Hospital vlog day 18-19 | Cystic Fibrosis life

It’s the home stretch! One more sleep and I can go have a life for a few weeks.
It’s mentally draining going in and out so frequently, I think I’d handle it a lot better if I didn’t
Have so much resentment for not living whilst I’m home, so this next few weeks I’m going to be making
An extra effort to go and do something cool. I deserve it and I’m not afraid to say that! I’ve worked hard mentally
And physically to get through these last few weeks to not even feel that great, but I’ll push through to tick a few
More bits off the adventure bucket list!

[@AGiftedJourneyx]

Sleep and nutrition are so important for the body when it is fighting illness, and yet hospitals don't provide it. I also hate the whole 'they're worked off their feet, be patient'. We are prescribed treatments for a reason and when we don't get them on time we are the ones who suffer. I was in hospital for 4 weeks for uncontrolled seizures. For the first 3 weeks they watched me seize and counted how long each lasted. During the last week I actually had tests and started treatment. People say we are fortunate to have the NHS. To a degree perhaps, but negligence is not unheard of. I know with Cystic Fibrosis, unfortunately hospital is a second home for you. I wish that they could make the stay more pleasant and comfortable for you and others who have to spend a lot of time there. I hope you're okay. Is there any talk of a transplant at the moment? much love x

[@HollyGrace92]

You are doing absolutely amazing. I'm so proud of you, keep going. Not long to go and you'll be in the comfort of your own home!! ❤ xxx

[@karalanedmonds2575]

I also have my fingers crossed that you don’t have to stay in longer 🤞🏻🤞🏻🤞🏻🤞🏻 xx

[@katevooght7820]

I totally relate on the hospital showers !!!!!!! Unfortunately I never have my own... That would be luxury! Often I have to share a loo too as Exeter rooms don't have their own toilets often.. 😣

[@lowenplas]

Thankfully it was funded by a cf patients family so we have a cf side room. But still have my shower issue haha🧼

[@Kernomadz]

You’ve done great. I’m very proud of you. At least you’ve done exactly what you were asked to do. Xx

[@lowenplas]

😊 couldn’t do it without you!xx

[@AbbyKuusisto-cl7lr]

​@@lowenplasAgree!!❤❤❤❤❤❤

[@toploaded2078]

She’s totally ungrateful due to the criticism of hospital food!!!’ 🤬 ... (We’re friends and this is an in-joke for any onlookers 😅)

[@Kernomadz]

@@toploaded2078😂😂 I know right!? 😂🤦🏻‍♂️😂xx

[@katevooght7820]

Stalling discharge. Very relatable. So infuriating. Happens every time for me. Disorganisation is rife in the NHS 😅

[@lowenplas]

Everytime! Doesn’t matter what I put in place!

[@karalanedmonds2575]

We love you Jet 💚💚💚💚 Not long now lovely, it’s lovely to see you smile 😊 xxxx Also I wish I looked like you when I wake up.. I look like shrek 🤪💚🤣

[@lowenplas]

Love you all too. You’re the best ❤ hahaha no don’t say that I look like a ghost xx

[@MattJohnathan1987]

Hey everybody it's 1st June and guess what? JET 💚 is coming home, she's coming home, she's coming home, she's coming, JET 💚 is coming home 🤗💚💙💚💙 xx

[@CraigC20]

Amazing video jet, how dare they try and change the parameters that have been set out for ages, and they've had 3 weeks to do everything, bunch of Melts 😂 wont be long now, till your home with the boys xxx

[@lowenplas]

Does me box in Craig! Best laid plans and all that. But I’m stubborn so they won’t win 🤣

[@CraigC20]

I can only imagine, they have had 3 weeks to do what they needed to 😂, you've got the next few months to glow up ❤ aint nobody got time for the nonsense 😂 nearly homeward bound Jet, won't be long xx

[@CraigC20]

An yer stubborn with a dark sense of humour, wouldn't have you any other way 🎉 xx

[@Murrrrrrp]

🩷🩷

[@arnofunke7301]

Hi? How are you? Sorry, I’m from russia and my English isn’t well