thanks guys, another helpful and timely video for me! I'm starting to finally to feel a significant uplift out of a massive relapse I had in 2019....things that were really good reminders....not letting go of the things that support my recovery too soon, as in not getting carried away with my enthusiasm to be well...not hurrying recovery but accepting where I am today and waiting for the space to open for me to incorporate the recovery practices I feel would help...boundaries....people pleasing
@JaneDoe-zw6cm4 ай бұрын
It's nice to hear from people who're still on the journey to recovery. I would also love to hear some more FULLY recovered and back to work, sports, life etc. stories though!
@pradyumnnahata96654 ай бұрын
@@charlesfuchsRAELAN!!!! can you ban this guy from the channel? Not for censorship. But he is very unkind and kind of an unlikeable joker in the comments. Downing everyone’s energy. Probably gonna reply to this with “sheep” or something. LOL.
@drew26854 ай бұрын
There are lots of awesome videos on this channel that tell this story! They helped me get back to running as much as I want each week in the mountains and back to full time construction and rock climbing. Recovery can be slow but I think I am stronger than I was before I was ill and have many more skills like the guest mentions in this video. It’s a blessing in disguise
@JaneDoe-zw6cm4 ай бұрын
@@drew2685 Amazing, congratulations! Mountains and climbing are what I miss most. Are you going to do a video yourself??
@TimMurphy414 ай бұрын
He mentioned that stopping low dose naltrexone (which he said was helping him) coincided with his relapse. Seems like an important detail.
@paulatim2054 ай бұрын
Long COVID forced me to put myself FIRST: self-care, nutrition (all domains), pacing, boundaries. There was no other option. A silver lining!❤
@markplane45814 ай бұрын
I'm at the point you're describing this very morning, thanks for a very timely video. It's so frustrating, but you have to learn to love your fate and embrace it, it's the only path out.
@raeknightlyauthor4 ай бұрын
Hi, Vancouver neighbour! 🇨🇦Thanks for sharing your experience. I’m also seeing slow progress with pacing and LDN.
@gerridalton13454 ай бұрын
Thank you Raelan and Dermot ☘️.When I saw the cap I knew you were a Paddy 💚 Dermot I am originally from Ireland and having lived here in Canada now for almost Fifty years One may adapt to the new country in many ways .But for some or alot of us our country of heritage still leaves a strong imprint in our personality . Now a retired nurse and after so many years of shift work and on call with a lot of responsibility placed on me became of my choice of work environment. I got very worn out and did not listen to my body ..I believe it was a precursor for me getting so Ill with Covid plus a few more factors. I find the boundaries issues is one of the hardest to enforce. As us Irish are very sociable people.We love to make people feel welcome.Its just who we are as a people.😊 I am still going through Long Covid since Spring 2024 😞But I am improving...I believe pacing is one of the most important aspects to this illness. Saying No to people and certain situations is of upmost importance.I am also finding others things that are helping me...Its a very personal journey as you have mentioned. Be kind to Thanking you for sharing your experience all the best with a full recovery.🙏 Blessings to you your wife and your expected baby. Gerri on Vancouver Island ☘️🙏☕
@gerridalton13454 ай бұрын
Oops .I meant to say ..Be kind to yourself Dermot.Look after the Mrs.😊
@pamdenman2544 ай бұрын
Always be yourself, because everyone else is already taken!
@jog52894 ай бұрын
Thank you, Raelan and Dermot. 😊 I'm on Low Dose Naltrexone too and it's helped the daily headaches and brain fog, which has been great, but it's only very, very, minimally helped with energy for me, of course we are all different. All the best Dermot, especially with the arrival of your precious little baby. I hope your energy returns to it's fullest soon. Blessings to all. ❤
@Truerealism7474 ай бұрын
It's. Helped my fatigue but doesn't help my chronic muscle tension
@Truerealism7474 ай бұрын
@@charlesfuchs ldn does help but not cure
@lianpeet35024 ай бұрын
Loved this, a gentle walk together through the journey and not a monologue of sickness. (I hope i can do that when i finally come on!!Though nerves might make that harder.) Yes, make stickers and t-shirts and sell Raelan merch! Haha. Also Dermot, try to actively envison a wonderful time with your baby and wife and try to interrupt the catastrophising thoughts. Instead of what if...negative, think what if...positive. in fact, imagine the best possible outcomes and imagine them in detail regularly. This is brain retraining. And can we stop using the word 'selfish'? It's not selfish to show self-compassion or self-kindness, place healthy boundaries, or use our voice to speak ❤
@mariannehenderson54734 ай бұрын
I love the honesty and straight forward way Dermot talks with a flavour of humor. Hope you find a way to consider the special moments and bond you will have with your baby, getting to know this little bundle of love!
@rachaels65382 ай бұрын
“When it comes to disappointing someone else or disappointing yourself it has to be that other person’” so good!
@RaelanAgle2 ай бұрын
❤️ ❤️ ❤️
@regina68384 ай бұрын
Lots of takeaways. Thankyou. I wish he'd mentioned what kind of breathwork. Because I feel there are so many kinds and each with different objectives even opposite purposes. Thanks for the links.
@legohouse48194 ай бұрын
Really great interview. Something that comes to mind is that the 'what if' thinking is going to cause anxiety which may not help
@CodStars12314 ай бұрын
another brilliant interview thanks Raelen. your channel is my therapy. 😍
@RaelanAgle4 ай бұрын
You're so kind, Liz! ❤️ ❤️
@timmyschannel53 ай бұрын
Having an amazing wife to remind me of my imorovments out of long covid kept me motivated. Im so unbelievably grateful
@donna258714 ай бұрын
Low Dose Naltrexone is also part of my recovery plan but it’s been very helpful it that it’s brought my inflammation markers back towards normal range. I’ve been on it for a couple of months and I’m feeling the benefits of waking more refreshed in the morning. It’s only one piece of the jigsaw puzzle.
@Truerealism7474 ай бұрын
So true do you have much chronic muscle pain it hasn't helped with that
@monnica-cq4yc4 ай бұрын
@@Truerealism747 LDN is a powerful tool but it doesnt address the cause of the pain - the cause is still the brain generating it - it can bring the inflammation down and put you in a nice place to then do more work with the brain and its learnt patterns
@cobyp7652Ай бұрын
Raelyn dropped the F Bomb at 15:40 lol. Nice one
@AnrupB4 ай бұрын
Omg send me the files and I will edit it to make that video of everyone saying they learned a lot and wouldn’t trade the experience!! ❤❤❤ Will email you!
@rachaels65382 ай бұрын
LDN was a game changer for me. If you’re considering trying it, do it!
@francescam.69994 ай бұрын
It is normal to worry. You can do it with the baby. I have experience with a very small child and cfs. I learned a lot of parenting things much faster, because I had to. And because of it we have a very harmonic beautiful relationship.
@IronicUseOfElectrons4 ай бұрын
I'm still on my journey but breathwork, recovery stories, yoga nidra, and self compassion appear to be very promising.
@efi49304 ай бұрын
THANK YOU 🌸
@timmyschannel53 ай бұрын
Takes about 6 months for ldn to work properly , it works on the opiod receptors in the brain
@nejamieson4 ай бұрын
Thanks
@RaelanAgle4 ай бұрын
Thanks so much for supporting the channel, Nancy! ❤️ ❤️
@gtessgossage38674 ай бұрын
Had to smile. In several US states there's an ongoing phenomenon known as "midwest nice": polite, extremely friendly to strangers.
@gtessgossage38674 ай бұрын
As related to setting boundaries
@evelinel.98274 ай бұрын
Lots of repressed anger and conflict avoidance with this that needs to be addressed. I was like this plus a people pleaser and I had to lots of work feeling the repressed anger and processing it, work on toxic shame, and becoming empowered (and feeling good enough) with good boundaries.
@kala99074 ай бұрын
Makes you wonder if you can try to catch CFS early or you have to let it take its course hmm
@XMagiX214 ай бұрын
I have thought about this. I think everybody has to go through the stages of shock/confusion/fear, anger/ grief, acceptance, before going towards recovering - maybe these stages are actually all a part of recovery itself. Maybe one can try to go through them quicker by gathering a lot of knowledge, but go through them, you will.
@richasharma62714 ай бұрын
How much is low dose Naltrexone?My doctor doesn't prescribe it.
@jog52894 ай бұрын
Hi there. In NZ, LDN costs $100, for a 3 mths supply of 4.5mg capsules, from a Compounding Pharmacy. My Functional and Integrative Dr prescribes it for me and recommends the LDN Research Trust website for good information about LDN. I don't know if you can get LDN cheaper elsewhere, but there are a list of prescribers for various countries on the website, and the lady who runs the website is very helpful if you need more help. Most conventional doctors don't know about LDN; it's mainly used by alternative practitioners. (Originally titrating the dose up was quite expensive for me, as it was prescribed in a tonne of 0.5mg capsules, but once I was on the full dose my Dr recommended, it was the price I said above.) I hope that helps. All the best.😊
@rachaels65382 ай бұрын
I’m in New Zealand and my dr prescribes me 3 x 50 mg tablets for around $30 NZD. I split them in half and then dissolve 1/2 in 25 mgs of distilled water, store in the fridge and syringe up 1.5 mgs a night. I started on 0.5 mgs. And increased by 0.5 every week or two. 2 mgs was too much for me. Everyone has their own sweet spot with the dose so it’s about experimenting to find yours. Hope this helps someone
@rachaels65382 ай бұрын
@@jog5289can I ask who your functional and integrative Dr is? I’m in NZ too and was looking into finding one. Also, read my reply to the comment this thread is for to see a potentially cheaper way of using LDN if you’re interested
@jog52892 ай бұрын
@@rachaels6538 Hi Rachael. That's interesting. Don't you take it orally? Sorry, I'm a bit confused about the syringe.. Can I please ask what benefits you received from it? Thank you. Jo. NZ.
@rachaels65382 ай бұрын
@@jog5289 Sure, I squirt it into my mouth using the syringe and wash it down with a bit of water so no needle used. For me the biggest thing is that I never, ever have the crashes that I used to have since being on it. My body feels more robust and resilient. It's like it has provided fortification. I still experience PEM but never to the point where I am taken out for days or weeks at a time so I have been able to gradually increase my physical movement. I have more energy on it. Originally it aggravated my sleep a bit but that went away in a matter of weeks and now I sleep better. I had to play around with the dose and time of day I take it. I settled on taking it at 8.30 pm. I just generally feel soooo much better on it.