I was Diagnosed with Multiple Sclerosis

  Рет қаралды 5,732

Bailey Van Der Veen

Bailey Van Der Veen

Күн бұрын

Пікірлер: 87
@meganryan9945
@meganryan9945 3 жыл бұрын
Bailey please know you’re going to be ok. I was diagnosed in 2010. Every person experiences this disease differently. You must not base your outcomes on others. I would be happy to talk with you. I was alone too when I got diagnosed. I had a high powered job, the whole works. I was also older than you are now. I am doing very well! Please try to be optimistic. I’m serious if you want to talk or text let me know.❤️
@graceelizabeth8451
@graceelizabeth8451 3 жыл бұрын
I started crying just seeing this in my subscriptions. I’ve been a supporter of you for YEARS. My best friends dad had MS and I saw what it did to their family.. I’m so sorry. But you’re SO strong. And they’re one step closer to efficient treatment everyday. You have so much love and support behind you.
@xSxlaughter
@xSxlaughter 3 жыл бұрын
My best friend was diagnosed at age 17... that was more than 10 years ago now. Lean on to your loved ones, they want to be there for you. ♥️
@sikay6340
@sikay6340 3 жыл бұрын
Sending you prayers and love. My mother has been diagnosed with MS since ‘92, she’s now 75. She is able bodied healthy and happy thank God! Yes, when it hit her first she was in the hospital for a month and she was told she would never walk again (they were wrong). She has had two bad exacerbations since. One just six years ago, which I nursed her through. She walks and is very active. She doesn’t take any of the MS medications. Her brother is a biochemist and works for the FDA in Holland, at the time all the meds were newly coming out in the 90’s he advised against taking them. She has never taken anything and has been better for it. All forms of MS are different, of course and you must do what is necessary. You need to listen to your own body. Your symptoms will be varied. This is your journey but you are not alone and this isn’t a death sentence nor should you write yourself off. Be kind to your body, mind and spirit. My mother is one of the strongest people I know and does more with this disability than most people I know that are completely healthy. ❤️
@sarahcox1805
@sarahcox1805 3 жыл бұрын
I'm so sorry to hear this. I went through serious health problems a few years ago and it was awful and scary and uncertain. For me, things got so much better after being properly diagnosed, because at least then I could be appropriately treated, which was so much better than just suffering and dealing with weird symptoms and misdiagnoses. I hope your diagnosis (difficult as it is) is a similarly positive turning point for you. Sending you strength and peace.
@Flamenco7w8
@Flamenco7w8 3 жыл бұрын
I just discover your channel via the superstay coffee edition labials video and just loved you, suscribed inmediatly and while watching your videos youtube recommended me this one . I want to tell you that this is a difficult situation. I know the pain and health problems are terrible. I have a disease in the intestines and among many repercussions of this is the loss of hair, intense pain, abdominal distention after each meal and thinning of the bones. In these situations it is okay to cry and feel bad, unbosom .. And then raise your head and know that you are stronger than this, you are a great woman and you deserve happiness. This will not beat you. I hope you have some support and I wish you the best.
@mothsandmoxie
@mothsandmoxie 3 жыл бұрын
Sending you love, hugs, and good vibes. We are all here for you. You're going to keep kicking ass and taking names! 🖤🖤🖤
@msdirtydish
@msdirtydish 3 жыл бұрын
I’m so sorry, Bailey. I have been a subscriber for years and feel like I know you. When I saw the thumbnail, my heart sank and I was crying right along with you. It’s incredibly hard not to feel alone (especially right now) or hopeless. You have every right to feel completely devastated. Just try to take it one day at a time. Please know that there are so many people here that care about you and are here to offer you support during the hard times. ♥️
@Zoctao
@Zoctao 3 жыл бұрын
This is so sad. I'm so sorry you're suffering and I couldn't imagine your pain. Hang in there, which I know is tough... I suffer from chronic pain and being in pain almost daily is mentally and emotionally exhausting so I understand how draining and sad physical suffering is.... just know you're not alone... hugs and love your way.
@jordanfields4400
@jordanfields4400 3 жыл бұрын
I’m so sorry, I’ll keep you in my prayers. Keep your head up, you’ll get through this, you’re strong! 💘💘💘
@katr9045
@katr9045 3 жыл бұрын
I’m so sorry Bailey 😢 sending you love 🖤
@natashagray6313
@natashagray6313 3 жыл бұрын
I am so sorry Bailey. We love and support you💜💜💜
@MsLilacLover1
@MsLilacLover1 3 жыл бұрын
Montel Williams is the best person to follow that has MS. He is kicking its ass. Hang in there,you got this !!!
@smilepower1306
@smilepower1306 3 жыл бұрын
Pets can know when we need them the most
@hello.its.me.23
@hello.its.me.23 3 жыл бұрын
I’m so sorry Bailey... I know exactly how you feel right now. I got the diagnosis in 2014, on the phone... while on my way home from work. Just know that you will learn to live with it. I still haven’t accepted it, but I learned to live with it and you will too, in time ❤️ It’s different for all of us but I still work, I have a loving family and I recently started my own business. One thing MS gave me is courage and the motivation to take on life and live it to the fullest. I hope it will bring you the same for your future. You are a throng woman ❤️❤️❤️
@user-mo3no6hn8l
@user-mo3no6hn8l 3 жыл бұрын
Came across your video this morning. Watching this just made me cry. You are so brave and loved 💜 wishing you peace 💜💜
@stephaniemiller4656
@stephaniemiller4656 3 жыл бұрын
I have my own health battles and the 3 things I wish I could go back and tell myself at diagnosis are: 1. It's ok to mourn. You essentially have to go through the 7 stages of grief. Allow yourself that time without feeling guilty for not always being positive. How long it takes leads to my second piece of advice. 2. Seek therapy. Find someone who has experience helping recently diagnosed individuals. If you are unable due to time/ finances, online support groups are amazing. I learned so much. 3. Practice kindness towards yourself. I try and live my life with the thought, "Would I say this to my best friend?" If the answer is no, I'm likely being too hard on myself. On another note, I just found your channel while searching for Maybelline Superstay Matte Ink swatches and reviews. I immediately loved your vibe and subscribed. I look forward to combing through your archive!
@dlokes
@dlokes 3 жыл бұрын
I’m so sorry. This video broke my heart. You are so strong. You won’t be alone forever. I believe you will have a full rich life. You will.
@Tan-ns2hr
@Tan-ns2hr 3 жыл бұрын
I'm so sorry you had to have this conversation over the phone, the pandemic has made healthcare so cold. Praying you're able to live a fulfilling life despite this horrible disease
@miakatherine9028
@miakatherine9028 3 жыл бұрын
Here for you. I live with a few family members with MS. Never feel like you are a burden. Lots of love. Xoxo
@ami.m9891
@ami.m9891 3 жыл бұрын
Diagnosed at 15 almost 13 years ago. Have ups & down but keep smiling & Please know you got this ❤️
@ThatGirlShelbyy
@ThatGirlShelbyy 2 жыл бұрын
I’ve had chronic pain since 15, that has only changed and gotten worse in various ways over time , and I’m turning 27 in 2023. I JUST had two MRI’s (brain and spine) a couple of weeks ago, and I got a “what looks like could be shadows of MS”, and I’m still waiting on the spine results 2 weeks later (which is where my pain all started, in the lower back which is now my whole back) It’s lucky that you were listened to by doctors at such a young age! Not everyone has that and it’s awful how many people suffer for years before they can get some relief 😔
@meganconnor412
@meganconnor412 3 жыл бұрын
I am so sorry this has happened to you. You can get through this and your supporters will back you 100%. I will be thinking of you ❤ stay strong as best as you can, get support where you need it ❤
@lindseybotelho
@lindseybotelho 3 жыл бұрын
I'm so sorry. You're so strong ❤
@DocSpice
@DocSpice 3 жыл бұрын
Oh sweetie, I'm so sorry. I've a friend with MS twice your age who has had a family, works full time and takes incredible care and control of her MS. Oh, check out the Pixiwoo girls videos, Nic has MS. She made a MS video a few years ago and talks about what she does. You'll not end up alone, you're family will love and support you, and your friends and us!! I was diagnosed with Lupus two weeks ago, a 'life altering' condition they called it, I'm currently in a "flare". It kind of made sense to put things together, but it's a completely shitty future. I've only told my parents, noone else and may not do so until they 'see' the changes/signs. You could do the same thing, or scream it from the rooftops. There must be support groups where you live (depending upon if you like them or not) but MS medications have come such a long way, life is no longer constrained to a wheelchair at 50. We'll all pray for you darling. You have my details, DM me any time. Xx
@PinkPrincesz
@PinkPrincesz 3 жыл бұрын
I’m so sorry that you have to go through this. But i know you’re so strong and you’ll get through it. There’s so many therapies and modern medicine nowadays. I’ll be praying for you 🙏🏽 . I know you don’t know me but I’m here if you ever want to talk, all of your true supporters are here for you ❤️.
@miyukiaoyama2704
@miyukiaoyama2704 3 жыл бұрын
Thank you for telling us. I have been subscribed your channel for many years. I love your Snow White skin. You have many your fans. We are close to you❤️✨
@ReemA-on7pf
@ReemA-on7pf 3 жыл бұрын
Don’t be sad honey be optimistic .. You will get through this .. I will pray for you ♥️♥️♥️ Love u
@vanna_ly
@vanna_ly 3 жыл бұрын
Sending you lots of love and positive vibes. Thank you for sharing your story and I hope you find the answers you need and I know you will live a full, enriching and loving life🙏
@brianaschino4903
@brianaschino4903 3 жыл бұрын
Im so sorry, coming from one of your disabled subs, you will get through this!!! ❤️❤️
@aleagonzales
@aleagonzales 3 жыл бұрын
I’m so sorry my mother had MS. My father had ALS. I know it overwhelming if you can take it day by day. If that’s too much hour by hour. You’re gonna be strong enough to get through this. Sending good thoughts your way.❤️
@camilleona68
@camilleona68 3 жыл бұрын
I couldn’t believe the title of this video when I saw it…I’m so sorry this is happening to you. But know you have family and friends and most of all you are so loved, even if we are strangers. You will get through this and live your best life girl….🙌🏼🙌🏼🙌🏼🙏🏼🙏🏼🙏🏼🙏🏼❤️❤️❤️❤️
@AuroraDarlingRN
@AuroraDarlingRN 3 жыл бұрын
I love you please don’t cry Bailey! ❤️
@JulianaBo
@JulianaBo 3 жыл бұрын
Hey,sweetie,please feel hugged. I hope,you're really getting better. Lovely greetings from North Germany. You're loved❤
@krakelsprakel
@krakelsprakel 3 жыл бұрын
Oh no😢. So sad to hear. But thank you for sharing. We are many people who cares about you, and who you can spill your heart out to and share your story with. If that can help. I have a friend with MS. And I know the struggle. Take care. ❤️❤️❤️
@bebeflamand1
@bebeflamand1 3 жыл бұрын
I'm so sorry for your diagnosis and the way you received the news. My youngest sister got diagnosed with MS when she was 23 (now 30). She has started Ocrevus treatment last September and had her second IV in March. I don't know exactly how it works but it does something to the immune system that helps prevent future relapses. What I've noticed with my sister is that stress appears to be her biggest trigger. Of course every single person's experience is different, please know there are people out there who live happy full lives. There will be plenty good days but also times where the ride gets a little rough. There are ms societies that can be a helpful resource. Please reach out to them, to relatives, friends, you are not alone
@ThatGirlShelbyy
@ThatGirlShelbyy 2 жыл бұрын
I’m here a year later, after watching this video at the time it was posted as well (and crying for you before I even clicked on the video), I am finally getting my own diagnosis that I’ve known was coming for close to a decade (I’ve had chronic pain since 15, that has only changed/gotten worse, and I’m turning 27 in 2023) After being brushed off by doctors (east coast of Canada), I finally got an ER doctor to send a referral to a neurologist because my own family doctor wouldn’t send the referral for MRI herself I JUST had two MRI’s (brain and spine) a couple of weeks ago, and “what looks like could be shadows of MS”, we’re on one, and I’m still waiting on the spine results 2 weeks later. I’ve been saying to them that I suspect MS. I also suspect endo and potentially something else 🤷🏼‍♀️ so far anything I’ve said was going on, has been proven correct by scans. I lost so much weight last year (40lbs in a very small amount of months) and it was without changing my diet or anything, so I knew there was something going on. It’s a relief to be validated in knowing my own body, but it’s also terrifying, and infuriating that I could have gotten a diagnosis years ago if they had just listened and sent the referrals for scans, etc , when I said I needed them 🙄 I’d love to know how you’re doing with everything now, and I haven’t seen any posts etc on socials about it, and you’ve been killing it from the looks of it! ❤❤ sending all my best wishes 🥰☺️
@ohmyme81
@ohmyme81 3 жыл бұрын
Hugs and love ❤️🤗I have no words. But you will get through this. I know you will👊
@chaoswitch1974
@chaoswitch1974 2 жыл бұрын
please come back. I want to know how you are. I want to know you're okay.
@anam6330
@anam6330 3 жыл бұрын
If anything. As a health care worker in the hospital I do care deeply about you and I’ve been watching your makeup vids since i was in middle school
@SparklingSilverCurls
@SparklingSilverCurls 3 жыл бұрын
I'm so very, very sorry. I have lupus and other chronic autoimmune syndromes which started in my early/mid-20s and it absolutely sucks. I know it's not any consolation, but be thankful you're in Canada. If you were in the US, not only would you be devastated by the diagnosis, but also at the fact you'll bankrupt yourself trying to afford meds & treatments. I'm so very sorry...
@baileyvanderveen
@baileyvanderveen 3 жыл бұрын
Facts. Although I will have to pay for medication as that is not covered. Our healthcare system still sucks even though a lot of it is “free”
@SparklingSilverCurls
@SparklingSilverCurls 3 жыл бұрын
@@baileyvanderveen oh no, I'm sorry. I forget each province has different coverage. I hope your meds aren't as expensive as they are here in the US. If you live near a Costco, I've found they have the best prices if you don't have insurance. Also, GoodRx has coupons that the majority of pharmacies will accept. Again, I'm so sorry...
@pandora4078
@pandora4078 3 жыл бұрын
I am soooooo sorry and you're that that kind of diagnosis should have been done in person. My sisters very close friend was diagnosed w MS close to 23 yrs ago and she has only experienced a few symptoms and she is in her 50s now. They have very good meds nowadays and as long as you take good care of yourself and take the meds when its time you may not feel any symptoms for a long time. I am sending you good vibes and I truly mean it when I say your not alone. We don't know each other but if you need someone to talk to I am here for you!! I know that sounds weird being that its social media and were strangers to you but we all feel like we kinda know you..So take care and feel free to reach out anytime.
@bebe7385
@bebe7385 3 жыл бұрын
May the universe bless you and yours with unconditional love strength and peace of mind. I feel for you deeply, please get therapy and surround yourself with loved ones. It’s a lifelong rollercoaster, you’ll mourn your previous life. I know I do and I’m 3 years in.. the anger and sadness will morph your live and mind but don’t let it destroy you... you’re still you you’re still deserving of all your hearts desires.
@raleemay
@raleemay 3 жыл бұрын
I read the description box. This is devastating. How are you doing now? Mentally? Hugs ❤️
@stephaniedavis7576
@stephaniedavis7576 3 жыл бұрын
You'll be in my prayers 🙏♥️
@dreamingofbooks9
@dreamingofbooks9 3 жыл бұрын
Sending you so much love and positive vibes 💗
@staceyjones8103
@staceyjones8103 3 жыл бұрын
Bailey I am sorry this happened but you are never alone.. I am sending healing positive prayers and vibes everything is energy and love. When you are ready tap in. You are the best take care.
@chantalorrantia2750
@chantalorrantia2750 3 жыл бұрын
I’m so sorry you have to go through this. I was diagnosed in 2019. I know there are things worse than MS but it suck’s. Give yourself time to grieve. I know it’s important to have a good attitude but allow yourself to feel sad and upset. I will say this though, you are going to be okay. There are treatments that help slow down the progression. I’m happy to let you know that I’m doing really good for having this disease. Again it suck’s but I want you to keep your head up and don’t let this drag you down completely. We are still alive and we just have to learn how to live with this beast. I still work full time and I am a single mom to a beautiful little boy. You can do this. 💪
@gsuhobbit
@gsuhobbit 3 жыл бұрын
You are never alone love.. if you lived closer, I’d move you into my house 🥰 Your family here on the Tube will be here to listen and love you through it all. You were born a conqueror and are stronger than you know.. Sending you al the love and good vibes that I possibly can❤️
@kerrirae18
@kerrirae18 3 жыл бұрын
Sending nothing but positive thoughts and love!! 💜
@AmandaGirl675
@AmandaGirl675 3 жыл бұрын
I’m sorry but did u get the results from ur brain mri I had a brain mri and my doctor automatically ruled out multiple sclerosis. I too have numbing and intense tingling and pain. Arm weakness too
@georgenadiradze5343
@georgenadiradze5343 3 жыл бұрын
Stay strong! Friend of mine has MS for 10 years and she is fine!
@stillnachofriend
@stillnachofriend 3 жыл бұрын
I'm sorry this happened to you. Were they able to tell you whether it was Relapsing-Remitting or Progressive? I hope you take it day by day as every case of MS is different and very manageable with proper self-care and medication. Personally, I was diagnosed in 2014 with RRMS and (thankfully) haven't had any progression, other than on my annual MRI's. If I am under heavy stress or not getting enough rest numbness and aches come back, but the only lingering issue is fatigue. I've had to learn my limits and try my best to not overdo it.
@luci_fer1257
@luci_fer1257 3 жыл бұрын
💔 i don’t know what to say :( send my best wishes
@sinndymorr6358
@sinndymorr6358 3 жыл бұрын
I really wish the diagnosis could have been done in person. You have so many questions. Sending prayers.
@alicejecob1880
@alicejecob1880 3 жыл бұрын
I'm so sorry dear😐 Stay strong and keep your heads up, there's a lot of smart doctors now adays who are willing to work hard for you, you need to be patient and don't lose hope. Sending you lots of love 💖💖💖💖💖💖💖💖💖💖💖💖💋💋💋💋💋💋💋💋💋💋💋
@jeseniag5112
@jeseniag5112 3 жыл бұрын
So many hugs and kisses your way Bailey ❤️❤️❤️❤️
@annag4635
@annag4635 3 жыл бұрын
Never, ever, think it's your fault ❤
@majesticallure
@majesticallure 3 жыл бұрын
Sending prayers to u beautiful 🙏🏾🙏🏾
@ceceiliabaker5320
@ceceiliabaker5320 3 жыл бұрын
I was diagnosed last January and my husband was diagnosed 18 years ago. We’re an MS family. Our daughter is also disabled - she has Rett Syndrome. I know what you’re feeling, love. I wish I could hug you and give you all of the comfort. ♥️♥️🧡🧡
@ceceiliabaker5320
@ceceiliabaker5320 3 жыл бұрын
My husband has RRMS and mine appears to be PPMS. The chaos is REAL but we take one day at a time. That’s all we can really do. I pray every day that I keep my abilities because my daughter requires 100% care.
@ceceiliabaker5320
@ceceiliabaker5320 3 жыл бұрын
Also!!! My husband is on Ocrevus and it is amazing for him! He has had no relapses and no new lesions in almost two years!
@shayxtreme
@shayxtreme 3 жыл бұрын
So how did u know u should be tested for it. Did u have symptoms ?
@baileyvanderveen
@baileyvanderveen 3 жыл бұрын
Description box
@lillfleming60
@lillfleming60 3 жыл бұрын
I'm so sorry
@starshine311
@starshine311 3 жыл бұрын
Sending prayers and love your way😘🙏🏼🙏🏼🙏🏼😘
@84maria84
@84maria84 3 жыл бұрын
I Love you ! You are strong !
@tobycatone1642
@tobycatone1642 3 жыл бұрын
So sorry sweetie but you’ll be ok darlin! You don’t have an expiration date on your back. It ‘s treatable.. over the phone shit is horrible though.
@SEDP0711
@SEDP0711 3 жыл бұрын
You are beautiful and stronger than you think. As a person living with a physical disability... Times are going to suck. You are going to find out who REALLY is beside you. This is not your fault. You are going to learn how to live your life with your diagnosis. There are medications and therapies available... Be as brave as possible 💕🖤💕 !
@Micha0185
@Micha0185 3 жыл бұрын
Sending you all my love 💗💗💗
@SabrinaGraham82
@SabrinaGraham82 2 жыл бұрын
I'm so so sorry 😔 I hope ur .....what the fuck do u even say, right? I wish u all the strength babe 😘
@helenhirsch5717
@helenhirsch5717 3 жыл бұрын
Wise words from everyone before me...find an online support group today and you will find a universe of people who know exactly what you are feeling right now and got through it. They will be there for you. You won't be alone with a whole community to rally around you. Have faith you will figure this out one day at a time.
@KiKiAthena79
@KiKiAthena79 3 жыл бұрын
Oh honey.....I just wanna fly up there and wrap my arms around you. I love you so much! I’m praying for peace and strength for you. I’ve been living with almost a dozen chronic illnesses since 2011 and I’ll be honest it sucks. It really really sucks but as time goes on it does get easier. They are coming up with new treatments and therapies all the time. The symptoms can be managed and I promise you that life isn’t over. Will it suck sometimes? Absolutely. We are warriors and we will survive and thrive even thought it will look different than what we expected. If you ever want to talk please reach out on IG (KiKiAthena79) and I will DM you my phone number. Sending love and light always!
@melissawong3514
@melissawong3514 3 жыл бұрын
🙏🏻🙏🏻🙏🏻
@smilepower1306
@smilepower1306 3 жыл бұрын
Hugs
@canmann78
@canmann78 3 жыл бұрын
Check out Dr Terry Wahls! You got this💪 Mad love and support from ova here! 🌟
@lolitamorris2943
@lolitamorris2943 3 жыл бұрын
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