How I Cured Chronic Fatigue Syndrome (ME/CFS)

In this video I lay out all the details of the 3 focus areas of recovery that finally delivered results with healing from chronic fatigue syndrome (ME/CFS). (Part 2 of my "Top 3 Things That Got Me Well" video.)
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #mecfs #merecovery #longcovid

[@RaelanAgle]

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[@raymilland3413]

There is NO cure for people who really have CFS. I don't know what you had but it wasn't CFS!!!!

[@raymilland3413]

You can't cure CFS by retraining your brain. CFS is caused by a viral infection and you CAN'T think that viral infection away. It's idiotic . Our CFS brain is on fire by our immune system which is activated by a virus or possibly some kind of pathogen. YOU CAN'T CURE CFS BY THINKING IT AWAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[@MzMeMe960]

The levels of chronic fatigue are so different. When you can’t get out of bed for 5 out of 7 days in a week and the other 2 you’re weak and dizzy, cooking whole food is impossible and exercise isn’t even a thought. Trying only caused more symptoms and a crash I can’t seem to overcome.

[@katesomething1701]

Exactly. We are too weak to shop and cook but I tried Atkins for 2 months cut out sugar drank almost nothing but water didn’t help much sorry

[@irismcq.3776]

Exercise just makes my pain worse. Have had it for over 20 +years and it has only gotten worse. Went to one of the best Mold Doctor's there is, and the main answer was always, "up the charcoal" intake. No, that simply just does not work. At least not for me. I certainly understand what you are saying, Just seems like in reality there is no hope for this illness. And change your mindset mentality, is total nonsense.

[@janettrobinson7072]

Agree everyone is different and at different stages of ME/ CFS i think that for me ( having it for 30 + years ) I have to atleast try to see what I am capable of and to get my body moving especially as I am now 68 it is heartbreaking to go from being able to run every day to only able to walk for a short while but each day is different with different levels of exhaustion and symptoms I know if I just sit and rest all day I am much worse but I think you have to work out what is right for you

[@Shakur7111]

What worked for you pls

[@aaroncarter6735]

​@@Shakur7111 treat it like an autoimmune illness. Cut out all processed sugar. Get recommended amount of vitamin D, iron, vitamin E and probiotic. Beet juice is a must . Cutting the sugar will help you feel better but you'll still be tired. Most of the things she suggested sound good except for the alcohol. Also they found a cure last year but the news seems slow getting out. pubmed.ncbi.nlm.nih.gov/37579159/

[@zenaudio108]

This is mostly good advice but I moderate a group of people who have severe ME, most of whom do all of the things spoken about here but do not see the same results. So, just to say that if that does happen to you, it is almost certainly not that you are not trying hard enough or need to think more positively. ME/CFS is really variable and comes in different kinds of severity. That does not mean it is ever a bad thing to do all that you can to give your body the best chance that it can to recover, and keep learning as much as you can about health and medicine, but you are not a failure if you do not recover. We are all doing the best we can with what we have. We should also celebrate every person who does get free of ME/CFS, so really happy to hear your story, Raelan.

[@RaelanAgle]

Very well said! There is no one path out of this and we are all doing our best ❤️

[@ScottResnickMD]

I think that the process is multifactorial, meaning that we need to modulate our environment, our biochemistry and our mind-body practices. There's no "one size fits all", but there's for sure a set of practices and measurements that "fit many."

[@aprililes8355]

​@Scott Resnick MD Thankyou for your advice!!

[@robinsharma8095]

Energy saving summary 1. Eliminate caffeine, alcohol and processed food. 2. Whole food plant based diet. 3. Occasional vegetable juicing. 4. Sleep hygiene. 5. Sauna, massages.

[@RaelanAgle]

It was a bit more than that, but great job capturing some of the main points!

[@robinsharma8095]

@@RaelanAgle Oh Thank you, How long did it take to get better? How long should I expect?

[@RaelanAgle]

@@robinsharma8095 for me it took about 2 years in the end of really working on recovery before I finally felt back to full health. But we are all so individual, it's really hard to say what the experience might be like for others. I'd been sick for almost ten years at that point and I would imagine that this would contribute to how long recovery would take. Plus had I known everything that I know now, I could have done it faster!

[@nolawest5183]

🤣 Hahaha I know what you mean... I speed up my videos just to get through them otherwise they frustrate me to no end... But, I learn a lot!!!

[@ebonylover539]

I can't do without coffee ! It is a must

[@loobyluB]

I’m glad it worked for you but it’s simplistic and tbh most people with cfs/me are doing all of this stuff as it’s a no brainer and nothing has really changed. Concerning about the fasting. I know a lot of cfs people crash from fasting. It’s harsh on the body

[@irismcq.3776]

Agreed!!.......and fasting is just too much for a cfs/me like myself! There is no real help.

[@ellasoriginalchannel9713]

Mostly I agree, but fasting is NOT at all hard on ones body, when done the CORRECT way. We all fast at night and our bodies need that to rest. Fast is ONLY hard, when we go over board with it. Women should not be fasting right before periods either, because it negatively affects the hormone balance. But as I said, we all fast between evening and morning, it is rest for our body and only harsh, when done wrong.

[@katovomkozies]

Look up Carrie Bennet & Dr Kruse....You need to fix your mitochondria

[@Truerealism747]

@@katovomkozies has it helped you it's pain worst for me

[@katovomkozies]

@@Truerealism747 Yes, it has helped me greatly

[@annadelrio6563]

Thanks sooo much for this! I needed some ideas, and some testimony to get motivation to take charge of my health and get on the path of getting better. Really appreciate it :)

[@denverjade6736]

OMG-you seriously are my angel and my hero, Raelan!! I've been wanting to write this for a while but was too exhausted. I came across this video (and then some more of your videos, thankfully!) a few months ago, when I was in bed and having trouble doing the most basic daily things in life. I had completely stopped exercising and stretching because I had no energy. Then I saw this and began doing stretches in bed for a few seconds at a time before getting exhausted. I didn't think a few seconds would make a difference before I watched this video. Fast-forward to now: I'm able to be out of bed on most days and am doing 20-25 minutes of stretching daily (and one or 2 light strengthening exercises once a week or every other week). I'm feeling stronger and am able to do my ADLs and more on many days. You literally saved my life and my sanity!!! So thank you SOOO much for this; you really are an angel!!!! There is one question that's been bothering me and I'm now strong enough:) to type it up. Here goes: You speak of recovery a lot and how others have recovered and I'm wondering what it actually means. I might be getting too technical about the term but recovery to me has always been when something is completely gone. I survived cancer and I'm recovered because it's either there or it isn't (if you're lucky:). With ME/CFS I'm unclear because it's considered chronic, so I keep wondering if I'll ever be able to do things without having to worry about my energy-levels. From what I've been reading, it seems like it's either dormant or active and could become active if you're not careful. It might be a stupid question but I've always been someone who was active and loved going places whenever I felt like and I miss that freedom so desperately! So I'm wondering what you mean by the term 'Recovery.' Thank you once again for being you and for putting yourself out there, so that the world could be a better place and people could be inspired and and feel supported by your being!! Sincerely, Denver

[@ayeshakhan-du1pb]

Raelan I’ve to say you nailed it ! I’ve been suffering from CFS (not officially diagnosed) for the past 5 years . And I’ve to say the journey hasn’t been smooth but for sure god has made me a better person in terms of inner strength and ability I’m so thankful for your valuable info and soothing voice ..I broke down realizing someone there’s someone out there that knows that it’s not all in your head . Thanks for sharing your healing journey I’ve incorporated lots of yoga, meditation , setting priorities (for myself not just others ) and some diet changes ..which has really helped with my journey Now I’m on the path to becoming vegan hopefully to see the positive changes that many experience Thanks once again

[@gerafinali4384]

Anytime I do yoga, I crash.

[@Kepss1222]

@@gerafinali4384 have you tried Yin yoga?

[@jenscotney]

Love this video thanks! I think I have found similar things helping, I hadn’t thought of lymphatic system though. It’s great to hear how slow the progress was - gives me hope to carry on little by little! 💖

[@RaelanAgle]

Glad it was helpful!

[@riyadhsyami]

Hi Raelan, thank you for sharing. These meant a lot for me. There is hope to overcome CFS/ ME, and where I came from in South Asia, the awareness about this is much more lacking. I felt alone and that my syndrome were just in my head. So, it's always helpful to know the story from someone who is healing, and it is real. While this is not related, but I want to say that you're strong for healing from this. And you are beautiful :)

[@RaelanAgle]

Hello Riyadh, I'm so sorry to hear about the struggles that you have been facing. I'm glad that these videos are helping in some small way and I appreciate you taking the time to share that. I hope you find what you need (and soon!) to recover also 🌟

[@honomuhawaii]

THIS IS EXCELLENT -- summarizes everything I have found to be true about acquiring and maintaining good health..this advice will help improve ANY condition... beautiful presentation!

[@RaelanAgle]

That's so great to hear, Wendy! Thanks for the support and I hope you are doing well in your own journey 💗

[@margottfon330]

Any condition?? Do you know anything about KFS specifically?? 😒

[@TupacMixx]

Thank you so much for your efforts and time to share this with us ☺️ 👌

[@RaelanAgle]

It's my pleasure, Maxim! Thank you for sending some support and kindness my way 😊

[@drewvega2260]

I’m finding that this is all very idealistic. I only have a couple hours worth of energy a day, which like most I have to spend on working. When it’s so severe that you are disabled by it, everything seems impossible.

[@jeansmyth7474]

Beware of people claiming to have cured their ME. There is at present no cure for ME and their advice must be treated with caution. Their are thousands of ME patients who have tried all these alternative routes and remain ill. Would that it was so simple. Extreme diets and exercise regimes may bring on relapse. For reliable advice see M E Association (UK). Set up by medical professionals.

[@mondaystephen3706]

@@jeansmyth7474 looks like you don't believe in the super natural... I am telling the truth my dearm

[@drewperez7924]

@@jeansmyth7474 Thanks. I run a successful business but I am constantly reminded of my limitations by this disease. When I tried to do moderate diet and exercise recently, I got very inflamed with lots of very peculiar rashes and excessive recovery time, sometimes 16-18 hours of sleep needed. Spent $650-800/mo on personal training because I was serious about recovering. But it was to no avail and it is presently better for me to just work a little less and pay for help with shopping and other things I am unable to do at 28 years old.

[@drewperez7924]

@@jeansmyth7474 There's definitely no cure though, medication and other things just mask the symptoms.

[@jeansmyth7474]

@@drewperez7924 At your age if you are careful you could recover quite a lot over time. Dr Shepherd, head of ME Association in London says he has recovered 80%. but he is still be managing the illness. If you find that exercise is helping your condition then this would be a different illness to ME. It is important to see a recognised ME consultant as there are other conditions that give ME symptoms and can be treated. I understand that there are tests that can be done now using conditions before and after exercise that give reliable diagnosis. I took the advice to exercise when I first became ill and became very disabled. I went on to recover about 25%. And stopped there with relapses after exertion which sometimes can’t be avoided. It is so important to stay within your own energy envelope and save some energy for recovery. MEis not a regenerative illness and the tendency is to slowly improve with time.

[@ciannaguillen8541]

Great video! Thank you so much for sharing this!😊🙏

[@RaelanAgle]

You are so welcome, Cianna! Glad you enjoyed it. :)

[@missterry626]

That was wonderful, it was exactly what I needed to hear right now. Thank you

[@RaelanAgle]

So glad!

[@mereSwamp]

This has been really encouraging. I was afraid that I wouldn't be able to do exercise because I have gotten to the point where I'm in a lot of pain when I exercise normally and I often get sick the next few days. But now I'm starting to realize that I can still do light exercise and work my way up from there. The hardest thing for me was constantly feeling like people were judging me for not doing regular exercise and I have gotten pressure from family members to exercise more because I'm constantly in pain and tired. I got to the point where I completely stopped trying to exercise altogether because I ended up pushing myself too far trying to do what I thought a person should normally be able to do. I got sore, sick, and depressed a handful of times because of this. I want to let people know from my experience that it is ok to start small. It's ok to start with small exercise like wall pushups 1 day a week and work your way up because the goal is long term health. And if your goal is to gain weight, it's ok to increase the amount you eat by a little and focus on nutrient dense foods. Don't let anybody discourage you or make you feel like your efforts don't count. As long as you are doing your best and being consistent, you are going in the right direction. Always, always, always, listen to your body and don't push yourself too hard. Also, make sure you go to medical professionals for advice and help and make sure you voice your concerns to them. Healing and improved health don't happen overnight so keep taking steps to move forward and be honest with yourself.

[@RaelanAgle]

Very well said Mere! Thanks for this 💙

[@paul2019monte]

The lag in symptom worsening (48-72 hours after exertion for me) is called "post exertional malaise" or PEM. This is a unique feature of ME/CFS. It always used to confuse me as the response comes not the next day like usual overexertion but several days later. This confused me as it was difficult to correlate one with the other period also by the time I would realize I had overexerted I had already done it.

[@Truerealism747]

Where do you get your pain everyday or as it moved over the years

[@wendylpa]

Thank you for sharing! I too get sick after exercise. It’s horribly inflammatory for me. Sometimes I’m bedridden for days with PEM. MDs told me it was ‘all in my head’, for decades. So that has been so frustrating. After 35 years of pain, only in the past 5 years did any MDS acknowledge this was real. 😮

[@Truerealism747]

@@wendylpa I've been to sychiatrist today says it's not in my head central sentization though confirmed I have Asperger's

[@kme3894]

thank you for this video. You have confirmed everything I was observing in my life empirically and given me the final push to do all those things more and more consistently

[@RaelanAgle]

That's so great to hear, KD! I'm so excited for you and hope you see some awesome transformation soon. :)

[@kme3894]

@@RaelanAgle thanks! 😊

[@topaze221]

Hi. Thanks for the good info. I just had a covid test of negative. I had a bad virus a couple years ago and felt terrible afterwards. I muddled along and had a few relapses. Blood work looked good according to Dr. I now have to follow a plan and your video is the first one I watched. Such good info. I am getting fatigued writing this but am so glad I found you.

[@alicianorton3033]

Thank you so much for sharing this! Such an important reminder for a bad day 🙏🏻

[@RaelanAgle]

💓💓💓

[@bizzyfit2128]

Thank you for speaking to workouts and fatigue. That's my frustration right now.

[@paulsenjohannes]

Excellent testimony and information. It very much line up with my own experience with ME/FM.

[@elstifo]

I cut off alcohol completely. I got extremely depressed while intoxicated. Plus, I gave me IBS-like symptoms. Best decision ever!

[@EliseBellew]

Hi Raelan : ) I just wanted to thank you for all you do! I am finding that strength training every 3rd day is really working for me : ) I can’t believe I’m actually exercising again! It’s been in super small increments that are really starting to add up! I’ve had so many failed attempts at exercise, I never would have believed strength training would be possible, but it really is… every 3rd day : ) I have a new affirmation that gives me great joy “I am becoming Athletic”

[@RaelanAgle]

Wonderful, Elise! Small steps for the win!

[@upstairsmanagement]

Thanks for this information Raelen and the commenters below; it's really appreciated. I am recently diagnosed. This was super helpful with just the key points to watch. I just arranged a healthy meal service based on what you and the others kindly below said rightly about preparing good food (I love to cook) and have no energy to do it (which actually makes me sad). I've been sober for 4 years coming into my diagnosis, so it's interesting what you say about that. Looks like I accidentally pre-prepared for that one!

[@nigeldavis5107]

Thanks for the video Raelan.

[@RaelanAgle]

You bet, Nigel. My pleasure!

[@jabrayjay6679]

Working my way through your videos alongside the ANS rewire - thank you so much for all the helpful free content!

[@sammysworld5485]

Happy to hear your success story. It's also important for individuals who suspect having ME/CFS to reach out to a experienced functional Medicine Dr. that can properly diagnose & help treat this illness. Do not seek modern medical Dr's who are clueless since they only treat symptoms not underlying cause of illness. I battled with EBV, VZV & HSV-1 which all causes ME/CFS. It took me years to figure this out with extensive research. Yes, I agree with food, diet & lifestyle changes is needed. Also the right supplements are even more important such as Vit B complex, Liposomal Vit C, Monolaurin, NAC, Magnesium, L-Lysine, Vit E, Ashwagandha to name a few... it's important to get rid of the toxic viral overload to a quick successful recovery!

[@RaelanAgle]

Hi Sammy, thanks so much for sharing this. That is such a great point about going outside of Western medicine, the best doctor I found practiced integrative medicine and he was by far the most helpful doctor I found. Supplements haven't done wonders for me personally but I know that many others find it helpful to take them so that is also a great thing to point out. And I'm so glad to hear you've had so much progress with recovery!

[@lalitupadhyay9271]

@@RaelanAgle Hi Raelan, can you please share if there's any link to reach this integrative medicine doctor online? 🙏

[@HappyHolyHealthyLife]

Thanks for making this video 🤗❤

[@RaelanAgle]

My pleasure 😊

[@TheLuminousOne]

Thank you so much for sharing! Excellent video.

[@RaelanAgle]

💓💓💓

[@MonicaPhoenix]

Thank you so much for sharing your tips! 💯

[@RaelanAgle]

You're so welcome, Monika!

[@annafringetree]

I am so excited to find your channel! Subscribed and diving in head first. I’m back to being vegan (but now WFPB, no oil) the last 7 weeks and quit coffee 2 months ago. Need to clean up some other areas, especially sleep and stress, and cut back on running and add strength-building. I’ve dealt with CFS/Fibromyalgia for 20 years. Already seeing results with WFPB and no caffeine. So excited to go through your videos. Thank you!!!

[@RaelanAgle]

Hey Anna! Thanks for subscribing and I'm so glad something here has been helpful. Wishing you your fastest path out of this! ❤️❤️❤️

[@annafringetree]

@@RaelanAgle , thank you! 💜 I’ve been listening to everything I can about The Perrin Technique by Dr. Raymond Perrin. Fascinating research about the lymphatic system.

[@Truerealism747]

@@annafringetree Did this cure you

[@dpmedhurst]

Thank you so much for your guidance and encouragement.

[@RaelanAgle]

Always welcome, David.

[@clicknetusa]

Amazing. Well said too. Great brief overview.

[@RaelanAgle]

So glad this was helpful, Chris!

[@KudiGirl18]

I have struggled with debilitating CFS for almost 10 years now. Back then, no one knew much about it not even my doctor. Til this day I’ve still not had an medical guidance but I continue to do research. Today, during my research I found this video and your page and I am crying. I can’t wait to watch the rest of your channel on hopes of tips for me to feel better. I can’t thank you enough for sharing. I didn’t know there was a whole community of people who struggled as well with this. Most people think it’s in your head and don’t understand. God bless you and please never stop sharing.

[@RaelanAgle]

I'm so sorry to hear that you've been going through this - and mostly alone. Many of us can relate though, it can be an isolating illness that it seems very few understand. I am here cheering you on and wishing you the absolute best with your own recovery journey 🌷💛

[@lordaturehealingandcuremir1176]

I can help you overcome.. am a spiritual healer. Message me on Whatsapp (([phone]))...

[@CricketGirrl]

Im curious--it's been two years. Are you cured after this program?

[@letsgaintogether8959]

​@@CricketGirrlhow are u now?

[@davidhodge8509]

So so so encouraging! Thank you! I was feeling amazing a month ago after years of recovery. I got so confident that I decided to do a 4 mile hike with a 1,200 ft elevation gain. The next day I crash. I need to put my ego aside, like you said. This video gives me so much hope. Thank you!

[@RaelanAgle]

Oh that's so nice to hear, David! I'm so glad you found the video helpful. I really appreciate you taking the time to share a bit of your experience (and also show me some support 😀). And I can definitely relate to the ego struggles! Wow can I ever. And that's an ambitious hike for anyone. I'm sorry you crashed afterwards, I imagine that was quite frustrating. Your attitude seems to be in the right place though. It seems you are totally on top of this recovery thing, good for you for working so hard.

[@merolawson1352]

Wonderful video. I'm just starting a raw diet today and I'll incorporate fasting as well. I've been suffering this for a year. I took the decision yesterday and now I've seen your video. Thank you so much.

[@RaelanAgle]

So glad it was helpful, Mero, and sending you all my best with this 🌟

[@maddycole]

This video helped me so much. Thank you.

[@RaelanAgle]

I'm so glad, Maddy!

[@evonne315]

Thank you for this info packed summary!!

[@RaelanAgle]

Glad you like it, Emaire! ❤️

[@laurenhuston2142]

This is super helpful, thankyou!

[@RaelanAgle]

Glad it was helpful!

[@canahata]

thank you SO much for this

[@RaelanAgle]

You're so welcome!

[@chrisgotto4295]

Props to you for answering all the comments below, thanks for the video post as well! Also, you're a beautiful woman

[@RaelanAgle]

I appreciate that, Chris!

[@Epotimet93]

Thanks for sharing your story!

[@RaelanAgle]

aww thank you! 💓💓💓

[@ShaeLaird]

Thank you for this. I don’t have CFS but I do find myself napping all the time. I have implemented everything you named once upon time but it’s hard to remain consistent.

[@RaelanAgle]

💛

[@alexandermeyer6647]

Thanks so much from sharing! Inspiring :-)

[@RaelanAgle]

You are so welcome!

[@inmalikp]

Thank you, really helpful 👍👍

[@RaelanAgle]

You're very welcome, Inma!

[@ma1102]

Your experience with alcohol giving you some pep is so interesting! It always made me so sleepy. I’m frustrated with it cause I love a glass of red wine at night/dinner but it’s not worth getting tired for no reason. Awesome video, your hair looks gorgeous! 🥰

[@RaelanAgle]

Oh wow Clairese, YOUR experience with alcohol is so interesting! I've been so curious how others find this. It was a bit of a mixed blessing with me because it gave me energy and made me feel almost "normal" (which was great) but then for a stretch I was using alcohol way too much for this, which is clearly not healthy!! Oh, and thanks so much for the super kind feedback on my hair! Hope you're doing well 💗

[@rosauro5513]

Nice video tutorial..i will try this..thanks for sharing..big help

[@klarajolesz2759]

Love these vids! Long covid sufferer here. I love the idea of strength training. Are short, slow walks a good idea or are they considered cardio?

[@RaelanAgle]

For me, I didn't find that the walks were helping me all that much and they used up energy that I could be using for strength straining so I lumped them in the 'cardio' category for myself. But I've heard others say that walking has helped them a lot, so I suspect it's all a bit individual 😊

[@larryc1616]

You should not do anything that causes pem and dpem. Do everything up to that point, wear a watch and step counter to find your limit.

[@allysoncheynes1216]

Congratulations and thank you for sharing this.

[@jaimac15]

Thanks for sharing your story and your check list. Just curious how long before you started seeing a difference?

[@RaelanAgle]

Good question. Within about two weeks I was able to slightly up my movement/exercise program (by only one minute, but it was still an improvement for me!). I do recall the 6 month mark feeling like a real turning point for me - my sleep finally started to improve, by aches significantly decreased, and I was up to 20-30 minute light to moderate intensity workouts. :)

[@solarie.sirena]

Thank you so much for this !! I've been at a loss about how chronic fatigue syndrome fits into the grand scheme of things, how it is a blessing in disguise because it's so hard to see it that way ... I looked up words from author of 'conversations with god' about chronic pain and fatigue, and didn't find any, but found this instead..! I feel like you helped me see the answer why ; to become patient and persistent, to be aware of toxins and clean them out, to value rest, to adopt a diet that is good for all.... I'm really desperate for change, to the extent that I started considering to eat meat again even though it goes completely against my ethics! I just want to do whatever I can to recover now. It seems like you told me the basis of what I needed to hear to make a good plan for recovery. ❤ I would love to hear more about things that helped you personally, esspecially about sleep and the lymphatic system. I'm not sure if it's because you've written it down, but if you felt rushed to speak briefly, please make a video where you just say what you want! Sometimes we try to hold back, especially when it's from personal experience cause we don't know if it will apply to others, but it will reach and help the ones who need to hear that.

[@RaelanAgle]

It CAN be really hard to see it as a blessing in disguise, can't it. Because this can be pure hell and it can be incredibly challenging to be appreciative for what good this hell is bringing you. And I empathize with the confusing nature of diet. Plant-based has done wonders for me, but some others seem to thrive on things like keto, so it can be so confusing. I'm so glad that you found this video helpful. And this is such incredibly helpful and appreciated feedback! Thank you so much for this. I sometimes hear that my videos should be as short as possible so I do sometimes try to rush through things. I'm learning and getting more comfortable with all of this as I go and comments like yours really help me a lot in knowing how to move forward! Thanks for sharing a bit of your experience and also for sending some kindness and support my way ☺️

[@alliem1072]

So Ul Have you started to eat meat again? You mentioned this and I'm curious! I feel the exact same way- I'm vegetarian, but wonder if meat would help my body heal in a new way. I haven't done it just yet...

[@solarie.sirena]

@@alliem1072 Hi ! No I just couldn't do it, cause I'm vegetarian for ethical reasons. And I ate some fish & it made me feel sick ... :3 But that's just my choice. If you're really weak I think organic chicken and wild fish can be helpful. I recommend looking up Ayurveda. This ancient Indian science would recommend to eat fish or chicken if you're ill especially, but not meat for anyone. Maybe it can help you! I realized I've been naturally cutting out things that aren't good for me & am now nearly following the Ayurvedic meal plan that was recommended to me ! There's specific foods for different body types Good luck on your journey! I may have more to share if you need help. Although I am not well yet. But I've realized that so many of the choices I make because of my health are actually choices I should have been making all along! It forces u to cut out toxins and that is a really important part of the lesson of being human ❤

[@RaelanAgle]

@@alliem1072 Now I stick to about 95% plant-based. So I eat meat a couple of times per month now. Yeah it's a lot of experimenting, isn't it?! Some people seem to really thrive on a meat-based diet, and others (like myself) seem to need a plant-based diet. I hope you find the perfect diet for you soon!

[@rickabbott3772]

Long term every healthy long living people like the blue zones eat some high quality meat and animal goods daily even if small amounts everybody needs meat but in different amounts it takes experimentation good luck.

[@k1ghz960]

Your work on this condition is some of the best ever, thank you so much. Does it make you nervous when someone says they have completely cured themselves? I ask because I have done this myself only to be slapped back down again with the next relapse.Thank you so much again.

[@sunshinehurricanemix]

Thank you so much for giving me hope. I'm going to try your advice will keep you posted. I would like to see a CFS yoga/stretching video

[@RaelanAgle]

You are so welcome! I'm not such a yoga expert myself but have done a coupe stretching videos that you can find on this playlist here 😊 kzbin.info/aero/PLNX_MIJ_pJAaFBf3oG_wIALW61VCXQDHz

[@jaydenskeeper1]

How did you have the energy to start all this. Just the diet means shopping, prep, cooking and planning. When you are so tired even that sounds huge. It’s so much easier to grab a granola bar.:/

[@RaelanAgle]

So true! It wasn't always perfect and I just did what I could. But I knew if I didn't find a way then nothing would ever change - which is a pretty big motivator to get creative and find a way!

[@agnidas5816]

Even easier and cheaper to grab an apple than a granola bar. Canned beans, apples, bananas, oranges, carrots, shelled sunflower seeds/pumpkin seeds. All can be eaten with no prep and fairly cheaply. And you can cook the beans yourself too to save more money ... it doesn't take much - boil it and throw in a spice mix like a curry powder.

[@youknowcrimedontpay9257]

@Lacey Anders Hi Lacey, I like the post you made. Just to clarify did you mean we Do not have motavation? Was it a typo and did you mean ( Do Not have)?

[@youknowcrimedontpay9257]

@Lacey Anders Thank you for clarifying. I have ME & FM and I have lost motavation likely from being unable to escape my illnesses including depression for the past 39 years. May I ask you if you have chronic pain? Thank you for answering me.

[@22Purplemist]

@@agnidas5816 - all very well if you can actually get out of bed to do this

[@francinesanchez5402]

I just wanted to say thank you for putting this info out here!! It would be wonderful to recover one day. It’s like getting a future back.

[@roblovegreen]

Thank you for sharing. So glad you found your healing. I’m curious in regards to your diet. Does your diet include added fat in the form of oils like coconut and olive oil?

[@RaelanAgle]

Hey Rob! Yes it does, in moderate amounts.

[@roblovegreen]

@@RaelanAgle Good. I think the science supports that as healthy as our bodies need fats. I don’t think ultra low fat vegan diets are healthy long term. I’ve had good results on keto in the past when I included lots of vegetables daily. One thing most agree in except some of the carnivores is that lots of vegetables in the diet is healthy.

[@AllThingsAlexa]

Thanks for sharing. I joined your channel and can’t wait to watch more. I am willing to do whatever I can to feel better, I haven’t been diagnosed yet, a doctor I saw last week said if my MRI (still waiting for it) comes back clear then him and the neurologist said they think it is post viral syndrome / chronic fatigue syndrome ... Most the other things have been ruled out. I have been vegan for 4 years already, I stopped all alcohol the start of august when I got bad neurological symptoms. 💛

[@RaelanAgle]

Wishing you all the best with this Alexa, I hope you find what you need to get past this soon 💛

[@melindamorrison1]

I'm seeing a doctor on Thursday. I had a baby almost 7 weeks ago and I have had body aches and sensitivity to light ever since, Also tired, even when I get extra sleep and more recently my joints hurt. I'm 40 years old and this is new territory for me.

[@AllThingsAlexa]

@@melindamorrison1 wishing you the best! Hmm I had my “baby” two years ago and my main symptoms started a year and a half ago 🤔 Just had my MRI yesterday!

[@Truerealism747]

Look Dr schubiner TMS your stress response stuck in as mine

[@dralshaer85]

Thanks for this great information..

[@RaelanAgle]

Glad it was helpful!

[@somyasharma7751]

Thank you for sharing. ❤️

[@RaelanAgle]

Thanks for watching!

[@sabylaby]

Thank you I feel fatigue all the time And pain in my whole body

[@Canadian_Eh_I]

can relate

[@ausskull]

Thanks for the video! How did you or your doctor diagnosed that you have CFS? Was it blood test, scans? Thanks

[@RaelanAgle]

No prob! My doctor started by doing a bunch of tests and ruling a bunch of things out, and then after assessing my symptoms determined it was CFS.

[@pugglesammy]

Did you go privately for these tests or NHS?

[@Minaretfm]

There is a lot of science behind your personal observations & experiences. I’ve tried everything & still experience CFS. I Can be symptom free for weeks or days, or hours, & then crash for no apparent reason. Thanks for sharing.

[@linnhelene5022]

Great video :) I believe diet is important as well, and I would love to hear more about it. Maybe you could share some recipes?

[@RaelanAgle]

Thanks, Linn! Thanks for the feedback and I'm so glad you liked it. Diet is huge, isn't it?! And I actually am in the middle of working on 2 videos that will be posted soon that will share what I eat, recipes, etc. :)

[@Robert2931Jacobs]

Thank you. Very informative

[@RaelanAgle]

💓💓💓

[@Robert2931Jacobs]

@Raelan Agle Thank you for your tip about alcohol. I was on an anniversary weekend away with my wife and could not go on until I started drinking alcohol. I had quit drinking for four years. As soon as I had my first drink, my fatigue left me, and I was able to have a great night with dinner and a late hourse and carriage ride through the old city of St. Augustin, Florida. I didn't over due it. Just enough to keep going. It meant a lot to have a temporary hack to by pass fatigue. Thanks again@

[@stacylamotte5517]

Thank you Raelan so very much!!!

[@RaelanAgle]

💓💓💓

[@afrosteeve]

THis lady cut out: Coffee Alcohol Processed Foods And added: Food based probiotics (fermented foods) Whole foods plant based diet Intermittent fasting (eat within 8 hour window - give organs a break) Periodic juice cleansing (3 times a year - 3 days of consuming only low glycemic vegetable juice) Sleeping better Getting more sun Helping lymphatic system - more movement throughout the day, hot and cold showers Rebuilding physical strength - no cardio just building up strength training very gradually Thank you for sharing what helped you Ms. Agle. Praying for your continued recovery, Our Lady of Perpetual Help pray for us.

[@pugglesammy]

She also mentioned that she had a very supportive husband who paid for all of her treatments and food when she couldn't work, had meals prepared etc and paid for massages etc. A support network is vital with any chronic illness as is having the financial means because when you lose your income, you're flat broke.

[@ermarizvi1224]

Thanks for this, it was super helpful. I especially appreciate the part about the exercise because my ego also keeps getting in the way. I guess I am not starting small enough and keep over doing it!

[@waynebruce1902]

Hello, thank you for such a detailed video. I really like your positive energy. Quick question if you don't mine...did you limit the amounts of the foods you allowed yourself to eat? Like the fruits and nuts and things. Also (I guess this is 2 questions), did you eat your nuts roasted or raw? Thank you

[@RaelanAgle]

Hi Wayne! Thanks for the supportive feedback, I appreciate it ❤️ Good questions. 1. I did (and do) intermittent fasting and don't worry so much about portions as long as I eat within my window. My diet is pretty 'clean' so I don't fear overeating will hurt me all that much. 2. During my first coupe of years with this illness I ate virtually all my nuts raw, however after that (and during my eventual recovery) I was eating a mix of roasted and raw. Sending all my best to you 😊

[@waynebruce1902]

@@RaelanAgle Thanks a lot for the reply and for the great videos. Keep it up :)

[@jeansmyth7474]

I have different type of ME. I have tried all these diet changes but i just made slight improvement. I could never have touched any alcohol as it made me feel so ill. I also sleep about 12 hours a day. I think it is important to get proper diagnosis. Severe food allergy illness has lot of symptoms in common with ME and responds well to dietary changes. It is important not to confuse these conditions as recovery routes are different despite symptoms being similar to some extent.

[@naNO818ETF7]

Try beef liver and beef spleen grass fed it work perfect

[@gumogumonopistol7491]

It takes years for some people.

[@Chandrika-Moon]

@@naNO818ETF7 Tell me more! What else did you eat or do? Are you better? 🙏

[@Truerealism747]

Do you have hypomobility

[@honeysuckle9830]

So happy it worked for you! Wish it was this easy for me…been doing what you stated for most of my life and the cfs isn’t going anywhere:(

[@davidhodge8509]

Thanks for sharing! Did you have any setbacks once you started truly recovering? I’ve been recovering for 2 years with a phenomenal functional dr and have been doing everything you mention in this video, but still have setbacks when I push myself too hard. I was 90% better but now dropped back down to 80%. It’s discouraging.

[@RaelanAgle]

That does sound discouraging, I'm really sorry to hear that. That's so incredible that you've made such progress and I imagine that having setbacks like that are tough to accept. I struggle answering this question at the moment actually about my own recovery. I have been doing GREAT and am feeling fully past this. But! I've really been pushing with the exercise lately (working out twice per day many days) and just this week I've felt myself dragging and had to take a 3 full days off from exercise because I felt so depleted. But then after that I was back to normal and good to go. But this is the first time this has happened. So...am I just overdoing it? Is this something that sometimes happens to people who push this hard at my age? Or is CFS still lurking? Honestly, I'm not sure. I haven't had any major setbacks so far thankfully during my recovery and I am choosing to have faith that I am 100% past this now, but honestly only time will tell. I hope you get back to where you were soon and that this is the last of the setbacks for you! Hang in there 🙃

[@davidhodge8509]

Raelan Agle that’s amazing that you’re now able to work out twice a day for multiple days and that it only took you out for a few days. I hope to get to that point someday soon! I have two young boys so I’m fighting for them. Can’t give up!

[@RaelanAgle]

@@davidhodge8509 I love your attitude and drive with this! It seems to be a winning combo for recovery. Sending my best to you with this David!

[@someoneusa]

@@RaelanAgle That is absolutely normal for even the healthiest people. I take 3-4 days to recover from one workout, on good days, with nothing else going on besides, gym , bed and walking my dog for a few blocks. Workout days means, I only workout, then back in bed for 3-4 days. 20 years in. Diet is on point and has been most of my life. A month ago I worked out after a month off, took me out for a month. Last week I worked out, took me out for a week. Better than a month, but again ,this is the only thing I am doing.

[@Truerealism747]

How are you now

[@simplysavvy0113]

I find myself self medicating with alcohol too, and I know it's making me sicker, to the point it's a real love hate relationship. I understand the complexity of this dynamic. It needs to go but I need to replace it with a plan I can stick to. Thanks for acknowledging that part of the struggle.

[@mikecb39]

Same: Someone told me that scientists have made an alcohol substitute that is none toxic but I don't think it's available yet. He said that there is a herbal alternative which he uses and works but can't think what it's called though.

[@davidkruse4030]

@@mikecb39 yeah It’s call benzodiazepines. Lol. Stay away from them

[@larryc1616]

With CFS, I have alcohol intolerance- a little bit of alcohol makes me sick and so does cigarettes. I take a small non-recreational 1g/4x day of Kratom. I might explore medical marijuana. Anybody have experience with MM?

[@digitalaardvarks]

@@larryc1616 most of us have exercise intolerance and alcohol intolerance. i use mm. it's kind of the only thing that works.

[@larryc1616]

@@digitalaardvarks Can i ask how it works for you? i'm in cali and i have explored MM now. the thc is too strong and makes me even more fatigued and foggy headed. i tried all the strains-indica, sativa, hybrid and none will work for me in the day time. i do use the indica for sleep. i use a 1:1 thc/cbd indica vape cartridge as the highly rated dispensary here called stiiinzy and all dispensary here is geared towards THC recreational users. they don't have pure 100% cbd there. i'll have to look for a CBD dispensary for MM not recreational. but overall it only helps me for sleep and nothing else....

[@katalinmcewan]

I have always been extremely health conscious. Never consumed alcohol (I’m 45), never consumed processed foods, haven’t had white sugar since I was in my early teens. I have been making my own ferments for decades. I have been doing intermittent fasting for about 15 years. I think I’m lacking the support you have found in your husband. I think love and support is crucial for recovery. I feel all alone fighting this.

[@setitheredcap2677]

I am eating healthier than I ever have, exercising daily, and adopting constant positive habits. 3 litres of water a day. 3 cups green tea. Meditate twice a day, and have even implemented short bursts of yoga. I'm mainly plant-based (have small amounts of feta here and there or fat free Greek yoghurt). I've even started getting up 15 minutes earlier each day, despite how tired I may be. Yet, my energy is constantly low and isn't improving. It feels like my veins are turning to stone, or I am rotting from the inside. My muscles always ache. Doctors have said that I am healthy according to blood tests. It must be depression that is doing this to me; it feels more like a deficiency, but I don't have one. To get through a day I have to sit down regularly. Every video I watch says the same things -- which I do -- but there is no relief. I know if I could just get some energy, I would be able to achieve my goals.

[@RaelanAgle]

That sounds incredibly frustrating, I'm so sorry to hear that you are going through this 💛

[@nicolemcguigan3766]

Yes! What you had to say about alcohol speak to me! I agree 100%!

[@emmarasmussen8934]

Thank you for your video. Do you know if it makes a difference where and how your food is grown? (Supermarket vs. homegrown heirloom)

[@RaelanAgle]

I can only guess that homegrown natural food would be better. That being said, I recovered eating not organic supermarket food 😊

[@Im_Bennythebooman]

The bit about very slowly built exercise regimen is encouraging. I have yet to see a recovery story for a mother who has 3 little boys in her care 24/7. I have a gut feeling i could improve a lot with a year of rest. That’s never going to happen. Zero help. I’ve been down for 17 years now. Tried literally everything out there for this. And then some. It’s sad I have to remain I’ll until kids are older and much less demanding. Just the way it is.

[@RaelanAgle]

Hi Lorriane, I can't imagine how challenging this is with three little boys. I have interviewed people with children who've recovered but I fully appreciate that many who recover have an 'easier' time of it because they can devote more time to themselves. Sending hugs - I hope you find your way past this soon ❤️

[@simplysavvy0113]

Feeling proud of myself. Did what you said, took a few minutes to stretch and squat in my kitchen. Baby steps but more than yesterday ! Strength training is important because we lose so much strength being inactive and cardio is so exhausting!

[@RaelanAgle]

Great job! That is amazing! Good for you. And I completely agree 🙂

[@paperfrost]

@@RaelanAgle You are sooooo irresponsible if you are suggesting excessive to CFS patients. In most patients, that results in a PEM crash. 😑

[@paperfrost]

*exercise

[@simplysavvy0113]

@@paperfrost I don't think she did, did she? I've watched multiple videos but strength training as tolerated rather than cardio is suggested for CFH for that reason. I dont recall her suggesting excess. I was so overwhelmed by the protocols but I got my thyroid treatment changed and just started doing little bits here and there when I could, taking stairs instead of elevators, even if it was only a few crunches here and there. Every little bit (without overdoing) helps.

[@Truerealism747]

Are you better.now

[@joelgunner634]

Great great video✌🏼

[@RaelanAgle]

Glad you liked it Joel!

[@SeganHealthHacker]

Thank you, Raelan! Your idea of building up on your exercise regimen (+ ditching the cardio) is great. It's actually what helps the most here. Funny too that you recovered dropping the meat. I recommend the contrary - the lion diet. It's what I've been doing with great success - it just crashes when eating any sugar/carbs, unhappily. GREAT!

[@veereshvastrad3501]

You are an ultimate inspiration to the suffering one❤️❤️❤️❤️

[@marianguyen5406]

Hi Raelan, curious to know whether you still consume a full plant based diet, or whether you now consume animal products without any unwanted side effects? When I had made a previous recovery and the first qnd only time I was able to incorporate exercise in the 5 years ive had ME/CFS, it was after a plant based diet. For me though, it was very difficult to maintain- as meat and animal products have always made a big part of my diet and soy/cheese/meat substitutes - are not only unhealty, but just not edible for me, making a full plant-based diet difficult

[@TropicalRedFlower]

I have mild-moderate CFS symptoms, I'm looking everywhere for approaches to overcoming this because it's affecting my ability to work and get ahead in life. Your video gave me huge hope and everything you shared make sense. Thankfully, I'm able to work out kind of intensely if I work my way up slowly and it gives me energy but I've been terrible with consistency, and sleep routine is my #1 battle, not sleeping it's what takes the biggest toll on me, my body aches horribly with lots of inflammation in joints and muscles and my brain gets unresponsive I become a zombie. Doing things gradually and establishing good habits it's the only thing that's been working for me. Thanks for your help! 💗

[@antiarugula]

Try a parasite detox look into biocidin I just started taking it

[@AGKassem]

Thanks for sharing

[@RaelanAgle]

My pleasure!

[@drkevingilsenan8979]

Thank you, I think that’s a very helpful summary and I would mention graduated exercise so one doesn’t get too exhausted.!❤

[@KATHERINEJANEKT]

It’s so interesting listening to someone else with cfs. When I first got sick, alcohol began making so sick like just a sip would make me vomit. So weird how everyone have a different journey with this syndrome

[@olpallix]

Hi there. Thanks for talking about your cfs. Can I ask if you had a lot of anxiety or frustration? I’m not sure if mine is caused by that now all though it started with fatigue or lethargia thank you.

[@RaelanAgle]

Great question, Alski. I had tons of anxiety and frustration, but not sure if it was a part of the illness or a result of it.

[@THEDIFFERENTONE2104]

I was so happy after seeing this video.i am a boy and I am 17.i am not talked to a doctor about this but I feel very tired and fatigue throughout the day but as soon as afternoon comes I start getting more and more tired.darkness comes in front of my eyes and I am already suffering from ocd.so I can't consume alcohol but I can surely follow other diet.thank u so much mam for this video❤️❤️😀

[@RaelanAgle]

Sorry to hear about your health struggles Ayur, I hope you find what you need to start feeling better soon 💫

[@mayankbitsful]

Hi @Raelan, what is the difference between CFS and depression. I have depression and taking treatment but I have constant fatigue as well for years. Did you ever get diagnosed with depression when you had these symptoms?

[@RaelanAgle]

Hello! Great question, thanks so much for this. There seems to be quite a lot of bit of overlap with these two things and many people seem to find themselves asking these same kind of questions. I'm sorry to hear that you've been struggling with both depression and fatigue, that sounds incredibly challenging to deal with (to put it mildly). Personally I was never diagnosed with depression, but I did struggle with it over the years. My physical symptoms came first (which is when I received the CFS diagnosis) and then after the months and years passed and I wasn't getting better I became quite depressed. Unfortunately I'm not knowledgable enough myself regarding depression to be able to state the difference between this and CFS. I do know that there are a few guides online to help determine if you have CFS, and perhaps those would be helpful? Here are a few: Canadian Case Definition me-pedia.org/wiki/Canadian_Consensus_Criteria Myalgic encephalomyelitis international consensus criteria: www.me-pedia.org/wiki/International_Consensus_Criteria Oxford criteria: www.me-pedia.org/wiki/Oxford_criteria Fukuda (or CDC) criteria: me-pedia.org/wiki/Fukuda_criteria

[@tempestblack3840]

I've actually had dysthymia (chronic, low-level depression) since my youth. When I first got CFS/ME, my doctor tried to gaslight me into believing it was just the depression. For a while, while languishing in the confusion of Pre-Diagnosis Hell, I even started to buy into it. But it didn't make any sense. Depression doesn't give you a sore throat, nausea, fever, or chills. And depression doesn't come with Post-Exertion Malaise, which I consider to be the distinguishing feature of CFS/ME. I have another friend with depression and CFS/ME, and she pointed out the crucial difference to me: exercise makes depression better, and CFS/ME worse. So if you have depression, and you can make yourself get about 30 minutes of cardio 3x this week, and 3x next week, pretty soon you're going to start feeling better. The exercise might tire you out immediately, but then you'll bounce back and feel better. With CFS/ME, the exercise might actually make you feel high immediately, but then 3 days later you might suddenly find yourself unable to make a sandwich, tolerate the sound of a human voice, or leave your bed. Something to consider: about 20% of all cases of depression are actually hypothyroidism. If you're feeling sluggish, you may want to talk to a naturopath about your thyroid. Please do NOT talk to an allopathic doctor. You pretty much have to be dead before a standard thryoid test will detect that there's anything wrong with you. Your thyroid can be seriously messed up and they will tell you it is fine.

[@katesomething1701]

Hallmark symptoms is after you do some activities you have to be in bed tbe whole next day or two or weeks

[@EvolverWellness]

Raelan, I think you would find the interviews on here with Dr. Kelly Turner to be interesting. She studied almost 300 cancer thrivers....and noticed 9 things they all did in common. It definitely fits what you did as well. She wrote the book radical remission based on her findings.

[@RaelanAgle]

Wow, fascinating! Thanks so much for sharing this Donovan ☺️

[@namedrop721]

So what are the 9 things or are you just a shill?

[@TheSoma07]

Just looked on Amazon reviews for Radical Remission and someone listed these. Did not read it. No need to be so negative. But love the idea-ppl who cured themselves of cancer tended to do these things to get their bodies to heal. 1. Radically changing your diet. 2. Taking control of your health. 3. Following your intuition. 4. Using herbs and supplements. 5. Releasing suppressed emotions. 6. Increasing positive emotions. 7. Embracing social support. 8. Deepening your spiritual connection. 9. Having strong reasons for living.

[@mattinterweb]

Thanks for sharing!

[@jeffthepoet7]

Thank you, Raelan, so much for you video. I checked yours out first because your heading says, "How I Cured CFS." I believe I did, but I still get relapses of fatigue. I'm going to follow this video very closely. I was a tennis pro and started playing very little each day. I need to follow your diet tips, too. Sleep as well. I like your other recommendations that I'll try. Hope you're a life saver!! I used "Science and Health" by Mary Baker Eddy. I basically told myself God and Jesus can heal anything over and over. After 3 years, I was playing hard tennis, then built up to 20 mile hikes. That is my goal again. Bless you, Raelan.

[@helenholdsworth6407]

You are right about God and Jesus!

[@kathystoner5239]

Good video!

[@RaelanAgle]

Thanks Kathy! Hope you are well 💜❤️

[@BlackDogArtworks]

Good summary, thank you. For those reading this and looking for another solution. In my town they have a co-op that are acupuncturists. I credit them with saving my life when I was at the depths of this disease. I think maybe as I read through the comments, something people might be missing, is that I suspect you are still doing many of the things that helped get you better. Sleep hygiene, sunshine, eating and drinking changes, maybe positivity? I’m better than I have been in a long time, but I find that I could slip back if I’m not careful.

[@utkarshtiwari7738]

2:29 The three things: 2:46 Diet 10:10 Support body to heal (Sleep) 12:21 Build up strength (exercise)

[@alliem1072]

I personally don't believe it goes into "remission". I think different things trigger episodes, but that it's always there and my body will always be "off". I was diagnosed after recovering from bacterial meningitis. My doctor calls it CFIDS. I've had ongoing flare ups with no rhyme or reason for the past 5 years. I've tried so many things and still have my regular episodes of flu-ish body aches and weakness- not necessarily fatigue. I believe these are two different things as far as my symptoms go. I also have neurological symptoms (not sure if it's after effects from meningitis or the Cfids). I get vertigo, brain fog, tinnitus, I'm over stimulated by movements/bright lights/loud noise. Oh and the best part- hair loss for the past 5 years and extreme sensitivity to chemicals, strong odors, etc. I already ate a clean, vegetarian diet and exercised before my illness and still do, but I still have flare ups. I personally don't notice any difference after exerting myself, ever. I could have a low activity day and feel awful the day after, but then exercise another day and feel totally fine in those days after. I don't experience any "post exertional malaise". For me, physical activity doesn't make a difference one way or another. I can also sleep for 8 hours and feel awful, then have 5 hours of sleep and feel fine. I'm at a point where I just can't drive myself crazy trying to decode the mystery anymore- I'm just trying to cope and maintain. Alot of things people say should happen with chronic fatigue haven't or don't necessarily happen with me, but I know everyone is different. However, something is definitely off with my body and always will be. Alcohol doesn't bother me. To be honest, I refuse to take any medications and once in a while on a day where I have strength but feel sooo achy- yes, I have a glass or two of wine and it takes the aches away. This is occasional and I'm by no means depending on it. So that works for me and I don't feel bad about it. I've seen every specialist known to man and the one who finally believed me (who is the head of a dept. in a nationally known hospital) diagnosed me with Cfids. I also thank god for my PCP, she also believes me and signs my yearly FMLA papers to cover needed days off work. It's depressing. My bloodwork is typically normal, but my iron is always borderline so they never address it. My thyroid is typically on the lowish end, but it still falls in the normal range so they don't address that either. My platelets run low and not much else stands out. With all that said, I wish so much that my healthy eating and exercising will make a difference someday, but I know there is always another episode lurking around the corner. I'm not a supplement person either. I'm too sensitive to taking literally anything over the counter, so I have to rely on food to hopefully heal me. I can eat completely healthy and still feel like crap though! I never eat fast food or anything remotely unhealthy so go figure. That's my take....

[@RaelanAgle]

Wow, Allie, this is QUITE the journey that you've been on. I am so sorry that you've had to face all of this.And it sounds so incredibly frustrating to have these seemingly random symptoms and flare ups and not know why. Infuriating, really. It doesn't seem fair that you've put in so much hard work to eat well and take care of yourself and it doesn't seem to be helping much. When we have more questions than answers with an illness we of course can never really be sure what's going on. I chose to think of my illness as being gone because my mindset has always been a big part of my recovery strategy. So I am saying I am fine until y body tells me otherwise. It sounds like despite the mysteries with your symptoms, overall you know your body really well and have a good take on the situation. I'd really like to believe that everyone can 100% get past this, but I know that unfortunately that won't be the case for everyone. But I do hope that you at least find some ways to keep the bad stuff "lurking" but not active for most of the time. This sounds like a lot to face and I hope you are managing ok. Thanks so much for taking the time to share a bit of your story - I'm sure people will appreciate hearing it and that things will resonate. Sending huge hugs to you, Allie, for your wellness journey 💛

[@Karamoonsage]

Allie M I appreciate that you have shared your story here. Thank you so much. Your journey is a lot like my own in that I have had ups, downs, and other various frustrations along the way. The one breakthrough a-ha moment that I had is that my focus was on all of the external factors that I could think of (i.e. physical symptoms, diet, exercise, doctors, supplements, spa treatments, etc.). What was missing was the emotional health component. I did some deep introspection and discovered that it is likely that I have experienced childhood trauma. I discussed this with my chronic illness support group. Lo and behold, other people in the group shared that they too had similar experiences. After some searching, I found the Crappy Childhood Fairy here on YT. She has helped me to understand the link between my chronic illness and CPTSD. Your mileage may vary - meaning your emotional health may need support in other areas but what I have found is that it is often an area that is overlooked when it comes to addressing chronic illness. What I do know is that this realization has made *such* a difference for me on my path to regaining my health, and I hope that it can help others as well.

[@douglasvancier7683]

I hear you on that Allie. Except I believe my CFS/ME does go into remission. I got it 32 years ago. I had it bad the first 2 years then I gradually got better, feeling 100% better. But every few years I get a relapse that lasts about 3 or 4 months, then it goes away and I feel 100% better again. This last time I felt great for 8 whole years, then out of nowhere I got a bad relapse again, nothing special triggered it. I have tried everything on the planet to try to cure my CFS/ME, both physically and emotionally, and NOTHING has ever worked to make my CFS/ME symptoms go away any sooner. The symptoms always go away on their own after 3 or 4 months. That is my personal story. Good luck!

[@douglasvancier7683]

@@Karamoonsage I got CFS/ME in 1988. Had it bad for 2 years then got better. Every few years I would get a relapse that lasts about 3 months. I believe curing any emotional issues does help with healing physical ailments. Yet in 1993 I got really bad anxiety and molestation issues came to the surface from my youth. I went to 2 years of individual and group therapy, finally "healing'" myself from this childhood trauma. Yet every 3 years or so I still had bad relapses of my CFS/ME. With all the physical and emotional healing I did and tried, nothing has stopped me from getting CFS/ME relapses. Nothing. I hate this disease, but I'm greatful I feel great for the years I do feel good before another relapse occurs. And nothing out of the ordinary triggers these relapses. Good luck to you. ; )

[@paul2019monte]

Allie-this is me. For years. I only had a name for it somewhat recently. But I did the same regarding diet(s), healthy living etc. I always know that there's a flare or crash waiting. I try to live the best I can. It doesn't seem like much today ☹

[@Building_a_dream]

@RaelanAgle I'm on a similar track and in the last few years, it has had a positive impact. But I still feel the same: muscle pain, overly sensitive and like I am dragging extra weight around or like my day starts with the feeling when others would say: 'well, I think I'm going to bed anytime soon...' I'm curious when those feelings started to subside for you in your recovery? And did they gradually go away? I'm really happy for you that you're out of it!

[@lionbeatscobra]

Thanks for this. Curious because ive dealt with candida stuff and the sugar is definitely no bueno. Does the juicing and the kombucha create an issue with too much sugar?

[@RaelanAgle]

Good question, Hunter. When I do the juicing I make it low glycemic - mostly green veggies because I also struggle with the sugar. Personally I haven't had issues with kombucha. For a long time I made my own which helped ensure I knew that the sugar content was low, and I've found some store bought brands that also are low in sugar (as you probably know - it needs some sugar to feed the probiotics and keep them alive!).

[@AnandSwamy07]

These practices are great, but in my experience, they are short lived. I’m happy that you found healing and hope you don’t get sick again, because it’s the worst illness. My wife has had similar issues, but her healing came from understanding that the environment she was in was causing her illness. We found out that it was mold. Once we figured that out, she was healing from the toxicity in her body. With the help of the first patient of CFS, Erik Johnson, she started to understand how exposures work. Exposing Mold is a non profit they started where they help hypersensitive people. They have a podcast with over 100k downloads, My wife had every food allergy imaginable, but they all went away when she started to understand environmental exposures.

[@Noksen]

Thank you!

[@RaelanAgle]

Thank you!!

[@ingridgunby7862]

Hi Raelan, I am wondering if you qualified for the Canada criteria diagnosis? The reason I am asking is so that I can understand if it is also possible to cure or go in to remission, also with the strictest diagnosis criteria used, as I have been very ill for many years.

[@RaelanAgle]

Hi Ingrid, I'm so sorry to hear about your health struggles. Yes, I was diagnosed in Canada by my doctor according to the Canada diagnostic criteria.