"If You Listen, You Will Hear Us"

A Leicestershire-produced DVD and guidelines aimed at involving people with profound and multiple learning disabilities (PMLD) in the planning and commissioning of services that they use has been launched.
'If You Listen, You Will Hear Us' project gives a voice to all people with PMLD. It has been produced by the Leicester and Leicestershire Learning Disability Partnership Boards along with frontline staff, carers and people with learning disabilities themselves.
The Partnership Boards are made up of representatives from the local NHS, local councils, self advocates and carers. The inspiring and moving 10 minute DVD features footage and interviews with people with PMLD, staff and carers. It tells the story of how people with PMLD interact with staff, and how staff use their expertise to best communicate. It was filmed at Hastings Road Day Centre, Leicester, and Glebe
House, Loughborough.
People with PMLD have severely limited understanding and often have more than one disability, such as problems with seeing, hearing and movement. They may also have other conditions such as epilepsy or autism. This all means that patients will have complex health needs, great difficulty communicating and sometimes challenging behaviour. The guidelines cover the need to value all ways of communicating, the fact that everyone communicates, how a very personalised approach is needed for people with PMLD, how gaining views may take a long time and some educated guess work along the way, and that family carers know their relative the best and are the experts. It's about building a long-term picture of what people PMLD like and dislike and what their wishes are.
For more information please visit: www.leicspart.nhs.uk/Library/L...

[@angelblue7779]

I wish these care givers were the typical example we would find in any given facility of this type for our disabled, but unfortunately this is rarely the case. This videos shows what we all hope and dream for our loved ones with disabling conditions. Excellent video, facility and staff.

[@chrisherbert2461]

These carers do a really good job of helping those who find it difficult with communication, it helps to bring happiness to them too.

[@goretex99]

This is wonderful! Too many times people with disabilities are put in nursing facilities with no interaction. The staff usually has little compassion, education and training.

[@justingilbert130]

Makes you think "what we take for granted".

[@sadieandbean]

I think this was really respectful to us disabled people and I haven't come across anything that really is.

[@crestinarubalcaba6383]

Thank you, for sharing these stories! We all deserve to be heard and to share our voice...

[@alisonbrowning9620]

used to love my old work working with people with these challenges.

[@sulaymaanqureshi9637]

May the curer of all illnesses cure all those who are ill

[@shirleysalas8164]

Love this video, my son is in a vegatative state and he will have difficulties later in life, my son changed my life by loving people with disabilities glad you made this video,every time I see people with disabilities I think about my son which I love him so much, even his brother and sister love their older brother

[@katsikatsiou]

Thank you for this great video that deals with such a taboo subject. And thank you for pointing out how much we must have an open mind when it comes to communication.

[@Capybaraism]

THIS. IS. *AWESOME!*

[@mattboselli5147]

i dont feel bad at all. because i dont have what they may have, i do have a learning disability. so just imbrase them, love them, interact with them. most of all dont frel sorry for them.

[@anitaenloe9912]

Thank you sooooo much!!

[@dona4him]

Wow! You guys are amazing!

[@topbrew42]

Super work and lovely, lovely video, so positive.

[@mickglasto]

Thank you - an important and valuable piece of work - it's important that we give a voice to these vulnerable and often overlooked members of our community. You are doing a great job in spreading good practice.

[@giselletoledo9133]

Amazing job! Very touching too!

[@alyssavasquez6340]

This video needs to be seen it it fantastic

[@lozziecap]

Wonderful video. Thank you for sharing.

[@nicoleglessner7524]

Nicole Glessner* Pretty amazing video clip. Face expressions can say so much.

[@nicoleglessner7524]

Great video! Thank you.

[@lozziecap]

Wonderful video - thank you for sharing this.

[@abbyhernandez1689]

This video made me cry because I have a learning disability its mrdd :(

[@CharlotteOLeary]

This is amazing and the sensory story time is such an amazing and inspiring idea. Thank you for this video!

[@semperdecorus37]

I am highly interested in the format of the communication passport. Is there a sample?

[@lynnereed8914]

This is like some of my good friends but they may not be able to talk to me with their words the same as you and me are able to but they can speak in their own special unique way like anyone you need to take the time to get to know them just give em a chance and you will see we are not so different like when anyone is talking to you you have to take the time to listen to them so if you listen to them you will eventually understand what it is their trying to tell you

[@larissakent9846]

Brilliant! :-)

[@georgeous96]

amazing video, thanks for sharing will show it to my ID nursing class

[@justingilbert130]

Amazing Video

[@Capybaraism]

4:32 ❤️❤️❤️

[@jeremielowe8070]

Merci beaucoup

[@Lbw2409]

Hello, brilliant clip, I work for disability agency in Australia, in the education team. Could I please use this clip in a speech I'm doing at a healthcare facility? just wasn't sure about privacy laws etc.? it will only be used for educational purposes and will be viewed up until the 3 minute 40 sec mark of the clip. please let me know if this is o.k and thank you for making a valuable clip!

[@LeicsNHS]

Hello Libby No problem at all. We're pleased you appreciate the film.

[@sulaymaanqureshi9637]

Leicestershire Partnership NHS Trust im in London

[@balajothiblr2890]

Awesome video.. We too want to adapt the same in our facility...

[@denisedelisio1913]

What credentials does one need to do this kind of work? Thank you.

[@lindabaker3758]

I am teaching Certificate III in Disability Studies. May I use this brilliant video in my class? Linda

[@LeicsNHS]

+Linda Baker By all means Linda. Any feedback will be welcomed

[@weetzybat]

Can you link to the chart shown at 5:04?

[@LeicsNHS]

+weetzybat We are looking into this

[@lawrencecausion6538]

I all ways to work in special education field with students with disabilities I want to be a special ed teacher

[@stevendroege5440]

Absolutely Incredible! I believe everyone watching this, will find this extremely beneficial. gofund.me/th9s6x2k I look forward to building an even better world for these individuals, Together!