Hurler/MPS: Enzyme Replacement Therapy and Stem Cell Transplant

The transplant and then living into the unknown.
Parents of a 4-year old son with Hurler Syndrome talk about their decision to pursue a stem cell transplant. "For me it was, well Hurlers is a 100 percent fatal, stem cell transplants, whatever the mortality rate is, is lower which is better than a 100 percent mortality rate. We took a shot. The quality of life question is unanswerable so we didn't ask it." He's currently doing really well, but what's next?
For more on Hurler and this family, visit courageousparentsnetwork.org