Interview with PSSD Network President Rosie: Share Your Story to Raise Awareness!

[@D37fit]

Thank you for doing what you’re doing Rosie and Moral Medicine. In 2024 this should not be happening to people with the technology we have today in healthcare.

[@neilazeez101]

Thanks for speaking out Mark and Rosie! PFS and PSSD are vile conditions.

[@andywilson5677]

Thanks for all you're doing Rosie. I think I will share my story soon.

[@MaddyPup19450]

I appreciate the collaboration between PSSD and PFS, since both conditions seem to cause similar nervous system dysfunction, and will maybe one day show to hold a similar pathology. I do think the name "PSSD" should be changed to something more broad if there are actually more symptoms than just sexual dysfunction, and those other symptoms can be just as severe, if not more debilitating. Rosie talks about emotional blunting / numbness, and I've seen that discussed by other sufferers. Changing the name would also make it easier for people to discuss openly, and people wouldn't automatically think that every other symptom is caused by sexual dysfunction.

[@JohnDoe-x6e1p]

Thank you for speaking up Rosie, from a fellow PSSD sufferer.

[@ssa65743]

Thank you for all your efforts Rosie!

[@semb12]

Thank you for sharing. It's very important to speak out about these conditions.

[@ryanclark5193]

Thank you for speaking out Rosie and for all your efforts in trying to get this condition recognition

[@DT-et8vk]

Thank you Rosie. I’m so sorry for your pain. Everytime I listen to these stories there is always something I hear that resonates. 😢

[@rayanmeftah1]

Thank you for standing by our side

[@thejoyofcroy]

It's great that Moral Medicine covers pssd as well, we are taken more seriously if both genders are highlighted and are in greater numbers. It would be great if you could interview a prominent scientist or doctor to see if they had any idea if this is fixable and how.

[@Maxxxmaa]

Thank you for speaking up Rosie, hopefully there will be more research in the future and doctors start to take our syndrome serious instead of gaslighting us. I visited a neurologist myself (PSSD from escitalopram as well) and he also labeled PSSD as psychosomatic and charged me a lot for this “consultation’”. I don’t think e.g feeling no endorphins at all for 1 year, even while working out consistently 4x a week, is psychosomatic. I am sure in a few years there will be more doctors like Dr. Josef and in the meantime we have to continue to spread awareness 🙏🏻 Thank you!

[@SuperCody888]

Thank you for speaking out about this. Ive been living with this hell for over 15 years

[@esthedon4863]

Well said Rosie! Great job as always Mark.

[@thomas911a]

Thank you Mark and Rosie for doing this! I have the same, It's inhuman.

[@tired_of_everything0]

Thanks for everyone's effort

[@mobius7927]

Thanks so much for all of your efforts Rosie

[@exlincer]

Thank you Rosie for speaking out! I also took Lexapro for only 3 weeks and it was nothing but worse symptoms… cut cold turkey the day my genitalia went numb. It’s been 2 years now of erectile dysfunction, sexual dysfunction, anorgasmia, and many more symptoms. Antidepressants will be the next OxyContin story of disastrous side effects that were purposely omitted from data to appear safer than they really are.

[@GangdamStyle20]

May I ask if you are also female like the interviewee? I am surprised the sexual sideeffects hit women also so severe...

[@exlincer]

@@GangdamStyle20 no, I am a male.

[@GangdamStyle20]

@@exlincer Ok. Still good luck to you. My suspicion is that PFS and PSSD are problems of the axis (hypothalamus, hypophysis and testicles). I would suggest focus on "starting" you axis again. How you do that is difficult. I d suggest bodybuilding forums, but be careful. There are many idiots and broscientist in bodybuilding activ. But the smart ones understand axis problematics. I'd suggest gogofitness if you understand German. Otherwise you maybe can use subtitles in English. Or you can try to kind of try to start you axis spiritually. With meditation, clean lifestyle, unusual adventures... My thoughts to this difficult topic. Good luck to you!!!

[@dalefrank3713]

Poor thing. That’s some cosmic irony, to take a toxic drug that’s no better than placebo for her mental health, and to have it permanently put her in a neuropsychiatric nightmare. Stay strong all x

[@AC-LING666]

There was one woman who has had pssd for almost 30 years i forgot her name, could you guys interview her please

[@sc.1282]

Dr. Audrey Bahrick?

[@TheMelissaWasHere]

Excellent interview! I'm so thankful for this channel.

[@SneezingPanda01]

Need to raise more awareness and ban these drugs

[@CosmicCanvas777]

Thank You for raising awareness

[@ajax700]

All these drugs must be banned, as they do little good and cause lots of damage, as doctor Peter Gotzsche explains. Best wishes.

[@Lottelu]

17 years in. Got it with 15. Now iam 32 years old Woman with a completely ruined and catastrophic Life. Iam beautiful and intelligent but all this means nothing. Iam diagnosed with autoimmune Small Fiber Neuropathie. Fighting for treatments. If this year the Treatments wont help i will kill myself. Cant stand this hell anymore .

[@dario4177]

Thanks for speaking out!

[@PepeNolasco315]

Thanks Rosie!

[@Lottelu]

Idk If there IS any worse desease..than to loose your Basic Body functions...and Soul..

[@ethanbaggoo1513]

Thanks for your courage Rosie

[@PostFinasterideSyndromeNorway]

poor girl. i missed 23-27 to PFS. ive had my life at pause aswell. i send prayers to you. i hope soon we have a cure. for PFS we have some theories going on. Maybe try contacting Alex kikel.

[@travv88]

Do you have a full list of anti-androgenic substances/herbs/drugs?

[@minepolz320]

🖤🫂🙏

[@7115robbie]

Hi guy's - I am so sorry for both of you. I had the same thing after taking escitalopram and nobody warned me (the bloody doctors should warn people so they can make an informed choice). In my opinion these drugs should be banned. I have since taken a packet of bupronion (60 tablets 150mg) and it has almost 100% reversed the effects from the escitalopram 🙂 I am not claiming that it will work for everyone, but it really helped me. Good luck and best wishes to all, Robert.

[@jackbarhillel1065]

Extremely interesting interview, really. I'm not even sure what's been said here's been documented (even though it's notorious among sufferers) : the fact that you can be undefinately on a drug, stop it, start it again and trigger PSSD. It can also be seen through the notion of "having a history" of taking certain drugs. Rosie's been taking MANY SSRIs when you hear her : Zoloft for a year (was it?), then Prozac (or ther), then, stopped, then Lexapro, then stopped, then Cymbalta (or other). I mean, she's really been buying into anti-depressants... But more to the point, it's been documented black on white in Peleg 2021 ("Post-SSRI Sexual Dysfunction (PSSD): Biological Plausibility, Symptoms, Diagnosis") : people with a history of having taken Finasteride in the past, then a decade later take an SSRI and develop PSSD. My take is it could be understood through epigenetics (note how my phrasing was cautious). Taking certain meds mess up with your epigenome, at molecular level. Once they've dysregulated receptors (GABA, AR, serotonergic or what will you) because of some feed-back adaptation mechanism gone wrong it can last forever. Epigenetics doesn't mean "it can be reversed". It may very well stay stuck there until we find something appropriate. I very much beleive in the gut-brain axis, but it's a very muc hit-or-miss kinda science. It's not invasive, hence it's interesting. Bring gut motility back.

[@salugi5986]

Have you tried something dopaminergic?

[@outcast99vism197]

I remember my last day as a normal person before pfs started. To destroy me , was at 2005

[@visiteurvisiteur7301]

this so messed up...I am so sorry...how old are you today ?

[@brunothuin8586]

What's the name of the interviewer? Man, congratulations for what you do, these interviews didn't exist a few years back. Now the world is watching. Btw you look strong like fuck, I'd like to be back on Whey and BCAAs, you have direct experience on that? I gotta eat more, stimulate my gut, it'll stimulate the whole CNS... We've basically shut-down. My case was from ashwagandha, single pill.

[@DeeKay1301]

I think even if they find a biomarker, I highly doubt there is going to be a solution from the medical system. It is such a severe and persistent shift. It does not feel like another substance is going to fix this. And what else do they offer or are concerned with but substances?

[@N-xi2zh]

Medical system won't solve anything most likely. Carnivore diet, water fasting, hardcore diet and strength training.... and Trace elements inc. I had PSSD at 19-21 and practically cured it 23 24. AND PFS way worse at 30 and destroyed me but fixed it 31... but have lingering issues. WILL do carnivore for life and mineral balancing I don't care. I was alpha and ripped again and very attractive to the opposite sex if not better than ever but it took hells and a year off from work. Unfortunately I have other issues and need to get healthy mentally and physically. CARNIVORE will help ya.

[@Moral_Medicine]

Respectfully, we REALLY need to start shifting this narrative/mindset into a more empowering one. PFS/PSSD was considered impossible to begin with, and yet here we are. I prefer the mindset, "If it can be done, it can be undone." Flying, landing on the moon, and mapping the human genome are just SOME examples of things that were once considered impossible until they were done. CRISPR technology is now being used to treat diseases like sickle cell anemia and various other ailments, and these advancements are happening fast, but we really need to start fighting as a community if we want to see serious change, recognition, and eventually targeted therapeutics for our own ailments.

[@bigmac-ln8sm]

​@@N-xi2zhthat's also what i think. Pssd is fucking devastating in every way but pfs sufferers seem to be Destroyed on a completely different Level

[@Lottelu]

Its basically Neuropathy ..If its autoimmune Like in my Case its treatable..If you can afford it..

[@raffcotroneo1008]

Can you please elaborate Thx

[@bennybenny7382]

Ive taken mirtazapine for over 10 years and still no issues

[@visiteurvisiteur7301]

And ?

[@Jhannan0]

Alex Kikel is the best source to healing pssd/ pfs, there is always hope

[@michaelshannon9169]

I wonder if stem cell therapies could be used.