DAY IN THE LIFE OF A 7 YEAR OLD WITH ANGELMAN SYNDROME

This is the day in the life of Griffin, our 7 year old with Angelman Syndrome.
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[@BasicBerry_]

I've been waiting for this video! As a twin myself, I know that we know each other on a different level and Sawyer and Griffin do too. Sawyer did such a good job hanging with Griffin. Hope you guys are doing well!

[@ItsAubJoi]

My younger brother has Autism too! Im glad theres people who knows what it feels like to see people who with mental disabilities get treated so badly at school, Terrible. thank you for these videos ☺️

[@user-vh6eh3vu4g]

Hi my sister has a mental disability that goes under cerebral palsy so I know what your brother is going through

[@Prime_JAY-]

If it’s ever hard for you I am here and everyone 😊hope you guys the best of luck 👍👍👍👍

[@phillisob]

I'm here thinking the partition is brilliant whether your child has Angelman Syndrome or not lol! But seriously...you have to be able to drive them safely so many places, and you can't just move him to another car. This way, he's part of the family and can't ruin the drive (unintentionally, of course!). Awesome job!! ❤ Edit: For some reason, your videos haven't popped up for me recently, but I have to say that the progress I see in just a couple months is absolutely wild. His walking, communication, and DEFINITELY his behavior have improved dramatically. I'm a little choked up! 🥹

[@OneRandomDragonLover]

Given that he's non-verbal, him saying words like "open" is a great achievement.

[@valerielowery5453]

I love seeing Griffin’s day😊❤️He’s such a handsome kid and so funny

[@ashleyhelms8010]

I love seeing Day in the Griffin. ❤❤❤ y’all have awesome family ❤❤

[@kortneykennedy7303]

What are you doing tonight

[@bethaniefranks7680]

Good to see you. I love you guys. ❤ You are doing great.

[@melissakimmel2944]

I llove you guys so much! Such great parents! Griffin is doing so good!!

[@akflanigan]

You and Will are amazing parents. Griffin has come a long way and I think its because of your commitment to your kids and them being the best they can be ❤️

[@thekaerichtexas]

I must say you have a good looking family, adorable well mannered kids, and a super great mom n dad❤ keep up the great work

[@Prime_JAY-]

You guys are the best🎉!

[@Eqecrochet2012]

1:40 I like how the twins play with each other 👍🏽

[@allisontruttling4288]

Hello! I just stumbled upon your channel and am very grateful to see this little window into Mr. Griffin’s lifestyle. I have a few questions, if you’re comfortable responding, great, if not, no worries! One of my students is an angel and I’m always trying to find new ways to better meet their needs and set them up for success. Recently I’ve been troubleshooting some posture stuff at the table and LOVE that activity chair you guys were using during breakfast, and think my friend could benefit from one. What brand chair are you guys using? I’ve looked into the Ruffin activity chair (looks like maybe that’s what y’all have?) Also, do you have anything you love/hate about it? Would you have a different one if you could?

[@christophercruz5891]

Love you Griff Dog! (that’s what a friend with the same name at camp wanted to be called). God has blessed you with so many wonderful people. I don’t consider this a disability I consider it a different ability. I’m blind and autistic and also have major anxiety.

[@maasdiner]

i love how he is automatically happy when he wakes up❤

[@JacobPense]

Angelmen syndrome makes him look happy 24/7 but he is not actually always happy 24/7

[@user-ru1kv7ol8n]

I love it when you do day in the life's ❤

[@SabrinarosemarieHarderpo-vs7py]

I have a brother with autism really bad he jumps up and down

[@ZeldaTearsOfTheKingdom517]

Wow I really relate to what you said about Griffin I love kids and I love playing. I am also a youtuber and a eagles fan.

[@KimWhaley-jq5hq]

Happy birthday Grifen

[@larissagarcia3951]

Great job family and specially mom for taking this good care of Griffin!

[@sophiamarylouiseoates4560]

Griffin Is So Brave!,Btw Im New To The Channel

[@waynechidlow675]

I'm autistic and I have a sister with angleman syndrome type upd double female

[@johnmarshall2436]

What size diapers did you wear? And you can use but diaper on can't get it What brand are they

[@lilyrowhani7731]

Griffin is the cutest kid ever and is such a warrior ❤❤❤❤

[@mysmileys4life]

FR i liv him

[@mysmileys4life]

*luv

[@lilyrowhani7731]

@@mysmileys4life me too!!! ❤️❤️❤️❤️

[@this_user_is_nonhumann]

Yes

[@kcjo2924]

❤Love

[@Abby-zk5tt]

We love you griffin!

[@Friedmankara9134]

Does griffin qualify for any of secure studies to see where his seizures come from

[@faithperry9978]

Wow your house it's so organized looking do you get help services with your kids i only have twin girls who live with me and not as organized .

[@user-qd8nx7mu4g]

Since griffin always looks happy how do you know when he is happy or sad

[@Juicyet]

4:12 this is me when I have to brush my teeth not actually

[@TRR36079]

Can you do a video about griffins communication device?

[@supercreeperstar5976]

Are you going to do one of swayer?

[@JacobPense]

Yes she said she would on another comment.

[@supercreeperstar5976]

Thx for the info

[@puppy_unicornbb9360]

I have a question will he ever be able to talk? I know he's noverbial but when he's older will he be able to? He's so sweet x

[@JoeE-oo9gg]

I have someone in my life who is 7 and is in diapers 24/7. I was just wondering what type of diapers Griffin wears? I was also wondering if you use booster or stuffers in griffins diapers? I was also wondering how often you check griffin’s diaper as well? I find the person who I know leaks a lot, just trying different brands. Thank you very much.

[@bethbaumgardt5908]

I have I have two siblings that have autism as well like Sawyer and their names are Kiersten and Connor😃😃😃😃😃😃😃😃😃😃😃😃😃😃😃😃😃

[@missdonutaltaccount1380]

Can I ask why there is a glass pane in between the two seats in the back, can people with Angelman's Syndrome get aggressive so it's there to protect other passengers?

[@Bella_Kania_on_Youtube]

No it's so he doesn't accidentally grab anyone

[@TheoutsidersXHarrypotter]

Please answer this. I was wondering if griffin ever had. An absent seizure in public? If you don't want to answer this you don't have to I was just wondering

[@Bella_Kania_on_Youtube]

What therapies does Griffin do in ABA therapy Does he receive anything else during ABA other than therapy (such as music gym or nap time) Does he get reading or math

[@lgleave9599]

There is a place it is a amusement park for the special needs kids the rides are made just for special to and they have calming rooms for kids like Sawyer and kids without special needs to too and if you have special needs you can cut the lines for rides and get discounts it is in s an Antoine

[@johnnelson1471]

Is. John. Nelson

[@irelandkingumu8153]

I have a epilepsy. I have to go get EG just like you little boy weapon but he is a really nice boy and videos. You look so nice and handsome.

[@irelandkingumu8153]

1234567

[@catiehays3361]

It's important 2 say 2 him No Griffin, we don't throw our things. If you continue I'll have 2 take it away.. Cuz you know, he understands everything..

[@JacobPense]

I think it really depends on the child

[@user-ll5ib7yg4z]

Are you gonna do a day in the life of sawyer cause they are really helpful to see

[@ItsOurWonderfulLife]

Yes

[@this_user_is_nonhumann]

​@@ItsOurWonderfulLifeyour an amazing parent

[@MJLover100]

What does Pigeon Toed mean?

[@Malgal]

Does your daughter use the same communication app as Griffin?

[@jjamesgames6573]

Since Griffin has his communication tablet, does that mean he can read?

[@Bella_Kania_on_Youtube]

He can't read his device has pictures and words so he just kinda knows the pictures

[@jjamesgames6573]

@@Bella_Kania_on_KZbin ohh gotcha

[@Bella_Kania_on_Youtube]

@@jjamesgames6573 I bet he also remembers seeing the pictures and remembers where they are on the device

[@adysoncunningham8420]

If you don’t mind me asking, what is Angelman syndrome? I’m very curious and I’m not trying to insult Griffin about having an disorder

[@MichelleNoel-kc6wv]

Hi griffin

[@richardscourner3196]

Why is there a wall in the car?

[@Bella_Kania_on_Youtube]

It's for Griffin

[@BethanyShafer-fb8sg]

Can you do an episode about your other daughter?

[@Herbiesgamingchannel.]

Which one

[@BethanyShafer-fb8sg]

@thegamingrcman Wynn

[@Hoffmans.Slowedz.Audioz]

You should change ur about since they are not all 5 years and under anymore

[@albussnape2]

👏👍 ❤ to you all 😊

[@Pekkle520]

Why do u need a partition in the car?

[@franceswallace2531]

Because Griffin grabs his siblings, doesn’t realize how hard he can hurt them.

[@Tracie.....]

What wrong with Christmas music? You mean i shouldn't be singing Christmas songs

[@user-jm3fg6ll6l]

Why does griffin where a Binky

[@Bella_Kania_on_Youtube]

He has developmental delays which causes him to use a pacifier even though he is 7

[@Prime_JAY-]

Can you make a short

[@Prime_JAY-]

👍

[@andrewtaylor9708]

dose griffin ever cry

[@JacobPense]

In a video she said that due to angelmen syndrome he looks happy all the time even when he is not.

[@Nannyfam2024]

When Sawyer day in life coming

[@JacobPense]

She said on another comment she would do one.

[@pip163pix]

Can Griffin talk?

[@christinecapps1175]

No they’ve said before that he is nonverbal

[@Bella_Kania_on_Youtube]

No he uses a communication device.

[@amysargeant9102]

Griffin uses a communication device

[@pip163pix]

@@amysargeant9102 oh ok thanks for telling me I was curious

[@tazeemnasib9371]

No

[@cloudybluesky14]

Do you have a P.O. Box? I would love to add you to my holiday card list!😊

[@Avlee123]

Is soyer in school

[@user-ti8qb5xy7z]

Im got Autism

[@user-ti8qb5xy7z]

Autisme

[@convictions831]

Cpd

[@convictions831]

CBD oil will help seizures and other things

[@JacobPense]

He is only 6

[@JacobPense]

I mean 7 but still he is too you young for CBD oils

[@allisontruttling4288]

7 and 6 are surprisingly not too young for CBD, but either way, we should not be making treatment suggestions because we are civilians, and not a part of this person’s care team. If you have information you really want to share, maybe try sharing a peer reviewed article.

[@JosephFerrare]

Does Angeman’s mean mental retardation? Like is Griffin smart, but just can’t communicate? Or severely intellectually disabled

[@Bella_Kania_on_Youtube]

No not exactly. Angelman Syndrome causes developmental delays intellectual disabilities speech balance and sleep problems but it does cause mental restrictions which is what an intellectual disability is

[@AgentRains]

Thos isn't a day in the life because yiu just talk the whole time

[@Itsmehi456]

Why don’t you reply to anyone’s questions here? 🙄

[@Bella_Kania_on_Youtube]

She might not have enough time with 6 kids it must be hard to find time

[@ingridmileham3281]

Why does griffin have a pacifier I'm not judging I also have a pacifier I'm 11

[@Bella_Kania_on_Youtube]

He has developmental delays which causes him to still use a pacifier even though he is 7

[@AgentRains]

Mom needs to learn how to brush teeth that did nothing.

[@kathryncotter4933]

You saw it was difficult he was pulling away

[@JosephFerrare]

What do you mean can’t react? Kid threw his tablet across the room. Behavioral disorder or not, he needs to learn. I’m sure he can comprehend punishment, he’s not stupid

[@Bella_Kania_on_Youtube]

If she reacts it might make it worse. He might not understand throwing is not good