😝 I THREW UP MY FEEDING TUBE FORMULA! (4.30.17)

[@Dungeonfreak]

Gotta love chronic fatigue, naps are necessary but often don't make you feel better. I stayed up until nearly 4am watching your livestream (I'm paying for it now)

[@chloethomas4425]

Mary, you're such a fighter. I admire you so much.

[@jenjenmit1]

today I felt like giving up, but I remembered "Do what you think you can't do" and that kept me going today. you guys are very inspirational❤

[@cherylreilly5244]

I am dealing with several chronic illness and watching you is so uplifting! I have a strong faith in God and seeing others with such faith is joyful. you are in my prayers.

[@karenbonham1359]

Cheryl Reilly God Bless you!

[@madison8568]

So the reason you may have threw up formula is because you should be sleeping at, an at least 30 degree incline to prevent reflux and backing up of formula into your stomach when you are sleeping. Never stay flat when sleeping because the gravity can cause issues and even aspirate into you lungs. Just a recommendation to help you keep your feeds down and prevent problems. Even with a J tube it is necessary. I have had an NJ for 4 months nows and they always told me sleep sitting up

[@oneseeker2]

I have been saying that, and w/meds, food, fluids. Aspiration is a serious concern! Why hasn't her medical team educated her on that! Sometimes a person has to sit up more than 30degrees. Maybe she will listen to you

[@jessnic8886]

That's exactly what I have to do too! Never sleep flat on your back! I have to prop my bed up with lots of pillows for when I do the fuel overnight; it will help I have had no problems:)

[@puppielove591]

I have extreme GERD cause of a hiatal hernia and I actually have a wedge pillow to prevent reflux. I sleep at 45 degrees every night. took some getting used too but now I cant sleep without it

[@saraharminta]

Sharon J, I had to stop and reread your comment to make sure I wasn't seeing things. Wow. That was extremely rude and uncalled for. It's frankly none of your business what medical information she conveys to him.

[@cupcake5309]

Sharon J she could have just wanted fresh air after getting sick and to get ollie to check if she was low, how rude can you be.

[@cayleasavage624]

Keep strong Mary. And Peter keep helping Mary she needs you. You all are so amazing and strong. Remember God has got you.

[@lillsjul]

I had outpatient surgery today, and am home recovering.... it's nice to have a buddy - you Mary :)

[@ellahardy8832]

Oh no!! I just saw the title - I hope your feeling better soon Mary! x

[@lauragadille3384]

I'm walking on June 10, 2017. I got my tee shirt and I'm excited. I got an A on my research paper on CF. This is so awesome!!!! 🙌🙌🙌🙌🙌

[@natalieh5843]

Laura Gadille Wow! That's amazing! 👍🏼

[@rebeccamoon5766]

Laura Gadille awesome! congratulations!

[@jessicageraci6846]

Laura Gadille congrats!

[@lauragadille3384]

Tu

[@nicktheveganchick]

Laura Gadille That's great!

[@2listening1]

Oh, Mary, I didn't know that was possible either! When I don't know whether to laugh or cry, I usually end up doing both at the same time...."PERFECT!"" :/

[@moshtasticNews]

You're so strong Mary and honestly such an inspiration to me to keep going through everything a day at a time( also Ollie always makes me smile)

[@ambermilsap5644]

I'm sorry that you're not feeling well Mary! I hope that you get well soon. I'm sorry about the plants as well. I love cuddling up with my service dog and watching my favorite KZbin family! Sending spoons!!!

[@fralinsandfriends]

I'm so glad you got to meet your new nephew yesterday. You take care of you now. I hope those lidocaine patches do a good job. You guys are wonderful.

[@missreb3lness834]

do a special cf painting like last year but auction it off for cf im sure that would be fun and raise loads everyone loves your paintings and this one coukd be exclusive piece ;)

[@EmilysLifeOnWheels]

feel better soon mary Hope tomorrow is better

[@lisarowlands8002]

Emily Bottinick iiii

[@kathygarrison3785]

Congratulations on meeting your goal for the Great Strides CF Fundraiser.

[@AlittleSprite]

Hi guys. I'm a new subscriber. I like watching your videos because I really identify with what you are going through in a fashion. My husband has had terminal heart disease since he was a teenager. it was brought on by two lots of leukaemia he had when a child and the chemotherapy drugs they used back then. Against all odds, and living on the streets, we eventually met and pretty much were a couple that very minute :) Just two years ago, with only months to live he received the greatest gift. Someone had ticked "yes" on their donor card and my husband was the recipient. In Australia, it's the law that we aren't allowed to know the donor's name, but i give thanks to them and their family every day I can wake up next to my husband. Life after transplant has not been easy. It's definitely not like what they portray on TV. It's messy and painful and emotionally draining, and you are constantly on edge and questioning even the little things...like the foods he can't eat any more. But it's also wonderful, and he can now, two years later, start to feel the benefits of this gift of life. Sorry for my rambling, but I just wanted you to know that I know what it's like and I love you guys for sharing it with so many people. xxx

[@tjae6462]

Whoo hoo Frey Life "Peoples"! Reaching that goal was so awesome!!!

[@gracelacedgrit9797]

I'm catching up on the last few blogs - nice to see you guys again. ;) You look great, Mary. Sorry to hear about the vomiting and surgical pain. Hope that subsides soon!! And congrats on the fundraising!!

[@SummersPlace]

Hi Mary and Peter. praying things Will get better soon with the tube feedings and the pain. So sorry about your plants also. Please becareful coming down your stairs girl. I was afraid you were going to trip on the tube. I don't want you falling and hurting yourself. Sending love prayers to you. Love y'all and Sweet Ollie boy!! 🦋❤🌼🌻

[@ellieoctavia1625]

I can't wait to get my print and stickers all the way up here on Vancouver Island, BC 🇨🇦!!! Your videos make my day. I love how your positivity shines through.

[@christinadoherty3212]

Wedge pillows 👌 When you sleep with the pump its best to sleep on an incline so you don't have a morning like that (and most importantly don't aspirate) 💜

[@EmilysLifeOnWheels]

im sorry about your plants

[@2listening1]

Boy, it must have been windy again. (I like to make brilliant observations about the weather.......) I just remember their umbrella blew over recently and the tiles flew off the table.

[@patticooperschwanke7112]

a "we the people" of Frey life would be a cool T-shirt idea.

[@rachelfine2181]

I love that!

[@CelestaII]

Cute idea!

[@Saturndazed74]

Yes!!!

[@sheenaaikins4939]

That's awesome that you've surpassed your fundraising goal!

[@kellystone1535]

Beautiful couple from the inside to the exterior. Positive and brave despite fighting a dread disease. Inspiring ❤

[@cecilyross700]

Bit of a random question, what mascara does Mary wear (if she even wears any)? I was just looking at how beautiful and long her lashes are! 😍

[@2listening1]

Peter, Ollie is sort of a cat. That's how I know he likes it when he's closing his eyes like that. He also sleeps all twisted up like a kitty cat! >^,,^< :)

[@CG-qg5vt]

Praying for the pain to go away Mary. Love you guys❣

[@skepticalbloom4894]

You guys are some of my favorite youtubers ever!! I think I'm going to get one of the paintings from your store for my mom for Mother's Day!! I have one question, is Ollie scent trained to detect anything (like low blood sugar) if so do you have any tips on how to do so? I have an sd and that is the one thing I'm struggling with! And I'm really sorry about your plants and throwing up the formula!

[@moriganna67ify]

SkepticalBloom he is scent trained to detect low blood sugar. 😃. They talk about it in the service dog video and he often alerts Mary in their videos. He is such a good Ollie boy! 🐕

[@rachelfine2181]

You should look at The Dale Tribe! They are also on KZbin and are training a diabetic alert dog for their daughter Aspen. Lots of good information there :-)

[@skepticalbloom4894]

Thank you both! I will definitely look into their channel Rachel!

[@moriganna67ify]

Rachel Fine I watch The Dale Tribe everyday too. They are friends with Peter and Mary. Love them.

[@CelestaII]

I was planning on doing the same for my mom!

[@maddiewalbridge9444]

Way to go Mary for keeping up that smile! You may hurt inside, but on the outside you show so much grace! I'm sure you will regain all those calories with the doughnuts you bought😊

[@matronista]

I have a horrible spine I have been using the lidocaine patches for four years. They help a lot! I am glad you have them, too. :-)

[@katiecandib7135]

matronista I use them too for my CRPS, I agree, they really do work really well.

[@Saturndazed74]

Congrats on reaching your goals guys!!!!

[@nunyabidnz485]

Hi Mary if you want to get rid of the chill of your lidocane patches you can put them in a zipper bag and then sit on it for a few minutes before placing them, hope that helps.

[@2listening1]

I'm glad Boston Children's has a Puppy Life Specialist who has toy bunnies! ;) HAHA!!! XD

[@lauramater4098]

I got my Frey Life CF walk shirt! I'm walking three different walks and I'm so excited! (Also I'm so thankful you guys offered a vneck because I have sensory issues with crew necks ☺️)

[@karenbonham1359]

Laura Mater wearing mine in bed now so soft and comfy!

[@CharleneWoelk]

Also did you manage to save any of your plants. They were growing pretty good so the roots should be strong enough to salvageable them.

[@saucerfulofpigs6268]

I have GERD and I've started sleeping with the top part of my bed raised a bit (I don't know exactly how much) and it's helped a ton with my nausea and heartburn. I really recommend you try doing what I did, It might help you with your feeding tube issues! Best of luck! ❤

[@janaye7iverson]

❤️Mary- I ordered a ton of stuff from your store. I've been wanting to get the rest of the decals and so on for so long. Now I have them ALL yay!!! I hope I still get the stickers with the 8x10 and shirt decal bundle, I really wanted to have another shirt that says laugh everyday. 💜💚💙

[@pattieblackwell2027]

I take care of patients with feeding tubes. And always at 30 degree angle. Very important

[@Friendlyseattleite]

Very VERRYYY possible. My child used to throw up a lot while trying to find the perfect dosage.

[@IMChrysalis]

LOVE the Terra chips! Especially the sweet potato...

[@karynahern970]

Feel better sweet Mary!!

[@lauragadille3384]

Oh no, not good. Feel better Mary. Fiesta sends her kisses 💕💕💕💕

[@rae1957tn]

Mary as all farmers know you lose a crop every once in awhile. Feel better soon and God Bless you

[@KatandKiwi7]

Yah for CF awareness month!!

[@2listening1]

Mary and Peter, I can't decide whether to laugh or cry either! So I have an IDEA!! Let's do this division of labor: I'll cry for you, and you two laugh big time. When I'm done crying, then I'll watch your vlog over again and laugh UNTIL I cry!! Do you know how I came up with that great idea? It's because I'm secretly a genius! ;)

[@nicktheveganchick]

2listening1 Lol, I love this response!

[@Sirlie08]

I hate throwing up! I'm so affraid of it..

[@Lesterdeephotography]

Peter you are so cute when you were talking about your shop and laptop sticker

[@lbangotti]

want you to know I am lifting you up in prayers. I am enjoying getting to know you and congratulations on your nephew....God Bless You

[@CharleneWoelk]

You 3 are so adorable!

[@theboutique1]

Feeding tube vomit is the worse kind of vomit , hope your better soon

[@renyputman7118]

theboutique1 really? I would image it feeling better (as good as vomit can be) than all the chunks and stuff. The only reason I can think of it being worse cause it is in Mary's jejunum so it's deeper and harder to throw up. Please tell me why now you made me very curious! Sincerely, a very experienced vomiter😂

[@theboutique1]

I think feeding tube formula smells disgusting anyway and its worse regeratated. Obviously that dosent matter on a day to day basis because you dont have to smell/taste it, but you would if you are vomming it up. Also I feel like because its more liquid, it comes up faster/more easily and is just generally more gross. But this is just from me working with people with tubes, I dont have one myself. I can see your point though that it might be more pleasant( as it can be) to not vomit up somthing with chuncks.

[@renyputman7118]

theboutique1 That makes sense thanks! Throwing up is just something the body shouldn't be able to do because it is so unpleasant. Vomit doesn't tastes nice on its own and if it has a horrendous smell and taste before you throw it up it must suck really bad. Thanks for the info😊

[@rachela-p5804]

I love Cullen and Katie! I started watching them the same time I started watching you! (A long time ago haha). 😀😀😀

[@carlaabramo]

You are so amazing! And the way that Mary pronounces "Batata" is sooo cute! 😊

[@kaputz8107]

😅😅😅😅 the ummmm count cracked me up 😂

[@ashleybrown5984]

You guys are so inspiring, and just overall amazing! I love watching your videos💜✨💕

[@tonihodkinson7017]

happy c.f. awareness month happy may

[@penelopepolinsneemeyer4757]

Mary cariad, did you know that Twinings make a lemon and ginger tea?? It might help your nausea xxxxx

[@silverbroom02]

Chewing IS exhausting! I can attest to that!

[@Brooke52528]

You're such a trooper Mary😊💜

[@BriBee2023]

Oh no Mary!!! >~

[@loveandbelovedtoo3777]

Love TERRA chips! My fave is the Mediterranean bag! Have a great night! Cheering on from Chicago!

[@oliviahernandez6]

How long is the feeding tube going to stay in? And how's your nephew doing? 👪👶

[@edsawarenesschannel]

Olivia Hernandez I think the feeding tube will be in forever

[@hollymolly1624]

I think a great idea would be some kind of product for dogs! like a doggie bandana that says 'The Frey Life' or something else.

[@jaytee2642]

I'm SOOOOOO sorry that you threw up your fuel. :-( I never would have dreamed it was possible, considering where your fuel door is. Although....I have to admit that my first thought when I read today's title was "Dang, that girl's talented! How'd she manage to do that?" Do what you think can't be done. ;-) I hope things settle down, fuel wise and pain wise.

[@jaceyxo]

hey guys! where did you get your blanket and pillowcase? they look so nice and light and comfy.

[@karbear26]

Jacey xo from an etsy shop Kathy cottage something like that I know they had a video about it. Maybe someone else has the exact name. She's gotten so much business from the viewers she runs out of custom order spots pretty quick you also get 10%off for being a viewer!

[@jaceyxo]

awesome! thank you so much!!

[@adrianmarler2027]

I use lidocaine patches for my chronic back pain.

[@shereewordell2433]

Besides you guys I also watch Cullen & Katie daily! They're really nice like you two!

[@kianaporter1465]

What face wash do you use? Because you skin is really clear.

[@badbitch7253]

Don't forget to smile! 😁

[@JavaFirst]

I would like to see a video on how you care for your non disposable mask.

[@michellehasty1038]

Omigosh! This is freaky! I ate half a bag of those chips with my lunch today! I really like them too.

[@dogtraineronwheels3300]

can someone tell me who in the world would give Mary and Peter thumbs down I know Mary would say that we're all entitled to our own opinion but I just don't get it I absolutely love Mary and Peter and can't get enough of their blogs it seems strange to me that someone would actually give them a thumbs down weird keep doing what you're doing Mary and Peter I love you guys

[@rebeccamoon5766]

Can't please everyone. There's no accounting for taste.

[@Themccormickfamily]

Will y'all be updating the playlist with videos from 2017? I have been watching all your old videos starting from the very beginning. Im at the end of December now and just realized you didn't have a playlist for 2017.

[@JAIMEHOOKER]

be careful when you bolus meds. if u bolus something like benedryl will hit fast as it goes directly through you. i learned the bad way pushing trazadone through it hit me in a minute and i felt like i was dying

[@pattieblackwell2027]

Very true! Good advice

[@claudiasweeney7385]

Mary I have a g tube and around a year or two ago I went to my grandparents in Ottawa for 3 weeks and I couldn't be hooked up to my machine so when I came back and got hooked up I threw up all my formula because my stomach was not used to it

[@claudiasweeney7385]

Plus I always love when I have medicine can be put through my tube and mine is in my stomach

[@marjanf56]

DO THE FEEDS WHILE YOU ARE SLEEPING VERY SLOW DRIP..do you have a pump??? also do youre vest and the coughing first then eat.. maybe a little rearranging would help

[@cindyloo056]

They're my favourite too!!!

[@roseragan-mcwain2395]

"I ain't got no STRESS in My REST(in My Rest)... repeat once...My formula came UP, its For THE BEST(for the best.

[@jamiecountway1727]

Love your guys vlogs. You guys are such a cute couple. Hugs

[@kaylapennington5836]

Where is your purple blanket from? It looks so soft and cozy 🙂

[@OneElusiveRainbow]

Kayla Pennington someone made it for her

[@NewlandChronicles]

SO sorry you threw up. My son had lots of throwing with his g-tube up until we found a formula that works for him.

[@charlottebarros2866]

You two are so amazing ❤❤❤

[@rebekahhampton3771]

My 3 year old daughters best friend has CF. She is 4 and is so funny and we love her so much she just got her "button" last month and is doing great with it.

[@geminiwaywardbound1229]

Hi, I hope everything is alright I've been binge watching since your trip to Scotland, and I've come to a dead end now after the end of April 2017 are there no more play lists, ps i know its hard work at the best of times, you've done well keeping it going as long as you have, thinking of you, best wishes and god bless x

[@MamaWithAFro]

Nooo, the plants!!!

[@ShannyShanLV]

time for plan B with the plants.. Walmart.. And also I wonder if CFs can be around tomato pollen its really really strong. O.0

[@christienbbrooks7334]

The lidocaine strips awesome ,I wish I would of thought of that sooner.😊 thanks for the info 😊

[@makenah9877]

Where is your sweatshirt from Mary? Looks so cute and comfy!

[@NJlovessinging]

Mary, there is a formula called Nourish that is very healthy and a few friends of mine use it for their kids with feeding tubes. Here is a link and it has way less sugar and stuff in it. www.functionalformularies.com/nourish.html They found that their kids couldn't handle the sugar in the formulas like Ensure or Pediasure. Many hugs and sending them virtually!

[@fishalope5]

if yall like the sweet potato chips, aldi usually carries their brand

[@silverbroom02]

"You will not believe this. *suspenseful pause* I'm out of breath." I think I can believe that! 😜

[@Sarahtracey12]

Early love yall so much u r beautiful and special in every way

[@liljohn1972]

my daughter has a gtube and couldnt keep down any formula. I suggest you look into blended diet!!!! it may work better for you

[@andreaberezowski998]

How are your blood sugars now with the feeding tube?

[@c.elizabeth771]

Oh, Mary! I'm so sorry about your plants :(

[@goodmanhomestead2841]

Oh no!!! Poor plants!

[@TheAlmutz]

This might be a little weird to ask, but could you give ollie some extra snuggles today for me? My dog had to be put down on Saturday (she was 12 and had really agressive cancer) Ollie reminds me very much of her :) Love you guys

[@CelestaII]

I'm so sorry for your loss...

[@karenbonham1359]

TheAlmutz so sorry for the loss of your dog it is so painfully hard may God bring you just what you need to comfort you in this difficult time.

[@joannlovespapillons]

TheAlmutz So very sorry...my sweet guy was put to sleep on 11/2/16 @14 yrs due to the same & it's still so hard. Ollie's mannerisms & gentleness remind me of my Rocky. The daily Frey vlogs help me remember all the good memories

[@Dungeonfreak]

As the fuel bypasses your stomach does that mean it doesn't make you feel full so when you have an appetite the fuel doesn't affect it?