POTS Diagnostic Criteria Test | Three Types of POTS

Think you have POTS or awaiting a POTS diagnosis? In this video I explain the the diagnostic criteria for POTS as well as the three different types (hyperadrenergic, hypovolemic, and neuropathic POTS). POTS stands for Postural Orthostatic Tachycardia Syndrome. Many different underlying conditions can cause POTS, though it can also stand on its own. My cause is hypermobile Ehlers-Danlos syndrome.
SUBSCRIBE TO MY CHANNEL ▶ bit.ly/2M4Ko0c
📸 Instagram ▶ / izzy.kornblau
⏰ TikTok ▶ / izzyk_dna
The views expressed in this video are my own and do not reflect the views of Mount Sinai Hospital.
✩ ✩ ✩ ✩ ✩ ✩
WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes (EDS) are a group of more than 13 genetic connective tissue disorders that affect the joints and ligaments, blood vessels, gastrointestinal tract, and autonomic nervous system, among others. The most common type of EDS is hypermobile EDS (hEDS), which used to be known at type III. Some of the most common symptoms and co-morbidities of hEDS include chronic joint pain, joint instability and dislocations, dysautonomia, and GI tract dysmotility.
MORE INFO ABOUT EDS:
🧬 www.ehlers-dan...
🧬 bit.ly/2N95xTE
MORE INFO ABOUT POTS:
💓 www.potsuk.org...
❤️ cle.clinic/2p1...
MORE INFO ABOUT GASTROPARESIS:
💚 mayocl.in/2BRQTuR
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
🤍 bit.ly/2MLUYXI
FTC Disclaimer: This is not a sponsored video.
As an Amazon Associate, I earn from qualifying purchases.
#pots #posturalorthostatictachyardiasyndrome #tachycardia

[@IzzyKDNA]

🦋Please subscribe to help out my channel and learn more about EDS, POTS, and genetics! 🦋

[@turbostoner]

I just did this & I had the same results as you….. II made an appointment with my doctor just before watching this. Idk what my results mean right now, but I’m DEFINITELY suspicious. 🤔

[@monicaross4013]

laying down: 80 standing up: 140 My doctors over the years: "Nah, that's normal. Stand up more slowly.... oh and everyone's tired. You wait till you get to be my age, then you really feel tired." Luckily I finally did find someone to take me seriously in the last few months, but I am always terrified to go to the doctor because I feel like death and am in desperate need of help but in the past no one has taken me seriously. I have other serious issues too, I'm very ill. But I have a block in following up because I don't trust doctors anymore.

[@isabeanieboos5342]

💗Jesus loves you so much!💗 don’t worry😊

[@HillbillyYEEHAA]

For anyone who doesn't have a dr who listens, get someone from any pots charity to email them ect I had to get a lady from narcolepsy uk to email my dr as he laughed at me

[@parkerm2546]

I tested myself again today and it was my most drastic yet! laying down: 58 standing up: 152 almost 100 bpm increase and yet I'm still not diagnosed because my doctor thinks I'm too young (I'm 14) to be sick Update: it’s been like 2 years since I wrote this comment and thank you to everyone who’s replied, I’ve been diagnosed with pots since June of 2020 this was just before we had an insurance switch that allowed me to see a specialist :)

[@balazsluca637]

I’m 13 and I have Eds, scoliosis, kyphosis and many more. My doctor does not want to test me either bc I’m too young and he’s scared bc my anxiety is really bad. But I’m sure I have pots my resting hr is 88 and standing is 145. And stone times I pass out. But I think we should not give up finding a diagnosis if you know something is wrong with your body.

[@parkerm2546]

@@balazsluca637 I'm in the process of being diagnosed with EDS but my doctor (not my cardiologist) isn't sure whether it's classical or hypermobile and due to corona I can't get tested. I also have scoliosis + other conditions and I absolutely agree that we shouldn't give up. Sorry to hear you are in a similar situation with getting a diagnosis It can be tough. Thanks for your comment :)

[@karlayork877]

Old lady here -- 69, and my doctors refuse to even consider things I've dealt with all my life (like this) because if I actually had anything causing these symptoms, it supposedly would have been caught when I was a child! I hope you have much better luck.

[@parkerm2546]

Karla York I’m sorry to hear that- It’s so frustrating that some doctors won’t believe you no matter what your age. Luckily last month I switched cardiologists because of insurance and she listened to me and I finally got diagnosed with POTS. I hope you can also find out what’s going on and get some answers :)

[@karlayork877]

@@parkerm2546 Thanks, Kaylee. I'm glad you found a good doctor.

[@belajibben]

I stand up too fast all the time forgetting I have POTS and have to sit down quickly before the room goes black.

[@josiedrayson842]

7⁷UK 7 Loki

[@aspenwindham3131]

Same

[@belajibben]

@@gurgurgur I promise god can’t fix my heart

[@unnikrishnanpillai4499]

@@belajibben Does pots leads to heart failure ? Plz reply 😭

[@unnikrishnanpillai4499]

@@belajibben My heart rate is 115 while standing up is this a sign of pots?

[@kerrysmiles]

Wow. You explained that so much better than any doctor ever has. I actually understand it so much better than I ever have understood POTs. Thanks!

[@IzzyKDNA]

wow so glad to hear that!

[@elisacudmore1536]

Wow you are amazing

[@Cw-wi6uj]

@@IzzyKDNA wow you are smoking

[@rameshlumb4003]

​@@IzzyKDNAu feel low energy sym please answer

[@DeltaThreeOne]

Hm. A test I can actually pass.

[@mommabear2544]

😂

[@shelleywilliams1734]

😂im in love with this comment

[@KarmaStreams_13]

Me with my mental health questions😭😂

[@Jmoney22893]

Lol 😂

[@pandapuffzee8255]

Eeeeeeyyyy

[@cristinaalvarez631]

Story time: I think my doctor diagnosed me with POTS back in France. I did not speak a lot of French, we were communicating in English, he took my pressure while sitting, then while standing, and then told me to eat more salt. So...yeah, I think I have it.

[@waterywanderer620]

I’ve been struggling with shortness of breath and feeling like I’m having a heart attack for over a year, I’ve had chronic joint pain for 6 years. When I went to the hospital they ran an ECG while I was lying down and it was normal, did a CT and it was normal. They called it anxiety. I haven’t felt like I can breathe at times out of no where for so long. Only relieved when lying down. Your videos helped me advocate to my doctor and she thinks I have POTS. Your videos helped me discover my hyper-mobility *I always thought it was coupled with flexibility* and have given me a lead to what was happening. Thank you.

[@kaseytrevino5438]

This is how I feel... I went looking for help because I can't take the shortness of breath anymore but when I lay down it feels a little better.

[@ogchicoo]

I have THE SAME issues... I was diagnosed Dec 2021. I've been miserable.. but doing alot of research and trying to find support & remedies.

[@dwayb79]

@@ogchicoo how are you feeling now?

[@RoseVampireGirl4]

As a fellow POTS patient the tilt table test was the worst thing I have ever done. This is very informative.

[@unnikrishnanpillai4499]

What is the treatment for pots

[@unnikrishnanpillai4499]

Does pots leads to heart failure?

[@darwinstevens810]

@@unnikrishnanpillai4499 there’s no cure for POTs only medications to help manage it and it all depends on the person cause POTS is like a collection of other auto nervous system issues. In terms of heart failure that is also dependent on person to person and the severity. Life style, diet, medications, etc etc. there’s not one correct or specific answer

[@DiorMascot]

@@unnikrishnanpillai4499 for a healthy person no it does not lead to heart failure

[@jennihaaser3715]

I have to have one next week, I'm so scared! So it IS as bad as it looks? 🥺

[@penelopepolinsneemeyer4757]

Thanks for this Izzy. It means I can talk to my GP about this without them putting things down to my “age” (I’m 55).....

[@penelopepolinsneemeyer4757]

Megan I was 50 when I was diagnosed. It had never occurred to me that I was hypermobile as I didn’t have many unstable joints, so it came as a bit of a shock!

[@jessthom1016]

I’m 34 but my passing out started 12 years ago. I’m just finally now trying to switch doctors and find out if I possibly have POTS. Oddly I found out recently a lot of symptoms I have that I thought were all separate things are in the list of POTS symptoms.

[@jodeemackenzie]

Im 31 and they say its all in my head. That im fine. 😑

[@jodeemackenzie]

Theyre like oh youre 31 you dont have heart problems. Ive heard the age thing too many times.

[@sherriknight-cloud4633]

I'm a school nurse and have a student with EDS, POTS and MCAS- your videos are great in helping me and her teachers understand all thats going on with her. Your showing your heart rate resting vs standing was very powerful. Thanks.

[@immortalvelociraptor7810]

I filmed a video of my heart rate for a year and uploaded it KZbin. I actually got diagnosed with POTS this month cause I had footage to show my doctor so he would send me to a specialist.

[@summero1554]

When I was diagnosed I was told I was “borderline” pots. After watching this and tracking my own heart rate I realize I was tested incorrectly multiple times. The first time I was tested it was almost correct and that’s when I was put on medication. The second time the whole process took four minutes and I was told “we don’t treat cases this mild” after being incorrectly tested. Still salty about it.

[@kaylacote5376]

I like that you used "salty" haha ;) Sorry about this, it sucks when doctors mess up

[@summero1554]

Kayla Cote Doctors Thanks! Stay salty! 🧂

[@theskyisonfire]

Lucky.... I wanna be salty to 😭🤣

[@mybubbles5552]

I was finally told I have “dysautonomia like disorder” when I clearly have POTs! Drs are so frustrating! I was told I had panic attacks for years only to find out it was dysautonomia. Salt helps a lot. Stay salty friends ♥️

[@a_sterling4514]

I have had similar issues

[@hquinn239]

I am sooo grateful for this video. I’m 49 and crying that I have gone my whole life with shame about my level of fitness. Inability to manage my nervous system despite being a psychotherapist who helps others with PTSD and managing nervous system regulation. I hike and do yoga and walk and always feel like I am trudging through each movement compared to my exercise group. You are a gift. So much gratitude for you time and generosity in sharing. ❤

[@DeltaNorington]

I have it when I stand up, I can see what appears to be a blood vessel in my vision that seems to pulsate with my heart beat.

[@SnowySpiritRuby]

I get that, too. And often I can hear it in my ears, too.

[@zbcrazy]

Thanks! I got a pulse oximeter to monitor during the pandemic, and I started noticing weird stuff. I've always felt pretty gross but no doctor has looked into it because it's always written off as my panic disorder (hello, I know what the difference feels like). Finally I now have a doctor who actually listened and immediately put me on a heart monitor for 48 hours. I just turned it in and have to wait, but this is basically ticking a lot of boxes for me. Laying down I can get my heart rate down in the 70s, but standing up, even slowly and gently, my heart rate IMMEDIATELY goes up over 140.

[@allyson2382]

I have an anxiety disorder as well. It’s so frustrating when doctors write off your symptoms as anxiety when you know it’s not.

[@crystald3655]

@@allyson2382 Same and doctors are constantly writting everything off as my anxeity.

[@nat9844]

I've been having symptoms and my mother is the one that thinks it's just my panic disorder! As if we couldn't tell if it's different so no blood test or anything for me

[@ThomasJefferson-xc8wg]

@@allyson2382 I'm actually scared of getting this, because I show signs of what is probably OCD (albeit i can't access a doctor), and also showing weird symptoms that dont seem to be FROM the OCD itself (livedo reticularis, sometimes hands get red and spotty and oddly tingly in fingertips, keep getting dizzy getting up which at first happened only getting up from laying down, but it starts happening whenever i get up now)

[@BTIKM]

@@allyson2382 sameeeeeee

[@TLynch-pf3ek]

I still remember the first time I completely passed out, woke up on the floor, and thought- huh- is this normal? I was eleven years old. I didn't get officially diagnosed with EDS, Chiari, POTS, et cetera until I was almost 30... such an under-studied area of medicine. Advocate for yourself! Thankfully, I have a great PCP who has learned along the way with me! Along with a whole care team. Gentle hugs and prayers to anyone living this life. Manage your spoons! Thanks for sharing your story and info!

[@MK-agirlwhosmissunderstood]

Had the tilt table test recently and I "failed it". I put parentheses around failed because the tech was writing down the vitals. I have videos and wore a heart monitor for 7 days and it picked up my Tachycardia very high. 171 beats per min. Im tired of medical gaslighting. The hospital i had the test done in was extremely cold. My issues exasperate when I'm hot or doing every day things such as making food or getting dressed from taking a shower. Im at my wits end! Thank you for this video!

[@emmaalbers6320]

I am so sorry to hear that! I am scared this will happen to me as well, despite dozens of tests Ive run at home and recordings Ive taken of my bpm jumping from 58-78 range to the 115-140 range.

[@jennihaaser3715]

This was actually much more helpful and educating than my cardiologist! Thank you!

[@MultiKswift]

Weirdly, I got diagnosed with POTS at Boston Children's Hospital and didn't get a tilt table test. Weird because it's a very large, very experienced hospital so I don't know why they wouldn't have a tilt table. Either way, I got diagnosed and responded really well to treatment. When I moved care to an adult hospital, I started having new symptoms (different to the ones I had before). I finally got a tilt table test and got diagnosed with neurally mediated syncope. The last few years I've considered myself in remission. But I still have lowish blood pressure and fast heart rate.

[@MountainRainRain1luv]

I have EDS and POTS. I love what you are doing and giving everyone information and knowledge. Letting others know they are not alone. My resting heart rate stays around 100 All the time. The lowest it has been in 9 years was 94. I'm actually having surgery tomorrow. For chronic sinusitis (I know totally different ) but, going under anesthesia with EDS and everything else, I'm having pre-surgery anxiety. Thank you again I am now a new friend 🌹

[@debiheaton6812]

Thank you for these videos. My 16 year old niece just was diagnosed with EDS and Pots and we wanted to understand what it was that she had.

[@les5503]

I bought a pulse monitor because of this video and the first time I tried this I “passed.” Very good to have this information for when I eventually see a doctor about my hypermobility. Thanks for this, Izzy, you’re the best

[@GeorginasJourney]

This was so well explained & informative! And thanks for mentioning my video at the end 😊

[@GeorginasJourney]

Also wanted to add that midodrine can still be a really good option for people with POTS who don’t have orthostatic hypotension, but just generally have low blood pressure which isn’t affected by standing (or may even rise slightly on standing)! Especially if you don’t stand or walk much, it can definitely also be helpful in those cases!

[@IzzyKDNA]

TOTALLY TRUE!!

[@DreamyDuskywing]

You have given me way more information than the specialist who diagnosed me. Thank you x

[@arny625]

Did a test 60 laying 160 standing TOTALLY HEALTHY-DOCTOR

[@grapepiccles2569]

I have pots and orthostatic hypertension here are my symptoms and results from doing this test. It’s super long but if your willing to read go ahead: -whenever I stand up from sitting/ lying down/ or especially in the morning when I first wake up I get dizzy, faint, blood rushes down to my feet, blanking out (my favorite way to explain is like when you are outside on a very sunny day and you go into a dim lite, pretty dark room where your eyes have to adjust, everything gets black as my eyes try to adjust, seeing spots or fuzzy/ blurred vision, reminds me of visual snow, sometimes my head hurts, legs will sometimes give out or weaken, heart beats faster and sometimes you can hear it in your ears. -when standing in one spot for long periods (30- or more min) of time my legs will itch super bad, tingle sensation, they will turn from pale white, to a hot pink to purple, feel really hot to the touch, and I will get goosebumps, sometimes I get a cold sweat where I feel nauseous and icky, then I have to fit down and try to recover, one time I had a situation, now mind I have no idea if these symptoms are together or if they relate to one another however, I did get very nauseous everything felt like it was spinning, tilting when walking, swaying back and forth, unbalanced, feeling of being pulled to one direction, sweating, nauseating, ear ringing, collapsing, faint feeling, cold sweat, wobbling legs and loose limbs, if I don’t get enough sleep these symptoms do tend to have a worse effect but they never got as bad as that one since that day. Although many of the symptoms were the same they never got that bad. It was kind of a one time thing. That’s kinda just the extent of what it could be. -I’m always thirsty but even when I drink the proper amount these things still happen -I had it before I had an eating disorder called anorexia but very very rare/ almost never and it wasn’t a real problem at all, sometimes when I ran to much in the heat and got to exhausted, but it has gotten way worse after and during is when I started noticing it going on, now to the point where it happens almost every time I stand up (you know with few exemptions, meaning when I sit down for a couple min. And get back up to do something) rapid moments like those don’t always cause something it’s just happening more often. -another kind of way I could describe it is when you wake up first thing in the morning, you know you stand up and then you go to yawn and stretch with your knees locked. It’s the same feeling just a little more prolonged and a little more intense. -sometimes this happens once I stand up, and other times it happens after I walk a little ways. -sometimes I will get up and walk a little before these symptoms occur -high energy activities such as pe or just not drinking “enough water” do not help and make it worse, they may even contribute to the symptoms -eyes hurt frequently -when my legs tingle and turn red once I start moving it goes away -period makes it worse -lying down I get sea sick with slight headache when I usually don’t get them -blurred vision I’ve notice my vision has gotten way worse -weird sharp pains in my chest, very quick DONT last that long and go away pretty easily -light headedness -when I lay down on my side it feel dizzy as well as pressure around my head mainly on the sides but could occur as a squeezing pressure from the front and back of my head -sometimes it comes in multiple waves, can knock me down, hear my heartbeat coming out of my chest and in my ears, pounding hard -longer I’ve been lying down, the worse it is -hot weather makes it SOOO much worse -shaky at times -sleep deprivation makes it way worse Bottom of my feet will turn completely white, yellow color and be very cold to the touch. I can’t feel anything when there like this there just there. If I take a hot shower to warm them up it feels like sand paper and it hurts until blood pumps back -showering, sometimes I’ll feel dizzy -drifting in and out of waves and slight consciousness -often run out of breath and have to take a deep breath to get more oxygen and often feels like there is weight on my chest Results: resting heart rate for 10 min was 83 bpm Immediate Jump in heart rate first standing up was 128 bpm After standing for 10 min. The highest it got was 192 (I hope this helps anyone out there confused. Remember everyone is different and types of POTS can differ from person to person)

[@mohitsahu5437]

How you feel now??same problem with mee

[@truthteller8872]

I'm 53 and was tested for POTS some year's back, even had the Tilt table performed which results were great. I've been to roughly 5 different cardiologists from 92-97, 3 of them diagnosed me with Mitra Valve Prolapse, than the last two confirmed I didn't have it due to better imaging technology that came out in later year's. I was diagnosed with Hypothyroidism in 96, had a partial Thyrectomy, in 92 a complete hysterectomy. My heart rate for past 3 years was sitting around 107 bpm, would get lightheaded at standing, terrible anxiety, blood pressure would increase. Last month went to ER Clinic couldn't tolerate it. No findings at ER, however since it was a clinic it would take 3-4 days to receive TSH- Thyroid panel. Something told me I felt my symptoms were due to possibly my TSH had moved into hyperthyroidism, regular doctor conducted the panel and sure enough it had moved to hyper. Although a couple months ago when I had TSH checked it was in normal range and was still getting increased heart rate but I've surmised that although someone can be in normal range that normal could still be symptomatic for them. Since decreasing my Thyroid meds my heart rate has gotten better. My point is, a thyroid condition can mimic POTS, and as you stated a Autoimmune Disease can be a cause to POTS. I recall bad around 1997, I went through a period of having low blood pressure upon laying down and heart rate would be increased, I had lots of fatigue as well. It's a very complex medical situation. Sorry for the long post but wanted to share some of my story in hopes it may help someone as to get their Thyroid levels checked as well and get check for Autoimmune Disease. It's the motor of the body and presents all sorts of symptoms, ( beyond the common symptoms most often made aware of, even pre-menopause and menopause). I really enjoyed your wonderful articulation of POTS, you have a brilliant mind and very empathetic and I thank you. I'd wish I had known the information you shared back when I first thought I had it, which I may still, tricky stuff. You're an amazing asset, much appreciated. Thank you. I wish you all the best of health.

[@writer684]

Thanks for sharing, how did you get well?

[@elisabethsmith4577]

I wanted to thank you for making this video! It made it very easy for me to test myself at home. My bpm went from 60 to 130! I will be talking to my doctor Monday

[@kysscum111]

Your regular bpm sounds low- How old are you? 😅 My lowest was 60< But thats a big difference!

[@arny625]

Mines 60 to 150

[@themelonsoup]

I found a girl who was a contortionist and burlesque dancer who had EDS, and now I follow probably every EDS channel ever.

[@charleneb5361]

So much technical knowledge 😮 and adding in the best treatment options is very helpful. I didn’t even know there were types! In my experience, the tilt table test is one tilt up and one tilt down. It sounds scary but it’s controlled and they walk you through the whole thing. Totally worth it to get a diagnosis and treatment.

[@denisefornara-ivarson3172]

This is SO interesting. I was just diagnosed as having HEDS at age 48. When I was a teenager, when standing, even just for a few minutes, my feet and lower legs would turn completely purple. I had a habit of marching in place because it would get so bad and they would feel so weird and tingly and swollen. My parents used to point it out to me when I would stand washing the dishes, for example. It was just "normal" to me. Hearing what you said now, about the "stretchy blood vessels", and how things tend to improve as one ages, it makes so much sense. It still happens, but not nearly like when I was 16! Thank you for this information when it is so difficult to find elsewhere!

[@rosie2466]

this video is years old so i doubt you'll see this comment but thank you for this video! i don't mean to dump here, but. i've been passing out and a whole lot of issues and hospitalizations and nobody knows what's going on with me and this video (which came on my tik tok? if i'm not wrong) i came here to look for info. i'll be sure to talk to my doctor about this because this really hits home. thank you so much for this video. it's super informative and it gave me so much clarity. i have an appointment soon and this gave me a lot of comfort.

[@UMMrealLoud]

I am the 1,000th like! I have had an EDS diagnosis for about 2 years now, and I just found this phenomenal physical therapist who isn't just an expert, he HAS it. His whole FAMILY has it! So I went from knowing nothing and having no one who could first hand tell me what my future could look like. Now I have about a dozen people worth of information through him and he's helping me figure out what things I could have attached to the EDS, POTs potentially being one of them. Thank you for all the super useful information!!!! Has anyone found any good support groups for either of those types of conditions?

[@ianseaweed]

Incredibly well explained. Looking into this condition as I’m into my third year of Long Covid and all the disruption to my heart rate and blood pressure.

[@marky5493]

Oi I'm 2 yrs in, I'm also thinking along these lines........ Doc put me on desprin 300mg/day and In 2 days I lost that pain in the middle of chest that was there for months!!

[@jennifertustin6629]

I had a tilt table test and it was by far one of the worst things I’ve ever gone through. I felt like I was going to puke for 10 minutes before just passing out. The 10 minutes felt like 10 years though. I couldn’t do much for the rest of the day either.

[@ana_bearr9424]

Same exact thing happened to me. The cardiologist said that was a “normal” reaction & said I definitely didn’t have POTS. I’ve been fighting for a diagnosis for 6 years & its beyond frustrating

[@LaurelJohnstone]

I definitely know something is up, but this gave me something to go to my doctor with - thank you! Resting was 90 - went up to 121 within a minute of staging - dropped back to 85 as soon as a laid down.

[@mjenks85]

What was your outcome. I have appointment soon. Mine is usually around 85. Stand up and it goes to 125 ish.

[@karly_ongrowth]

I love how informative your videos are Izzy. :) Even though I was diagnosed with POTS 8 years ago, doctors gaslight me till this day. While I do have anxiety on top (due to other life things) its obviously not what my chronic illnesses are + i know the difference!! Its just crazy to feel like im only just now learning more about the illnesses I've had for so long!! So grateful for everything you share.

[@kelsieatwood5834]

I think it’s interesting that POTS is related to EDS! I have hEDS as my current diagnosis but am going to see a geneticist next month! (Hoping it’s hypermobile or a lower risk form of EDS). What’s interesting is that 2 years ago my brother had a dysautonomia (or however it’s spelled) episode and I experience POTS symptoms pretty frequently.. I’m hoping with a solid diagnosis I can receive closure and A REASON for why I have weird things always going on with my body😂 your videos are super helpful and I love that you aren’t complaining or wanting attention for having this illness but instead are raising awareness and providing some education about the conditions! You’re awesome!

[@smith4735]

You are AMAZING Izzy! So positive! Such a bright smile! Thank you for adding to the world by contributing your understanding as a patient and member of the hEDS community. 🙏🏻❤️😀

[@NativeJewel]

Wow you are definitely helping those out there who possibly cant afford to get a diagnosis from a doctor and for that I give you hella kudos for.

[@TheMazinoz]

Yes, I had tilt table test, didn't pass out but felt very unwell and found it horrendous. No one told me the results, so waste of time and money.

[@victoriagomez5527]

Thank you so much! I believe that my daughter has some type of dysautonomia but I’m having a hard time being referred to a specialist. Drs just keep telling her that it’s psychological because she doesn’t faint every time she stands up or it happens several minutes after standing. You give me hope that there are Doctors who understand. Her heart rate drops to the 50’s and then shoots up to about 117 after that she has syncope. Thank you for sharing this info that not all POTS are exactly the same. Most drs don’t seem to know this

[@Glambert714]

I just want you to know I appreciate all the videos you make because this one helped me finally reach my POTS diagnosis by providing my own data over a period of time to my doctor. You’re the best!!!

[@julietevelyn6466]

I'm sitting here sobbing. The doctors told me I was crazy because I told them my blood pressure shoots up to 2:30 over 180 when I stand up. They saw it happen but they said I just need to take blood pressure medication. Which, did nothing. I also think I have vEDS, So I'm terrified that my blood pressure shooting up that high is going to cause an aneurysm. I get my results this Monday morning from my connective tissue panel. THANK YOU SO MUCH for this video. Hyperadrenergic POTS describes what happens to me. Finally! I think you just gave me the answer after a decade of searching!!!!!!😭😭😭😭💕💕💕💕

[@hivemindgoblin8540]

I’ve have PTLDS after having had Lyme for 12 years without treatment, and since I got that I’ve had a hard increase in what feels like heart problems, with bad palpitations, severe pain and other issues like sudden faintness, passing out after standing up, briefly losing function of my legs after standing up and literally just falling because of it. My normal BPM ranges 77-87 but can shoot up to 150-160 just from standing upright. Now my healthcare team just started to consider POTS and I have to have appointments made with specialists. The thing I might consider strange is that it doesn’t always happen just from standing up. Sometimes my heart-rate shoots up to 120-130bpm while I’ve been laying down (relaxed, I am not anxious) for a few hours. After one particularly bad day that I ended up passing out and my heart was hovering at about 160bpm all day, it maintained high rate while I was sleeping and I kept awakening to alerts from my watch for the rest of the day, while I felt completely faint and incapable of moving all day. Does anyone who has POTS experience this?

[@thisisaname4661]

I usually have to lay in bed for a while after waking up because if I get out of bed right away I'll feel extremely dizzy and nauseated. Then when I do get up I need to take it easy and often need to stand for a minute or so to collect myself. I have many of the other symptoms of POTS. This came on the last couple of years and has been extremely confusing. Some days I have to spend hours laying down before I feel ok. It's really hard to explain to people why I can't get out of bed and when friends ask "What did you do today" I often just lie or say something vague like "Not too much"... My mom got me on these amino acids and I found they do help a lot. I take them to be able to function during the day. Except they are over $50 a bottle which lasts a month so I only take half the daily dose and take the other half only if I REALLY need to. I do my best to tolerate my symptoms as best as I can without help.

[@lumbeejojonativedaughterdi9770]

May I ask what supplements you have taken that worked for you? God bless you. JoJo

[@samanthamorris427]

Do you have migraines?

[@Crrly]

I had to stand for 15 minutes, a freaking nightmare for my EDS-body! 😅 ( my life before EDS hit me like a truck was basically standing front row at concerts, my biggest passion - it's been 10 years since I attended a live concert 😢). And yes, POTS was confirmed. I'm taking beta blockers and drink lots of water. Salt capsules is essential in summer. I rarely faint, but the pre-syncope is scary, basically going blind and deaf. I quickly get on the floor. It's so much more to POTS than that, but most of us here is aware of that I guess. And you're explaining it very well, Izzy!

[@YellowPineappleHoyas]

Thanks for this explanation. I have EDS and havd been waiting 4.5 years to see a POTS specialist. I have been really struggling with hyperadrenergic POTS and knowing this information is helpful.

[@kaylacote5376]

This is such an informative video, beyond helpful! Thank you!

[@IzzyKDNA]

so glad to hear it!

[@HeavyMetalRubberDucky]

I was just diagnosed yesterday. It makes so much sense now.

[@wisdombright9821]

Did anyone here start getting this after stopping blood pressure medication like beta blockers? Laying down :65bpm Stands up: 120bpm ( with 1 min of standing) Lays back down: 51bpm Stands up for longer than 15mins and I get woozy and light headedness.

[@stevenwilliams1140]

Yes i did

[@sophiebramley9595]

Yes! Has it gone away for you yet?

[@wisdombright9821]

@@sophiebramley9595 Yes, it's gone now. Took about 5 months to feel normal again. I took propranolol for anxiety and after stopping them I began having nasty withdrawal symptoms including Pots.

[@sophiebramley9595]

Thank you so much for this good news!!! I stopped in September and still have symptoms. It is improving but very slowly. So glad this went for you - fingers crossed the same for me. I took propranolol for anxiety too! Never again, worst drug ever

[@sophiebramley9595]

@@wisdombright9821 sorry i didn’t tag you, see reply above

[@macyjohnsonnn]

You explained this so well. When I was diagnosed with POTS I wasn’t told what type, i wish I was. Just going off of what you said mine sounds more like the second one. But hopefully next time I see a doctor I can talk to them about it

[@macyjohnsonnn]

I have POTS and hyper mobility

[@dr.shubhamaggarwal5729]

How hypermobility feels like?

[@GarethRain-h6k]

Thank you for explaining all this! I have a tilt table test coming up, POTS would explain so many of my issues I’ve had since childhood. I didn’t know it could be related to EDS, which I’ve also suspected for a long time. So much will make sense if my test is positive lol

[@yaelWolfebaz]

So much more helpful than most doctors thanks. I get lightheaded and out of breath every time I stand up without tachycardia so idk…

[@hyabiela4152]

thank you so much for explaning this illness. iv had these exact symptoms for over 6 months but my mum has anemia because of her periods so i thought my issue was something like that too. but my symptoms have been getting progressively worse over the months and i just turned 14. all of my symptoms matched exactly with the symptom criteria for PoTS and my bpm when resting is usually around 76 or 72 but upon standing its 136 bpm meaning it almost doubles. iv seen a lot of comments under this video that have said they’ve struggled getting a diagnosis because some doctors don’t understand or they ‘aren’t the right age’. im seeing my doctor tomorrow so wish me luck !

[@unnikrishnanpillai4499]

Does pots leads to heart failure ? Plz reply

[@aartiraghuwanshi389]

​@@unnikrishnanpillai4499my cardiologist said it is not related to heart but nervous system. Heart is perfectly healthy so I think it does not.

[@Eosinophyllis]

Tested myself Lying: 71 Standing up: 123 I think I found out why I can’t exercise

[@naelna]

Your explanation is excellent! no one can do it better in my opinion. I'm testing myself and the increase in hb is exactly 30, consistently. no change in blood pressure. you said don't diagnose yourself, but it fits..

[@mairahussain437]

omg you are a genius .I just realised I have a third one I always thought I had anxiety I told my cardiologist he said it's all due to my anxiety. but this makes so much since my blood pressure lying down is 110 73 and it goes to 126 to 89 when I get up with a 50 beats rise.

[@nichellehowell]

Dr Berg says to take b1 for pots. It really helped me!!!

[@AhmadHennawi-dn3vo]

Is ur pots cured with b1 ??

[@shannononeill7108]

Thank you so so much for explaining at 5:05 about Orthostatic hypotension and POTS, I 100% believe I have both now, I’ve been diagnosed with Orthostatic Hypotension about 2 years ago and I’ve been on Midodrine but every time I stand up my heart rate shoots up in between 110-125 even tho the midodrine helps to not have my blood pressure go down. I see my cardiologist tomorrow morning so I will be mentioning POTS to him

[@ColodeSo]

I have POTS and HSD, tested myself today (68 to 117) and tested by my cardiologist too (100 to 137) with a lot of symptoms like very dizzy 😵‍💫 I'm going to test more salt in my diet and compressive clothes 🤞 Thanks for your video 🥰

[@roehiser8053]

I know this is an older video, but it's been helpful, thank you. I'm 29 and since I was 12, right after having Rheumatic Fever, I started showing symptoms of POTs or Orthostatic Hypotension. In 2015 I started having horribly strong heart palpitations and was diagnosed with Rheumatic Heart Disease caused by having Rheumatic Fever when I was a kid as well as SVTs, PACs, and Mitral Valve Prolapse. The thing is, I didn't know I had Rheumatic Fever, my mom was really abusive and thought I was making the symptoms up. Well, now that the years are passing I'm realizing that a lot of things that I think are normal other people don't experience. This coming January 6th I have a cardiologist appointment to possibly get diagnosed for either POTs or Orthostatic Hypotension... I'm unsure which it is, or if it's my other heart conditions causing the constant blackouts when I stand up, but realizing it wasn't normal has finally opened my eyes. Just knowing what possible tests could be done and possible medications they might try is very helpful, so thanks!

[@IzzyKDNA]

good luck at your appointment! I'm glad to hear that you're going to see a doctor to talk about these symptoms

[@zooh8017]

Me: I’m probably just being dramatic My heartrate: 80->127 ... def getting tested and encouraging my mom to do the same. She has extra chairs around the house for bracing herself when she gets dizzy from standing up too fast

[@Emerii1]

How I got diagnosed: (referred to cardiologist by my GP for a stress test) Me: "I feel like i'm going to feint just walking across a parking lot, and feel weird when i do basic chores and stuff!" Doc: "Your too young to have heart issues, you should probably try to loose some weight though." //motions toward the door Me: "WAIT! my GP sent me here for a stress test, i should get one right?" Doc: "it will be for nothing, but if he wants it then i'll do it" Me: //on the tredmil, feeling bad immediately, she starts having trouble reading my BP on the tredmil, i tell her "It's happening!" right before i pass out on top of her xD Doc: //i come to because he's holding my legs in the air "Well I guess you weren't faking it! You have Dysautonomia." Me: "Thanks doc" My pulse pressure was abysmal, sometimes in the 10's and 15's just going about my day.. that was the worst of it. Luckily like you I am feeling better after reconditioning myself, but i have really bad days still. Based on this video im hypovolemic POTS, which explains my narrow pulse pressure (how close your top and bottom BP numbers are, it should be 35-45, mine was 10-15 and 20 on a good day) My usual BP was 90/75

[@tanakanicekill9744]

I did the lying down and getting up thing and mine went from 74 to 145 super quick and I almost passed out, that's a 71 bpm increase...gotta see a cardiologist and I'm lowkey kinda scared😞

[@morgenstarmusic3462]

yeah mine went from 66 to 151 and i--- wtf

[@SD-xv8ns]

How are you doing? :)

[@tanakanicekill9744]

@@SD-xv8ns I got diagnosed with POTS, and hEDS. I have to get iv fluids 2-3 times a week at home, I take Midodrine and florinef. The doctors also suspect gastroparesis and MALS. Might have to get a picc line and maybe even an ng tube to im able to get medications :/

[@SD-xv8ns]

@@tanakanicekill9744 Really sorry to hear that! Hope it will all go well for you, I’m sure the treatments will make it easier at least

[@tanakanicekill9744]

@@SD-xv8ns oh its ok :) thank you for asking💝

[@DjokerNole42]

Thanks for explaining it so well. I needed to understand this for a friend and now I feel like I do, great job!

[@enzone45]

You're a good friend doing your due diligence and look ups online. Some people go at it alone or their 'friends' could care less about it lol! Stay safe stay healthy 🤙

[@gigischuster3078]

YeP. I have a Service Dog that helps me with managing and alerting to it. Stairs and any time going up and down them, trying to move and rotate body as your moving after getting up and having or had a mild to severe episode, the more I move the worse it gets or pushes me into another episode.

[@Thatdogtilly]

I tested myself and here are the results: Resting: 79-82 Standing:137

[@Dogwithoutaname]

sitting, 73 HR. stood up and within 1 minute i was at 113. and I know i have hypertension and syncope&collapse already diagnosed. Im getting Tilt table soon at Dr. I was originally misdiagnosed with BPPV at age 2!

[@eggsbenedict4287]

I've been trying to get my mum to get me to a doctor about pots (I'm 13) and she let me do the stand and sit so I layed down and stood up like you describe, and I went from 83bpm to 138bpm and my blood pressure dropped, and she said she'll look into it is thanks for this video so I can convince her to get me to a doctor :)

[@chadsmith951]

Thank you so much for the videos. Super super informative. I hope this finds you well. If you ever get a moment, just wanted to hear any thoughts on my wifes poor man tilt table results. Not asking any diagnosis, just thoughts and opinions. Lying down BP 129 - 78 - Pulse 59 Stand up 3 minutes - BP 138- 97 - Pulse 95 5 minutes - BP 111- 86 - Pulse 109 10 minutes - BP 112 - 83 - Pulse 127 Based on her results, in making a guess. Id say she has both. They said if pulse goes up and not much change in BP, its Pots. If the BP drops and pulse goes up then thats Orthostatic Hypotension. But the confusing part is they say the symptoms of Orthostatic only lasts a few minutes. Her symptoms have lasted 3 months. It looks like at the 10 minute mark her diastolic starting to get closer to normal but her pulse continued to rise. Any feedback is appreciated. thanks

[@123456790lol]

My nuero actually gave me a three page orthostatic work up sheet to do the "Poor Mans Tilt Table Test" at home!

[@katkaplan3]

Hi 🦓 girlfriend, from the middle of a cruise ship in the Caribbean... and the wobbly waves have not helped with my my pots and wobbly gait let me tell you! But I did this test, either via an older video you made? A year or so ago, before I got officially dx. Very good info. As always 👍

[@IzzyKDNA]

i hope you're having a blast!

[@unnikrishnanpillai4499]

@@IzzyKDNA Does pots leads to heart failure ?

[@sjord7]

I have lupus and sjogrens, and I've been thinking something else is wrong. I have a bunch of the POTS symptoms, and passed out once, but didn't know why. Then my wife's coworker said she was trembling a lot, and I asked oh, what does she have? I wanted to see if her trembling might have anything to do with mine (a long shot I know). She had dysautonomia, and I looked up the symptoms (and what it was, I'd never heard of it), and wow - everything really seemed to line up. With your test, I was able to to see my heart rate go from 55 to 108 (and yes, I almost fainted during the test). And to top it off, people with lupus and sjogrens and celiac tend to get this. Now I just need to get the doctor to agree. I feel like I collect diseases, I have so many of them now. I think I'll stop here - no more please! Thanks for posting such a great video.

[@andreamarie0727]

I’m a medical assistant and these “manual” test by laying down is called orthostatic blood pressure. What we do at my office is have someone lay down for 5 minutes, stand up and take it as soon as they stand up, then take again after 3-5 minutes of standing.

[@MeowMeow-sy2mi]

It literally went from 52 bpm to almost 90 bpm within 30 seconds 😵‍💫 damn

[@arny625]

52s low

[@lenagoodwin8223]

Me to my doctor for years: I get dizzy every time I stand up Doctor: everyone gets dizzy sometimes when they stand up too quickly Me: facepalm So glad I discovered channels like yours on KZbin so I could actually get a diagnosis after almost 2 decades!

[@billt689]

Does anyone here get a constant chest pain from POTS ? Don’t know if I have it but I am still suffering from Covid symptoms 7 weeks later and I just tried this on my pulse ox and went from 75 to 120 within 15 seconds and it stayed at around 120-130 for about 5 minutes until I sat back down.

[@user-tb2jy9lu3d]

I've got POTS/Dysautonomia at 37 years old. Had 3 ER visits starting in December 2019. Healthy, fit, muscular and not overweight male. I do have sleep apnea (64 apneas/hour), but I've been under BiPap treatment for 2 months and it doesn't appear to be related to that. My numbers are down to 1 event per hour. Went to a gastroenterologist and had a swollen stomach lining for known reason. Rapid heartbeat and blood pressure going up and down. I don't get that big of a change in heart rate from lying down to standing, though. My blood pressure does go up and down. Some nights at 4am it can be like 155/125 blood pressure and then a couple of hours later be 118/75. When standing during the day, it is usually more so 105/70. When I mowed the lawn for 10 minutes at moderate speed, my heart rate hit about 160-170. Resting heart rate 5 minuets afterwards (while sitting) was 150. I've seen an endocrinologist. No thyroid issues. Sleep doc says it isn't his field. Primary care doc says Dysautonomia/POTS. I don't faint, I just get dizzy, brain fog and toss and turn a ridiculous amount of times all night. I definitely don't have EDS because I'm not very flexible. Got a tilt table test coming up next month and also a visit to an electrophysiologist and a sleep neurologist. My arms/legs move an inch or two during sleep and no movement disorders were detected during 3 in-lab sleep studies. Can't focus enough to drive and 24/7 malaise for no known reason. I only feel decent when lying down. Sleep is not restorative.

[@mybubbles5552]

I relate to everyone in the comments so much! It’s hard to get the right diagnosis and no one believes me when I say I’m chronically ill 😭 I have all the classic signs of POTs but my tilt table test came back “normal”. I feel hopeless.

[@kysscum111]

Whats your lowest and highests bpm? I did a test- and it was 89 to 134, so 45 difference- Im 11 so I find it a bit normal

[@mjenks85]

I passed out simply from a mri table. The nurse was stunned. They sent me home saying I'm fine. That was a year ago. I used to feel faint everytime i stood up. I was so bad last year. Now I have a doctor who's listening to me and it's not as bad but still have all my symptoms and since it's not as bad I won't gwt a diagnosis.

[@SandyDiVa]

I have orthostatic HYPERtension which delayed my diagnosis for YEARS because they assumed I didn’t have pots because of the high blood pressure. I had a positive tilt table with hypertension and have since been diagnosed with Dysautonomia with IST. BUT I’ve gone untreated this whole time, FIFTEEN YEARS. I’m bed ridden when I’m home. Any exertion makes me sick, too much I go into autonomic crisis. I sweat profusely, I get short of breath, my heart races, I get palpitations, everything hurts even with opioid pain medicine. Please say a prayer. I finally see my first autonomic doc June 11th. To say I’m excited is an understatement. . Ironically, I do well with saline too. Because I sweat sooooo much I’m constantly dehydrated. I cannot drink enough fluids ever. And with sweat you lose salt, too. This dehydration WILL make the heart act up even worse causing palpitations and scarier symptoms. They magically go away with an IV. The struggle for me is getting an IV infusion. The only way is to go to the ER. Do you have any suggestions on how to get this covered....I’m on Medicaid,

[@rockysaini866]

My blood pressure increase when I standand heart beat goes upto 110. is it POTS?

[@SandyDiVa]

rocky saini I’m not a doctor but does it go back down? Or does it continue to stay high? And I’m assuming you mean heart rate not blood pressure correct? If it doesn’t go back down I’d ask your doctor to test you for pots...a tilt table test

[@artemisiou]

My heart laying is 50bpm and as soon as I stand up it goes to 150bpm. I'm still not diagnosed but I've kept a diary of my heart rate in different postures so I'm hoping this diary will get me the help I need after all these years being told I had anxiety.

[@cori8489]

Vanderbilt's website explains that people can also have multiple types and that it is important not to always type the POTS someone has. I have 3 Disorders when it comes to Dysautonomia that I present as and that we have to consider for me. Hyperadrenergic POTS, Hypovolemic POTS, & Baroreflex Failure. My cardiologist is trying to figure it out. Mine has only gotten worse, especially this year.

[@IzzyKDNA]

yep! as I mentioned in the video there can be a lot of overlap and often people don't know or need to know what type they have anyway! but it can still be helpful for some people

[@cori8489]

@@IzzyKDNA oh yeah sorry I was just agreeing with you and throwing in more facts. I have a habit/quirk of always just adding what I know along with my comments. Sorry if that comes off weird. We're sure I possibly have high functioning ASD as well. I would also love to know what kind of pulse ox you have! It has one more measurement than mine does. Thank you for replying to me too!

[@aliceherley812]

I every type of POTS that you spoke about and EDs3 it's been a hard life. So thank you so much for these videos. I'm 48 and still going through hell.

[@pastorgibson5357]

I too have EDS...Type 3 (ELHERS-DANLOS Syndrome Hypermobility) and POTS due to EDS. I appreciate your video!

[@poppyEars]

my cardiologist brought up POTS after my tilt-table, which i had kind of expected and done some cursory research beforehand, but he described it as kind of a nebulous diagnosis (which i think is a fair description.) your description of the different types of pots was really helpful and was never really clear to me, a lot of lines would blur and i would have a hard time explaining to other people in turn........ thank you so much for this video!! i love clear and thorough information :)

[@Lunaphire]

87 to 132. Yikes. I can't believe I'm only first trying this today when I've had a pulse oximeter and suspected POTS for years (with doctors never offering to test, naturally). I think I'm going to be much pushier about the test, now. I'm also nauseated and absolutely exhausted after standing for that long. I probably should have sat down as soon as I started to feel lightheaded, but that was less than a minute in and I wanted to track the whole time...

[@yellowlightingbolt]

Very helpful, this is EXACTLY what happens to me from 60 to 105 approx (specially when my hip was lower than my knees i.e Squatting for a while) and I always thought was just normal. Going to the doctor tomorrow. Thanks.

[@treadmiler]

was it pots?

[@betterwiththeirish]

Wow yours only goes up to 117, that’s not bad. Meds must be helping you 😊 mine goes to 160-170

[@thatweirdscienceguy9880]

Mine goes to 129, then fluctuates from 115 to 129 for about five minutes or so

[@staypawsitive1002]

Me too, mine is always super high

[@mandie1109]

Same, my heart rate is through the roof high....two different meds are not working....they did at first but they don't do anything for me now....I've had POTS my whole life, and at 44 yrs old, it fucking blows ..

[@jessikarlen445]

My resting heart rate is never below 80. My. Sitting down heart rate was 85 My standing up was 146 A 51 point difference cardio appointment February 7th

[@KaitsterSaysHello]

wow! the links to other vids in the description made me subscribe. bless u

[@SobrietyandSolace]

Laying down, 75 standing up it was 143 and the machine started beeping, I felt weird, oxygen saturation dropped to 93 (?) momentarily, so I sat down again. That was a day I felt particularly weird. Usually I hover around 105-120 when standing and go back to 65-75 when sitting. I suspect EDS (7/9 Beighton score and lots of symptoms)

[@Glitch_pixels]

Thank you for explaining so well!!!!!! It's very helpful

[@EricaDiebold]

Thanks for the video! I had a tilt test done two months ago and passed out on the table. My bp dropped to nearly zero and my cardiologist said it was probably vasovagal syncope. I’ve been taking my bp throughout the day now and really relate to pots and EDS symptoms. I took midodrine for a month but my symptoms were not improved and I was actually having an adverse reaction. I’m on atenolol now but still not seeing much improvement

[@crowofjudgment]

My max was 170. My cardiologist was not happy about that. Especially since she believes I have two conditions one where it's dangerous for my heart rate to rise (sudden cardiac being possible) she told me max standing time is 10 minutes, no driving, and I will possibly have a service dog for it

[@theEVILonionRAT]

I have POTS and my heart rate increases sometimes almost 200 bpm. Idk what type of POTS I have the doctor just diagnosed me with it, but I’m pretty sure I have hypovolemic POTS.

[@olivian7266]

THANK YOU for this video. I was confused because I have every POTS symptom but my heart rate shoots up but my dialastolic blood pressure was going up. I was so confused why that was happpening but the specific types makes sense. I also was told pots gets better as you get older but it has gotten worse so that was also confusing but knowing that specific type gets worse makes me feel better to know i'm not crazy. I have been in so much pain for so long and I was so confused, thank you

[@pipersimpson-saner404]

Amazing video Izzy!🦓💛

[@florabittner4590]

every time i do the test I become more convinced that I probably have POTS. Today- laying: 80bpm standing: 148bpm that’s an increase of 68bpm when I layed back down it went back to 83bpm

[@amberl4401]

Thank you for explaining this. I have to get a test done in few weeks of the tilt table. I’m nervous. I guess as long no needles I should be ok. I do have dystonia in neck so it might make it hard to stay still. I still have symptoms of long covid too.