionals. These are tough experiences that stay with us until we pass.

[@hospicenursejulie]

Please please please watch my lives - I think they will help. I talk about this a lot. I'm not sure if you're new here - but if you are- my videos might help. You did nothing wrong - and I have a feeling that even if they did stop or lighten the medication- he either still would not have woken up (due to the actively dying process) OR he would have woken up and been agitated - which would have been not peaceful. I go live at 5pm (pst) on Wednesday

[@jennylove3084]

The same thing happened to my Grandma..My Dad didn’t even make it in time to say “Goodbye” because they doped her up with morphine and she never regained consciousness..Hospice is not rainbows and butterflies like they make it seem..I am so sorry that your Dad experienced the same thing..But, just know that it was not your fault..Sending so much love to you 💕💕💕

[@ericgoespop]

Hospice be keeping chronic hospice patients on the census

[@MagnoliaPantherWoman]

People with advanced stage severe chronic illness that no longer responds to treatment and is uncurable and unreversable do not qualify for hospice bc Medicare doesn't consider it terminal. So we'll never have access to hospce until that is changed. #MillionsMissing #MEaction

[@spokinabout2236]

if the illness is chronic, rather than terminal, then going on palliative care is the answer. hospice is palliative care for terminally ill folks with additional support for the end of life events. but if the illness is not terminal, then palliative care is a comparable choice and should provide noticeable relief, though clearly not a cure. see Julie's March 31, 2024 video about the difference between hospice and palliative care. you can do palliative care on the symptoms while still doing medical intervention for the underlying cause(s), but you can also give up the medical intervention and just do palliative relief for the symptoms.

[@MagnoliaPantherWoman]

​@@spokinabout2236 Right, I forgot to include that part. Thank you. I need to write the steps down for my own reference. Formal palliative care here won't take severe chronic illness patients, with the exception of one who's program is the same as what primary care can do here. Informal palliative care with your primary and main specialist is available, although their approach is limited to cobbling together nonpain medicines. Interventional pain management cannot help unless you can do physical therapy first as required by insurance. Severity and post-exertional malaise exclude physical therapy because it will make you more ill. MMJ is also available here. Neither are enough here, leaving symptoms at 8, 9, or 10+ on the 1 to 10 scale for years. They don't tell you about medication management except through a psychiatrist, who have been booked solid since 2020. You have to find out who does medication management, which I've finally located here. My ultimate question is will we ever qualify for hospice? Here you need to have already stopped eating and drinking for 3 days. And that means no oral medicine unless you can keep it down with sips... Or go to the hospital I suppose, one that honors your healthcare decisions... Or get non-oral forms of essential palliative medicines if you have access to those through your doctor. We don't have access to hospice until the very last 2 or 3 weeks, if at all here.

[@RABPWarrior]

Don’t extend my miserable sick life please.

[@KristineEstes-zq8jo]

AMEN 🙏

[@user-ze5tf8bv1u]

Bless you, I wish you peace and care ❤ xx

[@violetbertolino1774]

Why do people that are dying become in so much pain the need morphine and if you touch them they wince

[@user-zx9it9wn8l]

Look at Jimmy Carter.

[@carolatchley3797]

There's something I don't know about hospice, and that is how much does it cost? Is it sometimes covered by Medicare and supplemental insurances? Or not at all. Is cost one of the reasons people would reject hospice?

[@susangoble3938]

Most insurance policies, including Medicare, cover hospice at home 100%. If you want her to be in a bed at the hospice facility, I don't know if that expense is covered.

[@carolatchley3797]

@@susangoble3938, thank you for this information.

[@pattyw9543]

I believe it! Except when family members “over-treat” the benzo & opioid-naive patient with tons of Ativan and Morphine.

[@lovesallanimals9948]

Some people need it

[@tracykrol83]

Omg I just wrote my post about this read above

[@pattyw9543]

@@lovesallanimals9948a deadly overdose?

[@odettec1]

How much does Hospice cost?

[@user-he4hh2bs7t]

Our experience is Medicare paid for it and more of her meds during that phase.

[@belinda151]

Hi Julie my name is Belinda I have severe degenerative disc disease servere spinal stonisis servere arthritis iam 64my doctor told me my prognosis wasn't good I have had 3neck fusion 2 back surgeries I. Fusion and rods. Iam in unbearable constant pain my spine C1 down to S1 is terrible my pain doctor told me my spine is determining he said these is nothing he can do iam in servere pain I can only walk 3min I have to sit down Julie I have no life I have no family left they have passed Julie my pain doctor said I would get where I cannot stand cannot walk Julie I don't want to live when I get in that shape the way iam feeling it's not going to be long I have told hospice iam ready to go home iam a Christian I have always believed in my lord Amen Julie I want you to help me what will happen when I cannot walk nowhere I was always independent until I had that first back surgery 8 years ago I cannot get a doctor to give me pain medication Julie tell me what to do my right leg is getting weaker what will happen to me my body when I cannot walk nowhere please tell me like it is I want to know

[@RABPWarrior]

Hospice kills? 😩 I’m calling the waaammbulence!

[@hospicenursejulie]

Hahahaha... sstttooppppppp!!!!! 😬😬😖🥰

[@stephenw.9647]

to me it seems like a form of euthanize without telling the family

[@raloufen4292]

Better Health treats the patient??

[@hospicenursejulie]

It's actually better help- 🥰- I was saying wrong too. Better help Ken treat patients on hospice, or their caregivers.

[@Wayne-bi7py]

5:15 AM: piece of fucking cake. That ugly putrid black nighttime sky will be gone in about an hour from now. It is extremely offensive to me. Nobody else feels as I do about the nighttime sky and all of the other ugly things in this world. There is a lot of tolerance and even love for ugliness and also malevolence. Even I, when in the trance state, am guilty of such error. This is why constant vigilance is demanded. My persistence is paying off as demonstrated by my ever increasing awareness of the trance state even while in its grasp. My greatest difficulty is that my enchantment with the daytime world is a distraction from my succesfully fully eradicating the trance state. The trance state must be eradicated fully because it leads to masochistic behavior. I've amassed plenty of (otherwise unnecessary) ugly scars to prove it. With cleanliness and comfort unavailable to me, I must now aim for the only remaining thing that will do me any good: safety.

[@9983sp]

People watch your videos to😊 learn about hospice care, not some therapy outfit that you conned into sponsoring you.

[@katlaw3503]

Great explanation of Hospice! Our family had used them for 40 years 💜 I have a friend who is convinced Hospice killed her patents. One had been ill for 8+ years and was in their 80’s and the other was 99! I’m going to share this with him ❤️‍🩹 Thanks for all that you do to educate Julie!

[@hospicenursejulie]

Thank you so so so much