I keep forgetting Jaquie lives in Florida. Because in the northern states there’s already snow! I keep wondering why aren’t they wearing coats?! xD glad the IVIG went well! Also great job Harlow! Whoo!
@meganlovesdisneyandcrafts47806 жыл бұрын
it's snowing in the mid Atlantic now! 👍
@haddockandbentley29036 жыл бұрын
It's snowing in the Nederlands to. Yesterday first snow of this year. And last year and the year before that we only had 1 day snow and now already 2 and Tomorrow it's going to snow even more!!! I love it. Will it snow ever where Jaquie lives?
@meganlovesdisneyandcrafts47806 жыл бұрын
Haddock And Bentley It probably will unfortunately. I say unfortunately because of global warming. It has snowed in Atlanta and Texas.
@oliviajones61886 жыл бұрын
I've watched all your videos. I think you're such a huge inspiration to everyone who has chronic illnesses and even those like me who don't. Watching you makes me appreciate the simpler things in life. Thank you for everything you do. I love you Jaquie!
@rosieinocencia73026 жыл бұрын
Your positivity is infectious 💞thank you
@charlottestandage276510 ай бұрын
I still watch these videos. I miss Jacquie so much. I now have a diagnosis of hEDS and am so grateful for all she did. Xxx
@jaymebaldwin42766 жыл бұрын
Hey Jaquie, have you ever thought of looking into rechargable batteries for your infusion or your feeding tube? I don't know what kind of batteries you need but I would suggest looking on Amazon
@erictaylor54626 жыл бұрын
There are MANY reasons Judd is amazing.
@abhayrajopadhye6 жыл бұрын
Eric Taylor Judd is a police man
@lilac13976 жыл бұрын
Weird Question: Do you need to pee more during/after your infusions? Also, whenever you call Judd a trooper I imagine him as a stormtrooper!
@jennacarey32476 жыл бұрын
I was just gonna ask the same question!!! Especially with having to do more infusions before and after IVIG, I imagine that you would have to pee more often.
@40SAND6 жыл бұрын
I was thinking this also- I can only imagine with that much saline/fluids, it would run straight through me!!
@rebekahbridges-tervydis50546 жыл бұрын
Me, too! Every time I have iv's the second bag makes to start to pee. Like every 20 minutes!
@marti42036 жыл бұрын
I’m wondering the same. She’s not ingesting it so you wouldn’t think it’ll go to her bladder ?
@mysticash5506 жыл бұрын
Hi guys, most people Intake 2-3 liters of fluids a day.. the only difference with intake is how.. iv or feeding tube can be cycled by the body much quicker so you may have to pee more, but since we often don’t Intake much by mouth, dehydration will make it so it’s about normal output as people who don’t do iv/feeds
@carolinehonse356 жыл бұрын
It's good to see you again. I've been wondering about people with your disorders a hundred years ago before the inventions of medical equipment and medications that are available now.The prognosis now must be light years ahead of a hundred years ago. Anyway, it's great to see the three of you again. I'm impressed with all three of you but today I realized how intuitive Judd is about knowing just how far to go in helping you without "babying" you as he put it in his comments on a video. Bravo Judd, Harlow, and Jaquie!
@anushkabahutule49706 жыл бұрын
Caroline Honse not to sound grim, but people just died a hundred(s) years ago if they were sick. Also as we evolve and healthcare is better.. sick gene people are surviving and passing on the defective genes to the next generation and hence more illnesses but also more medical discoveries too. Just a general scenario not pin pointing any particular disease (condition) I am talking from a strict scientific point of view.
@kelsiwasherelol6 жыл бұрын
So glad your doing better with IVIG !! How's Judd's arm doing ?? I see its still wrapped :/ did his cultures come back yet ?? Hope you guys are doing well and enjoy the cold front :)
@laurenboddy12116 жыл бұрын
Hi Jaquie, I suffer from sciatica which is chronic pain . I know how you must feel too. It's definitely tough day to day . Hello to Judd and Harlow and may you have a terrific Christmas
@Julia-fh2ke6 жыл бұрын
You’re almost at 100,000 subscribers! You are such an amazing and strong woman! ❤️
@laurenboddy12116 жыл бұрын
Happy holidays sweet Jaquie
@oneeyedhusky6 жыл бұрын
I love your videos! Thank you so much for posting!
@NeverSilenceLove6 жыл бұрын
Sending you love and light. Thank you so much for sharing your life with us. You always help me with my anxiety for some reason. I was wondering do you recycle all those batteries and other medical supplies? If so where? Hope you feel the benefits of IVIG soon, keep on fighting!
@disrael51996 жыл бұрын
Hope you are feeling better today and didn’t have too bad of a night.
@3534MilanDrive6 жыл бұрын
Cool shelf. We have a little black bag that fits over the handles of a transport chair but that is neat!
@sarah569686 жыл бұрын
I love how you have such an amazing support system
@penelopepolinsneemeyer47576 жыл бұрын
So glad IVIG went well for you. Exciting news! London has been threatened with snow tomorrow!! ⛄️ ❄️⛄️❄️⛄️❄️⛄️
@AirellSkye6 жыл бұрын
Yay for handy husbands! Snowing in Ohio right now so it's it's time to see the idiots come out of the closet when they drive. Still praying that the symptoms were less this time. Have a wonderful day Jaq!
@soof97276 жыл бұрын
I LOVE the bit of purple you have on your wheelchair😍💜💜
@abhayrajopadhye6 жыл бұрын
Amazing couple with such a lovely dog..god bless u
@tessakievit68766 жыл бұрын
Hey jaquie I just wanted to say how amazing you are and that you really inspire me. Every day I wake up thinking I wonder what Jackie did today. I may not be battling the same illnesses as you but I do have some mental illnesses that are in my life. I don’t know what I would do if I couldn’t listen to your voice and watch your blogs everyday. You keep me going.
@tessakievit68766 жыл бұрын
Sorry watch your vlogs
@tessakievit68766 жыл бұрын
I hope your bracing goes well I have special braces for my knee and ankle that I wear
@rachaeltucker72636 жыл бұрын
I love you and Judd. Harlow is so cute and funny. Praying for you family.🙏❤👃
@kristyinkentucky6 жыл бұрын
I had infusions yesterday too (for a relentless migraine) and on my birthday no less.
@theforgotten83636 жыл бұрын
Hope the rest of your day is lovely! i live in Florida and its been pretty cold! hope you have a merry Christmas!! :D
@lucyrogers71966 жыл бұрын
Off topic from the vlog, but I really hope your bracing appointment goes well. I’m looking into a brace for my right hip because it’s ALWAYS sliding out of place. Living that EDS life haha! :) I’m looking forward to seeing how that turns out for the both of us!
@zoesteiner76896 жыл бұрын
look online for a "hip belt"! i have one and while it's not a cure all because it's very small and only goes around the main part of your hip, not around your thighs and lower abdomen like a normal hip brace, it's really helpful! it's velcro and it velcros one strap across and two straps on either side, but they overlap one another so it looks like one straight line. but you can tighten it to your body and it's very helpful. bit pricy though, mine was about $50 on amazon. but if you look up "hip brace belt" on amazon, it's a dark-ish blue color. if you can't find it, let me know and i'll go look up the name for it. good luck!
@zoesteiner76896 жыл бұрын
both of my hips sublux EVERY SINGLE TIME i take a step😩😩 each side just goes click, click, click, click 24/7. the brace really helps to hold them in place
@VulcanOnWheels6 жыл бұрын
6:57 I have something like that, only with 2 compartments. 1 with a zipper, and 1 with velcro.
@theblindalien36686 жыл бұрын
Hey I love your videos. I have golden har syndrome and I used to have scoliosis but it got treated when i was 2 so I only have to deal with bad back pain now which I guess is better than what you have to deal with xx
@dovestone_6 жыл бұрын
You’ve got such clear skin!
@ChaseCharnley6 жыл бұрын
Can Harlow get any cuter!? Glad IVIG went well ❤️
@alishal60316 жыл бұрын
I’m glad that you have a good support system!!! Do you know any good tips about muscle stiffness in dogs? My middle aged lab is getting stiff and im not sure how to help her she seems to be in a lot of pain!
@brandieblakley72145 жыл бұрын
Judd-how is your arm? Awesome wheelchair gadget! Harlow-adorable as always! Jaquie-always an awesome inspiration!!
@mistered1907dj6 жыл бұрын
I have mine in the morning. Hope your feeling well tonight.
@ashleylu36876 жыл бұрын
Love you Jaquie! and Harlow is such a cutie!
@meganlovesdisneyandcrafts47806 жыл бұрын
Glad everything went well! Does the ketamine not work for pain after IVIG? I like that shelf!
@dejadefrance32066 жыл бұрын
how is judds arm doing? i see he still has the wrap on it. i hope yall are having a good day!
@wt04166 жыл бұрын
Judd is being a handy man just like Paul. What a nice hubby Judd!! How long does Judd need to have that bandage on his arm? I hope he's getting better.
@MakyeaMarie6 жыл бұрын
IVIG was the worst experience of my life. Watching how well you handle it really humbled that feeling.
@wtpb6 жыл бұрын
Wow, what a huge day. I wonder if having the Ketamine so close to IVIG helps any with the body pains? Hope your day of recovery is going well.
@Nameless-w-y4z6 жыл бұрын
Good luck, it’s starting to get cold in Florida.
@aileenking62626 жыл бұрын
Love you Jaq. Hope after effects aren’t too bad. How tall are you, Judd, and Harlow?
@aliciamalave37716 жыл бұрын
"Hippo.. sandwich." Sorry, Judd. It doesn't work that way. 😂😂
@BlueMist0076 жыл бұрын
Hey Jaquie I love yall and your videos
@lailalaila40886 жыл бұрын
My brother walked in and said you’re watching chronically jac-k-wee again and I felt the pain when people get your name so wrong 😂
@5331346 жыл бұрын
Jaquie, have you heard about the IV fluid shortage? Does that worry you being that you rely on IV fluids?
@jennacarey32476 жыл бұрын
That's a good point! I noticed the shortage of fluids when I was in my last clinical in the hospital for nursing school! The hospital that I have my clinicals at no longer runs meds with full bags of fluids, they just mix it with sterile water and do an IV push instead. Great question!
@flossieshelley18386 жыл бұрын
Wally is one my husbands favorite Walt Disney movies
@nicolledelgado3316 жыл бұрын
Is so different how you seem this time after IVIG, do you think ketamine helped with pain?
@sueg26586 жыл бұрын
How is Judds bobo? Great video as always. Love you guys :-)
@patriciac42456 жыл бұрын
Since you get so many fluids do you still need to drink water?
@emmalis51526 жыл бұрын
What about the smart drive? Does it still work with the shelf? Also, if you’re interested in other wheelchair gadgets you can check out prettysicksupply.com it is basically a compilation of different shops that sell stuff for chronic illness supplies
@meganlovesdisneyandcrafts47806 жыл бұрын
Emma Lis the smart drive hooks on the back, the basket isnt hard its squishy.
@emilyjane43956 жыл бұрын
'Hippo.. sandwich' hahaha best part 😂
@jjuullzzz6 жыл бұрын
I wish you and Harlow were in youtube rewind that would've been so cool
@kristirebbert15186 жыл бұрын
Iv toradol is a wonder drug! I have had it for migraines before..... but just be careful with it because it is rough on your kidneys....
@ClimbMountains6 жыл бұрын
I've always said that, too. I have book smarts, but no common sense.😂
@sadiepeek79606 жыл бұрын
Did the anodizing (purple bits) on your wheelchair cost you extra personally? I’m getting the exact same chair and I want matte black with sapphire anodizing but if we have to pay I can’t afford it so I’ll get navy blue instead
@seskikris6 жыл бұрын
What brand facial mask are you wearing? Or what’s that kind called? I just got back from UAB’s Dysautonomia clinic and I noticed some people wearing them. I just forgot to ask them about it.
@Fattiapples6 жыл бұрын
Never thought of it yet but how old are jaq and Judd? Thanks!
@Taffiluna6 жыл бұрын
Yall are so cute Harlow and all lol :)
@loopzcreate996 жыл бұрын
You may of addressed this already, sorry if you have, my memory isn't great. How do you not get your hair caught in anything, as notice you always wear your hair down, I know you move it out the way when infusing, just wondered if you ever get ya hair caught in anything, and btw how do you always have flawless hair.. Thanks for taking us on your journey x
@Fighting_for_freedom6 жыл бұрын
I have a lot of the same medical conditions you have but was wondering what the IVIGs helped with as I wasn’t sure if it would be something I may want to look into as well.. but not sure which specialist I’d even talk to about it. I’m assuming a mix of the cardiologist and gastro doctor? Sorry if this was in another video! I’d love to be more informed on it though! Hope your doing well!
@piercetheveil56 жыл бұрын
Desiree Schwartz she has a playist for ivig!I believe she's using it mainly to hell with her mast cell activation disorder
@Mother_daughter_adventures6 жыл бұрын
I get what you mean when you say that you don’t want to take up allot of room. It’s just easier to deal with when you are in small spaces and crowds.
@madelinebata88516 жыл бұрын
How do you defrost Harlow's raw food every day?
@jpjpvds6 жыл бұрын
Now, if you just avoid meningitis and the other ivig side effect crap, this time it seemed to go really well!!!
@meganlovesdisneyandcrafts47806 жыл бұрын
JP JP Last time she pretty much nailed it at home!
@nojustnoffs5 жыл бұрын
Judd
@lizzie2k176 жыл бұрын
Does your mouth ever get dry from not drinking? I know you drink sometimes, I’m just curious. I didn’t know if the fluids also keep your mouth from getting dry.
@Trintneyw6 жыл бұрын
Lizzie Hill I was wondering the same :)
@gabigese6 жыл бұрын
A dry mouth is how your body says you're dehydrated. She stays well hydrated so I'd assume not.
@jamspeight6 жыл бұрын
Hi i love your videos I have watched them all and I love your family I have a ? What do you do with your empty syringe I'm all about recycling I'm a crafter and I use the for crafting things if you can ship them I'll pay the fee thank you for sharing you story
@hayleefine36716 жыл бұрын
Where do you get your masks?
@deannuna256 жыл бұрын
I like your video!! Have a nice day!👍
@belindaong54156 жыл бұрын
Why is gastrectomy not an option?
@jenbarrett89666 жыл бұрын
its nice to see judd again. your wheelchair is awesome. If you think something would improve your life. I wouldn't feel bad about it or apologize for it. Bible says take care of your self first.
@shelbijackson58296 жыл бұрын
Clicked so I can hopefully make it easier to shop in a wheelchair. I'm a child and my arms are weak so my mom pushes me and it's hard.
@JuliaN-kb5fh6 жыл бұрын
Maybe get a wheelchair like hers? So you can get around easier? Idk, just a thought
@shelbijackson58296 жыл бұрын
+Jules’ Pets it's not having enough room. The wheelchair is rented because pots can go away not likely but can. (20-25)
@TheKeyMargo6 жыл бұрын
Can you eat baked sweet potato mashed up with butter and a little cinnamon? One of my most favorite side dishes.
@mandm20546 жыл бұрын
"the sound of our people" lol
@jessicanoble59446 жыл бұрын
Yay for handy man husband's!
@guineapigshfl6 жыл бұрын
The sound of our people! If that ain't the truth haha
@rayyy11176 жыл бұрын
Ow Judds now got moustache😛😛
@maureenelizabeth58536 жыл бұрын
I don't understand why you bring Harlow to the Hospital?
@tracimilstead76266 жыл бұрын
Good 😀
@claireelizabethblake89116 жыл бұрын
You always get so pale after IVIG... I love the shelf thing!
@MsShutupndance6 жыл бұрын
i hope that the next few days arent too hard on you Jacquie
@moomoo026 жыл бұрын
😆 the video thumbnail kinda looks like you’re flying first class!
@morgancalvi66754 жыл бұрын
I'm 130 pounds and 20 grams is it.
@yote22036 жыл бұрын
I’m going crazy I’m in class rn and right when you said “oh we are watching Wallie” my teacher played wallie.
@Stopinthenameoflove6 жыл бұрын
Does jud ever feel like his youth is taken from him because he is held back from doing as much ?I bet he just gets frustrated and exhausted somtimes. Can you talk about some of those things that might go along with families with chronic illness? Were you this sick when you gpt married etc...etc..
@BabePandahh6 жыл бұрын
xoxo lover her symptoms started to go crazy about half a uear into their relationship while they were in highschool. She gave him a chance to leave her because of it. When you love someone, it doesnt matter what they are struggling with and how it affects your life. You just want to be with them and care for them.
@3534MilanDrive6 жыл бұрын
They have covered this in a bunch of their videos. I don't really see what he could be missing?? It appears their home is spotless, the laundry gets done, she cooks for him, they go on adventures, and they spend time binge watching tv together. I have been married 15 years, seems like they have everything covered!
@erictaylor54626 жыл бұрын
Harlow wonders you you are so bald. If you had fur like her you wouldn't need a blanket.
@teriruiz82926 жыл бұрын
girl, you made me really nervous when you were out at night by yourself, even though you were only in the parking lot, it's still too dangerous so get a small LED flashlight and have Judd the wonder man, figure a way to clamp it onto the underside of the armrest so it points the way ahead. Please?