Hypermobile Ehlers-Danlos Syndrome: Challenges, Accommodations, and Care

[@danab4337]

No one truly understands our prison unless they suffer with chronic pain /illness. But God Bless those that really make the efforts to help us to get diagnosed let alone actual treatment 🙏 ❤

[@harmeowniehl9376]

Thank you so much for mentioning the irony with the long covid stuff! I haven't heard anyone mention that outside of my twin and I.

[@amberburkey-samdin5151]

Are there currently any genetic tests for EDS?

[@kellyvanorden3474]

Yes but not all hypermobile no test yet for

[@kellyvanorden3474]

Yes but not all hypermobile type don't have a genetic test for

[@divacassandra1]

Medicine is now a for profit business, and chronic illness is not cost effective in this model.

[@danab4337]

So true our system IS sooo Broken