I'm deaf: Hemifacial Microsomia

I hope this video covers just about everything that you might want to know about my condition. If you have any other questions, don't hesitate to ask!
Source:
National Institute of Dental and Craniofacial Research
www.nidcr.nih....
Find me on these other sites:
/ xalrena
/ xalrena
/ xalrena
linktr.ee/xalrena
Intro/Outro Music:
~Track 5 [Swimming While It Rains] from Fastfall (Dustforce Soundtrack): Music by Lifeformed. Available at lifeformed.ban...

[@Lexington-Concord1775]

Thank you for sharing your story ! 👍

[@Underournorthernstar]

First time i've heard of this condition honestly, you carry it well and seem happy from the short time I stopped by your twitch and youtube. As somebody who has had problems lifelong with my health it's always nice to listen to other people talk about their difficulties and experiences. Videos like these are crucial in my opinion especially for younger people who are trying to understand their condition, it's very easy to get stuck in a hole of self pity but I advise everybody to enjoy what they like and never worry about what other people think. Everybody is unique. Respect.

[@xalrena]

I hope somebody finds some peace by watching this video

[@zhesion7036]

Well this was fascinating. Thanks for sharing your experiences with us. I look forwards to more episodes of SLP!

[@Based_Shogun]

Super interesting learning about all of this! Thanks for sharing.

[@xalrena]

Thank you for listening :)

[@devili7y585]

Very interesting video !! Thank you for taking the time to explain all of this ! I know it can be scary to open up like that but its good that you felt comfy enough to do it :D Thank you for trusting us, for sharing your story and thank you for your great content !! Looking forward to more Stereo Listening reactions !!

[@PhilosopherThom]

I have it as part of Goldenhar syndrome (which also comes with spine stuff, and my left arm). I also have it on the left. Thoguh i am only deaf on my left. They found the geonome 2 years ago. So we can be tested for it to see if any children might get it.

[@punkrockgalbenevenelse3659]

Honestly i dont give a f*** what's wrong or right with your face or your voice or your ears or whatever.. you're beautiful you're smart you enjoy good f****** music.. I bet you're a DREAM to chill with & talk to in person! Be you! You're BEAUTIFUL 🤘😊

[@PhilosopherThom]

I'd really be intrested in talking tonyounanout your experience I've never talked to adults who have the same thing as me (Ive spoken to a lot of parents and kids)

[@bhargavinaidupuppala]

Can I see a picture of u when u were newborn....because I have newborn seeming like having HFM

[@aronob]

Take newborn to a doctor 🤦‍♂️

[@PhilosopherThom]

Don't you have a BAHA hearing aid?