Multiple Sclerosis Symptoms: MS Hurts!

[@sheymahelissyaweah3042]

Really really dr we need translator videos for the people’s or family’s cannot understanding English ☹️ god bless u Dr and really thanks for all

[@Scotty.Rosencrance]

That would be awesome!

[@AaronBosterMD]

Howdy! I would welcome any assistance here. (I believe that if someone sends me a file with the subtitles, then I can upload them into KZbin for a given video). Thank you for wanting to help my videos reach as many folks impacted by MS, regardless as to what language they speak! #WeHaveMS and are truly #StrongerTogether

[@sheymahelissyaweah3042]

Aaron Boster MD we all should thank u Doctor for what u always doing for helping people like us and for always trying explain for those who need and btw u are a famous here special in the Arab countries

[@AaronBosterMD]

That's amazing. I've presented in Dubai a few years back and would LOVE to revisit the Middle East someday. (Wonder if we could encourage the local societies to bring me for a lecture tour!)

[@alfredoiglesias7856]

Aaron Boster MD I can send to you your videos subtitles in Spanish and Portuguese :)

[@suzanneknepp849]

I am a nurse and I’ve had MS >25 years. I am going to ask my husband and children to watch this video. Your explanation of the various forms of MS pain is spot on. Thank you for putting into words the pain symptoms that I have been trying to convey to others for years. Blessings to you.

[@marmite999]

Agreed girl xx

[@shireenramnarain4005]

Nobody seems to understand the feelings....😢 My 2 kids are the only ones who empathize with me...but nobody takes kids seriously 😢 They have lupus n mystenia Gravis...different kinds of pain ....

[@debrabrown4378]

MS. Is a horrible disease but there is always hope

[@LKDelahunty]

I'm a nurse too and was diagnosed about 3.5 years ago. I work in critical care.

[@ascarlangat1745]

​@@LKDelahunty hi please can you contact me you understand more as a nurse

[@monikagombkotoova2074]

Unfortunately, there are still doctors who say MS isn't painful, and explaining our pain to them or other people is hard. So thank you for this great video, and everything you do for us, doctor :)

[@AaronBosterMD]

Well said!

[@Scotty.Rosencrance]

Monika Gombkotoová hey there, how are you? The fact that some doctors stil believe this is mind blowing to me. Does your doctor still believe this? If so please, please, please find a new doctor. I hope you have other options

[@KorrieJade]

Finally shits changed and they can't deny it anymore.. like how can someone who doesn't have MS tell me I'm not in pain..it's ridiculous, no one would never tell someone who has cancer isn't in pain. Who's nerves have been cut wasn't in pain. It took me a long ass time and a bunch of drs to finally get proper pain medications. All nerve pain meds send me absolutely loopy like ended up trying to unalive myself multiple times.

[@kimberdu]

My last neurologist told me M doesn't cause pain and treated me like I was a fool....needless to say I quit going to that doctor...

[@christiancalderon3821]

I completely understand you

[@juanitasimpson5937]

This is hands down my favorite video EVER related to MS. This should be shown to every new MS patient. I never realized itchy hands was relayed to MS so I never told anyone! So much of this now finally makes sense!!!!

[@meloneyparker]

Every MS patient needs to watch Dr. B. Actually, all neurologists need to take a cue from his approach.

[@roberture5903]

@@meloneyparker it's pretty sad that my neurologist never heard of him but my nurse practitioner has. How screwed up is that?

[@angiebear8727]

Was my first symptom followed by numbness and tingling. Was lucky enough to have a neurologist who noticed me itching and put it together.

[@kita3752]

I had a ER visit in Jan, head of the ER told me to my face that it does not cause pain, I almost left and that would have not worked out well as my lactic acid was dangerously high. The education needs to change, thank you for doing these videos

[@moonlightdusksky]

I moved countries recently and saw a very well regarded neurologist who turned around and said pain is rare in MS and it's all in my head as I must be a very sensitive person 🙈 Let's just say I didn't go back to see that consultant again!!

[@Julia78309]

I can relate to that!

[@SeanParson-n4b]

👍🏾

[@tracyannaleclair9320]

Are you a woman? I have been told by a female doctor and I've experienced. I think myself that when you're a woman you're symptoms or severity of them are often dismissed. Every doctor knows that we all have differing number of pain receptors some have more than others which makes them more sensitive to pain. The fact that they would say that makes me angry

[@JHRoss2]

Best video to calm down someone who is just afraid of having ms

[@Borderlinegoldenretriever]

Sadly it didn’t calm me down I have 7 out of the 11 symptoms, so I guess I got my answer

[@Bluelilly40]

I do take pain medication for the pain I do have, and its amazingly helpful. I don't think taking that option completely out of the picture is right because everyone is different and reacts differently to certain meds. Before I was put on pain medication, I had no quality of life. I did everything asked of me- high dose IV steroids, multiple injections, multiple medications (and some that I'm still on). I have no insurance and went into serious debt trying one new treatment after another. I no longer own my own home. I live with my daughter and her husband now. Ultimately, pain medication was one of the best decisions for me, but I know in today's opioidphobic environment, I'm truly blessed to have such good relief. I sincerely hope everyone can find a path that leads to less pain and more movement.

[@ucbwill]

What pain meds did you take?

[@mchantris]

I too take pain meds!! Percocet, Gabapentin, and a muscle relaxer called Baclofin!!

[@ritapartee5730]

You sound like my twin. Good to know that I am not alone

[@user-fl6ko9do5y]

yes, none of those medications helped for pain with MS, only actual pain medication. I love when doctors feel forced yo have to go through the litany of all other options and make the patient endure them when they know, and many patients know (they speak to each other) that they just don't treat pain effectively and come with slew of side effects.

[@kkcamp02]

You are the best neurologist EVER. I have learned more from you than I have from my own doc.

[@AaronBosterMD]

Thank you but I'm just sharing medical information to help educate folks impacted by MS.

[@kkcamp02]

@@AaronBosterMD We appreciate it so much. I was terrified when I was first diagnosed. My doc was good about meds but didn't help much with the "nuts and bolts" of this disease. I felt so lost and overwhelmed. I prayed to God for help and found your channel. 😅

[@tonykeally1039]

Dr Boster my wife was diagnosed a couple years ago and she isn’t receiving very good care here in PA, we fear her ms is progressing and they aren’t even taking it seriously and who knows how much of her life is being wasted by their inaction and inability? Do you see out of state patients? Is there someone we can talk to to find out if it’s even a possibility she could see you? She loves watching your videos you give her hope! Ms sucks man! Thankful for people like you who make such a difference in people’s lives.

[@desiredecove5815]

Tony, I am from Pa. can you request she be seen by a MS specialist/ MS neurologist? They do have them in a few larger hospitals across the state. MS Focus also has transportation assistance grants for neurologist appointments. God bless your wife and you her #1 supporter

[@ope4r540]

Tony, I posted a reply to the user named: hamcki. Scroll up and read his question. I made a recommendation that could possibly work for your wife. If there aren’t an adequate amount of neurologists who specialize in MS, then look at another state and try to find a practice that has more than two MS specialists. Sometimes the practice can be over loaded and the wait for a follow-up appointment is very long. Please search for my reply further up. My best wishes to you & and your wife.🍀

[@charlesboster4035]

Yes he does. Very often.

[@claudettes9697]

Cannabis has helped me immensely, I hope you have access. I have all of this, but two. Good luck to you. 😢

[@OfficalYTLaMenteAjena]

Agree

[@sweettina2]

It's helped me, too. My doctor includes it in my pain management.

[@visionsmagazineonlin]

Its horribly expensive. How do unwell people with limited resources afford it?

[@AnthonyNelms-nh8ko]

Cannabis is gods wonder drug. I have nerve damage and it helps alot. I also have ptsd and lack of appetite and cannabis helps me eat. Everyone involved with cannabis prohibition will hang their head in shame in the future. Thc and CBd are wonderful chemicals

[@stacyneel9721]

Dr Aaron, I appreciate this clarity on the various pains of MS. I have had bilateral leg pain constantly on a daily basis. In my 20’s the first unusual pain was an episode of trigeminal neuralgia treated with Baclofen then both arms with numbness tingling to be told that was carpal tunnel. I have had the electric shocks with turning the head side to side not much with extension or flexi on. Your teaching on this top needs to be submitted to Journal of Medicine and include a copy to be submitted to the MayoClinic maybe they could start to rewrite MS symptoms including pain to educate Dr’s that are not informed.

[@lowperez3436]

This is a new journey for me and I am grateful that I found your video. I am having crippling pain from this disease and it is frustrating when no one seems to understand. I heard things like "push through it, your getting old, I'm pretty soar today as well, it's in your head" along with many other explanations of what my issue is. Unless you have spent the majority of your time- over a 5 year period- in the fetal position, then I feel confident in saying you don't get it.

[@davidyouens384]

Hi there Dr I presented to the er 4 Times with Ms hugs before being diagnosed with MS and was really upset when they said I had munchausens!!!! . So I understand that these pains can be confusing, but I think young doctors should be more educated about pain syndromes in different illness. PS I did receive a full apology from my NHS Trust. I am now being treated by a great neurologist a Dr Gabe De Luca here in the UK.

[@kindadandy7651]

Honestly, I started smoking cannabis after the first and second time I went to the ER. I was diagnosed and I never stopped. Not only does it help with pain, but also appetite and stability. My tremors and spasms astonishingly

[@Daedana]

I am based in UK. DRs have asked me if I experience pain. The definition of pain with them and with most of the public is not clear and that makes things confusing. Thanks for letting me understand that my spasticity can be defined as pain. This helps with my interaction with the doctors here.

[@darlene1187]

I do not have MS but contininue to learn from Dr. Boster's videos, for my cousin with MS. Thanks for another very informative video.

[@kitshrapnel8548]

Thank you for taking the time to look into MS, I have Recommended Arron Boster to friends, not even one has looked, people see what they want to see. thank you

[@AaronBosterMD]

You are so welcome!

[@yvonnewehr1760]

@@kitshrapnel8548 I agree I think he is wonderful. I WISH he was my doc.

[@annconforti9294]

Your cousin is blessed to have you care so much! ❤

[@mennenzewde7293]

Of course, we feel pain! In different places in different way. You really explained it well! Thank you for understanding us Dr. Boster.

[@KevinMcMahonMosaics]

Great video Dr Boster. You mention that trigeminal neuralgia is one of the most intense pains that a human being can experience. I've been hospitalised with it, together with the MS hug and also what was far more painful than my particular experience of trigeminal neuralgia - muscle spasms in lower back, which were believed to be due to an old L5-S1 disc injury and later diagnosed as cauda equina syndrome. Since being diagnosed with MS, I begun to wonder how much MS impacts the chronic pain I suffer from the disc injury. In other videos you advocate exercise, another great piece of advice. I've found that while it may sometimes be painful to move, exercising the muscles can often prevent the pain becoming worse. Thanks for your awesome work!

[@OrangeCat1992]

I ran into a young ER neurologist, who believed MS doesn’t cause pain the first time I had to go to the ER for a relapse because I had a very long wait to get into my new neurologist when I moved to a new state. I was shocked when he said “MS actually doesn’t cause pain.” I just told him “let’s move on,” but almost immediately afterwards I wished I had asked him why the National MS Society has a web page on pain if MS doesn’t cause pain. Thank you for making these videos. They are very helpful to keep informed about types of pain other people with MS may have so I can be a good advocate for others too. 🧡🎗🧡

[@yvonnewehr1760]

I agree eleehaley!!!!

[@christiancalderon3821]

IF MS doesn’t caused any pain so why docs recommends physical therapy and PAIN MANAGEMENT or pain meds. Is like saying 😒 DUH!!!!!!!!!!!!!🙄

[@vanessagalbreath663]

Your professor was on some bulls$*t. Im glad your your own thinking man.

[@Scotty.Rosencrance]

Good morning guys! Just wanted to say that it’s great to have such another wonderful big family here with Boster and you guys! Have a great days everyone. Try to Keep our heads up and keep moving forward

[@AaronBosterMD]

Good morning Scotty! Top of the day to you good Sir! #StrongerTogether

[@gloriaparr7832]

I have Primary Progressive ms and I've learnt such a lot from you. My age is 78 and i'm in a wheelchair full time. Good luck everyone.

[@AaronBosterMD]

Thank you! You too!

[@terriwaltz5293]

Thank you Doc! This is incredibly needed to be shared with our families🤓

[@1Kittywicked24]

I describe and compare the ms hug to being squeezed by a boa constrictor while trying to breathe through a coffee stir straw.

[@claireholland3789]

This is a really great video, so informative. I love your videos, I find them a real help. I think I may share this with my family. I still don't think some folk believe me just how painful MS can be. Perhaps I'm just good at hiding it. And my the way, I wish you were my doctor. Took me 10 years to get my GP to take me seriously and eventually get diagnosed.

[@Queenie97]

Thank you so much for making this video and for understanding that MS causes pain. I have had trouble in the past explaining to my job about me being in pain. Thankfully, now I have an understanding boss but it is hard explaining when it is invisible. It makes you feel like you are crazy or making it all up... still thank you so much for this! Have a blessed day!

[@AaronBosterMD]

Glad it was helpful!

[@christinahagerman280]

A fantastic video. My daughter has been “pushing thru” her MS pain since she was diagnosed 10 years ago. She is now 40 years old and has been given 4 different drugs over that time period. The last drug Gylenia has kept the lesions at bay but there is always MS side effects that are not improved by the drug itself. It’s a life changing disease and I am so pleased to have your break down of the various MS pain and possible treatments. Please keep posting your videos and thank you so much for your care and expertise.

[@mrsm3442]

Thank you so much for such a comprehensive video. It helps us understand better that all these weird sensations are caused by MS.

[@Scotty.Rosencrance]

The MS Hug can be very confusing. Very painful . But I have learned and utilized a way that you can calm down the MS Hug. You can curl your fingers under your rib cage and massage your diaphragm and the muscles. It can be sensitive so you may need to start off very gently.

[@AaronBosterMD]

TY for the pro tip Scotty!

[@OrangeCat1992]

Yoga breathing helps me.

[@soniam372]

When I was first diagnosed, I was trying to describe my symptoms. I didn't know what was going on. Told my Neuro it felt like I was wearing a girdle or corset that was three sizes to small or like I was being squeezed too tightly. He said he'd never heard of that symptom and it wasn't MS related. I was so confused because I had mentioned it to my PCP during a physical and she said it was MS related. Happened for a few months years ago, and hasn't happened since.

[@starlaberge9792]

@@soniam372 I described the MS hug very similar to yours and it also felt like I was a tree trunk, hard to bend comfortably

[@jacquelineglitter4328]

My son had that and they told him at the hospital MS doesn't cause pain. He got a muscle relaxer from someone and said he felt so much better. I'm tired of these damn Drs. making people suffer because they're worried about getting sued. They should get sued for not taking care of their patients properly.

[@starman9921]

Thank you for your video. That was the best explanation of my MS pain I have ever had. I new most of that from 30 years of pain , but no one from pain clinics has that understding.

[@saudigold50]

I understand that this may not have the same outcome for everyone; however: I have found that intermittent fasting (IF) on a regular basis- and voracious, cold-water swimming has helped me immensely. Thinking of all of you. Thank you, doctor- for your stellar content.

[@Jamesp0nd]

Fasting has helped me too! Also I take ice baths. Does help I agree!

[@sweettina2]

Oh my stars! This is the first time I've heard someone say this- at 2:44 optic neuritis! It feels like my eyeballs are hanging by strings, and the strings hurt terribly. I'm a registered nurse and I can't explain it better! Thank you! Now, on with the show....

[@jacquelineglitter4328]

Yes, my son kept complaining about neck pain and stiff necks. We found out he had MS from a MRI. He had a long lession on his neck where he had pain and many on his brain. He also lost vision in 1 eye before he was diagnosed.

[@hm1389]

Dr. Aaron Thank you so much for this latest video. It was a good refresher of the types of pain so I can take these back to my Neurologist to better explain how I feel. I always love your videos and the way you explain things. Thank you so much for making these available to those of us who don't have the privilege of being under your care.

[@AaronBosterMD]

You're very welcome! My goal with this channel is to educate, energize and empower folks impacted by MS. You're taking the time to comment means a lot, thank you for participating in our village!

[@Em-vj8sm]

No diagnosis. But I feel as though this is extremely important. I've had pretty much every type of pain listed here in the past decade, on an off as well as other symptoms but mostly pain. I've been treated like I'm bonkers by almost every gp I've seen and refused specialist referrals over and over. I saw a new gp who looked at my history and was absolutely gobsmacked that I've not yet been referred for an mri, which she did immediately. I'm not sure a diagnosis of ms would be at all welcome, however some answers would be nice. If all doctors understood the probability of ms causing all these different types of pain and sensations, then maybe people like myself with pain that's both transient and disabling, might be checked out sooner. Over a decade of debilitating symptoms followed by recovery, over and over and this is the first time someone thought it could be MS.

[@andreah6379]

You are an excellent teacher. Great doctor. I don't have MS but serious medical conditions interest me. My dad got very ill working as a tool & dye machinist. So when I born, he started regular visits to the hospital. Back in the late 50s, early 60s, nobody really diagnosed my dad properly. Always sickly he couldn't be the dad he wanted to be and I remember him always telling his 3 kids, "You can have all the money in the world, but it means very little when you have a serious chronic illness." Americans have more than enough problems with our medical for-profit industry. Anything we can do to help ourselves like educating ourselves can really help. So here I am. Thanks, Doc! Great video. ❤

[@sumitsankhla3393]

I'm an medical student & suffering from Ms thanks your videos are very helpful

[@kaylamarie642]

I stumbled upon your video from a MS group from Facebook, so glad I found you! Excited to share with friends and family to share the education you provide 🙂 I was diagnosed at the age of 19.

[@kitshrapnel8548]

Thank you Aaron, For taking your time for Making these vids, Between Work, Family, and campaigning to bring awareness. Where do you find the time to sleep : ) A BIG Thank you for all your work

[@AaronBosterMD]

Much appreciated! Thank you for recognizing. That means a lot Kit, thank you!

[@kitshrapnel8548]

Hi, today I got my diagnosis RRMS, I'm not new to the condition,my mum had MS, Back in the 80s. so I now have experience from both sides, growing up with someone with MS, to living with the condition. I have expanded on you soldiers know self analogy, My fatigue analogy for the younger generation, Is an old laptop battery, 99% to start with, 10 minutes later 5% I'm 53 white male, been living with MS for about 12 years, other conditions complicated diagnosis, and only mild symptoms up until this relapse. i do have one question. can MS trigger or make worse tourettes specifically Coprolalia. PS your the second person I have told about my diagnosis, and i would like you to know, you have been a great help to me, i have recommended you to my MS nurse and to anyone who doesn't know what MS is. people love a bit of utube.

[@cherylbear15]

Hi Dr Aaron love watching you all the way from Australia, very interesting segments on MS having had MS for many years it’s wonderful to understand it all in plan English. Thanks again

[@AaronBosterMD]

Thanks for sharing! #StrongerTogether

[@cindyhofmann8356]

I have the electric shock it shoots up the back of my neck into the scull it brings me to my knees 😭 your the best!

[@AaronBosterMD]

Oh no!

[@cindyhofmann8356]

Also speaking of eyes right before I was diagnosed I actually lost vision in both eyes two days in a row for about 30 to 40 seconds I wonder if you seen this before?😔

[@dedewalsh5076]

Had that once in 2018 I don't want it agian

[@bmdjk]

I have it too but has never been able to explain it for Dr:s,I called it epileptic jumps or cramps. Like being electrocuted. I,ve had this since I was 19 now I am 62. And a lot of the other symptoms. I will never get a diagnosis because Dr;s here do not have a clue.And it´s getting worse.Hard to walk and move my arms are "gone". And my bladder.

[@venushhc]

Many of these symptoms describe what my 32 year old son was experiencing. Especially the SPASTIC HEMI-PARETIC GAIT, his severe spasms, pain and so much more. He was always in pain and would say no one understood how much pain he was in. They had diagnosed him with dystonia because of the twisting pain and spasms but I know it was so much more. He passed away 18 months ago. Absolutely heartbreaking and devastating to watch him suffer so much. 💔My grandmother passed from MS at 48. Now they’re together. 🙏🤍🕊 Thank you for bringing light and awareness to what many don’t know. God bless you. 🙏

[@Max_Krypto]

I'm so sorry about your Son and Grandmother, but we should be jealous as they are walking with God now renewed/pain free. God Bless You and your Family

[@roberture5903]

Thankyou for doing this one Aaron. It was very helpful! The ms hug was one of my very first symptoms 7 years ago. I wasn't officially diagnosed until 3 years ago,go figure. I've been waiting for this for a couple of days and as always you did a great job explaining everything. So much appreciated my friend.

[@Jerusalem_Warrior]

Join the club. I also arrived at the ER with MS hug in 2009, and incredibly, was not diagnosed until 2018. I try to imagine that God made everyone deaf, dumb and blind until Ocravus was authorized for use in Israel. Best greetings from Jerusalem! 🌸 💖

[@roberture5903]

@@Jerusalem_Warrior Best wishes to you also. May God be with all of us.

[@johnscapino5374]

Good morning Dr. Boster and everyone. MS pain is real and the doc of the day has solutions!! I wish everyone an awesome week.

[@AaronBosterMD]

Howdy John! Hope you and yours are healthy and well!

[@anotherplanet5828]

I get random stabbing zings of pain in my legs, arms and torso.

[@nataliacoronado5259]

Doctor still to this day I refer people back to you in groups when they comment something along the lines " I'm feeling ___ am I crazy or is it real? " Thank you for your YEARS of service

[@lenasamanthagraham]

Been waiting for this all morning (Norway🇧🇻) my most bottersome symptom of my MS is pain, every day, all day😵🥳😜💪

[@AaronBosterMD]

#StrongerTogether

[@landracriswell437]

I enjoy these videos each & every one! I just recently was diagnosed with MS 🤔.

[@charlesdesrochers4981]

You 100 percent understand MS.

[@charlesdesrochers4981]

1995. Look normal But have been terrible since then. 1960 to 1995 were great. I don't know anymore what normal is.

[@helenabonoko2405]

Thank you so much, I recently found out about you 3 days ago through Facebook, had my first symptoms in 2018 and was finally diagnosed in 2021,much is not being done for me right now by my doctor,but in just 3 days I have learnt a lot from you God bless you

[@saraknight3605]

An absolutely wonderful video . Thank you.

[@nicolerain3127]

Thank you so much for this video Dr. Bostr. People that don't suffer from MS really have no clue Bout how painful this illness can be. Family an friends of perso s suffering from MS really need to see your videos, especially this one. I plan on sharing this. Thank you once again you are a GOD send here on KZbin. I really appreciate you!!!!

[@tyechapman3726]

MS runs deep on my side of the family. I had a cousin commit suicide and I had an uncle lose a lot of weight and then died. I take MS very seriously. Now I'm dealing with it again with my boyfriend!

[@ope4r540]

Good morning from North Texas!!! Thanks for posting this topic. Many blessings to you, your family & staff. 😊

[@AaronBosterMD]

Thank you. Health and Happiness to your and yours Rope4 C!

[@chrisc757]

Great video, so much good information, i will definitely be re-watching this video a few times to make sure I did not miss anything. Thank you for taking the time to put this information out there.

[@AaronBosterMD]

Glad it was helpful!

[@j.r.c8145]

Aaron....you are brilliant. At explaining this disease/condition. You make it simple and easy to understand. Thankyou sooooo much. One question. Doctors dont seem to agree. Is MS caused by an over active immune system or an under active system? Your thoughts would be much appreciated. Thankyou.

[@AltClev37]

Thanks doc. Hate ms. A lot of these I suffer with and tears started in my eyes because it’s so validating to hear my silent troubles coming from someone else.

[@pamelahudson8157]

Dr. Boster you are the Best. Thnx for explaining me😊 gonna have my family watch this so I don't have to try an explain my pains. See you later this month

[@StillFab44]

You Sir are pretty dang Awesome. TY

[@ancadi4ever]

Finally an answer for my itchy ears...No one could find anything wrong ent professionals etc..So at least I now know my MS causes this. Thank you

[@andreawheatley5528]

MS hug really hurts me, I also have had the trigeminal neuropathy, and my spine hurts to a 10, I have the arm, hand snd foot pain, but the eorst is the spasms in my legs and feet. Thank you for explaining all of this. I also have itching,vfor no apparent reason.

[@willowtree9082]

Thank you for explaining the MS hug, that's the painful thing I've been experiencing now for the last 16weeks, but it's in my lower back and hugging around to my hips, it's burning/tight and with inflammation that's going up and down in severity, it's also effecting my hips/knees because I've had to change my gait, I've got so much going on from my waist down, swelling of limbs,one foot is half numb, hoping this neurologist appointment hurrys up, to much going on.

[@AaronBosterMD]

You are so welcome

[@EmDavies-cl8nv]

Hi did you get a diagnosis as I see your comment is from 2 years ago. At the time of the symptoms you presented explained in your comment, where did your lesions appear? Thanks

[@rzlna]

Thanks for the video. I like the candle background. Glossopharyngeal, occipital and trigeminal neuralgia are miserable. It’s hard to have a good day when it hurts to smile.

[@AaronBosterMD]

I totally agree!

[@PsychoKittee1]

Ironic or fortuitous, I'm not sure. However, I have an appointment with the pain doctor at my neurologist's office today. Thank you, for the topics of conversation.

[@tyechapman3726]

My boyfriend was diagnosed with MS in 1997 and has gone untreated to this day. He is 53 now. I've seen him quickly progress in the past 9 years. A couple of years ago he was turned by a supposedly good MS specialist near Indianapolis because they saw him pick up a piece of paper and told him he was fine. This is no joke. I went from seeing him very active to where he can hardly move cause he's so stiff. He goes through "attacks" everyday and rarely has a descent day without pain and fatigue. He describes the fatigue like the flu but hundred times worse. During these attacks he goes through extreme fatigue, dizziness and weakness. Ive seen him scream in pain followed by paralysis in both legs and arms. I often watch him go through seizures or a rhymn nodding. They come on without warning. Is there anything I can do for him?

[@capneyeball575]

God bless you, Doc 🥺

[@AaronBosterMD]

#StrongerTogether

[@enzodunn2577]

I have lhermittes phenomenon. I have trigeminal neuralgia. I have the paresthesia, the aladoynia, occasionally I have optical neuritis. And constantly dealing with the ms hug feeling. All of this started around 2018. In 2019 both of my lungs collapsed. I had to have thoracic surgeries on both with sections of both lungs removed. Then 12 more lung collapses after those lung surgeries and then in 2020 not even 6 months later caught covid and it gave me double pneumonia which they had nothing they could do for me. I was hospitalized and thankfully my immune system fought it off after being very sick. I go into the emergency room about every 6 weeks thinking I must be having a heart attack with severe chest pain and always get sent home and told they can't find anything wrong and that it must be nerve damage. I've had MRI and go to a neurologist who sent me to have a few test done and then she started injecting me with botox in my skull for migraine treatments and put me on depression medication to " treat my trigeminal neuralgia " and that's it. She thinks I'm just fine. I've been in constant excruciating pain since 2019. I haven't been able to work. Or stand for long periods of time. If anything touches my skin it's like needles and sometimes like being burned by a fire. And she says I'm just fine.

[@capoo1337]

I had the pain down my back and legs back in my early 20's,(I was DX at 40yo in 2013, although my neurologist is certain that I've had MS since I was 16) along with the 'hug'. I had optic neuritis when I was 32ish, but put it down to stress.

[@maureenleathedale8612]

Please could you tell us if you have written any books on pain and PPMS? Thank you so much for the time you have spent trying to help others.

[@merariferrari515]

Thanks for info, I’ve been having a hard time explaining what I feel. Passing this along to friends/family and hopefully will help understand a bit more....infusion time 👋🏼🧡💪🏽🧡

[@AaronBosterMD]

Glad it was helpful!

[@amydejong2051]

Thank you for this video. I don’t feel like a crazy person now for telling my neuro about my pain:)

[@AaronBosterMD]

You're so welcome!

[@shirleymitchell2165]

I am so glad i stumbled on to your channel Dr. boster! i was diagnosed with MS in 2016. i have some ot rhe things you are mentioning in this video. i have subscribed to your channel and look forward to watching more of them. God bless you!

[@gldiego]

I believe I have almost all these symptoms at an early stage (9 months into RRMS diagnosis): spasticity, lermithe, but my main pain is in my back, which diminishes on its own by doing stretching exercises. Thank you very much for the information.

[@EvenSoItIsWell]

Thanks Dr. B, dysesthesia causes my left leg to feel tight, like I am wearing a compression sock, and when I exercise I get a burning sensation on the bottom of my foot.. almost like I have blisters. I appreciate you sharing your insight and some possible treatments.

[@AaronBosterMD]

You're welcome! #WeHaveMS

[@cliftonian10]

I had optic neuritis with double vision but it wasn’t painful. I also live with chronic pain in my leg muscles which wasn’t really covered in this video. Although I’m being treated for MS with Ocrevus, my MRI is not typical for MS and was thought to be Neurosarcoidosis for many years. Someone needs to do a video on the MS diagnosis journey!

[@mikeecko]

That's weird because right now I'm feeling like my left foot and ankle is being shocked! I don't think I've felt this before. 🤯 I had spasticity when I was first diagnosed but thank God I was put on baclofen and it made it go away permanently. thank you Dr B for another informative great video keep them coming my friend

[@AaronBosterMD]

[@mikeecko]

@@AaronBosterMD 💪🏻🤜🏻🤛🏻

[@pambegley6802]

The things you went over explained alot of my questions. Thank you so much. 😉🙂

[@sueatter9506]

Having had MS since my early 30's, it was difficult, then as MS progressed from remitting/relapsing to secondary progressive , pain was then the problem, but eventually by mid 30's i was getting the pain relief. However having taking high doses of steroids [which did work] , but leaves you open to developing Osteoporosis, as i found out, when i fell & broke my hip aged 53, [ I am now 67]I had been warned by GP, but was still a bit of a shock when it actually happened. Even though i did know all about the symptoms [but not the names] I found the video very helpful [& oh so true, the description of the MS Hug, the light touch hurting, & the Trigeminal Neuralgia were so good, & apt, although the symptoms in my feet & ankles are more suggestive of getting sunburn, then falling into a stinging nettle patch] thank you.

[@RevCasperM]

I'm having my husband and kids watch this. It's so hard to explain as mine is going fast. This explains what I keep trying and failing too.

[@nicolerain3127]

Thank you Dr. Bostor for another amazing video! You have a new subscriber. I am wishing you and everyone watching the best!

[@AaronBosterMD]

Thanks and welcome

[@leannelindo-qp5yb]

I have none of these symptoms but numb feet that effects my walking. Been diagnosed in 2015 with ms but now doctors saying it’s not ms & sent me back to my gp. Chiropractor said it’s scoliosis 😩ur video helps so much

[@7Tajah]

yes, you are talking my language! itchyy hands, lightening strike shoulder, spasticity...

[@martinm8991]

My father (actually very healthy and still alive, 85) each time he forgot something and had to go back to get it, used to say: "Sclerosis does not hurt, it just makes one run a lot". As I have MS now, I know that MS does hurt a lot, while running is not a common thing. :-(

[@AaronBosterMD]

agreed Martin!

[@starlaberge9792]

If only ppl would realize " 😕 not everyones MS experiences are alike"

[@SallyFrancis]

How is MS diagnosed

[@desiredecove5815]

Excellent video Doc ❤️ #WehaveMS sharing is caring

[@AaronBosterMD]

Thanks for sharing!! #WeHaveMS

[@desiredecove5815]

Resharing this video ❤

[@WORRO]

Thank The Lord, I don't have all these types of pains, just a few, thats enough :) thanks for the info Sir!~John

[@AaronBosterMD]

Very welcome

[@XxFluffy_cak3sX]

This is everything I have been going through since I was diagnosed in 2016. You explained everything so perfect! Thank you for taking the time to make this video ❤❤

[@niquieg880]

Omg... I had to figure this out on my own. I was misdiagnosed for 9 years. Finally dx'd 5 months ago now with stage 2 progressive in pain all the time.

[@gretheb1673]

Wish every medical student had to see this video, here in Norway, and all over ❤ Thank you :) MS no pain, that is a good one😂

[@lisatodd3420]

AZO is making several products now which can be confusing. The Phenazopyridine HCl 99.5mg product is ‘AZO Urinary Pain Relief Maximum Strength’

[@lisatodd3420]

Great video !

[@AaronBosterMD]

TY!

[@AaronBosterMD]

sounds right!

[@lisatodd3420]

Aaron Boster MD , from a RPh. With MS.😊 Your videos are invaluable!

[@tootiepop9532]

This video 👏🏾... thanks Dr., i needed this!

[@AaronBosterMD]

You are so welcome

[@gracerosa5249]

Thank you i have my doctor at least i have had 5 of these and there was no explication. So thank you thank you.

[@jenniferliotta2108]

Excellent video Dr. !!!!

[@AaronBosterMD]

Glad you liked it!

[@mneeraalnema9761]

you r amazing and great all your videos must be tought to ather doctors 💯👏

[@CutieKala]

This video is very informative, thank you very much! Doctor, is there a way to reverse the Myelin damage? How do I repair the damaged Myelins in my nervous system?

[@57June]

Dr. Boster, I have had MS for 25 years. A few years ago I was diagnosed as SPMS. I am 63 and quite disabled. I have not had any MS treatment for over 10 years. My neurologist and GO say there is nothing more they can do. Would me arranging a teleappointment with you be advantageous? I live in the UK. Your talks have helped me in understanding my situation but I'm getting worse and that is worrying.

[@patriciahogan4705]

I need to find a MS doctor in the Ft.Worth TX area. My primary sent me to a pain doctor and he wrote my multitude of symptoms off to aging. I'm afflicted with every problem you mentioned except the urinary and sexual. Plus I have such exhaustion I sometimes think why go on.

[@sweettina2]

Thank you so much, I understand so much more now. God bless you!

[@AaronBosterMD]

Wonderful! Your Welcome!

[@selenewonderland]

Thank you for your information.

[@cynthiaanderson-morrisette2825]

I've had MS 20 years and have dealt with most of the types of pain mentioned here. I also went through a multitude of drugs, most of which are also mentioned. The ONLY thing that helps the pain and gives me any quality of life are opiods. I hate hearing doctors say that they are not a good option for people like me, when I have lived it. I've had three doctors over the years who have been great. One who stopped my prescription cold turkey and I was close to suicide because I didn't know how much longer I could stand the agony. I have a close friend who is an anesthesiologist and pain management doctor. He can't tell me why the opioids work, but he is witness to the fact that they do. Btw, Elavil was the worst thing EVER. I gained 12 lbs in 3 weeks of taking it. That was 8 years ago and I've never been able to drop all 12. Terrible, and the worst part is that I got no relief from it.