HSCT for MS vlog #17 - Call From my Mum (& MASSIVE plastic waste)

Treatment vlog, as I underwent HSCT for MS on the NHS, at Derriford Hospital, Plymouth (October 2019)
My mum calls me, which was really nice. I also talk about some of the weight gain shakes, and the MONUMENTAL plastic waste that's involved with treating me in an isolation room.

[@NN1998-]

Thankyou 👍

[@DuckyJoJo1]

This was a hard one to watch for me. I have a 14 year old and a 4 year old. My 14 year old son atleast has time to process and understand (though I think he'll still have a hard time). My daughter though...... It'll be devastating for her. I'll have to travel and stay out of state for a few months to get the treatment. She doesn't know it's coming yet, though I think she's over heard things. The other night she came in at 3 am sobbing because she had a nightmare that " Mommy went far far far away for a long long long time" it's heartbreaking and it's going to be her reality soon. I keep telling myself it's for the greater good, but like you said- it's hard to realize how much those close to us have to turn their lives upside down. These videos have been Very Helpful for me thank you

[@BabaluFilmsCornwall]

It's so hard with kids. Your 14 year old will be able to at least understand it, even if it is emotionally rough. But I know my son was 4, and we spent a LOT of time trying to prep him (got him books about parents going into hospital, got a Playmobil hospital, role played it, got him involved in prepping for treatment etc)... It helped. I think. But after a week, he would still cry and get upset most evenings when I wasn't there at bedtime. Video calls helped a lot! And I sent an *enormous* number of silly videos to make him laugh - he'd then send stuff back, and it made the time apart a little easier.

[@OddinaryOne]

There’s massive plastic waste during operations, too :( I have a friend who’s a doctor and she’s really bothered by it

[@HSCTforMS]

It really stressed me out, watching it every day. I was so conscious that *I* was the cause of it - felt really guilty! If I knew anything at all about chemistry/medicine/business/anything useful I'd try and do something about it!