I Can't Believe They Still Didn't Get This Right! |

I got my ostomy supplies in and of course - it isn't 100% correct!
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Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. ♥ #ibd #crohnsdisease #ostomy

[@njanderson4342]

I was in the hospital for a week. I really was shocked at the lack of common sense built into the system. I couldn't get a cough drop without selling a kidney.

[@gghf357]

Perhaps *because it's a system. The people have left their common sense and nobody is accountable cause they just pass the buck.

[@nataliemay415]

I spent a week in hospital after having a surgery done (unrelated) and maybe it's just where I live, but they were fantastic. My biggest complaint was the food, if you could call it that 😂 I actually ended up getting my period in there and they were kind enough to supply me with everything I needed. Can't believe you couldn't get a soother/ cough drop.

[@looksbylexi]

my mama’s an ostomy patient & hollister never fails to be forever frustrating for us too !!!! you’d think they’d try harder for people that have to live with these things FOREVER

[@kunibob2]

You know, I'm generally pretty positive about my life, but I find those moments of frustration we encounter when managing lifelong illnesses just remind me of the weight of everything I have to manage in order to keep my life moving forward, and it's just that crushing exhaustion of YET AGAIN having to be my own advocate. I hope they were able to sort it out quickly and that the new supplies work perfectly!

[@yourspeedyretirement]

A dear friend of mine came home from the hospital with an ileostomy at 95 years old. We ended up switching her to Coloplast products and they were so superior to any of the other ones. She couldn't see to do the bags that snap off and learned to deal with the velcro closure and did really well! So many less blowout using the barrier strips to keep the bag secure. Diet mishaps were the cause of many of the blowout issues. One simple tip, no hot chocolate before bed. We had a good long run with it, she almost made 101 years old, shy by just 37 days. It amazes me the lack of dietary changes and understanding that the professionals have & share with someone once they're sent home. I spent hours on you tube and forums trying learn all I could to help her. One thing we always did was she would have 2 or 3 marshmallows before each change and the output would come to a halt long enough to make the change.

[@onepawatatime7925]

I ordered wooden q-tips to manage a wound next to my stoma. A single one showed up. 🤦‍♀️😅😂😭

[@ManchesterVicky]

Im waiting for my ileostomy surgery. Ive found your videos really helpful. Its good to see all sides of stoma life so i wont be as shocked and upset when these things happen. Im sorry they are happening to you, but please know that whilst its frustrating and upsetting, you are being incredibly helpful and inspiring to many of us. I am in the UK so we have slightly different products, but knowing the differences is very important. Keep being you ❤

[@kunibob2]

I had mine in October and my nurses were SO impressed by how much I knew about stomas and supplies going in, and it was 100% due to watching this channel, so you're doing the right thing. Good luck with your surgery!

[@ManchesterVicky]

@kunibob2 thank you. Its daunting, and I get anxious, then I come here and my worries are calmed with answers. I hope you are recovering well and coping well with your changes. We've got this! X

[@parkerren]

Use medical monks?

[@Carolscavaliers]

I can highly recommend the company called Respond in the UK for delivery of ileostomy supplies

[@_crowlady_]

i just got mine! been in the hospital for a month and i’m still here recovering from surgery now. good luck to us both! this channel has really helped me and calm myself wishing you the absolute best

[@erpung]

I feel your frustration, I totally understand. Somedays I don’t think they think…along with insurance. ❤

[@jazstackhouse985]

Here’s your 1 wipe that you ordered.🤦‍♀️🤦‍♀️🤦‍♀️ you can’t make these things up! You are 100% correct- the amount of time we spend calling for everything is INSANE! And then when it gets fixed, knowing you have to make the SAME call again next month for your next refill because your doctor won’t make the prescription for 3 months at a time 😫🤦‍♀️

[@tt_looking_glass]

I have auditory processing disorder and I didn’t realize how much I rely on people’s facial expressions and mouth reading until the pandemic and I found myself having a really hard time understanding anyone. I can hear no problem but my brain struggles to interpret what is hearing without the face of who is speaking. So talking on the phone for me is very stressful. I get you about how frustrating it is to spend so much time on the phone. It uses up a lot of energy for me.

[@yourspeedyretirement]

I have similar issues, televisions drive me nuts! Haven't owned one in 20+ years. Silence is so sweet!

[@theoriginalTig]

I feel your pain over the “one “ wipe … as a practice nurse here in uk I often supplies for treatment room including boxes alcohol wipes and I would get one in a plastic bag ( and as they come packed in pairs ) the dispatcher would to tear it in half to pack it !!!! Fellow long time Crohns patient and I love your channel . You always make me feel better and not so alone with this condition. ❤

[@fourgirls1boy4me]

Have you ever had that single wipe come in that huge box all by itself? Yeah..that’s happened to us multiple times 🤦🏼‍♀️

[@sophiaswanberg4742]

I compleatly understand your fustration. Why is allways something wrong!?❤

[@mandybarnett3647]

You can donate those abundant removers to your local hospital..I give them my extras and they are very grateful!😊

[@meghan2802]

Agree and or some visiting agencies might take it.

[@melodybollinger4747]

It was encouraging to learn I'm not alone when dealing with understanding people on the phone & the frustration of drawn out phone calls to get service and help. You and your helpful videos are such a gift to many of us!

[@mrswvcobra]

Our healthcare system and insurance has gone to hell in a hand basket. No one seems to care about the patient anymore 😢

[@lizzydaqueen420]

Because most people don't no they can complain about it🤷‍♀️

[@user-pm1yv8cb9z]

Hey Sweetie! I feel your pain in tje frustration and im glad i am not the only person who actually NEEDS to vent! Im 73 so have to be sure im not thrown into that crazy old lady group lol!! Still work as a financial consultant and live alone. Thank you God for my remission and mental clarity! You help me so much-i love you lady!! You are the BOMB💕

[@karenshepler7128]

I can't believe how stupid it was one in a large zip lock bag at that ...And as for the fact if their in a mood tuff crap that's their job as I see it your the customer without the customer they dont get paid......some people are so dam......I feel you so very much as I hate the health care system it's been nothing but a battle all my adult life. So all the best and thanks for sharing take care.

[@quackersplatfarm]

Oooh I feel your annoyance! I've been dealing with a bank over the phone for months because I never received a check they sent. It's been so ridiculous, it's almost comical. Good luck in getting your remover!

[@summersalix]

I totally feel ur frustration! They refuse to give me 20 sure seal stickers (the only way my flange stays on) and will only give me 10 per month. That means I can only use half my supplies bc I get 20 flanges and bags, but only 10 stickers. That's akin to having 20 pairs of underwear, but only 10 have elastic, rendering the other 10 useless. It's maddening! They also dropped my box of wipes from 3 boxes to 1 box per 3 months. It's so annoying

[@heatheramyprice]

My daughter and I LOVE the sureseals for her (she's 17 so I'm very involved in her care). She too is only entitled to 10 sureseals a month so I order extras from Amazon. Trying to get her medicaid waiver to pay for them but of course that's a process! Oh and her insurance covers NO adhesive removers at all. Wipes, spray, nothing. We buy those on amazon too.

[@sue8319]

As a former ostomy patient, Nobody informed me that when a colon prep is required, use a bag that has to be emptied. What a disaster……a firehouse coming out of my body. The force and quantity of stool loosened my flange……. Best of luck to all. I agree retrain staff…..not having supplies is reason for anxiety. Aso to buy from eBay for example you don’t know how old the supplies are. Keep,up the teaching on supplies

[@kevinbrandt1738]

Am glad I found your channel. I’ve had an ileostomy sense I was 25 in 1988. I’ve never known of anyone who talked about it. For me it’s been a solo experience learning as I go. Your doing a great service to those who have this issue. I too had Crohn’s disease. And very much remember the horrible pain.

[@mcrchickenluvr]

I’m not an ostomy patient myself. I am still a patient. Getting people who are supposed to be taking care of us to understand what you’d THINK is something simple is enough to make you question the presence of a brain. I’ve been trying to get a hysterectomy for decades. Doctors told me that I’m too young and that’s I’d regret it. I’ve got an introverted uterus, fibroids and possible endometriosis. I’ve had issues since I was 14. I’ll be 42 in March. I’ve had one issue since birth and the fibroids for about 12 years. I’ve been in a lot of pain every month because of both. But I guess I’m supposed to regret not being in pain and feeling I’ve got a vice grip around my uterus for a week straight every month. Just last year I FINALLY found an OB that is willing to do the survey. Which, HALLELUJAH, is happening in a couple of weeks. He agrees that I should’ve had it done years ago. I won’t repeat the words he used for the other doctors as they were just shy of professional and could land me in KZbin jail. Don’t get me started on the pharmacy side. I used to have to go a specialty pharmacy for my asthma meds. That was the only way I could get a nebulizer. My pulmonologist was awesome. He’d make sure the script got to them. But on the pharmacy’s end it was a different story. When it came to actually being able to FIND my scripts I could only compare them to a couple of Jeff Dunham characters. They were like a cross between Bubba J and Peanut. Half dense, half hyper. And neither knew what the hell they were doing.

[@liz9843]

Just a comment on the bag leaking: Those rings are probably formed on a plastic injection molding machine. The forms on those machines DO wear out over time, and if the manufacturer doesn’t have the right tolerances on either the finished product or the metal mold drawings, you could, over time, end up with small tolerances stackups that result in an imperfect seal between the 2 parts. (I worked in manufacturing, I’ve seen this happen both with older molds, and when a new mold was installed but the new mold was milled just a little bit different than the old mold, and now the tolerances of the finished products aren’t quite right.)

[@Christine-Golden66]

My son had a violent reaction to the adhesive on Hollister. We spent six months with a wound care nurse until we switched to Coloplast MIO 2 piece sets. Good luck, Maggie.

[@dyskover]

I thought it was funny! I also completely empathize and feel your frustration. We people can be so stoopid. I once ordered a convatec 2 pc system and only got the bags. Luckily, I had a few wafers or other systems I could use till I got it corrected.

[@davealey7849]

I've had the boxes/units mixup before. I'm supposed to get 720 catheters (24 boxes) every three months; one month I got ONE catheter, carefully put in a big zipper bag, in a HUGE box. As far as Hollister's quality problems, I've had slightly different issues - in my case, twice recently the bag has popped off the flange because the ring that locks the two together has loosened up. As loose as the ring interface has gotten, I'm surprised that I haven't had a leak, since my output is often liquid.

[@AndiSchneider]

I totally understand the frustration. I don’t have an ostomy, but I have a g/j tube and a Hickman catheter for TPN. Just the other day I only got one box with two TPN bags, my 28 bags of IV Benadryl, and that’s it. There was no tubing to hook up the TPN or the nausea meds. I didn’t have the vitamins and meds that you push inside the TPN bag, no syringes, and all my IV phenergan was missing. I guess the orders got separated in transit, but I had to deal with a big argument with insurance. I’m glad my infusion team got together to get it fixed the next morning and sent out an emergency dose of my nausea meds. I’ve been dealing with serious frustration because my stoma site where my new g/j was just re sited is pouring everything out of the stoma site. If I take a drink or am able to take a few bites without needing to vent it will just come out the stoma site, which is basically vomit. I go through so many boxes of hypafix and dressing supplies. Because I am TPN dependent my insurance won’t even cover the basic supplies for my feeding tube. I have to pay for gauze, adhesive remover, barrier cream, and tape. It adds up quite a bit when you are a single mom on disability. They’ve refused to cover ferral bags, so I have to vent in a cup or one of my own concoctions made of a plastic sandwich bag and tape. I wish it were easier for us.

[@Astrid591000]

I know the feeling of ordering ostomy products it's so frustrating when it goes wrong Good luck Maggi hope the send your remover wipes Totally ridiculous what they sent 😮😊💕💕

[@Flute_ShKi58]

So not a hollister ostomy wafer and pouch fan, love using convatec products. Leaks is not a problem. As for the bag deodorizer, I use the hollister adapt pouch and and safe and simple sting free skin barrier wipe and adhesive remover. They work great for me. Have been using Convatec since 2012.

[@deborahshore-robinson5800]

Vicki I'm in the UK and you can get all the products that Maggie uses. You will probably try a lot of appliances before you decide on the one for you. Ring all manufacturers up and ask for samples it won't cost you anything. Iwas not told about all the things I would need. They were very good in other ways a stoma nurse came to see me for a few days in hospital.

[@SammieOranges]

KZbin Shorts got me here, i do not have any stomach issues so “thanks algorithms”. From the perspective of the people you talk with to order:give them item numbers and units AND make them read those and item names back AND if possible ask them to send you an invoice while on the phone so you can read and make them edit. Every company has a timeline to edit. AND its frustrating to get these frustrated patients. Good luck and thanks for the content

[@liz4581]

May I say that when my children were small (under age 9), and this being back in 2001, I FELT exactly like you in this video. And it was ALWAYS related to medical stuff, accounts, credit cards, etc.... I was HOT and FURIOUS and hated getting on the phone. My heart goes out to you today as I understand the times are so much more difficult today. It seems that communication is getting exponentially worse now than ever before. Thank you for being honest and showing the world that nothing is just 'simple' anymore. You are amazing for sharing this side of your situation. Sending you loads of prayers for patience and endurance.

[@sarahbilek2791]

You are definitely right about supplies being so hard to get!. Coloplast, Hollister and Convatec are the most prominent brands I've used in the US, but there are also a few more brands out there. BBraun and Marlen can be purchased in the US, and I've gotten samples from a company named Salts that had medihoney in the barrier. Great channel!

[@abbycat000]

Hi there! May I ask how you found these other brands like Braun and the company Salts? My mom had a colostomy weeks ago and we’re having problems finding the right bags from the right brand!

[@wrathofmetal619]

I use Austin pharmacy here in Maryland not sure if they ship to other states but I've never had any issues with getting either a bunch of one items or literally only one. When it comes to supplies I use Hollister bags and flanges. When it comes to paste I use coloplaste rings and strip paste with the tube paste from Hollister. I have had the Hollister bags leak from the side before. Usually it's right after I but it on. But I believe it's from me laying to change my bag. I find it much easier for me to lay down to change it vs standing. Though I do a lot of flying and changing in a airplane bathroom is always fun.

[@opalcollier8325]

I’m so so sorry it’s so frustrating to get supplies that you need so desperately in a situation of health is this It is such a shame that they cannot find someone that truly has a heart someone like you to troubleshoot for these companies they would owe this person a very, very decent salary to listen to people to get input and to be creative for even newer more wonderful examples of ostomy supplies I wish I was younger now I would want to do this myself for all of these people who deal with this issue every day, and for the ones like you who try to be so beautiful along the way This particular field is so needed, and it needs to be people that do understand that do care, you don’t have to wear a colostomy bag to understand you have to listen to those who do and want to help them have a better life!!!!

[@annebebee6764]

The seals come in boxes of 10 but one order I was shipped one seal in a gallon zip lock bag. You could hear me yell a mile away. Didn't the warehouse person think about why only one seal when they come in boxes of 10.

[@bunniesandguineapigs2625]

I use hollister also for more than 4 years now, i only experienced leakage 2-3 times, i change the plaque every 3 days and the bag 2-3 times a day. I used adhesive paste on the plaque to prevent leakage

[@donnaruswinkle4396]

Make sure they aren’t expired. I had a bunch that ALWAYS leaked until I was told they don’t let for ever.

[@deannanorman5229]

I have been switching back and forth from Coloplast to Holister and I'm extremely allergic to Holister! I have switched back to Coloplast and I'm using the paste with it and it is the best! My skin has completely healed also!!

[@michellebridges2604]

I feel your frustration! I do the same thing with my shots for RA. Hopefully they get it right!

[@mattskolnik4513]

I’m a convatec guy all the way. Adhesive removers are the hardest part to get right from the supplier. I use at least 5 wipes per barrier change. I like the essential ones most, even though they only work for ten seconds or so. I also like the 3m lollipop prep, but my insurance gives me the middle finger on them. You have a pretty prominent stoma, so maybe try the 411802 barriers. Also, thanks for being here with us!

[@karencull9518]

Sorry for all the frustration with ordering your supplies. Ugh😮. And other than the supply co. Sending you 1 adhesive remover, glad everything else was right. 😊. Thankfully my. Supply company( byram) had been good. But I feel your frustration with Dr offices not sending orders in.

[@kristinepauwels4086]

You are still so cute even when you're angry ! i sure can imagine your frustration.

[@douglusty2756]

Maggie, I know the frustration of dealing with medical supply companies. In January 2023 I was switched to Stelara. It requires a loading dose by I.V. and maintenance doses by self injection. The I.V. was suppose to be at an infusion center. The infusion center would not schedule Stelara because they were not trained on it. None of the other centers here would take it either. Finally a home nursing service agreed to do my infusion. The specialty pharmacy, even after my G.I. office and I both told them it was a home infusion, shipped the Stelara without shipping the IV pole and other supplies. The prescription for the home IV supplies was faxed to them at least 3 times. Many very long phone calls later, and complaints up the line to management, they finally shipped out the pole and other supplies. It delayed starting Stelara by 6 weeks! I was so sick and was stuck on Prednisone for a extended period of time. It was a nightmare. These companies just don't think!

[@joanne231]

I used to order my ostomy supplies on the phone (with Byram Healthcare) then I created an online account and now i just order them on my computer. It actually goes very smoothly. Thats insane you were sent one adhesive remover wipe! "One" meant one box not one wipe. Someone definitely wasn't thinking. Very frustrating.

[@michellesauter5956]

Looking forward to hearing about how it works out. I’m definitely looking to replace Hollister.

[@jamesdunn8893]

Me too I don't like Hollister at all

[@2ndOldest]

Hey Love 👋 I am so happy to have found your channel. Your realness is exactly whats needed. Stay amazing! And fingers are crossed for your fertility ❤

[@jackielong9927]

I can totally understand! It gets so darn frustrating trying to talk to these people. ❤

[@rosiegeonnotti6427]

The same thing happened to my husband from our supplier. I ordered 3 units of the same products, which I had understood to be 50 CT. Per unit, and they sent us 3 packets

[@emilyg.6639]

DME supplies is a huge headache! 🤕

[@patrickchambers5999]

You have trouble with ostomy supplies, I have trouble getting my 1099R. I called about not getting it and was told two things. One - it was sent from Patterson, NJ on Jan 22nd (this was to suburban Chicago on Feb 6th). Second they will not be able to send a replacement until after Feb 16th! Great now I have to wait almost 2 weeks to order a replacement to be sent. Guess your phone people and my phone people work together. If there is any way to screw up, they can do it. Two bad we can't go to some local place to get our stuff.

[@bjohnson1149]

I use closed-end non-draiinables. Wouldn't want to use anything else. I do change four to five times a day. All I had to do to get that approved by my insurance was get my dr to provide a letter of medical necessity to my supply company (Adapt). No problem there. I'm not cleaning those nasty drainables. As you say, personal preference. By the way,. I use Convatec. You use the exact same products I do. Never have problems. I had to laugh about the 50 boxes of wipes...LOL @ the workforce they have in the warehouse. Lord, do help us.

[@cathhep1]

Hi there… I wanted to mention that I bought the stoma dome you had talked about in one of your vlogs. Wore it for the first time today… it’s a game changer… thank you for that video💕

[@kathygillman5450]

I pick up my supplies from actual medical supply store. Theyve been wonderful w all of my Coloplast products, some qre different brands but they keep in their computer.

[@Budgi3girl]

Hi I’m so glad you’re trying these. I use these bags as my old Convatec bags (without the fabric outer layer) were discontinued. I’m happy with them apart from the filter! Would you please feed back to them about this, 1. Covering the filter with the sticker doesn’t stop the air coming out (and so I’m getting unwanted odour). It’s impossible on 50% of the bags! Please explain to ostomy companies that you can’t make something airtight through fabric! I’ve even sat in the bath and submerged the bag to see where the air leak was coming from as I couldn’t find what was happening and it was the seal around the filter failing and air seeping through the fabric around the filter! It’s such a pain cos I get terrible pancaking if I don’t get the bag 100% airtight! 2. The filter blocks so easily and then starts leaking! I have always loved Convatec and used since 1977!! But these last 3 years I’m getting so many quality issues. I’ve never had problems like this in all my 46 yrs of having both colostomy and urostomy! I appreciate you calling out what a pain it is dealing with medical stuff like this! ❤❤❤

[@annekarogers8309]

I totally understand the phone call stuff. I have been on the phone with my specialty pharmacy for Humira and AbbVie (the manufacturer for Humira) multiple times today. They were 30+ minute calls each time.

[@kerribirdsall2311]

My new supply company doesn’t carry any spray adhesive removers. They expect you to remove a bag with wipes. I’ll be ordering it and paying for it. My last company allowed one or the other because insurance won’t pay for both. Somebody within these companies that has an ostomy needs to straighten out these insurance and supply companies.

[@JohnKaman]

I get my supplies from Shield Health Care. Never had a problem ordering.

[@jeanmoreno2428]

I wear a holister pouch 8963 and a belt that goes with these pouch i have had no leaks anymore so far. Jean

[@JamesBaker-xx2jd]

I feel your frustration, the last time I had my COPD meds refilled, the VA (in its infinite wisdom) sent me a couple of substitutes and found out that one of them interferes with a couple of my heart meds( had 2 heart attacks last year and 1 before the balloon went up

[@anne-mariemcinnis9143]

Yes, girl! Let's talk about the unhealthy, health challenged system! I agree with you, 300%. That system sucks and needs an entire reform. And that reform MUST be made with the involvement of patients!!! Pharmaceutical reform MUST happen too. And that, the same thing, WITH the involvement of those who consume/use the meds, the products...! And I'm not yet on insurance reform. That needs an entire post, in itself! Now, training, training, training... ...training our employees, NOT ones of outsourced compagnies! How about facilitating access to American managers!?! Oh, girl, do I have opinions and do I have experienced socialized medicine a lot, in Montreal and now, here. Where insurances decides what "Patients" (and yes, do patients ever need to be above patient), can or cannot have access to, it's also decided, with their own money, already "$$invested$$" in these companies, that they already paid "$$out of pocket$$", for and very well deducted from their paychecks, having to again, "repay" for items/products that insurance companies, decide wether patients may have this or that product, item, piece of medical equipment, they will cover or not and that, with your/our $$$money$$$! In Montreal it's the government who decides all that, here in the US, it's the insurance compagnies. NO difference! The minute decisions are made for us, and with our💰money, how is it called?! What kind of system is, THAT!?!

[@beckybramlett3515]

I had to call and cancel anything that I didn’t want or they ‘d send it anyway . Plus, since I’m on Medicare, I can only get enough of everything for 90 days but then they turn around and ask how long what you have will last…..I DO NOT KNOW ! ! I try to order when I start getting low BUT I’m not waiting until I run out and just put the last one on !! Are they crazy !!😱🤦‍♀️🙃

[@kerrymcilwaine]

I’m in the UK and get my urostomy supplies from Coloplast. Had my RC 5 months ago due to cancer and I’ve never had a complete order after the first one. It’s really frustrating. Even though I’m in a different situation than you I really enjoy your vlogs x

[@purplephoenixartbymicheled9298]

🌬❣So Sorry Maggie. I feel your frustration 😢 my Hubby used to do Dialysis at home and we would have to call a company every month and go through something similar to what you are expecting. It's So Frustrating 😢 Thank Godess he now goes to the Divita center and gets his dialysis there. Hope they get on the Ball. Ppl just don't speak....😊 Love your channel and You. ❤

[@arneedlund8512]

In severly years things like that and others things about my stoma tok me 2 full times work. It is better now and I am very thankfull for that. It is enaf to feel bad and have great pain.

[@cookingbooth1033]

Convatec was awful on my skin too, also the freaking filters would leak!

[@glendafonseca406]

Wow, I talk to the same agent, she gave me her extension , hopefully yours gets better 🙀😻😺💙💙💙

[@parkerren]

I love your idea. I use your idea and it allows me to tuck my shirt in.

[@Diana-yj8mz]

Hola, mi mamá tiene cáncer y por ende usa bolsa de colostomía ella tiene que comprar constantemente bolsas de colostomía donde es una caja pequeña donde vienen 10 bolsas con su pinza pero a ella le dura sólo 7 días lo malo es que aparte de que le dura solo 7 días también le arde e incluso tiene marca de que la herida no ha cicatrizado bien y usa un polvo especial para calmar ese ardor también esa bolsa no me la deja ponerse derecha de la espalda. Las bolsas que tú me muestras me parecen muy interesante que sean diferentes a las que mi mamá utiliza también en como te ves con bolsas de ostomía te ves normal, algo donde yo veo diferente como si doliera y ardiera

[@jakesbel8237]

I worked in medical supply, the correct way to order is 1 box (a box has 50 single use packages). I’m thinking that the person who took your order didn’t correct the unit of item. If you have questions reach out.

[@menmykrazycat8129]

Ugh! 😡 Sorry Maggie, I always have issues too & yes it’s beyond frustrating. And very time consuming. I pay out of pocket for my supplies bc my insurance doesn’t cover them until you meet your deductible, and mine is over $5,000. And honestly, it drives me nuts when ppl go on & on about U.S. healthcare. It’s always been about profit. And nowadays, with private equity firms buying up hospitals everywhere? The quality has gone down dramatically. The trouble is, you wouldn’t notice if you went in to have a baby, or get your tonsils removed. But if you have chronic illness? Believe me, you notice. Sorry about your one wipe - 😂 what a joke!!!

[@pattyphillips4596]

This is 2024 who in the world would use a bag you have empty. I have used the holster bags since 2016. Yes I have occasionally had leaks. But overall this has been the best product I have ever used. I'm 77 years old and would only use holster.

[@mandybarnett3647]

Lol the people packing don't have to worry about the issues we do!

[@deborahshore-robinson5800]

I use medicare. Never had a problem.

[@jessicaperlove4715]

Glad that shipment made it, at least.

[@jmlordi]

Try that with my incontinence supplies I get through my insurance company Maggie

[@user-xh9jm4di6x]

Try a 32mm less space between the flange and your stoma so it will go straight into the bag instead around that extra space..

[@Ms.Opinionated]

Not an Ostomy patient. Getting prior authorizations for medical care and pharmacy is the worst headache!!!

[@annebebee6764]

I had a colostomy for 7 months and of my 7 shipments, 5 of then were wrong! Two different companies And both screwed up! I did a mail order in Florida first and then tried a local company who shipped to me and errors almost everytime.

[@taylorvivienne8058]

i have similar issues with ordering catheters every time i tell them what i use they’ll send a box of of ones i dont like and a few of the ones i prefer using and i tell them i dont like that specific kind and they still send the wrong ones it’s been two years😒

[@HunterDFtwo]

I use Dansac products and touch wood, I haven’t as yet had any skin problems, not sure if they are available there.

[@Tenma_Gold]

Yea i had the same thing, i had asked for Stoma's with an Extra oppening so i can let the air out from Oxmed, then i get send this tiny box with lose Filters that i have to Engineer into my own stoma bag ... like HOW and WHY this aint working, and the phone calls my god yes! so anoying, i have that i still sometimes don't fully know who to call as offten its a diffrent department that i need from the hospital, or that there are 8 callers ahead of me so i need to wait 40 minutes. i mean when i went home from the hospital they changed the stoma with me once and oke good luck back home and be well soon. at first it took me 40 Minutes or so to chnage my 1 stoma, just cause i was scared and it was my second, third time doing it, and its not just a band aid that you change of course

[@801LOVER]

Healthcare is a disaster!! Preach!!

[@cindyfern990]

It says alot about the company, poor management , if any.

[@tharvy40]

I know the medicine battle all too well. I just fought with my ins to get a pre authorization for my migraine shot Ajovy. Hours on the phonevwith ins for me and my Dr. Now ins is not covering because non formulary so $855 for 3 auto injectors out of pocket.

[@mikekozlowski2911]

I’ll take the adhesive remover from you Is it a spray or wipes it doesn’t matter. I use Coloplast a donut then skin barrier with elastic belt an clip on high output bag. I’m still new plus this 2nd emergency bowel surgery almost killed me

[@mikekozlowski2911]

That happened with Byram supply an they think they know everything. Tell them to overnight everything

[@A---ti3zz]

I hate calling someone dumb but how could someone actually think a person would only order one wipe? It would stress me out ordering from that company...I can't believe the stupid stuff they are doing.

[@patrickgranberry8736]

If you still have them I'll take those adhesive remover wipes off you. I always use allkare wipes and the ensanta

[@KPEMAX98]

Oh wow!…you are expressing so many of my own complaints about the dreaded phone call to place an order!…it’s so frustrating!…

[@JuliePike820]

I identify with you 100%!

[@jodiv2928]

I have kind of the same situation with Protective wipes.. They come in a box of 50 but insurance only allows me 25 a month.. So being it is only a half a box I always am getting them in little baggies and wondering if they are going to do it correctly.. Have you ever tried their accordion flange? I have a hernia and one of the things I do love about holister is their floating flange. It is so much easier for me to snap the bag on.. When I tried Coloplast that was one of the hard things on me was trying to push the bag on the flange.

[@pamela-gw7xo]

I have the exact same problem with only being able to use Hollister flanges due to hernia bulge. Which company has the accordian flange? I would love to try another brand!

[@jodiv2928]

@@pamela-gw7xo Convatech has them. called Natura According Flange.. They look kind of nice. They have a feature where they can be popped up to help put the bag on then you push it back down flat. Looks kind of nice but I haven't seen anybody doing a review on them so I am not sure about them but I am tempted to try them out. It comes in cut to fit or the moldable

[@pamela-gw7xo]

@@jodiv2928 Thank you so much!! I will check this out !! Surely they would send a free sample right? I am going to call the company and see. I'll post on this site of my results. 👍⚘

[@robinvarnadoe8429]

How hard is it to understand you wanted one box packed 50? Some people are just stupid! They need to get a website that you can place orders from versus sitting on the phone.

[@barbarawolcott6999]

Maggie, I don’t understand why your supply company can’t get it right! Illeostomys are not easy to keep from leaking. The liquid does leak in to a degree around the stoma no matter what you do. I have a colostomy and, when I remove my flange, I see a little discoloration even though I don’t have leakage enough to remove my flange.

[@Suzite]

I am fortunate not to have issues, I order through a medical supply company and can do it online. I f I need a new product, they are helpful via phone. I know the medical industry is difficult to navigate.

[@emilyflanders8380]

I sit on the toilet like normal and scoot back then drain. I’m a short gal too. I also will dampen some toilet paper and clean the bag before refolding it. Of course I’m home when doing this.

[@richardmalesza7820]

If you put the lubricating oil just before you empty and move it around the shit comes easily and the bag is also cleaner.

[@christopheriacovo8472]

Not sure if the questions you had in your video where rhetorical or not. But I'm confident the person picking and packing your order runs across single unit requests all the time because you can legitimately get multiples or singles of any and every single product they have to offer. Idk, not to mention that its not the picker/packer job to question orders. I mean... right

[@mikekozlowski2911]

I have some extra powder if you want. We can trade for adhesive remover

[@J.G.817]

I do understand your frustrations, I'm having a problem with coloplast ,they say that my insurance doesn't cover the wipes for cleaning around my stoma,, Any other ideas that could work for me? Take care of yourself.🥰

[@merciamesias1827]

Hi Maggie..i live in South Africa..i was wondering if it's a problem having the little "pimples " around stoma ..having my reversal on 4th June..2024..can't remember the name ..something starting with G .thank you