How to live with Trigeminal Neuralgia away from home | vacation & breaks

[@gailnoll]

I wanted to let you know how much your videos meant to me when I was told I had TN. I was misdiagnosed by my Dr as having TN when I actually have cornea dystrophy which is treated by using a simple over the counter eye drop and ointment each day in both eyes. I was so thankful to hear this news. I spoke to my eye Dr about TM and he told me how horrible the pain can be. I thought of you while he was talking to me. I pray this condition goes away for you. But when I needed help your videos provided me with comfort and hope and a place to ask questions and I thank you for doing what you are doing, sharing your pain and knowledge. Be well, be healthy and pain free.

[@Letsfaceittogether]

Thank you so much. I'm really glad you don't have TN. So pleased that the channel helped you out when you needed it. I will keep sharing as long as there's a story to tell!

[@rdelina8038]

There has to be an origin (a beginning) of this Trigeminal neuralgia affecting me. I do believe my Trigeminal neuralgia started a few months after I got the Shingles Zostavax vaccine, which contained the live shingles virus. Shingles causes nerve damage. People who have had chickenpox may also have the live virus in their bodies and years later the virus can be reactivated according to the CDC (Center for Disease Control) here in the US.

[@Letsfaceittogether]

I guess it's possible that something may have triggered it x

[@mizzmuhree9297]

I’m going through this. Def want to see more

[@Letsfaceittogether]

It’s very hard to adjust to and get information on. I normally do a video every 3/4 weeks

[@mizzmuhree9297]

@@Letsfaceittogether it is. Mine is due to a dental procedure in 2020. I was 29 years old now 31. Took nearly 2 years to properly diagnose I had nerve damage because the dentist told me to keep waiting that numbness was normal. Now I can’t sue cause the statute was 2 years. I got what I thought were tooth aches, ear infections etc on one side, electric shocks occasionally. Now since July 2nd this year I’ve had symptoms daily and only recently I felt a pain I didn’t know existed. I thought the electric shocks were bad but this time it felt like lighting hit me.

[@cholasatanica9160]

I was on Oxcarbazepine then switched to carbamazepine it’s exhausting the meds kill me i quit a week ago and bought shrooms my neurologist told me it was okay to try shrooms

[@Letsfaceittogether]

It definitely effects energy levels

[@simongregson8548]

I try and walk an hour each day. For me this helps. While I'm walking I feel no pain, its only when I stop and slump in front of the TV that it starts creeping back. So best thing for me is stay busy if possible. I've got an allotment as well.

[@cholasatanica9160]

I got nerve damage from chemical toxins I worked with daily it caused my TN 💔

[@Letsfaceittogether]

I'm sorry to hear that 😔