I have HLHS had my Norwood with a BT shunt in 85 then my Fontan in 87. Today I am healthy almost 34 and have an 18 month old baby. I had Dr. Norwood himself operate on me.
@welissonsilva35935 жыл бұрын
WOw! Thank you for your comment! God bless you
@EvelynNinja4 жыл бұрын
That's crazy! I'm glad you're healthy!
@arghavanjafarijozani25923 жыл бұрын
Thank you for sharing your experience with us! Viva science
@Lisa-gp4gl3 жыл бұрын
I have HLHS and have had the same surgery, I'm only 17 and have always been a little concerned about the future. I'm really happy to hear that. Thank you so much!! Truly!
@GabrielleOlney3 жыл бұрын
Yeah I'm always happy when my story helps others
@TheChadc945 жыл бұрын
As a hypo-plastic left heart patient, this video has helped me to understand what's going on. I'm almost 25, and have had numerous open heart surgeries.
@sarahhesoun34778 жыл бұрын
I was born with HLHS and had to get a transplant for it. They weren't able to do the norwood and glenn procedures. The doctors were surprised I lived as long as I did (2 weeks old). I'm fine now, have the 6 month check up and cath every other year, but I'm all good now!
@alaamezyed84835 жыл бұрын
How old are u now??
@sarahhesoun34775 жыл бұрын
Alaa Mezyed I’m 22
@rubaiatsanjidhossain98552 жыл бұрын
May the Almighty bless your heart.
@denny-michael2 жыл бұрын
Awesome! I am 24 with HLHS
@MC-256 Жыл бұрын
@sarah hesoun Wow , that’s amazing ! You are superwoman ❤. May I ask Why weren’t they able to do the Norwood and Glenn ?
@halfheartedniki62074 жыл бұрын
I am 41 years old. I have Hlhs with Situs Inversus. I have had 5 surgeries for my heart at 11mo, 3, 13, 16, 18. I had my fenestrated Fontan at 13 by Dr. Laks. My fenestration has since been closed. I have taken Digoxin most of my life. I was told not to have children so I didn't. I live a pretty normal life. I see a pediatric cardiologist once a year for an echo, ekg, labs, and a halter monitor.
@nyamurungibtumusiime45626 жыл бұрын
I've never appreciated surgeons more than i have now....these surgeons were BRRRIILLLIIIAAANNTT!!!bless them ... and thank you so much for teaching this to us as well..
@moinasnyder9 жыл бұрын
fantastic video, as a pediatric resident this is extremely helpful to put it all together. thanks !
@richielavery24463 жыл бұрын
I lost my first daughter three years ago to HLHS. She arrived 9 weeks early and was very underweight which was ultimately why she could not survive long enough for surgery. I’ve never really managed to wrap my head around the procedures she would have gone through had she arrived later. This was a really helpful explanation and, if it makes sense, has really provided me a degree of closure. Thank you.
@cloverbird57852 жыл бұрын
my son was term lived eight days but had a kidney defect so could not survive a surgery i was told but also was in mexico tried to evacuate didn't work
@GulfamHussainNoor Жыл бұрын
My son lived for 3 years and and he was very underweight too... i miss him too much 😢😢😢😢😢😢
@ranakh79 жыл бұрын
I can't thank you enough !! GREAT and clear explanation !! maybe you can add the timing of the procedures - in days/months/years
@stilosdjexperience777 Жыл бұрын
My son goes in for this in 2 weeks! His nickname is Little O
@davidpataraia92936 ай бұрын
How it went if i may ask?
@angiemosoaboli46223 жыл бұрын
I lost my daughter to HLHS in June. It's been 2 months now. This video has just given me a well rounded explanation. Thank you.
@rosemarymartinez5797 Жыл бұрын
So sorry for your Love Leaving you. I remember well. Sending Love to you all.♥️🌹
@davidpataraia92936 ай бұрын
😢😢 my wife is pregnant with 5 month old baby with HLHS.
@rburnham256 жыл бұрын
This is a great way to explain it! I have no medical background and you really gave me everything I need to understand it.
@nishantgogna2704 жыл бұрын
Amy, you are quite honestly amazing. Thank you for all of these CHD videos!
@tyeb6268 жыл бұрын
I'm so depressed my 18 month old had the his Norwood and Glenn procedures. He had 3 cath interventions, resulting in balloon dialations and a shunt. He had stenosis in his descending aorta and pulmonary artery. He will be 2 in October and the Fontan may be very soon. I memorized this by heart it's so sad. Thanks for the illustration, very understandable.
@kairisroleplays70033 жыл бұрын
Hope all is well for you and your family
@alpercimen122710 жыл бұрын
You've helped a lot with all those videos. Thank you ! :)
@umbraknight38054 жыл бұрын
I have HLHS and I'm 23, I'm doing good for the most part but working manual labor jobs has really taken a toll on me. I've recently developed a heart valve leak and can't lift over 10lbs.
@denny-michael2 жыл бұрын
Hey! I’m also a HLHS patient. I’m 24. I also have a leak and can’t lift heavy things either. Question, do you have varicose veins? I have many on my left foot
@farisalshboul9989 жыл бұрын
Many thanks sister for this amazing illustration , it really helped me a lot , may Allah bless your life , again thank you
@evelynminz3881Ай бұрын
So nicely explained . Very conceptual video.
@arizzayanto320911 ай бұрын
amazingggg thank youu so much for explaining it so well in this video! as a nursing student preparing for my licensing exam, I was so confused how these procedures allow adequate flow through the heart but I understand now :)
@laurenallison35689 жыл бұрын
I'm so glad I found this site! I'm transitioning to pediatric nursing and these are so helpful! thank you so much!
@lenamohammed5234 Жыл бұрын
You are amazing
@abhishekbhatta20716 жыл бұрын
this video gives a clear concept about hypoplastic left heart syndrome
@caramelolapipo34609 жыл бұрын
thank you so much. i understood the procedure very well
@maryc5905 Жыл бұрын
this video is so insanely helpful!!
@kenneyp19 жыл бұрын
Thank you. Well explained. We are having a problem with the atrium septum. They have said its blocking flow he might need a surgery just to cut it out. Witch they might do with the fonta. we will see the next catch surgery can help or not
@echotechs70528 жыл бұрын
+kenneth pospisil Often the doctors can perform a procedure known as a balloon septostomy. In this case they use a catheter to thread a deflated balloon across the atrial septum in a region known as the foramen ovale (a naturally existing hole at childbirth). The balloon is either inflated while inside the foramen ovale or is inflated before then pulling back through the foramen ovale. The result is that a permanent atrial septal defect (or hole) is created to allow more blood flow though (from LA to RA). This type of procedure is normally considered first, if its unsuccessful or the patient is not suitable then a blade septostomy is considered.
@veroflyboys4 жыл бұрын
Outstanding Presentation!
@mahrooskhuluf79854 жыл бұрын
Great illustration! Thanks. Wondering whether the RV, now working against systemic pressure, tires out eventually...
@Sosooization3 жыл бұрын
Well done! Thorough explanation.
@ediannareyesovalle96364 жыл бұрын
This is an awesome 😎 lecture thank you 😊
@laurenprather4210 Жыл бұрын
Thank you for this video very informative
@alaningram55617 жыл бұрын
I have had 3 open heart surgery
@eggirl27036 жыл бұрын
AJ_GAMING_27 2 me too!
@Clueblue1097 жыл бұрын
Thank you for this, this has really helped me understand my heart!
@sravanipeddireddy19675 жыл бұрын
Really very nice to understand this video.... Expecting more videos
@natsousa3 жыл бұрын
Congrats for this work. Really amazing.
@rubaiatsanjidhossain98552 жыл бұрын
Nice explanation. Reading from Bangladesh.
@luke22449 жыл бұрын
This was amazingly concise. Thank you so much for this.
@thmhenson2 жыл бұрын
Hi. What is the pathway of the catheter during right and left cardiac catheterization in an HLHS patient status post Norwood, Glenn and Fontan procedure? For right heart cath, the normal heart pathway is via the usual path is via femoral vein access, to the IVC, then the SVC then injections and pressure recordings of right atrium and right ventricle. But in an HLHS patient that underwent glenn and fontan, since the IVC and SVC are no longer connected to the right atrium, where will the catheter pass through? Will it be through the new aorta since it is connected to the right ventricle? How will they proceed with the pulmonary angiography? Will it be via injection in the pulmonary arteries via IVC and SVC? For the left heart cath, will catheter go through the new aorta and via the septal defect to the left atrium? Since the aorta is no longer connected to the left atrium aftee Norwood? I would really be grateful if someone can answer.
@filmossive Жыл бұрын
I came here while listening to Mark Klimek NCLEX Lecture
@escort35359 жыл бұрын
That's really clear thank you!
@kizuna20026 жыл бұрын
Very good explanation. Thank you very much~
@shariqshah37627 жыл бұрын
Thank u maa'm....u simplified it
@duraivengatesan96748 жыл бұрын
Awesome work Mam.Thanks a lot.
@deepthiganta95769 жыл бұрын
crystal clear thank u
@dn82765 жыл бұрын
Great instructive video, congratulations. Old true joke of adult cardiac surgeons: Do you know what's the 4. stage of HLHS correction? Barnard procedure (heart transplantation)...
@alaningram55617 жыл бұрын
I've been trough it
@joshmix71926 жыл бұрын
My newborn daughter will be having this surgery done once she is stable enough to do so
@joshmix71926 жыл бұрын
She came through the Norwood but was put on ecmo about a week later she has since came off ecmo battled a yeast infection and we are looking into the Glenn surgery in the next couple weeks
@nyinyilynnhtet99207 жыл бұрын
this video save me
@kennyseesee7 жыл бұрын
Awesome job. good drawing. well explained
@francinewintzmbbs49774 жыл бұрын
Hey, thank you so much.
@ksketeris6 жыл бұрын
Amazing. Thank you!
@davidpataraia92936 ай бұрын
My wife is 5month pregnant and we found out that baby has hlhs syndrome everyody is telling us to do abortion, we are from georgia(in europe). Here is a joann university clinic where they do norwood operation. Reading comments gives me hope.
@jennamills66607 ай бұрын
Kann ich den Untermietvertrag unter Vorbehalt schreiben, wenn die Erlaubnis noch nicht da ist?
@HashemSmashem8 жыл бұрын
Very well-illustrated video with calm and concise explanation. Thank you for uploading!
@raphaelcaiton96718 жыл бұрын
Is the force of the right ventricle same as the left?
@abhishekmukherji23326 жыл бұрын
Doesn't Pulm artery endothelium react and hypertrophy to. Stop the blood flow ? As in like in eisenmengers?
@drsamgeo8 жыл бұрын
The best I have seen
@minorayeamin66357 жыл бұрын
Is it possible to do this procedures like glenn and then Fontan at the age of 4 years in case of baby with dextrocardia and D-TGA with ASD & VSD
@dmc64366 жыл бұрын
they get arterial switch.
@oranrene6 жыл бұрын
They have a video on this too -- If you watch it you'll realize there is basically a disconnect of circulation (2 seperate circuits). The surgery that repairs this is simply swapping the the PA and Aorta to their original positions.
@gentletee199 жыл бұрын
Thank you
@nabilatallah10579 жыл бұрын
Great ....
@tohkeatyieng25386 жыл бұрын
why the purple blood flowing to the aorta is also flowing to the pulmonary artery and going to the lungs. I thought the blood flowing though the aorta is flowing to the body
@Mimicoils_salon Жыл бұрын
I still Dont get why the aorta was not just connected to the LA , is it because there will be too much flow which can lead to HBP?
@rpisuba8 ай бұрын
Not a doctor, but I suspect the aorta is not developed enough to handle the flow, and so the pulmonary valve is doing the valve work when they are combined in the Norwood procedure. I suspect that without a pumping action (which comes from the right ventricle) the combined valve wouldn’t open- in other words, if the aorta/pulmonary were directly connected with the left atrium, it might be that there isn’t enough pumping action from the left atrium to get the blood out. It could also be too difficult (maybe impossible) to rotate the new pulmonary/aortic valve to accept blood from the left atrium
@tbsdrummer873 жыл бұрын
You said Glynn and typed Glenn and def fucked up my nice pen notes lol
@adailydoseofe20523 жыл бұрын
holy fk I mean u nailed the explanation perfectly in a way that even a 5 yo can get it, so damn great job