ILAE Nursing Section - How to talk about SUDEP - 23 October 2024

How to talk about SUDEP - 23 October 2024
SUDEP conversations can be difficult to initiate, however studies show that patients and families do want to know about the risks. A common reason that clinicians do not discuss SUDEP risk is out of concern for provoking distress, anxiety and fear. In this webinar we discuss the importance of talking about SUDEP, and present practical suggestions on how to discuss the issue. Providing the facts in an honest and open way can strengthen partnerships with patients and family caregivers.
Objectives:
1. Explain common barriers to having the SUDEP conversation.
2. Discuss when and how to initiate a sensitive conversation
3. Highlight what we can learn from family/patient experiences.
Speakers: Edana Perry (USA), Sammy Ashby (UK), and Yasmin Hibbins (Australia)
Clinician presenter: Lucretia Long (USA)
Moderator: Sandra Dewar (USA)
Organizer: ILAE Nursing Section
For information about the ILAE Nursing Section and their activities visit www.ilae.org/nursing-section
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