Oh man I've felt that "good news" before! dang Im sorry.
@ElainesAutoimmuneAdventure10 ай бұрын
I’m so sorry, Aimee! Personally, I would keep your appointment with the GI because they know more specific tests for anemia, most primary don’t run in depth tests. Also, I would ask to have your B12 level checked. Sending you extra strength and spoons! ❤
@jasonthrash435710 ай бұрын
Im 56 and have felt bad since I was in my mid 30s. I gave up on doctors 15 years ago. I am on week six of carnivore and I went in realizing that it probably will not correct my health issues. So far, its helped a little but Im still pretty ill. Im so many years in with the bad health Im used to living this way now. It sucks due to I have lost over 25 years of my life. I hope something chamges for you since you are so young.
@jaydenp49756 ай бұрын
Same with me. I was healthy up until about 6 years ago. I attributed my ailments to menopause, depression (lost my entire family to various cancers)and anxiety, and just getting older. Been working myself sick for many years and stressful job. 12 hour work days. Can’t get any real diagnosis other than gallstones and anxiety. There has to be more than just getting older. I struggle to function and fear I will lose everything.
@tracidevault397610 ай бұрын
"There's to many factors". That's my life story. For twenty years I've tried to find answers for my pain and other problems. I have lots of diagnoses, but no "cure" or even anything that helps most of my symptoms. Doctors disagree on what all I actually have and how to treat any of it. I'm tired of spending money and getting my hopes but also tired of the pain, insomnia, digestive problems, chronic fatigue and anxiety and depression that go hand in hand with all those things. I have no answers and no suggestions. ❤❤❤
@georgiabeardsley401310 ай бұрын
Same I’ve been in pain for a year and no one can figure out why. I’m physically and emotionally tired and almost done fighting but we’ll see how far I can continue.
@kevinkelley365710 ай бұрын
I am a 52 year old male, I have been a truck driver since I was 27. I excelled in science in High School, but, because of many reasons, I did not get a college degree. Never the less, science is still my thing. I think I might have a few hints/suggestions/might work kinda things. 1. Most adult females suffer from constipation. This is a reality. It is a serious problem, you need to treat that first. 2. Weight gain, and specifically serious weight gain, leads to inflamation, and inflamation leads to cronic pain and stiffness. The Herb Tumeric can be helpful with inflamation. If you weighed 85 pounds in 10th grade, and now you weigh 200 pounds, ain't nothing gonna help you until you loose at least 50 pounds.
@supesisfodder742710 ай бұрын
@@georgiabeardsley4013I hope you find the answer and feel better Never give up 👍
@LydiannaBella10 ай бұрын
My iron level was insanely low for about 2 years and there were nothing that was making it go up. I felt soooooo lethargic for so long. We finally got it under control. I would make them test it again at least one time.
@hannah__jemima10 ай бұрын
"Their lives go on" - exactly . I felt this hardcore when I was Dr shopping. I realised that in the grand scheme of things, it made no difference to them whether I could finish my degree or not, whether I had a future or not. With the number of sick people out there (and since understanding boundaries better), I totally get why. But you feel your symptoms are just unseen.
@aekorfker10 ай бұрын
Can you imagine an inspector saying ‘good news, he didn’t do it!’ Like the crime never happened..? Wish you heavenly wisdom 🙌
@hannah__jemima10 ай бұрын
💯
@AdiannaRobinna10 ай бұрын
I am praying for you, my sister.
@lauracastle603510 ай бұрын
You sound like my daughter. She has all kinds of things going on & her test results always come back fine. Traditional & alternative. Our next tests are SIBO (likely), micotoxins, & Adrenal. But honestly, it's all so expensive. Even if we treat, I'm not sure it will cure her. The hardest part for her is the exhaustion , yet has insomnia & chronic all over body pain. She also passes out & has seizures when it's really out of control. She sometimes gets relief from saline IVs & Vitamin C IVs but not always & it's short lived. We're looking to go out of state to see a Dysautonomia specialist. I just don't know who to trust. There are none here. Literally, none in the whole state. I wish you luck in your journey. TY for this channel. It helps me to feel less alone as a caregiver.
@bellad.127410 ай бұрын
❤ Wishing you all the best from Niagara Falls, Canada ! 🙂🥂 🇨🇦
@PrettyEyesz10 ай бұрын
This is so relatable. ❤❤ When doctors tell you these things it can make you feel crazy because you know how you feel physically, but if they can't find a actual cause through testing, it makes you just want to scream.
@michelledelazzer10 ай бұрын
I am so sorry to hear that you are going through this. I definitely can realate to getting so many tests done just to hear "great news" and not make any progress. Have you seen a functional medicine/natropathic doctor? My conventional doctors told me all of my blood tests were normal but i went to my functional medicine doctor and she looked into everything so much further, did way more expansive testing, and found things to be improved upon when conventional doc's just said i was fine and brushed me away. We are here for you! ❤
@kellygreiner490210 ай бұрын
Hugs I feel this so much I think I have things figured out and other days I don't it's so hard physically and mentally.
@healwithlaurennicole10 ай бұрын
If I were in your shoes, I'd ask, hmmm, the low iron may still be an issue since I've had issues with low iron in the past multiple times (i believe you mentioned needing infusions during your pregnancies because your body wasnt responding well to the oral iron supplements - i think thats what i remember- sorry if i am incorrect on that). I would have my iron tested again in the future, maybe waiting a month or a few months to see if, as you stated, maybe the test where the iron was normal was actually the fluke. With that said, I fully understand your frustration with getting your hopes up for answers and then being let down again. And then them telling you there are no next steps and you feel helpless. But we are not! When I switched my approach from "let me try this, let me try that, and see if it helps and if not then I'll try something else" to "im just going to support my body in EVERY WAY POSSIBLE with the full knowing that the changes im making ARE helping my body - eg getting enough sleep and rest, listening to my body, not overworking and overgiving myself, honoring my bodys needs and limitations, eating in a way that makes me feel my best, etc." I felt SO MUCH more in control. You're right, there ARE so many factors. Which is why its never just one or two things we need to change to feel better. We need to change everything about our lives through trial and error and learning how to listen to our bodies. Its hard. Sometimes it feels like we don't know what the right thing to do is. But keep tuning into your body and its needs. It will continue to give you clues and direction, as it has already up until this point. Sending you so much love. ❤
@Aimee_Esther10 ай бұрын
Thank you!!! This helps a lot. ❤️❤️
@malurus_10 ай бұрын
I hate that news. I've had ear issues since July that left me housebound, vertigo, migraines also because of it. CT scans, MRI and its always "good news, nothing showed on the scan" OK BUT WHATS WRONG WITH ME. Its more like "good news, we cant find anything wrong so youre on your own and we dont have to bother with you anymore"
@antonygikonyo791410 ай бұрын
Try treatment for otitis media... you'll definitely get relief....!!
@supesisfodder742710 ай бұрын
I feel your pain
@jenniferw15959 ай бұрын
Long Covid. I have this too.
@jaroslawbajon51210 ай бұрын
I can only wish you get better because I’m struggling with my digestive health as well , tried lots of things that didn’t work and I’m broke at the moment with no results which puts me into miserable thoughts every single day. Stay strong.
@Aimee_Esther10 ай бұрын
I'm so sorry you're struggling 😫
@JJPriest10 ай бұрын
If your fatigued look at eating more fat into your diet. Your body is still healing and you've made progress. Some of the primary ones I follow mention tweeking diet with more fat and see how you feel. As much as a 2:1 ratio in grams. for Fat:Protein. Look into Vitamin D3+K2 supplement. Keep pushing forward.
@DiariesofaDisabledmom10 ай бұрын
I hate when they tell me I’m fine when I’m not. Turns out I had a connective tissue disorder and dysautanomia but I went thru so many tests and blood work. Ughh and now I think I have something else wrong. I’m either allergic to something or have mcas or lupus or something 🤦🏻♀️
@Nomad1234310 ай бұрын
I’m with you! But honestly I do feel better on the carnivore diet. Even as I look back at my symptoms a lot of them are gone. Remember stress can cause flares…
@shanelrosario273810 ай бұрын
Sorry you’re feeling bad my lovely. It’s so crazy to me that I’m literally going through the same thing in realtime. I just had this conversation with my parents and said everything you just said in this video, then I watched your video and couldn’t believe it was like hearing myself talking about my own situation. It’s super frustrating. I still have my appointment with the specialist next week and feel like cancelling and just giving up too, what’s the point? I already know my bloods have all come back normal so all he’s going to suggest is probably therapy 😑😑 I’ve been doing this, going back and forth with different doctors and tests for over 10 years. I always feel hopeful in the beginning and then I remember why I gave up trying the last time. I’m thinking of you and sending you healing. You’re not alone and your videos have made me realise i’m not alone either. I watch them in bed when I’m in pain and it helps me get through it, so thank you for always sharing and being vulnerable. You are making a huge difference ❤
@julesodgers915110 ай бұрын
All I want to say is that I am sorry. Big and gentle hugs your way and I hope you feel better soon xo
@MissBeatty10 ай бұрын
Here’s my take just from my own experience being chronically ill going through doctors appointments and doing a lot of bloodwork unless it’s something severe or serious I truly feel like when we get blood work done, it shows us a snapshot of what the body is doing. In that moment it doesn’t give us enough information for what goes on our body on a daily basis every minute every second every hour so I think blood work is good I feel like it’s more like a baseline a guideline. I’ve had the same issue with doing constant blood work. My blood work will look great but my symptoms are still there or vice versa. So I don’t rely on bloodwork and I don’t get too excited about about it. But it’s still good to use to check on things.
@bellad.127410 ай бұрын
I've been on the roller coaster too. It's very frustrating. I do believe the Carnivore diet can help. I will try it again soon. Jordan Peterson's daughter has had great success, but probably needs to be done in a certain way. I'm EXTREMELY sensitive to all fragrances, flowers etc & Tyramine in aging foods & leftovers, ripe fruit etc, is something that truly poisons me gives me migraines, nausea extra muscle pain. Very debilitating!
@georgiabeardsley401310 ай бұрын
I also live with chronic pain and it sucks. I hope me and you both get through our difficult times! I’ve been dealing it with it for over a year and doctors can’t find anything wrong. It could be a disease I have or long Covid but I hope something will work in the next couple weeks.
@marie_eva10 ай бұрын
I apologize if you've mentioned this before, I probably haven't seen all your videos. Have you ever considered Ehler's Danlos Syndrome? I was recently diagnosed, and it explained so much for me. Problems that slowly came up throughout childhood to now, my constant pain and unending fatigue, digestive issues, migraine issues, why I developed Fibromyalgia as a teen, then POTS after having Covid (EDS makes us more prone to developing POTS than most), and now I know that some specific flare-ups have been due to (unknowingly) subluxations (AKA partial joint dislocations). Of course, this has just been me. I know there are so many factors to consider. I'm so sorry you haven't found answers. I was just there a month ago (two years of active searching, but like I said, all my life I had health questions unanswered). Though not totally known why, EDS is also common in Autistic and ADHD folk (I'm both). I was diagnosed by a Cardiologist knowledgeable in Dysautonomia, but I understand that genetic testing can be done to find EDS markers as well (it's a genetic condition). Even if this information doesn't help at all, I hope you find answers soon, along with the financial ability to continue searching for them. I know it's hard. Hang in there.
@Catlily510 ай бұрын
I think that I have EDS. The geneticist said that I probably have it but refused to diagnose me. You only have a 10% chance of getting diagnosed genetically because they don't know which genes are involved for 90% of people who have Ehlers Danlos.
@YARI58910 ай бұрын
You and I are in the exact same boat... I don't even know what to say, but it has been 8 years for me. I wish a miracle for you. Hang in there.
@philipdiorio336010 ай бұрын
Are you drinking any electrolytes? I don't remember if you've mentioned this before, but if you're not doing this then I'd try that. Lots of people say they have low energy on the diet until they start drinking electrolytes: then they're fine. It could be either electrolytes, some other type of deficiency you haven't discovered yet, or maybe you just have to give your body more time to heal (as crazy as that sounds). Either way I hope you can push through it, it's not fun being low energy all the time.
@TabithaHarnsberger10 ай бұрын
Get your serum cortisol level checked on an 8 am blood draw to screen for adrenal disease . Also consider getting tested for the MTHFR gene which can alter homocysteine levels and cause issues .
@Aliadhahir10 ай бұрын
I see the pain in your beautiful face and eyes i know this feeling 😔
@ursulajohnson920510 ай бұрын
I truly understand your frustrations. I have the chronic fatigue among other issues. Im on a break for drs now too.
@stanlysteemer487210 ай бұрын
Hope you feel better so you can enjoy your life.
@louisestemarie10 ай бұрын
🙄 sounds like your talking about my situation. I have tried to solve these health problems for a very long time with no resolutions. You're right it does suck!! The only thing I can say is be your own doctor. I had some help by seeing an occupational therapist who helped me with how to manage the pain and the fatigued... And you might want to take a break?
@e.williams1310 ай бұрын
The carnivore diet did help my stomach but it made my pots worse.
@PureAcousticProducts10 ай бұрын
Hey Aimee? Don't stop looking for answers and above all, don't stop sharing your story here. I too have chronic ilnesses, mainly SIBO and Visual Snow Syndrome. All my docs tell me Im basically fine and any scan in the book comes back clear yet I suffer all day every day. One of the few things that gives me relief is watching your videos because its so overwhelmingly nice to "connect" with someone who's going through the same thing. You make me feel less alone. And that's a really big deal. So even if you're not progressing in your own journey, you're making a difference in mine and I hope that helps you feel better today if you get to reading this at some point
@amber357410 ай бұрын
I deeply relate to this Aimee and I’m right there with you at the burnout point. I don’t think there’s anything wrong with taking a break from doctors sometimes. Especially if you don’t feel like it’s helping really. I appreciate you sharing this and letting us know we are valid and not alone, that there are others like us who go through this. ❤
@rebeccahesser805710 ай бұрын
Oh my lord no offense but I’m so glad I found your channel I literally feel so very alone in my struggle. But it’s nice to know I’m not alone. I have heard for years everything is fine. And I feel crazy because I know all this pain, fatigue and other things I KNOW SOMETHING IS WRONG!!!!
@Lou-y9u10 ай бұрын
I live in England where medical care is free and I can tell you that the Doctors here does not do any more tests if they come back good. I’ve been in the same situation for over 12 years and all I get is the test’s have Came back good so there is nothing we can do. I get worse and I have more test’s done and they come back good so the doctors say we can’t do anything. I wish I could go private, but I fear they will just say the same thing. maybe they’re really is nothing they can do, especially as I do have to wear. Neurological conditions. It is so frustrating and now I’ve just learnt to realise that there is nothing I can do other than what I’m doing and that helps massively. I really hope you find your peace soon.
@Aimee_Esther10 ай бұрын
There really is no right way to do healthcare, is there?? 😫😭 I wish we could just get the care we need that is also reasonably priced! I'd be willing to pay anything if I knew it would work but I hate spending more money when nothing changes!
@Lou-y9u10 ай бұрын
@@Aimee_Esther I know exactly how you feel and have begged and prayed for answers and not found them so far but still have to hold out hope while giving up. Remember what you’ve said may times “being chronically ill is so lonely” and this is just another aspect of that loneliness. Thank you for sharing as it makes me feel less alone and I’m sure many would agree. I’ll keep you in my hopes for change
@Rose_is_a_Rose_10 ай бұрын
@Aimee. I remember someone told me once that there are different kinds of iron or b12?? (Cant remember) they can measure. The superficial 'short term' measuring takes for example the supplements that just entered your blood, in account. But not the stuff that is stored and absorbed in your body. And it is common know that depletion does not show right away but only after several months or even a year. Forgive me i cant remember for sure what it was about. But it might be interesting to look into this for you. I also once met a girl that couldnt absorb iron. She thought it was burnout and she felt so sick and tired.. but then she could get iron shots weekly or biweekly.. I am so sorry for all your disappointment again... See you in the community 😘
@ThatOldBlackMagic_YouAppear10 ай бұрын
eye , I am a real repeat back yes up Ds sweet Aimee!
@catherineshepard448010 ай бұрын
Maybe you might look into Raelan Angle's course. She teaches ppl w hypersensitive alarm systems, when your stuck in fight or flight and it causes lots of symptoms including fatigue.
@healwithlaurennicole10 ай бұрын
I agree. I LOVE her and similar programs to hers. Nervous system regulation is more than 50% of chronic symptom relief for any illness, from my personal experience of my own life and working with clients who have healed themselves to a certain point as well. You can start even just by watching her youtube videos of people who have healed. Her focus is CFS, but the principles she teaches applies to healing every chronic illness, including cancers. People who have experienced so-called "spontaneous remissions" of cancers have followed these principles of nervous system healing because our bodies have the innate ability to heal when they are in a parasympathetic nervous system state- this is when cells and tissues repair themselves, DNA damage gets repaired, damaged cells get destroyed, etc. The problem is most of us with chronic illness are stuck in a sympathetic nervous system state - chronic fight or flight - which drastically reduces our body's ability to heal because our body's main focus is on survival rather than cellular and tissue repair. Learning how to switch from a hyperactive nervous system state into a calm one for 90% or more of each day will greatly improve your symptoms and health.
@Catlily510 ай бұрын
I am sorry that you are having a hard time.
@Catlily510 ай бұрын
Fatigue is one of the worst symptoms for me too.
@jamesmcclure350210 ай бұрын
Also whenever you can, get another complete blood test. It is possible the first one was accurate and the second one was a false reading of your iron levels. Good luck and keep pushing
@joneljones418110 ай бұрын
Don’t give up girl !!!!!
@e.williams1310 ай бұрын
Also if you haven't tried brain retraining look into it. Some people like d r n s. I I'm doing wired for wellness and I do see a significant improvement.
@ruby320010 ай бұрын
I’ve been there with no appetite. I would take two hours to eat half a peanut butter sandwich. I’m worried that those symptoms are coming back. I’m in my hardest point of the year right now physically and mentally. I spend all my time in bed besides showering and laying on the couch at night while watching TV. I know I’m going to be like this till May. Right now my POTS has gotten worse to the point where just showering then going to bed causes horrible palpitations and other symptoms. I just had an appointment with my special doctor online and one of my biggest problems is sleep. He put me on a new sleep medication and it did something to me mentally that was very scary. So now I’m on a new one that causes me to have night sweats, but it’s better than not being able to sleep at all. 😅My last appointment he just started to realize that my POTS is not my main cause of fatigue even though I’ve said that I have severe ME/CFS it just clicked for him, and he is trying to figure out what’s causing my ME/CFS but is having a hard time because like you, my tests come back mostly fine. He thought my fatigue would be getting better by now( I knew it wouldn’t). My fatigue is my main problem and it is most debilitating. If you are looking where to go from here you could look into the Metrodora Institute in Utah. That is where my special chronic illness doctor is. They diagnosed me with POTS and suspect fibromyalgia, MCAS, and maybe EDS. It is expensive, but Dr. Burman the primary care doctor has helped me and is understanding. Like I said it has taken him a while to understand my ME/CFS, but he is trying his best and has really thought out different strategies to try to get me better. He is an amazing doctor. I’m going to see their new neurologist and Dr. Burman and my special physical therapist there in March. I know it might not be right for you, but it’s worth a look. ❤ Maybe what you need right now is a break. And that’s okay too. Taking a break is not giving up, it’s just taking a step back for a while. Hang in there Aimee, I’m praying for you, you aren’t alone. ❤❤❤
@chadspencer797610 ай бұрын
Ok so I'm a Crohn's guy been doing a huge amount of reading and diet experimenting. To test for Celiac you need to eat bread regularly, the test doesn't work unless your body is reacting to the gluten. Blood tests miss this sometimes. The fatigue you have I had, steak and potatoes beat it. You need a gastroenterologist not a gp. Eat all the foods you used to for a few weeks before you go see your gastroenterologist, he/she will either do a endoscope or colonoscopy depending what they think. They need your guy reacting to get a better identification of your problem. Iron needs B12 to get absorbed. Don't stress.
@alyssapebbles71709 ай бұрын
Also my naturopath said people with POTS tend to feel better when ferritin is around 90+. So your iron level may be “normal” and in range but you could still be symptomatic! This is definitely the case for me. That’s why I don’t trust regular doctors because what is “in range” can be very problematic for some people.
@alyssapebbles71709 ай бұрын
I can also relate to everything you said so much 🧡 I have Hashis, SIBO, and POTS as well. But I will say working with a naturopath can be life changing because they understand our issues so much better than mainstream healthcare. And it is expensive but it’s worth it because you will see results. Western medicine does NOT know how to deal with autoimmune disease- you have to go alternative.
@llcorz121510 ай бұрын
I am so sorry, Aimee. It’s so tough when we get a glimpse of hope and then it’s taken away. Also, I know how frustrating it can be to get normal lab results and then they say there is nothing else to do. Ugghhh! I have had Fibromyalgia for 28 years along with all of the fun stuff that goes along with it (migraines, IBS, vertigo, etc.). The only thing I have found to help me is magnesium spray and sunlight! I think you mentioned that you are sensitive to medications and I am as well. My vitamin D level was critically low at 4 ng/ml. My doctor started me on a high dose of vitamin D3 and I did okay at first and then after a couple of days I felt horrible! I have since then realized that I can’t take vitamin D supplements. I don’t think my body absorbs it correctly. This is a long story, but I’ll try to condense it. I learned that if you get more magnesium this can actually help your vitamin D levels. I didn’t want to take another supplement so I tried magnesium spray from Amazon. Then, last April I started sitting out in the sunlight in small amounts each day that I could. By the end of summer, my fibro pain was so much better! Since we are in winter, I can tell my vitamin D level dropped again and the pain returned. I bought a UV lamp that I use a couple of times a week. I’m a little nervous to use the lamp more than that since I don’t know how safe it is. I pray you find some answers and relief. Feel free to message me anytime if you have any questions about any of this…it’s almost too much to explain easily on here! Take care! ❤️
@ilovehorrorrr10 ай бұрын
I feel your pain, I really hope you get some relief soon
@12345JM10 ай бұрын
I’m so sorry your energy levels have dropped again. It was interesting to hear you say you had more energy after the flu. I have noticed that myself. Usually I have a huge improvement in symptoms and energy after a virus. After covid, I had 3 really good weeks. At the time, I thought it was just that I was comparing it to how awful Covid was. But in December, I caught a stomach virus and was very sick for several days, but as the virus went away, I felt almost normal. It’s like my immune system resets or something after viruses. I have MCAS so I wonder if my immune system stops the hyperactive and self-attack mode bc it’s fighting something else. I can honestly say that I don’t dread viruses like I used to bc though the sickness is usually tough, the “normal” energy weeks afterward are wonderful. It feels so nice to accomplish things I normally just don’t get to. But the energy just gradually seems to fade after a few weeks and I honestly can not find anything to blame it on. Then you have to deal with the emotions and disappointment of the energy just slipping away again. I wonder if this is common in the chronic illness world. So wish we could find a way to make the reset last… Praying for you to find answers and to be encouraged day by day. The Lord is our refuge and strength…
@Aimee_Esther10 ай бұрын
So interesting that you also get a burst of every after a virus. Maybe there is something to this?? So interesting!
@ThatOldBlackMagic_YouAppear10 ай бұрын
don't give up you are it Aimee
@MissRoseLestrange10 ай бұрын
Have your folate levels been normal? I know that it can impact energy and iron absorption. Maybe you've tried it already but supplementing b12, vit D, folate, and iron by focusing on diet and timing taking the supplements (as well as sunlight) may help. Plus magnesium (whichever kind is most applicable for your specific needs) :) been a solid improvement in my end. Hoping it helps on yours
@Christinesobsevations10 ай бұрын
I’m in this exact position .dr wants a lot more tests but what’s the sense….it will be the same ol thing . Normal . I’m tired of it.I’ll get the tests anyway . It’s very cold here too and I can’t tolerate it . At .all .
@Thelittleclipstore10 ай бұрын
For me as someone having severe cfs and pots I found Irene Lyon stuff most helpful and just practicing pacing ..
@carathomas839810 ай бұрын
I totally relate to this video! I think our sleep is just terrible with Fibromyalgia. I’ve found that focusing on getting better deep sleep has helped me feel way better. So many factors: B12, Hormones, exercise, pain levels, stress, vitamin D, thyroid function, O2 levels, alcohol consumption, caffeine intake, other meds, and getting outside air and sunshine, I think the list goes on and on!
@Aimee_Esther10 ай бұрын
I've been working on sleep! I'm actually on a new sleep medicine to help with deeper sleep. My sleep has been way better but so far it hasn't changed much of my fibro symptoms.... But I'm not giving up hope! 😊
@j0yfulblessings10 ай бұрын
Sorry for the "good" news 😢 i totally understand the frustration of STILL not knowing what is going on. I get so burnt out and feel like it's a waste of time and money too. If you need to take a break from trying another thing, its okay ❤ Have you tried the low dose naltrexone for fibro/fatigue? If i understand correctly, it lowers your immune system so it stops fighting with itself so much. When you mentioned your energy going up after being sick, the naltrexone was my first thought. I'd keep the appointment with the GI and maybe consider a naturalpath? I had a neurologist say my b12 was low because he prefers his chronic pain patients to have more "optimal" levels not just "within range" so i am now seeing a naturalpath who doesnt just go off the "normal" range for vitamin levels and knows a lot more about stored iron vs. Absorbtion etc. Its so complicated.
@robyn_marie10 ай бұрын
I've been down the road to of going to so many doctors and trying so many things, and I feel like I finally have answers and am finally on the right track. I believe I finally have the answers to why the carnivore diet seems to work at first for so many people, why some people are intolerant to gluten, dairy, eggs, etc, and other people don't seem to be, why blood work usually looks good, why people have chronic illness, and ways to heal it that can be customized to each person. It takes time to heal, even after applying this information, it takes years. But it is working for people and has worked miracles for so many people. I want to shout it to the world, but not everyone is ready and open to hear it and consider it. Or some people try to apply the information for a while and then give up too soon, because it can take time to see results. But just finally feeling like I have answers is so helpful. Let me know if you want to hear more. Hoping things improve for you soon. ❤
@Oogieone10 ай бұрын
I totally understand how you feel. I have been so fatigued lately even though I’m sleeping well. I went to the doctor, and they did blood tests etc. Everything fell in normal range, so apparently there is nothing wrong with me. No I just feel like I’m going to fall asleep while driving to work, after having full nights sleep, but there is nothing wrong. Yeah, that’s completely normal…😞 I gen I had my bone marrow biopsy they said I had no iron stored. I mentioned that to my doctor and he just said, “yeah I saw that…” but he wasn’t concerned because I am a young woman with a menstrual cycle. It is so frustrating. I’m already dealing with mast cell activation syndrome after having Covid in July 2020 and now I have crippling fatigue…and no one can figure out why or even cares to. I’ve been taking b12, potassium, magnesium, biotin, Quercetin…just trying to do all I can. That is all we can do…
@chaconag10 ай бұрын
I need to apologize to you. I signed up for your community and haven’t been able to participate yet because I was hit hard with Covid and have a 6 month old baby as a first time mom. I did want to say one thing about iron. Please get your ferritin level tested. Your bloodwork can come back in rage for iron, but if your ferritin is low, you will feel exhausted and terrible and will still need iron replacement such as an infusion. This would be iron deficiency without anemia. It is a thought as to what may be causing you to feel that way. I deal with this and have received iron infusions as my body doesn’t keep iron. God bless you!
@alixandriascott608110 ай бұрын
I agree with this. I had major dizziness, fatigue, shortness of breath, chest discomfort and they checked my iron and said it was fine. But my functional medicine doctor checked my ferritin and it was extremely low. I started taking an iron supplement and started to feel better. Now it is happening again, while still on my iron supplement, with the addition of low blood pressure. My iron and ferritin are ok but my iron saturation is very low. So there is not enough iron in my blood transporting oxygen and they don't know why 🤦
@maslina456710 ай бұрын
I really empathize and understand. "Good news!" causes my heart to drop, too. When diagnosed with fibromyalgia I was told, "Good news! You don't have cancer!" How does one process that? It's incredible when we try new lifestyle changes and catch a sliver of hope. Before the crash. 😢 Your dietary woes are so sad...you don't need that on top of everything. I have celiac so have to watch every morsel of food and scrutinize every label for life. Food restrictions are tricky. And we're sometimes (often!) too exhausted to eat as nutritiously and mindfully as we should. Less exercise. Little sleep. And so it goes. Being sick always, day and night, can be unbearable. There are levels of bad days...ultra bad, quite bad, less bad. But we are extra grateful for the bits of joy and appreciate the little things which many take for granted. I'm praying for you as you go through this starting from scratch nonsense yet again. It's daunting and overwhelming to be faced with more discouragement. No one is exempt from troubles. But there is no escape for us who are constantly ill. 😢 Thinking of you. I am thankful joy comes in the morning. ❤
@lacmalince165210 ай бұрын
I know it's not funny, but your first paragraph really struck me. I have a friend that the joke between us is that she always out does me with news. The day I called her to tell her I have fibro, she told me she had just been diagnosed with cancer. She had a rough couple of years, there is no denying that. What I think about most from that time is this. She has been cancer free for years, I still have fibro.
@maslina456710 ай бұрын
@lacmalince1652 What a story! Cancer is always frightening, the word you never want to hear. I'm glad your friend is doing better! Fibromyalgia is so challenging as one can have it for several decades. And talk about debilitating, too. Mine has worsened quite a lot over the past few years with so signs of letting up. Also have connective tissue disease and other things. But there is always hope for us.
@cff725110 ай бұрын
you have fibromyalgia right, could you possibly have chronic fatigue syndrome? i ask because i have several chronic health problems like you. exhaustion has been new and im wondering if i got cfs and idk if i got it or not. not in the mood to get diagnosed. i also tried to get diagnosed for adhd which i did, and now theres no record of it anywhere so i have to start over again. i am so frustrated i dont even want to bother. im sick whats the point?
@melissanreynolds10 ай бұрын
I know the feeling of wanting to know whats wrong and wanting something to show up that we can treat. It's so frustrating. It seems like you're on the same journey as me just a couple years younger. I see these carnivore and keto aficionados who make it sound like it's a magic fix and I just don't think it is.
@mikebell724010 ай бұрын
Have you added more salt to your diet since you’ve started carnivore? Add a bunch of electrolytes and take that salt in to get more energy
@Smithstar197610 ай бұрын
I have been suffering for so long now i have forgotten no matter what meds i take even when i exercise ir makes it worse i dont know where to turn now to honest
@Smithstar197610 ай бұрын
Been disappointed makes the symptoms worse makes me hide away in my bed can hardly do anything most days
@ThatOldBlackMagic_YouAppear10 ай бұрын
return to channel you Aimee, coach! ! 1
@alyssapebbles71709 ай бұрын
Do you work with a naturopath or functional MD? I’ve found that mainstream healthcare is of no help to me with autoimmune issues but I love my naturopath!
@ShawnHamm10 ай бұрын
How are your copper and zinc levels?
@ArtyAntics10 ай бұрын
We need vitamin C to absorb Iron so I suspect that you need more fruit and veg in your diet to absorb it properly. Personally the only thing that had helped with my chronic pain and fatigue is trauma therapy. There is nothing wrong with our bodies, they are storing trauma as pain and our digestion switches off when we spend too much time in fight, flight or freeze so nutrients don’t get circulated for energy. Learning how my nervous system works finally gave me the missing pieces. Sometimes things work because they reduce acute stress in the moment but they don’t persist because soon as we are stressed again the problem reoccurs. We have to work on the chronic stress/trauma to get relief.
@Aimee_Esther10 ай бұрын
I did trauma therapy too! I was so hopeful it would help but I'm still chronically ill 😫 it took away my nightmares and night terrors, significantly reduced my anxiety, and I'm a completely different person than before I did EMDR trauma therapy. But still sick haha.
@robintisabird156610 ай бұрын
@@Aimee_Esther same here, I’ve done tons of therapy, but all it does is help manage and improve pain. It doesn’t undo. The damage has already been done to my system!
@magnessskippton250910 ай бұрын
There is a small amount of VitC in fresh meat. It's not much, but as you aren't ingesting sugar (glucose), you actually don't need the extra vit-C. This is because glucose and vitamin C have a near-identical molecular structure and share the same pathways when absorbed into cells. When glucose and vitamin C compete, glucose wins out. So if you don't eat glucose, any VitC will get all absorbed more readily If you feel the need extra supplementation, have a small amount of livers periodically (I saute livers in butter)
@devanjames671310 ай бұрын
Aimee Hether, Do not despair you seem to possibly be having oxalate dumping symptoms… You may want to consider a few things: 1-consuming high oxalate food items in small quantities such as 2 squares of dark chocolate (85% more or less) or a cup or two of black tea if you can handle the caffeine, sweet potatoes etc. For a couple of days in a row 3-5 and see if the symptoms slow down or disapear. 2- another approach might be to consume low oxalate foods with a certain amount of carbohydrates such as fruits (pineapple has an enzyme that helps break down protein) which will bring up the blood sugar levels as some people with oxalate dumping symptoms seem to have a hard time keeping up their glycogen stores in the body through the gluconeogenesis process as well as the fact that they also dump a lot of electrolytes due to the fact that oxalic acid or oxalate crystals really bind to minerals and thus both get removed from the body in the process. Keep an eye on your electrolytes. 3-supplementing with calcium citrate. Oxalates seem to love to bind to calcium which interestingly enough is why so many high oxalate foods might have been prepared traditionally with dairy products as this has been proven to lessen the damage and intake of oxalates. An example would be mash potatoes with cream or milk, tea with milk and so on. Eliot Overton on EOnutrition is really brilliant, Sally Norton as well. Don’t give up, All the best!
@ThatOldBlackMagic_YouAppear10 ай бұрын
im bin it not able to win it any now
@street_girl10 ай бұрын
Girl, I don't know either😂. 2 weeks ago i got my vitamin B1 levels tested because it's a vitamin that causes Pots and the results came out low, and then I tested again this week but with a full panel of vitamins and now it says my vitamin B1 levels are high 😂😂 (which is very rare how could it go up so quick. I have the same diet every week, the only difference is that the day before the 1st test I had some bacon which has a lot of fat and my dermatitis flared up). And on the global vitamin panel it says high B12 but low active B12. IDK anymore and still waiting the results for the rest of the panel. If I find something that works for me I'll let you know (note: I am noticing vitamin B1 is regulating my heartbeats. But I tried another make I didn't try in the past and the 1st day i felt kind of crappy taking it but now it's okay)
@donagarcia899610 ай бұрын
have you had your homocysteine and MTHFR genetic test?
@street_girl10 ай бұрын
@@donagarcia8996 no I haven't, but can you tell me why you think I might have it? Does it cause vitamin malabsortion? My family has a lot of cancer cases, but I think it's more related to sarcoidosis. In theory I don't have cancer because they have scanned me but I will try getting that test when I get more money since you think it could be related.
@donagarcia899610 ай бұрын
@@street_girl it doesn’t methylate many B vitamins and hormones in your body properly if you have the gene from both parents, which cause a build up of homocysteine and folic acid. It can cause fibromyalgia, chronic fatigue, anemia, mental disorders, gut issues, cancers. There are videos you can watch about it
@Catlily510 ай бұрын
You can have POTS for other reasons also.
@cherylcarlson331510 ай бұрын
The algorithm picked up on the title. I can relate. Have some sort of neuromuscular disease that looks like Myasthenia gravis but no antibodies but responds to meds but must be in my head because I had other antibodies that have no gone away and the constant pain of muscles at 6 went away with med and muscle biopsy says one thing but another pathologist said he was wrong... get the picture?? I became seriously disabled by all this in 2016 and couldn't work as RN anymore, see they will still gaslight you even when you know the stuff. I have been told just take this or that supplement, do yoga, push through it, go into assisted living and sign DNR, there is nothing wrong with you those abn labs are just a fluke, falling is normal at 60... I did give up. I have med that helps with the muscles so I breathe without oxygen again at night but don't take my bipap or I can't breathe, and when I get sick with covid or flu can barely function at the default of super crap.Will only go to MD who gives med . I am on medicare/medicaid, have had 7 neuros, 2 muscle biopsies and 3 yoyo diagnosis ( given, taken, given, taken) Because beef is so inflammatory I have be pretty much eggs and chicken, unprocessed foods intermittent fasting with only 4 hr window to eat. Trying not to give myself an eating disorder but like you sometimes just too much hassle to eat. Thankfully have a dog who demands I take meds and eat, also puts me to bed if I am sick,gets me up in morning for med time, protects me from falls, loose dogs and prolonged sobbing. I used to say when life gives you lemons make lemon meringue pie...nothing is insurmountable. Kinda was wrong. Sad you are dealing with this while young kids, I started late 40s.npw ,mid 60s. Can't give you an answer, just know you aren't alone bobbing in the medical fog.
@ThatOldBlackMagic_YouAppear10 ай бұрын
from space eye look as Met tal patrol List A as DS
@beautyfromashes0810 ай бұрын
I'm so sorry your going through this. Will you be continuing the carnivore diet?
@Aimee_Esther10 ай бұрын
For now I am still mostly carnivore. I haven't fully decided what I will do long term.
@juliamaresh54010 ай бұрын
Have you ever done any genetic testing, for conditions like trisomy x, etc?
@mezamir32710 ай бұрын
Try magnesium glycinate and potassium chloride powder
@magnessskippton250910 ай бұрын
If you want more energy, you need to start increasing the fat. Do it gradually, as even when you are fat adapted, it still takes time to get used to. There isn't a prescriptive method with carnivore. You need to listen to your body and adjust what suits you best.
@maxaman6410 ай бұрын
My Father was a disciplined Stoic so a man of few words. His first rule of life was "Be careful what you think about, you may just get it".
@Catlily510 ай бұрын
I got things I never imagined.
@maxaman6410 ай бұрын
@@Catlily5 He would also tell us the remedy is to Change focus well away from what you may be getting toward what you feel you need with ruthless resolve.
@Catlily510 ай бұрын
@@maxaman64 That makes sense .
@ThatOldBlackMagic_YouAppear10 ай бұрын
coach Aimee
@Aliadhahir10 ай бұрын
Did you try copper protocol ?
@firstlast-js5yw10 ай бұрын
Mitochondrial disease causes SEVERE fatigue, ever looked into this?
@212days10 ай бұрын
"Faith disregards the rain and instead reaches for the rainbow." Therefore I tell you, whatever you ask for in prayer, BELIEVE that you HAVE received it, _and it will be yours."_ (Mark 11:24) "Jesus you have the title of 'the Great Physician' and you have said the above words. I am going to go on the warpath and put them into use. Thank you that You Love me. I am claiming and believing that I HAVE health from Your healing Touch. That means that I am going to go on the warpath to think that way. I HAVE health. I am making the effort to BELIEVE as much as I can (the more the better) and pay attention to the symptoms as little as I can (the less the better.) This is what I am persisting and persevering in even if I wake up 3 days from now or 3 weeks from now and feel like the symptoms feel worse than ever. I don't have what the symptoms are suggesting. I HAVE health.... The symptoms are just something going on in the hazy background as I am on my way towards healing and health. that's what I am claiming and that's what I am going to HAVE." --That's how I would do it. It's a process. That's how I have done it. The idea is to take Mark 11:24 in one hand and Mark 12:30 in the other hand and.... go for it. “No eye has seen, no ear has heard, and no mind has imagined what things God has prepared for those who love Him.” (1 Corinthians 2:9) If you do not know that God exists you have a lot to learn. Your free will choices determine whether you are going to do that or not. It's like driving down the road and you have a radio in your car but it is turned OFF. There could be a radio station that is playing exquisitely beautiful music but you don't get to enjoy any of it if your radio is off and not tuned specifically in to that station. ...
@e.williams1310 ай бұрын
If you haven't tried already tried Dr Brooke goner goodbye lupus program. It's applicable to people with autoimmune and chronic illness. Even with me just incorporating the smoothies I felt a lot better and had a lot more energy. I know what it's like to try program after program but just try the green smoothies everyday
@guyver273110 ай бұрын
Have you gone to a motility clinic? To identify the root cause?
@daphnebrooke-fv3dw5 ай бұрын
Have you ever been tested for mold?
@aa-sz9xc10 ай бұрын
Not hungry, could add a small amount of fruit back into your diet. Have heard carbs cause hunger!
@richardholcomb88610 ай бұрын
Sounds very familiar with my symptoms every blood work was good except My A1c like In the low 7's and cholesterol ldl around 150 I have been diabetic for 30 years they are always close for a while doing keto diet for about 1.5 years my A1C was in upper 5 to low 6 but it seems every time I think I find away to control glucose levels my body seems to adapt and I switched over to strictly carnivore but it still seems the harder I try to be villigent the A1C creeps back up in the 7's about 6 months ago I herd about a supplement called nmn and wow for about 6 months I felt so energized I got back into really working out but that too has ran it's course and now I'm back to no energy sore joints crackling shoulders and neck and getting into ketosis is virtually impossible I eat no carbs except for what's in the meats and cheeses and maybe a occasional avocado I think your right on giving up I wish i could but that's not me I don't know how to give up so I've learned to give to to the Lord and through him the meditation and prayer at least gets me on my feet to continue the battle my demons try the nmn it s nictomide monlnecultide probably misspelled but something to that
@amyschmier809010 ай бұрын
How's your vitamin D and B12?
@christinealton35010 ай бұрын
Since you have had hysterectomy are you are hormone replacement? very important. Is your thyroid ok?
@stmsc843710 ай бұрын
Are you using grass fed grass finish beef? How are you getting you vitamins? Good quality liquid? Your b c and d might be too low. How is your calcium? Please know the range isn't for you its a range from 1 month to 99 years. What a child needs is not what an adult needs. Your not alone in this struggle.
@Aimee_Esther10 ай бұрын
I had all my vitamins and minerals checked and they are all within range! 😊
@drzeworyj7 ай бұрын
PS I know it feels bad when your blood test results come in all good. but... it actually really is good news. it means that your body is reacting to inflammation thinking it is sick, and triggering actual sick responses. all of them are biochemically real, but it's the body doing the "thinking" that's supposed to protect us but causes harm instead. the good bloodwork confirms that, but it also means the body is not damaged (yet), there isn't anything that wouldn't be potentially irreversible. and chronic illness and inflammation can cause damage in the long term. so all being fine, that really is good news.
@ThatOldBlackMagic_YouAppear10 ай бұрын
i do not function as eye was able that is me always also. and i can't recant my disaster thought mouth so that me now. hi there
@mehdiaskarov746010 ай бұрын
Aimee, please, be tested for H.Pylori in your gut because all of your symptoms are so similar to having that. Start taking Mastic gum on an empty stomach, 30 min before breakfast, 1g every day. Also broccoli sprout extract with the meal and zinc carnosine on an empty stomach in the evening 30 mins before eating. It does wonders for all the gut issues to get rid of bad bacteria. Please, go to functional doctor/naturopath doctor! They will help you find the root cause for all of this 🙏🏻
@mehdiaskarov746010 ай бұрын
Do the antigen h.pylori stool test
@Aimee_Esther10 ай бұрын
I have been tested for h pylori before. It was negative. But thank you for sharing! 😊
@twobooberries10 ай бұрын
It's a bit of a vicious cycle. Poor gut bacteria= discomfort digesting fibre, cutting out fibre=temporary relief of symptoms. However healthy gut bacteria cannot grow and thrive without fibre. So a few months on carnivore diet surely would alter the gut bacteria significantly
@Catlily510 ай бұрын
I drink kefir and chia seeds to help the gut bacteria. The kefir stopped me from getting sharp pains in my guts after eating but they haven't stopped the constipation or heartburn.
@alyssarosengard667410 ай бұрын
I’m sorry you are so fatigued. Wanted to say you aren’t alone. I’m exhausted and have been dragging for quite a few months. It can be really disheartening. I have a primary immune illness and an autoimmune illness. You are not getting answers that you need to explain your symptoms. I can’t tell you need a break. I do this too. It isn’t giving up, it is just focusing on your mental health. I have to say I don’t have an opinion on the gastro. They are my worst hated doc. I get scoped and usually they come up with nothing plus they tend to be unpleasant personalities . But this may not be the case with you. My suggestion is to give yourself a “vacation” from medical stuff for a set amount of time. I know you still have the symptoms. Maybe do something purely for fun if you are up to it. Like an easy craft with your kids. Whatever you consider fun. Feed your soul.
@AnotherCaroline17610 ай бұрын
But what are the levels really? Ferritin can still be very low even if hemoglobin is normal... Some say ferritin should be 60+ to feel better. You might also need some vitamin c and stomach acid to be able to absorb iron optimally.
@healwithlaurennicole10 ай бұрын
Great points!
@ThatOldBlackMagic_YouAppear10 ай бұрын
pantry sing try that it was a happy gift
@amyschmier809010 ай бұрын
Have you ever tried holistic medicine. I did western medicine like you for years and spent so much money and I never really got any help. I have gut issues fibro, and years of reproductive stuff and a hysterectomy and oopherectemy at 35. I am 48 now and still have alot of chronic stuff. But I have had some results with holistic medicine. The fibromyalgia stuff is brutal. And sometimes it is so severe and all testing says your fine. Praying they can find a true treatment for it. Hang in there honey. I know it's hard. I raised 3 kids with all this and there are times I felt like I literally couldn't do it. But your doing it in your own way and thats all that matters.
@Aimee_Esther10 ай бұрын
Yes. I have tried holistic medicine a few times. Thank you for sharing though! Thanks so much for the kind words. :)
@J-ZIM10 ай бұрын
has your dr suggested you be placed on antidepressants? I wonder if they would help
@Aimee_Esther10 ай бұрын
Yes! I actually started on one few weeks ago. It seems to be going well so far for my depression but hasn't helped the chronic pain and fatigue yet.
@J-ZIM10 ай бұрын
@@Aimee_Esther me too...hasn't helped me much either