J Pouch Surgery 6 months later! Including tips and tricks on dehydration--butt burn--working out

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Hey guys! It's been a very long time for a VLOG due to some bumps in the road.
But I'm feeling better and back to share some tips and tricks I've learned regarding:
-Butt Burn/itch
-Dehydration
-Bathroom usage at work
-Working out
Here are the links for products I've mentioned in this video:
At Home Bidet:
amzn.to/2TbAXMt
Travel Bidet:
amzn.to/3dLz3vx
Drip Drop hydration powder:
amzn.to/3kc2A3T
** I am not a doctor and the statements in this video are of opinion only

[@skater4life1031]

Just started watching you today and thought- me too- j pouch soul sister! I had colorectal cancer stage 2 and have had my j pouch 3 years. It is an ongoing journey that changes daily. My work around is to drink lots of water, eat healthy and find love and joy daily cause it can wear you out! I’m an ice skater, mom and work full time so I know you will do well. My goal is to not just live but to THRIVE. My best to you in your journey 🤗

[@rosierosehealth3138]

skater4life1031 yes girl!!!! I agree!!! Not live but thrive!!! Thank you!!! My best to you too on your journey!!!

[@etiennelouw9244]

I had a Parkes Pouch Procedure over 30 years ago and when my wife suffered from gastric reflux the Doctor we saw explained acidic foods to her and the light switch went on in my head. I have not had coffee for 30 years and drink 3 liters of water a day to be hydrated. Judo, karate and motorcycle riding (burpees and exercise wheel for my gut) is for fun and hiking. A Vogel multiforce Alkaline powder once a month and probiotics once a week and life is a blast.

[@ericland512]

EXCELLENT INFO HERE . Miss Rose nailed it in 20 mins. ( I was J-Pouched In 2011) The Bidet is a must ....101% I also had the Devil tears poop too . (OMG the hell of that.) My Doc saved me with a RX powder called "cholestyramine" that you mix in 2-6 oz. of water twice a day ......it has helped me big time , also A&D ointment is helpful when needed. I rediscovered bike riding ... that too has helped quite a bit . As far as the dating thing go's , just be up front with it . Pacing out when and what I eat helps to ... I run heavy equipment for a living and can't be using to Blue Space Shuttle ( toilet ) a lot .....especially in the winter ( burr ) That being said .... the J-pouch was the right thing for my life style . Snow / water skiing is ruff with an ostomy . Most of all try to keep a positive attitude .... take care of yourself and things will plane out . I too would be happy to offer any support to any of you going down this J-pouch road , feel free to hit me up ! Lastly : All of you ( and Miss Rose) who post these videos for us ..... THANK YOU SO MUCH ! Good Luck all !

[@skater4life1031]

Ditto cholestyramine!

[@PressPassThePain]

Thats AMAZING that you don't have to take Metamucil....I've had my jpouch since 1998 and I was told to take it to help binde my stools if I don't take it my stools would be straight watery stools which = buttburn. So what a Blessing it is that you take nothing. Thanks for sharing I look forward to more videos so I subbed to you.🤗

[@rosierosehealth3138]

Jeneen Wilson thank you! And thanks for watching! I'm thankful I've been pretty lucky to not have to take Metamucil. The only time I get watery is if I eat something like dairy. OR Missions new gluten free flour tortillas. 🙄 boy, those killed me!

[@genericx2347]

@@rosierosehealth3138 I have a j pouch.18 years.I love your advice.Anyhow I wanted to ask if you are gluten free?I am,just started 3 mo. ago.I firmly believe it was causing ankylosing spondilitis.Let me know what you've learned about gluten.You are a vibrant woman!

[@lisatakeitorleaveit]

my boyfriend has a j-pouch and he told me a few weeks in . Now i am always trying to help him and thats why im here! He has the burn bad right nw! xoxoxo

[@ericland512]

have him try "cholestyramine" ask his doctor . And get a bidet for sure .....and A&D Ointment will help to .. Good luck to you and your boe

[@modernman4269]

Hi ILEX paste from France, and psylium.husk, if u need to contact me it's [e-mail] for extra info butt burn is so painful excruciating!!!!!

[@KonradSchK]

Thanks for your story! Got my JPOUCH wednesday. I have a craaaazy amount of toilet vistis. Glad to here that im not the only one experience this. greetings from Denmark

[@rosierosehealth3138]

Konrad SK Congratulations and good luck!!!! 💜💜💜

[@eddiemckahan6902]

Thanks for the video. I'm dealing with All of it just got the j pouch 3 months ago

[@Your_Degenerate]

Wow, only 4 times a day sounds great to me. I went the ileostomy route because I was concerned with still having forceful evacuations and having to still go 10X a day. I am still going maybe 7-10 a day but there is no pain or forcefulness anymore. They always say either way that life gets better and a few months in it seems true. Somethings you say sound like they could be better for me. Thanks for the honest talk.

[@rosierosehealth3138]

DegenerateProduction of course! Things WILL get better! I'm officially 1 year out from my second surgery and I can't believe how much better I feel and how far I've come! So keep the faith! Things WILL get better!

[@CallOfBrians]

I've watched all your videos and got a lot of value from them... hopefully having my takedown next month, I've lived as a ostomate for the last 8 months and I think i'm ready to say goodbye to the bag :P

[@rosierosehealth3138]

I'm so glad that my videos have been of some value to you! And congratulations on getting to move forward and say goodbye to the bag! Good luck to you!!

[@kobalt77]

How are you getting on Matty ? I had my stoma reversal 2 months ago, I,m getting better, but still very erratic. Hope all is good mate !

[@CallOfBrians]

First few week where bad because I never knew how to empty the pouch fully and would get bad gas pains... but now 4 month after takedown I only go to the toilet twice a day and I don't have to get up during the night. Life with a J-Pouch is good man . Hopefully it will get better for you

[@kobalt77]

Rosie your videos are a great help :)

[@kobalt77]

At 2 and a half months, things are getting better slowly, but still up during the night.................... some good days some very busy LOL ...................... Have you noticed anything in your diet Matty that has helped you ?

[@666newcastle]

Just had my takedown 5 weeks ago I’m 36 And this was the last of the 3 surgeries This has been the hardest most psychological hardship so far. I’ve tried everything I feel like the only thing that works is painkillers lomotil and Imodium 4 times a day. I hope these issues subside otherwise I’m going permanent stoma. This buttburn and lack of sleep from bowel movements is hard. I’m reading these comments and it appears it never goes away at least with the pouch I could eat what I wanted idk help me!!!!

[@rosierosehealth3138]

666newcastle hey! I’m sorry you’re going through that! Your metabolism will eventually slow down to match your digestive system so you’re not going as much. Also you really need to look at what you eat. That was the thing that solved most my problems. Cheese or any kind of dairy really, makes my output runny and non stop. I become a poop machine. So I cut that out. I also found out nuts (except peanuts) no matter what form they’re in (butters, mills, raw) are the most painful thing I can ever do to my booty. It makes me swollen so I’m constantly having to go since I can’t get everything out in one sitting. AND it feels like shards of glass coming out of me. I don’t know if it’s an enzyme thing or what. So I cut those out as well. There’s some other things but I found those were my main problem. What you eat is everything. It sucks not being able to eat like the rest of the world. But I’m fine sacrificing those things so I can feel normal. Everything also gets better with time. I now only get up on e in the middle of the night and sometimes not at all!

[@kobalt77]

Thank you for sharing Rosie, you are awesome ! :)

[@davidbolte5928]

Hello. I have a Jpouch and have had it for 20 years. Having problems with bile. Any suggestions?

[@bevlarabie8393]

Hi ROSIE , just noticed you on u tube & WAS INTERESTED IN THE BRACELETS . unfortunately I'm living in Canada & cannot order from over here.. I'm a j poucher for the last 3 yrs.(and going well).. any advice on ordering those would be helpful. thanks ALL THE BEST BEV

[@rosierosehealth3138]

Hi! I'm not sure what you mean by bracelets?? The only bracelets I have are Jake Diekmans "Gut it Out" bracelets. Is that what you're talking about?

[@NozrulIslam-bo9nb]

Hi rose. thank you for sharing your personal experience ulcer colitis J pouch experience it's really helpful . my name is noz I am from Toronto Canada. 3 years ago I had serious Colitis disease then doctor remove out my colon 6 mouth ago . yesterday I had j pauch surgery so I'm falling you instruction is very helpful thank you . God bless you

[@ErikaV82]

I just had my reversal done two weeks ago . I'm still trying to get used to the jpouch. I lost 25lbs I just hope i gain my weight back. I'm wondering did you lose weight and if so how long did it take for you to gain it back?

[@rosierosehealth3138]

Erika Vazquez don’t worry! You will! Your metabolism has to adjust. Your metabolism is still going it’s normal rate for a full digestive system...when you now only have HALF a digestive system. So things are going through you way too fast right now. Absorption is hard. Your metabolism WILL adjust. I ate a little meat with every meal to slow things down. It probably took me 4 months to gain my weight back!

[@anthonymaldonado4776]

Hey love your videos do you have a Facebook page or email. I had the same surgery a year ago

[@rosierosehealth3138]

Hi Anthony!! I do have a Facebook page! m.facebook.com/Makeupbyrosierose/ My email is [e-mail] I also have an Instagram as well. Look up ___rosierose___ or Rosie Bainter. Glad you like the videos!! Feel free to ask me any questions anytime!

[@dustinriddell6435]

hey you are very beautiful girl and thanks for the info

[@rosierosehealth3138]

Dustin Riddell thank you!!! And I’m glad I can help! Email with questions anytime!

[@dustinriddell6435]

Rosie Rose what's your email and do you have a Skype I'd love to Skype u and ask a few things

[@ladyaquarian3022]

Trust me it doesn't work as well when you work in a call center. they not as understanding. I have had mine since I was 21 years old. i was diagnosed with UC and Crohn's. Large colon and part of small colon removed.

[@genericx2347]

Do a vid. We miss you.

[@rosierosehealth3138]

Working on it! You should see one in the next week!

[@emiliosmanoli1976]

I don't want to get a Jpouch.It sounds scary..