How to deal with the side effects of hormone therapy with prostate cancer

[@PlattLaneEnd]

Hello. I've the honour of being your 500th subscriber.. I received my PC diagnosis 3 days ago. So I'm a new boy here. The hardest bit wasn't receiving the diagnosis, it was having to break it to my wife. I'm a Gleeson 4&3. Waiting for a couple of scans then the decision on the course of action. A rocky road awaits I've absolutely no doubt, but I'm like you at present: I'm going to try as hard as I can to be grateful for what I have in my life. I'll just take each day as it comes. Best wishes to you and your family.

[@Livingwith-prostatecancer]

Thank you for considering it to be an honour to be number 500 I was totally unaware how quickly the channel has started to grow. I wish you the very best and really hope this channel will contribute in some way to making it easier for you .🙏

[@mikesuess9891]

I share those same side effects Woody. You are right, gratitude for what we have is a huge offset to those times we are down. Keep up the positivity and smiles

[@Livingwith-prostatecancer]

Cheers Mike, it's the only way through this.

[@jonathanpetty4632]

Thank you Woody. It takes great courage to open up on your prostate cancer. I’ve been through the same side effects as you. I was diagnosed with metastatic prostate cancer in 2013 with a Gleason score of 5&4 with a life expectancy of 2-3 years. I am still here 9 years on albeit the hormone treatment with Abiraterone acetate (Zytiga®) has finally run its course. I am now on a course of Docetaxel chemotherapy which unfortunately has its own punishing side effects, but I’m still alive. I have the possibility of going onto a clinical trial and then I pray that our poor old NHS will be allowed to administer Lutetium-177 PSMA a innovative new treatment that involves a special radioactive medication being injected into your bloodstream. Sadly it is currently only available privately and at huge expense. My family passionately supports Prostate Cancer UK in the hope that they will find a cure for this cancer. Take care and God bless you. Jon

[@Livingwith-prostatecancer]

Thanks Jon for sharing your own story, you have done so well, I don't think we should ever be told or ask how much life expectancy we have. People have proved over and over again that they can exceed these expectations. Keep on being strong and keep believing, it's the most powerful thing you can do. All the best to you🙏

[@aldonicoll2235]

I told the oncologist I didn't want to know my life expectancy as it's depressing enough to get the big C diagnosis. I sometimes wonder though. Best not to dwell on negative thoughts.

[@billyjohnson9166]

I also have prostate cancer and my doctor never explained the side effects. I also cry . That’s the easy one. The hot and cold flashes that’s the tough one, waking up and I’m soaked. Thank you for speaking on this. Your helping so many people. I’ve noticed lately losing my energy, I’m like an old man.

[@wendyrowland7787]

McMillan have produced a very good explanatory handbook. My husband found the McMillan nurse very helpful in sorting things out and pushing things along.

[@Livingwith-prostatecancer]

How old are you Billy ? Do you manage to do any exercise. One of the things I found helped was to sign up for fund raising events. It was good because I had a commitment to walk . Lately I've found it difficult to motivate myself to exercise due to the fatigue plus working full time. I'm planning to join another fund raiser in March. 🙏

[@billyjohnson9166]

@@Livingwith-prostatecancer I’m 66. I usually go out to the mall for lunch but I’m so tired afterwards. I tried one day to walk a few malls I was sick the next day. The last three weeks I went from a vibrant man to an old man seems like I lost all muscles. This is after one hormone shot. I’m suppose to take hormone shot once every three months and it’s been three months. I After a high PSA 10.4 I had a biopsy and caught a bacterial infection. It’s life threatening I’ve been fighting it for six months. I’ve been in the hospital twice. It seems to be getting better. The hormone shot is killing me also, hot and cold flashes seems like almost always, night sweats, after three months it’s less, emotional, my PSA after 16 sessions of radiation is 0.5 I can’t take any more hormone shots. It’s worse then dying. Anyway sorry for rambling. I live in the Philippines and am being treated in what seems to be an excellent hospital Bumrungrad international hospital in Bangkok Thailand

[@Livingwith-prostatecancer]

I'm so sorry to hear that Billy it sounds like the hormone shots really are not kind for you. I think I've been reasonably lucky compared to some people. I do find them difficult but no like you are going through. The bacterial infection is just very unlucky and makes things far worse. I hope your luck changes soon. 🙏

[@billyjohnson9166]

@@Livingwith-prostatecancer thank you so much. I’m flying out tomorrow and see my doctor Tuesday . Hopefully things improve. Have a great week.

[@reidhenry3452]

Thanks very much for your articulation of the challenges you face. I've had prostate issues since I was in my 40s, prostatectomy at 58, and now 10 years later after a return of prostate cancer I'm currently undergoing radiation therapy combined with hormone therapy (Lupron) which I started a few months ago. I've encountered similar side effects to yours from the hormone therapy. I completely agree there are mental health issues around dealing with serious changes we encounter while taking these drugs designed to extend our lives. I too find it helpful to recognize the positives, such as the incredible healthcare system that takes care of me (I'm in Canada) with such caring people and advanced technology keeping me healthy. I have a new granddaughter, and I often think how I might never have known the joy of being around to watch her grow. I like to remind myself that as humans we can only go forward. There's no point in thinking about "why me?" or "what if?". Every new day is a good day to be alive. I'm sending best wishes for your continued progress and good health!

[@Livingwith-prostatecancer]

Reid, I had a tear in my eye reading your comment not of sadness but of joy. May you be blessed with many more years with your granddaughter, what a marvelous motivation you have to keep on fighting. Best wishes.🙏

[@GaryOldSkool]

Hi Woody, Thank for this - It sounds like exactly the same side effects as me . Im 4 months into treatment on the 3 monthly injection and the 4 tablets daily - Had my 2nd injection last monday. .I am just grateful to be alive as well and just put up with the side effects to be honest.. Keep going mate and thanks for the videos .. To anyone else watching this and on the same journey i wish you all the best

[@Livingwith-prostatecancer]

All the best to you to Gary.

[@stevearmstrong9275]

Thanks for sharing Woody. I was diagnosed with Stage 4 prostate cancer about 6 months ago. I just had the PET/PSMA scan to see if there has been any mestasesis. I’m on the Decaptyl 3 monthly injections and daily 1000mg Zytiga with Prednisolone. I’ve been luck I think so far with side effects. So far the hot the hot flushes 5-6 times a day are by far the worst. I just about cope with random mode swings and rollercoaster of unpredictable emotions. Most of the time I’m ok, but occasionally I find my self having fits of rage for no known reason, or I just want to cry over the most stupid things. As you say, we have to take the rough with the smooth and be thankful for every day we are alive. Stay strong. You’re not alone on this journey.

[@Livingwith-prostatecancer]

It certainly is one hell of a roller coaster, I was getting hot flushes probably at least 2 or 3 an hour but thankfully recently they have started to calm down. I've felt very emotional but never angry , I guess we all have different reactions to the treatment, best wishes to you Steve.

[@Mauldenpat21]

Woody so inspirational. Just makes me think how lucky I am and all the positive things I have around me, despite having very aggressive Prostate Cancer. Thanks mate

[@Livingwith-prostatecancer]

Thank you Pat best wishes to you keep positive🙏

[@ga6589]

My husband is 20 months into his stage 4 prostate cancer journey- radiation, lupron injections and abiraterone. His hot flashes have actually quieted down lately. His main complaints are fatigue, losing muscle mass, weight gain and increased appetite from the prednisone. (Many of his side effects are what we women go through with menopause!). We are trying to just take one day at a time and like you, are appreciating the little things more than we ever did. The hardest part is living with the uncertainty of cancer and the waiting for results, but with every PSA test that comes back negligible, we rejoice! Thank you for sharing your journey!

[@Livingwith-prostatecancer]

Thank you GA I know it's equally tough for all the partners friends and colleagues of people going through this. My wife is going through the menopause with me, it's tough, Best wishes to both of you, keep believing.🙏

[@daveh893]

Thank you for your heartfelt video. I, too, am on hormone therapy and can relate. It's encouraging to hear someone else talk about their journey.

[@Livingwith-prostatecancer]

Thanks Dave best wishes to you, keep strong and keep believing. 🙏

[@EdWeibe]

thank you for taking the time to make this video. 3+4 here stage 2c or something like that. The doctors don't talk much. they have me do all the talking. 6 weeks of radiation wrapping up this week, and on orgavyx 3 or 4 months now. Not having so much of the emotions I don't think but certainly looking at life different. I don't let things bother me now. Maybe I get 10 more summers. 10 more winters. 10 more Christmasses., than was going to happen. my dad died a painful death from this. I view this time it's going to be different. This time fifteen years ago I was taking him to treatment. He was head to toe metastisized and only 2 months to live at this time 15 years ago. Family just says do what I need to do . I do it, mostly alone until we discuss the drug part. could be another 2 years in that. W wants less. I do enjoy hearing these videos. thank you again. and God bless all of you

[@Livingwith-prostatecancer]

Thanks Ed for your lovely comment, I hope the radiation has helped and keep looking on the bright side of life 🙏

[@EdWeibe]

@@Livingwith-prostatecancer now we wait. hoping for total remission.

[@ireland608]

Thank you Woody for sharing your story and journey through your various treatments and experiences ! I have just been diagnosed with advanced metastatic prostate cancer. PSA 16.67 , MRI scan with Pi-rads level 5 lesion on my prostate , biopsies with Gleason score 5+4=9 & CT & PET scans that showed the cancer has metastasised to my lymph nodes , chest bone & my right upper arm ( all I must say at the moment have no noticeable symptoms ) so they have started on a course of treatment , firstly the hormone therapy with Bicalutamide for a month , with an injection into my stomach after two weeks , then every 3 months . Then radiology & possibly chemotherapy . For me it helps to get as much information as possible & especially from people who are actually living through & experiencing the symptoms and side effects . I only started the tablets on Friday so nothing has kicked in as yet . But I’m sure it will ! No doubt it’s just the start of a long journey. So once again thank you for sharing your experiences & I sincerely wish you a continuing betterment with your treatment & may it extend your life for many years to come 👍❤️

[@timhayes7867]

Thank you for your videos. I’ve been on my journey since 2015. First Surgery, then radiation and now on the hormonal treatments- first and second generation for two years. Approaching the disease with a sense of gratitude really helps. In many ways it was a wake up call and I’m glad I have the opportunity to make the changes in my life that needed to be made. My coping mechanisms are exercise and family time. The exercise helps mitigate the hormone effects and helps me stay positive. My mood swings include, intense, irrational anger. My oncologist warned me about it so I’m very careful to take a breath and try to get it under control before I say something I might regret. For the hot flashes Memorial Sloan Kettering in NYC has an acupuncture protocol that worked wonders - 6 sessions and no more hot flashes. They came back after 9 months, one tune up and they are under control. Best of luck to all.

[@Livingwith-prostatecancer]

Thanks Tim for sharing your own experiences and the mention of acupuncture therapy ( never even thought of that), I think the gratitude approach is so powerful, I hope you can keep the emotions under control I know just how hard it is. Myself I don't have the anger instead I just have incredible bouts of sadness joy and all kinds of different emotions all in one go, it's tough but I'm so glad to be alive, best wishes to you.

[@johndavis7425]

Thank you for your honesty. I started hormone therapy a month ago and was having a bad day until I came across your video.

[@Livingwith-prostatecancer]

Im glad it helped in some way that's gives me more reason to continue with these videos.

[@bonmullins584]

Hey woody , I’ve been battling stage 4 prostate cancer for 4 years now and experienced all the same side effects, but as time goes by they will fade away. The only side effect I’m struggling with now is the weight gain so I suggest maintaining a healthy diet. I get scans every six months and so far all is clear . Keep your head up and enjoy life .

[@Livingwith-prostatecancer]

I'm looking forward to the side effects fading away. It seems they have become worse this month, really intense hot flushes very hard to cope with in the middle of winter but I'm lucky to be experiencing them as it means I'm alive.🙏

[@bonmullins584]

@@Livingwith-prostatecancer thank you for this content on KZbin for the longest time I’ve felt alone in this battle.

[@Livingwith-prostatecancer]

@@bonmullins584 your very welcome I'm only glad it can be some help, makes it so worthwhile setting up this video channel.

[@glamup2013]

How r u???

[@rogerembry4777]

Been on Lupron 3 years, side effects seem worse

[@Jc-lk7wn]

Hey Woody just watched your video & it truly explains things I had hidden inside me bcos I needed to shield my family. My younger wife said she no longer wanted to be married to me after she found out I had prostate cancer. I’ve done the hormone treatment & 6 weeks Mon-Fri of radiation treatment which has brought me to my knees. It is very difficult for us guys to have the below end game we now have to live with as it seems life is over🧐 But just like U I now hear the birds, watch the sunsets & thank God that I’m still alive🙏 It is a very lonely road tho… so Thankyou for spending your precious time to help others get thru this👍🏻👏🏻🙏

[@Livingwith-prostatecancer]

Hi, first of all I'm so sorry to hear your own story. I hope your wife will find the courage to stay with you , it's every bit as hard for our loved ones dealing with this. When I was first diagnosed almost two years ago I thought my life was over. It's been far from that. It's important to keep seeing the beauty the world has. Keep as positive as you can. There is so much more to life than cancer, good luck and keep in touch.

[@Jc-lk7wn]

@@Livingwith-prostatecancer hey Woody thank you so much for your encouraging reply U are obviously a very selfless person & that indeed is a wonderful trait & very encouraging. I promised to give my wife a better life as she had a bad start so I have completed that promise 100% now. I still want her to have a good life & perhaps looking after an older guy with cancer is just too much for her. So it’s OK if she now needs to move on. Keep posting please Woody as your story, empathy & view on this world now was so moving it prompted me to reach out to U. Bless U always 🙏🙏🙏

[@bradthurlow5503]

I’m glad you’ve found a way to see the bright side of it. I’m very disappointed in whatever medical system allowed you to start that treatment without full understanding of what to expect. I’m also disappointed that you felt alone during the process. You should have been referred to support groups where you can talk with other men who share your experience. The medical system let you down badly there. As for treatment, it is perfectly reasonable to expect that you will be given breaks in the hormone therapy. This will give you time for your testosterone to recover and shouldn’t jeopardize the cancer control in the long run. Finally, keep your eye on PSMA based treatments, which are rapidly progressing and offer significant chance for quality of life improvement in patients in your situation.

[@Livingwith-prostatecancer]

Thank you Brad, yes I don't think my initial diagnosis and subsequent treatment was that great but for me it's all in the past and I'm taking the positives that I can put of each day. Thank you

[@Lochrie]

Sending you much love from north of the wall Woody, and the strength to carry on being grateful. I'm grateful for the fact that I know you. Stewart.

[@Livingwith-prostatecancer]

Thanks so much Stewart that's such a kind thing to say , I hope you are well my friend.

[@robgerety]

Thank you for putting this out there. Rest assured you have helped others by opening up. Certainly you have helped me. Had my first hormone shot a week ago. Just starting the journey and yes, it is frightening. But, there are lots of reasons to live and make the best of it all. You are right, we can do this. No doubt.

[@Livingwith-prostatecancer]

Keep positive no matter what 🙏

[@Vincent50]

I’ll get my first injection this week. I want to live so I’ll have to fight the side effects. I met someone on Facebook who has gone through all of this and I’ll lean on his shoulder. I already deal with sweating for years as well in the middle of the night and I am emotional too so this hormone therapy will add to what I already go through. If this adds to my anxiety I will take my anxiety pill to keep me calm. I’ve been reading and watching videos so I decided against surgery and decided to go this route. I have a job part time (I’m retired), I have my music 🎵 I create with my keyboardist, and I have family and friends that keep me in prayer and afloat plus my prayers to God always pull me through as He has pulled me through being nearly snuffed out numerous times He kept me here. I was told by my urologist that this is the better cancer to have because it can be treated so I am still accepting the fact I have cancer and like I did with my other episodes that came into my life I was determined to not give up and I am putting together to up my workouts, diet, and keeping positive in mind body and soul. God has us so pray and He will help us through this journey.

[@enniscollado202]

I'm on lupron treatment...thank you for sharing....I young in my journey ...your a good example to the importance to having resiliency. Your sharing is helpful.

[@Livingwith-prostatecancer]

Thank you and good luck to you in your treatment 🙏

[@practice2391]

I'm going through treatment and having side effects and not sleeping. Its the middle of the night and a nice cup of tea and your video is really helpful. What a roller coaster ride this is. Hope that you're doing well. Thanks for the video.

[@Livingwith-prostatecancer]

Your welcome I hope you are feeling better.

[@carledquist4039]

Being alive. Biggest take away. Mine came back after 10 years. It's now situated in one lymph node in my pelvic region. Just finished five radiation sessions and started the injections again. Started Xtandi pills (were not available ten years ago). I'm kind of used to it all, but it's still hard. Appreciate the honest talk about this. Cheers, Carl

[@royschofield1914]

You're still alive and going strong which is great to see. I've just started my journey and had the jab this morning. Thanks to all who comment on these videos I'm feeling well prepared for the journey. Good luck all.

[@carledquist4039]

@royschofield1914 All the best Roy!

[@okaymate1079]

Knowing the affects of hormone treatment is causing all my anxiety at the moment as I’m a week away from starting it. It over rides any thoughts of the cancer & any other treatment How much of me will be left,my personality,my humour,my power The dynamics of attraction and bond with my wife without intimacy & passion I’m not yet grateful this shite will save my life Your video’s I’ve slowly been going through I thank you for doing

[@duaneluchsinger5736]

Thanks for your reflections on pushing back on this nasty desease. I’m 4 years into the fight having had a very successful first 2 years after surgery, hormone shots, and radiation.My PSA was undetectable. I decided to take a break from the hormone shots after 18 months on them and continued to enjoy an undetectable PSA reading for another year. Then the cancer woke up. I realized that with a Gleason 9 cancer it was a mistake to stop taking the Lupron shots. I resumed hormone therapy, had a PSMA scan and found out that the cancer had metastasized to my ribs, vertebrae, skull and a lymph node. I received 6 rounds docetaxel, which were only mildly effective, with a second PSMA scan indicating numerous more Mets. I’ve added enzolutemide to my hormone treatment getting ready for some targeted radiation treatment to my L4 vertebrae, to be followed several rounds of Xofigo all the Mets to my bones. Have to say I’m getting somewhat weary, but still stepping up to the plate to see if I can hit one out of the park(with God’s help) before the game is over for me.

[@Livingwith-prostatecancer]

Man you are inspiring, never give in and thanks for sharing your own story , wishing you the strength you need. 🙏

[@duaneluchsinger5736]

@@Livingwith-prostatecancerThank you.

[@manbearpig8691]

My biopsy the summer of 2023 showed: 3 Gleason 7 spots, 2 Gleason 9 spots, and 7 spots that didn't register. PSA was 10. My PSMA PET CT scan appeared to show that the cancer had stayed within the prostate and outer lining. I've been on Lupron for 5 months now and have completed a High Dose Radiation (HDR) Brachytherapy plus 3 weeks of EBRT at a higher than normal "Grey" dosage. The HDR was 18 needles/catheters placed into my prostate. Their placement location was guided by an ultrasound device placed in my rectum. High Dose Radiation then went in each catheter for a limited time based on the Gleason score of each spot. Timing and movement of the radioactive material was handled by a computer driven machine. My last radiation treatment was 10/3/23. My Oncologist/Radiologist thought that I might be able to go of of Lupron after being on it for 12 or 18 months. Seeing your experience of having Gleason 9s and having the cancer come back after stopping Lupron makes me nervous. Do you know if your cancer was originally contained to the prostate prior to treatment? What treatment did you get?

[@LARRYWAITE]

thanks for your perspective and words of encouragement brother --- keep on the sunny side, every day is truly a gift

[@Livingwith-prostatecancer]

It most certainly is Larry

[@dancrocker5114]

You’re a good man, Woody. I’m in the middle of hormone blockers and radiation. Not fun but, with faith and the grace of God, we’ll all get through. Love those daughters!

[@ricknowak4582]

Didn't the doctors ever talk about eliminating the hormone treatment and just take radiation. What would happen I wonder.

[@ferrisburgh802]

Very moving and wishing you all the very best..

[@Livingwith-prostatecancer]

Thank you James.

[@bassheart365]

Thank you. Also battling PC recurrence and headed for a second round of HT. Your words are profound and inspiring. Please keep them coming.

[@Livingwith-prostatecancer]

Thanks William and good luck to you too🙏

[@expikwe]

Thanks for sharing I admire your positivity and seeing the small things as good I’ve just started the anti testosterone tablets been 11 days soon injections and radiotherapy they have made be sluggish I’m in a blind panic with all I’ve read on side effects Once again thank you for pointing out the obvious “happy to be alive”

[@Livingwith-prostatecancer]

It is a scary time but try not to think the worse of it and try as much as possible to focus on any positives you can find. They are there but you have to open your mind to find them. It can feel at first that it's just one big negative experience but as you can see from the comments many people have made there is a lot of positivity among them. Start by writing a gratitude journal each day, it really helps to change the mindset

[@Dogg1512]

Very interesting video, as I too am on hormone treatment for prostate cancer (injection every 3 months), the changes that I've encountered include: - hot flashes/night sweats - no changes in BPH symptoms (frequency/slow stream) - insomnia - delayed ejaculation - joint pains disappeared (cancer had metastasized to bones) - abdominal mass (metastasized to lymph nodes) slowly disintegrated I have a positive mindset, I exercise 2 to 3 times per week, continued on intermittent FASTING, I eat mostly RAW cruciferous vegetables, no sugar no carbs. I guess that my success story is based on FASTING and raw cruciferous vegetables

[@Livingwith-prostatecancer]

Thank you for your comment Dr scar I've heard a lot about fasting and I definitely need to work on my diet more. I eat a lot of fruit and have a plant based diet but I need to eat more vegetables. Long may your success continue

[@johnlovric5896]

You need to cut off glucose and important GLUTAMINE which you can do only with a doctor.Look at Prof. Thomas Seyfried.

[@mikerose6835]

Hi Woody I also share most of the reactions you have had from the therapy and I agree it’s better than the alternative.

[@Livingwith-prostatecancer]

Hi Mike yep we have to keep on living the right way and not let this illness take over our amazing lives.

[@KenK-c5e]

Nice video. It gave me courage.thanks.

[@Livingwith-prostatecancer]

Your welcome 🙏

[@jimh6233]

You have helped me as I begin on going through this ...

[@Livingwith-prostatecancer]

Pleased to help , good luck my friend with your journey, keep strong.🙏

[@ronsouthard8245]

After my diagnosis in the Philippines they put me on bicaludimide which I knew nothing about. Took it for 2.5 months before going back to the US for a second opinion. I decided to forego conventional treatment and am now taking 36 different vitamins, minerals, herbs and other supplements, along with a strict diet, intermittent fasting and soon longer fasting. So far my psa is down from it's high of 9.95 in January 2023.

[@Livingwith-prostatecancer]

That's really good news I think diet is more important than we perhaps realise. Good luck keep us posted on how you are getting on.

[@BravoEstrada-un5yy]

Hi, Thnks for sharing your treatment path with natural meds, may i know what Gleason stage you were? I 've just been diagnosed Gleason 7 and will start treatment soon. Very interested to try natural meds. Thanks again.

[@ricknowak4582]

Can you please tell me what your gleeson score was. Cause I feel just like you bro. I want to refuse all treatment and just do metabolic Therapy . Currently I am juicing eating steam broccoli steam color flower and steam tomatoes. Lemon juice cayenne pepper and a little bit of bacon soda five times a day. No more tapioca which I ate a lot of. Carbohydrates. Please give me any information you can brother. I especially will refuse all hormone therapy.I don't believe that. Why in the world would they take something away that your body needs And give you medications which will make you sick.!!!!?!!??!!!!!!!!!?,!!!!!

[@williamgibson1685]

My thoughts are with you , im on hormone therapy 6 monthly injections

[@Livingwith-prostatecancer]

Good luck William 🙏

[@jimo50]

Good video! Lots of well deserved empathy in the comments. I have but one thing to add: Lift weights! All the side effects are lessened dramatically if we do. Especially the fatigue and depression.

[@Livingwith-prostatecancer]

Hi Jim thank you for your comment, I think exercise is important.

[@f.s.bridges5677]

I'm days away from my first treatment. Thanks.

[@Livingwith-prostatecancer]

Best wishes to you , I hope it all goes well🙏

[@tfoy60]

Thanks Woody. I found that Fluoxitin ( Prozac) takes the edge off the mental side effects of the treatment. I still get brain fog occasionally and I find a short nap can reset the brain. All the best.

[@Livingwith-prostatecancer]

All the best to you too 🙏

[@RICHARDINTHEKITCHEN]

Praying for you brother.

[@dillonvossen1144]

thank you, Woody

[@Livingwith-prostatecancer]

You are welcome

[@corgiowner436]

I told my Urologist and RadiationOncologist I would never accept more treatments that affect my hormones (testosterone) even if it’s life saving. I had more trouble coming off the ADT -Orgovyx-than going on it. And by crying for me it wasn’t just tearing up it was sobbing. Got up one night and was near suicidal. So I’d never make it long term withADT.

[@Livingwith-prostatecancer]

Hi , I'm sorry that you had such a bad experience on this type of therapy. I think some of us are lucky that we don't get the side effects too badly. I consider myself lucky even though it's difficult at times.

[@nigelbruty4613]

Great video Woody! HT, although a great tool in the fight against PC, has many unpleasant side effects for men (been there, done that, got the tee shirt!). It's also something that's difficult for men to discuss, especially when you get comments, as I did from a female Oncology Nurse, such as "Welcome to a woman's world"! But the HT is only a part of the arsenal of treatment against PC. Stay strong fellas!!

[@Livingwith-prostatecancer]

Hi Nigel, yes I agree, I think comments like that or prostate cancer is the kind cancer are so wrong. I've read a lot of replies today and it seems in general that a lot of us blokes really struggle with the side effects of the meds, some to the extent they opt out taking them. I'm just grateful that they keep me alive. I believe that we can help ourselves to cope better just by the way we think about the situation. The more positivity we can find in the situation the better we can cope. Best wishes to you.

[@tfoy60]

Hi Woody I've only seen this video so I don't know if you've spoken with a Prostate Cancer Nurse at Prostate Cancer UK. I've phoned them a few times and they've helped me a lot.

[@Livingwith-prostatecancer]

Hi tfoy60 No I just used my own understanding of how my mind works to combat stress. It worked, I did have some communication with Macmillan but they were very poor returning my calls. I guess it's the individuals in large organisations that promote a good or bad image and your individual experience which is a shame because I know they do a lot of good work.

[@motleydude73]

Interesting perspective. And yes it does make you appreciate life and the little things more. Interesting they didn't offer you chemo straight away? It's often the go-to with radiation initially. I'm awaiting PET Scan results, hopefully early next week. I'm researching a lot of treatment options and their effects, both good and bad, so when they say what they want to do I can make informed decisions.

[@Livingwith-prostatecancer]

They did offer me chemo but I turned it down I will only take it as a last resort. The radiation wasn't so bad and I guess I'm lucky that the treatment I'm on is doing a good job. There are now so many treatments available for prostate cancer. Good luck on your Pet scan results

[@rolandhainje]

.. I also have stage four prostate cancer for two years . I recognize your side effects.... In you I see a man who also helps me to stay positive... Thanks Woody ;-).... (I would like to know the link of your blog... Is that possible?)

[@Livingwith-prostatecancer]

Hi Roland I'm sorry to hear you have this too thanks for the nice comment I'm glad it's helping you to stay positive. My blog is livingwithmycancer.org

[@rolandhainje]

@@Livingwith-prostatecancer Thank you Woody.. I wish you a loving, nice weekend.

[@stephenvanwoert2447]

The course of action, or inaction, one chooses after a cancer diagnosis depends on how desperate one is to stay alive (the minimum level of quality of life that is acceptable), and one's circumstances. It is natural to want to stay alive, but at what cost in quality of life to get to that next heartbeat, and the next? We should respect whatever the informed decision is, that the cancer patient makes.

[@Livingwith-prostatecancer]

I for one am desperate to stay alive and see my two wonderful daughters grow up. I do get what you are saying, I’m just living the best I can and taking each day as a win🙏❤️

[@t12o34m56]

I'm taking the same meds here in the USA. I was prescribed Venlafaxine 75mg for hot flashes and not only did it cut back on the severity by 65% but also the frequency by 65% This drug is also used for depression and has made a huge difference in my quality of life. Prayer to our creator has given me peace no matter what the cancer does. Jesus IS the Prince of Peace.

[@Livingwith-prostatecancer]

Thanks TMH wishing you all the best and may your faith keep you well.🙏

[@jerrymunroe5593]

I was diagnosed in March of this year. Since my radiation treatment and ADT I am not the same person. Sometimes I do not even feel human. Yes I am alive but what or who am I? I was never explained the side effects either. The only thing my nurse said was "No more erections" with a SMILE. I think the result of everything done to me since March is that now I am mentally ill.

[@Livingwith-prostatecancer]

I'm really sorry to hear that I think ADT is so unfairly dismissed, my oncologist called it the kind cancer there is nothing kind about it. You need to get some help if you are feeling this way. I think what you are experiencing is very common some might say normal. You have to find ways of processing it all and finding positives in life no matter how small. Can I ask what country you are in as s I can only really give advice about people to talk to in the UK I'm also happy to have a chat with you if it helps

[@ziggy8800]

The best thing I'm reading is some of you guys still here after 4 years , I've stage 4 as well and its been about 16 months since I was diagnosed. I go from grateful to being alive to wanting to come off treatment because of the side effects making me feel worthless.

[@Livingwith-prostatecancer]

I know exactly how you are feeling

[@Prog-t9d]

My side effects on Lupron were intense. Mood swings, nausea, extreme fatigue, foggy head. No more injection for me. I refuse anymore treatment.

[@Livingwith-prostatecancer]

I'm really sorry to hear that. I've been on Enzultamide for three years the side effects were quite harsh similar to what you are experiencing, but mine have definitely decreased over time. I'm able to work full time and the only real side effects apart from the physical stuff is the hot flashes and they have got better. I hope you make the right choice Maybe ask to change the drug. I also was on monthly degaralix injections which really gave me issues , then I switched to three monthly Zoladex injections and had no issues at all. Good luck with what ever you decide to do 🙏❤️

[@stevecooper942]

Thanks for your comments, I'm going into my 8th year of treatment, radiation, piece of cake, Lipton injections every 6 months and and daily dose of Xtandi pills, side effects suck, but in the time since my diagnosis, we have been blessed with 5 grandkids, have reconnected with 2 old friends and I love every day I get out of bed, keep the faith love your Dr. and the other option is not being here at all.

[@stevecooper942]

Lupron

[@Livingwith-prostatecancer]

Great advice Steve ,wishing you many more wonderful years with your family and friends.

[@dusanjez2011]

You tell in exscellent way what a disaster is antihormone therapy. Man looses mail sex in body and in mind. Sexual organs diminish, the sharpness of male thougt is destroyed, the personality is ruined. Oncologists do not want to talk about this, the impression is that ADT is golden standard which men tolerate so well. It is not true! We suffer greatly, many men questioning what happened, as nobody explained them the horrific side effects of antihormone drugs.

[@Livingwith-prostatecancer]

Although we suffer I can't help thinking it's still better than the alternative untill something better comes along.

[@dusanjez2011]

Your thinking is so correct and sincere. Very important thougts about difficult situation we are in and how to keep positive, I am so thankfull to you.

[@ricdavid7476]

Interesting vid thanks. I started hormone therapy yesterday with the pills and get my first injection in the next few weeks with radiation in June .I never had much testosterone in the first place I never have been able to grow a beard my body is hairless and I went bald in my early 20,s. I am 69 so am wondering how it's going to effect me. I was never much of a man in the first place so I am not particularly worried about loss of my manhood I just want the cancer gone

[@Livingwith-prostatecancer]

Hi David, I'm sorry to hear about your own circumstances. I think the hormone treatment affects people in different ways. I think Ive been quite lucky. Mindset is very important, you have to have a positive mindset. Do things you get enjoyment out of and ty not to let the cancer take control of your life. There are plenty of people that recover from cancer even at stage 4. Keep a strong belief in your own ability to heal but above all enjoy life as much as possible find a purpose that keeps you going. Keep in touch let us know how things are going for you.

[@ricdavid7476]

@@Livingwith-prostatecancer cheers mate. I have been surprised how easily I have accepted the diagnosis I am trying to do a lot of fun things cycling etc and talking to people who have beat this thing. Well done mate keep your chin up

[@Livingwith-prostatecancer]

Thank you David you too

[@ricdavid7476]

​@@Livingwith-prostatecancer I get my first implant next Wednesday . Apparently when you have the implant you get a surge of testosterone before it gets cut off. The hormone pills I have been on for about 10 days counteract the surge. I must admit I feel shit at the moment and suspect I will feel even worse when I get the implant. I find the specialist nurses at prostate cancer UK the charity are excellent and easy to contact .

[@ricknowak4582]

I am A roads dealing with my prostate cancer. Listening to stories like yours.I wonder maybe I shouldn't do anything. The side effects from this medications.They give you is something.I don't want to live through. And I question the motives behind the medications. Do they really cure the cancer. Get rid of it. I'm beginning to think not. But if you don't do anything you'll still live or die the same amount of time that if you did the medications That's what i'm believing. Someone please reply back to me some insight please.

[@Livingwith-prostatecancer]

Hi Rick Thanks for your comment. This is just my personal opinion but when I was first diagnosed with prostate cancer I was in a dire condition. The cancer was caught late and had spread to many different parts of my body. I believe without the treatment I most certainly would not have had the last two and a half years which all things considered have not been too bad. Yes the hormone therapy has had some nasty side effects , I have no libido or sexual function but I’m alive and living working and in very little pain except for the 48 hours each month after the hormone injection, in fact recently I’ve switched from Degaralix to Zoladex and had no pain what so ever. My back on diagnosis was almost in a complete state of collapse , the cancer has done some irreparable damage to my nerves and therefore I’m on a palatine care regime. After 7 months recovering from the initial radiation treatment I could return to work as an emergency response ambulance driving instructor. I’m seeing my two girls aged 13 and 16 growing up and that is my inspiration to keep going. I’ve been told it’s incurable but that doesn’t mean I should just give in. I’m extremely grateful for the last 21/2 years and everyday is a new day with a chance to experience more good things. Cancer has taught me some very important lessons such as the real value of life. I’m probably more happier and at peace with my world than I was before this all started. There are positives to be found in all of this please don’t think it’s all over when you get diagnosed with cancer. Best wishes to you 🙏

[@ricknowak4582]

@@Livingwith-prostatecancer Thank you so much for the reply brother. I Decide to have surgery. I have releasing 7....5 cores. Just in cross gate didn't spread yet. I am seeing way too many side effects due to radiation and medication. I could put up with a diaper for life if I had to. But I don't think I could deal with the site effects of medications. Again thank you in good luck. I feel sorry for you but you do have a positive attitude. Thank you god bless.

[@Livingwith-prostatecancer]

Keep going my friend it will get easier

[@robertrosanelli444]

I have Lupron injections every six months. You know the side effects. They suck to be honest. I know that the alternative of death is not preferable, however, I do question if I really must do this for years to come. I really do not know if I will submit to Lupron shots in the future. That drug is so powerful and what it does to us.....hard to imagine really, but we know its true. So, I have mixed feelings about the whole thing and may get off the med sooner than the oncologist wants. Thanks for your message. I feel your pain.

[@kendietz8640]

Well, I have stage 4 metastatic prostate cancer, had 28 days radiation and over 18 months of hormone therapy. I feel the same person and understand it’s a “chronic” disorder, not life threatening really…cancer…so what! Regards.

[@Livingwith-prostatecancer]

Good attitude, thank you

[@glamup2013]

My father is 72 years old recently diagnosed stage 4 prostate bone mets in thigh bone and pelvis plzzzz guide me guys what should i do to save his life i m so worried about 2 months i can't sleep nor eat due to tension i love my father alot dont want to lose him at any cost but cancer disease is so horrible i will die soon because panic of my father's disease

[@Livingwith-prostatecancer]

Hi Glam up I'm sorry to hear about your father. He has about the same diagnosis as me. I'm sure he will be with you for many more years. Keep him as healthy as possible, plenty of fresh air, fruit and vegetables in his diet and keep him positive in his mind and also you yourself need to keep positive. This can we can be controlled and people have even healed from it just keep strong for each other 🙏

[@glamup2013]

@My fight with Cancer thanx dear can u guide me little more about his diet what should I give him and what not I heard red meat is not good for it???its right??my father's psa level is 110 according to yesterday report he has taken 2 zoladex and 1 zometa for last 2 months and taking 1 casodex daily his psa level was 177 at the diagnosed time I mean 2 months ago still sever pain in left femur

[@Livingwith-prostatecancer]

Hi, Im not a doctor you understand so I can only give limited guidance. I have been on a vegan diet now for over a year and it's helped me to become more healthy. I don't eat meat or dairy products at all. I drink lots of filtered water too. I try to walk as much as possible and I'm also into mindfulness which I find helps with the stress of it all. I can only offer advice but I don't know your father's health so really you should talk with his oncologist. It sounds good that his PSA level is dropping that is a good sign, mine was at 288 and now yesterday's test showed it at 0.03.

[@glamup2013]

@My fight with Cancer ok i will discuss with his doc now he is treating urologist and my father has alot of swelling on his legs feet belly and scrotum

[@q95oldies57]

Wow, I can sure relate. Pain in joints and muscles, shrunken penis, weight gain, weird feeling throughout body, lightheadedness, fatigue, heart flutter. Terrible, BUT PSA now to 0000.

[@Livingwith-prostatecancer]

Yes there are some really nasty side effects of all this I'm just grateful I'm alive and getting the opportunity to see my two young daughters turning into adults 🙏 that's what keeps me going.

[@ricdavid7476]

Do your colleagues know of your fight or have you kept it from them

[@Livingwith-prostatecancer]

My colleagues are all aware I had to take 7 months off to recover from the effects the cancer and the treatment has had on my back, I'm very lucky to be able to work again as at one point my back was collapsing.

[@mikerose6835]

Perhaps on U tube subscribe to Prostate Cancer Research Institute PCRI.

[@billyjohnson9166]

There very good. He’s top in his field. I’ve learned so much for his videos.

[@Livingwith-prostatecancer]

Yes good advice Mike , I done that a while ago.

[@aldonicoll2235]

Apart from the tearing up and the inability too speak when watching a sad bit of telly, the ever expanding waist line, the hot flushes, the inability to bend to pick anything off the floor and my swollen left leg, there is absolutely nothing wrong with me. Same as you I’m grateful for the chance to live longer but having just retired, I can’t even wash my car, I think about it then go for another lie down. Onwards and upwards as they say. Good luck to everyone with the big C.

[@Livingwith-prostatecancer]

Aldo you just have to keep looking for those positives in life.🙏

[@aldonicoll2235]

@@Livingwith-prostatecancer Cheers Woody, your video's struck a cord with me as I was diagnosed with prostate cancer that's metastatic early 2021 as well. Lots of similar symptoms.

[@jabster58]

Isn't death feel like an escape from it all...

[@Livingwith-prostatecancer]

I hope you are ok

[@jimmysmith377]

My name is Jimmy. I have advanced cancer,my body is funked with the tablets. Give me my old body for 6 months. I would rather die early ,than tablets.

[@Livingwith-prostatecancer]

Sorry to hear that Jimmy, we all have our personal thoughts about this, my body doesn't work the way it used to but I've got two young daughters to keep me going. I wish you the best in your treatment.

[@jimmysmith377]

@My fight with Cancer thanks I wish you well Jimmy

[@motorrunnenmolly8031]

God bless you and heal you.

[@Livingwith-prostatecancer]

Thank you