It Took 19 Years To Learn I Have Lyme Disease

[@faithamodios916]

doctors don't always understand that they don't know everything and that patient is a human with so much invested in a visit.

[@gracelessnesss]

It's not doctors it's hospitals and the system. I know, having a family full of doctors. Doctors are forced to a time constraint with patients and spend more time doing paperwork than anything :/ Unless you go to a private practice, most don't have the time to look into a lot of things for a patient. And that's not up to them.

[@elamericano9965]

Please don't attribute healthcare incompetence to administrative responsibilities. That's unacceptable.

[@isabelleknox3717]

z

[@grant8347]

+Leah Williams I went through and explained eds to a rheumatologist, got told every symptom I brought up were wrong, he googled it and then finds every symptom I explained and acted like he discovered these I almost hit him lmao

[@hepthegreat4005]

Lol. My brother in med school told me it was "like asthma".

[@enigmanonymous3702]

Buzzfeed should make a video on what it's like to have an "Invisible illness". Lyme, crohn's, POTS, hypothyroidism, migraine, etc are very debilitating but hard to get people to understand. If anyone has one of these "invisible illnesses", just know I'm here if you need to talk and it will get better as science advances :)

[@izzymiller7324]

I really agree. I suffer from neuralgia which is a chronic pain condition that is constant and completely invisible. It's so hard not to feel crazy.

[@Chromedeguenther]

I have POTS but it's not typically as severe as you hear about (too tired to get out of bed, ect) just makes it harder for me to stay in good shape and causes really fast, heavy heartbeats when I'm nervous or physically exhausted, lol

[@discoverwithdusty7942]

I completely agree. I'm only 20 years old, but I have never been able to work, had to leave high school, and rarely feel well enough to leave the house because I'm severely disabled due to POTS, Ehlers-Danlos Syndrome, Mast Cell Activation Disorder, Fibromyalgia, and possibly Lupus. I've had my chronic illnesses all my life and they only continue to get worse, even though my diagnosis and treatment process has been going on for over two years. My conditions are all incurable and I will likely have them all my life - it's just a matter of doing my best to manage my symptoms and reduce pain. Unlike other illnesses, I will never "get better". I feel better on some days than others, but my conditions will never go away. Even my own family doesn't take me seriously or believe that I could possibly be in constant pain, even though they've witnessed more of my symptoms and bad days than anyone else. Nobody truly understands what it's like to have your body fighting you every moment of every day unless they've experienced it themselves. It's a struggle just to survive and get through each day without going insane. (I also suffer from chronic migraines as one of my huge variety of symptoms)

[@ReptarsaurusRex]

Buzzfeed really should. They have many relatively open-minded viewers. I have POTS, EDS, and an unknown sleep disorder. I recently got a handicapped placard and I'm really anxious about getting stink eyes and angry notes on the windshield cause I've seen it posted countless times in the POTS fb group I'm in. I joked and said if I ride with my dad it won't happen lol ;D

[@Amanda-kx9st]

yes! I'm a college student with lupus and my teachers are so not understanding about anything because I "look fine." It's absolutely brought me so much mental stress and depression, in addition to the pain I'm already in.

[@pantherjk9746]

it took me 4 years but thats only because I wasn't diagnosed until I got a fever so high I almost overheated and died. didn't know I had Lyme until I was hospitalized and it took them a whole day to diagnose

[@julianguyen8914]

hopee things are well with u

[@-Omwtfyb-]

how high?

[@TheProductionsOfAC]

Good thing you're still around today.

[@pantherjk9746]

107 degrees farenheit

[@javanild0]

What are the symptoms? lol

[@barbecuesauce4397]

My mom has Lyme disease. It took her at least 6 years to find out. The doctors were not willing to test her for it. They finally did though. Bless her heart ❤️💜Love you mom

[@barbecuesauce4397]

Like to support people with chronic Lyme Disease

[@barbecuesauce4397]

+LDShadowlady Fan it gives you fatigue. The fatigue is so bad that some people can't get out of bed. You also can get joint pain and. The problem people are having is you take so much medication that it kills your GOOD bacteria along with the bad. The medication makes you worse before you get better.

[@jessd956]

Lyme affects every part of the body. Everyone's symptoms are different, but the bacteria invades everywhere it can. Lyme disease is called The Great Imitator because it can mimic over 300 diseases including MS, ALS, Lupus, Alzheimer's, etc. It destroys lives and can be fatal. Watch the award winning documentary Under Our Skin on Veoh.com to learn more. Also check out ILADS.org.

[@miranda75289]

It took my mom 20 years before they found out that her diagnosis of Multiple Sclerosis was wrong and that she had Lyme Disease instead. I think she's getting treatment, but she's having a hard time treating the Lyme and she feels horrible all the time and it's just so sad to see her that way all the time.

[@barbecuesauce4397]

+Francesca L I'm so sorry you and your mom have to go through that. I understand exactly how you feel. My mom was diagnosed when I was 5 but I still remember when she took me to the park every afternoon. She can't anymore because she is too sick. Just know there are people struggling too and others understand what your going through

[@lavenderclairy]

I've had Lyme for 13 out of the 15 years of my life. It's sucks. I just got diagnosed 8 months ago so the process is just beginning. Hopefully I can reach remission in the next 3 years. I just want to be a teenager for once and not be in pain or fatigued etc. Chronic Lyme sucks but I have hope that one day I will beat this awful disease.

[@maddyphillipps3402]

[@mammu3861]

[@cathym4138]

[@sonja747]

I have a new doctor who has cured over 80% of his patients with Chronic Lyme completely within three months, through a treatment that combines hyperthermia (artificial fever) and antibiotics. These informations aren't public yet since he's working on a study that will only be published in about to years, but you might find some information. I'm three weeks into the treatment and it really makes a difference. Don't strive for remission, you can be completely healthy again and you're gonna be. You're not alone 💚

[@daksha1263]

Hey! I just want to tell you that you're strong and beautiful. I hope you get well really soon. Love xo

[@BijoubyBecca]

I had Chronic Lyme for 7 years before getting a diagnosis. My boyfriend had it for about 2 years. They told him he had cancer and had 6 months to live, meanwhile, he had Lyme disease. We lived 4 hours apart but actually met at the same doctors office. We have been together for a year now and he's still fighting. I am in remission. IV antibiotics saved our lives. Never give up hope. :)

[@hintwater7839]

I am so happy you're doing better, Chronic lyme is so hard to deal with. I actually know someone who passed away from lyme (because his immune system was suppressed), So it makes me happy to learn people are getting better. I hope you have a wonderful day.

[@slumps3218]

Dizzyallaround get my song to 300 views plz God bless you 🙏

[@6oth6amer6irl]

How is your situation now, a year later? I have Lyme as well and am avoiding antibiotics, instead using homeopathy and a holistic approach including diet

[@mulhambakraa5539]

TheAngelOfEden how u feel now are u free symptoms??

[@imdad2324]

Dizzyallaround Very inspiring story:) Keep fighting!!

[@benklenk9363]

I've had Lyme disease for 7 years now and I'm 17 years old. I'm trying to spread awareness of Lyme. I ask people to please be patient with anyone with Lyme because we can't help it

[@makaylamayelian9307]

my mom has Lyme I am dying my hair green in may

[@MT-mr5dw]

Aww that's Sweet!

[@davepitassi1066]

I hate to discredit you as you may have something but chronic Lyme disease isn't a real thing. The CDC even advises against long term antibiotic treatment for it as there is no hard evidence supporting the idea it actually exists or that it is caused by the same bacteria that causes Lyme and not some other bacteria

[@charlieredmond7805]

+Chris Vachris it's because the government made the disease itself in plum island. they want to make it look smaller and more insufficient than it actually is

[@SVJLuna]

What does it do?

[@jennyjennyjenny]

I would love to see a video on tourettes, Im 21 and Ive struggled with it most of my life and its only gotten worse as Ive gotten older. You dont see a lot of represention out there for it and its INCREDIBLY misunderstood or misrepresented.

[@mysticalmidnightmask]

+samueljcomroe he's hilarious

[@ShineHatfield]

Me too. I'm 21 also and my Tourette's is also steadily getting worse.

[@iks2515]

what is tourette?

[@jennyjennyjenny]

"Tourette syndrome (TS) is a neurological disorder characterized by repetitive, stereotyped, involuntary movements and vocalizations called tics." its almost always comes along with anxiety and OCD, which I also have.

[@lemonicowo]

Yeah, I'm twelve and have Tourette, though when I tell everyone- I have been asked uncountable times if I uncontrollaby curse or yell at random times. I feel like there is a huge understanding when it comes to Tourette, OCD, or even just tics. I'd love Buzzfeed to make a video about it :)

[@BumbleTus]

I'm still undiagnosed, been sick for over 4 years now and I'm miserable and in horrible pain every day. But, stuff like this gives me hope. Maybe one day, they'll get it, and I can start healing.

[@Creekpaw]

I have no idea what your specific situation is (age money etc) but as someone who went through a year of not being diagnosed with post concussion syndrome (a traumatic brain injury), I think she gives amazing advice in that you gotta stand up to doctors and make them see. It's so hard but eventually itll work. As long as you keep fighting and trying new doctors eventually they see. (also side note huge huge fan of your work)

[@christiehope6962]

Please find a specialist. They are out there. You're worth it

[@fabk123]

Do you know how ridiculously easy it is to diagnose Lyme-Disease? Nearly every doctor here in germany tests for borrelia once a patient has specific symptoms like pain in joints etc. I honestly don't understand why this isn't a common screening in the US.

[@artichokez3270]

borrelia is nto the only tick pathogen it carries multiple parasites so you have to take multi antibiotics to take care of the lyme's disease and antiparasite meds like ivermectin for the other components along with natural immune boosting supplements like echinacea to help body heal faster

[@fabk123]

Yes, but borrelia is apparently the pathogen of the Lymedisease. Talking about other pathogens in ticks - TBE-Virus and Anaplasma are also damn easy to screen (and fairly cheap). It's the most common screening when getting stung by a tick. Or even when just showing that symptoms.

[@charlottev2904]

I'm purposely not watching this video cause I am a hypochondriac, I will instantly think have Lyme's disease

[@riasgremory9764]

same here, I actually watched it now I'm terrified help

[@Sabrina-sc1db]

SameEEEEEEEEE

[@AngelChick03]

i actually watched it because i am a hypochondriac and am worried about having lyme disease because i got bit by 4 ticks this summer lol :'(

[@soph403]

i am in the same boat as u guys. im terrified over every single thing whether its lyme disease or diabetes or ebola it all just freaks me out

[@foreverdachoclate3156]

OMG SAME

[@clareismyname]

When people tell you that you're making up the pain, it is the most depressing thing to hear. Because there isn't anything you can do to make them understand that it's real and that you can feel it.

[@moomoo4228]

they’re just practicing medicine and not everything is black and white what they learned how every many years ago when they got their education

[@marli8907]

I really hate when people say depression is "just making stuff up in your head." It's not. It's a real medical condition. It's generally a chemical imbalance. It can cause mental and physical symptoms. I know it's not what she had, but by her dismissing even the possibility as "being crazy" and "making things up" really is frustrating to someone who has struggled their whole life with it. EDIT: This is not to say you should not press your doctors and find your diagnosis be it mental or physical. I know very well that doctors will write you off, and you have to take your health in your own hands. I've had physical as well as mental health issues. And sometimes depression can result as a part of or a product of a physical illness, but I am simply saying that depression is REAL and can come with both physical and emotional symptoms. And should've be written off as "in your head" as if you can just fix it by thinking hard enough about it for a few minutes. I'm very glad she got her diagnosis, and if you are searching for yours, best of luck. Just be open to look at ALL the avenues and don't write anything off as "all in your head."

[@IohsmdIglomdrnIjsmsIhafmIafmli]

I'm always depressed and I don't know

[@XigXag]

It's like people don't realize that saying that just makes depression worse.

[@littlepixielover]

I thought the same thing.... Seeing a psychiatrist has such a bad stigma. It's sickening. Also, because doctors misdiagnosed you doesn't mean they don't know anything. Do you know how many things have similar symptoms.?!

[@moriarty8668]

Yeah. It hurt even though I understand where she's coming from. Having major depression and BPD and GAD and OCD and hearing people dismiss it as "being crazy" and "making stuff up." It happens all the time and just makes people who are already in agony hurt more.

[@discoverwithdusty7942]

The reasoning behind her reaction is because many people, especially young women, with (physical) chronic illnesses have the diagnoses of "depression" and "anxiety" thrown at them because the doctor believes the patient isn't suffering from a real physical illness and are instead brushed off as it being due to hormones or their symptoms being "all in their heads". Depression and anxiety are both real, serious things, but doctors overdiagnose women with those two labels simply because they don't believe them and don't want to bother investigating further because they aren't taken seriously and the doctor accuses them of exaggerating. Especially when it comes to POTS and other conditions that cause symptoms similar to anxiety, but it's due to an actual physical problem rather than a mental one. Since depression and anxiety are very common, many doctors jump to that conclusion without bothering to look for more answers.

[@JORDANLEWISFILM]

Thank you Buzzfeed for bringing more attention to this disease. It is much more common than statistics are saying.

[@jessd956]

Yes 1-2 million new cases in the US each year!

[@elisesl7107]

I am 15 and have had chronic Lyme disease for 3 years and I'm finally starting to get better with treatment, so I can step out of the house and go on short walks with my dog:) this illness has made me appreciate the small things in life! And I can't wait to get better so I can see my friends and stuff like that in the future ❤️

[@schwenzie4ever]

i'm 15 and i've had it for about 6 months, i've been on two rounds of antibiotics but my body hasn't recovered and i'm still weak and always tired and i hardly eat, plus i get headaches so so much (really bad ones) i can't wait until i'm back to my old self :-)

[@hwestanna]

I had Lyme disease when I was 14. Luckily I was diagnosed very soon, but I was real sick of all the antibiotcs I had to take, I could not eat. I went down to like 40 kg (88 pounds or so) and I'm 177 cm (5 ft 10) tall, so I know its really hard and it takes some time, but I'm 27 now and I'm totally healthy and have been that for a long time now, sooo you'll get there!!! Believe in yourself :)

[@zee8802]

Not to sound rude and all, but what is Lyme disease? I apologise, I'm only 11 :P so I'm just wondering :)

[@jessd956]

It's a potentially devastating bacterial infection that is becoming the fastest growing vector borne disease int he Northern Hemisphere.

[@xxfallenangel1995xx]

I'm so happy to hear that you're starting to feel better!

[@Emmaffia]

Who ever is reading this I just want to tell you to have a great day and life

[@abbi4210]

thank you !

[@DeadPool-pq6wo]

have great days.

[@Octayvia21]

☺🤗

[@znicoll_]

thanks, i hope you have a nice day as well

[@ingerhaugland6763]

Thank you!

[@heartofthra]

I was finally diagnosed with Lyme after I got Bell's Palsy and half my face was paralyzed. Had to get a PICC line when I was 12 because of how debilitating it was. My doctors are pretty sure my scleroderma morphea was caused by my Lyme too. And I was never anxious or depressed before I was diagnosed but after I got sick my mental health went down hill. Lyme is a lot more serious than people realize.

[@potatoO0o]

I also had Bell's Palsy! Seeing how many people have a permanent 'droopy side', I'm thankful I live in a country where they take it seriously. I was back to normal after a bit more than a week.

[@theosmagictricks]

Bri Wright I feel you.. I wish you well on your journey... ❤️🙏🏼🙏🏼🙏🏼

[@BellaIsMyBaby]

Couldn't agree more. I have had it for 20 years and doctors have been very unhelpful and I don't know what to do at this point

[@Mothershipmaher]

Yes it is! My nine years old was diagnosed a year ago. She has been struggling mentally for months now and has even tried to harm herself bc she “ couldn’t control her thoughts and it was acting her” she also has sever body pain that practically paralyzes her some days.

[@SimpLich]

@@BellaIsMyBaby hey Morgan how are you now?

[@amantedelmondo1787]

Why am I such a hypochondriac? Now every time I'll get a simple headache I'm gonna be all freaked out...

[@kayleeconnally5471]

I think everyone will

[@itsalivia23]

When I had it I was extremely achy, extremely exhausted, etc. it got to a point when I couldn't even walk. I had to crawl to the bathroom and I just laid there at 3am. For the weeks in advance, I did so bad in school (I'm 15 and this was last year) and of course I failed like all of my state tests and my teachers would tell at me because they thought I was slacking. It was so amazing when I found out what was wrong and my principal talked to all of my teachers and told them what was wrong and they all felt really bad.

[@flor.a_qqq7697]

+itsalivia23 there are state tests in high school!?

[@itsalivia23]

+MEEPISMEEPTASTIC there are in mine, but every state is different. I live in Virginia and our state tests are called SOLs

[@foreverdachoclate3156]

SAME

[@itsalivia23]

I'm 15 and it only took me like 3 weeks to figure out. I felt terrible the weeks in advance, I failed all my tests and it kept getting worse. Then one night I was so sore and just aching so bad all over and I didn't know what to do with myself and it was like 3am and I couldn't fall asleep. I crawled to the bathroom and just laid on the ground not knowing what to do with myself. I had to miss like 3 months of school and the whole time I had to just lay down all day long. My doctor thought I was crazy too, they thought I was being dramatic over the flu and he didn't test my blood or anything. I can't imagine having it as long as you did. This was all over a year ago and i still feel so exhausted sometimes.

[@lavenderclairy]

I'm glad you figured it out! I'm 15 as well and I've had Lyme for 13 years and recently got diagnosed 8 months ago.

[@itsalivia23]

+Claire Elizabeth wow I can't imagine having lyme my whole life. I'm so sorry, but I'm glad you got diagnosed so you can treat it!

[@jbadviseskillsandcrafts7099]

So many people have told me that i have lymes, ever since i was about five years old. This video made me realize that i have like, all of these symptoms. I'm going to do a little research about it. Maybe i can figure it out.

[@hintwater7839]

I had the same issue, I've had lyme and two other tick borne diseases since I was 10. It is the worst thing I've ever undergone. I would never wish this on anyone, and everyone who sees this comment I hope will get tested.

[@MpowerdAPE]

Most of the "doctors" I ever met would have been better off punching license plates....

[@Niko-el8ui]

I've had Lymes and a few co infections for a few years now and it is so nice that Lymes is becoming more mainstream. I went to a big hospital with really 'high up' doctors and he basically told me I needed to see a psychiatrist. He told me that I wasn't able to to go school because I didn't want to (I actually really like going to class) and it was all in my head. A year later, I found an amazing doctor and am hopefully in the last stretch of my recovery

[@Niko-el8ui]

I'm just thankful it wasn't worse. I could have been in a wheel chair or even partially paralyzed

[@annamayer1071]

good luck with your recovery! I had a similar experience. I hope that I can leave the disease behind soon as well, as I am starting to feel like a human :)

[@haley7540]

I had the same experience. Im now 18 but became ill 3 years ago. many doctors told me I was making it up, just wanted attention, and actually referred me to a psychologist when I had actual things going wrong. after about 8-9 doctors telling me that, I actually started to believe that I was making it up and going crazy. After tons of research, my mom finally discovered the truth about lyme and got me tested by Igenex. I didn't get tested or my results until about a month ago, and they were positive for lyme and multiple co infections also. my sophomore year of high school I had to leave because I simply could not get out of bed anymore. my junior year was completely online, and then I returned for my senior year, only having to do homebound schooling for the last semester. I then tried to attend college, but had to leave after a week because I was in so much pain that I was passing out multiple times a day, and then eventually lost the ability to walk. Im so happy you are recovering I love seeing people get healed from this life sucking disease. now hopefully I can find the perfect treatment for me and return to college!

[@amandac8029]

Honestly the American Healthcare System is horrendous. I get upset just thinking about all the people out there being told they're ok, when they're really not. My mom almost died when she contracted an infection from a procedure she was told she needed, but in reality was completely unnnecessary. She is still dealing with the repercussions today. She hasn't been able to shake this infection, all because of an incompetent doctor. But hey, that crappy doctor inspired me to go into the medical field, and after all the years of seeing my mom suffer from other chronic illnesses, I will fight to the death to help my patients. For anyone going through a similar struggle, know this; you know your body best. If you think something is wrong, something is wrong and don't let any doctor tell you differently.

[@znicoll_]

its not just america!!! sometimes i feel like the whole world is living under a rock 😂

[@ca9782]

$1Trillion a year in military spending in the U.S. but for some reason healthcare isn't seen as a priority.

[@stilver2001]

+Donald Sanders U.S. healthcare spending was $3.8 Trillion in 2014, how it isn't a priority

[@thatdramakid9830]

I hope you make a difference here! We really need more doctors that are willing to treat their patients properly!

[@nickbailey862]

It’s not just a US thing.. here in UK it’s just as crap.. yeah it’s free, but only certain things are done on NHS due to funding… I think the health system worldwide is built on profit and masking symptoms not solving disease…

[@jessicah3450]

I’ve had this for 13 years, and was just diagnosed today. I lost all of my 20’s to this. I am now 33 and just starting my first round of antibiotics. I was always treated for depression and anxiety, but my blood tests always looked like I had an infection, which doctors ignored. I failed almost every treatment (over 40 different pills and expensive TMS) for depression and anxiety. One doctor finally started to look into why my white cells were always so high, and it still took 4 more years. I’ve been through countless psychiatrists, an oncologist, 3 general practitioners, an endocrinologist, and tons of nurse practitioners and no one checked for this. You have to be your own advocate and keep insisting when you know something is wrong. Doctors would find what looked like an answer, then give up, or pass me off to a different specialist. I have been told I was just lazy more times than I can count, even by my own family and friends. Of course, now I find treatment after diagnosis is a whole new battle.

[@SimpLich]

How are you doing now Jess?

[@1622-p2t]

I’m in a similar boat. How has treatment gone for you?

[@ddookkii]

It took my mom 35 years to figure out she had Lyme disease. And it took her 5 years of going to doctors to get her diagnosed with it. All while being a single mother and not having a high paying job. She also had to go through a 5 year long divorce that made her loose a ton of money. So thank you mom for taking care of me even though you had to go through all that.

[@Gii7077]

i've struggled with undiagnosed chronic illness and my experience was SO much like this. My experience with doctors, the fact they thought i was making it up, how they dismissed me, how all i wanted was for someone to take me seriously and try to figure it out. i've never felt so understood by a video in my life. you're a warrior, and anyone dealing with chronic illness, undiagnosed or not, is also brave. and strong, and will get through iany tough times

[@HotPinkSun]

This video is important

[@madirose2455]

THANK YOU FOR DOING A VIDEO ON LYME! Lyme has taken over my life for 7 years. Many doctors told me it was all in my head. I'm getting treatment now and I am getting so much better. You are not crazy! We are not crazy! We are survivors!

[@SimpLich]

How are you doing Madi?

[@izzyx23m11]

Thank you for sharing this story. As someone who has gone through the EXACT same thing and who is still really struggling, it is comforting to know I'm not alone. The feeling like your crazy is the worst part. I hope you are doing well now :) Sending love and support

[@jessd956]

There are so many of us with a similar story

[@SimpLich]

How are you doing?

[@mrbfros454]

I’ve had Lyme for at least 20 years and just got diagnosed about a year ago. Having an invisible disease is so hard, but there are way more resources and answers now then there used to be. I’m a “full of life, get it done” type of person but I quickly found out that, with Lyme, the more I push the worse it gets. It makes me feel guilty when I’m going to bed when I get home instead of spending time with my family. Especially when I’m cranky and just want to be by myself. I hate being this way, but I can’t make it go away. Lyme is no joke! Hugs and prayers to all who are fighting this. We will beat this and come out the other side better for it!

[@rienjen]

Thank you for this wonderful, tragic, beautiful video. It's very real, and as someone who has experienced what it's like when doctors misdiagnose you, I also know it's very common and usually preventable.

[@WhysProfit]

Wow, well explained! We need more people to share their stories in an authentic and creative fashion. I wasn't diagnosed for ten years, but once I was, I worked on healing myself like it was my job. Now that I'm healed, I'm joining the cause and making videos exploring my recovery. I hope they inspire you, because healing is possible. I'm not offering false hope, because you have to do the work. If you do the work, you can heal.

[@salemtrinity444]

I habe neurological symptoms, heart issues now, arthritis, and other things. I'm tired all the time. No one believes me. It is very hard. I have a 12 year old son. He's the best. He's the only reason why I'm still on earth!

[@eliskakomarkova]

Great that buzzfeed is raising awareness for Lyme. I contracted it at 14, had very quite mild symptoms for years (stiff neck, swollen knees, back pain, short term memory and concentration problems) it went crazy after a car crash at 28yrs and I developed severe symptoms, most visibly leg weakness, so I am in a wheelchair now. Other things are not great either: eye, face and body twitching, forgetting words, short term memory gone crazy. I have moments I get so tired I cannot move, cannot hold my head up, cannot talk. It is disgraceful how many doctors are trying to tell you it is psychological. But we just cannot let go, you have to keep going! Hi to all Lyme sufferers out there, keep up the great work!!!

[@alforj39]

I wasn't diagnosed for 15 years. But I thankfully got treatment and just finished a master's degree!

[@Canadian_Eh_I]

Hi, please can you tell me what you were prescribed?

[@caitlinaugustine7345]

Her service dog is so cute!!

[@maryj8548]

As someone with chronic lyme it means a lot that you guys made this video. Thank you for brining more awareness to this disease.

[@thirdeyecode]

Amazing! I love her insight and her decision to follow her inner voice. I recently discovered I had Lyme after I got Bell's Palsy , late stage Lyme and had to drop out of med school, Still recovering. It is the hardest and most misunderstood disease. Definitely requires more awareness.

[@mandyt9812]

let's hear it for us POTSies! I know exactly (with each own experiences) what you went through, I've had major health problems (not just POTS) and have been through 20 different doctors. I'm so sorry you've had to go through this too. This gave me some more hope for myself.

[@kaylee3928]

POTSies unite!

[@zackosborn2017]

Word

[@lilbihxxx1234]

i have Autonomic Dysfunction... it's similar to POTS and it took me a year to diagnose...my classmates always try to look out for me because they know I could faint at any time..

[@BijoubyBecca]

Here!!!

[@angelichapa]

Finally got my Dx of Postural Hypotension here... fellow dizzy-fainters whoo?

[@thebadusernames3604]

Btw. Avril Lavigne had Lyme disease. That's why she took a break. Or you can believe the conspiracy theories that actually kinda makes sense. Your choice.

[@jessd956]

Watch the documentary Under Our Skin at Veoh.com to learn more about Lyme disease.

[@jessd956]

www.veoh.com/watch/v21055812yWtmpgB8

[@mayarae4371]

Nah, the conspiracy theory is fake. The person who made it confirmed it. Avril's now making music in the studio again

[@alyikuun4722]

she was racist.

[@thebadusernames3604]

+Alyi Kuun what??...

[@Nicki_Gee]

I feel really lucky... I had some fatigue recently and even though I knew I didn't have Lyme disease my doctor wanted to check for it anyway... These poor people.

[@znicoll_]

your doctor is amazing then!!!

[@devonkinney3163]

just make sure you get it tested through the right foundation because many tests dont pick it up even if you do have it

[@tst.v2926]

Nicki Gee ~*~ assuming your testing was a full western blot. LabCorp refuses to just run a western blot. They tell you that you are negative because you don’t have EIA antibodies. Quest might do the same thing. I got 2 notifications “you don’t have lyme disease”. Then I got an independent lab to run the Western blot. After over 12 years of issues I have Lyme disease.

[@burningbright5039]

@@tst.v2926 how did you get private lab to test?

[@tst.v2926]

@@burningbright5039 I lucked out a dr signed off and my insurance paid for Igenex. Igenex will let you know before doing anything if your insurance won’t pay. If you do test you need to do things to tick it off before testing so it’s more likely to show up. Carb load and if you find anything that makes you feel worse like stevia have a bit before testing. Testing. They sent a kit. I take said kit to the hospital lab and the lab gets paid by insurance to draw blood and mail it. That being said no test is even close to 100%. So I get the test back and Joke is on me. The dr doesn’t know how to read it. I have a specialist read it. Dr who can’t read gave me a “crap she’ll fire me if I don’t give her something” 6 weeks of amoxicillin (you can buy and have shipped in to USA and it’s legal for a 90 day treatment). After 6 weeks I had changes. I like different colors, different clothes and have different taste if that’s not really weird. I found out most drs that treat lyme charge 500 a visit out of pocket. I self treat with Healing Lyme Buhner. You pick what herbs help and doesn’t interact with any other medications you take but you do research.

[@sabronii]

Such an amazing video... I'm a vet tech at an animal hospital and not only have I seen this disease affect animals lives but I've heard some terrible stories involving humans as well. So glad that she was able to find such kind doctors after such a long time, almost every story I've heard about this disease at work has almost always ended in such a disgusting way. Hopefully this issue becomes much more serious within the next few years, as it's affected so many lives and like her doctor said, this is NOT an easy thing to go through.. xx

[@bldbthldzalafz]

I appreciate this video so much. My dad was really sick and we couldn't figure out why. It took a long time for him to be diagnosed with chronic Lyme disease but that's what it was. This really hits home. Thank you for posting your story.

[@cutekitty90]

I have had Lyme disease for almost 9 going on 10 years . Along with co infections . I didn't know till a year later ! I would sleep 20 hours , neck stiffness , joint pain , muscle pain , chronic fatigue , difficulty figuring words ,ect people don't understand what we go through!! I was on a picc like for 8 months that help . I am now down too 2 pills 3 days on 4 days off . I understand what your going through . You have to go to a Lyne specialist !! Things will get better . Positive thinking ❤️

[@BigMamou367]

cutekitty90 what type of Doctor treats Lyme?

[@panicatthechemicalpilotsbv3691]

OMG I feel so bad for her,shocking how she didn't know

[@davepitassi1066]

I hate to break it to you but Lyme disease isn't chronic and can't last this long. Even the CDC advises against long term antibiotic treatment because there is no hard evidence backing the idea that chronic Lyme disease is even a possibility or that it is caused by the same bacteria that causes Lyme disease

[@chrisfeeny3754]

Thank you if ur doctor diagnosed u with chronic Lyme disease they should have their license taken away

[@kairose66]

Um, sorry, but Lyme disease can absolutely be chronic and can last this long, especially if left untreated. I know too many people still battling it and trying to get it under control. And not only can it be chronic itself, but it can also cause other chronic illnesses such as POTS and CFS (like mentioned in the video).

[@kaylee3928]

it's actually really common for people to go a long time without getting dx with lyme. And to the person above me Lyme can last this long and go into chronic lyme. Some doctors just don't believe it but it is a real thing or even believe lyme is an actual disease. Yes chronic use of antibiotics is bad but there are special cases like lyme that it is proven to help the symptoms of lyme. CDC doesn't have to believe it but the doctors who are treating lyme do and that's all that matters. If it's helping the patient get relief from the symptoms then good. There is also other methods of treating lyme and chronic lyme. I know what I'm talking about because I've done my research, talked to doctors about lyme(you have to get a lyme literate doctor though), a lot of my friends have lyme and I've talked to them about it.

[@chrisfeeny3754]

Ok so if a get diagnosed within two weeks of contracting the infection and I'm put on a strict antibiotic regiment will it still be chronic

[@skateboardingislife6696]

I had lime disease on my neck when I was little and thought it was from eating to much lime lmfao

[@livh5525]

Omg lol

[@himekobelphegor153]

+Love Lol fat

[@allieawesomness9867]

BWAHAHAHAHAHA!!!!😂😂😂

[@allymcbryar4963]

I had Lyme disease on my neck when I was little too. I actually didnt remember ever having it so I can't relate about the lime thing 😂

[@donalddark7962]

Himeko Belphegor judging by your profile name & pic .... You got reckt

[@greymushroom1]

it's one of the things why I hate doctor. i dont expect them to know everything but I know how I feel. I'm not going to you freely I'M PAYING you to help me. the least you can do is not be so condescending and arrogant to dismiss what I am telling you that i feel is wrong with my body. I feel like there need to be a course or some other means where you can demand a treatment you want, maybe go through some form or something but you can have that control to get what you want.

[@rougestryker]

That is true with me too. I went to one for depression and I just talked to him about random stuff like I can't get a job, not doing good in school, but those weren't the real reasons I went to him about. I thought he was going to dig deeper. All he told me was I have other people that are worse than you, like a lady that was so depressed she can't even get up from her bed. After that, there was no point talking to doctors, they probably think I just wanted attention.

[@greymushroom1]

Rouge Stryker same here and it shouldn't be like that when you are seeking help,. even if its attention it shouldn't feel like i am burdening people who I am paying to help me and who studied ten years to do this job that requires helping people. I've went to doctor about a pain in my stomach and he literally told me maybe i'm eating too much. i swear i wanted to strangle him how dismissive he was.

[@Cazanu417]

then dont visit one,if a doctor tells you something you have to realise they are the experts not you,even if you feel something and they say you are fine,chances are you are fine no need to over react and get mad when they tell you its in your mind or whatever.

[@smartdust6211]

Fire the Doctor. If you need meds, go find it. Treatment? Get on a plane and get it. Sometimes the battle for health means taking initiative.

[@lucinda2329]

Learning to let go of the old self is such a great point in moving forward. Definitely gave me something to think about. Thank you. Wishing you a happy healthy life!

[@Gladwin777]

You're a true inspiration

[@Avbitten]

get a bigger tank for the fish in the opening

[@faithmarie749]

this is too real. Lyme disease and coinfections are awful. for many chronic illnesses, this is the reality. and the worst part is, there is no cure and it takes many trial medicines to find something that helps you.

[@marissa5152]

I have had Lyme disease for 2 years and it caused sinus issues and anxiety and other things but now I am starting to feel better

[@invinciblesummer13]

I'm so so excited to see this video, my dad has Lyme disease and has for 7 ish years. He hasn't been able to work for about 6 years. I've never seen anything in the media about Lyme disease, I'm so so glad that buzzfeed is bringing awareness to the disease!

[@SimpLich]

Hows he doing?

[@walidzein1]

Most of Today’s doctors shouldn’t even be called doctors

[@bonniebradley6461]

For sure. My Dr tested me last month. Both of my shoulders were so painful I couldn't drive. First thing before testing me was steroids for 2 weeks. As soon as it wore off the pain was twice as bad. My Dr told me he couldn't help me. I have gabapentin and tramadol from a back surgery, from 6 years. The Dr sent me to a surgeon. He gave me ibuprofen 600mg. That was like baby aspirin. Every plays I found was $$$$ no insurance! This is $344.00 for 1st. Then it's weeks or months. $9000. For 14 days. All natural medical. Really? Why don't Drs know how to help us. I really like my Dr. until this disease. He was mad at me. He told me to get rid of my dog!! Cane Corso dogs are 1 person lovers! You can't just give it away. This Dr was on track for the disease, but he didn't help me. He told me to go to the ER. Which was telling me the Lyme is practically gone. Now comes the pain that should have been given Morphine! Not happening.😭

[@hickory588]

I agree 100%

[@donaldpasserelli3529]

100 percent

[@BaljinderSingh-xy4ik]

They're so bad in dygnosing any disease

[@kingjoseph5901]

Buncha quacks out here

[@straybeans143]

I was tested for Lymes disease and turned out I have Chrons disease, it feels very similar and the symptoms are almost exactly alike. My doctor did everything to help me figure out what was wrong she knew I was sick, and she did. I'm not healed but I am on medicine to help me, I always have pain and am tired. People tell me "not to get old" but I'm physically older than they are I'm not even 20 yet, and have had a lot of hardships but things will always get better.

[@karlie4883]

I have it too. it really sucks because of the amount of medication and time at the doctor I spend.

[@skystygian]

i know exactly how you feel, i'm 17 and on top of type 1 diabetes i'm now dealing with really disabling health issues and have been tested a ton with no positive results. it's frustrating and terrifying and i have the energy of a 100 year old but i know i will get better, whether it's through my own methods of treatment or a doctor finally diagnosing+treating me. i wish you the best of luck with your disease. you will get better.

[@jessd956]

Lyme disease can cause Crohns and many other illnesses. Get tested at Igenex labs.

[@Ultravioletfinche]

Ugh, I hate that feeling. I'm 14 and about to be put on weekly injections so I'm not in pain all the time, which I'm freaking terrified for... I've had arthritis since I was 2, and I'm so used to it so it's never bothered me until I got diagnosed in my hand... Even though Chrons and Arthritis are 2 different things, I know how to fell when you say you feel so much older

[@NotAnotherKuromi]

Surely the massive digestive issues easily separate Crohns from Lymes (without getting into too much gross detail.) My mum has Crohns, it took a while to find the right balance of medications but she lives a relatively normal life now... I hope you manage to stabilize too.

[@cwillard]

You should do something about POTS. It needs more awareness and sucks as it takes a while for the doctors to finally pin it down as the diagnosis.

[@kairose66]

Yes!! It took me 4+ years to get diagnosed. I was so happy that it was mentioned (albeit briefly) and would love a whole video dedicated to it!

[@enigmanonymous3702]

Omg yes!!! It took me 7 years to get diagnosed and all the stuff she said in the video sounds so familiar! I still feel like I'm making my symptoms up since I was told I was doing that for so long.

[@maisy8130]

i googled POTS and now i think i have it

[@Jennawashere9707]

Yes! My friend has POTS and it took them months to figure it out. She missed a ton of school and was in and out of hospitals every other week.

[@FireFoxYoutubization]

took them months to diagnose me, after being told I was depressed and missing so much school. POTS needs more awareness brought to it

[@equinox14]

I have this too. I want to share this on my social media because it's a great advocacy and educational video. I'm sad because of the two swear words (and the F word is a big one) I won't be sharing this. Just my personal stance not to share things with curse words. So BuzzFeed, please know more people might share this valuable information were it clean language. It's a shame. I really wanted my family, kids, and friends to watch this. Chronic Lyme disease is the worst I have ever gone through. Katie, thank you for your courage and tenacity. Best wishes on your recovery.

[@allyxx2030]

She is so pretty, I'm glad that she is almost 100% right now. I've heard about Lyme disease and it's just so sad. I'm glad that you got to share your story to help the awareness of this disease. Stay strong all the people that have it. I hope everyone finds a doctor that believes in them

[@meggiegram]

Ugh breaks my heart... this is extremely relatable. I went undiagnosed for 16 years. ♥️♥️♥️♥️

[@nargizarzu6315]

Both my mom and I were diagnosed this year with Lyme. Both of us struggled for years, everyone denying that we are sick, everyone claimed that we were just depressed and that the pain and struggle we feel is just in our heads. It's ridiculous that it always takes so long for people with lyme disease to get the diagnosis and get treated, it really breaks my heart.

[@rockwellthegreat7118]

I see it so commonly with multiple family members and wonder why

[@MadisonM1]

I know it's ridiculous to be commenting something like this on a video like this, but this girl is so pretty. I don't want to make it about looks or anything because that doesn't matter and I don't want to make it seem like such a trivial thing is more important than her struggle. It's just something I noticed. Also, her long hair pics make me miss my long hair.

[@generationx9294]

I haven't even finished this 5 minute video.. only 1:45 in and I feel like crying. I already know what you're going through. I'm 52 now, a Mom of two 20-something Sons ... I know now that I contracted Lyme disease, erlichia, babesiosis etc when I was about 9 or 10. After 2 pregnancies and when I was 30 yrs old and *suffering* from everything you mentioned and more, I found an "outside" doctor (outside of my HMO) who I paid handsomly out of pocket based on a sliding scale.. but worth her weight in gold. She is a God-send. Her name is Dr. Teresa Yang in San Diego. She diagnosed me in 1998 and wrote a letter to my primary (Kaiser) physician requesting he "work with her to treat me." She sent all my lab work to him and he graciously agreed to co-treat me as far as the meds I would need for treatment, etc. I was treated aggressively, long term with antibiotics etc. Unbelievable to find a doctor who actually works thoroughly, diligently & tirelessly to help their patients... actually believes in them when they express their concerns, symptoms, pain etc. as I found in Dr. Teresa Yang. On her own, she even submitted for me to have a disability parking placard that I've had for 22 yrs now. I still suffer and endure other health crap but strive to be my own best advocate health wise. Looking at me you wouldn't know the invisible disabilities I have. I feel for every single one of you and empathize with you, no matter what your own health problems and journey may be. And "I get" that whole invisible illness/disability thing. That's me. Peace, Love & Light 🙏🏽💜🔆

[@ErinLynnMUA]

I started getting really sick in my teens. Fast forward to now & I'm 33. I've been housebound (& sonetimes bedridden) for 6 yrs. I was misdiagnosed all that time & my symptoms got worse & worse. Only recently did they find I had Lyme Disease, Babesia, & Bartonella. I'm a year into treatment & am starting to see improvements. I've been able to leave the house a bit here & there & it's the best feeling ever. My mom even took me to get my hair done. I previously was not able to sit up for that long. I'm so glad buzzfeed made a video on this. If your sick with Lyme, don't give up. I know how disabling & heart breaking it is. I can't wait until I'm able to truly live again & will fight for that every day.

[@SimpLich]

How are you doing now?

[@deepfriedcharlie]

A friend of mine is in the same situation. It is crazy, she wakes up in the middle of the night with so much pain in her back that she is throwing up all night. She went to the UK because our doktors say that it is between het ears. Now they found out she has post lime disease. I wish you the best!

[@deepfriedcharlie]

doctors* her* excuse me

[@NotAnotherKuromi]

Where in the UK did she go?

[@ramenchuu]

.... I've woken up in the middle of the night with back pain the makes me throw up. Been feeling endlessly fatigued lately. Hope I'm fine, don't remember ever getting bit. I haven't had back pain episodes in awhile, I think it was a pinched nerve by the way I slept. Hoping the way I feel will go away, my friend has Lyme Disease. She can't afford it, it's not insured, and it was hard to find someone willing to listen to her. I can't afford to do all that either!!

[@Emily-ro9co]

my hypochondriac senses are tingling

[@MilkyCollective]

Same

[@jennyplatypus8961]

Dont worry karma will help you out there...

[@MilkyCollective]

Oh..? We're talking about ourselves not the lovely young lady on the video.. 😳

[@Emily-ro9co]

I was talking about how now I'm worried that I have it because of it took her 19 years to figure out then I could because I'm only 15

[@essetaok]

I just didn't understand why she has a service dog, can anyone explain me?

[@RolfCityDirtHunt]

it could be an emotional support dog.

[@millythomas7707]

Yeah, a lot of people get dogs for anxiety, which was one of the symptoms of lyme

[@thecrazyhobo]

Some medications are very time sensitive and many service animals can act as a sort of clock to remind them to take their meds. Some meds may also have side effects that could require the help of service animals, such as fetching the phone in emergencies. There are MANY different tasks a service animal can do for disabled people.

[@devonkinney3163]

she could have seizures or fainting spells due to lyme. most emotional suppourt dogs dont have vests that say no touch no talk no distract

[@emilyharley2342]

It could also be because of her anxiety and depression

[@kellywolff624]

my best friend has Lyme disease and usually I don't like buzzfeed but I'm glad they made this video. Lyme disease needs more awareness and has to be taken seriously. It has been so so so hard on her and it's just great to see that big corporations are talking about it. everyone please be aware of this disease and buy Lyme awareness bracelets to donate money to help research with Lyme disease.

[@MustangsTrainsMowers]

My tick bite was between 1982 and 1984. My Lyme disease diagnosis was 3 decades later in June 2013.

[@abbieb225]

Wow buzzfeed, thanks for giving me another disease to worry about XD

[@LipSyncLover]

if you're healthy, dont waste time worrying about disease.

[@xxfallenangel1995xx]

Lyme Disease has been around for a long time. I'm surprised you haven't heard of it before. It can be transferred through Deer Ticks where I live.

[@dananezat]

this is probably only one of the ones you should worry about considered half a million new people will become infected each year and millions are walking around not knowing that they have lyme

[@samthepan7994]

Is the service dog related to her having Lyme disease? I don't know much about the disease so idk

[@morgan-mg8ii]

maybe it's because sometimes chronic lyme disease can cause heart problems and maybe the dog is there to help notify her when/if something like that happens ?? because most of the time you don't feel a heart thing (mostly heart attacks) until it's too late but idk if that's why

[@avianroyalty1158]

Beats me, I have Lyme and don't need one whatsoever

[@luxconcept]

There are emotional support service animals. This may be what her dog is serviced for or perhaps what someone else said as well.

[@korrineh.6633]

ESA's and Service Dogs are completely different. ESA's aren't specially trained and can only be in no-pet housing and on flights. They have NO public access rights at all. Service dogs are specially trained to assist with disabilities by doing tasks for the handler who has a disability or disabilities.

[@emilygemma4510]

It took me nine years. I'm 15 and i've missed 100 days of school just last year alone. I've had MRIs, CT Scans, blood tests, etc. and it wasn't even MY doctors (all 27 of them) who figured it out, it was my mothers doctor. See, my mom was extremely stressed out because of my situation, and she told her doctor how stressed she was, and her doctor said that I have Lyme Disease and she recommended a Lyme Disease Specialist. It was just earlier this year (March) that I was FINALLY diagnosed with something. I had so many different medications that all made me sick, and i've had to play around with different medications to see how different things reacted with me. On the blood test my Lyme specialist made me get, it says i'm positive for Lyme Disease, yet all of my doctors still say i don't have it. My pediatrician got so pissed off when i told him I was being treated for Lyme Disease that-in the middle of my physical-he yelled at my mother and I, and then slammed to door and stormed out of the room. I've had a headache every single day, 24/7 since August 2009 (I was 8 years old then, and my neurologist said "having a headache free day is just too much to ask for"), chronic pneumonia, anxiety, derealization, OCD, nausea, stomach pains, broken bones (Lyme Disease screws up your bone structure, so i've broken all 10 of my toes just by walking), sore throats, vision problems, and asthma.

[@lavenderclairy]

I'm in a similar boat. I'm 15 and have chronic Lyme as well and it sucks. It took me 13 years to figure it out and it was my friend's mom who recommend to check it out. I hope you can find a way to deal with annoying doctors and symptoms!💕💕💕

[@sachikawaii]

What is Lyme Disease caused by? All the symptoms you said I get and now im really scared.

[@JuliaJiggs]

Most commonly carried by a tic that has bitten you.

[@jessd956]

Watch Under Our Skin to learn about Lyme www.veoh.com/watch/v21055812yWtmpgB8

[@breannacraig2025]

This is so amazing! I feel really glad that you guys mentioned POTS in this video as I struggle with that. I really love this!

[@jamsienicole4328]

I share your story. I turned out positive for 4 strains of Lyme when I was 19. I was so tired, couldn't retain information, had headaches, joint pain, etc. I went to COUNTLESS doctors. Some told me I needed antidepressants, others knew something was wrong but didn't know what it was. I fought for YEARS. I went on antibiotics for 6 months but sadly my symptoms didn't go away. I went to a rheumatologist who diagnosed me with fibromyalgia and ANA negative lupus. Lyme and other autoimmune diseases have very similar symptoms. Wish there will be a way in the future to easier diagnose these patients.

[@mariatheye7382]

You guys should do something on Celiac Disease. It sucks.

[@undestatedperfection]

I have had Lyme disease for 17 years, I'm 19. I live in Australia so it is even harder to get that diagnosis here. I have had so much pain my entire life, but was only diagnosed 2 years ago after probably around 30 different doctors.

[@znicoll_]

i feel like the medical system in austrlia is crazy... i cant believe all we have to go through just to be diagnosed smh

[@undestatedperfection]

+Zoe Nicoll it's so ridiculous!! I have multiple doctors just tell me "there are some things science can't explain" basic them just saying, 'I don't know and I'm giving up trying to find out'.

[@znicoll_]

yeah... at least they should be suggesting other doctors or mean-while treatments

[@hepthegreat4005]

Not much better in america, but at least they'll admit that Lyme exists here.

[@rosehill9537]

Hi fellow aussie. Ive been told its not something ticks here carry by a doc( On a journey to figure stuff out) but have similar issues to those with Lyme. Its a hard road for any diagnosis esp when dr right u off no matter the country.

[@smokestrong1000]

I wonder if i might have this. my muscles always feel extremely sore and stiff and i always feel like my brain can't function how i need it to from confusion, anxiety, irregular heart beat. I don't really get sick though but i do remember being bit by atleast 2 ticks hiking.

[@johnreynolds1759]

same i got bit when i was about 11 im now 28 just wonderin if symtoms can come on years later

[@marvin2678]

@@johnreynolds1759 same, I read a lot of about it, and many of the symptoms also sound like long covid or Cfs in general. Maybe covid, Epstein Barr, and Lyme can all cause the same chronic illness

[@Happywholemama]

Thank you so much for sharing this. I have had chronic Lyme Disease as well as other co infections for almost twenty years now. If you ever want to talk or need some support as all us Lymies do please feel free to contact me. Stay strong

[@happydog7913]

Hello I would like to talk to you about Lyme disease

[@Lmao-rt4xs]

Hope that everyone with any disease cure and be happy again. Reading comments in this video of ppl saying they have/ their family have Lyme makes me so sad that they are struggling, I hope you'll always be strong and happy ❤️

[@vivbynature742]

I don't get Lyme disease. Don't you just get bit by a tick and *bam* you have it? Is that the only way to get it?

[@padlocktails26]

has to be an infected tic

[@avianroyalty1158]

Pretty much, half the time people don't even know they got it 'til much later (This is coming from a current Lyme patient)

[@ThingsWeMayNotKnow]

sex also. It can be passed threw fluids.

[@donalddark7962]

+Samantha Steed that's pretty fucked up ...I can't believe your parents brought you to this world ?

[@prmsolver]

I'm 19 and I have Fibromyalgia and Tmj :( All my symptoms even match up to Lupus!!

[@oogabooga6933]

Now I'm scared if I have a disease 🌚

[@luvzinexa]

I know right lol

[@eejhayjess]

me too...

[@ellipsisms]

Right? I'm paranoid now.

[@Sheepy_TV]

Same

[@4567a-x9d]

I'm not kidding when I say I have all the symptoms she talked about and I'm sorta freaking out

[@roxyguerrero6457]

Can you guys make a video like this for Multiple Sclerosis !!?

[@Maria-vo3lx]

Okay, so here goes. I was in my first year at college(12 years ago) and got the sizeable bulls-eye rash. At the time I had never even heard of Lyme disease. The outbreak lasted a few weeks off and on until it completely stopped showing up. I was told it was bed bugs and moved out of the dorms. To this day I have photos, and they are a perfect match for the Lyme rash. The ONLY symptoms I can think of that I have are slight knee and joint pain. But I tribute this to rainy days and exercise (the only time they show up). I have lived an organic, vegetarian life for the past 13 years. I also do TM, yoga and don't use any drugs, drink and do not smoke. Sometimes if you're fortunate enough, you can go with your gut instincts and live a long healthy life without the assistance of western medicine.

[@emmaketterer4830]

I was hospitalized with pneumonia when I was 11, and got a false negative on a Lyme disease test. Fast forward through a dozen doctors and three years of being bedridden and untreated, I finally found a doctor who was confident that I'd had Lyme that whole time. (And in the meantime, because of the damage to my immune system, I additionally developed multiple other co infections or chronic illnesses.) After over a year of taking up to 60 pills a day, I've finally tested (very) positive on a Lyme test. My POINT is that this video is not only extremely comforting to people with the same condition, but is also very important. Lyme/Chronic Lyme is a serious illness that is commonly misdiagnosed. All I ask is that those of you reading this NEVER make anyone experiencing health issues feel insignificant because of their limits or because they're having trouble being diagnosed. Also big thanks to buzzfeed for telling this woman's story and spreading the word!

[@emo2theextremo15]

When i watched this i remembered that Jessi Vee has Lyme Disease

[@YukiHakurei]

This video popped up today and it has me freaking out!! My girlfriend was diagnosed with fibromyalgia and depression, and is tired a lot. Right now, she's covered in tick bites (she loves nature and animals), and i find it hard to believe that someone her age has fibromyalgia. She said her testing came back negative for Lyme as a child, but I can't shake this bad feeling...

[@spicerat8433]

That's horrible... I hope your girlfriend gets well soon

[@Downright_Iconic]

Please see a Lyme literate doctor and fet her tested with the western blot test. The ELISA which is the more common test is super inaccurate and while the western blot still gives some false negatives it is more effective. Even if it comes back negative she should get examined by a chronic lyme disease specialist. DO NOT go to a generic doctor. They will literally mock you and call you a crazy attention seeker if you even mention chronic lyme disease being a possibility.

[@dananezat]

testing is false negative 60% of the time and also, testing as a child means nothing. she needs to see a LLMD (lyme literate medical doctor)..also join facebook Lyme groups...they will offer loads of information and be able to answer questions. Fibromyalgia is a "catch all" diagnosis when they don't knwo whats causing it...but its caused by something. she needs to see a lyme doctor asap.

[@dananezat]

use only either Igenex or Immunoscience Labs for testing

[@SimpLich]

It can be passed between partners, how are yall doing?

[@reidewasko4865]

I got Lyme disease and it wasn't that serious at all. Like I got it felt awful for 3 weeks and it's never come back, am I thinking of something else's?

[@madirose2455]

There is chronic Lyme and acute Lyme. What you are describing is acute, it only lasts a little while and then you're ok. Chronic Lyme lasts a lifetime, that is what she is talking about in this video.

[@jessd956]

Imagine feeling the way you felt, but nothing would make it go away, and it got worse all the time. That's the difference. Glad to hear you got well.

[@morgan8385]

chronic lyme isn't real

[@jessd956]

3825 968 That's ridiculous and patently false.

[@morgan8385]

Jess D No, what's ridiculous and false is claiming you have a disease that is not supported by scientific evidence. Most everyone in the medical community would agree with me.

[@nat1593]

I have struggled with Lyme disease for about 6 years now. I have been to many doctors but they didnt know what was wrong. They just said that it will get better and told me to stay active and positive. We listened to them but working out was just making it way worse. After a couple of years and many doctors we now know that I have Lyme disease and will start my treatment in 2 weeks. I am very happy that we have found some cure and I hope it works. Lyme disease definitely needs more attention and awareness.

[@Mary-pw1ki]

Thanks for this, and for being so open! I had a good friend and a niece get treatment for Lymes disease down in Arizona. sounds a lot like your treatment, where they felt a lot worse before they got better. Those in the medical field have got to stop relying on their own experiences, and really listen to their patients. I'm glad you're doing so much better now.

[@lavone5541]

What kind of doctor doesnt take their patient seriously?. You wont find this kind of attitude in Asia.

[@thatdramakid9830]

That's GOOD that this kind of doctor isn't everywhere.

[@quinn9797]

a surprisingly large amount of doctors refuse to take female pain/fatigue seriously. it's beginning to improve, but.. yeah. also there's a chance a lot of the doctors who did diagnose other things were genuinely trying to help; as depression can cause a lot of those symptoms, as can PCOS, and a number of the other diagnoses she had. So there's the double whammy of problems where a) doctors don't always believe how severe symptoms are and b) there's a lot of medical problems we don't fully understand enough to treat or diagnose efficiently.

[@Cazanu417]

because even in this case and alot of cases,its more of a form of mental ilness where you think youre sick,but youre not,doctors learn about this lyme disease in school and knows about it and how its treated,this is not lyme,its the same old fibromialgia,morgellons,chronic lyme.with no evidence of a disease but just random symptoms perceived at an exagerate state,like you having a cramp well these people mostly women overreact and think they have some hidden terminal ilness and the bad doctors dont listen.

[@lashawnablanton4649]

I wish I was in Asia bcuz drs don't care here

[@Ardenaut]

This video is coming out at a really interesting point in my own health journey, and I can't reiterate how many of the same feelings I've felt trying to find a diagnoses for my problems. About 5 years ago, I started experiencing chronic fatigue which only seemed to get worse and worse over time. However, around that same time, I also started experience panic attacks which turned into crippling anxiety to the point where I couldn't leave the house. So my fatigue was either seen as a symptom of anxiety or it was put on the back burner. However, I have gotten past most of my debilitating anxiety and yet my fatigue has just gotten worse and worse. In fact, 2 years ago, I was hospitalized because I slept for so long that I got dehydrated and had to be put on an IV. I am constantly tired and never feel rested, which caused me to drop out of school multiple times. I have seen 12 doctors now, and I have been diagnosed and treated for depression, Lyme Disease, chronic fatigue, and several auto immune disorders, and none of these diagnoses and treatments helped at all. In fact, I did apparently have lyme disease, but I was mistreated for it and became sicker. My most recent diagnosis is Narcolepsy which I have recently started treatment for. I've been made to felt that I'm crazy, that I'm attention seeking, and that I'm fine, but that this all just in my head. Now, I have just begun college, and things are definitely hard. However, I know my truth, and I will not stop searching until I find a way to feel better.

[@katmeow1367]

You have her, and then you have those people that really are just freaking out over a cold or a sneeze or a headache. She was going through some serious stuff! Real stuff! But it annoys me to see people going to the doctor for something as small as hurting your wrist or having a cough.

[@znicoll_]

ikr!!! like c'mon people...

[@dogegamer6477]

well if you hurt your wrist you could of broke it which isnt a good thing :/

[@bruisexviolet]

It took me 12. Im still getting treatment and am still bed ridden at the moment. You really do have to take matters into your own hands and make them order the test. I got diagnosed with 6 of the things you listed. I do actually also have epitome- Barr and anxiety and depression. You're so beautiful and strong and I'm glad you got diagnosed and hope you feel better. Keep spreading the word and advocating for the disease- we need so much more awareness. All of the hugs to my fellow chronic illness sufferers out there.

[@Lareya7]

How are you today?

[@elenamcdowell5401]

This was such an inspiring video. I have had health problems my whole life, which have gotten severely worse after I had a major surgery a year ago. I developed severe migraines, I feel terrible almost 100% of the time and I miss tons of school. And my mom always tells me that it's my depression that is causing me to feel so bad. We still have no idea what is wrong with me, but I hope someday we'll find out and we'll be able to get better treatments. For now, it's really hard to stay motivated every day, but you just have to find a way.

[@TimeturnerJ]

Congratulations for getting better, but what she said is once again sad proof for the stigma against psychological disorders. It's not about "making symptoms up".

[@Downright_Iconic]

She didn't mean it like that. Doctors tell people with Lyme that they're making everything up for attention so she was referencing that, not referencing being told it was a mental disorder.

[@annamayer1071]

Just as Lymie said, it was the same with me, I was told to f*ck off because I had been 'too young to be ill' and that I took the precious time of other patients away.

[@arianadourre]

Gosh she looks alot like Alicia Silverstone in Clueless from the side! And when she talks!

[@teorasduxas754]

What the hell. Buzzfeed uploaded something actually interesting? Wow. hahah :D

[@pipere9305]

happy for you..hope you help others clearing their paths too

[@sharnesweeney]

Thank you so much for sharing your story. I'm currently going through something very similar and this gives me a lot of hope for a proper diagnosis. You are very strong

[@kadenlacey3205]

it look my mom 43 to find out she had celiac

[@AStageForTheKingdom]

Celiac is another one that doctors don't like to test for or diagnose. I help out at a summer camp for kids with Celiac Disease. Many interesting stories

[@jaz5475]

But why didn't the doctors figure this out earlier? Idk this story is frustrating me

[@kelseyandfamily]

Tell me about it! It took my doctors years to diagnose me with asthma when I was a child! My mom kept pushing it until we got acceptable answers!

[@damariusingram6205]

A lot of diseases mimic each other so it's really hard to diagnose people but then again some doctors are assholes.

[@davepitassi1066]

I hate to break it to you but Lyme disease isn't chronic and can't last this long. Even the CDC advises against long term antibiotic treatment because there is no hard evidence backing the idea that chronic Lyme disease is even a possibility or that it is caused by the same bacteria that causes Lyme disease

[@darrakershner4994]

+Chris Vachris Can I ask, do you have Lyme disease

[@davepitassi1066]

+Darra Kershner yeah I've had it and so has my mother and it didnt last long for either of us. I'm studying infections spread by ectoparasites. Also, all you need to do is a little research I mean the guy who discovered Lyme in 1975 Dr.Steere even states that there really little evidence that it actually exists and that it is heavily over diagnosed. He stated there is a possibility that it may exist and that a small majority can have symptoms lasting longer than 6 months but not for this length

[@mollysgotmakeup13]

How the hell did they "test" her for chronic fatigue syndrome?

[@Shellpenny]

They monitor your brain activity and vitals while you sleep.

[@mollysgotmakeup13]

I have CFS/ME and there isn't a test for it. A sleep study won't show anything.

[@gabrielal.9031]

mollysgotmakeup13 V02 testing is a definite way to test for it. I have CFS too

[@haleyhaskins1042]

Thank you buzzfeed for shedding some light on lyme disease. As someone who also has chronic lyme I can relate to much to her story. Lyme's symptoms can manifest in so many different ways, and fit under the umbrella of so many other illnesses. If I didn't suffer myself with this illness, stories like this would sound like cries for attention. Hoping that in the future more research is done to prevent the silent suffering of thousands of individuals.

[@sharondoucette5911]

this woman is incredible shes still a happy person after all shes been through amazing!!!!