Waiting to be discharged - portacath issues

  Рет қаралды 4,124

ParentXP

ParentXP

26 күн бұрын

It's day two after the surgery and we just want to go home. But we're delayed because no one knows how to de-access a port-a-cath. However, Elin is doing really well, tolerating fluids and food, tolerating being in her wheelchair and she has had that all important post-surgery bowel movement.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp

Пікірлер: 16
@KimChain-jl9xc
@KimChain-jl9xc 24 күн бұрын
Good news I'm glad Elin is going home
@laurawhite1679
@laurawhite1679 24 күн бұрын
Glad Elin is going home now ❤
@user-co8pt6ih2c
@user-co8pt6ih2c 24 күн бұрын
That's good news I'm glad she's doing well tova she's such a sweet girl ❤❤❤❤❤❤❤❤
@catpotter9503
@catpotter9503 24 күн бұрын
Wonderful news tova ❤❤❤
@pennymcnaughton5963
@pennymcnaughton5963 24 күн бұрын
Great news of Elin going home from Hospital. ❤️❤️
@amarinarichards2358
@amarinarichards2358 24 күн бұрын
Yay elin.
@brendalevesque6384
@brendalevesque6384 24 күн бұрын
Hi Tova, hi Elin. Lovely to see Elin is going home. I hope Alice lets you have restful nights. I get my hairbrush from Morrisons. It’s their de tangle brush. I have long hair too.
@Meemagolding
@Meemagolding 24 күн бұрын
HOME SWEET HOME ♥️♥️♥️♥️♥️
@Meemagolding
@Meemagolding 24 күн бұрын
Elin is so giggly 😂
@paulagrant1073
@paulagrant1073 24 күн бұрын
I love Elin's smile. She is such a beautiful child. You are a wonderful mother to her and her sister. God bless all of you.
@alexthesaintbernardlover5938
@alexthesaintbernardlover5938 20 күн бұрын
Thats awesome news
@KimChain-jl9xc
@KimChain-jl9xc 24 күн бұрын
Tova are you going to wash her beautiful hair when you get home??? I'm glad Elin is in a good mood today
@abigailmagiera9938
@abigailmagiera9938 24 күн бұрын
😮😊
@NZ73200
@NZ73200 18 күн бұрын
Glad Elin doing so well. If u n Elin dad is port train can u do thing like that cannula out of port r allowed to do that when Elin is in hospital xx
@lisaspeel
@lisaspeel 23 күн бұрын
what's happened Elin Her Body😱
@davidtrishhope9841
@davidtrishhope9841 24 күн бұрын
Can you not just put a hair band in her hair to keep her hair back, as she has such wonderful hair
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