POTS Diagnostic Criteria Test | Three Types of POTS

[@IzzyKDNA]

🦋Please subscribe to help out my channel and learn more about EDS, POTS, and genetics! 🦋

[@turbostoner]

I just did this & I had the same results as you….. II made an appointment with my doctor just before watching this. Idk what my results mean right now, but I’m DEFINITELY suspicious. 🤔

[@monicaross4013]

laying down: 80 standing up: 140 My doctors over the years: "Nah, that's normal. Stand up more slowly.... oh and everyone's tired. You wait till you get to be my age, then you really feel tired." Luckily I finally did find someone to take me seriously in the last few months, but I am always terrified to go to the doctor because I feel like death and am in desperate need of help but in the past no one has taken me seriously. I have other serious issues too, I'm very ill. But I have a block in following up because I don't trust doctors anymore.

[@isabeanieboos5342]

💗Jesus loves you so much!💗 don’t worry😊

[@HillbillyYEEHAA]

For anyone who doesn't have a dr who listens, get someone from any pots charity to email them ect I had to get a lady from narcolepsy uk to email my dr as he laughed at me

[@lindajakub624]

I feel same. I am 77 amf have hashaottos thyrodytis. I was talking a high dose of thyroid med and felt pretty good most of time. My blood thyroid test did not change but primary care physician decided to lower thyroid hormones to two third less I was so exhausred I could not get out of bed.. I think extra thyroidmed. helped me mask pots.Thyroid med.s testdid not change even on less thyroid med. Then I started getting eye injections for wetmacular in right eye. Then very high heart rates. My pulse is typitly 62 bit I was 12 0 after i jections. Tired is an understatement . I get injections every 3 months. I have had 6. At About time for an i jection pulse gets much better. I will not get any more injections I am hypermobile.

[@parkerm2546]

I tested myself again today and it was my most drastic yet! laying down: 58 standing up: 152 almost 100 bpm increase and yet I'm still not diagnosed because my doctor thinks I'm too young (I'm 14) to be sick Update: it’s been like 2 years since I wrote this comment and thank you to everyone who’s replied, I’ve been diagnosed with pots since June of 2020 this was just before we had an insurance switch that allowed me to see a specialist :)

[@balazsluca637]

I’m 13 and I have Eds, scoliosis, kyphosis and many more. My doctor does not want to test me either bc I’m too young and he’s scared bc my anxiety is really bad. But I’m sure I have pots my resting hr is 88 and standing is 145. And stone times I pass out. But I think we should not give up finding a diagnosis if you know something is wrong with your body.

[@parkerm2546]

@@balazsluca637 I'm in the process of being diagnosed with EDS but my doctor (not my cardiologist) isn't sure whether it's classical or hypermobile and due to corona I can't get tested. I also have scoliosis + other conditions and I absolutely agree that we shouldn't give up. Sorry to hear you are in a similar situation with getting a diagnosis It can be tough. Thanks for your comment :)

[@karlayork877]

Old lady here -- 69, and my doctors refuse to even consider things I've dealt with all my life (like this) because if I actually had anything causing these symptoms, it supposedly would have been caught when I was a child! I hope you have much better luck.

[@parkerm2546]

Karla York I’m sorry to hear that- It’s so frustrating that some doctors won’t believe you no matter what your age. Luckily last month I switched cardiologists because of insurance and she listened to me and I finally got diagnosed with POTS. I hope you can also find out what’s going on and get some answers :)

[@karlayork877]

@@parkerm2546 Thanks, Kaylee. I'm glad you found a good doctor.

[@MK-agirlwhosmissunderstood]

Had the tilt table test recently and I "failed it". I put parentheses around failed because the tech was writing down the vitals. I have videos and wore a heart monitor for 7 days and it picked up my Tachycardia very high. 171 beats per min. Im tired of medical gaslighting. The hospital i had the test done in was extremely cold. My issues exasperate when I'm hot or doing every day things such as making food or getting dressed from taking a shower. Im at my wits end! Thank you for this video!

[@emmaalbers6320]

I am so sorry to hear that! I am scared this will happen to me as well, despite dozens of tests Ive run at home and recordings Ive taken of my bpm jumping from 58-78 range to the 115-140 range.

[@kerrysmiles]

Wow. You explained that so much better than any doctor ever has. I actually understand it so much better than I ever have understood POTs. Thanks!

[@IzzyKDNA]

wow so glad to hear that!

[@elisacudmore1536]

Wow you are amazing

[@Cw-wi6uj]

@@IzzyKDNA wow you are smoking

[@rameshlumb4003]

​@@IzzyKDNAu feel low energy sym please answer

[@waterywanderer620]

I’ve been struggling with shortness of breath and feeling like I’m having a heart attack for over a year, I’ve had chronic joint pain for 6 years. When I went to the hospital they ran an ECG while I was lying down and it was normal, did a CT and it was normal. They called it anxiety. I haven’t felt like I can breathe at times out of no where for so long. Only relieved when lying down. Your videos helped me advocate to my doctor and she thinks I have POTS. Your videos helped me discover my hyper-mobility *I always thought it was coupled with flexibility* and have given me a lead to what was happening. Thank you.

[@kaseytrevino5438]

This is how I feel... I went looking for help because I can't take the shortness of breath anymore but when I lay down it feels a little better.

[@ogchicoo]

I have THE SAME issues... I was diagnosed Dec 2021. I've been miserable.. but doing alot of research and trying to find support & remedies.

[@dwayb79]

@@ogchicoo how are you feeling now?

[@cristinaalvarez631]

Story time: I think my doctor diagnosed me with POTS back in France. I did not speak a lot of French, we were communicating in English, he took my pressure while sitting, then while standing, and then told me to eat more salt. So...yeah, I think I have it.

[@chasingrainbowschannel]

Really well done video! Drs easily dismiss pots and gp's dont seem to know much about it. I tested my daughter for this and took video of doing so since her doctor dismissed the idea. I came in with proof and "asked" for a referral to an Electrophysiologist. It is horrible how doctors can gaslight their pateients and leave them feeling crazy and so ill. I have orthostatic hypotension and it may be secondary as i think i also have Parkinson’s disease. Ive gone through years of doctors making me feel crazy...i did not handle it well when they did that to my daughter. No one should have to be treated badly by a doctor. They should be trusted and safe people, especially when sharing pain and suffering. Hope everyone watching finds a good doctor!❤❤❤❤❤

[@jamesbendle7996]

All Drs SHOULD BE LIKE THIS woman. clear advice that makes sense !!!!!!!!!!!!!!!!!!

[@hquinn239]

I am sooo grateful for this video. I’m 49 and crying that I have gone my whole life with shame about my level of fitness. Inability to manage my nervous system despite being a psychotherapist who helps others with PTSD and managing nervous system regulation. I hike and do yoga and walk and always feel like I am trudging through each movement compared to my exercise group. You are a gift. So much gratitude for you time and generosity in sharing. ❤

[@summero1554]

When I was diagnosed I was told I was “borderline” pots. After watching this and tracking my own heart rate I realize I was tested incorrectly multiple times. The first time I was tested it was almost correct and that’s when I was put on medication. The second time the whole process took four minutes and I was told “we don’t treat cases this mild” after being incorrectly tested. Still salty about it.

[@kaylacote5376]

I like that you used "salty" haha ;) Sorry about this, it sucks when doctors mess up

[@summero1554]

Kayla Cote Doctors Thanks! Stay salty! 🧂

[@theskyisonfire]

Lucky.... I wanna be salty to 😭🤣

[@mybubbles5552]

I was finally told I have “dysautonomia like disorder” when I clearly have POTs! Drs are so frustrating! I was told I had panic attacks for years only to find out it was dysautonomia. Salt helps a lot. Stay salty friends ♥️

[@a_sterling4514]

I have had similar issues

[@sherriknight-cloud4633]

I'm a school nurse and have a student with EDS, POTS and MCAS- your videos are great in helping me and her teachers understand all thats going on with her. Your showing your heart rate resting vs standing was very powerful. Thanks.

[@RoseVampireGirl4]

As a fellow POTS patient the tilt table test was the worst thing I have ever done. This is very informative.

[@unnikrishnanpillai4499]

What is the treatment for pots

[@unnikrishnanpillai4499]

Does pots leads to heart failure?

[@darwinstevens810]

@@unnikrishnanpillai4499 there’s no cure for POTs only medications to help manage it and it all depends on the person cause POTS is like a collection of other auto nervous system issues. In terms of heart failure that is also dependent on person to person and the severity. Life style, diet, medications, etc etc. there’s not one correct or specific answer

[@DiorMascot]

@@unnikrishnanpillai4499 for a healthy person no it does not lead to heart failure

[@jennihaaser3715]

I have to have one next week, I'm so scared! So it IS as bad as it looks? 🥺

[@belajibben]

I stand up too fast all the time forgetting I have POTS and have to sit down quickly before the room goes black.

[@josiedrayson842]

7⁷UK 7 Loki

[@aspenwindham3131]

Same

[@belajibben]

@@gurgurgur I promise god can’t fix my heart

[@unnikrishnanpillai4499]

@@belajibben Does pots leads to heart failure ? Plz reply 😭

[@unnikrishnanpillai4499]

@@belajibben My heart rate is 115 while standing up is this a sign of pots?

[@immortalvelociraptor7810]

I filmed a video of my heart rate for a year and uploaded it KZbin. I actually got diagnosed with POTS this month cause I had footage to show my doctor so he would send me to a specialist.

[@DeltaThreeOne]

Hm. A test I can actually pass.

[@mommabear2544]

😂

[@shelleywilliams1734]

😂im in love with this comment

[@KarmaStreams_13]

Me with my mental health questions😭😂

[@Jmoney22893]

Lol 😂

[@pandapuffzee8255]

Eeeeeeyyyy

[@penelopepolinsneemeyer4757]

Thanks for this Izzy. It means I can talk to my GP about this without them putting things down to my “age” (I’m 55).....

[@penelopepolinsneemeyer4757]

Megan I was 50 when I was diagnosed. It had never occurred to me that I was hypermobile as I didn’t have many unstable joints, so it came as a bit of a shock!

[@jessthom1016]

I’m 34 but my passing out started 12 years ago. I’m just finally now trying to switch doctors and find out if I possibly have POTS. Oddly I found out recently a lot of symptoms I have that I thought were all separate things are in the list of POTS symptoms.

[@jodeemackenzie]

Im 31 and they say its all in my head. That im fine. 😑

[@jodeemackenzie]

Theyre like oh youre 31 you dont have heart problems. Ive heard the age thing too many times.

[@MultiKswift]

Weirdly, I got diagnosed with POTS at Boston Children's Hospital and didn't get a tilt table test. Weird because it's a very large, very experienced hospital so I don't know why they wouldn't have a tilt table. Either way, I got diagnosed and responded really well to treatment. When I moved care to an adult hospital, I started having new symptoms (different to the ones I had before). I finally got a tilt table test and got diagnosed with neurally mediated syncope. The last few years I've considered myself in remission. But I still have lowish blood pressure and fast heart rate.

[@zbcrazy]

Thanks! I got a pulse oximeter to monitor during the pandemic, and I started noticing weird stuff. I've always felt pretty gross but no doctor has looked into it because it's always written off as my panic disorder (hello, I know what the difference feels like). Finally I now have a doctor who actually listened and immediately put me on a heart monitor for 48 hours. I just turned it in and have to wait, but this is basically ticking a lot of boxes for me. Laying down I can get my heart rate down in the 70s, but standing up, even slowly and gently, my heart rate IMMEDIATELY goes up over 140.

[@allyson2382]

I have an anxiety disorder as well. It’s so frustrating when doctors write off your symptoms as anxiety when you know it’s not.

[@crystald3655]

@@allyson2382 Same and doctors are constantly writting everything off as my anxeity.

[@nat9844]

I've been having symptoms and my mother is the one that thinks it's just my panic disorder! As if we couldn't tell if it's different so no blood test or anything for me

[@ThomasJefferson-xc8wg]

@@allyson2382 I'm actually scared of getting this, because I show signs of what is probably OCD (albeit i can't access a doctor), and also showing weird symptoms that dont seem to be FROM the OCD itself (livedo reticularis, sometimes hands get red and spotty and oddly tingly in fingertips, keep getting dizzy getting up which at first happened only getting up from laying down, but it starts happening whenever i get up now)

[@BTIKM]

@@allyson2382 sameeeeeee

[@rosie2466]

this video is years old so i doubt you'll see this comment but thank you for this video! i don't mean to dump here, but. i've been passing out and a whole lot of issues and hospitalizations and nobody knows what's going on with me and this video (which came on my tik tok? if i'm not wrong) i came here to look for info. i'll be sure to talk to my doctor about this because this really hits home. thank you so much for this video. it's super informative and it gave me so much clarity. i have an appointment soon and this gave me a lot of comfort.

[@TLynch-pf3ek]

I still remember the first time I completely passed out, woke up on the floor, and thought- huh- is this normal? I was eleven years old. I didn't get officially diagnosed with EDS, Chiari, POTS, et cetera until I was almost 30... such an under-studied area of medicine. Advocate for yourself! Thankfully, I have a great PCP who has learned along the way with me! Along with a whole care team. Gentle hugs and prayers to anyone living this life. Manage your spoons! Thanks for sharing your story and info!

[@DeltaNorington]

I have it when I stand up, I can see what appears to be a blood vessel in my vision that seems to pulsate with my heart beat.

[@SnowySpiritRuby]

I get that, too. And often I can hear it in my ears, too.

[@les5503]

I bought a pulse monitor because of this video and the first time I tried this I “passed.” Very good to have this information for when I eventually see a doctor about my hypermobility. Thanks for this, Izzy, you’re the best

[@MountainRainRain1luv]

I have EDS and POTS. I love what you are doing and giving everyone information and knowledge. Letting others know they are not alone. My resting heart rate stays around 100 All the time. The lowest it has been in 9 years was 94. I'm actually having surgery tomorrow. For chronic sinusitis (I know totally different ) but, going under anesthesia with EDS and everything else, I'm having pre-surgery anxiety. Thank you again I am now a new friend 🌹

[@debiheaton6812]

Thank you for these videos. My 16 year old niece just was diagnosed with EDS and Pots and we wanted to understand what it was that she had.

[@DreamyDuskywing]

You have given me way more information than the specialist who diagnosed me. Thank you x

[@atomicdysautonamic8668]

I've had POTS for several years. This explained better than all my doctors combined. I didnt know there was 3 types of POTS.

[@jennihaaser3715]

This was actually much more helpful and educating than my cardiologist! Thank you!

[@truthteller8872]

I'm 53 and was tested for POTS some year's back, even had the Tilt table performed which results were great. I've been to roughly 5 different cardiologists from 92-97, 3 of them diagnosed me with Mitra Valve Prolapse, than the last two confirmed I didn't have it due to better imaging technology that came out in later year's. I was diagnosed with Hypothyroidism in 96, had a partial Thyrectomy, in 92 a complete hysterectomy. My heart rate for past 3 years was sitting around 107 bpm, would get lightheaded at standing, terrible anxiety, blood pressure would increase. Last month went to ER Clinic couldn't tolerate it. No findings at ER, however since it was a clinic it would take 3-4 days to receive TSH- Thyroid panel. Something told me I felt my symptoms were due to possibly my TSH had moved into hyperthyroidism, regular doctor conducted the panel and sure enough it had moved to hyper. Although a couple months ago when I had TSH checked it was in normal range and was still getting increased heart rate but I've surmised that although someone can be in normal range that normal could still be symptomatic for them. Since decreasing my Thyroid meds my heart rate has gotten better. My point is, a thyroid condition can mimic POTS, and as you stated a Autoimmune Disease can be a cause to POTS. I recall bad around 1997, I went through a period of having low blood pressure upon laying down and heart rate would be increased, I had lots of fatigue as well. It's a very complex medical situation. Sorry for the long post but wanted to share some of my story in hopes it may help someone as to get their Thyroid levels checked as well and get check for Autoimmune Disease. It's the motor of the body and presents all sorts of symptoms, ( beyond the common symptoms most often made aware of, even pre-menopause and menopause). I really enjoyed your wonderful articulation of POTS, you have a brilliant mind and very empathetic and I thank you. I'd wish I had known the information you shared back when I first thought I had it, which I may still, tricky stuff. You're an amazing asset, much appreciated. Thank you. I wish you all the best of health.

[@writer684]

Thanks for sharing, how did you get well?

[@elisabethsmith4577]

I wanted to thank you for making this video! It made it very easy for me to test myself at home. My bpm went from 60 to 130! I will be talking to my doctor Monday

[@kysscum111]

Your regular bpm sounds low- How old are you? 😅 My lowest was 60< But thats a big difference!

[@arny625]

Mines 60 to 150

[@charleneb5361]

So much technical knowledge 😮 and adding in the best treatment options is very helpful. I didn’t even know there were types! In my experience, the tilt table test is one tilt up and one tilt down. It sounds scary but it’s controlled and they walk you through the whole thing. Totally worth it to get a diagnosis and treatment.

[@Makeuploveculture]

Actually this really was helpful for me because I am suspecting pots. Thankyou for sharing!

[@IzzyKDNA]

so glad it could be helpful!

[@GeorginasJourney]

This was so well explained & informative! And thanks for mentioning my video at the end 😊

[@GeorginasJourney]

Also wanted to add that midodrine can still be a really good option for people with POTS who don’t have orthostatic hypotension, but just generally have low blood pressure which isn’t affected by standing (or may even rise slightly on standing)! Especially if you don’t stand or walk much, it can definitely also be helpful in those cases!

[@IzzyKDNA]

TOTALLY TRUE!!

[@karly_ongrowth]

I love how informative your videos are Izzy. :) Even though I was diagnosed with POTS 8 years ago, doctors gaslight me till this day. While I do have anxiety on top (due to other life things) its obviously not what my chronic illnesses are + i know the difference!! Its just crazy to feel like im only just now learning more about the illnesses I've had for so long!! So grateful for everything you share.

[@chasingthestorms]

Mine is weird! One cardiac looks as my tilt table says I don’t have pots, another says I do...but we most assuredly know I have orthostatic hypertension. But mine is picky...some days I will sit down a few, get up and my head pounds, goes numb, I loose my legs and my HR goes up..but now I’m on a med to keep my heart rate low. I’m odd because everyday is a new reaction. More like hyperadrenal... I know I was diagnosed with inappropriate sinus tachycardia but they thought Lupus was attacking my autonomic NS, but now we know it is EDS/Dysautonomia. My heart and body is just super sensitive to everything...I’m just so confused! Has anyone had their cervical/neck mess up, or their collar bones? I can’t even think right now to write....

[@BiggestBisonLover]

I love reading from someone else with Orthostatic hypertension! It’s so hard to find information on it

[@crystald3655]

@@BiggestBisonLover moming with Migraine lives with it. It's made things complicated for her as well. Her channel is very informitive though.

[@SpicyMcG]

Absolutely! I’m right there with you! 👀

[@carolcrumley4597]

Yes. I definitely have POTS, but it took a holistic, functional osteopath to tell me it was POTS. Described 3 ER visits after fainting to regular MDs. POTS was never mentioned. I have a cervical curve problem from a whiplash injury long ago. Look at YT videos by Dr Hauser. He explains in depth how cervical vertebrae problems affect the vagus nerve. It turns out vagus nerve malfunction causes a multitude of health issues. Now I’m looking for a good chiropractor. I’ll add a link to that website in another comment.

[@kelseystarr3564]

@@carolcrumley4597 i wish I could find more info besides just the one guy repeatedly talking about this. The one guy who offers treatment for what he is connecting in the videos. It makes sense to me but I need more science and data and studies. I have had neck issues for a LONG time, I’m hypermobile but not hEDS criteria. I have often felt the neck problems related to my POTS symptoms, because I get the god forsaken coat hanger pain and it intensifies around my cervical spine with my POTS symptoms. Many doctors, no clues.. just now finally putting the pieces together on my own and seeking informed care after a decade of suffering.

[@jenridge7768]

I haven't been diagnosed yet, but my symptoms have been worsening over past 6-7 years (after 35). I have had anxiety dx for 20 yrs. Just did my standing vs lay down BPM... 115 vs 70. Definitely something I can now explore with my doctor. Thank you 💜

[@zoemolin8445]

So? What told ur doc?

[@DoubtToFact]

How are you now? Pls reply🙏

[@grapepiccles2569]

I have pots and orthostatic hypertension here are my symptoms and results from doing this test. It’s super long but if your willing to read go ahead: -whenever I stand up from sitting/ lying down/ or especially in the morning when I first wake up I get dizzy, faint, blood rushes down to my feet, blanking out (my favorite way to explain is like when you are outside on a very sunny day and you go into a dim lite, pretty dark room where your eyes have to adjust, everything gets black as my eyes try to adjust, seeing spots or fuzzy/ blurred vision, reminds me of visual snow, sometimes my head hurts, legs will sometimes give out or weaken, heart beats faster and sometimes you can hear it in your ears. -when standing in one spot for long periods (30- or more min) of time my legs will itch super bad, tingle sensation, they will turn from pale white, to a hot pink to purple, feel really hot to the touch, and I will get goosebumps, sometimes I get a cold sweat where I feel nauseous and icky, then I have to fit down and try to recover, one time I had a situation, now mind I have no idea if these symptoms are together or if they relate to one another however, I did get very nauseous everything felt like it was spinning, tilting when walking, swaying back and forth, unbalanced, feeling of being pulled to one direction, sweating, nauseating, ear ringing, collapsing, faint feeling, cold sweat, wobbling legs and loose limbs, if I don’t get enough sleep these symptoms do tend to have a worse effect but they never got as bad as that one since that day. Although many of the symptoms were the same they never got that bad. It was kind of a one time thing. That’s kinda just the extent of what it could be. -I’m always thirsty but even when I drink the proper amount these things still happen -I had it before I had an eating disorder called anorexia but very very rare/ almost never and it wasn’t a real problem at all, sometimes when I ran to much in the heat and got to exhausted, but it has gotten way worse after and during is when I started noticing it going on, now to the point where it happens almost every time I stand up (you know with few exemptions, meaning when I sit down for a couple min. And get back up to do something) rapid moments like those don’t always cause something it’s just happening more often. -another kind of way I could describe it is when you wake up first thing in the morning, you know you stand up and then you go to yawn and stretch with your knees locked. It’s the same feeling just a little more prolonged and a little more intense. -sometimes this happens once I stand up, and other times it happens after I walk a little ways. -sometimes I will get up and walk a little before these symptoms occur -high energy activities such as pe or just not drinking “enough water” do not help and make it worse, they may even contribute to the symptoms -eyes hurt frequently -when my legs tingle and turn red once I start moving it goes away -period makes it worse -lying down I get sea sick with slight headache when I usually don’t get them -blurred vision I’ve notice my vision has gotten way worse -weird sharp pains in my chest, very quick DONT last that long and go away pretty easily -light headedness -when I lay down on my side it feel dizzy as well as pressure around my head mainly on the sides but could occur as a squeezing pressure from the front and back of my head -sometimes it comes in multiple waves, can knock me down, hear my heartbeat coming out of my chest and in my ears, pounding hard -longer I’ve been lying down, the worse it is -hot weather makes it SOOO much worse -shaky at times -sleep deprivation makes it way worse Bottom of my feet will turn completely white, yellow color and be very cold to the touch. I can’t feel anything when there like this there just there. If I take a hot shower to warm them up it feels like sand paper and it hurts until blood pumps back -showering, sometimes I’ll feel dizzy -drifting in and out of waves and slight consciousness -often run out of breath and have to take a deep breath to get more oxygen and often feels like there is weight on my chest Results: resting heart rate for 10 min was 83 bpm Immediate Jump in heart rate first standing up was 128 bpm After standing for 10 min. The highest it got was 192 (I hope this helps anyone out there confused. Remember everyone is different and types of POTS can differ from person to person)

[@mohitsahu5437]

How you feel now??same problem with mee

[@UMMrealLoud]

I am the 1,000th like! I have had an EDS diagnosis for about 2 years now, and I just found this phenomenal physical therapist who isn't just an expert, he HAS it. His whole FAMILY has it! So I went from knowing nothing and having no one who could first hand tell me what my future could look like. Now I have about a dozen people worth of information through him and he's helping me figure out what things I could have attached to the EDS, POTs potentially being one of them. Thank you for all the super useful information!!!! Has anyone found any good support groups for either of those types of conditions?

[@denisefornara-ivarson3172]

This is SO interesting. I was just diagnosed as having HEDS at age 48. When I was a teenager, when standing, even just for a few minutes, my feet and lower legs would turn completely purple. I had a habit of marching in place because it would get so bad and they would feel so weird and tingly and swollen. My parents used to point it out to me when I would stand washing the dishes, for example. It was just "normal" to me. Hearing what you said now, about the "stretchy blood vessels", and how things tend to improve as one ages, it makes so much sense. It still happens, but not nearly like when I was 16! Thank you for this information when it is so difficult to find elsewhere!

[@julietevelyn6466]

I'm sitting here sobbing. The doctors told me I was crazy because I told them my blood pressure shoots up to 2:30 over 180 when I stand up. They saw it happen but they said I just need to take blood pressure medication. Which, did nothing. I also think I have vEDS, So I'm terrified that my blood pressure shooting up that high is going to cause an aneurysm. I get my results this Monday morning from my connective tissue panel. THANK YOU SO MUCH for this video. Hyperadrenergic POTS describes what happens to me. Finally! I think you just gave me the answer after a decade of searching!!!!!!😭😭😭😭💕💕💕💕

[@LaurelJohnstone]

I definitely know something is up, but this gave me something to go to my doctor with - thank you! Resting was 90 - went up to 121 within a minute of staging - dropped back to 85 as soon as a laid down.

[@mjenks85]

What was your outcome. I have appointment soon. Mine is usually around 85. Stand up and it goes to 125 ish.

[@victoriagomez5527]

Thank you so much! I believe that my daughter has some type of dysautonomia but I’m having a hard time being referred to a specialist. Drs just keep telling her that it’s psychological because she doesn’t faint every time she stands up or it happens several minutes after standing. You give me hope that there are Doctors who understand. Her heart rate drops to the 50’s and then shoots up to about 117 after that she has syncope. Thank you for sharing this info that not all POTS are exactly the same. Most drs don’t seem to know this

[@ianseaweed]

Incredibly well explained. Looking into this condition as I’m into my third year of Long Covid and all the disruption to my heart rate and blood pressure.

[@marky5493]

Oi I'm 2 yrs in, I'm also thinking along these lines........ Doc put me on desprin 300mg/day and In 2 days I lost that pain in the middle of chest that was there for months!!

[@NativeJewel]

Wow you are definitely helping those out there who possibly cant afford to get a diagnosis from a doctor and for that I give you hella kudos for.

[@TheMazinoz]

Yes, I had tilt table test, didn't pass out but felt very unwell and found it horrendous. No one told me the results, so waste of time and money.

[@Glambert714]

I just want you to know I appreciate all the videos you make because this one helped me finally reach my POTS diagnosis by providing my own data over a period of time to my doctor. You’re the best!!!

[@jennifertustin6629]

I had a tilt table test and it was by far one of the worst things I’ve ever gone through. I felt like I was going to puke for 10 minutes before just passing out. The 10 minutes felt like 10 years though. I couldn’t do much for the rest of the day either.

[@ana_bearr9424]

Same exact thing happened to me. The cardiologist said that was a “normal” reaction & said I definitely didn’t have POTS. I’ve been fighting for a diagnosis for 6 years & its beyond frustrating

[@GarethRain-h6k]

Thank you for explaining all this! I have a tilt table test coming up, POTS would explain so many of my issues I’ve had since childhood. I didn’t know it could be related to EDS, which I’ve also suspected for a long time. So much will make sense if my test is positive lol

[@yaelWolfebaz]

So much more helpful than most doctors thanks. I get lightheaded and out of breath every time I stand up without tachycardia so idk…

[@hyabiela4152]

thank you so much for explaning this illness. iv had these exact symptoms for over 6 months but my mum has anemia because of her periods so i thought my issue was something like that too. but my symptoms have been getting progressively worse over the months and i just turned 14. all of my symptoms matched exactly with the symptom criteria for PoTS and my bpm when resting is usually around 76 or 72 but upon standing its 136 bpm meaning it almost doubles. iv seen a lot of comments under this video that have said they’ve struggled getting a diagnosis because some doctors don’t understand or they ‘aren’t the right age’. im seeing my doctor tomorrow so wish me luck !

[@unnikrishnanpillai4499]

Does pots leads to heart failure ? Plz reply

[@aartiraghuwanshi389]

​@@unnikrishnanpillai4499my cardiologist said it is not related to heart but nervous system. Heart is perfectly healthy so I think it does not.

[@YellowPineappleHoyas]

Thanks for this explanation. I have EDS and havd been waiting 4.5 years to see a POTS specialist. I have been really struggling with hyperadrenergic POTS and knowing this information is helpful.

[@kelsieatwood5834]

I think it’s interesting that POTS is related to EDS! I have hEDS as my current diagnosis but am going to see a geneticist next month! (Hoping it’s hypermobile or a lower risk form of EDS). What’s interesting is that 2 years ago my brother had a dysautonomia (or however it’s spelled) episode and I experience POTS symptoms pretty frequently.. I’m hoping with a solid diagnosis I can receive closure and A REASON for why I have weird things always going on with my body😂 your videos are super helpful and I love that you aren’t complaining or wanting attention for having this illness but instead are raising awareness and providing some education about the conditions! You’re awesome!

[@NateKK7]

I was diagnosed with OI borderline pots because my heart medication’s lowered my heart down just enough to be at 29BPM rise. My symptoms are getting worse even doing everything they told me in a consistently measuring a 30 to 40 BPM rise and I can see my heart rate going up every time I move to check the pulse oximeter. The funny part is I left the state that my Specialist team is in and a new neurologist (which has never experienced a patient with oi or pots) said “I’m too young to have that that’s not what I have” and completely discredited three specialists that worked with me for over a year. Needless to say he’s not my neurologist anymore, furthermore he wouldn’t even do the damn tilt table test so see for himself. BTW 11:57 is completely true, saline fixes even my worst days. I constantly have issues and every time I get saline it fixes everything.

[@arny625]

Did a test 60 laying 160 standing TOTALLY HEALTHY-DOCTOR

[@tanakanicekill9744]

I did the lying down and getting up thing and mine went from 74 to 145 super quick and I almost passed out, that's a 71 bpm increase...gotta see a cardiologist and I'm lowkey kinda scared😞

[@morgenstarmusic3462]

yeah mine went from 66 to 151 and i--- wtf

[@SD-xv8ns]

How are you doing? :)

[@tanakanicekill9744]

@@SD-xv8ns I got diagnosed with POTS, and hEDS. I have to get iv fluids 2-3 times a week at home, I take Midodrine and florinef. The doctors also suspect gastroparesis and MALS. Might have to get a picc line and maybe even an ng tube to im able to get medications :/

[@SD-xv8ns]

@@tanakanicekill9744 Really sorry to hear that! Hope it will all go well for you, I’m sure the treatments will make it easier at least

[@tanakanicekill9744]

@@SD-xv8ns oh its ok :) thank you for asking💝

[@conniegarvie]

My two daughters and I all have Hyperadrenergic POTS. I'm just coming off a terrible flair. Thank you for this video!

[@shannononeill7108]

Thank you so so much for explaining at 5:05 about Orthostatic hypotension and POTS, I 100% believe I have both now, I’ve been diagnosed with Orthostatic Hypotension about 2 years ago and I’ve been on Midodrine but every time I stand up my heart rate shoots up in between 110-125 even tho the midodrine helps to not have my blood pressure go down. I see my cardiologist tomorrow morning so I will be mentioning POTS to him

[@naelna]

Your explanation is excellent! no one can do it better in my opinion. I'm testing myself and the increase in hb is exactly 30, consistently. no change in blood pressure. you said don't diagnose yourself, but it fits..

[@gigischuster3078]

YeP. I have a Service Dog that helps me with managing and alerting to it. Stairs and any time going up and down them, trying to move and rotate body as your moving after getting up and having or had a mild to severe episode, the more I move the worse it gets or pushes me into another episode.

[@themelonsoup]

I found a girl who was a contortionist and burlesque dancer who had EDS, and now I follow probably every EDS channel ever.

[@mairahussain437]

omg you are a genius .I just realised I have a third one I always thought I had anxiety I told my cardiologist he said it's all due to my anxiety. but this makes so much since my blood pressure lying down is 110 73 and it goes to 126 to 89 when I get up with a 50 beats rise.

[@kaylacote5376]

This is such an informative video, beyond helpful! Thank you!

[@IzzyKDNA]

so glad to hear it!

[@thisisaname4661]

I usually have to lay in bed for a while after waking up because if I get out of bed right away I'll feel extremely dizzy and nauseated. Then when I do get up I need to take it easy and often need to stand for a minute or so to collect myself. I have many of the other symptoms of POTS. This came on the last couple of years and has been extremely confusing. Some days I have to spend hours laying down before I feel ok. It's really hard to explain to people why I can't get out of bed and when friends ask "What did you do today" I often just lie or say something vague like "Not too much"... My mom got me on these amino acids and I found they do help a lot. I take them to be able to function during the day. Except they are over $50 a bottle which lasts a month so I only take half the daily dose and take the other half only if I REALLY need to. I do my best to tolerate my symptoms as best as I can without help.

[@lumbeejojonativedaughterdi9770]

May I ask what supplements you have taken that worked for you? God bless you. JoJo

[@samanthamorris427]

Do you have migraines?

[@macyjohnsonnn]

You explained this so well. When I was diagnosed with POTS I wasn’t told what type, i wish I was. Just going off of what you said mine sounds more like the second one. But hopefully next time I see a doctor I can talk to them about it

[@macyjohnsonnn]

I have POTS and hyper mobility

[@dr.shubhamaggarwal5729]

How hypermobility feels like?

[@dudee06]

laying down: 65-68 standing: 105-120 dizzy after 7 min of standing the moment i stand i don't see anything for seconds and then feel like my head is spinning for seconds and then my heart rate becomes faster. i saw people with worse symptoms than mine , i don't faint daily , i can take a shower standing without fainting , i can walk to the kitchen without feeling dizzy . i can walk for hours if i don't stand still at all , and rest every 10 min and drink water and eat food i might have arrhythmia and anemia but im not sure yet , im waiting for the results cuz i did the tests

[@HeavyMetalRubberDucky]

I was just diagnosed yesterday. It makes so much sense now.

[@DjokerNole42]

Thanks for explaining it so well. I needed to understand this for a friend and now I feel like I do, great job!

[@enzone45]

You're a good friend doing your due diligence and look ups online. Some people go at it alone or their 'friends' could care less about it lol! Stay safe stay healthy 🤙

[@artemisiou]

My heart laying is 50bpm and as soon as I stand up it goes to 150bpm. I'm still not diagnosed but I've kept a diary of my heart rate in different postures so I'm hoping this diary will get me the help I need after all these years being told I had anxiety.

[@billt689]

Does anyone here get a constant chest pain from POTS ? Don’t know if I have it but I am still suffering from Covid symptoms 7 weeks later and I just tried this on my pulse ox and went from 75 to 120 within 15 seconds and it stayed at around 120-130 for about 5 minutes until I sat back down.

[@xsquishycatx]

I've been trying to get a diagnosis for the past year but my doctor keeps dismissing my symptoms as "anxiety" :(

[@Oklmaooo]

Yes same went to The psychiatrist three times, went to a doctor both of them gave me antidepressants

[@Dogwithoutaname]

sitting, 73 HR. stood up and within 1 minute i was at 113. and I know i have hypertension and syncope&collapse already diagnosed. Im getting Tilt table soon at Dr. I was originally misdiagnosed with BPPV at age 2!

[@cori8489]

Vanderbilt's website explains that people can also have multiple types and that it is important not to always type the POTS someone has. I have 3 Disorders when it comes to Dysautonomia that I present as and that we have to consider for me. Hyperadrenergic POTS, Hypovolemic POTS, & Baroreflex Failure. My cardiologist is trying to figure it out. Mine has only gotten worse, especially this year.

[@IzzyKDNA]

yep! as I mentioned in the video there can be a lot of overlap and often people don't know or need to know what type they have anyway! but it can still be helpful for some people

[@cori8489]

@@IzzyKDNA oh yeah sorry I was just agreeing with you and throwing in more facts. I have a habit/quirk of always just adding what I know along with my comments. Sorry if that comes off weird. We're sure I possibly have high functioning ASD as well. I would also love to know what kind of pulse ox you have! It has one more measurement than mine does. Thank you for replying to me too!

[@KaitsterSaysHello]

wow! the links to other vids in the description made me subscribe. bless u

[@user-tb2jy9lu3d]

I've got POTS/Dysautonomia at 37 years old. Had 3 ER visits starting in December 2019. Healthy, fit, muscular and not overweight male. I do have sleep apnea (64 apneas/hour), but I've been under BiPap treatment for 2 months and it doesn't appear to be related to that. My numbers are down to 1 event per hour. Went to a gastroenterologist and had a swollen stomach lining for known reason. Rapid heartbeat and blood pressure going up and down. I don't get that big of a change in heart rate from lying down to standing, though. My blood pressure does go up and down. Some nights at 4am it can be like 155/125 blood pressure and then a couple of hours later be 118/75. When standing during the day, it is usually more so 105/70. When I mowed the lawn for 10 minutes at moderate speed, my heart rate hit about 160-170. Resting heart rate 5 minuets afterwards (while sitting) was 150. I've seen an endocrinologist. No thyroid issues. Sleep doc says it isn't his field. Primary care doc says Dysautonomia/POTS. I don't faint, I just get dizzy, brain fog and toss and turn a ridiculous amount of times all night. I definitely don't have EDS because I'm not very flexible. Got a tilt table test coming up next month and also a visit to an electrophysiologist and a sleep neurologist. My arms/legs move an inch or two during sleep and no movement disorders were detected during 3 in-lab sleep studies. Can't focus enough to drive and 24/7 malaise for no known reason. I only feel decent when lying down. Sleep is not restorative.

[@aliceherley812]

I every type of POTS that you spoke about and EDs3 it's been a hard life. So thank you so much for these videos. I'm 48 and still going through hell.

[@flermaler4361]

Hummm i suspect having this and EDS, I already have endometriosis diagnosed, but I got a lot of symptoms similar to eds and pots, but I've been told that I cannot have EDS because I don't dislocate that often (I had a real dislocation one time) the doctor just asked me this question and did nothing else, I asked why my joints are hypermobile, a lot of doctors told me that before, why I got scoliosis and all of these symptoms joint pain, join pops (some are painful) she just said "because you are made like this".... and for the pots I suspect it cause since I was 10 at least when I go out of the shower my feet's are red like yours, I got my heart beating so fast a lot especially when I go from sitting to standing ... I did the test my self today, like you mention.. and when I'm absolutely normal my heart pulsating is 72 and when I stand up it goes 98 .... I got an appointment Wednesday but I'm scared the doctors don't know anything about Eds or pots and tell my that it's fibromyalgia...

[@gothgirlasmr]

I had no idea what POTS was I had never heard of it before but over the past few years I've been fainting walking around at the mall or even going to the movies walking up the stairs. I was so confused I thought I was just dehydrated or something but it's been happening every time I get up. I finally did the home test I had 64bpm laying down and 115bpm standing. I think I've finally found an answer to what's been going on with me. Im gonna start trying to get a diagnosis.

[@eggsbenedict4287]

I've been trying to get my mum to get me to a doctor about pots (I'm 13) and she let me do the stand and sit so I layed down and stood up like you describe, and I went from 83bpm to 138bpm and my blood pressure dropped, and she said she'll look into it is thanks for this video so I can convince her to get me to a doctor :)

[@lenagoodwin8223]

Me to my doctor for years: I get dizzy every time I stand up Doctor: everyone gets dizzy sometimes when they stand up too quickly Me: facepalm So glad I discovered channels like yours on KZbin so I could actually get a diagnosis after almost 2 decades!

[@roehiser8053]

I know this is an older video, but it's been helpful, thank you. I'm 29 and since I was 12, right after having Rheumatic Fever, I started showing symptoms of POTs or Orthostatic Hypotension. In 2015 I started having horribly strong heart palpitations and was diagnosed with Rheumatic Heart Disease caused by having Rheumatic Fever when I was a kid as well as SVTs, PACs, and Mitral Valve Prolapse. The thing is, I didn't know I had Rheumatic Fever, my mom was really abusive and thought I was making the symptoms up. Well, now that the years are passing I'm realizing that a lot of things that I think are normal other people don't experience. This coming January 6th I have a cardiologist appointment to possibly get diagnosed for either POTs or Orthostatic Hypotension... I'm unsure which it is, or if it's my other heart conditions causing the constant blackouts when I stand up, but realizing it wasn't normal has finally opened my eyes. Just knowing what possible tests could be done and possible medications they might try is very helpful, so thanks!

[@IzzyKDNA]

good luck at your appointment! I'm glad to hear that you're going to see a doctor to talk about these symptoms

[@hivemindgoblin8540]

I’ve have PTLDS after having had Lyme for 12 years without treatment, and since I got that I’ve had a hard increase in what feels like heart problems, with bad palpitations, severe pain and other issues like sudden faintness, passing out after standing up, briefly losing function of my legs after standing up and literally just falling because of it. My normal BPM ranges 77-87 but can shoot up to 150-160 just from standing upright. Now my healthcare team just started to consider POTS and I have to have appointments made with specialists. The thing I might consider strange is that it doesn’t always happen just from standing up. Sometimes my heart-rate shoots up to 120-130bpm while I’ve been laying down (relaxed, I am not anxious) for a few hours. After one particularly bad day that I ended up passing out and my heart was hovering at about 160bpm all day, it maintained high rate while I was sleeping and I kept awakening to alerts from my watch for the rest of the day, while I felt completely faint and incapable of moving all day. Does anyone who has POTS experience this?

[@LIu-h9n]

me . ihave same your prblem

[@LIu-h9n]

Why do I have the same symptoms? Exercising intense jogging. Is it due to jogging, given that I had a sore throat a few days ago?

[@hivemindgoblin8540]

@@LIu-h9n Buddy, why so bitter? This is a video of people talking about their experiences, so of course people in the comments are going to share theirs as well. I clearly stated that my *doctors* and specialists are the ones considering POTS, that this isn’t something that I’m “self diagnosing” or whatever. I’m just trying to wrap my head around the possibility- it’s a scary thought because POTS is a chronic illness. I understand symptoms can be attributed to hundreds of different things and peoples experiences can differ wildly. I was just curious if I was alone in this- it would feel nice to know that I’m not. Hope you have a good day🌱🌻

[@LIu-h9n]

@@hivemindgoblin8540 Excuse my poor English. I'm just wondering, does exercise have anything to do with the problem of high heart rate? Because I'm not feeling well after jogging hard

[@hivemindgoblin8540]

@@LIu-h9n Yes, your heart rate rises during hard exercise, and exercise in general. This is something that is considered normal and isn’t necessarily indicative of any problems. It’s usually only a concern if your heart rate skyrockets when you *aren’t* exercising, but instead just doing normal/non-taxing things like standing or lying down. If you’re feeling sick from exercising, but only from exercise, then that probably means you’re just pushing yourself too hard! Switch between jogging and walking, let your body work up to and train to be able to handle harder exercise! Hope that helps☺️

[@poppyEars]

my cardiologist brought up POTS after my tilt-table, which i had kind of expected and done some cursory research beforehand, but he described it as kind of a nebulous diagnosis (which i think is a fair description.) your description of the different types of pots was really helpful and was never really clear to me, a lot of lines would blur and i would have a hard time explaining to other people in turn........ thank you so much for this video!! i love clear and thorough information :)

[@olivian7266]

THANK YOU for this video. I was confused because I have every POTS symptom but my heart rate shoots up but my dialastolic blood pressure was going up. I was so confused why that was happpening but the specific types makes sense. I also was told pots gets better as you get older but it has gotten worse so that was also confusing but knowing that specific type gets worse makes me feel better to know i'm not crazy. I have been in so much pain for so long and I was so confused, thank you

[@rachelm.7327]

Yes!!!! Thank you so much for showing your blood pressure. I have tried googling if my change in bp is normal, but i haven’t found a real answer. My bp is pretty much exactly what yours is when sitting and standing, except that my systolic drops a bit more when I stand. It’s nice to see that I’m definitely not alone with this issue.

[@pastorgibson5357]

I too have EDS...Type 3 (ELHERS-DANLOS Syndrome Hypermobility) and POTS due to EDS. I appreciate your video!

[@chadsmith951]

Thank you so much for the videos. Super super informative. I hope this finds you well. If you ever get a moment, just wanted to hear any thoughts on my wifes poor man tilt table results. Not asking any diagnosis, just thoughts and opinions. Lying down BP 129 - 78 - Pulse 59 Stand up 3 minutes - BP 138- 97 - Pulse 95 5 minutes - BP 111- 86 - Pulse 109 10 minutes - BP 112 - 83 - Pulse 127 Based on her results, in making a guess. Id say she has both. They said if pulse goes up and not much change in BP, its Pots. If the BP drops and pulse goes up then thats Orthostatic Hypotension. But the confusing part is they say the symptoms of Orthostatic only lasts a few minutes. Her symptoms have lasted 3 months. It looks like at the 10 minute mark her diastolic starting to get closer to normal but her pulse continued to rise. Any feedback is appreciated. thanks

[@shilohivy4590]

I think I have this. I did chemo four years. Before chemo no issues. After chemo, heart rate (resting) 120 and I have the I’m going to pass out when I stand. However this is not every single time. I’ve had numerous heart dr visits where they dismissed me as crazy or “too young” ect. It’s very frustrating

[@Petsura]

I had to stand for 15 minutes, a freaking nightmare for my EDS-body! 😅 ( my life before EDS hit me like a truck was basically standing front row at concerts, my biggest passion - it's been 10 years since I attended a live concert 😢). And yes, POTS was confirmed. I'm taking beta blockers and drink lots of water. Salt capsules is essential in summer. I rarely faint, but the pre-syncope is scary, basically going blind and deaf. I quickly get on the floor. It's so much more to POTS than that, but most of us here is aware of that I guess. And you're explaining it very well, Izzy!

[@jaclynmaicamalate1393]

this pots i saw it with my 8yrs old daughter all the symptoms, is that possble kids get pots? and also whats the abnrml rate for heart rate if we try to do it at home and also do kids need to check bp?

[@Jigsaw_442]

Not a doctor but I do focus a lot in medicine and also happen to have POTS. For your kids you’re going to want them to do the same at home test and you are going to try and find an increase of 40 or more BPM form their resting. Blood pressure isn’t exactly necessary unless you want to figure out if it’s hyperadrenergic POTS or the others. Hyperadrenergic is the only one where you’ll see both the BP and heart rate increase unlike the other types where it drops or stays close to same.

[@Jigsaw_442]

Also forgot to say that yes kids can get it because it’s really just a dysfunctional nervous system not knowing that what it’s doing it wrong. Upside is because they’re young they might be lucky enough to grow out of it unlike some people.

[@nichellehowell]

Dr Berg says to take b1 for pots. It really helped me!!!

[@AhmadHennawi-dn3vo]

Is ur pots cured with b1 ??

[@SobrietyandSolace]

Laying down, 75 standing up it was 143 and the machine started beeping, I felt weird, oxygen saturation dropped to 93 (?) momentarily, so I sat down again. That was a day I felt particularly weird. Usually I hover around 105-120 when standing and go back to 65-75 when sitting. I suspect EDS (7/9 Beighton score and lots of symptoms)

[@TinyPigy282]

I often feel dizzy just sitting down, could that link to POTS. My resting heart rate is low at like 45-56bpm, when i stand up it goes to about 120 but it doesn't stay up for too long i don't think, well atleast the passing out symptoms go away kinda quick. I've never passed out but been close a couple times. I was put on Propranolol for my migraines, i don't know if that helps or could make it worse. I was told to just drink more water and consume more salt but it's not helping. I'm scared the gp won't recognize the condition if i mention the symptoms I was born with a VSD (hole in my heart) however i think the hole has closed now but maybe that relates idk My circulation has always been bad, purple hands/feet, tingling in the hands and feet. Pins and needles a lot of the time. I experience just pain sometimes and often can't just stand up and do things when standing because my balance seems off i "wobble" sometimes

[@Steampunk_Ocelot]

I seem to be slightly under the needed for diagnosis. I have CFS which is a common comorbidity. One of the first symptoms I had was the dizziness when I stand or sit up.

[@toby-talks]

Thank you for the informational video! (I realize I am a few years late to when this was posted, but I've been looking into POTS recently.) I feel like something is wrong and am experiencing many if not all POTS symptoms, but my parents are convinced I'm lying (now I feel like I'm faking it). I'll continue to do research. Thank you again for this resource!

[@Flute2468]

My heart rate doesn't always go up 30 bpm, but from what I've read, it just has to be over 120. Mine goes up to 120 (from around 90-100 resting) within 5 mins and will keep going up. I go to about 130 in 10 mins, which i guess is 30+ bpm, but sometimes I'm only at 122 and I feel dizzy.and then it sometimes go up to 145 after standing longer than 10 mins. If I lay down, it goes back down right away.

[@DoubtToFact]

How are you now?maa'm

[@wisdombright9821]

Did anyone here start getting this after stopping blood pressure medication like beta blockers? Laying down :65bpm Stands up: 120bpm ( with 1 min of standing) Lays back down: 51bpm Stands up for longer than 15mins and I get woozy and light headedness.

[@stevenwilliams1140]

Yes i did

[@sophiebramley9595]

Yes! Has it gone away for you yet?

[@wisdombright9821]

@@sophiebramley9595 Yes, it's gone now. Took about 5 months to feel normal again. I took propranolol for anxiety and after stopping them I began having nasty withdrawal symptoms including Pots.

[@sophiebramley9595]

Thank you so much for this good news!!! I stopped in September and still have symptoms. It is improving but very slowly. So glad this went for you - fingers crossed the same for me. I took propranolol for anxiety too! Never again, worst drug ever

[@sophiebramley9595]

@@wisdombright9821 sorry i didn’t tag you, see reply above

[@andreamarie0727]

I’m a medical assistant and these “manual” test by laying down is called orthostatic blood pressure. What we do at my office is have someone lay down for 5 minutes, stand up and take it as soon as they stand up, then take again after 3-5 minutes of standing.

[@Lunaphire]

87 to 132. Yikes. I can't believe I'm only first trying this today when I've had a pulse oximeter and suspected POTS for years (with doctors never offering to test, naturally). I think I'm going to be much pushier about the test, now. I'm also nauseated and absolutely exhausted after standing for that long. I probably should have sat down as soon as I started to feel lightheaded, but that was less than a minute in and I wanted to track the whole time...

[@jessikarlen445]

My resting heart rate is never below 80. My. Sitting down heart rate was 85 My standing up was 146 A 51 point difference cardio appointment February 7th

[@theEVILonionRAT]

I have POTS and my heart rate increases sometimes almost 200 bpm. Idk what type of POTS I have the doctor just diagnosed me with it, but I’m pretty sure I have hypovolemic POTS.

[@maggietoscaro9149]

Me and my doctors are trying to get to the bottom of my worsening hypotension and the appearance of hypertension. I've been tested for Addison's, Adrenal Insufficiency, Genetics, Arrhythmia, and Vasovagal Syncope with no luck. We are now at a standstill. I decided to say "Why not?" and proceeded to do the laying down test and then the standing up test. My laying result was 102/65 with 57bpm. After standing for 10 minutes I was at 107/83 with 110bpm. In your honest opinion do you think I should bring this up with my doctor so we can look into it?

[@brigittabottlik7042]

The same testing results for me. Have you beem diagnosed with something since?

[@winxclubstellamusa]

Yes!!! I hope that you did.