Treating Side Effects of Hormone Therapy |

[@Russ188]

I have been on ADT for about 7 months, using Eligard and bicalutamide. It has been highly effective, and so far, I have not experienced any side effects. Previous videos impressed on me the importance of exercise. I am walking 3 1/2 miles every day, and working out with resistance bands three times a week. I personally recommend resistance bands rather than weights for the elderly (I am 80). Speaking of age, I would love to see Dr. Scholz do a video on prostate cancer treatment for men in their 80's, where life expectancy is limited, and comorbidities need to be considered. Keep up the good work ! I learn much more from PCRI than from my urologist.

[@robwells230]

I speculate that you have no sex life or you are already a zombie EUNUCH. Or you are not really getting your testosterone below castrate level. Or maybe you are that one in a million guy with lottery winning luck??? You still get nocturnal erections?? No mood swings? No brain fog??? No loss of libido???.No metabolic syndrome??? At 76, Eligard destroyed my sexual function, caused severe mood swings, brain fog, severe fatigue, and vision problems, muscle atrophy, memory loss, etc.and chemical castration for Months and possibly permanent low testosterone even.18 months after Eligard expired. This toxic medications side effects were INSUFFERABLE. Im happy that you avoided any side effects of ADT

[@bridudrum]

My side affects grew seriously 6 months after the last ADT Implant

[@bridudrum]

Thank you. Without detail, I’ve had it all, 3 years treatment, very little side affects. I thought “how easy is this?” About 6months later it hit like tornado. A horrid combo of affects. Body and mind then thrown into a blender. I’ve aged 10 years. Wish I’d never touched that rat poison.

[@Prog-t9d]

You are one of the only people I heard report no major symptoms. For me and most I heard from , extreme fatigue, mood swings, bone aching, depression.

[@Prog-t9d]

@@bridudrum I had one injection Eligard and stopped treatment. Extremely tired, mood swings, feel like I aged ten years . Had full radiation treatment with minor side effects. Go for PSA check next month hopefully It will look good.

[@richardbennington323]

Been in support group for over four and a half years. Highly recommended getting into a support group.. need more videos on reoccurrence prostate cancer

[@pinotwinelover]

I'm still in shock for the number of men who chose the prostatectomy, and didn't know it could reoccur at almost the same rate as any treatment option there logic was falls in that it seems if you remove the Oregon that contains the cancer can't come back, but the microscopic cells are in your system potentially. I think this is another reason he doesn't recommend surgery with the high morbidities. I think more people would choose surgery although many mini still do if they guaranteed a didn't come back, but it still does.

[@timoherron657]

I am a 67 year old male and I was diagnosed in March of 2022 with a MRI and biopsy that resulted in 11 of 12 cores positive mostly Gleason 6 and 7 but one Gleason 8 (4+4) and one Gleason 9 (4+5) both high percentage of core 80 percent. Had the whole body bone and pelvis scan which showed no metastasis, but I kept pressing for a PSMA Pet Scan which one year ago wasn’t easy to get but my urologist thankfully agreed to ask Medicare and it was approved. The PSMA came back negative so no signs of spread on PSMA Pet Scan. My PSA never went above 10, I believe 9.5 was the highest it ever got so a slight positive I would think, but I do have high Gleason score disease. June 1st of 2022 I started Orgorvyx and had definitive Proton therapy for nine weeks (including the Seminal Vesicle and lymph nodes) then started Abiraterone mid September 2022. So I think I am one of the earliest patients to get a PSMA Pet Scan and I am now one year of ADT with Orgorvyx in June and September will be one year Abiraterone. I know the protocols have not been worked out yet for people with High Risk Disease and a clear PSMA Pet Scan. My thoughts are that I would like to discuss the possibility of stopping the ADT early. My Radiologist has said 1 to 2 years of ADT is sufficient, my oncologist has said 2 years. I consider myself lucky to be getting good care and some of the latest treatments available. I promised myself I would give everything I got to cure the cancer but would not risk ruining my health with the ADT treatments as quality of life is very important to me. I am definitely following the advise about exercise, exercise, exercise and don’t want to do long lasting damage my body for a cure. I now have low grade anemia and osteopenia from the treatment. So my PSA has been undetectable and I also have Natera ( Signatera) Genetic Residual disease testing done every 3 months which also comes back negative for any signs of disease. I feel that I am reaching the point where the cumulative effects of the ADT are becoming a big risk to my long term health and I am considering stopping the ADT at the end of August which will give me 15 months on Orgorvyx and 12 months on Abiraterone. I am presenting my case for a review and to open a discussion on shared decision making as I am struggling with my choices on whether to stop the ADT and need all the information I can get to make my decision. Thank you so much for your consideration. I would like to have my situation presented as a question in a future video if possible.

[@robwells230]

Thanks for sharing. I was coerced into one six month shot of Eligard and was ordered to be on ADT CASTRATION for two years after getting 25 fractions of 68 Grey IMRT for locally advanced Gleason 3 plus 4. The radiation therapy was easy with no lingering effects, but the ELIGARD effects were so INSUFFERABLE that I refused further ADT. TWO YEARS after the first shot was supposed to expire, my T remains well below castrate level with little hope of ever recovering. I was never informed about the horrific side effects or that ADT CASTRATION could well be permanent. There was never FREE AND FULLY INFORMED CONSENT and the coerced administration of this toxin was criminal assault causing greivois bodily harm. The Alberta CROSS CANCER INSTITUTE treats patients more like concentration camp inmates than humans. The addition of ADT only helps 10% of patients, so 90% suffer this cruel and barbaric treatment unnecessarily. I decided that my quality of life was worth far more than any imaginary or hoped for benefit to overall survival, so I rolled the dice and am taking my chances. PSA dropped from 42 to 0.006 and if my T doesn't recover, after another year, I intend to self medicate with twice weekly injections of testosterone cypionate to try to get a life back I have lost all trust in my doctor and the CROSS CASTRATION CAMP.

[@optimalhealthmedicine1486]

Completely wrong!!! Search Dr Abraham Morgantalar !! (Harvard trained world expert on testosterone and prostate cancer) Look up Hopkins Bi polar androgen therapy!! Very high, nice doses of testosterone, and then for Pharma to make $$$“Median annual out-of-pocket costs were $11,626 for enzalutamide and $9,275 for abiraterone.” they use that as the bipolar (to fund the study showing the power and benefits of high dose testosterone’s effect on prostate cancer!) (Not to mention, the failure of your primary Dr to replace your naturally declining testosterone to keep the prostate from Desiccating “drying out” and allowing the prostate cell mitochondria to replicate a mutation, resulting in an un-differentiating prostate cell to develop (Gleason scoring)) For 22 years, high dose Bioidentical 17b estradiol daily to suppress any prostate cancer cell growth (androgen deprivation therapy) and then “high dose” testosterone to get your “Free” testosterone (your Dr probably doesn’t even measure) within the range of 350-400! Your quality of life will dramatically improve, strength, stamina, vitality and if you are advanced in your cancer, it will slow down the unfortunate progression, but the quality of the rest of your life will be amazing!! We have been doing this for 22 years with outstanding success!! This goes WAY against the current “standard of care” but as you will see below, FINALLY Hopkins, Stanford and U Penn are moving into the space with “bipolar androgen therapy!” YES!! Progress! pubmed.ncbi.nlm.nih.gov/29248236/

[@KDean22]

STOP ADT. IT IS BARBARIC AT YOUR AGE

[@KDean22]

I REFUSED ADT AFTER THE FIRST NEEDLE

[@JunBayona]

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[@Gord001ca]

I have been on HDT for 7 months and it hasn't been pleasant. Hot flashes, mood swings, different levels of depression, muscle pain, joint pain, erectile disfunction and frequent urination, particularly at night. Thank you so much for the information in this video as despite all the research I have done I feel like this was a light bulb moment for me. I have 11 more months to go and I hope with this information I can rough it through. The therapy has been effective my PSA is down to .04 and I feel the cancer is gone. But I had been repeatedly asking myself at what cost. I also had high dose Bracky radiation and external beam radiation for 23 days. Thank you. I have subscribed to you channel and will continue to watch.

[@spitfirekid1]

How are you doing now? I’m about to start ADT for recurrent PCa.

[@DennyMeehan]

@@spitfirekid1 Hi SpitFireKid1 How are things going with the treatment in general with the treatment? Are you good? Hope its going as smoothly as can be and I hope it goes very well across the board. Thanks for your input in you earlier comment.

[@DennyMeehan]

@Gord001ca Hi Gord001ca Any improvement in the side affects? Hope it improves soon and gets easier as it goes on. I have heard that regular walking and stretch resistance training 3 times a week helps and also eating a no-carb diet helps lots too. Can make all the difference many say. Im not sure if you have given this ago yet but if not please try it bro. I know its easier said than done but definitely worth it. You probably already do them. 😂 Itd be great if your feeling much better asap mate!!! Thanks for sharing your experiences so far. Chat anytime.

[@spitfirekid1]

@@DennyMeehan thanks for asking. Overall, I’m doing great! I am on first generation ADT in the form of Orgovyx, and second generation in the form of generic Zytiga supported with 5 mg of prednisone. My PSA dropped to undetectable in only 30 days. The worst side effect is hot flashes and even that is just annoying. I do resistance training every day and alternate between upper body and lower body. I’ve actually even been able to build more muscle mass while on ADT. I’ve not experienced depression. I have gained about 4 pounds. Just started 33 sessions of IMRT. I’m resigned to the fact that I’m going to experience significant fatigue at some point but plan to continue resistance training for the duration, even if I have to modify the amount of weight that I work with. Best wishes to you on your journey with Pca.

[@Gord001ca]

@@DennyMeehan I am now 6 weeks beyond the last 90 injection. It has been a bit of a rollercoaster. I seem to have good days and then amazing days and then poor days. My wife is a nurse practitioner and see believes as the testosterone levels start to come beck they may not come back evenly. I will see how it goes. I have been a fitness instructor for 35 years so I have tried to continue to do cardio and muscular strength exercises though out the process. I haven't gained any weight thanks to watching my diet and exercising. however I have defiantly moved weight and lost some muscle. I can say the hormone therapy was defiantly the worst past of my treatment .Thanks for the reply.

[@charlesbrown6171]

I watch every single video from this site that I can find as I begin to educate myself. Thank you for this great service.

[@roboodonnell3224]

Thank you folks! You are appreciated

[@Dickie9028]

Well. 2 weeks ago I decided on prostatectomy b’cus of these issues. Being a 67yo RN with localized, 3 lesions, 3+3, 3+4 (10%), 3+4 (35%), PSA 5.7 , no other medical issues. I knew I had Pca for 4yrs, went to MD Anderson cancer center, talked to both drs. they agreed with my decision. Radiologist said your lesions and prostate is small agreed with decision .

[@edwardbertorelli7358]

What a great series .....thanks to all

[@therealpeterburke]

My doctors should be required to watch this video. I could go on a rant about how little of this has been communicated to me. If it wasn't for PCRI, I'd be totally in the dark, and I'd soon be walking around with enlarged breasts, weak, fat, and depressed, with fragile bones topped off by total memory loss. I started Lupron 2 weeks ago (102 weeks to go). I will start Zytiga in 2 weeks. Below is verbatim the only information I was given about side effects of Lupron - headache - feeling dizzy, tired, or weak - decreased appetite - constipation - upset stomach - trouble sleeping - irritation where the shot is given - back, muscle, or joint pain - flu-like symptoms - sings of the common cold. I have a hard time finding anything that sounds like the items discussed in the above video. The lack of information provided to me by my treatment team about any of the rather serious challenges patients on hormone therapy will face is just mind boggling.

[@robwells230]

Bet no one ever told you that there's a 20% chance that you will never recover above castrate level after ADT. Administration of these toxic substances without your free and fully informed consent is criminal assault causing bodily harm.

[@holy_trinity_GP_legends]

Agreed. My doctor told me she is"not concerned" when my PSA results came back over 12. Ive had to do all the research myself regarding mpMRi,biopsy and possible treatments. Here in Canada, the health care system is extremely slow and it's difficult to get appointments for a PSMA PET scan or even talk to a doctor.

[@perfectly22smith38]

Yep! Nobody cares about you like you do. How are you doing now?

[@KDean22]

ADT IS BARBARIC. TRY HORMONE THERAPY

[@KDean22]

​@@holy_trinity_GP_legendsCANADIAN HEALTHCARE IS DEATH BY WAITING

[@darrellturner560]

I will be talking with my oncologist about taking a break from the hormone treatment after the next dose. Thank you for that information!

[@howardballard3638]

I just want to comment on statements made at 2:19 and 3:32. I respect Dr Scholtz very much. Being treated with both Lupron and Zytiga I can say that the fatigue and brain fog is at times overwhelming. The Lupron alone makes me very fatigued. But when I started with Zytiga last May the side affects are compounded. Much more fatigue than Lupron alone. Without alarming patients, I think that the side affects of both 1st and 2nd generation HD drugs should be more realistically described. I'm 71 but I think I'm tougher than some younger men. So they should know that these drugs together pack a real punch.

[@robwells230]

Big pharma doesn't want you to know the truth about ADT, because that would reduce the sale of these outrageously expensive toxins and reduce their profit margins. Thanks for speaking Truth to power

[@en1chef54]

Another plethora of invaluable knowledge from you guys. I love the both of you. I’m about a year and a half into this fight. You all have given me so much wise counseling, and influence my decision making. And thanks a million for that. I started off with a PSA of 46 March 2023. Now after external beam, radiation, and Lupron shots about 16 months later my PSA is 0.688 and still slowly falling. But, I am looking forward to my 18 months of Lupron, so I can have a holiday or stop it completely. However, I will always Monitor my PSA and testosterone level every six months! Thanks so much again!

[@MySteamChannel]

Keep up the fight buddy...I am same as you - we can do it! Best regards from Australia.

[@cathum]

Thanks for sharing, very helpful; what’s your testosterone level?

[@en1chef54]

@@cathum my testosterone, is less than 50 (ng/dL) now; but, I am still on Lupron shots for now!

[@patrickkendrick8383]

Thank you, Mark and Alex Scholz! I have been battling prostate cancer for 4 years. While my doctor used radiation initially, we did not do hormone treatment until the cancer came back if it was ever really gone. As my cancer came back announcing itself with high PSA, then higher and higher until it was 10. 3! I began questioning him, and he kept saying it was a "PSA bounce." IT was not a PSA bounce but more cancer that he had missed. I have finished an 18-month hormone treatment and am now clear of cancer...for the time being. But he could have done so much more sooner. I hope people find this site and I will certainly direct them to it. Your information is current and can and will save lives. Everything you have mentioned about the hormone treatment is true, and yes, there are mental issues that evolve too, deep depression and physical ailments with bone pain, etc. None of which was explained to me. Geez, are you taking any new patients?

[@edg531]

Glad to hear you’re doing well. Being armed with the right info definitely makes a difference. Out of curiosity, you say that you did 18 months of hormone treatment when your cancer recurred. Were there any other treatments? I would assume a high PSA upon recurrence suggests there’s something floating around that may need more treatment than just hormone medication, such as spot radiation. Hormone medication is good at dealing with micro-metastasies but not powerful enough to “kill” full-blown lesions. At least that’s my understanding.

[@MySteamChannel]

Thanks so much from Australia...I just had my injection yesterday - wow...can't believe I am seeing this in a random search. much respect for your video's and help..very best regards from down under.

[@renardargent6487]

Agree. As a fellow Aussie I feel sooo lucky in discovering this awesome site. I've recommended it to 3 mates I met during our radiation/hormone treatment.

[@MySteamChannel]

@@renardargent6487 Hope U R doing ok, best regards.

[@gwilymnewnham8163]

Excellent and very well delivered with empathry. Thank you

[@johndefenderfer5946]

The first thing they need to mention is that Lupron, and probably other ADT meds can cause shrinkage in ther nether regions with the prospect of those areas not returning to previous sizes. The next think they need to warn you about are both depression and/or mood swings. I can tell you that I recently got a pretty wicked case of depression and I literally had some really dark thoughts about going to the "light" but thankfully I got my anti-depressant med adjusted just in the nick of time. Finally, expect joint pain and just a general feeling of soreness all-over. I could go on but I'll leave with the next time you're at your doctor's office ask them when they're going to get off their rears and come up with something other than hormone blocking medications...it's part time for a replacement for some men.

[@Epark58]

Always great information! Thanks for all you do!

[@garybutton5468]

Great video's. Wish I had found them before I had my prostate removed. Now I am dealing with the spreading of the cancer. On hormone therapy now. The hardest part I find is the loss of energy. Keep up the good work. Thanks so much.

[@Rhotz-ix8ll]

Superb video. I would advise any man who is about to or is already undergoing hormone therapy for prostate cancer that they take every last word of this video very seriously. I am 8 months into 24 months of this therapy (Trelstar) and have experienced every one of these side effects with, so far, the exception of breast enlargement. Constant hot flashes and severe fatigue are the biggest challenges. I can already see the belly fat and crepe skin from loss of muscle mass. Not fun but better than the increased risk of no treatment. Thanks again for this well presented information. This has motivated me to get far more serious about weights and other exercises, if nothing else.

[@gvet47]

Breast enlargement was not even mentioned to me and now it is too late to prevent or correct. "hot flashes" turned out to be day long and need for a towel around my neck to catch the flood of sweat. If I was told the truth I would have never had hormone therapy since they cannot say it extends your life a day longer.

[@robwells230]

We all are being deceived by the doctors and Big Pharma sales propaganda that ADT CASTRATION effects are generally well tolerated. They are horrific and insufferable for many. I refused further ELIGARD after the first six month shot expired, yet nine months after that shot expired, my testosterone remains well below castrate level. We need voices like your to counter the unethical bullshit that's being spread to promote the sale of these extremely expensive and TOXIC drugs

[@KDean22]

ADT IS BARBARIC. I REFUSED IT. STARTED ON HORMONE

[@robertwhite154]

@@gvet47 I pondered Tamoxifen to avoid the breast enlargement, but the side effects scared me away. I found a fascinating video from a show called “The Doctors” in which a non-surgical therapy for male breast enlargement was described - it involves a series of small injections which liquify the new breast tissue and get rid of the enlargement without scarring. That’s definitely the path I’ll choose if/when needed.

[@tinamina2634]

@@KDean22 sorry what do you mean started on hormone? im doing researc for my dad. you referused hormones but did you go with any hormone and it worked ok without side effects?

[@KDean22]

@@gvet47 I NOW FIND HORMONES ARE BARBARIC

[@roybenjamin]

I have been on 2nd generation ADT for two years. Honestly I feel there is almost a coverup. The discussion of hot flashes for example. I have about 20 “hot flashes” a day. Each begins with a bewildering sense of profound illness. I’m always taken by surprise, “What the heck?…. Oh, yeah.” Then the heat begins. Over the next five minutes my clothes will become soaked with perspiration. The heat comes back in peaks, strangers notice, ask if you need to lay down. Minutes later I’m shivering. Hot flashes have triggers, avoid these: Eating Drinking Walking Sitting down Standing up Thinking So, why don’t professionals tell people what’s coming? Just tell them “hot flashes”, no big deal.

[@robertwhite154]

@@roybenjamin excellent description - so true! One minute all is well - the next minute, my shirt is soaked. What the heck - indeed!!

[@robwells230]

Well, I could suffer the hot flashes, but not the . Severe brain fog ...severe memory loss .... dementia .....total loss of libido .....loss of orgasms .....severe and debilitating fatigue .....severe depression ...loss of nighttime erections leading to permanent penile atrophy .....and on and on And these snake oil salesmen lie about PREVENTING side effects ????? Obviously, working for big pharma, not the patient.

[@Gord001ca]

I feel for you and totally agree. Although I have a couple of friends who were on it and had a different experience. The one person is now completed and says the hot flashes do go away.

[@robertwhite154]

@@Gord001ca thanks so much for sharing that - it provides some very strong hope 🙏

[@bridudrum]

Exactly my experience. Now 1 year after finish of 2 years ADT. Flashes easing but always show up when I’m emotional. Moods slowly improving. Exhausted by midday everyday. Memory problems. My Oncologist didn’t tell me anything about the horrific side affects.

[@gwillie13]

Your videos are so helpful to people like myself that want to learn as much as possible about what we're dealing with so we can take as much responsibility for our health as possible. Bless you! I support your efforts and will donate to the cause.

[@robwells230]

If you want to learn more about the effects of ADT CASTRATION, don't talk to your doctor. He only knows the sales propaganda that big pharma spews. ....Talk to men who have been injected with these toxic ADT CASTRATION drugs to get the true facts

[@bartram33]

I’ve been on ADT for 2months. What I would like to know is, do the side effects level out or do they continue to get worse over the 6/8 months course. At the moment I can deal with the side effect … as long as they don’t get worse. I start my radiation in 6 weeks, so optimistic about the future.

[@robwells230]

@@bartram33 oh boy Fasten your seatbelt. This rough ADT ride is just beginning. For me, the first two months were easy, but after those first months on Eligard ADT CASTRATION, things got progressively worse, and continued for years. Unless you are one of the lucky guys who's testosterone recovers quickly, your side effects get much worse for a long time even after ADT is finished. That toxin causes severe fatigue, muscle wasting, frailty, debilitating brain fog and memory loss so bad that multitasking is impossible and driving becomes hazardous. Nocturnal erections will stop completely, and unless you take proactive action to get oxygenated blood into penile tissue, you will end up with permanent penile atrophy. Your intrinsic libido will be zero, but with concerted effort, you should be able to tap in to intellectual libido and with the help of 5 mg of tadalafil daily pills, , mental, visual and physical stimulation, and get at least partial erections. It may seem like a complete waste of time as orgasms and ejaculation will be next to impossible, but without real focused effort, you end up with just an angry inch of useless scar tissue. Good luck

[@kenb.9976]

I start mine tomorrow for a 24 month program and I’m not looking forward to it at all. I need to provide my my wife with care giver for a few months along with doing everything that she contributes household. Also all my chores and taking care of the house, dogs, cooking, cleaning and the normal things of daily activities. It will be a very long 2 years for me.

[@robwells230]

Your chance of normal testosterone recovery after that long is very slim . You may well end up CASTRATED for life. Your doctor will generally say you can NEVER get testosterone replacement therapy, BUT keep pushing for it if your T remains low after treatment ends. Good luck

[@kenb.9976]

@@robwells230 Thanks for your reply. At 73 I can’t really expect too much at this stage of life now. All done with radiation and I just want to gain back normal energy levels. That’s is my next goal.

[@ari123621]

@@robwells230sex activity in this age not so important unless it harms other areas

[@jimk7964]

I have no experience with long-term hormone therapy, but I had 4 monthly injections of leuprolide prior to EBRT. My own experience was that it was very well tolerated with only slight fatigue and a single mild hot flash. Reduced libido was my most noticed side effect. All side effects ended after conclusion of treatment. I mention this so other men will not be too concerned about short-term hormone therapy if it is recommended as adjuvant treatment.

[@robwells230]

How quickly did your Testosterone level recover back to your baseline level??? one in five older men will NEVER RECOVER ABOVE CASTRATE LEVEL after a longer session on ADT. My side effects on a six month shot were so bad that I refused further ELIGARD. ....I was never informed about the actual overall survival benefit of ADT, not the horrific side effects, long lasting testosterone suppression, not the real possibility of permanent CASTRATION. ....Not was I ever given any options such as Bicaludamide instead of Eligard. ....I would rather live happy, free of these side effects for a few months less, than suffer my last 10 or 15 years existing as a half dead ZOMBIE EUNUCH CREATED BY THE NARCO MEDICO CARTEL

[@johnmchale8308]

@@robwells230 Yep my delemna right now, going to Sloan Kettering this wednesday, might be a lymph node involvement.

[@edwardkirby7679]

​ells230 Here, here!! Bravo!

[@paulasusan63]

​@@robwells230I totally agree with you and Im afraid my husbands Testosterone and libido may never return! Did yours return and how long after treatment

[@robertrosanelli444]

When taking Lupron you will be so tired that you will not have the energy to work out for "an hour in the gym." You will have weight gain, your muscles will turn into fat, you will have bone mass issues, cardiovascular issues, and memory issues. I have taken Lupron and suggest that one not take it for more than six months, if at all. And, I know some men will disagree with me, and good for them, but most men will suffer terribly from this drug.

[@robwells230]

I totally agree, unless there is a dire need for it to treat metastasis and pain. ....I was coerced into getting one shot of Eligard ADT that was supposed to be for six months, but the effects last much longer and may well result in permanent CASTRATION. My Testosterone level remains well below castrate 11 months after the Eligard was supposed to expire. My side effects from this toxic medication were so totally unacceptable that I refused any further ADT. Men must DEMAND all the information about ADT, both the real benefit in overall survival, and all the real quality of life destroying side effects and life threatening effects AND MAKE THEIR FREE AND FULLY INFORMED DECISIONS before taking ADT. The administration of toxic ADT without free and fully informed consent is criminal assault causing bodily harm. .....Doctors seem to be pawns of BIG PHARMA when they just spout their misleading and fraudulent sales propaganda.

[@rogerembry4777]

I’ve been on it for 3 years and it’s horrible

[@simmomantua8910]

I've been on it haven't had any symptoms at all everybody's different

[@ari123621]

@@simmomantua8910you are lying

[@edwardkirby7679]

Amen. ​@@robwells230

[@dwmcever]

Took me 12 months to go from PSA 4 TO PSA 10 STAGE 4 Prostrate Cancer. Was 70.

[@WmLatin]

Thank you for your videos- they are the best i've found on YT as far as clear, understandable information,

[@larryroane5802]

Good job by all who put this together

[@maxthemagition]

My path to hell.... So a 76 year old pensioner goes to the local health centre and meets a doctor and tells him that he is gets up and goes for a pee three or four times every night. The doctor then examines his prostate and takes a blood sample, saying that the prostate feels smooth. A week or so later the pensioner gets a phone call from his doctor telling him that his PSA is 11 and he has to get an MRI to check out his prostate further. He goes and gets his MRI check and a few weeks later is asked to go to the Hospital for a biospy. (Apparently the MRI revealed something). He gets his biopsy which is quite a strange experience and which is followed by blood in the urine and strange coloured semen for a few weeks afterwards. A few weeks later the 76 year old pensioner gets a phone call from the hospital to go and meet with a consultant who gives him the bad news.......Cancer Gleeson 4/3 localised in his prostate and tells him that he will need a bone scan followed by radio therapy and hormone therapy over several weeks and months...maybe forever.... So far the intrusion into his prostate is a biopsy which has changed his semon from a milky colour to a clear colour and he leaks as well. Still the unfortunate pensioner still has Radio Therapy and Hormone Therapy to come yet, as well as the results of a bone scan..... The pensioner thinks......Why the hell did I go and see the doctor in the first place.?

[@kenpie474]

Hi, whats the alternative though. My gleason was 4/5 with a T stage 4 as the cancer is aggressive metastatic into my pubic and hip bones. I've had the Decapeptyl injection with the Bicalutamide blockers, I've now on a life long course of second generation Erleada hormone therapy and suffer all your symptoms too. But where would we be with the medication 💊 . I feel the worst dide effects are the hot flushes massive headaches weight gaining medical castration, and more but I'm still here. I feel your pain and hear your scepticism but what's the alternative, please stay strong. 👍

[@maxthemagition]

@@kenpie474 I agree...Better alive than dead. Our NHS is wonderful and I cannot fault it nor my diagnosis and the future treatment to come. It is almost certain that had I not gone to the doctor in the first place.....you know the rest. I'm now going to the gym to try and strengthen bones and muscles.

[@robwells230]

I faced the same dilemma. 75, in good health, locally advanced Gleason 3 plus 4 PSA 42. I was coerced and deceived into ADT CASTRATION and the effects became insufferable after 4 months so I refused any further ADT shots of Eligard. My experience with IMRT 25 fractions of 68 Grey radiation was super easy with no significant side effects. I did refuse to be tattooed which resulted in a pissing match with my doctor, but really was no problem at all as they just put four sharpy marks instead. I refused to be treated like a concentration camp inmate. My advice.... Don't believe the bullshit that ADT is generally well tolerated. It is cruel and barbaric treatment with horrific quality of life destroying side effects effects and life threatening effects plus a twenty percent chance that older men will NEVER RECOVER their testosterone levels. Doctors only parrot the BIG PHARMA SALES PROPAGANDA. Once you research ALL THE FACTS including benefits to overall survival, only then can you make YOUR DECISION and give FREE AND FULLY INFORMED CONSENT. Ask your doctor for shorter term injections is you can back out if your side effects become INSUFFERABLE, ...ask about alternative medicine like Bicaludamide monotherapy which has fewer adverse effects but perhaps not quite as effective ....ask about Orgovyx daily pills instead of the injections of Leuoprolide, because the pills are more effective and have more predictable recovery. Only you can decide what is the best course of treatment that takes into account your values. Then, it will be easier to ride out the rough journey when you take ownership of the decisions, and not have treatment regret and rage for being coerced. Best wishes for a complete cure And we all would appreciate updates on this Jericho road we all are on

[@Vincent50]

@@robwells230 Thank u so much for your honest feedback. I feel we are just doomed with hormone therapy or surgery. I feel we’re like Guinea pigs with these treatments. I was recently diagnosed with PC and in a couple of days will do the PSMA PET SCAN and praying this cancer didn’t spread. Next meeting with a Radiologist and will have my questions ready. Deciding on which one will be best for me. I hate cancer came into my life as I just turned 68. Now I am dealing mentally how to accept my life will not be the same anymore but aiming to not give up living.

[@KDean22]

​@@robwells230ADT IS BARBARIC. REFUSE IT LIKE ME. ONLY HORMONE THERAPY. NO SIDE EFFECTS SO FAR

[@gvet47]

The first topic always talked about is exercise and not sure how you can do that when you are so weak you cannot lift your arms and your leg hardly let you stand. I was way stronger before they started treating me. Destroyed my life saying it would make me live longer.

[@lsones7588]

Well this was my situation. I was not told just how much I would be affected by radiation and hormone therapy. It was only when I realized just how far I had fallen that I became aware that I needed to do something. I started walking and doing resistance training. ie: free weights and core exercises. When I started weights I was only able to use 2 1/2 lb. and 5 lb. dumbbells. 1 1/2 years later I’m doing 10’s and 15’s ready to increase to 15’s and 20’s. I’m 70 and would say that it’s a marathon not a sprint. However if you start light and stay with it the results will follow. It’s your choice but if you persevere the results will follow.

[@gvet47]

@@lsones7588 I am 75 and my cancer is too far advanced to do much of anything. Palliative nurse today says I need a nurse full time to come in and check on me. Live alone and guess she does not want me to lay died for days.

[@perfectly22smith38]

Love your post Tx

[@williammack571]

I can't seem to find any motivation. Exercise is out due to arthritis. If I did not need to make some money I would just curl up in my house and die.

[@markkemper585]

​@@lsones7588😢

[@powerlawrence9259]

Thanks so much for your excellent advice and support, I’m on Luprin therapy and will be having radiation treatments soon. For my mood swings and anxiety I take prescribed CBD oil capsules which I have personally found to be really effective for my mood and anxiety. I also have THC oil of an evening which is a great relaxant and pain killer which also works well for me. My medical team all approve of the medication and are impressed with my progress thus far. I share all of your videos with my partner to help him understand the prostate cancer journey. Thanks again for all the great advice you share for us patients, they are very valuable. Warm regards, Peter, Tasmania Australia.

[@williamgriffin2132]

I just finished my Harmon treatment and it was a problem I don't wish it on everyone but it helped me . Still have some side effects bone density and loss.

[@sivakumarachanta]

Hi ! I am a 64 year old. Diagnosed with PC in june’22. Have undergone IMPBT( proton beam) in aug/ sept. Have been on ADT with q’ly lupron injection , expected to complete 2 yrs of ADT by Apr24. PLUS CALCIUM SUPPLEMENTS 1000mg/day, D3 etc. I do weight training with KB’s 3 times a week, weights ranging from 14 to 20 kg, plus pull ups push ups etc. I also walk 14,000 steps twice a week & cycle 30 kms once a week. This helped me manage my weight a lot better. Loss of strength & muscle loss- yes, it is significant, but I keep at it and wait to regain same after the end of 2 yrs of ADT. Hope for better days after ADT is what keeps me going. My view is - Mind is a powerful tool to combat many side effects.

[@ronmccaskill2451]

Educational. Thank you.

[@jcjs33]

my urologist went cystoscopy to TURP 1 month later...1 month later Firmagon...now Eliagard and aberaterone ... in 4 mths PSA went 55 to 0.38...tks

[@gtrgenie]

Started Lupron and Casodex on 1/15/2024. 2 weeks in the adverse effects kicked in and I was sweating for 3 days. I had to get Megestrol to stop it. It has subsided the hot flashes in 2 days.

[@garybutton5468]

Wish I had educated myself with your videos before I had my prostate removed. Thank you for your information.

[@danikeil1333]

First off, I want to thank you both for providing all this information. As someone who's prostate cancer was only recently diagnosed, it has been absolutely invaluable when my PSA suddenly doubled. My urologist had me do a MRI and because of the result, a biopsy. The biopsy showed Gleason 4+5=9 Grade group 5 and I just had a PSMA scan done and am meeting with an oncologist later this week. As a transgender woman, I am having a very difficult time finding any information specific to someone that has been on hormone treatment for an extended period of time. I have used estradiol transdermal patches for the last six years and before my shallow depth vaginoplasty( two years ago) I used spironolactone. It seems that the first line of defense against prostate cancer is hormone treatment which I have sort of have been using long before diagnosis. Any suggestions? And please keep in mind, not everyone with a prostate is a man.

[@ahinkle9075]

Does body weight excercises such as pull ups, push ups, etc. count as resistive training like weight lifting?

[@edwardkirby7679]

Resistance training, strictly speaking, means weight training, but pull-ups, push-ups can improve muscle ass, so go for it!

[@tonyzayner-hp7sy]

Orgovyx(researched this vs Firmagon) I requested from my Doc dropped my PSA from 25 to 5 in one month. One more more on the meds til radiation. Some side-effects ED, hot flashes, neck sweats, fatigue, etc.

[@lovesallthingsold4501]

Great Video Thank You so Much!!!!!

[@mjg716]

It seems to me that hormone therapy attacks you at your weakest point. If you have trouble keeping off weight it’ll get you there. If you already have anxiety problems it will magnify them. The lack of knowledge that doctors prescribing them have is astounding - especially Urologists.

[@jamesdecker8630]

I quit ADT after 8 months in conjunction with radiation therapy. I’m only 55, single, and a PSMA scan showed no spread. I may need to go back on it or I may have dodged a bullet. The recovery to normal levels of testosterone may take months. The total loss of libido was the biggest shock.

[@edrianmoore5865]

Is it safe to stop

[@paulasusan63]

Are you finished with treatment, was it successful and did your libido return?

[@jamesdecker8630]

@@paulasusan63 As of now, I'm cancer free. My libido however, no. My testosterone is back to semi-normal levels. The struggle is more personal and mental. I'm going to try psychosexual counseling and an injectable drug called Edex. If I can finally get an erection, it may start a positive feedback loop where I start having those feelings again.

[@cathum]

Thanks for helping the PC community, very much appreciated; no mention of the Zoladex; does it fall under ADT?

[@YourNEBOSHguide]

Yes zoladex is a second gen agonist in terms.of its action as androgen deprivation therapy. It stops prod of LH hormone, whoch in turn acts on the testes and they will not produce testosterone

[@PeteMartens]

Your video is very helpful.I would like to have them answer the question.Why after radiation?Does hormone therapy need to go on for the remainder of eighteen months to get maximum if efficacy.

[@ThePCRI]

Thank you! We will add this to our list.

[@736kharper]

What happens if you decide not to take the Hormones therapy but opt for just Radiation therapy?

[@michaelparis7775]

have a happy life

[@williamgrant3999]

I was 70 year old. Had surgery, failed, five month later had 33 Rt, both Surgery and RT without HT. I live on my own, could not afford to get the co-morbidity from HT. Come June 18 will be six years. Apart from some bladder incontinence I'm ok and very fit. I'm lucky , live in a village walk, three or four or six miles a day, depending how I feel. I felt at my age HT would not extend my life re QOL. Good luck.

[@ari123621]

@@williamgrant3999what do HT and RT mean?

[@williamgrant3999]

@@ari123621 Hello, RT= radiation therapy HT=Hormone therapy ( ADT) I was seventy years old, had surgery then 33 radiation treatment, now 76 years old. Good Luck William Grant

[@williamgrant3999]

@@ari123621 Pre Surgery and radiation treatment, they wanted to put me on medication . I live on my own, could not handle the side effects. I am now on yearly PSA test. Good Luck

[@austinmackjr4743]

Great information. Thanks.

[@clevelog]

Thank you for the very best information and real world guidance.

[@WaiLim-w1l]

Very helpful. I have PCa on a Gleason of 4+3.

[@marymary122]

Thank you so much!

[@leonarddorr9240]

wish I had seen this before being panicked into starting ADT and RT. The Eligard is killing me - id just got my life back after 3 years of knee and hip issues and now im so miserable losing my libido- its devastating to me (Im 61) . Cialis seems to do nothing as I have no libido .No way I'll stick to 2 years of this - my PSA has already fallen to 0.2 from 17. Be talking to the urologist about options in Jan and getting a 2nd opinion in the UK in Feb . My next shot isn't due until May (6 monthly) and interested I some of the options of using Estrogen patches to get some life back - drinking soy milk to see if that helps at all -even as a placebo .

[@paulasusan63]

Soy is deadly to men

[@elginmac1987]

Great information Much ❤️

[@carltatzdesign]

Can you talk about prednisone use with chemotherapy

[@malandritoalboom5264]

Hi, what parameters used post prostate removal for radiation plus hormone therapy treatment to manage gradual increase of PSA. Like what numbers ??

[@ThePCRI]

Hi, please reach out to our Helpline team so they can help you regarding your specific case: pcri.org/helpline

[@JulieGracie]

You are empowering!

[@ThePCRI]

Thank you!

[@aymanutube11]

Very useful and helpful indeed. Thanks for the support and care you demonstrate. Getting ready for slavage RT and ADT soon, this video, as well aa others on your chanel, is a great relief. Big thanks, much love.

[@rudyd4111]

I will be undergoing radiation and hormone therapy having just been diagnosed with Gleason 8. PSA is 7.2 and both sides of prostate involved but looks like no spread. The recommendation for weight lifting is good, however I have kind of a catch 22. I also have an aneurysm of the ascending aorta which may require open heart surgery in 3 years or so based on current growth rate. My heart surgeon advises minimum weight lifting because of stress on the heart, increased heart rate, blood pressure (which I am on medication for). etc. Who do I look to for advice regarding a balanced approach to weight lifting to counteract muscle loss from hormone therapy and not lifting too much because of my heart condition? I also have chronic tennis elbow which limits some of any weight lifting for my arms. I feel as though I don't have a medical team, yet rather I have several specialists who are working on one thing with me and there is no coordination happening. Thanks in advance. I really enjoy watching the videos of you and Alex.

[@keiththompson2289]

So how can I reduce bone loss? Or is there nothing you can do?? Does resistance training help reduce bone loss?

[@wilander1]

yes, weight reistance training and calcium supplements.

[@PilotJan]

Breast enlargement and very sore nipples can be side effects. Radiation, surgery, medication? But what would a massage band do, heat and vibrate? This would not be as drastic. Can be bought on Amazon, where they are sold for massaging the back. Experiences?

[@tompritchard9802]

This is great information. In my case, I have experienced and increase in blood triglycerides while on ADT (Lupron and Zytiga/prednisone). Is an increase in triglycerides a side effect and if yes, will it reverse once off ADT? Just a thought for your side effects 2 video!! 😉

[@DarrelPeterson-mp6lt]

i was on this therapy and my doctor never talked to me about these side effects other than weight gain.

[@2Majesties]

Please discuss the brand new FDA approved drug called Veozah (fezolinetant) for hot flashes. Can men on ADT take this med?

[@maverickat4544]

I have started to develop gynecomastia from the hormone therapy. Will aromatase inhibitors like Femara not raise testosterone or interfere with the hormone therapy? Thank you❤

[@shripadchandratre9700]

Could you please cover Rechallenge docetaxel therapy after relapse of ca prostate

[@ralphcherry617]

So good!!

[@oldpete5339]

I am have been taking Orgovyx for the past two months and weight training. I am going to start 28 day radiation in two weeks. Should I or can I continue weight training during treatment? I am 74 and will be 75 in August.

[@robwells230]

You promote weigh training so much, have you ever considered posting or linking an instructional video for this ??? ....Not all men have the resources or access to a personal trainer, and live alone or in isolated placed.. THIS WOULD GIVE PCRI A LOT OF CREDIBILITY

[@bigdaddy5948]

A lot of things contribute to the side effects. Age and overall health etc. It's a tough decision for treatment. Especially if the cancer itself isn't causing problems yet.it is scary that no discussion was given about doing radiation only

[@edwardkirby7679]

Yes. ADT sounds like inhumane torture.

[@CrazyHeat59]

Gleason score of 9 , high risk , started Lupron three months ago , getting the three month shot, hot flashing is the worse, trying to work out as much as I can , have a horrible cough always feel like I have the flu, any one else taking Gabapentin or Megestrol to manage side effects?

[@DaveMcHughMusic]

Hey I’m new to adt therapy . I hear of people using antidepressants for depression and side effects like hot flushes . Has anyone used mirtazapine anti d for hot flushes ? There are some studies that say it works really good for menopausal women wiped out flashes. I’m wonder if any men have tried.?

[@MrGuitar1458]

Great, comprehensive answers to questions that I would HATE to be dealing with...if trying to cure cancer would result in this range of TERRIBLE side effects, and trying to stay alive in the quite possibly forlorn hope of returning to 'normal' after this therapy, I would seriously consider GIVING UP. You can't tell me that taking all these extra meds, changing one's lifestyle to the point of taking the joy out of life, all while trying to maintain a positive attitude about everything is actually do-able for most men. I think I might rather be dead.

[@robwells230]

I told my dictator doctor at the Alberta Cross Cancer institute that I will never let her coerce me into another Eligard injection. I would rather be dead. She treated me like a concentration camp inmate to be experimented on, and she downplayed the seriousness of the horrific side effects, deceived me by saying it was a six month shot when it continues to keep me castrated many months after it expired and never warned me that it might keep me castrated for life, ......and never told me how much benefit ADT would give in overall survival or life expectancy. ...nor was any alternative form of therapy offered or even discussed. No followup care provider or offered to minimize side effects, just coercing continued injections of this toxic medication WITHOUT FREE AND INFORMED CONSENT. It is criminal assault causing greivois bodily harm

[@robwells230]

They expect us to suffer our last ten or fifteen years living as their NARCO MEDICO CARTEL ZOMBIE EUNUCHS in order to sell more of these extremely expensive toxic ADT injections.

[@MrGuitar1458]

@robwells230 your experience really gets to the heart of why you have to do your own homework on treatments and be your own advocate for the healthcare you want to have. Sorry to hear it's been a nightmare for you, this is precisely the point I was making in my reaction to the video. I think many doctors assume their patients are focused solely on curing cancer and that the side effects of some of these treatments are just things they'll have to live with, and some probably try to minimize the potential side effects because they think the patient will believe them and psychologically handle them better as a result. Once you sign the consent forms, though, they're off the hook.

[@geraldwalsh6489]

Well,here in Ireland,i have had radiation and now on adt. Side effects have been bad on firmagin and have had to come off it. Next week i start on Decapeptyl jabs into the arm. Firmagon jabs into the abdomen causeme manor problems. What theheck,psa now down to .145

[@rolandlickert2904]

I'm 75 years old and my last PSA was 17 before always 4.5 soon will have an MRI, Tub-p and a Biopsy test. Whatever will be the result will avoid chemical treatment. I've been on a keto diet for 8 months lost 12 kg weight have no more inflammation of any kind and my skin health is much better. I rather have 5 years more without side effects and a pleasant lifestyle than 10 years with side effects.

[@kennethward4985]

Stay strong brother !! I was 17 at first, then 4.0, then 0.08 and after one year 0.04, the chemo side effects were not so bad, feet got 5% more numb, hair loss(its growing back now!) and very dry skin. Walking and not too heavy weight training helps too, God Bless.

[@jayathirtharotianantharao3429]

Iam hormontherophy past 3yrs my psa is2 5 My age is85yrs how longtime iwill take hormonthrrapy?

[@robertwhite154]

I’ve been on Orgovyx for ten days, and no side effects yet 🙏 But it’s early!

[@wilander1]

Good luck, how's it going? I'm starting it tomorrow.

[@robertwhite154]

@@wilander1 thanks so much for asking. I’m at the 3-week mark now and the only side effects are a few extreme hot flashes and a little bit of fatigue. How was your first day? Are you experiencing any side effects? Good luck 🍀

[@wilander1]

@@robertwhite154 thanks, appreciate it. I actually just started today so nothing yet, but I'll keep you posted. Was wondering do the hot flashes just happen randomly or do they have a pattern?

[@robertwhite154]

@@wilander1 so far, they’re quite random and it took two weeks before they began. I took the advice of the experts and I’ve been lifting weights six days a week (a totally new habit for me) but, even still, getting up from a chair or a couch makes me feel 15 years older. Please keep me posted!

[@wilander1]

@@robertwhite154 thanks for sharing, hopefully the hot flashes gradually taper off over time. Take care and I'll keep you posted on my end.

[@triggersights]

What about helping men with Modafinil? I was on this drug for shift work fatigue and it was a miracle. It improved my mood by making me feel optimistic, and helped a lot with the physical fatigue. I was more productive and got more done. My understanding is, it has been around for a long time and has proven safe. Modifinil will make you WANT to go to the gym and for me it wiped away the blues. Getting someone to prescribe it may be the challenge as it would be "off label". I am headed for hormone therapy and hope I can get some.

[@IgnatiusNelson]

I have been on ELIGARD and xtandi since 2018. My PSA is still ND🙏🧡. I am doing well except my body seems to get stiff and movement is limited. This is corrected by exercise and eating good stuff. My red blood cells are a little low but other than that I am blessed

[@guyonabike2415]

I’ve been told I’m on HT for life. No mention of a Hormone Holiday.

[@rogerembry4777]

Me too , my doctor is afraid to take me off it because my psa goes up quickly

[@peterbrown5635]

I have also been told that I'll be on it for life

[@donnadegori3823]

Should a patient follow the life long meds therapy? Why do doctors not want to allow holiday if pas stays under 1.

[@guyonabike2415]

I think its fear of being blamed for a rise in PSA. The problem is we are all treated the same. Why is a dose of meds the same for someone who weighs 150 lbs or 250lbs? They weigh you for chemo.

[@williammack571]

I am really having trouble with losing interest in living

[@lrs7777]

Mood issues occur with hormone therapy and men need to be more honest with their oncologist about this.

[@FMFVeteran]

my luck, I was in the last third with an ungodly amount of HF

[@perfectly22smith38]

What is the dr’s 1st name

[@Brockton153]

Mark

[@snozcocram]

The exercise is almost impossible. No, it is impossible. I was able to keep in shape for months, then the radiation effects kicked in and I literally passed out at the gym. I kept trying, but had to face it. All my triumphs from the past meant nothing without testosterone. I have two months of HDT left.

[@ari123621]

What do you mean hdt?

[@snozcocram]

@ hormone deprivation therapy

[@edwardkirby7679]

Exactly. I am in great shape at 63, and I do NOT want to lose that-- which is precisely what will occur if put on ADT. EVERYTHING I have gained in the last 10 years in the gym and from strict diet will be LOST. LOST! And combine that with anxiety, depression, "manboobs" and complete and total loss of interest in sex (which I cannot fathom!!) and you have a recipe for A Suicidal Man.

[@ari123621]

@@edwardkirby7679 how can you fight prostate cancer without adt and radiation?

[@kevinkaraffa8842]

Can you just have radiation and not hormone therapy? I have two, 3+4, and two, 4+5 and leaning towards radiation (EBRT), but the side effects of ADT are concerning. Casodex and Eligard are the meds to be used

[@NobodyNobody-hx6wh]

Is your prostate cancer localized? If so, the following may help you and others with your questioon. I had elected to have surgery for my prostate cancer as one of my concerns was I did not want to be on ADT. Unfortunately, during the operation, I was undergoing retropubic surgery, it was determined my blood vessel anatomy over the prostate was atypical and made it to high of a risk for death or need to ampute the right leg if a vessel was nicked or cut, so it was aborted. Imagine my surprise when I awoke from anesthesia thinking well at least the operation is done and being informed that they couldn't take out the prostate. I will now likely end up going through EBRT, and had an initial visit with my Radiation Oncologist this week. I still have to complete staging with PSMa and other testing. As part of my staging he is sending my biopsy slides of for ArteraAI prostate testing. Basically if the test comes back biomarker negative then a short course of ADT would not be recommended. I would recommend asking your RadOnc / Medical Oncologist if this test could be of use for you. artera.ai/arteraai-prostate-cancer-test The best to all of us as we are on this prostate cancer journey.

[@maxthemagition]

The bit about chemical castration is the bit I hate.

[@gvet47]

Well so far my testical are now 1/3 the size they were. Wonder if they will go to pea size???

[@robwells230]

If your T level remains low after treatment, which is the norm, Keep asking for Testosterone Replacement therapy to get some normalcy back in your life

[@ivork2373]

Dr Scholz, does the use of Lupron cause joint inflammation? And does that result in elevation in CA19-9? Thanks

[@annschmidt9699]

Great

[@Prog-t9d]

Consider other treatments. The side effects are intense. Hot flashes, increased mood swings, fatigue.

[@lesleymorris]

What can you do about the large breast

[@carltatzdesign]

Can you talk about triple therapy?

[@teresa9760]

Don't eat sugar and carbs

[@EdWeibe]

fatigue like a big dog. You'll know where every muscle is because you'll feel them talking to you when you go to use them. yeah depression sucks. Oh I have a PSA now of .06 I will not complain too loud.

[@jeremyv1783]

Warning!-do not get talked into hormone therapy. Mine was prescribed for 11pm this prior to my prostate surgery with a view to reducing the prostate size prior to the op-didn’t do a thing!-other than piling on weight to my waste, grew boobs, had hot sweets, and cried a lot-deviated my marriage!-just don’t them talk u into this!!

[@RichardTausch]

Everyone responds differently to ADT. You don't have to be talked into ADT as if it is going to be an impossible ride for every single person. Like I said, everyone responds differently. The best approach is to do a one-month Lupron shot if that is what is being suggested. That way if the side effects are intolerable, you can look into other options. I went on Lupron each month for 6 months and sure there was (for me) occasional hot/cold flashes but after 6 months I decided to just get a 6 month shot so I wouldn't have to keep going each month. You can't say "do not get talked into this" - everyone responds differently. Thats why I did the one-month at a time injection as a test run. I ate more salads than ever and the only side effects I had were the occasional hot/cold flashed at night, nothing more.

[@paulasusan63]

This treatment for men is pure evil! It has almost ruined my marriage. People need to research natural cures!

[@Tom-pi1cz]

The cure is worse than the disease.

[@paulasusan63]

Amen! Look for natural cures

[@newtexan1]

I’m haven’t read ONE GOOD THING about hormone therapy for men. I don’t know how to advise my husband.

[@paulasusan63]

Natural cures

[@Eclectic_RN]

Let’s see, with ADT you need to eat 25% less food, you are quite fatigued, but you must get to the gym. So, go to enjoy the approving looks from the babes…uh…oops, you could care less…because your libido died long ago. And, if all this is depressing, get help, oops, your Medicare Advantage plan only has a “ghost network,” of therapists, so that doesn’t work either. I do value your videos, thank you, perhaps, if at all possible, might there be a video of Gleason 4+4 that avoids ADT?

[@edwardkirby7679]

Yes, please! No ADT for This G8!!