I had Symptoms for MONTHS! Samantha's Non-Hodgkin Lymphoma Story | The Patient Story

In this cancer vlog, Samantha F. talks about her frustrating journey of getting diagnosed with non-Hodgkin's lymphoma after months of vague symptoms being dismissed by doctors.
She shares how her first symptoms started with chest pain and she thought it was heart-related but tests came back normal. As time went on, she started getting back pain, neck lumps, fatigue and night sweats. Samantha kept being told it was likely nothing serious, despite advocating for herself.
After months of unexplained symptoms, her face one day became swollen and she finally received testing that revealed Stage 4 Non-Hodgkin lymphoma.
Samantha stresses the importance of listening to your body and pushing for answers if you feel something is wrong. She also shares details of her chemotherapy, immunotherapy treatment, and struggle with hair loss and how after a recurrence, Samantha is now gratefully in remission.
Full story & transcript → thepatientstory.com/patient-s...
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Video chapters:
00:00 Introduction
00:32 My first symptoms
04:41 Finally getting diagnosed
05:10 Starting treatment
09:52 Experiencing hair loss
11:57 Relapse
15:18 Undergoing CAR T-cell therapy
17:31 Words of advice
#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #nonhodgkinlymphoma #DLBCL #nonhodgkinslymphoma #lymsm #chemotherapy #cancersymptoms

[@ThePatientStory]

We’d love to hear from you: what was the biggest lesson you learned in your own cancer diagnosis? Leave us a comment below 👇

[@raymilland3413]

Go listen to Dr. Thomas Seyfried he has many video's on KZbin. A ketogenic diet and parasite drugs like Fenbendazole and Ivermectin can help starve out cancer cells.

[@mariedixon6081]

Had throat cancer 9 years ago ,I kept getting sore throats and my voice went horsey it was cancer,, they treated it with radiotherapy for months had to get a face mask made they said so they could pin point it right in to my voice box which it wasn't the case it burned the neck of me and my shoulder musle ,,was terrible the burning snd it didn't work y files were lost at one time so they said I had to get my voice box removed at least they removed the cancer, now 9 years latter iv got a tumor in my lung and blood clots in both lungs so I'm not getting any treatment this time I'm not able to go through that again or chemo they have put me on blood thinners,, which are really helping I'm trusting God most of all this time I'm trying to eat healthy ,, I'm not telling anyone not to do chemo ir radiotherapy iv seen it working on people, but it s not for me God bless everyone who is fighting this horrible disease x❤

[@mariedixon6081]

I'm trying to stop sugar as iv heard it feeds the cancer

[@loveSparklesonU]

That iodine cures cancer all cancer in 3 weeks.cured mine.and then when I thought I was sure I had cancer again I painted my body with 10% iodine and it cured it.

[@scota73]

My doctor diagnosed me with chronic fatigue syndrome without any testing. Had me working 1/2 day so I could rest. I did complain of a lump in my armpit but since it was March 2020 I didn’t see her in office so she couldn’t feel it and said perhaps a slipped rib. I asked for a second opinion with another doc in the practice and he suggested I seek therapy but this one was in person so I asked him to feel the lump, he did send me for mammogram and ultra sound and both reports said further testing needed but he wanted to wait 3 months. I waited 2 months and insisted on a follow up. She sent me to a sports medicine specialist who said not slipped rib and a Ct scan finally ordered in May for the next week and shortly after the report said tumor and possible osteosarcoma. Things moved quickly for an inconclusive needle biopsy and a PET scan and surgery soon after. It was Periosteal Chondrosarcoma and thankfully grade 1. I’m so glad I pushed them and didn’t just look for a therapist for mental issues!

[@user-nx6qr1mt6f]

Doctors dismiss us, but then get angry when we do research online…

[@Gothgalactica]

EXACTLY. Bc their EGOS wear those white coats.. UGH. Women die everyday bc of these a-holes

[@bingsballyhoo711]

Doctors are so dismissive now. They are in such a hurry they can't even do their jobs.

[@clintandbecky7198]

1000%. It’s like a chef being in such a hurry that they half cook your food. Unacceptable for food and a billion percent unacceptable for a persons life. Doctors don’t get paid all that money to dismiss people so much.

[@truthprevails7085]

It’s just criminal.

[@kimanderson5544]

Dr.s have to play the insurance game. I feel bad for them. It makes me angry because the ins co is not my Dr.

[@chaosclarkncrew2531]

The spend less than 5 minutes with you and have already decided your treatment plan before they even see you. It’s very sad.

[@raymilland3413]

If you want to treat cancer with something that can actually work for a lot of people then go listen to Dr. Thomas Seyfried. He has many video's on KZbin. A ketogenic diet and parasite drugs can help to starve cancer cells and this treatment is good for all types of cancer because ALL cancers us glucose as fuel. Stop the glucose and throw in parasite drugs like Fenbendazole and Ivermectin and that will help starve the cancer.

[@Sasbie65]

How is it possible that no one in the medical field put her symptoms together right away to suspect lymphoma?! When you Google lymphoma, you get most of her symptoms! It's inexcusable.

[@UKS12345]

Because she was so young to get cancer

[@Sasbie65]

@@UKS12345 If that's their reason, then doctors need to get rid of that age mental block because it's endangering people's lives.

[@ATebbs1]

But doctors are taught that if you’re under the age of 50 then you can’t possibly have cancer

[@loilililllllll]

When you got highly unqualified people getting medical licenses like nurse practitioners and doctors from no name schools (makes up most of them in America other than big cities, so most parts like Michigan, etc ie rural states), it is the current state. Allowing highly trained doctors to work in America is the only solution to this problem. But of course US doctors will revolt because their share of the pie (ie salary) decreases.

[@stratcat3216]

I've been dealing with docs for many years.. never could find a thing. Now.. I have a 6" tumor growing like a weed. smh

[@dianewristen]

GOD BLESS YOU. I AM 73 AND WAS DIAGNOSED BY ACCIDENT. 2006 I HAD A FALL AND BROKE MY LEFT ARM REALLY BAD. I HAD SURGERY ON IT AND THEN WHEN I GOT HOME I COULDN'T GET A DEEP BREATH AND HAD MY HUBBY TAKE ME TO THE ER. ONE NURSE EVEN THOUGHT IT WAS PHONEY WHEN SHE TWIRLED HER FINGER AROUND THE SIDE OF HER HEAD TO ANOTHER PERSON. ANYWAY 3 DAYS IN THE HOSPITAL AND ALL THE TESTS THEY SAID I HAD A TUMOR AND NEEDED TO SEE A SURGEON. I HAD SURGERY AND THEY TOOK OUT PART OF MY ADRENAL GLAD AND THE MASS OUT AND 3 DAYS LATER THE DR. CAME TO MY ROOM AND SAID I HAD CANCER. NO ONE WITH ME...HE TALKED VERY LITTLE AND SAID THEY WOULD SET UP AN APPOINTMENT. IT WAS DLBCL AND I WENT THROUGH MONTHS OF CHEMO RCHOP. LOST MY HAIR MY HUB SHAVED IT AND THEN SHAVED HIS HEAD. AND NOW ALL THESE YEARS LATER I WANTED TO TELL YOU, I AM ALIVE AND FREE. PRAYERS ABOUND THAT YOU CONTINUE IN GOOD HEALTH

[@leegd5]

My story was the same. Nobody believed me for five months and the pain was excruciating. By the time the correct diagnosis was made I was at stage 4 and was sent home with hospice and given two weeks to live. Started chemo and radiation and continued with that regime for six months. The hair loss! Horrible! I'm still alive but the journey changed me as a human being. Grateful to be alive but so scarred psychologically that the simple events of everyday life are quite challenging. Thank you for sharing your story! It validates what I went through and that means so much.

[@theallinfamilygang7196]

What type of ca?

[@leegd5]

Non-Hodgkin's Lymphoma.

[@jamiegallier2106]

❤❤❤

[@SW-oy5zw]

They haven’t listened to me in the past couple years. Both my twin teen nephews died one right after the other of extremely rare cancers suddenly. They didn’t even have a lot of symptoms til around the time of diagnosis and death. It’s crazy because I can’t get them to do anything for me and I have so much going on (some that is visibly obvious!). They write things off as “anxiety”, “stress”, “depression”...whatever works for them I guess.

[@gregordawgbin5227]

​@@SW-oy5zwSorry to hear that. Seems so many are getting it now and am wondering what the cause could be. Do you know if they got c o vid or the vacs by chance?

[@healgrowlovecommunity8397]

Your intense night sweats were a HUGE red flag for lymphoma. It's concerning that such a classic symptom was missed. I wish you continued good health my dear.

[@azalea1404]

Night sweats, severe fatigue, and a lump on her neck!? And no lymphoma-bell was ringing in any doctor's head?! I'm not a doctor, but after hearing these symptoms NHL would be the first diagnosis that would occur in my mind. What is wrong with doctors nowadays?

[@Ceerads]

I’d ask what’s wrong with the doctors she saw. She said she’s from a small town, so I assume the hospital she went to at first might not have been the best - or the doctors weren’t.

[@godschild3640]

@@Ceerads I have stage four non-small cell lung cancer . I was on immunotherapy called. KETRUDA , IT WAS WORKING WONDERFUL, WONDERFUL FOR MY LUNG CANCER. IT WAS ALMOST DISAPPEARING THEN IT STARTED ATTACKING MY ADRENAL GLANDS IN MY UPPER KIDNEY. .. IT IS ATTACKING MY , THYROID. BEFORE ALL OF THIS HAPPENED, I HAD 21 INCHES OF THYROID TAKEN OUT, BUT THEY SAID IT WAS NOT CANCER. .. I’M ON PREDNISONE AND POTASSIUM. IF I DID NOT HAVE THEM, I WOULD GO INTO ADRENAL CRISIS AND EVERY TIME THEY LOWER THE POTASSIUM I GET VERY WEAK. . THE CANCER REALLY TOOK OFF AND FOR SOME REASON I’M SEEING IT ENTEROLOGIST TOMORROW I DON’T KNOW WHAT THAT IS BUT YESTERDAY I FORGOT TO REFILL MY POTASSIUM SO I WAS WITHOUT POTASSIUM AND I HAD PAIN IN BOTH OF MY KIDNEYS AND THEN I STARTED FILLING MY THROAT, AND NOW I HAVE TWO VERY SMALL LUMPS IN MY THROAT, BUT THEY TOOK MY THYROID OUT SO IT’S MISSING ON THAT WHITE SIDE, SO HOW COULD I HAVE A LUMP THERE? I HAVE PRESSURE ON MY SHOULDERS I SWEAT I HAVE MOVED CHANGES MY BACK HURTS REALLY BAD LIKE I WOULD LIKE TO HAVE SOMEBODY PUSH DOWN ON IT. I HAD AN INSTANT HEADACHE AND BEHIND MY NECK ON THE TWO SPOTS OF MY NECK, IT WAS REALLY PAINFUL. I HOPE THAT I DON’T HAVE IT BUT MY QUESTION IS COULD LUNG CANCER TURN INTO LYMPHOMA AND I’M REALLY SORRY FOR EVERYTHING EVERYONE ELSE IS GOING THROUGH AND I REALLY HOPE THAT YOU LIVE THE IMMUNOTHERAPY USUALLY WORKS FOR OTHER PEOPLE AND IT’S VERY RARE TO HAVE A PROBLEM, SO I WAS WONDERING MAYBE YOU COULD THINK ABOUT HAVING THAT TYPE OF IMMUNOTHERAPY BECAUSE MY CANCER WAS ALMOST WIPED OUT STAGE FOUR LUNG CANCER ALMOST ALL GONE. THERE WAS ONLY FOUR LITTLE SPOTS BUT THEN I DID NOT HAVE ANY TREATMENT FOR FOUR MONTHS AND NOW THEY’RE REALLY BIG EXCEPT FOR THE TWO LOWER ONES THEY ARE NOT MOVING, the reason why I wrote this down is to save another life that comes after me. I tried to write what I was going through to save life. Thank you for all you are doing good day.

[@mikisunshine9334]

Too busy following orders from gov. About COVID,not big on actually looking for an illness.

[@merchseller]

100%

[@ShenaWoloshen]

I was so sick for 10 months. Every time I ate i would have stomach attacks that made me vomit for days with intense stomach pain. I lost 80 lbs in that time as well. My doctor would not do any scans. He did order scopes and i got diagnosed with gastritis. I changed to a gastritis diet. Still kept getting attacks, vomiting. My bloodwork was showing iron was on the floor, potassium low as well as other. We moved across country. I went to the ER every other day, every time was a different ER doctor. Every one of them was diagnosing with something but they would prescribe me things that did not help at all. I was literally saying to them and my husband, I am slowly dying. Could barely walk because I was so week and faint. I finally went in and told my dr, look I need a CT scan and she finally agreed. Ct was ordered in ER and an hour later I had my doctor come in and tell me that they found a tumor that was very big and was causing blockage in my small bowel. An hour later I was rushed to the OR with two surgeons. Surgeon was saying it could be cancer, we might have to remove your small bowel and give you a stoma. I woke up in ICU and spent a week and a half in there. I was given TPN to get nourishment. Tube in nose to get crap out of my stomach. Two weeks later while still healing from massive surgery I was told I had Large B cell lymphoma. Why do dr’s not listen to their patients anymore? This is the third cancer I have had, 1st one cervical, then goblet cell carcinoma, massive surgery and chemo, now lymphoma, finished chemo on Dec28/23. If I relapse, honestly I don’t know if I am strong enough to do chemo again..😢 I pray for all of us cancer warriors that are fighting to live! We know our bodies and we know when something is wrong.. wishing everyone love, hope, and great results in your journeys❤

[@emmajade7434]

My daughter is 22 and has non -Hodgkins Lymphoma she got it in her spinal cord and was stage 4.She has a similar story as you no one thought her back pain was anything !! How Horrific that it came back !!! Wishing you all the best and Remission Forever ❤

[@sensimania]

Can you please explain the type of back pain, if possible? I've been having pain in my upper spine for almost a year now (on more than off). Was it a dull ache? Constant? On and off? Etc They've been dismissing my symptoms for all these months, but I've had an MRI on my spine recently (no contrast) but nothing came up

[@kaliortega8390]

I been going to doc for all kind of things and my back as well...they can't find anything.... what test did she have that led to diagnosis? I am tired all the time, I had my lymph swollen... went to urgent care and said it was an infection... 😕

[@fortyarpent]

All MD’s, it’s anxiety! All Chiropractors, it’s scoliosis!

[@mail2vw]

@@kaliortega8390their saying is…,”diagnose and adios”

[@mail2vw]

she said she had ultrasound of the neck lump and then a CT scan

[@leahcorwin2873]

I also had every symptom of a cancer and was dismissed by every doctor I saw. It wasn’t until my hip broke spontaneously and Emergency Room testing for excruciating pain, I was then diagnosed with follicular lymphoma. After being in a remission for a year I am heading back for a pet scan due to a recurrence of symptoms. Thank you for your video. I wish you continued good health. God Bless

[@ThePatientStory]

Thank you for sharing your story and for watching!

[@nomad5375]

Prayingfor you. 🙏 Dont get any more vaccines. Everyone I know who got them has cancer now.

[@donnaoleson9499]

It took 9.5 months to get diagnosed. I had huge masses on my forehead , head , and neck. I saw 2 different Dr's, a dermatologist, and finally a plastic surgeon. I was vomiting every morning , horrible night sweats , had lost 28 pounds. The masses were so painful I was eating Advil like candy. The plastic surgeon finally ordered a biopsy and it came out non Hodgkins lymphoma. After that I had a PET scan and I'm stage 4. It's not curable. I did 7 rounds of chemo and went into remission for 17 months and it is now creeping back

[@sheepseven7588]

Prayer ,give your life to the Lord He alone can help, diet change is so key lots of fresh fruits and vegetables at different meals vegetables cooked well,pure water inside and out washing off all sweat eat no free flow sugar but good homemade bread .chew,your food well. Avoid all animal products am praying for you❤❤❤ it's not over have hope in Jesus Christ talk to Him He really is there and cares for you, you can make it.

[@JessicaFletcher-nn5ss]

How are you now. God bless you xx

[@MatthiasWelwarsky]

In May 2021 I was diagnosed with a DLBCL, which is a non-Hodgkins lymphoma that is fortunately treated to cure. I had no symptoms at all. No night sweat, no fever episodes, on weight loss, nothing. Except for a lump in my right armpit. I thought nothing of it for a while, but alarmingly it didn't go away for weeks. I decided to see my doctor. He did an ultrasound of the swelling and showed me the pictures, but didn't believe it to be a swollen lymph node. But he suggested to have it removed and scheduled an appointment with a surgeon. The surgeon saw me and was immediately concerned. He wanted to do a biopsy and needed me to have an MRI of the region before. I got an appointment the next day. When the biopsy results came back, the lymphoma was confirmed. It was a shock, I was devastated. I got an appointment with the oncologist the next day and the next week was a flurry of preparations to assess my general health, have a heart ultrasound and have an appointment to have an IV port installed in my chest. R-CHOP and immune therapy started on the day the port was installed. I literally jumped off of the surgeons table and went straight into my first treatment. Fortunately, I took the therapy quite well. Of course the hair came down. But I wasn't nauseous most of the time. Just very, very tired after the immune therapy sessions, mostly for the anti-allergy medication that made me really sleepy. I continued working through all of the therapy. I literally sat on that chair, during the infusions, with my laptop, and was happily hacking away. It is something I can only recommend: Keep your mind occupied and if your health allows, keep working. It's 2024 now, obviously I'm still alive. My hair has grown back (well, some of it has), it is just white now. I'm getting checks-ups every three months still. Bloodwork, ultrasound, rinsing the port. It has not come back.

[@user-fb8uw1ui5x]

God bless you 🙏❤️🙏❤️...

[@chellyw63]

My husband was dismissed so much, I forced the issue of him being seen again....he had mantle cell lymphoma, so you definitely know your own bodies and doctors get things wrong...frequently as they are only human, sometimes you have to bang on tables and shout loud

[@loveSparklesonU]

Iodine cures cancer and keeps it away.all cancer.

[@user-oi3lt7nu8g]

Your husband is lucky he has you on his side!

[@theirishcailin333]

Yes the saying "doctors differ and patients die"

[@jch12341]

My heart goes out to her. I'm so tired of doctors dismissing symptoms, or just writing it off as anxiety.

[@chaosclarkncrew2531]

I think I have Lymphoma. I have lost over 80 lbs and in the last 10 months and been having crazy symptoms that have increased and are impeding on my life. I’m so tired it takes everything I have to get through work to come home and pass out before anything else happens and wake up feeling exhausted. I have been to so many doctors and they just dismiss my symptoms and treat me like nothing. I’m afraid it will be too late by the time I finally get a diagnosis. The worst part is I have no one, a husband who doesn’t want to hear anymore about how I feel and 3 children I do my best to hide it from. I have no family or friends. So this is gonna be super scary all alone. Thanks for letting me share, I’ve been holding that in for a while now. 🥺

[@elizabethw.454]

Praying for you ❤

[@pasaulissurezisuotas2617]

be strong and positiv as posible😘 Henrikas frrom Lithuania whants you not to bee afreid❤❤❤❤

[@jborja03]

I hope youre okay, please have it checked 😢

[@stuntcellist3338]

You’re not alone… I’m going through the exact same thing. I’m a widow and single mother of a special needs adult, and have zero support and have been completely dismissed by my doctors. I pray that people like us are heard and believed before it’s too late. 😢

[@Beautifullyfighting]

Always push and advocate! Never trust Drs!

[@lcmlcm2460]

So glad that you are okay now. My brother was diagnosed with lymphoma last year. He lost so much weight, coughing, back pain, night sweats etc. He also had stage 4. He started looking much better once he started chemotherapy. I almost never tear up but these cancer stories really get me. Thank you ❤

[@dianasandstrom5562]

It’s inexcusable that the medical staff dismiss and label women with anxiety rather than listen and PAY ATTENTION to what the patient is saying.

[@pablonosnothing.1952]

God Bless you, I was diagnosed with B cell follicular lymphoma, in September of 2022. I went to my doctor for a concussion, sent to hospital, the next day I was told what they found. No cure but treatments to live longer. Your story is a lesson that hit's home, God Bless finding out you have cancer really sucks. I went to my first oncologist visit thinking I'd be treated and it would be gone, well that's not how my cancer works. I was told I might live 7 to 10 years, the reason for the unsure life span is because they don't know how long I've had it. Your young and with the support you have hopefully you will live a mostly normal life, take care. I'm almost 70, so for me dying is coming sooner or later, you sound like a fighter, good luck GOD BLESS YOU. 🙏🙏

[@yleniaiva]

💚💚 So happy you are in remission now! I had Non Hodgkin lymphoma in my 20s too, R-EPOCH chemotherapy. I’ve been in remission and hope to stay in this way. 💚💚

[@ThePatientStory]

Thank you for watching!

[@loveSparklesonU]

Iodine keeps it away and cures all cancer.cured mine.

[@sabrinadrabing595]

Thank you for sharing! Im so glad your in remission!❤️🙏🏻🇺🇸🇦🇷

[@JonymacStudio]

18:32 Thanks so much Samantha for sharing your story. You are an inspiration to all of us NHL survivors. I especially appreciated your overview of your experience with CAR-T therapy, and how hopeful that sounds. You are amazing, strong, and now even stronger and more amazing.

[@jeanroth159]

🌹Thank you for sharing your story Samantha, your so sweet,im sorry to hear it took so long to get diagnosed, such a shame. I too was very upset about losing my hair, its ok,its like your losing a part of your identity but you are so right, we are here today and in remission and that is what matters, so thankful ! I wish you continued good health forever♥︎.

[@akashajoti6456]

Your story sounds like what I have been growing through for the last 6 months or more. Thank you for sharing!!

[@eon7125]

Sweet person..I wish you full recovery.

[@alohatvj]

I'm so happy that you are in remission 😊❤.

[@KikiC.-dx6fr]

Your attitude is incredible. I wish you a long, joyful, beautiful life filled with all things wonderful!!! ❤🎊

[@CrystalRicotta]

Thank you 🙏🏼 for sharing your story. Sending a peaceful, happy thought your way.

[@doodleacademy]

Thank you for sharing your story Samantha. By giving details about your symptoms and treatment, you are helping others. So glad to hear that you are doing well. Bless you 💛

[@ThePatientStory]

Thank you for watching! ❤️

[@brooks6348]

Best wishes for continued good health!

[@nauidiver4649]

I loved your video. Congratulations on winning the battle with cancer. I had cancer and I understand that dealing with the same treatment for a second time is so much harder especially mentally. I admire your courage to get through everything you did.

[@JConnorJohnson]

I have all these symptoms and don’t wanna go in because my symptoms are always dismissed. Night sweats, extreme fatigue, my chest hurts, coughing up blood, and my glands hurt, and I can barely walk all my joints hurt. I’ve spent so much money just to be told nothings wrong. Everyone around me is worried and I know somethings wrong. I don’t feel I can trust the er anymore

[@Polymerclayabkery]

Please go in and get checked. I don’t know what health plan you are under but I would try to avoid the ER at all costs and instead try to schedule an appointment with a doctor (not an ER doctor). I wish you well.

[@Alexander-vl1lg]

You are coughing up blood and they aren't worried??

[@cathytauscher6760]

Emotions regarding hair loss in the moment IS a big deal. I work with stem cell transplant patients and for those patients who haven’t lost their hair through treatment (like Multiple Myeloma patients) I start talking about hair loss at our first appointment. CAR-T can be AMAZING for patients with DLBCL! So happy for you😊

[@vivaciousom5347]

Diffuse large B cell lymphoma (DLBCL) is a cancer of B lymphocytes. I had to look this abbreviation up.

[@carissafisher7514]

My heart goes out to you ! ❤❤❤

[@Lisa_BisaRN]

❤ She's so inspiring.

[@johnmcmaster1630]

Thank you for sharing. I will have a positive thought for you. SO brave.

[@user-uj2hm2mt5i]

How frustrating for this young lady. We know our bodies and doctors should do thorough tests regardless. Its all about the money and rush rush. Hope she enjoys life now after such a difficult ordeal. Keep going girl you have got this😊❤

[@ATebbs1]

I agree. It’s also about age though, if a person is under the age of 50 doctors don’t think it’s cancer and won’t test for it

[@Katie-vy5rd]

Wow.. I cant believe night sweat, trouble swallowing lymphadenopathy, wasn't enough to raise gigantic red flags. Proud of you for saying the diagnosis to them! Good job!!! 😊 hope you're healing well, xo cute 🐶 doggo

[@asutoshpanda7998]

I am a diffuse B cell non hogkin lymphoma patient. My chemotherapy is going on. Thank you very much for your detailed information

[@tracymcgrath1192]

Beautiful soul ❤ I hope you stay healthy 🙏👏🏻

[@lornamcallister8374]

So happy you are doing well ❤ My husband was recently diagnozed with same. He will start chemo January 15..6 rounds. Wishing you all the best from Canada 🇨🇦

[@justiceforall5043]

How ironic, my birthday was yesterday, January the 15th. I hope your husband go through this soon, it’s painful and exhausting at times, but it’ll go away good diet and good rest will help a lot. I also have non Hodgkin cell -b lymphoma and going through the 3rd treatment. Don’t loose your faith, he is going to be fine! My prayers for him and all those who suffer from this disease,🙏🏻

[@lornamcallister8374]

@justiceforall5043 OMG that's my bday also!!

[@lornamcallister8374]

@justiceforall5043 Thanks so much for the kind words. He's drinking lots of water and eating healthy...getting fresh air. He's had no side effects yet and Tues was 6 hrs and Mon 4

[@user-dy9ux8sf7i]

You are so sweet! And brag!this is helping others

[@momsmushroomsjodyfoster5786]

Your head is honestly so darn cute! It’s beautiful actually

[@michaelgregory1013]

Wow… extremely courageous.. you go girl! GOBlue!

[@suziedennis]

I feel like people have to diagnose themselves these days. If you have to go back to the dr a second visit, they should think,”okay. Let’s figure this out.” Instead they rush you out again and again.

[@myobmyob2215]

Do what you can order labs once a year, get your own tests done if you can. If need a doctor to see a doctor to see a doctor to see a specialist who does test and wait months its probably gonna be too late. Have buried more fam and friends in the past 6 years all from too late C dx than all the decades before.

[@TheTrailDancer]

You're amazing! Really!

[@splash6427]

🙏❤️🙏 For You Always & Forever

[@maureenobrien9815]

They speculatively diagnosis us while the real problem gets worse. Impressionism is great in art. Deadly in medicine.

[@deewagner4999]

Drs and health care has gone down the hill.i cannot believe they sent you home without checking it all out. I don’t know if it’s the insurance companies or our lousy government . I am so glad you are better. You are right you have to be your own advocate

[@patricialavallee8286]

The good ones bailed when compliance set in

[@somewhereinthemidwest9827]

Insurance companies and our government decide who lives and who dies.

[@inesbarros3847]

This is surreal. Can’t believe not a single doctor took her seriously up until so late. Revolting.

[@MrNatural-fq1tq]

Thank you for your story. I have the same starting symptoms as you did with a dull ache over my heart area that comes and goes with physical exercise intensity or emotional stress. I get night sweats sometimes but not drenching except for a wet tee shirt with no fever. Last week I started to get a ache in my upper back and now starting to get neck pain. My lymph nodes in my neck got a little swollen but not much. All the time the doctors want to rule everything out before they think of the lymphoma. It is frustrating. I tell them the same symptoms over and over again but like her, they think it might be my heart or acid reflux. I am scheduled to a thoracic CT scan at end of March. Hopefully, I can get a diagnosis from that.

[@SW-oy5zw]

I’ve had something going on for at least a couple years now. Now I have lumps popping up everywhere. I always get dismissed. They always assume “anxiety”. 🙄 I have thyroid tumors and a visible hard lump on my forehead and in salivary gland. 🙄 It makes you want to give up every time you try trusting a doc to help you.

[@janereinhardt4715]

That was the exact cancer diagnosis that my dad had! He was in remission for about 7 years in between his 1st and 2nd recurrence. I was his full time caregiver.

[@tericlrk2935]

Prayers

[@tericlrk2935]

Been there doctors always discredit women with symptoms it's easier to give someone a pill and send them home..I'm Sorry this happened to you...Glad your doing better

[@30daysorless8]

Every time a women experiences something doctors or so fast to say its all in their head. I though this was only being done to women of color, I see it’s all women. We know when something is physically wrong with us it’s not all in our head. This is so disgusting! This young women should not have to had suffer like she did.

[@DAVIDSMITH-kj8di]

It happens to men too. I had to go to the emergency room to get my diagnosis.

[@imanollaynez2950]

Not only woman. Men too. It’s happened to me. Doctors have told me “you’re young. It’s anxiety.”.

[@leonreed5279]

I got so much from that. I'm 48 and relatively young to be symptomatic with the cancer IGM paraprotein they've found in my blood. I had to fight quite hard medically to get to the haematology part of the process. I've lost a third of my teeth over 2023, i went down to 50kg, I have anaemia, D, D3 deficiencies became prediabetic and my knee compressed and I now need a stick to walk all early 2024. They are not sure if I have myeloma or lymphoma at this stage. I like you was until recently literally soaked at night my whole body would rain 😅 in the end I used to have a change of bed clothes ready for the middle of the night. I'm pleased you got to your diagnosis, had your treatment and are now in remission. I hope your time with death improves your time with life. Ps I will take your advice on the social media. I'm not sharing my diagnosis much at the moment till I have a prognosis. I told my parents and a few friends. Till then it's a scary thing to deal with on your own. It seems like a good place to get listening support until it becomes more public knowledge.

[@sharongreenberg4953]

I was lucky and had abdominal pain. The doctor sent me for a CAT scan the same day. I got a call that afternoon with the NHL diagnosis. Sorry you didn't get a CAT scan right away.

[@user-jt1od3oj8j]

I'm so sad you were not treated & diagonised properly at the outset.

[@dkasper3267]

Anxiety anxiety, everything is anxiety for women. I'm so tired of hearing this.

[@tericlrk2935]

That or your depressed

[@luv2learn995]

Wow. Unreal they brush off everything.

[@lenaturner5842]

You are beautiful and also beautiful without hair. My sister had same thing. Cancer free fir 4 yrs now.

[@sedhumadhavann3292]

God bless you

[@sillabaez]

Every doctor I’ve seen has said I have anxiety but I don’t feel normal, always in pain, swollen gland for over a year, night sweat, fainting , anemia. Every time i bring up biopsy they say your lymph nodes that are swollen are not big enough for concern.. I just want peace of mind please just please order the test. It won’t cost the doctors a penny.. it’s just heart breaking honestly, so many people lose their lives due to medical “professional” misdiagnosis.. I still haven’t found a doctor that really cares

[@elainerobertson1988]

Yesterday I was diagnosed with CLL and MGUS. Over the last 2 months I have developed neuropathy and hand and arm weakness. I quoted a specialist that I watched on KZbin to my Consultant about the possibility of MGNS - oh, you’re right - I’ll refer you to Neurology. Lesson - get as much information as you can from reputable sources - this was a Professor in haem/oncology and advocate for yourself - U.K.

[@slevinlindsay3624]

I go to a public eye hospital and the doctor is so dismissive to the extent that he gets irritated when i ask about my own condition. Its like they want to control the narrative or something. Also, its like trying to get water out of a stone when trying to get information about my condition. I have to prompt the conversation and like i said, he gets annoyed when i do. I know it's a public eye hospital but that doesn't mean your service has to be so low.

[@DAVIDSMITH-kj8di]

I don't know what a public eye hospital is, but you should find a different provider. You don't deserve to be treated that way by any doctor.

[@slevinlindsay3624]

@@DAVIDSMITH-kj8di government funded with very little out-of-pocket. The opposite of this would be a private specialist where you pay quite a lot more out-of-pocket.

[@DReardon-hq2vb]

Why is it that EVERY time I hear about cancer these days, online or in one of my friends or family, EVERY SINGLE ONE is a story of medical diagnosis incompetence and failure. Every single one. WTF with US medicine? Not only is it slow and overpriced, now it's 3rd world country incompetent. It's disgusting. HOLD THESE DOCTORS ACCOUNTABLE!!

[@myobmyob2215]

100 percent doesnt matter if it's no ins govt ins the VA they have lost it, it's intentional.

[@ingridmorris5691]

I'm going through the medical gaslighting now...disgusting. An ultrasound showed liver lesion. CT say no. US say I have a kidney mass. CT says no. CT says dilated pancreas, intra and extra hepatic bile ducts also dilated. CT says no tumors. I have pain, profuse night sweats, weight loss, nausea. They have no clue what's going on. My Doc doesnt take me seriously so this has been going on for a year already.

[@justiceforall5043]

They need to order a pet scan and MRI to detect any kind of cancer that I suspect you have. Keep on fighting and give your doctors a big pressure to order this scans, because they are the best on detecting cancer, CT scans are ok, but MRI and pet scans are the ultimate solution for the detection of any cancer you have , no matter how deep they high in your body. You also mention to your doctor about bone marrow tests and biopsies on the part of the body that it’s causing you the pain. I have all this tests myself and now I am on my third round of chemo. But thanks to all those tests more than anything. I hope you take action. Good luck to you! You’re on my prayers🙏🏻

[@leannehogan918]

You look great without hair!!

[@momsmushroomsjodyfoster5786]

Is there a specific test I can request to see if I have this? I have chronic fatigue and drenching night sweats that came out of no where!! Plz God help

[@roselucht4583]

I had a mammogram and they found I have right side invasive lobular breast cancer. I have a double mastectomy with immediate reconstruction set up for June 19th. The CT scan showed I had enlarged lymph nodes in multiple areas of my retroperitoneal upper and lower right abdomen. The Biopsy showed I have B- Cell Non Hodgkins Lymphoma. I have had so many tests, and scans . Monday I see my Oncologist again and have more blood drawn and find out the next step. He told me he would be ordering a bone marrow biopsy.

[@keithmarshall8478]

Hi my friend i was diagnosed with low grade non hodgkins lymphoma in December 2018 and started my chemo in January 2019 and had 8 lots of chemo every 3 weeks apart then i had to have two years maintenance treatment with rituxamab

[@justiceforall5043]

How are you coping with Rituximab ? It’s very strong and can cause bad reactions, but if you’re tolerating it, I guess is ok.

[@keithmarshall8478]

@@justiceforall5043 I've managed all my treatment fairly well but definitely don't have the energy levels i had before all the treatment started

[@clintandbecky7198]

Did your blood work get taken during those early doctor visits?

[@giovanna-mk5hd]

I have non Hodgkin lymphoma too, just wanted to ask clarification from the video as English is not my mother tongue. Which is exactly the name of the chemotherapy you’ve done? R-chop? Where you always spending more days in the hospital for the infusions? Because here in Italy where I am treated I go only for the infusion and then go back home, and I’m a bit scared about my immune system depression and the risk to get sick which could prevent me to proceed with the treatments in good timing. Btw, I’ve also started with chest pain as first symptom..

[@zachrodriguez9585]

It took about 5 months and numerous tests and trips to urgent care and ER to be taken seriously. My primary care doctor helped, but I knew something was wrong. Diffuse large B cell is a tricky one and depends if it is the aggressive form or the gbc form.

[@momsmushroomsjodyfoster5786]

I’ve been pouring sweat every single night for months! Every thing has been checked and looked at with zero answers!

[@PSYCHICVIBES]

I been pouring sweat 5 years heart racing palpitations bone pain fatigue and syncope just to name a few. I expect to pass away at any time! Maybe I will get answers then!😂

[@momingermany1084]

I have had all the symptoms for 3 years except night sweats. Could it still be it? I have difficulty swallowing, large lymph nodes, itchy skin, tired, and chest pain.

[@BlueDude-cf9mk]

You never went to the hospital for it? This disease could kill you. Get it checked out.

[@lesleymelendez5554]

I'm furious for how you were treated. I always say to drs " what would you do for me if I was your mom or your wife?" Put them on the spot. Never accept their drivel if you feel sus

[@AnneMarieBibby1966]

🙏

[@dindu42]

What was the test which finally diagnosed the condition- I am going through the same and it’s a nightmare

[@elizabethw.454]

Prayers for you ❤

[@michelecapriotti4412]

I believe she said she had her lymph node in her imaged with ultrasound which then led to the CT scan.

[@bartofilms]

This is medicine in the USA now…. If they had run the tests and done the scans earlier, the cancer could have been treated at stage 1,2 or 3. Difficult to sue these physicians and health care providers, but if you have not consulted a malpractice attorney, maybe you should. Don’t forget that the worse the stage, the more drugs and treatments they can bill for. It is sick, what’s happening in the USA now. I wish you well in your journey to complete recovery.

[@US_ARMY_RETIRED]

Your story explains why I have a DNR. I fired all doctors and blocked their numbers. Hospitals are bankrupt.

[@marybethwhitt8469]

Currently in the process of im not even sure what you would call it, and had my ultrasound a couple days ago. But on a Friday, so have to wait till the week for my doctor to call. They sent a small "note" from the ultrasound, and from what I am reading I am pretty sure they will have to do more tests. I have so many of the symptoms and have been freaking out :( I know no matter what I will be okay, but I really hate not knowing.

[@BlueDude-cf9mk]

Yeah I referred myself to the ENT doctor when I found a mass on my neck. They didn't think it was cancer at first. I had to advocate for myself to get a biopsy. It was DLBCL. It's sad but we have to be our strongest advocates. Doctors are supposed to be experts. They are very knowledgeable but they are human and can be wrong sometimes. A lot of them are overworked but that's no excuse for them dismissing symptoms. Speak up for yourselves.

[@21m455]

Why do ppl not go to their doctor and ask to be referred for an MRI or CT after the second visit needed, this awful having to wait this long , glad your finally in remission ❤

[@JuanDiazSilvermyst]

I went to the ER 7 times and they finally did a CT scan but never an MRI. I asked for it and they dismissed me and said it was probably anxiety. I'll be 5 months and I'm still sick and getting worse.... I have to wait for my appointments.

[@21m455]

@@JuanDiazSilvermyst god this is terrible, you should go to another hospital or doctor

[@JuanDiazSilvermyst]

@@21m455 I had a 2nd opinion in Chicago but since I'm a new patient, I have to wait months for an appointment. I had one for July but the doctor canceled the appointment. It's a struggle 😭😭

[@21m455]

@@JuanDiazSilvermyst this is terrible for you, I'm praying 🙏 everything goes well ❤

[@DAVIDSMITH-kj8di]

@@JuanDiazSilvermyst Push them. Go to other doctors. Sadly, you have to be your own biggest advocate when it comes to your own health.

[@DAVIDSMITH-kj8di]

Unless you have a minor infection, scrape or bruise urgent care clinics are useless. There are no doctors, just nurses. And, if you are lucky, a physician assistant, Whatever that even is. I had to go to the emergency room to get my diagnosis. Luckily I have top tier insurance.

[@mariateresastella2019]

Sintomi erano tipici del linfoma, ma che medici ha consultato? Le hanno fatto fare le analisi del sangue?

[@sallymccoy6286]

I'm sorry you were constantly dismissed by the dr's about your Lymphoma. I recently ended up in a hospital er with electrical shakes. I am a past encephalitis patient. My symptoms were the same this time. 3 hours later when the dr finally came in I informed the dr. About my history of encephalitis, he automatically stated you don't have encephalitis. No blood tests, urine tests, ct scan of my brain. He gave me a pill for anxiety. I waited another 3 hours. I hadn't been called back. So I finally left. I slept 2 days straight. The moral of my story is to demand tests. Especially when you feel that something is definitely wrong. I am happy your treatments put you in remission. You are a cancer Warrior.😢❤️‍🩹🙏🏼💪🏾😷☣️✝️🎗🎗🥊🥊

[@retiredafce3373]

Every one of these stories have the same response from Doctors. They really don’t care!!

[@michellelawrence1992]

I don't get it. Like why TF are they doctors to begin with??

[@retiredafce3373]

@@michellelawrence1992 exactly!

[@DAVIDSMITH-kj8di]

@@michellelawrence1992 Money. Some of them do care though.

[@Ceerads]

My breast surgeon at Sloan-Kettering certainly cared and cares. Don’t tarnish all doctors with the same brush.

[@retiredafce3373]

@@Ceerads thankfully you got a good one. What about all the others who died because their Doctors didn’t pay attention or didn’t care? Going in multiple times for the same symptoms for over a year just so your Doctor gaslights you and when they actually find out, it’s too damn late!!

[@rachaelrehm6681]

I'm worried I may have this. I've had none stop itching all over for 7 months, got small nodules, swollen soft lumps in neck, dry cough for 5 months, night sweats, breathlessness, lost 2 and a half stone in 7 weeks and painful muscles 😳 would Lyphoma show up on a full blood count ?

[@giovanna-mk5hd]

Better to make a TC as well together with blood analysis

[@rachaelrehm6681]

@giovanna-mk5hd my GP said my full blood count was normal. But I do have a positive ANA "" antinuclear antibodies. So I've been sent for urgent scans and camara starting next week. Thank you for your reply and thank you for your video. I hope ur ok now x

[@MrRobkina]

No blood labs? Wow

[@donnastiles9992]

That is exactly what happened to me, I found it not my doctor it was hard. No one would listen.

[@brigitnunez6735]

I think Doctor need to be held accountable for there poor diagnostic skills. This nas gotten out of hand. It's time thinks changed. If they can't do their jobs they need to leave the job, that's what happens in every other profession. Enough is enough already

[@OurRVTinyHome]

Doctors are on a power trip anymore Im so sorry for this ❤

[@whyme007]

Was she diagnosed withdouble/triple hit or double expressor sub-type of DLBCL? Its not clear in the video. Please clarify. Since she relapsed, Im curious.

[@justincheney2925]

Doctors are hopeless now , I’m not sure what happened all of a sudden 😫

[@elizabethforsyth3054]

the night sweats should have been obvious to the medical people....

[@Ceerads]

I’m no medical professional, but even I know that a swollen lymph node in the neck and night sweats can be symptoms of a lymphoma. And I’d never trust any doctor who recommended going to a chiropractor. And to not have given you nausea meds post each infusion (or right before) is very surprising.

[@algorasm2565]

Doctors: "it's nothing, but come back in 6 months for a follow up" Also Doctors: "if you would have gotten here sooner" 😳

[@graceinguelph]

It seems to me we are expected to diagnose ourselves through google then provide the information to the physician so they can order tests and get paid

[@pulldpin67]

Hang in there... and M GO BLUE.