How to make a g-tube doll

  Рет қаралды 9,103

ParentXP

ParentXP

3 жыл бұрын

How to make a g-tube doll.
I showed my daughter how to make a g-tube toy in order to help her understand the peg to mic-key surgery her special needs sister is having. I think it is so important to be telling my daughter about surgery and any other medical issue that arises so she is aware of what is going on. She went ahead and really surprised me!
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp

Пікірлер: 25
@suzannemenuet947
@suzannemenuet947 11 ай бұрын
I love how you explain to both girls. Even though Elin is nonverbal, she might understand and thus, deserves to know.❤
@ely_wannadie
@ely_wannadie 3 жыл бұрын
Elin reminds me so much of the little girl i take care of, and your videos always make me smile ☺️
@ParentXP
@ParentXP 3 жыл бұрын
You are so kind
@elaineclark5798
@elaineclark5798 2 жыл бұрын
Your 4 year old is really fantastic she understands alot you are really fantastic and Elin is so fantastic to you all put a smile on my face I love watching your KZbin video
@ParentXP
@ParentXP 2 жыл бұрын
I'm glad we're making you smile. Yeah, Alice is really amazing, I am so proud of her!
@samanthabaxter6095
@samanthabaxter6095 2 жыл бұрын
What a awesome amazing two little helpers
@ParentXP
@ParentXP 2 жыл бұрын
We had fun doing this!
@patriciamcfadden869
@patriciamcfadden869 3 жыл бұрын
What a great way to show Alice! She is a smart little girl! You are a wonderful mom!
@ParentXP
@ParentXP 3 жыл бұрын
She is too clever by half. And I love that both dad and I think along the same ways when it comes to these things.
@beckyhammond525
@beckyhammond525 3 жыл бұрын
Good luck with your operation elin hope you recover OK and hope Alice has a great time with her daddy xx
@ParentXP
@ParentXP 3 жыл бұрын
Thanks Becky 😊
@maddielangdell6496
@maddielangdell6496 3 жыл бұрын
It bust be so good for Alice to be able to see what’s going to happen to her sister, good luck with the operation hope it all goes well
@ParentXP
@ParentXP 3 жыл бұрын
Thank you Maddie, yes, I think it's vital that Alice knows.
@elsienicole5663
@elsienicole5663 3 жыл бұрын
I have a swimsuit top that needs taken in, I’ll send it to Alice so she can work her magic! Any news on Elin’s hand/wrist splints? I be sending prayers your way for Elin’s surgery/recovery! God bless you all ♥️
@ParentXP
@ParentXP 3 жыл бұрын
Hahaha, as long as you're OK with random stitches all over, sure 🤣. The OT and I are talking about hand splints but not sure it will help her. She has a tendency to over-extend against things like splints and it may be that instead of helping her hold her hands open they may cause her to curl up her fists even more. But it's not a closed case yet.
@elsienicole5663
@elsienicole5663 3 жыл бұрын
@@ParentXP bahaha sure some random stitches might add some pizazz! 🤣 Oh ok, I understand what you’re saying about the splints! Hopefully something can be figured out!
@cerealfibre6938
@cerealfibre6938 3 жыл бұрын
Well, Tova Swedish was your first language. Please may I ask where you learned how to speak English?❤❤❤❤❤❤❤❤
@ParentXP
@ParentXP 3 жыл бұрын
English is compulsory in Swedish schools from quite early on. It was year 4 when I went to school, I believe it's earlier now. And apart from children's films we don't dub stuff, so English language films are in English with Swedish subtitles so that helps. My English was good enough to get me a place at university here when I came over 20+ years ago.
@Ezzellavivah13
@Ezzellavivah13 10 ай бұрын
It’s “Gracie ballerina” but I’m a new account but my real name is aviva if you remember me.
@ParentXP
@ParentXP 10 ай бұрын
Hi Aviva, I do remember you.
@Ezzellavivah13
@Ezzellavivah13 4 ай бұрын
@@ParentXPhello! Sorry don’t see this till now
@quindixie6867
@quindixie6867 3 жыл бұрын
What doll is that?
@ParentXP
@ParentXP 3 жыл бұрын
It was a gift from a friend who makes reborn dolls (though this isn't one of hers, she is extraordinarily talented). I am not sure what kind of doll this is exactly.
@quindixie6867
@quindixie6867 3 жыл бұрын
@@ParentXP I thought it was a reborn! I have always wanted one but I definitely can't afford it! Ive been looking for a life size baby doll to modify it. Does your friend sell their reborns? Maybe someday I could purchase one someday.
@ParentXP
@ParentXP 3 жыл бұрын
@@quindixie6867 she does sell hers. Tomorrow I'll add the link to her KZbin channel on here, unless she beats me to it 🙂
They are absolutely ruined
20:18
ParentXP
Рет қаралды 637
DITL - so many chores
28:52
ParentXP
Рет қаралды 4,7 М.
A clash of kindness and indifference #shorts
00:17
Fabiosa Best Lifehacks
Рет қаралды 116 МЛН
Who's cutting my hair?!
19:06
ParentXP
Рет қаралды 8 М.
Her tooth just broke
12:47
ParentXP
Рет қаралды 7 М.
ZeroG Basketball fun
0:47
Aretech LLC
Рет қаралды 8 М.
She's exactly like me!
24:57
ParentXP
Рет қаралды 4,8 М.
Waiting to be discharged - portacath issues
17:51
ParentXP
Рет қаралды 5 М.
My daughter is sick - no, the other daughter
18:21
ParentXP
Рет қаралды 4,4 М.
Day After Surgery Pt 2 - on the ward
18:12
ParentXP
Рет қаралды 11 М.
Day after surgery Pt 1 - in HDU
14:39
ParentXP
Рет қаралды 16 М.
Tonic clonic seizure
1:01
ParentXP
Рет қаралды 2,5 М.
Tonight there's gonna be a jailbreak
15:49
ParentXP
Рет қаралды 3,2 М.
A clash of kindness and indifference #shorts
00:17
Fabiosa Best Lifehacks
Рет қаралды 116 МЛН