ICU acquired weakness

[@bar10ml44]

This is a very simplistic representation and it sounds so sweet and positive. My life as I knew it has been taken and only after nearly 2 years am I learning what actually happened to me. Things were never explained clearly and the follow up has been non existent. I was reluctant to claim medical negligence as my life was saved after over 100 days in ICU. On the day I was to be moved to another ward an ICU consultant said to me as he walked away, “Your journey is just beginning”. Little did I know that in the UK there was little help or recognition of the severity of my illness. I was dumped at home with basic care and limited physio. Had I known I wish I had died. As I was in a coma it would have been the most peaceful way to go.

[@justinh.2778]

I completely understand. I was put on the ventilator and was unconscious for well over a month, and stayed in ICU for a total of 7 months this past year. This road has not been easy. When I woke up, I had full blown neuropathy which never existed before. Went septic a total of five times. If it hadn't been for my mother being there with me to encourage me every step of the way (including while I was in inpatient rehab) I don't think I would have ever made it. I do hope your journey keeps improving!

[@summerrain507]

Same I've been in 2 comas one was a week the second was a month and also on ecmo I only had physio in hospital nobody to help with tracheotomy wound cleaning noose physio I was left to it myself no dr came to visit me either time I don't ever think I will fully recover from this my dr was very negligent with my medication that caused me to be in coma in first place and nearly losing my life

[@RetroReminiscing]

I was in hospital for 6 months and it took me a long time to be able to walk again...I still have this condition ..I am now able to walk (not long distance) but I can move about for short amounts of time..i then get very out of breath and dizzy..plus my sensation in my feet and lower ankles is not full there..I can still move about though...just not for long amounts...I went for a nerve conduction test 4 weeks ago and diagnosed me with this ..Tthere is hope and light at the end of the tunnel for anyone thinking they will never walk or get back to some normaility....Mental persistance is what helped me after 6 full months of not once being able to get out of the hospital bed...I may have slight mobility issues now and nerve issues but I am so glad to actually be alive! I was given 48 hours to live and a 1 in 10 chance of survival if I chose to go through with a ricky procedure..I cant believe I am still here...Miracles DO happen ! Keep the faith to anyone feeling low and in pain....Thank you for this fantastic upload! x

[@greentambourine2323]

Got my nerve conduction test tomorrow, intensive care has damaged my right foot and left arm.... but glad to be here :)

[@RetroReminiscing]

@@greentambourine2323 Hi, i hope your nerve conduction test goes well and the outcome is positive, i am like yourself though as in i am just so glad i am still here...My left arm and shoulder is very weak too now and hurts when i move it in certain positions , very good luck and hope you get stronger x 🍀🍀🤗

[@greentambourine2323]

@@RetroReminiscing Ta very much, had a brain scan and spinal scan, so now the other final tests tomorrow. They want to get to the bottom of where the damage originates as I had an ICU seizure. It is a bit annoying shuffling about in an ankle brace etc for only short distances, but the sun is shining today and all is well! Good luck with shoulder and arm 😁

[@RetroReminiscing]

@@greentambourine2323 Thanks you, I hope they manage to get to the bottom of where the issue lies so they can hopefully give you the right pain releif or help to make your quality of life easier ...i have learnt to live with certain ailments that i have due to a long stay in ICU , but there are times when it does still get me down and i think back to how i used to be...I can imagine the ankle brace must get very frustrating for you ...let me know what they say if you like after your results, i wish you all the best and have a lovely sunday 🌞

[@T-Michaels]

Thank you so much for posting this, I'm so worried about my wife currently in the hospital.

[@christianeritter1905]

This video is great, but where is the occupational therapist? It is sad for all of us therapists, that we are never mentioned. Physio und Ergo goes hand in hand

[@AshKat92]

Good video but this really softens the blow. The reality of ICU acquired weakness is a living nightmare. My father is going through this right now and this video does not do justice to the horror that is ICU acquired weakness.

[@igroman5471]

Clear message, clear structure, easy to understand, thank you

[@amitarora7466]

2020: 15 days in ICU and lost 13 kilos of weight. Extreme pain in legs and feet! 2023 : still not recovered. Depressed. Life and work affected a lot. Please help if you know anything about recovery! Warm Regards!

[@jonathannkindu]

Thank you, this video was extremely helpful and easy to understand.

[@blogblog3245]

Kandungan anda sangat menyentuh

[@T-Michaels]

Thank you, I was so scared for my wife.

[@Lishaaaaaaa]

I hope your wife is doing better now!

[@максимломмик]

Imej itu terlalu menyinggung perasaan

[@Rat.Boy.with.a.Movie.Camera.]

Lol no OT no party.