A DAY IN THE LIFE OF ANGELMAN SYNDROME

[@fevertree1957]

Wow Emily - your mom would be SO proud of you as a mother - you give it your all. So much to do just for Griffin - then you have Sawyer and all the others....plus all the therapy, calls etc. Must be SUCH a help having Will home - your a really great team. Love to you all from Scotland xx

[@larryleonard4198]

Go on line ok😊❤

[@davidnelson1148]

I'm from Scotland 🎉

[@victoriasantrich1679]

Wow, Emily you're super mom! I'm a special needs mama to a beautiful 8 year old girl with a rare syndrome as well, and it can be such an intense, but beautiful journey! Griffin is lucky to have you for his mama! He is so adorable!!!

[@SodapopCurtisLover]

Are u comfortable saying her/his syndrome

[@Chelsea-jq2os]

Griffin is just the sweetest and your just the best mother and Griffin could not have any better of a parent

[@aliciakillen1940]

Very informative and really shines a light on the complexity of taking care of just one special child and you have 2+ and also the regular needs of the other kids! Doing a fantastic job!

[@joystevenson9014]

You r both doing a great job. Can I please ask what the strapping is over griffens body that you wrap arounD him.

[@joeybonavita2739]

@@joystevenson9014I think Will said that they are called Twizer Cables and Emily said that they are supposed to help him with his Pigeon Toe

[@tanya32757]

Emily & Will, you are rocking this journey!!! Griffin has come so far along and is such a joy to watch! 👍💕

[@margepaz]

Whooo. Exhausted just watching you getting thru one kid’s day! And you do it while looking like a model.

[@Meemagolding]

It’s AMAZING how well Griffin is doing ❤️‼️ YOU ARE WONDERFUL ❤️❤️❤️

[@nancycoy9510]

You two are the best. Griffin is blessed to have the both of you!

[@coriparc]

Emily you’re amazing!! Such an inspiration to other mothers. Love Griffin 🥰🥰🥰🥰🥰🥰

[@lauranorton3119]

Thank You for sharing some of his life. You are Amazing Parents. God Bless you all.

[@avamcelroy-re9oj]

Griffin has gotten so much bigger and has better equipment to keep him safe. Now, i have 4 siblings with disabilities (2 have angleman syndrome), and my 8 year old brother seems to only be a few months ahead in development than griffin in your newer videos i just want you to know he did just learn how to take his shoes and orthotics... sometimes a blessing (" Hey knox, please take off your shoes") sometimes a curse (" KNOX KEEP YOUR SHOES ON YOU LITTLE STINKER!")... Especially in the car. If you would like any updates, i have 2 very swiftly developing angles in my house

[@user-yu3ci4sl8v]

What a beautiful children you have 😍❤️ All of them!

[@AlwaysGrandmaKelley]

Thanks for this video! Griffin... You are wonderful ❤ 💖 ♥

[@Meowcatfox]

taking the labels of bottle is my favorite thing to do

[@SodapopCurtisLover]

It never fails that she is super extremely informative

[@susannahpeters778]

You are the wonderful one, love your family ❤️

[@sharonswan5048]

You do have your hands full Emily.I sometimes dont know how you handle everything.I only had 2 and I was worn out alots.God must have known you could handle things.Hang in there ..

[@albussnape2]

Was missing you! Good to see this. Well done! 👍💖💙

[@mariacasella979]

Best family on KZbin

[@SodapopCurtisLover]

Definitely

[@phillisob]

He's absolutely perfect.

[@stacyvakassian2334]

Love everyone’s positivity!

[@tinatalks]

Amazing!!! I cannot believe how far Griffin has come since being in Colorado. It’s hard work for you and Will but thankful to God you are in Colorado and Will is his nurse! Take a bow, all of you! Cheers to Colorado!

[@ellasuella7495]

Are the twins in the same classroom/have the same teacher. Can you do one of these for his twin/ the other kids.

[@Iampregnetwithringosbaby]

Someone in my town has AS. And he loves this playground ware I shoot hoops.Then when the mom saw my clamshell AFO’s.She cried and told me about AS.And also he has AFO’s but not clamshell.

[@sethaldrich6902]

Where did you get the touch screen computer? We need one for our son. Thanks so much

[@valerielowery5453]

Griffin is so handsome and has a great smile 😄💗

[@SodapopCurtisLover]

I like how you put the last video in the description

[@mariacasella979]

Good Night sweet Griffen

[@Edits4you16]

Have u ever wondered what griffin’s voice will sound like if he could talk

[@joanncarr740]

Hello. You are a. Great mom for takeing such gd care of him irs are wk . soo glad he is getting. So much better. As.you say a year ago . andmuch more help then as BEFORE. You would have stayed back in the other atate things would have never.changed for your family. And will would still a postal. Man wking long hrs and you with little help .. I no what thats like no kid help at all its hard and nofamily help period. !! Till next time. Take care !

[@SuperValgal]

Great job Emily and Will a lot of work but you managed 👍

[@anniewall2822]

My favorite time of the day is when I take my showers I feel So clean After I take my shower

[@snuggyxiii7642]

How loves the (its our wonderful life)

[@krisjones5960]

Do not use your laptop without the need for the new battery system, or if it doesn't have a new version, you will be prompted for the

[@danahummer765]

Wow 11pm here

[@LailaLausch]

Griffin is the cutest kid in the world

[@heathercate1812]

New follower here, just want to ask a question. Why does Griffin wear a strap around his legs?

[@joeybonavita2739]

5:26 she says that it’s supposed to help with his Pigeon Toe. Basically to straighten and strengthen his legs. Then the SMO’s she said once is supposed to help with his feet so he can walk flat because just like Sawyer he is prone to falling down when walking on tip toes. And then the walker is supposed to help with his walking and his balance at school!

[@SodapopCurtisLover]

The straps are called twizer cables they help with pigeon-toes. Smos help with balance. Now he wears cables for the same reason

[@murphy1616888]

can you do the day in in life of sawyer

[@yuliharman288]

Does griffin take any new medicine?

[@calvinnaude2402]

How tell you he want to go loo? Does he have wearing Nappies?

[@SodapopCurtisLover]

He's nonverbal so he can't say. He still wears diapers

[@SodapopCurtisLover]

He wears nappies

[@SodapopCurtisLover]

He's so cute and sweet

[@alexthesaintbernardlover5938]

Awesome video

[@SodapopCurtisLover]

All their vids are awesome

[@naimarodriguez9515]

Huh *im a special ed* They get to be a special ed teacher at kindergarten/ I need to wait till 3rd grade and special ed is you stay till 4th grade they are lucky

[@yuliharman288]

What medicine does griffin take?

[@SodapopCurtisLover]

She said earlier in the vid

[@sabrina19ization]

❤❤❤prayers

[@christinasanchez5894]

Hiiii is there any way we can communicate thou Email cuz my Daughter has Angelman too

[@emilyneily4127]

What school does Griffin and Swayer go to? Is it a school with kids with special needs?

[@SodapopCurtisLover]

I don't know what school they went to. They were in a special ed class. Griffin now is in full time ABA. Sawyer is still in school

[@SodapopCurtisLover]

Griffin got hurt at school so that's why he's not in school

[@reneegoodin1317]

Will Griffen eat pudding or plain yogurt with his meds? Thank you for letting me see Griffin daily life.....he is such a happy camper....love his smile n Laughs...

[@reneegoodin1317]

@@anothergoldilocks1077 it's just a question...

[@SodapopCurtisLover]

Is upd Angelman highsr functioning

[@KevGahgan]

How old are the twins

[@SodapopCurtisLover]

7. They both have disabilities. Sawyer has autism ADHD and hyperlexia. It makes him smart in reading and math. Griffin has dysphagia Angelman syndrome and epilepsy.

[@danonda9584]

👏🏼👏🏼👏🏼💜💖❤️

[@LauraBidingCitizen]

Can ya just stop with these beautifully emotional videos Emily?? 😂💗 I was nodding along with you with your last comment about how far Griffin has come, I echo again everything I said in my last comment to you in your last video with his AAC device. I know not everyone has been with you guys since the beginning but I honestly URGE anyone to go back & watch older videos prior to your move, the change is truly amazing, & let’s not forget how amazing you & Will are too Emily. You’ve gone above & beyond for all of your babies. Just a quick question, because Griffin has the 2 male chromosomes, does that equate to his additional strength? Has that ever been mentioned? I was just curious. Love & blessings to all of you! Xxx

[@nigelwilliams84]

😊

[@percyjacksonandjoshuacolleyfan]

S

[@gordonkennedy757]

We

[@vaneas8386]

Emily try to give Griffin vitamin B complex along with magnesium and potassium, it is very good for muscles, nervous system and the brain, try it, maybe you"ll see changes for the better, you are a superwoman!!!

[@CrypticypherCc-do7eo]

Is he potty trained

[@SodapopCurtisLover]

No. He still wears diapers. His syndrome makes it hard